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UID:10000090-1740831300-1740846600@tofs.org.uk
SUMMARY:TOFS Seminar 2025
DESCRIPTION:Don’t miss your chance to meet up with other OA/TOF parents and families from across Exeter and surrounding areas. Sarah\, TOFS Local Contact (TLC) for the South West of England\, is organising an informal get-together in Exeter and you are invited. When:9am – 12noonSaturday\, 4th July\, 2026 Where:Blue Ball Inn\, Sandygate Roundabout\, Exeter\, EX2 7JL [map] This event is free and being organised by Sarah herself.  If you are interested in attending\, please RSVP to Sarah direct via her email (click here) or via her details in the TLC section of the members website.  Hope you can make it. 								\n				\n				\n				\n									Please note\, this event is for parents & carers of children born with OA/TOF.
URL:https://tofs.org.uk/event/tofs-seminar-2025/
LOCATION:St Michaels Centre\,\, The Green\, Stoke Gifford\, Bristol\, BS34 8PD\, United Kingdom
CATEGORIES:Adult TOF,Parents & Carers,Professional,Support
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DTSTART;TZID=Europe/London:20250305T150000
DTEND;TZID=Europe/London:20250305T160000
DTSTAMP:20260424T043305
CREATED:20250303T122830Z
LAST-MODIFIED:20250303T122915Z
UID:10000105-1741186800-1741190400@tofs.org.uk
SUMMARY:ERNICA: A traumatic Diagnosis - the (early) parent-child interaction in (rare) chronic paediatric diseases
DESCRIPTION:Don’t miss your chance to meet up with other OA/TOF parents and families from across Exeter and surrounding areas. Sarah\, TOFS Local Contact (TLC) for the South West of England\, is organising an informal get-together in Exeter and you are invited. When:9am – 12noonSaturday\, 4th July\, 2026 Where:Blue Ball Inn\, Sandygate Roundabout\, Exeter\, EX2 7JL [map] This event is free and being organised by Sarah herself.  If you are interested in attending\, please RSVP to Sarah direct via her email (click here) or via her details in the TLC section of the members website.  Hope you can make it. 								\n				\n				\n				\n									Please note\, this event is for parents & carers of children born with OA/TOF.
URL:https://tofs.org.uk/event/ernica-a-traumatic-diagnosis-the-early-parent-child-interaction-in-rare-chronic-paediatric-diseases/
LOCATION:Online
CATEGORIES:Parents & Carers,Professional,Support
ATTACH;FMTTYPE=image/jpeg:https://tofs.org.uk/wp-content/uploads/2022/11/EARNICA_400x400.jpg
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DTSTART;TZID=Europe/London:20250306T200000
DTEND;TZID=Europe/London:20250306T210000
DTSTAMP:20260424T043305
CREATED:20241216T112514Z
LAST-MODIFIED:20250115T110032Z
UID:10000098-1741291200-1741294800@tofs.org.uk
SUMMARY:Virtual meet-up for adults born with OA/TOF
DESCRIPTION:Don’t miss your chance to meet up with other OA/TOF parents and families from across Exeter and surrounding areas. Sarah\, TOFS Local Contact (TLC) for the South West of England\, is organising an informal get-together in Exeter and you are invited. When:9am – 12noonSaturday\, 4th July\, 2026 Where:Blue Ball Inn\, Sandygate Roundabout\, Exeter\, EX2 7JL [map] This event is free and being organised by Sarah herself.  If you are interested in attending\, please RSVP to Sarah direct via her email (click here) or via her details in the TLC section of the members website.  Hope you can make it. 								\n				\n				\n				\n									Please note\, this event is for parents & carers of children born with OA/TOF.
URL:https://tofs.org.uk/event/virtual-meet-up-for-adults-born-with-oa-tof-12/
LOCATION:Online
CATEGORIES:Adult TOF
ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2024/12/cuppa-and-chat-march-1.png
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DTSTART;TZID=Europe/London:20250312T183000
DTEND;TZID=Europe/London:20250312T193000
DTSTAMP:20260424T043305
CREATED:20241212T113557Z
LAST-MODIFIED:20250227T171103Z
UID:10000095-1741804200-1741807800@tofs.org.uk
SUMMARY:Live Q&A: Managing medications effectively
DESCRIPTION:Don’t miss your chance to meet up with other OA/TOF parents and families from across Exeter and surrounding areas. Sarah\, TOFS Local Contact (TLC) for the South West of England\, is organising an informal get-together in Exeter and you are invited. When:9am – 12noonSaturday\, 4th July\, 2026 Where:Blue Ball Inn\, Sandygate Roundabout\, Exeter\, EX2 7JL [map] This event is free and being organised by Sarah herself.  If you are interested in attending\, please RSVP to Sarah direct via her email (click here) or via her details in the TLC section of the members website.  Hope you can make it. 								\n				\n				\n				\n									Please note\, this event is for parents & carers of children born with OA/TOF.
URL:https://tofs.org.uk/event/live-qa-managing-medications-effectively/
LOCATION:Online
CATEGORIES:Parents & Carers
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