Contact Us

Please get in touch by phone, email or post for more information about the support and information we can offer you. If we are unable to take your phone call, leave us a short message and we’ll get back to you as soon as we can.

We also provide out-of-hours emergency telephone support - please call our answerphone on 0115 961 3092 to obtain the number of the volunteer who is currently providing this service.

Our office is based in Netherfield, Nottingham, but we have volunteer contacts in many parts of the UK. You are also welcome to call us for details of our dedicated phone support service which is staffed by parents and relatives of children born with TOF/OA.

By post:

TOFS
St. George’s Centre
91 Victoria Road
Netherfield
Nottingham
NG4 2NN
ENGLAND

By phone:

+44 (0)115 961 3092

By email:

For all general enquiries - info@tofs.org.uk

Members' Area

Quick Links

Member Feedback

To all at TOFS, just a really big THANK YOU for being there. All I wanted was just for someone to listen and understand and you were there for me.

Jo Wright, parent of a child born with TOF/OA

We wanted to thank you again for all the support you have given us over the phone and through your newsletter, website and online forum. We have found TOFS an invaluable resource and spread the word wherever we can about the great work you do.

Joanne and John Winspear, parents

The TOFS support group does exactly what it says on the tin! It supports. And that’s a very reassuring feeling - talking to people who have been there. You guys do a wonderful job.

Rachel Simpson, parent

During my working life as a paediatric surgeon I learned as much, if not more about TOF from parents and from TOFS meetings as I did from learned journals.

Leela Kapila, past Vice-President of the Royal College of Surgeons

When I read Chew, I’m encouraged by reading about the positive side of TOF/OA and the achievements of all the children and TOF adults. TOFS, the website, the Forum and Chew have all been a marvellous source of information and encouragement for us.

Rachel and Mark Hayes, parents

Our bumpy ride has been so much easier with TOFS; just listening to other people’s experiences and knowing someone is there.

Charlie and Lesley Cochrane, parents

Useful Links

Adult TOF Facebook Group (endorsed by TOFS)

A (closed) Adult TOF Facebook Group, run by Adult TOF, Faye Baker, and endorsed by TOFS

NHS 111

For when you need urgent medical advice and unable to contact your doctor

Contact - for families with disabled children

UK charity which signposts parents to relevant support groups. CaF also provides resources on a range of issues (including benefits and rights) and offers the support of a Welfare Rights Officer. Directory for specific conditions, rare disorders and UK Family Support Groups.

Skiggle

an online SOS solution system for care-based essentials where members can request immediate assistance in unforeseen circumstances. For example - you are on holiday and find you have forgotten a vital piecce of equipment for your little one. This site may help to locate somebody nearby who can help