Anorectal malformations & Hirschsprung’s disease – new sexual support website launched

How can an anorectal malformation (anal atresia) or Hirschsprung’s disease affect sexuality? What can be different than in others without these conditions? What can you encounter and how can you deal with it? Answers to these and other questions about intimacy, sex, sexuality and sexual development can be found on the new ERNICA/eUROGEN sexual support website [In Dutch and English].

This website is designed to support patients with Hirschsprung’s disease and anorectal malformations, their parents and healthcare professionals involved in their care.

The original version of this website (in Dutch) was developed by project group ‘SO’ (Seksuele Ondersteuning anorectale malformatie & ziekte van Hirschsprung) in close collaboration with patients and specialist practitioners in the Netherlands. See research paper by Violet Petits-Steeghs et al. (2020) for more information on the project.

The Dutch website has been translated into English and adapted (where relevant) for an international audience.

Do you want to help us improve the website or give feedback?

ERNICA and eUROGEN are calling for website users to (anonymously) evaluate the use, applicability, expected empowerment effect and experience of this sexual support website tool on healthcare professionals, patients, parents and other relations on an international level. This evaluation aims to identify areas where the website can be improved to ensure it is fit for purpose and meets the needs of users. It may also help to shape new resources or initiatives in the future. Find out more here!

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