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DTSTART;TZID=Europe/London:20240903T190000
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DTSTAMP:20260430T222115
CREATED:20240611T122438Z
LAST-MODIFIED:20240823T112702Z
UID:10000077-1725390000-1725393600@tofs.org.uk
SUMMARY:Virtual meet-up for adults born with OA/TOF
DESCRIPTION:Applications open!We have been allocated 4 charity “Golden Bond” places for the 2027 London Marathon race and are looking for runners to join our team. As we must pay the race organisers for each place we take\, we need to feel confident that the people who are selected to run will do so successfully and with minimal risk of injury to themselves. NOTE: The organisers have put in an application to run an extra London Marathon on the day before (Saturday 24th April). If this goes ahead\, there is a possibility that we may be able to access to additional places. Applications close on the 14th June 2026 but may change subject to the number of successful applicants. Note: last year applications closed in May – so please apply as soon as possible to avoid disappointment. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Entry fee:\n£50 				\n				\n				\n				\n									This fee goes towards the admin fees charged by the race organisers but will count towards your fundraising pledge. Payable to TOFS on successful application.  								\n				\n					\n		\n				\n			\n						\n				\n					Fundraising commitment: £1\,500				\n				\n				\n				\n									This is the minimum amount (before Gift Aid) that we would expect a runner to raise. But you don’t have to stop there! TOFS runners really go for it and most will raise over £2\,500 each\, with the average being nearly £3\,500!  								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n			\n			\n\n			\n			\n								\n					About you				\n								\n												\n								First Name							\n														\n											\n								\n												\n								Surname							\n														\n											\n								\n												\n								Email							\n														\n											\n								\n												\n								Mobile							\n								\n\n						\n								\n												\n								Home Address							\n										\n								\n												\n								Postcode							\n														\n											\n								\n												\n								Year of birth							\n														\n											\n								\n												\n								Do you know anyone who was born with OA/TOF?							\n						 Yes\, I was born with OA/TOF Yes\, my child was born with OA/TOF Yes\, a friend/relative was born with OA/TOF No\, I just want to help				\n								\n												\n								Please share with us your reasons for wanting to run the London Marathon for TOFS							\n										\n								\n												\n								Please indicate your running vest size							\n								\n			\n							\n			\n									Ladies - XS (33")\n									Ladies - S (35")\n									Ladies - M (37")\n									Ladies - L (40")\n									Ladies - XL (42")\n									Ladies - XXL (43")\n									_________________\n									Mens - XS (36")\n									Mens - S (38")\n									Mens - M (40")\n									Mens - L (43")\n									Mens - XL (46")\n									Mens - XXL (49")\n							\n		\n						\n								\n												\n								If your application is successful\, we will print your first name on your running vest. If you would rather use another name please let us know here.(Leave blank if using your first name as above.)							\n														\n											\n								\n					About your fundraising experience				\n								\n												\n								Have you raised funds for TOFS before?							\n						 Yes No				\n								\n												\n								If you have raised funds for TOFS\, please give details							\n										\n								\n												\n								Have you raised funds for other charities?							\n						 Yes No				\n								\n												\n								If you have raised funds for other charities\, please give details							\n										\n								\n												\n								How much do you think you can raise for TOFS in total?(Our minimum fundraising commitment for this event is £1\,500)							\n														\n											\n								\n												\n								Please give details of how you to plan to reach this target							\n										\n								\n												\n								Will your employer sponsor you or match your funds? 							\n						 Yes No Don't Know				\n								\n												\n								If YES - please let us know how your employer is likely to contribute to your fundraising							\n										\n								\n												\n								What is your occupation?							\n														\n											\n								\n												\n								Would you be happy to take part in promotional activities?This could include sharing your story on our website or news sources							\n						 Yes No				\n								\n												\n								If successful\, would you like to be included in our WhatsApp team group chat? (Mobile numbers and photos/chats will be visible to all who agree to join.)							\n						 Yes No				\n								\n												\n								Would you like to be added to our supporter mailing list to get occasional updates from TOFS?							\n						 Yes No				\n								\n					About your running experience				\n								\n												\n								Have you run a full or half marathon before?							\n						 Yes No				\n								\n									\n								\n												\n								Please let us know about your running experience. If you have run a full or half marathon before\,  please state which one(s) and time that you achieved. If you haven't\, please state your previous running experience.							\n										\n								\n												\n								Please indicate that you agree to our terms & conditions (shown below).							\n								\n			\n				\n				Yes\, I agree to be bound by the TOFS terms and conditions\, and also those of the TCS London Marathon. 			\n		\n						\n								\n									\n								\n					\n						\n																						Submit\n													\n					\n				\n			\n		\n						\n				\n					\n		\n				\n			\n						\n				\n									TOFS will support you by offering: Someone to talk to: an experienced TOFS runner – who has run the London Marathon in the past;A limited edition TOFS running vest with your name on to wear with pride on your big day;Disposable rain poncho to keep you dry on the way to\, and whilst waiting around at\, the start;Cheering from TOFS members with banners at a couple of pre-nominated spots along the route:  your family and friends are invited to join in at these cheering points; subject to spectators being allowed;TOFS T-shirts or baseball caps for your supporters (limited numbers\, upon request) so they have an amazing day too;Access to the organisers’ pre-race support; and a social media group just for you\, the TOFS runners;Important Notes:Please bear in mind that the organisers demand that you register in person in London during the four days leading up to the Marathon. Registration can be expected to close on the day before the Marathon\, in the afternoon.  Moreover\, you will need to make all your own transport and accommodation arrangements. Note that getting to the start at Greenwich\, early on the Sunday morning\, can present some transport difficulties. TOFS asks you to use the cost-effective Peoples Fundraising website (www.peoplesfundraising.com).  Any Questions? Get in touch or give us a call on 01159 613092. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									TCS London Marathon: TOFS Terms and Conditions – For runners with a TOFS allocated place 1. You confirm that the information on this form is complete and correct\, and that you will be 18 years of age or older on 25 April 2027. 2. You recognise that TOFS will retain for a reasonable period the information that you supply by applying on this form\, whether you are selected for a TOFS Golden Bond place or not. 3. You recognise that you apply and (if selected by TOFS) run the Marathon at your own risk in accordance with standard TCS London Marathon regulations and conditions\, which are in addition to these TOFS terms and conditions. 4. You confirm that\, so far as you are aware\, you have no medical or health issues which would mean that it would be unsafe or unwise for you to train for and run a marathon. 5. You confirm that you shall (if selected to run for TOFS using a TOFS Golden bond place) diligently undertake the running training that is appropriate as preparation for a Marathon\, in the months preceding the Marathon. 