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X-WR-CALDESC:Events for TOFS | OA/TOF Support
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BEGIN:VEVENT
DTSTART;TZID=Europe/London:20260131T090000
DTEND;TZID=Europe/London:20260131T110000
DTSTAMP:20251204T110748Z
CREATED:20251204T110010Z
LAST-MODIFIED:20251204T110748Z
UID:10000157-1769850000-1769857200@tofs.org.uk
SUMMARY:Local Meet-up: Bristol
DESCRIPTION:28 February is Rare Disease DayRaising awareness and generating change for the 300 million people worldwide living with a rare disease\, their families and carers. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					How to get involved				\n				\n				\n				\n					Light up for Rare				\n				\n				\n				\n									At 7pm on the 28th Feb\, show your colours and join the global chain of lights! Play this video at full screen at home to light up your neighbourhood.
URL:https://tofs.org.uk/event/local-meet-up-bristol/
LOCATION:Ronald McDonald House Bristol\, Royal Fort Rd\, Bristol\, BS2 8DH\, United Kingdom
CATEGORIES:Parents & Carers
ATTACH;FMTTYPE=image/jpeg:https://tofs.org.uk/wp-content/uploads/2024/04/local-meet-up.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20260120T110000
DTEND;TZID=Europe/London:20260120T120000
DTSTAMP:20260115T161843Z
CREATED:20251113T162555Z
LAST-MODIFIED:20260115T161843Z
UID:10000148-1768906800-1768910400@tofs.org.uk
SUMMARY:Parent & Carer virtual meet-up
DESCRIPTION:28 February is Rare Disease DayRaising awareness and generating change for the 300 million people worldwide living with a rare disease\, their families and carers. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					How to get involved				\n				\n				\n				\n					Light up for Rare				\n				\n				\n				\n									At 7pm on the 28th Feb\, show your colours and join the global chain of lights! Play this video at full screen at home to light up your neighbourhood.
URL:https://tofs.org.uk/event/parent-carer-virtual-meet-up-3/
LOCATION:Online
CATEGORIES:Parents & Carers
ATTACH;FMTTYPE=image/jpeg:https://tofs.org.uk/wp-content/uploads/2025/11/01-22-26-Parent-Cuppa-and-chat-1.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20260108T200000
DTEND;TZID=Europe/London:20260108T210000
DTSTAMP:20251210T131023Z
CREATED:20251113T172157Z
LAST-MODIFIED:20251210T131023Z
UID:10000150-1767902400-1767906000@tofs.org.uk
SUMMARY:Virtual meet-up for adults born with OA/TOF
DESCRIPTION:28 February is Rare Disease DayRaising awareness and generating change for the 300 million people worldwide living with a rare disease\, their families and carers. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					How to get involved				\n				\n				\n				\n					Light up for Rare				\n				\n				\n				\n									At 7pm on the 28th Feb\, show your colours and join the global chain of lights! Play this video at full screen at home to light up your neighbourhood.
URL:https://tofs.org.uk/event/virtual-meet-up-for-adults-born-with-oa-tof-18/
LOCATION:Online
CATEGORIES:Adult TOF
ATTACH;FMTTYPE=image/jpeg:https://tofs.org.uk/wp-content/uploads/2025/11/08-01-26-Adult-cuppa-and-chat.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20251211T200000
DTEND;TZID=Europe/London:20251211T210000
DTSTAMP:20251210T131131Z
CREATED:20251113T171628Z
LAST-MODIFIED:20251210T131131Z
UID:10000149-1765483200-1765486800@tofs.org.uk
SUMMARY:Virtual meet-up for adults born with OA/TOF [New Date]
DESCRIPTION:28 February is Rare Disease DayRaising awareness and generating change for the 300 million people worldwide living with a rare disease\, their families and carers. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					How to get involved				\n				\n				\n				\n					Light up for Rare				\n				\n				\n				\n									At 7pm on the 28th Feb\, show your colours and join the global chain of lights! Play this video at full screen at home to light up your neighbourhood.
