Patient representatives of EAT introduce you to participation and advocacy from a patient perspective in ERNICA.
This presentation was given at the recent EAT General Assembly by Graham Slater, Anke Widenmann (EAT President) and Olivia Spivack (ERNICA Project Manager).
ERNICA is one of 24 ERNs (European Reference Networks) for Rare Diseases which were initiated in 2017. These networks bring together expert clinicians from across Europe, and, uniquely for an initiative of this scale, patient representatives are fully engaged in the activities of these networks.
EAT, the global federation OA/TOF support groups of which TOFS was a founder, several members (Julia Faulkner, Caroline Love, Graham Slater, Kate Tyler and Vuokko Wallace) are involved in this important work together with colleagues from other EAT member associations.
For more information on EAT or ERNICA, please visit the links below: