If you are the parent of a child born with TOF/OA or VACTERL, let us first say that we appreciate what a shock this must be for you.
Give yourself the time and space in which to come to terms with this. You have a wonderful new child: he or she may have a problem which you did not expect to have to deal with, but your new baby wants all the love and care that every baby needs - being born with TOF/OA just makes them a little more special (if that is possible!).
Your friends and family will be equally shocked by the news, and may not know what to do or say… hard though it may be for you to do, it will be better all round if you tell them what you want - be that space and solitude, company and someone to talk to, or practical help.
TOFS is here to provide support for you and your family when you feel you need it. We recommend that you learn about TOF/OA at a slow pace. We know from experience how easy it is to worry about issues that may never affect your child.
If you would like to join TOFS, we can put you in contact with other parents who have ‘been through it all before,’ and who will stay in touch with you to offer support for as long as you need it.
Why not visit our online community to make contact with other parents and relatives? Take a look at TOFS Events to find about meeting families in your area. Our website provides a range of information, from a simple explanation of TOF/OA to more detailed leaflets and factsheets. We do advise that you learn about TOF/OA in stages.