URL:https://tofs.org.uk/event/virtual-meet-up-for-adults-born-with-oa-tof-17/
LOCATION:Online
CATEGORIES:Adult TOF
ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2025/11/dec-11-25.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20251122T140000
DTEND;TZID=Europe/London:20251122T160000
DTSTAMP:20251014T082107Z
CREATED:20251014T075354Z
LAST-MODIFIED:20251014T082107Z
UID:10000137-1763820000-1763827200@tofs.org.uk
SUMMARY:Local Meet-up: Merseyside/Wirral
DESCRIPTION:28 February is Rare Disease DayRaising awareness and generating change for the 300 million people worldwide living with a rare disease\, their families and carers. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					How to get involved				\n				\n				\n				\n					Light up for Rare				\n				\n				\n				\n									At 7pm on the 28th Feb\, show your colours and join the global chain of lights! Play this video at full screen at home to light up your neighbourhood.
URL:https://tofs.org.uk/event/local-meet-up-merseyside-2/
LOCATION:Moreton Presbyterian Church\, 174a Hoylake Road\, Moreton\, Wirral\, CH46 8TQ\, United Kingdom
CATEGORIES:Parents & Carers
ATTACH;FMTTYPE=image/jpeg:https://tofs.org.uk/wp-content/uploads/2024/04/local-meet-up.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20251122T100000
DTEND;TZID=Europe/London:20251122T123000
DTSTAMP:20251106T101307Z
CREATED:20251106T094317Z
LAST-MODIFIED:20251106T101307Z
UID:10000145-1763805600-1763814600@tofs.org.uk
SUMMARY:Local Meet-up: Birmingham
DESCRIPTION:28 February is Rare Disease DayRaising awareness and generating change for the 300 million people worldwide living with a rare disease\, their families and carers. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					How to get involved				\n				\n				\n				\n					Light up for Rare				\n				\n				\n				\n									At 7pm on the 28th Feb\, show your colours and join the global chain of lights! Play this video at full screen at home to light up your neighbourhood.
URL:https://tofs.org.uk/event/local-meet-up-birmingham-2/
LOCATION:Ronald McDonald House Birmingham\, St Mary’s Row\, Birmingham\, B4 6NY\, United Kingdom
CATEGORIES:Parents & Carers
ATTACH;FMTTYPE=image/jpeg:https://tofs.org.uk/wp-content/uploads/2024/04/local-meet-up.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20251112T110000
DTEND;TZID=Europe/London:20251112T120000
DTSTAMP:20251015T114914Z
CREATED:20251003T112504Z
LAST-MODIFIED:20251015T114914Z
UID:10000132-1762945200-1762948800@tofs.org.uk
SUMMARY:Parent & Carer virtual meet-up
DESCRIPTION:28 February is Rare Disease DayRaising awareness and generating change for the 300 million people worldwide living with a rare disease\, their families and carers. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					How to get involved				\n				\n				\n				\n					Light up for Rare				\n				\n				\n				\n									At 7pm on the 28th Feb\, show your colours and join the global chain of lights! Play this video at full screen at home to light up your neighbourhood.
URL:https://tofs.org.uk/event/parent-carer-virtual-meet-up-2/
LOCATION:Online
CATEGORIES:Parents & Carers
ATTACH;FMTTYPE=image/jpeg:https://tofs.org.uk/wp-content/uploads/2025/10/11-25-Parent-Cuppa-and-chat.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20251106T200000
DTEND;TZID=Europe/London:20251106T210000
DTSTAMP:20250812T102641Z
CREATED:20250812T102630Z
LAST-MODIFIED:20250812T102641Z
UID:10000126-1762459200-1762462800@tofs.org.uk
SUMMARY:Virtual meet-up for adults born with OA/TOF
DESCRIPTION:28 February is Rare Disease DayRaising awareness and generating change for the 300 million people worldwide living with a rare disease\, their families and carers. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					How to get involved				\n				\n				\n				\n					Light up for Rare				\n				\n				\n				\n									At 7pm on the 28th Feb\, show your colours and join the global chain of lights! Play this video at full screen at home to light up your neighbourhood.
