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TOFS Awareness Week 2024

Medical Advisory Group

We are pleased to have a multidisciplinary team of experts with a special interest in OA/TOF as members of our Medical Advisory Group (MAG).  The MAG was formed in 2016 and advise TOFS on medical matters and help to improve the information that is available to our members. 

They are in full support of our mission for lifelong follow up for those with OA/TOF.

Dr Kamran Ahmed
General Practitioner (and parent to a TOF child)

Elaine Aylott
Retired NHS Commissioner (and grandmother of a TOF)

Mr David Crabbe
Consultant Paediatric Surgeon, Leeds Children’s Hospital

Mr Joe Curry
Consultant Paediatric Surgeon, Great Ormond Street Hospital for Children

Prof Paolo De Coppi
Consultant Paediatric Surgeon, Great Ormond Street Hospital for Children

Mr Stefano Giuliani
Consultant Paediatric Surgeon, Great Ormond Street Hospital for Children

Mr Ed Hannon
Consultant Paediatric Surgeon, Leeds Children’s Hospital

Mr Matthew Jones
Consultant Paediatric Surgeon, Alder Hey Children’s Hospital

Mr Tony Lander
Consultant Paediatric Surgeon Birmingham Children’s Hospital

Prof Paul Losty
Consultant Paediatric Surgeon, formerly Alder Hey Children’s Hospital

Helen Marks
Clinical lead, Speech and Language Therapist, Bristol Royal Hospital for Children

Mr Nick Maynard
Upper Gastrointestinal Surgeon, Oxford OesophagoGastric Centre

Dr Charles Shaw-Smith
Clinical Geneticist, Royal Devon and Exeter Hospital

Matthew Hurley
Consultant in Paediatric Respiratory Medicine, Clinical Lead for Long Term Ventilation and Undergraduate Education Co-Lead for Paediatric Medicine, Nottingham Children’s Hospital 

Dr Vuokko Wallace
Clinical Psychologist, University of Bath (and Adult TOF)

Kate Cross
Consultant Surgeon, Speciality Lead for Specialist Neonatal and Paediatric Surgery, Great Ormond Street Hospital

Mrs Julia Faulkner
Paediatric Dietitian Somerset NHS Foundation Trust, Musgrove Park Hospital (and parent to a TOF child)

Caroline Gainsbury
Senior Nurse, Great Ormond Street Hospital

MAG Sub-groups

International engagement sub-group

  • Nick Lansdale  – joint chair
  • Julia Faulkner – joint chair
  • Graham Slater
  • Rebecca Thursfield
  • Dr Vuokko Wallace
  • Paolo de Coppi
  • Alex Stewart

Research sub-group

  • Nigel Hall – joint chair
  • Graham Slater – joint chair
  • Ed Hannon
  • Julia Faulkner
  • Helen Marks
  • Joanne Meredith
  • John Pearce
  • Matthew Hurley