Are you an adult born with OA/TOF experiencing gastro related issues then please join us for our next live Q&A webinar with Professor Nick Maynard. Professor Maynard is a leading consultant upper GI surgeon based in Oxford, with over twenty-five years of experience in his field. As one of the leading upper GI surgeons in […]
Calling all adults born with OA/TOF. You’re invited for a virtual cuppa and chat with other adults born with OA/TOF. This informal meet-up is led by volunteers, who are also adults born with OA/TOF, and is a relaxed, safe space to share stories and experiences with others that understand what you are going through. So, come along, […]
Do you have a child born with OA/TOF starting nursery, preschool or school soon? Join our Talk with TLCs session to speak to other parents and share experiences. The session will be held via Zoom and hosted by two of our TOFS Local Contacts (TLCs), Naomi Webborn and Cara Macdonald – both are volunteers and parents […]
Quick links:Book your ticketFull scheduleSpeaker biographiesJoin us in Bristol to hear from some leading experts and specialists from a variety of healthcare professions, who work with OA/TOF patients. It is also a great chance to chat with other members; meet the TOFS volunteers and staff team and meet other charities/associations representing other medical anomalies. All […]
ERNICA – the European Reference Network for rare Inherited and Congenital (digestive and gastrointestinal) Anomalies have an upcoming webinar which may be useful for TOFS members. Title: A traumatic Diagnosis - the (early) parent-child interaction in (rare) chronic paediatric diseases When: Wednesday 5 March at 3pm (UK) / 4pm (CET) Book: https://events.teams.microsoft.com/event/08ac7def-4022-4d2e-a5c7-7e08feadf9e4@526638ba-6af3-4b0f-a532-a1a511f4ac80 About the webinar: […]
Calling all adults born with OA/TOF.You’re invited for a virtual cuppa and chat with other adults born with OA/TOF.This informal meet-up is led by volunteers, who are also adults born with OA/TOF, and is a relaxed, safe space to share stories and experiences with others that understand what you are going through.So, come along, enjoy a relaxing […]
Do you have any questions or concerns around the medications you or your child may take? Join Consultant Pharmacist Gastroenterologist Anja St Clair Jones, and Lead Neonatal Pharmacist Christian Chadwick, for this live Q&A session. All adults and parents welcome! Meet the speakersChristian ChadwickChristian is the Lead Pharmacist for Neonatal Care at the Royal Sussex […]
Calling all adults born with OA/TOF.You’re invited for a virtual cuppa and chat with other adults born with OA/TOF.This informal meet-up is led by volunteers, who are also adults born with OA/TOF, and is a relaxed, safe space to share stories and experiences with others that understand what you are going through.So, come along, enjoy a relaxing […]
Are you planning on taking your child born with OA/TOF away on holiday? Whether going away in the UK or abroad, as parents, our TLCs Naomi and To’neill understand the worry of what to pack, managing medications/equipment, and what food will be available… So, join them in sharing their top tips when travelling! CLICK HERE […]
Calling all adults born with OA/TOF. You’re invited for a virtual cuppa and chat with other adults born with OA/TOF. This informal meet-up is led by volunteers, who are also adults born with OA/TOF, and is a relaxed, safe space to share stories and experiences with others that understand what you are going through. So, come along, […]
Calling all adults born with OA/TOF.You’re invited for a virtual cuppa and chat with other adults born with OA/TOF.This informal meet-up is led by volunteers, who are also adults born with OA/TOF, and is a relaxed, safe space to share stories and experiences with others that understand what you are going through.So, come along, enjoy a relaxing […]
This event is promoted on behalf of the VACTERL Association Support Group.The VACTERL Association Support Group aims to connect families and those affected by VACTERL Association, from across the UK. It's a chance to learn new things and share experiences with people, that are beginning or continuing their journey with VACTERL.The VACTERL Association Support Group […]
Calling all adults born with OA/TOF.You’re invited for a virtual cuppa and chat with other adults born with OA/TOF.This informal meet-up is led by volunteers, who are also adults born with OA/TOF, and is a relaxed, safe space to share stories and experiences with others that understand what you are going through.So, come along, enjoy a relaxing […]
Don’t miss your chance to meet up with other OA/TOF parents and families in Birmingham, for a cuppa and chat.Emma Connor, TOFS Local Contact (TLC) for Birmingham has organised an informal get-together and you are invited.What:Coffee MorningWhen:Saturday 30th August, 2025 10.30am – 12.30pmWhere:Day Room, Ronald McDonald House, St Mary’s Row, Birmingham, B4 6NYThis event is […]
Calling all adults born with OA/TOF.You’re invited for a virtual cuppa and chat with other adults born with OA/TOF.This informal meet-up is led by volunteers, who are also adults born with OA/TOF, and is a relaxed, safe space to share stories and experiences with others that understand what you are going through.So, come along, enjoy a relaxing […]
Are you the father of a child born with OA/TOF? Are you looking to support a male caregiver? Do you wish to talk more about the father’s perspective of having a child born with OA/TOF?This event is open to all members but may be particularly useful for dads and caregivers, wishing to meet other parents […]
Calling all adults born with OA/TOF.You’re invited for a virtual cuppa and chat with other adults born with OA/TOF.This informal meet-up is led by volunteers, who are also adults born with OA/TOF, and is a relaxed, safe space to share stories and experiences with others that understand what you are going through.So, come along, enjoy a relaxing […]
Are you an adult born with OA/TOF and experiencing respiratory issues, such as chronic cough, aspiration, dysmotility or tracheomalacia? Join us for the upcoming Q&A session with Professor Alyn Morice. Professor Morice is Head of Respiratory Medicine at HYMS, based at the University of Hull. He is also an Honorary Consultant Physician at Hull and East […]
Are you the parent or carer of a child born with OA/TOF? Do you wish to meet others in a similar situation? Join us for a virtual cuppa, and the opportunity to share experiences, discuss common issues around OA/TOF and get support in a relaxed, safe space with people who understand.This is an informal get […]
Calling all adults born with OA/TOF.You’re invited for a virtual cuppa and chat with other adults born with OA/TOF.This informal meet-up is led by volunteers, who are also adults born with OA/TOF, and is a relaxed, safe space to share stories and experiences with others that understand what you are going through.So, come along, enjoy a relaxing […]
Are you the parent or carer of a child born with OA/TOF? Do you wish to meet others in a similar situation? Join us for a virtual cuppa, and the opportunity to share experiences, discuss common issues around OA/TOF and get support in a relaxed, safe space with people who understand. This is an informal […]
Don’t miss your chance to meet up with other OA/TOF parents and families in the West Midlands, for a cuppa, chat and some Christmas crafts. Emma Connor, TOFS Local Contact (TLC) for the West Midlands has organised an informal get-together and you are invited!What:Christmas crafts and coffee morningWhen:Saturday 22nd November 2025 10am – 12.30pmWhere:Day Room, […]
Don’t miss your chance to meet up with other OA/TOF parents and families from across Merseyside and the Wirral.Alan & Carolyn, TOFS Local Contacts (TLC) for Liverpool, are organising an informal get-together in Moreton and you are invited.When:Saturday, 22nd November, 2025Where:Moreton Presbyterian Church174a Hoylake Rd, Moreton, Wirral, CH46 8TQ This event is free and being […]
IMPORTANT UPDATE:This event was originally scheduled to take place on the 4th December.Calling all adults born with OA/TOF.You’re invited for a virtual cuppa and chat with other adults born with OA/TOF.This informal meet-up is led by volunteers, who are also adults born with OA/TOF, and is a relaxed, safe space to share stories and experiences with others […]