URL:https://tofs.org.uk/event/virtual-meet-up-for-adults-born-with-oa-tof-5/
LOCATION:Online
CATEGORIES:Adult TOF
ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2025/08/cuppa-and-chat-11-Nov25.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20251014T200000
DTEND;TZID=Europe/London:20251014T210000
DTSTAMP:20251001T112157Z
CREATED:20250926T131855Z
LAST-MODIFIED:20251001T112157Z
UID:10000130-1760472000-1760475600@tofs.org.uk
SUMMARY:Parent & Carer virtual meet-up
DESCRIPTION:28 February is Rare Disease DayRaising awareness and generating change for the 300 million people worldwide living with a rare disease\, their families and carers. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					How to get involved				\n				\n				\n				\n					Light up for Rare				\n				\n				\n				\n									At 7pm on the 28th Feb\, show your colours and join the global chain of lights! Play this video at full screen at home to light up your neighbourhood.
URL:https://tofs.org.uk/event/parent-carer-virtual-meet-up/
LOCATION:Online
CATEGORIES:Parents & Carers
ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2025/09/Parent-Cuppa-and-chat-14OCT25.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20251008T190000
DTEND;TZID=Europe/London:20251008T200000
DTSTAMP:20250926T131336Z
CREATED:20250514T143508Z
LAST-MODIFIED:20250926T131336Z
UID:10000117-1759950000-1759953600@tofs.org.uk
SUMMARY:Live Q&A: OA/TOF related respiratory issues for adults
DESCRIPTION:28 February is Rare Disease DayRaising awareness and generating change for the 300 million people worldwide living with a rare disease\, their families and carers. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					How to get involved				\n				\n				\n				\n					Light up for Rare				\n				\n				\n				\n									At 7pm on the 28th Feb\, show your colours and join the global chain of lights! Play this video at full screen at home to light up your neighbourhood.
URL:https://tofs.org.uk/event/live-qa-oa-tof-related-respiratory-issues-for-adults/
LOCATION:Online
CATEGORIES:Adult TOF
ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2025/05/Oct25-NEW.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20251002T200000
DTEND;TZID=Europe/London:20251002T210000
DTSTAMP:20250812T095638Z
CREATED:20250812T094622Z
LAST-MODIFIED:20250812T095638Z
UID:10000125-1759435200-1759438800@tofs.org.uk
SUMMARY:Virtual meet-up for adults born with OA/TOF
DESCRIPTION:28 February is Rare Disease DayRaising awareness and generating change for the 300 million people worldwide living with a rare disease\, their families and carers. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					How to get involved				\n				\n				\n				\n					Light up for Rare				\n				\n				\n				\n									At 7pm on the 28th Feb\, show your colours and join the global chain of lights! Play this video at full screen at home to light up your neighbourhood.
URL:https://tofs.org.uk/event/virtual-meet-up-for-adults-born-with-oa-tof-4/
LOCATION:Online
CATEGORIES:Adult TOF
ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2025/08/cuppa-and-chat-10-Oct25.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20250909T200000
DTEND;TZID=Europe/London:20250909T210000
DTSTAMP:20250812T153348Z
CREATED:20250429T101411Z
LAST-MODIFIED:20250812T153348Z
UID:10000115-1757448000-1757451600@tofs.org.uk
SUMMARY:OA/TOF: A father's perspective
DESCRIPTION:28 February is Rare Disease DayRaising awareness and generating change for the 300 million people worldwide living with a rare disease\, their families and carers. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					How to get involved				\n				\n				\n				\n					Light up for Rare				\n				\n				\n				\n									At 7pm on the 28th Feb\, show your colours and join the global chain of lights! Play this video at full screen at home to light up your neighbourhood.
URL:https://tofs.org.uk/event/tofs-dads-meet-up/
LOCATION:Online
CATEGORIES:Parents & Carers
ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2025/04/TLC-events-Sep-2025.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20250904T200000
DTEND;TZID=Europe/London:20250904T210000
DTSTAMP:20250812T091402Z
CREATED:20250812T085858Z
LAST-MODIFIED:20250812T091402Z
UID:10000124-1757016000-1757019600@tofs.org.uk
SUMMARY:Virtual meet-up for adults born with OA/TOF
DESCRIPTION:28 February is Rare Disease DayRaising awareness and generating change for the 300 million people worldwide living with a rare disease\, their families and carers. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					How to get involved				\n				\n				\n				\n					Light up for Rare				\n				\n				\n				\n									At 7pm on the 28th Feb\, show your colours and join the global chain of lights! Play this video at full screen at home to light up your neighbourhood.