6. Should you be accepted to run for TOFS using a TOFS Golden bond place\, you agree to pay a registration fee of £50 to TOFS. This is to cover some administration costs\, and TOFS will ask for prompt payment. The fee will count towards your fund-raising pledge. If the fee is not cleared in the TOFS bank account within 21 days of you being sent notification by TOFS that you have been selected\, TOFS may select another person in your place. 7. You confirm that you shall (if allocated a TOFS Golden Bond place) make diligent efforts to contact donors and sponsors and set up fundraising mechanisms so as to raise at least the amount you have suggested for TOFS\, and TOFS shall be the only charity for which you raise funds in this event. You must show at least one month before the Marathon that your fundraising has commenced for instance by setting up a fundraising webpage and receiving at least an initial donation. We ask charity place runners to raise a minimum of 75% of their sponsorship by the event date\, with the remaining fundraising due 30 days after race day. 8. If allocated a TOFS Golden Bond place\, you are pledging to raise your suggested amount for TOFS and agreeing to make up any shortfall yourself or via your own further fundraising efforts to the required minimum of £1\,500 (excluding any Gift Aid\, which is to be in addition to the £1500) to be received by TOFS by the 30th June 2027. 9. All applications to TOFS are subject to a selection process to ensure that Golden Bond places are used to best possible fundraising effect commensurate with safety for all concerned\, at the sole discretion of TOFS. TOFS will wish to give preference in the selection process to runners who are TOFS members or otherwise have a clear connection with the TOF/OA condition: however\, TOFS is not obliged to do so. 10. If allocated a TOFS Golden Bond place\, you agree to inform TOFS as soon as possible in writing\, preferably by email\, should you become unable to take part in the Marathon. Once this is acknowledged by TOFS\, your minimum sponsorship obligation will cease. You understand that\, should you withdraw from your Golden Bond place\, the TOFS registration fee is non-refundable and will be retained by TOFS to cover expenses. 11. You agree that\, should you withdraw from your Golden Bond place\, you will co-operate and correspond with TOFS and the TCS London Marathon organisers such that another runner chosen by TOFS can take your Golden Bond place. At the discretion of TOFS\, and subject to some conditions\, you may be offered a TOFS place in the following year. 12. If you are unable to participate in the TCS London Marathon for any reason\, all donated monies collected by you or donated via third parties (such as fundraising websites) in support of TOFS must be forwarded to TOFS. Money which has been pledged to you on condition of your completing the event must be returned to the individual sponsors\, or donated to TOFS if those sponsors are happy to do so. Monies already received by TOFS will not be refunded. 13. If allocated a TOFS Golden Bond place\, you agree that images taken on the day of the Marathon may be used by TOFS to help promote our fundraising efforts. 14. You understand that\, if allocated a TOFS Golden Bond place\, you will be required to also complete in full (and online) the Official TCS London Marathon Golden Bond registration process before a date yet to be confirmed\, and to confirm to TOFS as soon as you have done so. As this will be done via the TCS London Marathon website\, you understand you will need to have internet access and access to an email address before this date. 15. You understand that\, if allocated a TOFS Golden Bond place\, you will need to “register” in person\, with suitable proof of your identity\, in the days immediately before the Marathon at the TCS London Marathon’s “Expo” designated pre-race registration point in London. 16. You understand that\, if allocated a TOFS Golden Bond place\, you will need to make your own arrangements at your own expense to get to the start line and return from the finish point. 17. You understand that it is your responsibility to take out your own insurance cover for personal accident benefits to whatever level you consider appropriate. By returning this form to TOFS you accept and agree to the terms and conditions listed above.
URL:https://tofs.org.uk/event/virtual-meet-up-for-adults-born-with-oa-tof-6/
LOCATION:Online
CATEGORIES:Adult TOF
ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2024/05/cuppa-and-chat-coffee.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20240908
DTEND;VALUE=DATE:20240909
DTSTAMP:20260430T222115
CREATED:20230908T130038Z
LAST-MODIFIED:20240325T115119Z
UID:10000041-1725753600-1725839999@tofs.org.uk
SUMMARY:Great North Run 2024
DESCRIPTION:Applications open!We have been allocated 4 charity “Golden Bond” places for the 2027 London Marathon race and are looking for runners to join our team. As we must pay the race organisers for each place we take\, we need to feel confident that the people who are selected to run will do so successfully and with minimal risk of injury to themselves. NOTE: The organisers have put in an application to run an extra London Marathon on the day before (Saturday 24th April). If this goes ahead\, there is a possibility that we may be able to access to additional places. Applications close on the 14th June 2026 but may change subject to the number of successful applicants. Note: last year applications closed in May – so please apply as soon as possible to avoid disappointment. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Entry fee:\n£50 				\n				\n				\n				\n									This fee goes towards the admin fees charged by the race organisers but will count towards your fundraising pledge. Payable to TOFS on successful application.  								\n				\n					\n		\n				\n			\n						\n				\n					Fundraising commitment: £1\,500				\n				\n				\n				\n									This is the minimum amount (before Gift Aid) that we would expect a runner to raise. But you don’t have to stop there! TOFS runners really go for it and most will raise over £2\,500 each\, with the average being nearly £3\,500!  								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n			\n			\n\n			\n			\n								\n					About you				\n								\n												\n								First Name							\n														\n											\n								\n												\n								Surname							\n														\n											\n								\n												\n								Email							\n														\n											\n								\n												\n								Mobile							\n								\n\n						\n								\n												\n								Home Address							\n										\n								\n												\n								Postcode							\n														\n											\n								\n												\n								Year of birth							\n														\n											\n								\n												\n								Do you know anyone who was born with OA/TOF?							\n						 Yes\, I was born with OA/TOF Yes\, my child was born with OA/TOF Yes\, a friend/relative was born with OA/TOF No\, I just want to help				\n								\n												\n								Please share with us your reasons for wanting to run the London Marathon for TOFS							\n										\n								\n												\n								Please indicate your running vest size							\n								\n			\n							\n			\n									Ladies - XS (33")\n									Ladies - S (35")\n									Ladies - M (37")\n									Ladies - L (40")\n									Ladies - XL (42")\n									Ladies - XXL (43")\n									_________________\n									Mens - XS (36")\n									Mens - S (38")\n									Mens - M (40")\n									Mens - L (43")\n									Mens - XL (46")\n									Mens - XXL (49")\n							\n		\n						\n								\n												\n								If your application is successful\, we will print your first name on your running vest. If you would rather use another name please let us know here.(Leave blank if using your first name as above.)							\n														\n											\n								\n					About your fundraising experience				\n								\n												\n								Have you raised funds for TOFS before?							\n						 Yes No				\n								\n												\n								If you have raised funds for TOFS\, please give details							\n										\n								\n												\n								Have you raised funds for other charities?							\n						 Yes No				\n								\n												\n								If you have raised funds for other charities\, please give details							\n										\n								\n												\n								How much do you think you can raise for TOFS in total?(Our minimum fundraising commitment for this event is £1\,500)							\n														\n											\n								\n												\n								Please give details of how you to plan to reach this target							\n										\n								\n												\n								Will your employer sponsor you or match your funds? 							