Event Details


TOFS 2019 Conference, Saturday 5 October

Time: Registration at 8.45am, close of day 4.30pm

Bookings for the 2019 TOFS Conference are now OPEN! Book now by clicking on this link!

It's a full day event to be held at The EngineRooms at Birchwood Park, Warrington.  You will be able to meet other TOF families and Adult TOFs, and you'll learn more about TOF/OA from distinguished experts.

We welcome everybody with an interest in TOF/OA, especially TOF parents and family members, Adult TOFs and health care professionals. Refreshments and a hot buffet lunch are included within the delegate fee.

TOFS is delighted to heavily subsidise all tickets. Tickets are only £22 each, which represents excellent value for money.  

Outline programme - paediatric and adult sessions 

Whether your interest in TOF/OA is from an adult perspective, or you are a parent or carer of a little TOF, there is something for everyone.  The outline schedule is shown below.  Some sessions will be in plenary and others will focus specifically on paediatric or adult-related topics.  Note, timings are approximate and we reserve the right to change speakers/session content as required.

MC for the day is one of our esteemed patrons: Professor Paul D. Losty MD FRCSI FRCS(Eng) FRCS(Ed) FRCS(Paed) FEBPS, Professor of Paediatric Surgery,  Alder Hey Children's Hospital,  University of Liverpool. 

Registration 8.45 am - 9.15 am

09.30 -10.45 am
Opening plenary session (for everyone):

Specialisation in OA surgery by Mr Matthew Jones, Consultant Paediatric Surgeon, Alder Hey Children's Hospital
Causes of OA/TOF, including the role of twins 
by Dr Charles Shaw Smith FRCP PhD, Consultant Clinical Geneticist, Royal Devon and Exeter NHS Trust

10.45-11.15 am
Refreshment break

Note, after the refreshment break, attendees will choose to attend the child-focused presentations OR Adult TOF workshop, which will happen at the same time in separate rooms.  

11.15 - 12.20 pm - Adult-focused presentations:
Treatments for GI problems experienced by TOF/OA Adults by Mr Ewen Griffiths, Consultant Upper GI Surgeon, University Hospitals Birmingham 

How Adult TOFs can get the best care from their GP by Dr Kamran Ahmed. Dr Ahmed is a GP in Wolverhampton and has a number of healthcare management roles.  He is dad to TOF Zayn and his talk at the 2018 conference to parents and carers was particularly well-received. 

11.15 - 12.20 pm - Child-focused Workshop:

Tips and tricks to help with respiratory problems with  Dr Lianne van der Giessen, Physiotherapist, Erasmus MC, Sophia Children’s Hospital, Rotterdam. 

PTSD/mental health support - how to seek help with Vicki Martin (Adult TOF) and Anna Clark, mum to twins Issy and Millie. Vicki has much experience in this area, and Anna talks about the importance of mental health in the Spring 2019 edition of Chew.

12.20 - 14.05 pm 
Lunch break An extended lunch break to enable you to chat informally with other delegates, share experiences and make new friends.  A hot buffet lunch will be provided.

Note, after the lunch break, attendees will choose to attend the adult-focused presentations OR child-focused workshop, which will happen at the same time in separate rooms. 

14.05 - 15.10 pm - Child-focused presentations:
Managing respiratory problems in children with TOF by Dr Omendra Narayan FRCPCH RCPCH MSc, Senior Lecturer & Consultant in Paediatric Respiratory Medicine, Associate Hospital Dean, Royal Manchester Children’s Hospital
Impact of TOF/OA as children grow
by Mr Nick Lansdale, MB ChB (Hons) FRCS (Paed) PhD Consultant Paediatric Surgeon, Royal Manchester Children’s Hospital  

14.05 - 15.10 pm - Adult TOF Workshops
Tips and tricks to help with r
espiratory problems with Dr Lianne van der Giessen, Paediatric Physiotherapist, Erasmus MC, Sophia Children’s Hospital, Rotterdam. 

Psychological well-being of adults born with TOF/OA by University of Bath researchers and students of Dr Vuokko Wallace, Caitlin Rabone and Lia Clarke. An exciting study is currently taking place, see www.tofs.org.uk to take part. Caitlin and Lia will share the full findings of the study.

15.10 - 15.40 pm


15.40 - 16.30 pm
Closing plenary session (for everyone)

Key outcomes from the 2019 International Medical Conference on OA in Rome, by Caroline Gainsbury, Surgical Complex Care CNS, Great Ormond Street, London.
Final wrap-up from the day by MC
, Prof Losty,

Question and Answer sessions

Each of the above speakers is expected to make a presentation for around 25 minutes, with time ideally afterward to take questions from the audience.  The final programme will be available a few weeks before the event.

The conference timetable features long breaks for refreshments and at lunchtime so that you will be able to meet and chat with other TOF/OA families and adults, and some of the speakers. 

Bringing children

Children aged 11 years to 17 years may attend the conference under the supervision of one of the adults in your party at a cost of £12 per child (which includes lunch, refreshments, etc).  Note, the conference is not recommended for children under 11 years old.

There is a crèche available at £22 per child for younger children aged from 3 months to 8 years. Please book your crèche place(s) as soon as possible as numbers are limited, especially for children under 2 years old. After booking, we will need to gather more specific details about your child, which the crèche staff will need in advance.  We will contact you by email with full details.  Please also note the following:
- the crèche will close for 45 minutes at lunchtime, and you will be responsible for looking after your child and feeding them at that time; and
- the crèche cannot accept children who are poorly on the day, or have had sickness and/or diarrhoea in the preceding 48 hours. 

Booking accommodation

Our conference runs all day on Saturday 5th October, 9am - 4.30pm (exact timings to be confirmed).  If you are travelling from far away you may wish to stay locally. Pentahotels is close to the venue: https://www.pentahotels.com/destination/united-kingdom/warrington At the time of writing (May 2019) rooms are available at £60/night (advance rate, room only). Please check with the hotel directly.  

TOFS' staff and several of the trustees will be staying here on the night of Friday 4 October.

Getting to The EngineRooms at Birchwood Park

The Conference Centre is located at Birchwood Park, Warrington, just minutes from the M62 Junction 11 and the M6 Junction 21a. The Centre is in the heart of Cheshire, ideal for the major cities of Chester, Liverpool and Manchester.  Indeed, it is not a long drive from the Yorkshire cities such as Leeds.

Some Liverpool-Manchester stopping trains call at the local Birchwood station.  The Warrington stations have direct trains from more distant locations such as London (under two hours), Glasgow (under three hours), the East Midlands, West Midlands, and North Wales.  

It's even practical to fly in!  Manchester Airport is about 30 mintues' drive away, and there is even a direct train to Warrington fromt he Airoport.

Cancellation charges 

Please not that we reserve the right to charge a £10 per person fee for cancellations received after 13th September 2019. 


The EngineRooms at Birchwood Park, near Warrington, WA3 6YN



You can see videos from last year's Conference and Adult Seminar here. View the roundup from the 2017 Annual Conference in Luton here. 

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TOFS is a Registered Charity in England and Wales (327735) and a Private Company Limited By Guarantee without Share Capital, registered in England and Wales (2202260).
Registered address: TOFS, St. George’s Centre, 91 Victoria Road, Netherfield, Nottingham NG4 2NN.
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