BEGIN:VCALENDAR VERSION:2.0 PRODID:-//TOFS | OA/TOF Support - ECPv6.17.0//NONSGML v1.0//EN CALSCALE:GREGORIAN METHOD:PUBLISH X-WR-CALNAME:TOFS | OA/TOF Support X-ORIGINAL-URL:https://tofs.org.uk X-WR-CALDESC:Events for TOFS | OA/TOF Support REFRESH-INTERVAL;VALUE=DURATION:PT1H X-Robots-Tag:noindex X-PUBLISHED-TTL:PT1H BEGIN:VTIMEZONE TZID:Europe/London BEGIN:DAYLIGHT TZOFFSETFROM:+0000 TZOFFSETTO:+0100 TZNAME:BST DTSTART:20240331T010000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:+0100 TZOFFSETTO:+0000 TZNAME:GMT DTSTART:20241027T010000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:+0000 TZOFFSETTO:+0100 TZNAME:BST DTSTART:20250330T010000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:+0100 TZOFFSETTO:+0000 TZNAME:GMT DTSTART:20251026T010000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:+0000 TZOFFSETTO:+0100 TZNAME:BST DTSTART:20260329T010000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:+0100 TZOFFSETTO:+0000 TZNAME:GMT DTSTART:20261025T010000 END:STANDARD END:VTIMEZONE BEGIN:VEVENT DTSTART;TZID=Europe/London:20250301T121500 DTEND;TZID=Europe/London:20250301T163000 DTSTAMP:20250225T164055Z CREATED:20241116T120046Z LAST-MODIFIED:20250225T164055Z UID:10000090-1740831300-1740846600@tofs.org.uk SUMMARY:TOFS Seminar 2025 DESCRIPTION:Are you the parent or carer of a child born with OA/TOF? Do you wish to meet others in a similar situation? Join us for a virtual cuppa\, and the opportunity to share experiences\, discuss common issues around OA/TOF and get support in a relaxed\, safe space with people who understand. This is an informal get together\, and we hope will be the start of regular meet-ups to help provide peer support for families in our OA/TOF community. The session will be held via Zoom and hosted by our TLC (TOFS Local Contact) volunteers\, who are all also parents to children born with OA/TOF. Pre-booking is essential\, so please register as soon as possible. Attendees must be members of the TOFS charity\, so if you are not yet signed up\, please do so here. Membership is free\, but donations are most welcome. \n \n \n \n \n \n \n \n Please note: Registration must be completed at least 24 hours before the start of the event. If registration deadlines are missed\, it’s likely that individuals will not be admitted to the meeting. \n \n \n \n \n \n \n \n \n CLICK HERE TO REGISTER\n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n Using Zoom \n \n \n \n In order to join this meeting\, you will need to pre-register and follow the unique link you will receive in your email. Please don’t share the link with another user as this could block access for you. Instead\, ask them to register for their own link. For the best experience\, we recommend downloading Zoom to your computer or mobile device before joining the meeting [click for more info]. It is also possible to access the meeting using your web browser (e.g. Chrome\, Safari\, Edge) without downloading any plugins or software [click for info]. The following video goes over the basic controls you can use while in a Zoom meeting. URL:https://tofs.org.uk/event/tofs-seminar-2025/ LOCATION:St Michaels Centre\,\, The Green\, Stoke Gifford\, Bristol\, BS34 8PD\, United Kingdom CATEGORIES:Adult TOF,Parents & Carers,Professional,Support ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2024/08/tofs-logo-tiny-1.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20250305T150000 DTEND;TZID=Europe/London:20250305T160000 DTSTAMP:20250303T122915Z CREATED:20250303T122830Z LAST-MODIFIED:20250303T122915Z UID:10000105-1741186800-1741190400@tofs.org.uk SUMMARY:ERNICA: A traumatic Diagnosis - the (early) parent-child interaction in (rare) chronic paediatric diseases DESCRIPTION:Are you the parent or carer of a child born with OA/TOF? Do you wish to meet others in a similar situation? Join us for a virtual cuppa\, and the opportunity to share experiences\, discuss common issues around OA/TOF and get support in a relaxed\, safe space with people who understand. This is an informal get together\, and we hope will