URL:https://tofs.org.uk/event/virtual-meet-up-for-adults-born-with-oa-tof-3/
LOCATION:Online
CATEGORIES:Adult TOF
ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2025/08/cuppa-and-chat-9-Sep25.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20250830T103000
DTEND;TZID=Europe/London:20250830T123000
DTSTAMP:20250813T133955Z
CREATED:20250813T114404Z
LAST-MODIFIED:20250813T133955Z
UID:10000127-1756549800-1756557000@tofs.org.uk
SUMMARY:Local Meet-up: Birmingham
DESCRIPTION:28 February is Rare Disease DayRaising awareness and generating change for the 300 million people worldwide living with a rare disease\, their families and carers. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					How to get involved				\n				\n				\n				\n					Light up for Rare				\n				\n				\n				\n									At 7pm on the 28th Feb\, show your colours and join the global chain of lights! Play this video at full screen at home to light up your neighbourhood.
URL:https://tofs.org.uk/event/local-meet-up-birmingham/
LOCATION:Ronald McDonald House Birmingham\, St Mary’s Row\, Birmingham\, B4 6NY\, United Kingdom
CATEGORIES:Parents & Carers
ATTACH;FMTTYPE=image/jpeg:https://tofs.org.uk/wp-content/uploads/2024/04/local-meet-up.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20250703T200000
DTEND;TZID=Europe/London:20250703T210000
DTSTAMP:20250414T103644Z
CREATED:20250403T104335Z
LAST-MODIFIED:20250414T103644Z
UID:10000109-1751572800-1751576400@tofs.org.uk
SUMMARY:Virtual meet-up for adults born with OA/TOF
DESCRIPTION:28 February is Rare Disease DayRaising awareness and generating change for the 300 million people worldwide living with a rare disease\, their families and carers. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					How to get involved				\n				\n				\n				\n					Light up for Rare				\n				\n				\n				\n									At 7pm on the 28th Feb\, show your colours and join the global chain of lights! Play this video at full screen at home to light up your neighbourhood.
URL:https://tofs.org.uk/event/virtual-meet-up-for-adults-born-with-oa-tof-16/
LOCATION:Online
CATEGORIES:Adult TOF
ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2025/04/july.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20250628
DTEND;VALUE=DATE:20250629
DTSTAMP:20250529T091045Z
CREATED:20250529T090523Z
LAST-MODIFIED:20250529T091045Z
UID:10000119-1751068800-1751155199@tofs.org.uk
SUMMARY:VACTERL Association Support Group Get-Together 2025
DESCRIPTION:28 February is Rare Disease DayRaising awareness and generating change for the 300 million people worldwide living with a rare disease\, their families and carers. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					How to get involved				\n				\n				\n				\n					Light up for Rare				\n				\n				\n				\n									At 7pm on the 28th Feb\, show your colours and join the global chain of lights! Play this video at full screen at home to light up your neighbourhood.
URL:https://tofs.org.uk/event/vacterl-association-support-group-get-together-2025/
LOCATION:The Great Barr Hotel\, Newton Road Great Barr\, Birmingham\, B43 6HS
CATEGORIES:Adult TOF,Parents & Carers
ATTACH;FMTTYPE=image/jpeg:https://tofs.org.uk/wp-content/uploads/2025/05/vacterl_logo_medium.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20250605T200000
DTEND;TZID=Europe/London:20250605T210000
DTSTAMP:20250414T103542Z
CREATED:20250403T104119Z
LAST-MODIFIED:20250414T103542Z
UID:10000108-1749153600-1749157200@tofs.org.uk
SUMMARY:Virtual meet-up for adults born with OA/TOF
DESCRIPTION:28 February is Rare Disease DayRaising awareness and generating change for the 300 million people worldwide living with a rare disease\, their families and carers. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					How to get involved				\n				\n				\n				\n					Light up for Rare				\n				\n				\n				\n									At 7pm on the 28th Feb\, show your colours and join the global chain of lights! Play this video at full screen at home to light up your neighbourhood.