\n						 Yes No Don't Know				\n								\n												\n								If YES - please let us know how your employer is likely to contribute to your fundraising							\n										\n								\n												\n								What is your occupation?							\n														\n											\n								\n												\n								Would you be happy to take part in promotional activities?This could include sharing your story on our website or news sources							\n						 Yes No				\n								\n												\n								If successful\, would you like to be included in our WhatsApp team group chat? (Mobile numbers and photos/chats will be visible to all who agree to join.)							\n						 Yes No				\n								\n												\n								Would you like to be added to our supporter mailing list to get occasional updates from TOFS?							\n						 Yes No				\n								\n					About your running experience				\n								\n												\n								Have you run a full or half marathon before?							\n						 Yes No				\n								\n									\n								\n												\n								Please let us know about your running experience. If you have run a full or half marathon before\,  please state which one(s) and time that you achieved. If you haven't\, please state your previous running experience.							\n										\n								\n												\n								Please indicate that you agree to our terms & conditions (shown below).							\n								\n			\n				\n				Yes\, I agree to be bound by the TOFS terms and conditions\, and also those of the TCS London Marathon. 			\n		\n						\n								\n									\n								\n					\n						\n																						Submit\n													\n					\n				\n			\n		\n						\n				\n					\n		\n				\n			\n						\n				\n									TOFS will support you by offering: Someone to talk to: an experienced TOFS runner – who has run the London Marathon in the past;A limited edition TOFS running vest with your name on to wear with pride on your big day;Disposable rain poncho to keep you dry on the way to\, and whilst waiting around at\, the start;Cheering from TOFS members with banners at a couple of pre-nominated spots along the route:  your family and friends are invited to join in at these cheering points; subject to spectators being allowed;TOFS T-shirts or baseball caps for your supporters (limited numbers\, upon request) so they have an amazing day too;Access to the organisers’ pre-race support; and a social media group just for you\, the TOFS runners;Important Notes:Please bear in mind that the organisers demand that you register in person in London during the four days leading up to the Marathon. Registration can be expected to close on the day before the Marathon\, in the afternoon.  Moreover\, you will need to make all your own transport and accommodation arrangements. Note that getting to the start at Greenwich\, early on the Sunday morning\, can present some transport difficulties. TOFS asks you to use the cost-effective Peoples Fundraising website (www.peoplesfundraising.com).  Any Questions? Get in touch or give us a call on 01159 613092. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									TCS London Marathon: TOFS Terms and Conditions – For runners with a TOFS allocated place 1. You confirm that the information on this form is complete and correct\, and that you will be 18 years of age or older on 25 April 2027. 2. You recognise that TOFS will retain for a reasonable period the information that you supply by applying on this form\, whether you are selected for a TOFS Golden Bond place or not. 3. You recognise that you apply and (if selected by TOFS) run the Marathon at your own risk in accordance with standard TCS London Marathon regulations and conditions\, which are in addition to these TOFS terms and conditions. 4. You confirm that\, so far as you are aware\, you have no medical or health issues which would mean that it would be unsafe or unwise for you to train for and run a marathon. 5. You confirm that you shall (if selected to run for TOFS using a TOFS Golden bond place) diligently undertake the running training that is appropriate as preparation for a Marathon\, in the months preceding the Marathon. 6. Should you be accepted to run for TOFS using a TOFS Golden bond place\, you agree to pay a registration fee of £50 to TOFS. This is to cover some administration costs\, and TOFS will ask for prompt payment. The fee will count towards your fund-raising pledge. If the fee is not cleared in the TOFS bank account within 21 days of you being sent notification by TOFS that you have been selected\, TOFS may select another person in your place. 7. You confirm that you shall (if allocated a TOFS Golden Bond place) make diligent efforts to contact donors and sponsors and set up fundraising mechanisms so as to raise at least the amount you have suggested for TOFS\, and TOFS shall be the only charity for which you raise funds in this event. You must show at least one month before the Marathon that your fundraising has commenced for instance by setting up a fundraising webpage and receiving at least an initial donation. We ask charity place runners to raise a minimum of 75% of their sponsorship by the event date\, with the remaining fundraising due 30 days after race day. 8. If allocated a TOFS Golden Bond place\, you are pledging to raise your suggested amount for TOFS and agreeing to make up any shortfall yourself or via your own further fundraising efforts to the required minimum of £1\,500 (excluding any Gift Aid\, which is to be in addition to the £1500) to be received by TOFS by the 30th June 2027. 9. All applications to TOFS are subject to a selection process to ensure that Golden Bond places are used to best possible fundraising effect commensurate with safety for all concerned\, at the sole discretion of TOFS. TOFS will wish to give preference in the selection process to runners who are TOFS members or otherwise have a clear connection with the TOF/OA condition: however\, TOFS is not obliged to do so. 10. If allocated a TOFS Golden Bond place\, you agree to inform TOFS as soon as possible in writing\, preferably by email\, should you become unable to take part in the Marathon. Once this is acknowledged by TOFS\, your minimum sponsorship obligation will cease. You understand that\, should you withdraw from your Golden Bond place\, the TOFS registration fee is non-refundable and will be retained by TOFS to cover expenses. 11. You agree that\, should you withdraw from your Golden Bond place\, you will co-operate and correspond with TOFS and the TCS London Marathon organisers such that another runner chosen by TOFS can take your Golden Bond place. At the discretion of TOFS\, and subject to some conditions\, you may be offered a TOFS place in the following year. 12. If you are unable to participate in the TCS London Marathon for any reason\, all donated monies collected by you or donated via third parties (such as fundraising websites) in support of TOFS must be forwarded to TOFS. Money which has been pledged to you on condition of your completing the event must be returned to the individual sponsors\, or donated to TOFS if those sponsors are happy to do so. Monies already received by TOFS will not be refunded. 13. If allocated a TOFS Golden Bond place\, you agree that images taken on the day of the Marathon may be used by TOFS to help promote our fundraising efforts. 14. You understand that\, if allocated a TOFS Golden Bond place\, you will be required to also complete in full (and online) the Official TCS London Marathon Golden Bond registration process before a date yet to be confirmed\, and to confirm to TOFS as soon as you have done so. As this will be done via the TCS London Marathon website\, you understand you will need to have internet access and access to an email address before this date. 15. You understand that\, if allocated a TOFS Golden Bond place\, you will need to “register” in person\, with suitable proof of your identity\, in the days immediately before the Marathon at the TCS London Marathon’s “Expo” designated pre-race registration point in London. 16. You understand that\, if allocated a TOFS Golden Bond place\, you will need to make your own arrangements at your own expense to get to the start line and return from the finish point. 17. You understand that it is your responsibility to take out your own insurance cover for personal accident benefits to whatever level you consider appropriate. By returning this form to TOFS you accept and agree to the terms and conditions listed above.