be the start of regular meet-ups to help provide peer support for families in our OA/TOF community. The session will be held via Zoom and hosted by our TLC (TOFS Local Contact) volunteers\, who are all also parents to children born with OA/TOF. Pre-booking is essential\, so please register as soon as possible. Attendees must be members of the TOFS charity\, so if you are not yet signed up\, please do so here. Membership is free\, but donations are most welcome. \n \n \n \n \n \n \n \n Please note: Registration must be completed at least 24 hours before the start of the event. If registration deadlines are missed\, it’s likely that individuals will not be admitted to the meeting. \n \n \n \n \n \n \n \n \n CLICK HERE TO REGISTER\n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n Using Zoom \n \n \n \n In order to join this meeting\, you will need to pre-register and follow the unique link you will receive in your email. Please don’t share the link with another user as this could block access for you. Instead\, ask them to register for their own link. For the best experience\, we recommend downloading Zoom to your computer or mobile device before joining the meeting [click for more info]. It is also possible to access the meeting using your web browser (e.g. Chrome\, Safari\, Edge) without downloading any plugins or software [click for info]. The following video goes over the basic controls you can use while in a Zoom meeting. URL:https://tofs.org.uk/event/ernica-a-traumatic-diagnosis-the-early-parent-child-interaction-in-rare-chronic-paediatric-diseases/ LOCATION:Online CATEGORIES:Parents & Carers,Professional,Support ATTACH;FMTTYPE=image/jpeg:https://tofs.org.uk/wp-content/uploads/2022/11/EARNICA_400x400.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20250312T183000 DTEND;TZID=Europe/London:20250312T193000 DTSTAMP:20250227T171103Z CREATED:20241212T113557Z LAST-MODIFIED:20250227T171103Z UID:10000095-1741804200-1741807800@tofs.org.uk SUMMARY:Live Q&A: Managing medications effectively DESCRIPTION:Are you the parent or carer of a child born with OA/TOF? Do you wish to meet others in a similar situation? Join us for a virtual cuppa\, and the opportunity to share experiences\, discuss common issues around OA/TOF and get support in a relaxed\, safe space with people who understand. This is an informal get together\, and we hope will be the start of regular meet-ups to help provide peer support for families in our OA/TOF community. The session will be held via Zoom and hosted by our TLC (TOFS Local Contact) volunteers\, who are all also parents to children born with OA/TOF. Pre-booking is essential\, so please register as soon as possible. Attendees must be members of the TOFS charity\, so if you are not yet signed up\, please do so here. Membership is free\, but donations are most welcome. \n \n \n \n \n \n \n \n Please note: Registration must be completed at least 24 hours before the start of the event. If registration deadlines are missed\, it’s likely that individuals will not be admitted to the meeting. \n \n \n \n \n \n \n \n \n CLICK HERE TO REGISTER\n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n Using Zoom \n \n \n \n In order to join this meeting\, you will need to pre-register and follow the unique link you will receive in your email. Please don’t share the link with another user as this could block access for you. Instead\, ask them to register for their own link. For the best experience\, we recommend downloading Zoom to your computer or mobile device before joining the meeting [click for more info]. It is also possible to access the meeting using your web browser (e.g. Chrome\, Safari\, Edge) without downloading any plugins or software [click for info]. The following video goes over the basic controls you can use while in a Zoom meeting. URL:https://tofs.org.uk/event/live-qa-managing-medications-effectively/ LOCATION:Online CATEGORIES:Parents & Carers ATTACH;FMTTYPE=image/jpeg:https://tofs.org.uk/wp-content/uploads/2024/12/Chew-Adverts-6.jpg END:VEVENT END:VCALENDAR