URL:https://tofs.org.uk/event/virtual-meet-up-for-adults-born-with-oa-tof-15/
LOCATION:Online
CATEGORIES:Adult TOF
ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2025/04/June.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20250501T200000
DTEND;TZID=Europe/London:20250501T210000
DTSTAMP:20250402T112938Z
CREATED:20250402T112938Z
LAST-MODIFIED:20250402T112938Z
UID:10000107-1746129600-1746133200@tofs.org.uk
SUMMARY:Virtual meet-up for adults born with OA/TOF
DESCRIPTION:28 February is Rare Disease DayRaising awareness and generating change for the 300 million people worldwide living with a rare disease\, their families and carers. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					How to get involved				\n				\n				\n				\n					Light up for Rare				\n				\n				\n				\n									At 7pm on the 28th Feb\, show your colours and join the global chain of lights! Play this video at full screen at home to light up your neighbourhood.
URL:https://tofs.org.uk/event/virtual-meet-up-for-adults-born-with-oa-tof-14/
LOCATION:Online
CATEGORIES:Adult TOF
ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2025/04/may25.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20250408T200000
DTEND;TZID=Europe/London:20250408T210000
DTSTAMP:20250327T084714Z
CREATED:20250214T111646Z
LAST-MODIFIED:20250327T084714Z
UID:10000104-1744142400-1744146000@tofs.org.uk
SUMMARY:Talk with TLCs: Top tips for travelling with your child born with OA/TOF
DESCRIPTION:28 February is Rare Disease DayRaising awareness and generating change for the 300 million people worldwide living with a rare disease\, their families and carers. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					How to get involved				\n				\n				\n				\n					Light up for Rare				\n				\n				\n				\n									At 7pm on the 28th Feb\, show your colours and join the global chain of lights! Play this video at full screen at home to light up your neighbourhood.
URL:https://tofs.org.uk/event/talk-with-tlcs-top-tips-for-travelling-with-your-child-born-with-oa-tof/
LOCATION:Online
CATEGORIES:Parents & Carers,Support
ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2025/02/Talk-with-TLCs-Travelling-tips.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20250403T200000
DTEND;TZID=Europe/London:20250403T210000
DTSTAMP:20250310T162500Z
CREATED:20250310T162433Z
LAST-MODIFIED:20250310T162500Z
UID:10000106-1743710400-1743714000@tofs.org.uk
SUMMARY:Virtual meet-up for adults born with OA/TOF
DESCRIPTION:28 February is Rare Disease DayRaising awareness and generating change for the 300 million people worldwide living with a rare disease\, their families and carers. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					How to get involved				\n				\n				\n				\n					Light up for Rare				\n				\n				\n				\n									At 7pm on the 28th Feb\, show your colours and join the global chain of lights! Play this video at full screen at home to light up your neighbourhood.
URL:https://tofs.org.uk/event/virtual-meet-up-for-adults-born-with-oa-tof/
LOCATION:Online
CATEGORIES:Adult TOF
ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2025/03/cuppa-and-chat-april2.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20250312T183000
DTEND;TZID=Europe/London:20250312T193000
DTSTAMP:20250227T171103Z
CREATED:20241212T113557Z
LAST-MODIFIED:20250227T171103Z
UID:10000095-1741804200-1741807800@tofs.org.uk
SUMMARY:Live Q&A: Managing medications effectively
DESCRIPTION:28 February is Rare Disease DayRaising awareness and generating change for the 300 million people worldwide living with a rare disease\, their families and carers. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					How to get involved				\n				\n				\n				\n					Light up for Rare				\n				\n				\n				\n									At 7pm on the 28th Feb\, show your colours and join the global chain of lights! Play this video at full screen at home to light up your neighbourhood.
URL:https://tofs.org.uk/event/live-qa-managing-medications-effectively/
LOCATION:Online
CATEGORIES:Parents & Carers
ATTACH;FMTTYPE=image/jpeg:https://tofs.org.uk/wp-content/uploads/2024/12/Chew-Adverts-6.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20250306T200000
DTEND;TZID=Europe/London:20250306T210000
DTSTAMP:20250115T110032Z
CREATED:20241216T112514Z
LAST-MODIFIED:20250115T110032Z
UID:10000098-1741291200-1741294800@tofs.org.uk
SUMMARY:Virtual meet-up for adults born with OA/TOF
DESCRIPTION:28 February is Rare Disease DayRaising awareness and generating change for the 300 million people worldwide living with a rare disease\, their families and carers. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					How to get involved				\n				\n				\n				\n					Light up for Rare				\n				\n				\n				\n									At 7pm on the 28th Feb\, show your colours and join the global chain of lights! Play this video at full screen at home to light up your neighbourhood.
