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Vacancy: Membership support and communication officer

Would you like your work to have a direct impact on people’s lives?  Do you want to use your organisational and communication skills to help others? Do you love the idea of making a difference and getting paid for it? 

TOFS is the only UK charity providing support and information to people born with Oesophageal Atresia and Tracheo-Oesophageal Fistula.  These congenital conditions may have long-lasting consequences, and our mission is to inform and empower those affected by OA/TOF to better equip them to live long and healthy lives. 

As our membership support and communication officer, you will be responsible for supporting an excellent member experience in the thriving OA/TOF community.  You will co-ordinate activities within our principal volunteer project, TOFS local contacts. 

You will bring some admin or project co-ordination experience and a curiosity to learn and develop in your role.  You will enjoy working with a wide range of people and have the skills and ability to engage dedicated volunteers in projects that will benefit the membership of TOFS. 

You don’t necessarily need personal experience of rare disease (though it would help if you do), but you do need to be an empathetic communicator, and be proactive and organised.  In return, we offer a range of benefits and a positive, progressive working environment where you’ll be able to make a difference.

The benefits:

  • Salary of £24 – £26K FTE per annum (pro-rata for part time)
  • Employers pension contribution
  • Work remotely from your home in the UK, or hybrid from our office in Nottingham NG4
  • Scope to agree a working pattern to suit your needs
  • 28 days’ annual leave inclusive of bank holidays (pro-rata for part-time)
  • Increasing annual leave entitlement, based on length of employment
  • Access to Cycle to Work scheme through salary sacrifice

Membership support and communication officer – Job description


Job Title:

Membership support and communication officer

Reports to:



Remote, hybrid or office- based (depending on candidate)

Advisable Salary
/Salary Band:

£24 – 26K  FTE (pro-rata for part-time)

Hours of Work:

Full time or part time (minimum 24 hours)

Contract Type:

Two -year fixed term contract in the first instance until August 2025, then possibility of change to permanent, subject to funding


This is an exciting time to join TOFS (Tracheo-Oesophageal Fistula Support) as we expand our reach into supporting adults born with OA/TOF in addition to families.  Supported by our ambitious team of volunteers, we’re growing our capabilities and making an impact for those born with these rare conditions. 

The team

The successful applicant will be part of a small and friendly team, reporting to the CEO, and will work alongside a team of committed and passionate volunteers.   The challenges of everyday life, navigating the health and social care system and the sheer isolation of having a condition affecting the ability to swallow motivates all of us in the team to do our best. 

The role

Role purpose:

The membership support and communication officer is responsible for providing a high level of service to the OA/TOF community.   The successful applicant will be responsible for TOFS’ principal volunteer project, local volunteer contacts (TLCs), liaise with members, and contribute to other projects.  Building and maintaining relationships with volunteers and effective project management skills will be the key to success in this role. 

Key responsibilities

TLC (TOFS local contacts) and other Project co-ordination

  1. Responsible for co-ordinating and supporting TOFS principal project, local contact volunteers (TLCs)
  2. Supports the growth and development of TLCs and volunteers within the OA/TOF community
  3. Organises and facilitates volunteer-led events (usually virtual events such as TLC talks). Note, these may take place out-of-hours so some flexibility is needed.
  4. Supports additional projects beneficial to the OA/TOF community, eg hospital liaison
  5. Creates volunteer recruitment campaigns and manages volunteer administration

Membership support

  1. Engages with members, mainly by email, providing information, support and effective signposting for members of the OA/TOF community.
  2. Coordinates member management information, enabling effective engagement.
  3. Produces high quality and valued resources and documents.
  4. Supports improvements to the membership offering.
  5. Supports effective information and peer support amongst the community.
  6. Provides data insight and analysis and information management.

Ensures smooth and effective operations

  1. Contributes to regular reporting to the CEO and Trustees.
  2. Contributes to members’ magazine, Chew and volunteer newsletters.
  3. Contributes to pastoral support sub-committee and relevant working groups.
  4. Contributes to general administration and operational support. 

The Person


Need to have/be:

  • Enthusiastic and positive, passionate about improving lives of those with rare disease.
  • Effective communicator, curious to learn and develop in the role
  • Motivated, with an ability to work independently, and as part of a geographically dispersed team.
  • Demonstrated diligence, attention to detail and organisational skills.
  • Proven ability to identify priorities in workload and provide timely and accurate information on activities.
  • A suitable workspace within your own home, and good broadband. TOFS provides the computer and mobile phone.

Even better, with:

  • Empathy and understanding for those affected by rare disease.
  • Own driving licence and reside within an easy daytrip to TOFS Nottingham office (NG4).


Need to have:

  • Excellent communication and organisational skills with the ability to meet deadlines.
  • Great project co-ordination skills and/or excellent administration skills.
  • Excellent IT skills including use of Windows and Microsoft 365 and an ability to use (or learn how to use design tools (Canva for example).
  • Great writing skills, both in offering members support or tailoring communications to various audiences clearly and concisely.

Even better with:

  • Skills to produce and promote resources (for example, awareness-raising posters for hospitals).
  • Event management experience.

Experience and knowledge

Need to have:

  • Experience of using a wide range of communication tools.
  • Knowledge of a database system and awareness of GDPR regulations.
  • Experience within a membership/comparable organisation.

Even better with:

  • Experience of co-ordinating/supporting volunteers.
  • Membership management experience.
  • Experience of producing and promoting resources.
  • Knowledge of the voluntary sector and best practice around volunteering involvement.
  • Personal awareness of rare disease, and better still – OA/TOF.

If you are keen to work for an exciting, forward-thinking charity where you can make a huge impact on the lives of those living with OA/TOF and progress your career, that could be the ideal role.

How to apply:

Please send your CV and supporting statement to  The supporting statement (500 words max) should clearly outline how your skills and experience match the responsibilities of the role.  CVs without a covering statement will not be considered.

Deadline for applications:  Sunday 10 September at midnight.  TOFS will screen candidates as they apply so early application is encouraged.  TOFS reserves the right to close the advert early, or extend it, if we don’t find the perfect fit. 

Interviews will take place over the telephone and shortlisted candidates will be invited to take part in a competency-based task interview on Zoom.

If you would like to discuss the role further, please email chief executive, Diane Stephens, to arrange a telephone conversation. 

Applicants must be fully fluent in both written and spoken English and have the right to live and work in the UK.  TOFS is a non-smoking organisation.  We are an equal opportunities employer.   Charity Registration number 327735

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