Information and resources

It can be very difficult to hear that your child has TOF/OA. It’s natural to want to find out as much as possible. However we know from experience how easy it is to worry about issues that may never affect your child. We have developed information and resources on many aspects, from a simple explanation of TOF/OA to more detailed leaflets and factsheets. If you are new parent, we suggest you read our dedicated page for new parents, before going on to read our leaflets.

You can share experiences and hear about progress from other families with Chew, our quarterly newsletter for members.

The TOFS FACEBOOK GROUP now has nearrly 3000 members. It is managed by TOFS Trustees and provides a platform where you can post your questions and receive responses from others in a similar situation

Our book "THE TOF BOOK" was published in January 2017This is a brand new book which and has replaced a much earlier book "The TOF Child" It is primarily aimed at parents and carers, but also recognisies and addresses some of the problems which can continue for some throughout lifet. The book will also be useful to many others, especially non-specialist medical professionals, like GPs or district nurses. You can buy "THE TOF BOOK" direct from AMAZON - it costs £15 plus postage For Amazon prime members living in the UK postage is free. 

Contact the TOFS office if you have problems making your purchase:

Take a look at our leaflets and resources here.

If you’re not sure what you’re looking for, please contact the office. We also offer one to one help to our members on specific queries. However we do not offer individual medical advice to parents and work only in a supportive role.