Latest News

  • Photo Competition: 'Our Way' won!

  • Published: Thu, 15th February 2018, 12:08 PM
  • We are delighted that KEKS, our equivalent organisation in Germany, won the prestigious EURORDIS photo competition!   This photo by a mother of a child with TOF was entered by our equivalent patient support group in Germany ... [Read more]
  • Book your tickets for our AGM and Save the Dates

  • Published: Mon, 12th February 2018, 10:19 AM
  • Saturday 24th March 2018 11.00 am - 1.30 pm AGM 2018 and Party, Conkers, Derbyshire We  are delighted that our AGM 2018 and Party will be held at Conkers, in the heart of the National Forest, near Ashby-de-la-Zouch DE12 6GA ... [Read more]
  • UK Healthcare Professionals known to treat Adult TOFs

  • Published: Wed, 7th February 2018, 10:39 AM
  • UK Healthcare Professionals known to treat Adult TOFS This list is simply a list of professionals known to treat Adult TOFs; we can't recommend one over the others. Is your heathcare professional on this list? If not, please cont ... [Read more]
  • Wanted: your TOF friendly recipes for our new recipe book

  • Published: Thu, 25th January 2018, 10:30 AM
  • Our new TOF friendly recipe book We already have a number of recipes that were contributed some time ago - thank you and no need to resubmit those - but we'd love some more.  We'd be particularly grateful for any suitable fo ... [Read more]
  • Surgical Site Guidelines Committee for NICE

  • Published: Mon, 8th January 2018, 12:41 PM
  • The National Institute for Health and Care Excellence (NICE) produce guidance on the most effective ways to prevent, diagnose and treat disease and ill health, and provide social care support. NICE are currently recruiting patien ... [Read more]
  • Happy Christmas

  • Published: Wed, 20th December 2017, 11:44 AM
  • Merry Christmas to all our members TOFS office will be closed for the Christmas break from Friday 22nd December, re-opening Tuesday 2 January at 8.30am.  If you require urgent parental support during this time, please see th ... [Read more]
  • Meet our London Marathon 2018 Runners

  • Published: Wed, 20th December 2017, 10:23 AM
  • Lee Barnard "I was born with TOF in 1979 at St Mary's Hospital in Greater Manchester, and was operated on the day after. Subsequently, I had half my left lung removed in 1983 after choking and flooding my lung. In April 2015 I h ... [Read more]
  • Frontiers 'Update on TOF/OA'

  • Published: Wed, 13th December 2017, 12:57 PM
  • 'Frontiers' are a community-rooted, open-access publisher, who publish scientific articles for everyone, including the general public. You can read more about them here: https://www.frontiersin.org/about/about-frontiers The ... [Read more]
  • TOFS Book: an ideal Christmas gift

  • Published: Wed, 13th December 2017, 11:11 AM
  • "The TOF Book" by Vicki Martin and David Crabbe Are you stuck for an extra present for someone in your TOF/OA family? Just go to http://bit.ly/TOFSbook to get a copy of this highly rated book, which has an incredibl ... [Read more]