URL:https://tofs.org.uk/event/great-north-run-2024/
LOCATION:Newcastle\, United Kingdom
CATEGORIES:Fundraising
ATTACH;FMTTYPE=image/jpeg:https://tofs.org.uk/wp-content/uploads/2023/09/WhatsApp-Image-2022-09-11-at-20.37.51-4-e1694096386805.jpeg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20240921T130000
DTEND;TZID=Europe/London:20240921T160000
DTSTAMP:20260430T222115
CREATED:20240802T094500Z
LAST-MODIFIED:20240918T132726Z
UID:10000081-1726923600-1726934400@tofs.org.uk
SUMMARY:Local Meet-up - Merseyside
DESCRIPTION:Applications open!We have been allocated 4 charity “Golden Bond” places for the 2027 London Marathon race and are looking for runners to join our team. As we must pay the race organisers for each place we take\, we need to feel confident that the people who are selected to run will do so successfully and with minimal risk of injury to themselves. NOTE: The organisers have put in an application to run an extra London Marathon on the day before (Saturday 24th April). If this goes ahead\, there is a possibility that we may be able to access to additional places. Applications close on the 14th June 2026 but may change subject to the number of successful applicants. Note: last year applications closed in May – so please apply as soon as possible to avoid disappointment. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Entry fee:\n£50 				\n				\n				\n				\n									This fee goes towards the admin fees charged by the race organisers but will count towards your fundraising pledge. Payable to TOFS on successful application.  								\n				\n					\n		\n				\n			\n						\n				\n					Fundraising commitment: £1\,500				\n				\n				\n				\n									This is the minimum amount (before Gift Aid) that we would expect a runner to raise. But you don’t have to stop there! TOFS runners really go for it and most will raise over £2\,500 each\, with the average being nearly £3\,500!  								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n			\n			\n\n			\n			\n								\n					About you				\n								\n												\n								First Name							\n														\n											\n								\n												\n								Surname							\n														\n											\n								\n												\n								Email							\n														\n											\n								\n												\n								Mobile							\n								\n\n						\n								\n												\n								Home Address							\n										\n								\n												\n								Postcode							\n														\n											\n								\n												\n								Year of birth							\n														\n											\n								\n												\n								Do you know anyone who was born with OA/TOF?							\n						 Yes\, I was born with OA/TOF Yes\, my child was born with OA/TOF Yes\, a friend/relative was born with OA/TOF No\, I just want to help				\n								\n												\n								Please share with us your reasons for wanting to run the London Marathon for TOFS							\n										\n								\n												\n								Please indicate your running vest size							\n								\n			\n							\n			\n									Ladies - XS (33")\n									Ladies - S (35")\n									Ladies - M (37")\n									Ladies - L (40")\n									Ladies - XL (42")\n									Ladies - XXL (43")\n									_________________\n									Mens - XS (36")\n									Mens - S (38")\n									Mens - M (40")\n									Mens - L (43")\n									Mens - XL (46")\n									Mens - XXL (49")\n							\n		\n						\n								\n												\n								If your application is successful\, we will print your first name on your running vest. If you would rather use another name please let us know here.(Leave blank if using your first name as above.)							\n														\n											\n								\n					About your fundraising experience				\n								\n												\n								Have you raised funds for TOFS before?							\n						 Yes No				\n								\n												\n								If you have raised funds for TOFS\, please give details							\n										\n								\n												\n								Have you raised funds for other charities?							\n						 Yes No				\n								\n												\n								If you have raised funds for other charities\, please give details							\n										\n								\n												\n								How much do you think you can raise for TOFS in total?(Our minimum fundraising commitment for this event is £1\,500)							\n														\n											\n								\n												\n								Please give details of how you to plan to reach this target							\n										\n								\n												\n								Will your employer sponsor you or match your funds? 							\n						 Yes No Don't Know				\n								\n												\n								If YES - please let us know how your employer is likely to contribute to your fundraising							\n										\n								\n												\n								What is your occupation?							\n														\n											\n								\n												\n								Would you be happy to take part in promotional activities?This could include sharing your story on our website or news sources							\n						 Yes No				\n								\n												\n								If successful\, would you like to be included in our WhatsApp team group chat? (Mobile numbers and photos/chats will be visible to all who agree to join.)							\n						 Yes No				\n								\n												\n								Would you like to be added to our supporter mailing list to get occasional updates from TOFS?							\n						 Yes No				\n								\n					About your running experience				\n								\n												\n								Have you run a full or half marathon before?							\n						 Yes No				\n								\n									\n								\n												\n								Please let us know about your running experience. If you have run a full or half marathon before\,  please state which one(s) and time that you achieved. If you haven't\, please state your previous running experience.							\n										\n								\n												\n								Please indicate that you agree to our terms & conditions (shown below).							\n								\n			\n				\n				Yes\, I agree to be bound by the TOFS terms and conditions\, and also those of the TCS London Marathon. 			\n		\n						\n								\n									\n								\n					\n						\n																						Submit\n													\n					\n				\n			\n		\n						\n				\n					\n		\n				\n			\n						\n				\n									TOFS will support you by offering: Someone to talk to: an experienced TOFS runner – who has run the London Marathon in the past;A limited edition TOFS running vest with your name on to wear with pride on your big day;Disposable rain poncho to keep you dry on the way to\, and whilst waiting around at\, the start;Cheering from TOFS members with banners at a couple of pre-nominated spots along the route:  your family and friends are invited to join in at these cheering points; subject to spectators being allowed;TOFS T-shirts or baseball caps for your supporters (limited numbers\, upon request) so they have an amazing day too;Access to the organisers’ pre-race support; and a social media group just for you\, the TOFS runners;Important Notes:Please bear in mind that the organisers demand that you register in person in London during the four days leading up to the Marathon. Registration can be expected to close on the day before the Marathon\, in the afternoon.  Moreover\, you will need to make all your own transport and accommodation arrangements. Note that getting to the start at Greenwich\, early on the Sunday morning\, can present some transport difficulties. TOFS asks you to use the cost-effective Peoples Fundraising website (www.peoplesfundraising.com).  Any Questions? Get in touch or give us a call on 01159 613092. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									TCS London Marathon: TOFS Terms and Conditions – For runners with a TOFS allocated place 1. You confirm that the information on this form is complete and correct\, and that you will be 18 years of age or older on 25 April 2027. 2. You recognise that TOFS will retain for a reasonable period the information that you supply by applying on this form\, whether you are selected for a TOFS Golden Bond place or not. 3. You recognise that you apply and (if selected by TOFS) run the Marathon at your own risk in accordance with standard TCS London Marathon regulations and conditions\, which are in addition to these TOFS terms and conditions. 4. You confirm that\, so far as you are aware\, you have no medical or health issues which would mean that it would be unsafe or unwise for you to train for and run a marathon. 5. You confirm that you shall (if selected to run for TOFS using a TOFS Golden bond place) diligently undertake the running training that is appropriate as preparation for a Marathon\, in the months preceding the Marathon. 