We are happy to announce the release of our extensive publication aimed at supporting health professionals to treat those born with OA/TOF.
This substantial work highlights issues faced by OA/TOF adults and teens and covers areas including, respiratory, gastrointestinal, VACTERL, nutrition and dental complications amongst many others.
We understand that it is impossible for medical professionals to be fully informed about the near-infinite number of rare diseases that exist, but with this handbook, we hope that we can fill the knowledge gap for OA/TOF and help them understand, treat and signpost treatment to the appropriate specialist when needed.
Please share the handbook with your own GP or medical professional.
Our thanks go out to the handbook’s author, Dr Caroline Love (herself an OA/TOF adult) for creating this valuable resource, and those who peer reviewed the publication: Julia Faulkner, Mr Nick Maynard, Professor Alyn Morice and Dr Vuokko Wallace.