URL:https://tofs.org.uk/event/virtual-meet-up-for-adults-born-with-oa-tof-12/
LOCATION:Online
CATEGORIES:Adult TOF
ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2024/12/cuppa-and-chat-march-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20250305T150000
DTEND;TZID=Europe/London:20250305T160000
DTSTAMP:20250303T122915Z
CREATED:20250303T122830Z
LAST-MODIFIED:20250303T122915Z
UID:10000105-1741186800-1741190400@tofs.org.uk
SUMMARY:ERNICA: A traumatic Diagnosis - the (early) parent-child interaction in (rare) chronic paediatric diseases
DESCRIPTION:28 February is Rare Disease DayRaising awareness and generating change for the 300 million people worldwide living with a rare disease\, their families and carers. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					How to get involved				\n				\n				\n				\n					Light up for Rare				\n				\n				\n				\n									At 7pm on the 28th Feb\, show your colours and join the global chain of lights! Play this video at full screen at home to light up your neighbourhood.
URL:https://tofs.org.uk/event/ernica-a-traumatic-diagnosis-the-early-parent-child-interaction-in-rare-chronic-paediatric-diseases/
LOCATION:Online
CATEGORIES:Parents & Carers,Professional,Support
ATTACH;FMTTYPE=image/jpeg:https://tofs.org.uk/wp-content/uploads/2022/11/EARNICA_400x400.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20250301T121500
DTEND;TZID=Europe/London:20250301T163000
DTSTAMP:20250225T164055Z
CREATED:20241116T120046Z
LAST-MODIFIED:20250225T164055Z
UID:10000090-1740831300-1740846600@tofs.org.uk
SUMMARY:TOFS Seminar 2025
DESCRIPTION:28 February is Rare Disease DayRaising awareness and generating change for the 300 million people worldwide living with a rare disease\, their families and carers. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					How to get involved				\n				\n				\n				\n					Light up for Rare				\n				\n				\n				\n									At 7pm on the 28th Feb\, show your colours and join the global chain of lights! Play this video at full screen at home to light up your neighbourhood.
URL:https://tofs.org.uk/event/tofs-seminar-2025/
LOCATION:St Michaels Centre\,\, The Green\, Stoke Gifford\, Bristol\, BS34 8PD\, United Kingdom
CATEGORIES:Adult TOF,Parents & Carers,Professional,Support
ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2024/08/tofs-logo-tiny-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20250213T200000
DTEND;TZID=Europe/London:20250213T210000
DTSTAMP:20241218T094816Z
CREATED:20241218T094525Z
LAST-MODIFIED:20241218T094816Z
UID:10000100-1739476800-1739480400@tofs.org.uk
SUMMARY:Starting Nursery\, Pre-school\, and School - Talk with TLCs
DESCRIPTION:28 February is Rare Disease DayRaising awareness and generating change for the 300 million people worldwide living with a rare disease\, their families and carers. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					How to get involved				\n				\n				\n				\n					Light up for Rare				\n				\n				\n				\n									At 7pm on the 28th Feb\, show your colours and join the global chain of lights! Play this video at full screen at home to light up your neighbourhood.
URL:https://tofs.org.uk/event/starting-nursery-pre-school-and-school-talk-with-tlcs-2/
LOCATION:Online
CATEGORIES:Parents & Carers
ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2024/12/Feb25-School-Talk-with-TLCs.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20250206T200000
DTEND;TZID=Europe/London:20250206T210000
DTSTAMP:20250115T105344Z
CREATED:20241216T113119Z
LAST-MODIFIED:20250115T105344Z
UID:10000097-1738872000-1738875600@tofs.org.uk
SUMMARY:Virtual meet-up for adults born with OA/TOF
DESCRIPTION:28 February is Rare Disease DayRaising awareness and generating change for the 300 million people worldwide living with a rare disease\, their families and carers. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					How to get involved				\n				\n				\n				\n					Light up for Rare				\n				\n				\n				\n									At 7pm on the 28th Feb\, show your colours and join the global chain of lights! Play this video at full screen at home to light up your neighbourhood.
