Congratulations to our amazing Great North Run team
Join us in congratulating our fantastic Great North Run team! Despite battling the wind and rain, they completed the gruelling 13.1 miles to raise funds for TOFS. Together, they’ve raised
Patient representatives of EAT introduce you to participation and advocacy from a patient perspective in ERNICA.
This presentation was given at the recent EAT General Assembly by Graham Slater, Anke Widenmann (EAT President) and Olivia Spivack (ERNICA Project Manager).
ERNICA is one of 24 ERNs (European Reference Networks) for Rare Diseases which were initiated in 2017. These networks bring together expert clinicians from across Europe, and, uniquely for an initiative of this scale, patient representatives are fully engaged in the activities of these networks.
EAT, the global federation OA/TOF support groups of which TOFS was a founder, several members (Julia Faulkner, Caroline Love, Graham Slater, Kate Tyler and Vuokko Wallace) are involved in this important work together with colleagues from other EAT member associations.
For more information on EAT or ERNICA, please visit the links below:
Share our news
Congratulations to our amazing Great North Run team
Join us in congratulating our fantastic Great North Run team! Despite battling the wind and rain, they completed the gruelling 13.1 miles to raise funds for TOFS. Together, they’ve raised
Come and support our 2024 Great North Run team!
We are very proud that we have 5 TOFS allocated runners and 1 own place runner taking part in the Great North Run in Newcastle this year in aid of
We are delighted to extend our heartfelt thanks to Mandy Larner for her continued support of TOFS through yet another incredible donation. Mandy, the chair of Inert Recycling, organises the