6. Should you be accepted to run for TOFS using a TOFS Golden bond place\, you agree to pay a registration fee of £50 to TOFS. This is to cover some administration costs\, and TOFS will ask for prompt payment. The fee will count towards your fund-raising pledge. If the fee is not cleared in the TOFS bank account within 21 days of you being sent notification by TOFS that you have been selected\, TOFS may select another person in your place. 7. You confirm that you shall (if allocated a TOFS Golden Bond place) make diligent efforts to contact donors and sponsors and set up fundraising mechanisms so as to raise at least the amount you have suggested for TOFS\, and TOFS shall be the only charity for which you raise funds in this event. You must show at least one month before the Marathon that your fundraising has commenced for instance by setting up a fundraising webpage and receiving at least an initial donation. We ask charity place runners to raise a minimum of 75% of their sponsorship by the event date\, with the remaining fundraising due 30 days after race day. 8. If allocated a TOFS Golden Bond place\, you are pledging to raise your suggested amount for TOFS and agreeing to make up any shortfall yourself or via your own further fundraising efforts to the required minimum of £1\,500 (excluding any Gift Aid\, which is to be in addition to the £1500) to be received by TOFS by the 30th June 2027. 9. All applications to TOFS are subject to a selection process to ensure that Golden Bond places are used to best possible fundraising effect commensurate with safety for all concerned\, at the sole discretion of TOFS. TOFS will wish to give preference in the selection process to runners who are TOFS members or otherwise have a clear connection with the TOF/OA condition: however\, TOFS is not obliged to do so. 10. If allocated a TOFS Golden Bond place\, you agree to inform TOFS as soon as possible in writing\, preferably by email\, should you become unable to take part in the Marathon. Once this is acknowledged by TOFS\, your minimum sponsorship obligation will cease. You understand that\, should you withdraw from your Golden Bond place\, the TOFS registration fee is non-refundable and will be retained by TOFS to cover expenses. 11. You agree that\, should you withdraw from your Golden Bond place\, you will co-operate and correspond with TOFS and the TCS London Marathon organisers such that another runner chosen by TOFS can take your Golden Bond place. At the discretion of TOFS\, and subject to some conditions\, you may be offered a TOFS place in the following year. 12. If you are unable to participate in the TCS London Marathon for any reason\, all donated monies collected by you or donated via third parties (such as fundraising websites) in support of TOFS must be forwarded to TOFS. Money which has been pledged to you on condition of your completing the event must be returned to the individual sponsors\, or donated to TOFS if those sponsors are happy to do so. Monies already received by TOFS will not be refunded. 13. If allocated a TOFS Golden Bond place\, you agree that images taken on the day of the Marathon may be used by TOFS to help promote our fundraising efforts. 14. You understand that\, if allocated a TOFS Golden Bond place\, you will be required to also complete in full (and online) the Official TCS London Marathon Golden Bond registration process before a date yet to be confirmed\, and to confirm to TOFS as soon as you have done so. As this will be done via the TCS London Marathon website\, you understand you will need to have internet access and access to an email address before this date. 15. You understand that\, if allocated a TOFS Golden Bond place\, you will need to “register” in person\, with suitable proof of your identity\, in the days immediately before the Marathon at the TCS London Marathon’s “Expo” designated pre-race registration point in London. 16. You understand that\, if allocated a TOFS Golden Bond place\, you will need to make your own arrangements at your own expense to get to the start line and return from the finish point. 17. You understand that it is your responsibility to take out your own insurance cover for personal accident benefits to whatever level you consider appropriate. By returning this form to TOFS you accept and agree to the terms and conditions listed above.
URL:https://tofs.org.uk/event/local-meet-up-merseyside/
LOCATION:Strawberry Field\, Beaconsfield Road\, Liverpool\, Merseyside\, L25 6EJ\, United Kingdom
CATEGORIES:Parents & Carers,Support
ATTACH;FMTTYPE=image/jpeg:https://tofs.org.uk/wp-content/uploads/2024/04/local-meet-up.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20240922T103000
DTEND;TZID=Europe/London:20240922T123000
DTSTAMP:20260430T222115
CREATED:20240702T115641Z
LAST-MODIFIED:20240906T100740Z
UID:10000079-1727001000-1727008200@tofs.org.uk
SUMMARY:Local Meet-up - Leeds
DESCRIPTION:Applications open!We have been allocated 4 charity “Golden Bond” places for the 2027 London Marathon race and are looking for runners to join our team. As we must pay the race organisers for each place we take\, we need to feel confident that the people who are selected to run will do so successfully and with minimal risk of injury to themselves. NOTE: The organisers have put in an application to run an extra London Marathon on the day before (Saturday 24th April). If this goes ahead\, there is a possibility that we may be able to access to additional places. Applications close on the 14th June 2026 but may change subject to the number of successful applicants. Note: last year applications closed in May – so please apply as soon as possible to avoid disappointment. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Entry fee:\n£50 				\n				\n				\n				\n									This fee goes towards the admin fees charged by the race organisers but will count towards your fundraising pledge. Payable to TOFS on successful application.  								\n				\n					\n		\n				\n			\n						\n				\n					Fundraising commitment: £1\,500				\n				\n				\n				\n									This is the minimum amount (before Gift Aid) that we would expect a runner to raise. But you don’t have to stop there! TOFS runners really go for it and most will raise over £2\,500 each\, with the average being nearly £3\,500!  								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n			\n			\n\n			\n			\n								\n					About you				\n								\n												\n								First Name							\n														\n											\n								\n												\n								Surname							\n														\n											\n								\n												\n								Email							\n														\n											\n								\n												\n								Mobile							\n								\n\n						\n								\n												\n								Home Address							\n										\n								\n												\n								Postcode							\n														\n											\n								\n												\n								Year of birth							\n														\n											\n								\n												\n								Do you know anyone who was born with OA/TOF?							\n						 Yes\, I was born with OA/TOF Yes\, my child was born with OA/TOF Yes\, a friend/relative was born with OA/TOF No\, I just want to help				\n								\n												\n								Please share with us your reasons for wanting to run the London Marathon for TOFS							\n										\n								\n												\n								Please indicate your running vest size							\n								\n			\n							\n			\n									Ladies - XS (33")\n									Ladies - S (35")\n									Ladies - M (37")\n									Ladies - L (40")\n									Ladies - XL (42")\n									Ladies - XXL (43")\n									_________________\n									Mens - XS (36")\n									Mens - S (38")\n									Mens - M (40")\n									Mens - L (43")\n									Mens - XL (46")\n									Mens - XXL (49")\n							\n		\n						\n								\n												\n								If your application is successful\, we will print your first name on your running vest. If you would rather use another name please let us know here.(Leave blank if using your first name as above.)							\n														\n											\n								\n					About your fundraising experience				\n								\n												\n								Have you raised funds for TOFS before?							\n						 Yes No				\n								\n												\n								If you have raised funds for TOFS\, please give details							\n										\n								\n												\n								Have you raised funds for other charities?							\n						 Yes No				\n								\n												\n								If you have raised funds for other charities\, please give details							\n										\n								\n												\n								How much do you think you can raise for TOFS in total?