News Entry


  • Our 2017 Family Conference is now SOLD OUT

  • Published: Mon, 25th September 2017, 10:22:00 AM
  • TOFS Family Conference, Saturday 14 October 2017 (all day) at Holiday Inn, Luton-South, M1 Jct 9.


    Our Conference is now SOLD OUT. If you have missed out on getting your ticket, please contact the TOFS Office on 0115 961 3092 or email if you wish to be put on the Reserve List. We cannot guarantee that there will definitely be tickets available for you on the Reserve List.


    Our Speakers

    'Review of international efforts to pool expertise and develop guidelines relevant to OA/TOF treatment', Professor Frédéric Gottrand, Professeur of Paediatrics, Reference center of congenital and malformative esophageal diseases, University Hospital of Lille, France.

    'Why TOF/OA children are prone to respiratory problems, and what can be done to keep them in good respiratory health', Professor Harish Vyas, Emeritus Professor PICU/Respiratory Medicine, Department PICU/Respiratory, Nottingham Children's Hospital, Nottingham University Hospitals NHS Trust.

    'Adoption of international care standards for TOF in the UK: what needs to be done' and 'Upper GI problems in TOF/OA children', Dr Nikhil Thapar, Academic Lead for Gastroenterology, Stem Cells and Regenerative Medicine Section, UCL Great Ormond Street Institute of Child Health and Consultant Paediatric Gastroenterologist and Head of the Neurogastroenterology and Motility Unit, Great Ormond Street Hospital

    'Reflux, Barretts and other GI problems in adulthood', Mr Nick Maynard, Consultant Upper GI Surgeon and Cancer Lead Clinician for Oxford University Hospitals. Mr Maynard contributed the chapter "Oesophageal Problems in Adult Life" to the TOF book.

    'Facilitating safe, emergent oral feeding in children with TOF/OA', Mrs Christine McCormick, Clinical Lead Specialist Speech/Language Therapist, (Acute Paediatric and Neonatal Dysphagia), Royal Belfast Hospital for Sick Children.

    'Psychological impact of rare medical conditions: Supporting mental health and wellbeing of families affected by oesohageal atresia' Dr Vuokko Wallace, Teaching Fellow and Clinical Psychologist, University of Bath. Dr Wallace is an adult TOF and an expert in psychological aspects of health conditions.

    'Transition to adult care - ongoing research' Mr Stefano Giuliani, Consultant Paediatric Surgeon, Great Ormond Street Hospital


    What to expect on the day...  

    If you're an Adult TOF, the parent of a TOF/OA child, relative or interested medical professional, this conference is for YOU.  Share experiences and ideas and hear about medical techniques and management of TOF/OA.  

    The conference will provide an excellent opportunity to ask those questions that have been bothering you for ages and it will be a great place to meet and network (during the long lunch and refreshment breaks) with other parents of TOF/OA children and TOF Adults too. 

    Special-priced accomodation is available at the hotel should you decide to make a weekend of it. £65 per night for a double/twin room (including breakfast) or £90 for a family room (sleeps max four people), cancellable until 4pm on the day of arrival. Offer only available when booking direct with Holiday Inn, Luton-South.  Tel 01582 449900 Mon-Fri 9-5.30pm and quote 'TOF1310'.


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