URL:https://tofs.org.uk/event/virtual-meet-up-for-adults-born-with-oa-tof-13/
LOCATION:Online
CATEGORIES:Adult TOF
ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2024/12/cuppa-and-chat-Feb.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20250129T190000
DTEND;TZID=Europe/London:20250129T200000
DTSTAMP:20241212T172302Z
CREATED:20241211T143050Z
LAST-MODIFIED:20241212T172302Z
UID:10000094-1738177200-1738180800@tofs.org.uk
SUMMARY:Live Q&A: Long term OA/TOF related gastro issues
DESCRIPTION:28 February is Rare Disease DayRaising awareness and generating change for the 300 million people worldwide living with a rare disease\, their families and carers. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					How to get involved				\n				\n				\n				\n					Light up for Rare				\n				\n				\n				\n									At 7pm on the 28th Feb\, show your colours and join the global chain of lights! Play this video at full screen at home to light up your neighbourhood.
URL:https://tofs.org.uk/event/live-qa-long-term-oa-tof-related-gastro-issues/
LOCATION:Online
CATEGORIES:Adult TOF
ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2024/12/Chew-Adverts2.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20250102T200000
DTEND;TZID=Europe/London:20250102T210000
DTSTAMP:20241217T155920Z
CREATED:20241216T112411Z
LAST-MODIFIED:20241217T155920Z
UID:10000096-1735848000-1735851600@tofs.org.uk
SUMMARY:Virtual meet-up for adults born with OA/TOF
DESCRIPTION:28 February is Rare Disease DayRaising awareness and generating change for the 300 million people worldwide living with a rare disease\, their families and carers. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					How to get involved				\n				\n				\n				\n					Light up for Rare				\n				\n				\n				\n									At 7pm on the 28th Feb\, show your colours and join the global chain of lights! Play this video at full screen at home to light up your neighbourhood.
URL:https://tofs.org.uk/event/virtual-meet-up-for-adults-born-with-oa-tof-11/
LOCATION:Online
CATEGORIES:Adult TOF
ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2024/12/cuppa-and-chat-Jan-2.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20241216T190000
DTEND;TZID=Europe/London:20241216T200000
DTSTAMP:20241209T165655Z
CREATED:20241209T165550Z
LAST-MODIFIED:20241209T165655Z
UID:10000093-1734375600-1734379200@tofs.org.uk
SUMMARY:Virtual meet-up for adults born with OA/TOF
DESCRIPTION:28 February is Rare Disease DayRaising awareness and generating change for the 300 million people worldwide living with a rare disease\, their families and carers. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					How to get involved				\n				\n				\n				\n					Light up for Rare				\n				\n				\n				\n									At 7pm on the 28th Feb\, show your colours and join the global chain of lights! Play this video at full screen at home to light up your neighbourhood.
URL:https://tofs.org.uk/event/virtual-meet-up-for-adults-born-with-oa-tof-10/
LOCATION:Online
CATEGORIES:Adult TOF
ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2024/12/cuppa-and-chat-l6dec.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20241107T190000
DTEND;TZID=Europe/London:20241107T200000
DTSTAMP:20241010T080802Z
CREATED:20241010T080802Z
LAST-MODIFIED:20241010T080802Z
UID:10000085-1731006000-1731009600@tofs.org.uk
SUMMARY:Virtual meet-up for adults born with OA/TOF
DESCRIPTION:28 February is Rare Disease DayRaising awareness and generating change for the 300 million people worldwide living with a rare disease\, their families and carers. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					How to get involved				\n				\n				\n				\n					Light up for Rare				\n				\n				\n				\n									At 7pm on the 28th Feb\, show your colours and join the global chain of lights! Play this video at full screen at home to light up your neighbourhood.
URL:https://tofs.org.uk/event/virtual-meet-up-for-adults-born-with-oa-tof-8/
LOCATION:Online
CATEGORIES:Adult TOF
ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2024/05/cuppa-and-chat-coffee.png
END:VEVENT
END:VCALENDAR