(Our minimum fundraising commitment for this event is £1\,500)							\n														\n											\n								\n												\n								Please give details of how you to plan to reach this target							\n										\n								\n												\n								Will your employer sponsor you or match your funds? 							\n						 Yes No Don't Know				\n								\n												\n								If YES - please let us know how your employer is likely to contribute to your fundraising							\n										\n								\n												\n								What is your occupation?							\n														\n											\n								\n												\n								Would you be happy to take part in promotional activities?This could include sharing your story on our website or news sources							\n						 Yes No				\n								\n												\n								If successful\, would you like to be included in our WhatsApp team group chat? (Mobile numbers and photos/chats will be visible to all who agree to join.)							\n						 Yes No				\n								\n												\n								Would you like to be added to our supporter mailing list to get occasional updates from TOFS?							\n						 Yes No				\n								\n					About your running experience				\n								\n												\n								Have you run a full or half marathon before?							\n						 Yes No				\n								\n									\n								\n												\n								Please let us know about your running experience. If you have run a full or half marathon before\,  please state which one(s) and time that you achieved. If you haven't\, please state your previous running experience.							\n										\n								\n												\n								Please indicate that you agree to our terms & conditions (shown below).							\n								\n			\n				\n				Yes\, I agree to be bound by the TOFS terms and conditions\, and also those of the TCS London Marathon. 			\n		\n						\n								\n									\n								\n					\n						\n																						Submit\n													\n					\n				\n			\n		\n						\n				\n					\n		\n				\n			\n						\n				\n									TOFS will support you by offering: Someone to talk to: an experienced TOFS runner – who has run the London Marathon in the past;A limited edition TOFS running vest with your name on to wear with pride on your big day;Disposable rain poncho to keep you dry on the way to\, and whilst waiting around at\, the start;Cheering from TOFS members with banners at a couple of pre-nominated spots along the route:  your family and friends are invited to join in at these cheering points; subject to spectators being allowed;TOFS T-shirts or baseball caps for your supporters (limited numbers\, upon request) so they have an amazing day too;Access to the organisers’ pre-race support; and a social media group just for you\, the TOFS runners;Important Notes:Please bear in mind that the organisers demand that you register in person in London during the four days leading up to the Marathon. Registration can be expected to close on the day before the Marathon\, in the afternoon.  Moreover\, you will need to make all your own transport and accommodation arrangements. Note that getting to the start at Greenwich\, early on the Sunday morning\, can present some transport difficulties. TOFS asks you to use the cost-effective Peoples Fundraising website (www.peoplesfundraising.com).  Any Questions? Get in touch or give us a call on 01159 613092. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									TCS London Marathon: TOFS Terms and Conditions – For runners with a TOFS allocated place 1. You confirm that the information on this form is complete and correct\, and that you will be 18 years of age or older on 25 April 2027. 2. You recognise that TOFS will retain for a reasonable period the information that you supply by applying on this form\, whether you are selected for a TOFS Golden Bond place or not. 3. You recognise that you apply and (if selected by TOFS) run the Marathon at your own risk in accordance with standard TCS London Marathon regulations and conditions\, which are in addition to these TOFS terms and conditions. 4. You confirm that\, so far as you are aware\, you have no medical or health issues which would mean that it would be unsafe or unwise for you to train for and run a marathon. 5. You confirm that you shall (if selected to run for TOFS using a TOFS Golden bond place) diligently undertake the running training that is appropriate as preparation for a Marathon\, in the months preceding the Marathon. 6. Should you be accepted to run for TOFS using a TOFS Golden bond place\, you agree to pay a registration fee of £50 to TOFS. This is to cover some administration costs\, and TOFS will ask for prompt payment. The fee will count towards your fund-raising pledge. If the fee is not cleared in the TOFS bank account within 21 days of you being sent notification by TOFS that you have been selected\, TOFS may select another person in your place. 7. You confirm that you shall (if allocated a TOFS Golden Bond place) make diligent efforts to contact donors and sponsors and set up fundraising mechanisms so as to raise at least the amount you have suggested for TOFS\, and TOFS shall be the only charity for which you raise funds in this event. You must show at least one month before the Marathon that your fundraising has commenced for instance by setting up a fundraising webpage and receiving at least an initial donation. We ask charity place runners to raise a minimum of 75% of their sponsorship by the event date\, with the remaining fundraising due 30 days after race day. 8. If allocated a TOFS Golden Bond place\, you are pledging to raise your suggested amount for TOFS and agreeing to make up any shortfall yourself or via your own further fundraising efforts to the required minimum of £1\,500 (excluding any Gift Aid\, which is to be in addition to the £1500) to be received by TOFS by the 30th June 2027. 9. All applications to TOFS are subject to a selection process to ensure that Golden Bond places are used to best possible fundraising effect commensurate with safety for all concerned\, at the sole discretion of TOFS. TOFS will wish to give preference in the selection process to runners who are TOFS members or otherwise have a clear connection with the TOF/OA condition: however\, TOFS is not obliged to do so. 10. If allocated a TOFS Golden Bond place\, you agree to inform TOFS as soon as possible in writing\, preferably by email\, should you become unable to take part in the Marathon. Once this is acknowledged by TOFS\, your minimum sponsorship obligation will cease. You understand that\, should you withdraw from your Golden Bond place\, the TOFS registration fee is non-refundable and will be retained by TOFS to cover expenses. 11. You agree that\, should you withdraw from your Golden Bond place\, you will co-operate and correspond with TOFS and the TCS London Marathon organisers such that another runner chosen by TOFS can take your Golden Bond place. At the discretion of TOFS\, and subject to some conditions\, you may be offered a TOFS place in the following year. 12. If you are unable to participate in the TCS London Marathon for any reason\, all donated monies collected by you or donated via third parties (such as fundraising websites) in support of TOFS must be forwarded to TOFS. Money which has been pledged to you on condition of your completing the event must be returned to the individual sponsors\, or donated to TOFS if those sponsors are happy to do so. Monies already received by TOFS will not be refunded. 13. If allocated a TOFS Golden Bond place\, you agree that images taken on the day of the Marathon may be used by TOFS to help promote our fundraising efforts. 14. You understand that\, if allocated a TOFS Golden Bond place\, you will be required to also complete in full (and online) the Official TCS London Marathon Golden Bond registration process before a date yet to be confirmed\, and to confirm to TOFS as soon as you have done so. As this will be done via the TCS London Marathon website\, you understand you will need to have internet access and access to an email address before this date. 15. You understand that\, if allocated a TOFS Golden Bond place\, you will need to “register” in person\, with suitable proof of your identity\, in the days immediately before the Marathon at the TCS London Marathon’s “Expo” designated pre-race registration point in London. 16. You understand that\, if allocated a TOFS Golden Bond place\, you will need to make your own arrangements at your own expense to get to the start line and return from the finish point. 17. You understand that it is your responsibility to take out your own insurance cover for personal accident benefits to whatever level you consider appropriate. By returning this form to TOFS you accept and agree to the terms and conditions listed above.
