Please join us for our next live Q&A session with Paediatric Respiratory Consultant, Dr Rebecca Thursfield on the 6th of December. Dr Thursfield manages children with a range of respiratory conditions including cough, wheeze, recurrent infections, immunodeficiency and cystic fibrosis. She has led the joint tracheo-oesophageal clinic for almost 10 years and manages children with OA/TOF.She is passionate […]
Do you have a child born with OA/TOF starting nursery, preschool or school soon? Join our Talk with TLCs session to speak to other parents, share experiences and learn coping strategies.The session will be held via Zoom and facilitated by two of our TOFS Local Contacts (TLCs), Naomi Webborn and Cara Macdonald – both are […]
Do you have a child born with OA/TOF starting nursery, preschool or school soon?Join our Talk with TLCs session to speak to other parents and share experiences. This is a follow up session from the first one held in January, but you are still welcome to join even if you did not attend the first […]
Do you have a teenager born with OA/TOF and have questions about transitioning into adult care? Join our Talk with TLCs online session and meet other parents in a similar situation. It's a great opportunity to share experiences and get support. The session will be held via Zoom and hosted by two of our TLCs, […]
Please join us for our next live webinar with retired Paediatrician & Neonatologist, Dr Una MacFayden, on Monday 15th July, 7-8pm.Una will be presenting and answering questions about 'leaving paediatric care and negotiating adult services'. Discussing shared decision making in adult care; and the work she is undertaking where young adults with a chronic condition […]
Don’t miss your chance to meet up with other OA/TOF parents and families in the North West. To'neill, TOFS Local Contact (TLC) for Manchester, is organising an informal get-together in Stockport and you are invited. When : Friday, 2nd August Where: Ladybridge Connect Centre, Stockport, SK8 5NZ This event is being organised by To'neill herself. If you […]
Please note this local meet-up has been cancelled by the organiser and will be rearranged for a future date.
Organiser update:There is a car park at Strawberry Field.Please use the main entrance at the centre of the building (rather than the shop entrance), you will see a set of stairs straight in front of you - go down the stairs and turn right.There is no entrance fee to Strawberry Field.The room has a private […]
Do you have a child born with OA/TOF and have questions about managing reflux?Join our Talk with TLCs online session and meet other parents in a similar situation. It’s a great opportunity to share experiences and get support.The session will be held via Zoom and hosted by two of our TLCs, To'neill and Naomi, both […]
Please join us for our next live Q&A on issues with feeding experiences and oral aversion for those born with OA/TOF.For this session, we will be joined by Maya Asir.Maya is the lead for the inpatient Speech and Language Therapy service at Evelina London Children’s Hospital. She has been a paediatric Speech and Language Therapist […]
