News Entry


  • Photo Competition: 'Our Way' won!

  • Published: Thu, 15th February 2018, 12:08:00 PM
  • We are delighted that KEKS, our equivalent organisation in Germany, won the prestigious EURORDIS photo competition!


    This photo by a mother of a child with TOF was entered by our equivalent patient support group in Germany (KEKS) to the photo competition Black Pearl Award. This is a worldwide patient initiative under the auspices of EURORDIS (Rare Diseases Europe) and RDI (Rare Diseases International) in support of Rare Disease Day on February 28th, 2018.

    We are delighted for KEKS that this photo beat hundreds of submissions from more than 50 countries! 

    "Our Way" shows impressively how challenging and lonely the path of a family can be, especially if, from the outset, the treatment of Tracheo-Oesophageal Fistula and Oesophageal Atresia does not go well. However, the photo deeply touched us because it also reflects tenderness, the will to live, family cohesion and perseverance. The photo of Nicole's son Lenny and his sister has overwhelmed us all.

    Thank you so much to all our Members who helped us by sharing and voting for this photograph. We are very grateful to you all.



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