URL:https://tofs.org.uk/event/local-meet-up-leeds/
LOCATION:Roundhay Park\, 9 Park Ave\, Roundhay\, Leeds\, LS8 2WF\, United Kingdom
ATTACH;FMTTYPE=image/jpeg:https://tofs.org.uk/wp-content/uploads/2024/04/local-meet-up.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20241001T183000
DTEND;TZID=Europe/London:20241001T193000
DTSTAMP:20260430T222115
CREATED:20240905T094756Z
LAST-MODIFIED:20241010T161453Z
UID:10000082-1727807400-1727811000@tofs.org.uk
SUMMARY:Virtual meet-up for adults born with OA/TOF
DESCRIPTION:Applications open!We have been allocated 4 charity “Golden Bond” places for the 2027 London Marathon race and are looking for runners to join our team. As we must pay the race organisers for each place we take\, we need to feel confident that the people who are selected to run will do so successfully and with minimal risk of injury to themselves. NOTE: The organisers have put in an application to run an extra London Marathon on the day before (Saturday 24th April). If this goes ahead\, there is a possibility that we may be able to access to additional places. Applications close on the 14th June 2026 but may change subject to the number of successful applicants. Note: last year applications closed in May – so please apply as soon as possible to avoid disappointment. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Entry fee:\n£50 				\n				\n				\n				\n									This fee goes towards the admin fees charged by the race organisers but will count towards your fundraising pledge. Payable to TOFS on successful application.  								\n				\n					\n		\n				\n			\n						\n				\n					Fundraising commitment: £1\,500				\n				\n				\n				\n									This is the minimum amount (before Gift Aid) that we would expect a runner to raise. But you don’t have to stop there! TOFS runners really go for it and most will raise over £2\,500 each\, with the average being nearly £3\,500!  								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n			\n			\n\n			\n			\n								\n					About you				\n								\n												\n								First Name							\n														\n											\n								\n												\n								Surname							\n														\n											\n								\n												\n								Email							\n														\n											\n								\n												\n								Mobile							\n								\n\n						\n								\n												\n								Home Address							\n										\n								\n												\n								Postcode							\n														\n											\n								\n												\n								Year of birth							\n														\n											\n								\n												\n								Do you know anyone who was born with OA/TOF?							\n						 Yes\, I was born with OA/TOF Yes\, my child was born with OA/TOF Yes\, a friend/relative was born with OA/TOF No\, I just want to help				\n								\n												\n								Please share with us your reasons for wanting to run the London Marathon for TOFS							\n										\n								\n												\n								Please indicate your running vest size							\n								\n			\n							\n			\n									Ladies - XS (33")\n									Ladies - S (35")\n									Ladies - M (37")\n									Ladies - L (40")\n									Ladies - XL (42")\n									Ladies - XXL (43")\n									_________________\n									Mens - XS (36")\n									Mens - S (38")\n									Mens - M (40")\n									Mens - L (43")\n									Mens - XL (46")\n									Mens - XXL (49")\n							\n		\n						\n								\n												\n								If your application is successful\, we will print your first name on your running vest. If you would rather use another name please let us know here.(Leave blank if using your first name as above.)							\n														\n											\n								\n					About your fundraising experience				\n								\n												\n								Have you raised funds for TOFS before?							\n						 Yes No				\n								\n												\n								If you have raised funds for TOFS\, please give details							\n										\n								\n												\n								Have you raised funds for other charities?							\n						 Yes No				\n								\n												\n								If you have raised funds for other charities\, please give details							\n										\n								\n												\n								How much do you think you can raise for TOFS in total?(Our minimum fundraising commitment for this event is £1\,500)							\n														\n											\n								\n												\n								Please give details of how you to plan to reach this target							\n										\n								\n												\n								Will your employer sponsor you or match your funds? 							\n						 Yes No Don't Know				\n								\n												\n								If YES - please let us know how your employer is likely to contribute to your fundraising							\n										\n								\n												\n								What is your occupation?							\n														\n											\n								\n												\n								Would you be happy to take part in promotional activities?This could include sharing your story on our website or news sources							\n						 Yes No				\n								\n												\n								If successful\, would you like to be included in our WhatsApp team group chat? (Mobile numbers and photos/chats will be visible to all who agree to join.)							\n						 Yes No				\n								\n												\n								Would you like to be added to our supporter mailing list to get occasional updates from TOFS?							\n						 Yes No				\n								\n					About your running experience				\n								\n												\n								Have you run a full or half marathon before?							\n						 Yes No				\n								\n									\n								\n												\n								Please let us know about your running experience. If you have run a full or half marathon before\,  please state which one(s) and time that you achieved. If you haven't\, please state your previous running experience.							\n										\n								\n												\n								Please indicate that you agree to our terms & conditions (shown below).							\n								\n			\n				\n				Yes\, I agree to be bound by the TOFS terms and conditions\, and also those of the TCS London Marathon. 			\n		\n						\n								\n									\n								\n					\n						\n																						Submit\n													\n					\n				\n			\n		\n						\n				\n					\n		\n				\n			\n						\n				\n									TOFS will support you by offering: Someone to talk to: an experienced TOFS runner – who has run the London Marathon in the past;A limited edition TOFS running vest with your name on to wear with pride on your big day;Disposable rain poncho to keep you dry on the way to\, and whilst waiting around at\, the start;Cheering from TOFS members with banners at a couple of pre-nominated spots along the route:  your family and friends are invited to join in at these cheering points; subject to spectators being allowed;TOFS T-shirts or baseball caps for your supporters (limited numbers\, upon request) so they have an amazing day too;Access to the organisers’ pre-race support; and a social media group just for you\, the TOFS runners;Important Notes:Please bear in mind that the organisers demand that you register in person in London during the four days leading up to the Marathon. Registration can be expected to close on the day before the Marathon\, in the afternoon.  Moreover\, you will need to make all your own transport and accommodation arrangements. Note that getting to the start at Greenwich\, early on the Sunday morning\, can present some transport difficulties. TOFS asks you to use the cost-effective Peoples Fundraising website (www.peoplesfundraising.com).  Any Questions? Get in touch or give us a call on 01159 613092. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									TCS London Marathon: TOFS Terms and Conditions – For runners with a TOFS allocated place 1. You confirm that the information on this form is complete and correct\, and that you will be 18 years of age or older on 25 April 2027. 2. You recognise that TOFS will retain for a reasonable period the information that you supply by applying on this form\, whether you are selected for a TOFS Golden Bond place or not. 3. You recognise that you apply and (if selected by TOFS) run the Marathon at your own risk in accordance with standard TCS London Marathon regulations and conditions\, which are in addition to these TOFS terms and conditions. 4. You confirm that\, so far as you are aware\, you have no medical or health issues which would mean that it would be unsafe or unwise for you to train for and run a marathon. 5. You confirm that you shall (if selected to run for TOFS using a TOFS Golden bond place) diligently undertake the running training that is appropriate as preparation for a Marathon\, in the months preceding the Marathon. 