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Starting Nursery, Pre-school, and School – Talk with TLCs

Online

Do you have a child born with OA/TOF starting nursery, preschool or school soon? Join our Talk with TLCs session to speak to other parents and share experiences. The session will be held via Zoom and hosted by two of our TOFS Local Contacts (TLCs), Naomi Webborn and Cara Macdonald – both are volunteers and parents […]

OA/TOF Awareness Week 2025

Various locations

Join us for our 2025 Awareness Week and help us raise awareness of OA/TOF with health professionals and the wider public. More details to follow soon.

Rare Disease Day 2025

Various locations

Raising awareness and generating change for the 300 million people worldwide living with a rare disease, their families and carers. Keep reading to see how you can get involved. /*! elementor - v3.23.0 - 05-08-2024 */ .elementor-heading-title{padding:0;margin:0;line-height:1}.elementor-widget-heading .elementor-heading-title>a{color:inherit;font-size:inherit;line-height:inherit}.elementor-widget-heading .elementor-heading-title.elementor-size-small{font-size:15px}.elementor-widget-heading .elementor-heading-title.elementor-size-medium{font-size:19px}.elementor-widget-heading .elementor-heading-title.elementor-size-large{font-size:29px}.elementor-widget-heading .elementor-heading-title.elementor-size-xl{font-size:39px}.elementor-widget-heading .elementor-heading-title.elementor-size-xxl{font-size:59px} How to get involved Light up for Rare At 7pm on the […]

TOFS Seminar 2025

St Michaels Centre, The Green, Stoke Gifford, Bristol, United Kingdom

Quick links:Book your ticketFull scheduleSpeaker biographiesJoin us in Bristol to hear from some leading experts and specialists from a variety of healthcare professions, who work with OA/TOF patients. It is also a great chance to chat with other members; meet the TOFS volunteers and staff team and meet other charities/associations representing other medical anomalies. All […]

Virtual meet-up for adults born with OA/TOF

Online

Calling all adults born with OA/TOF.You’re invited for a virtual cuppa and chat with other adults born with OA/TOF.This informal meet-up is led by volunteers, who are also adults born with OA/TOF, and is a relaxed, safe space to share stories and experiences with others that understand what you are going through.So, come along, enjoy a relaxing […]

Live Q&A: Managing medications effectively

Online

Do you have any questions or concerns around the medications you or your child may take?Join Consultant Pharmacist Gastroenterologist Anja St Clair Jones, and Lead Neonatal Pharmacist Christian Chadwick, for a live Q&A session on Wednesday 5th March.All adults and parents welcome! Meet the speakersChristian ChadwickChristian is the Lead Pharmacist for Neonatal Care at the Royal […]

TOFS Annual General Meeting

Online

Members and Associates are invited to join us for the Annual General Meeting of T.O.F.S.The T.O.F.S. Annual General Meeting will take place on the 24th April, 2025 by Zoom at 7:00 pm. Invited to attend: Council of Management, TOFS office staff, all Members and Associates Click here to register AgendaThe full agenda will be released closer […]

London Marathon 2025

London , United Kingdom

Run the London Marathon for TOFS! Latest news & updates TOFS London Marathon team We have now closed our application process for the 2025 London Marathon due to unprecedented interest, but please check out our other marathons and events.  Entry fee: £50 This fee goes towards the admin fees charged by the race organisers but […]

InoEA 25

Renaissance Polat İstanbul Hotel Sahilyolu Cad.No:2 Yesilyurt, Istanbul, Turkey

The joint meeting of INoEA, PAAFIS and Aerodigestive Society will be held in Istanbul Turkey from April 30th to May 3rd, 2025.The meeting will be hosted by Turkish Association of Pediatric Surgeons (TAPS).Professionals working in the field of oesophageal atresia from around the world have been gathering at the INoEA conferences for more than a […]

Great North Run 2025

Newcastle , United Kingdom

We have now closed our application process for the 2025 Great North Run but please check out our other marathons and events. Run for TOFS in the 2025 Great North Run and help to make a difference in the lives of those born unable to swallow. 60,000 determined and dedicated runners make the Great North Run the […]

Royal Parks Half Marathon

Hyde Park London, United Kingdom

Run for TOFS in the 2025 Royal Park Half Marathon and help to make a difference in the lives of those born unable to swallow. Apply soon. Places going fast!  Entry fee: £50 + £2.50 booking fee.This fee goes towards the admin fees that the race organisers charge TOFS.  Fundraising commitment: £300 This is the minimum […]