6. Should you be accepted to run for TOFS using a TOFS Golden bond place\, you agree to pay a registration fee of £50 to TOFS. This is to cover some administration costs\, and TOFS will ask for prompt payment. The fee will count towards your fund-raising pledge. If the fee is not cleared in the TOFS bank account within 21 days of you being sent notification by TOFS that you have been selected\, TOFS may select another person in your place. 7. You confirm that you shall (if allocated a TOFS Golden Bond place) make diligent efforts to contact donors and sponsors and set up fundraising mechanisms so as to raise at least the amount you have suggested for TOFS\, and TOFS shall be the only charity for which you raise funds in this event. You must show at least one month before the Marathon that your fundraising has commenced for instance by setting up a fundraising webpage and receiving at least an initial donation. We ask charity place runners to raise a minimum of 75% of their sponsorship by the event date\, with the remaining fundraising due 30 days after race day. 8. If allocated a TOFS Golden Bond place\, you are pledging to raise your suggested amount for TOFS and agreeing to make up any shortfall yourself or via your own further fundraising efforts to the required minimum of £1\,500 (excluding any Gift Aid\, which is to be in addition to the £1500) to be received by TOFS by the 30th June 2027. 9. All applications to TOFS are subject to a selection process to ensure that Golden Bond places are used to best possible fundraising effect commensurate with safety for all concerned\, at the sole discretion of TOFS. TOFS will wish to give preference in the selection process to runners who are TOFS members or otherwise have a clear connection with the TOF/OA condition: however\, TOFS is not obliged to do so. 10. If allocated a TOFS Golden Bond place\, you agree to inform TOFS as soon as possible in writing\, preferably by email\, should you become unable to take part in the Marathon. Once this is acknowledged by TOFS\, your minimum sponsorship obligation will cease. You understand that\, should you withdraw from your Golden Bond place\, the TOFS registration fee is non-refundable and will be retained by TOFS to cover expenses. 11. You agree that\, should you withdraw from your Golden Bond place\, you will co-operate and correspond with TOFS and the TCS London Marathon organisers such that another runner chosen by TOFS can take your Golden Bond place. At the discretion of TOFS\, and subject to some conditions\, you may be offered a TOFS place in the following year. 12. If you are unable to participate in the TCS London Marathon for any reason\, all donated monies collected by you or donated via third parties (such as fundraising websites) in support of TOFS must be forwarded to TOFS. Money which has been pledged to you on condition of your completing the event must be returned to the individual sponsors\, or donated to TOFS if those sponsors are happy to do so. Monies already received by TOFS will not be refunded. 13. If allocated a TOFS Golden Bond place\, you agree that images taken on the day of the Marathon may be used by TOFS to help promote our fundraising efforts. 14. You understand that\, if allocated a TOFS Golden Bond place\, you will be required to also complete in full (and online) the Official TCS London Marathon Golden Bond registration process before a date yet to be confirmed\, and to confirm to TOFS as soon as you have done so. As this will be done via the TCS London Marathon website\, you understand you will need to have internet access and access to an email address before this date. 15. You understand that\, if allocated a TOFS Golden Bond place\, you will need to “register” in person\, with suitable proof of your identity\, in the days immediately before the Marathon at the TCS London Marathon’s “Expo” designated pre-race registration point in London. 16. You understand that\, if allocated a TOFS Golden Bond place\, you will need to make your own arrangements at your own expense to get to the start line and return from the finish point. 17. You understand that it is your responsibility to take out your own insurance cover for personal accident benefits to whatever level you consider appropriate. By returning this form to TOFS you accept and agree to the terms and conditions listed above.
URL:https://tofs.org.uk/event/virtual-meet-up-for-adults-born-with-oa-tof-7/
LOCATION:Online
CATEGORIES:Adult TOF
ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2024/05/cuppa-and-chat-coffee.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20241001T200000
DTEND;TZID=Europe/London:20241001T210000
DTSTAMP:20260430T222115
CREATED:20240730T140649Z
LAST-MODIFIED:20240730T140844Z
UID:10000080-1727812800-1727816400@tofs.org.uk
SUMMARY:Reflux management: Talk with TLCs
DESCRIPTION:Applications open!We have been allocated 4 charity “Golden Bond” places for the 2027 London Marathon race and are looking for runners to join our team. As we must pay the race organisers for each place we take\, we need to feel confident that the people who are selected to run will do so successfully and with minimal risk of injury to themselves. NOTE: The organisers have put in an application to run an extra London Marathon on the day before (Saturday 24th April). If this goes ahead\, there is a possibility that we may be able to access to additional places. Applications close on the 14th June 2026 but may change subject to the number of successful applicants. Note: last year applications closed in May – so please apply as soon as possible to avoid disappointment. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Entry fee:\n£50 				\n				\n				\n				\n									This fee goes towards the admin fees charged by the race organisers but will count towards your fundraising pledge. Payable to TOFS on successful application.  								\n				\n					\n		\n				\n			\n						\n				\n					Fundraising commitment: £1\,500				\n				\n				\n				\n									This is the minimum amount (before Gift Aid) that we would expect a runner to raise. But you don’t have to stop there! TOFS runners really go for it and most will raise over £2\,500 each\, with the average being nearly £3\,500!  								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n			\n			\n\n			\n			\n								\n					About you				\n								\n												\n								First Name							\n														\n											\n								\n												\n								Surname							\n														\n											\n								\n												\n								Email							\n														\n											\n								\n												\n								Mobile							\n								\n\n						\n								\n												\n								Home Address							\n										\n								\n												\n								Postcode							\n														\n											\n								\n												\n								Year of birth							\n														\n											\n								\n												\n								Do you know anyone who was born with OA/TOF?							\n						 Yes\, I was born with OA/TOF Yes\, my child was born with OA/TOF Yes\, a friend/relative was born with OA/TOF No\, I just want to help				\n								\n												\n								Please share with us your reasons for wanting to run the London Marathon for TOFS							\n										\n								\n												\n								Please indicate your running vest size							\n								\n			\n							\n			\n									Ladies - XS (33")\n									Ladies - S (35")\n									Ladies - M (37")\n									Ladies - L (40")\n									Ladies - XL (42")\n									Ladies - XXL (43")\n									_________________\n									Mens - XS (36")\n									Mens - S (38")\n									Mens - M (40")\n									Mens - L (43")\n									Mens - XL (46")\n									Mens - XXL (49")\n							\n		\n						\n								\n												\n								If your application is successful\, we will print your first name on your running vest. If you would rather use another name please let us know here.(Leave blank if using your first name as above.)							\n														\n											\n								\n					About your fundraising experience				\n								\n												\n								Have you raised funds for TOFS before?							\n						 Yes No				\n								\n												\n								If you have raised funds for TOFS\, please give details							\n										\n								\n												\n								Have you raised funds for other charities?							\n						 Yes No				\n								\n												\n								If you have raised funds for other charities\, please give details							\n										\n								\n												\n								How much do you think you can raise for TOFS in total?(Our minimum fundraising commitment for this event is £1\,500)							\n														\n											\n								\n												\n								Please give details of how you to plan to reach this target							\n										\n								\n												\n								Will your employer sponsor you or match your funds? 							\n						 Yes No Don't Know				\n								\n												\n								If YES - please let us know how your employer is likely to contribute to your fundraising							\n										\n								\n												\n								What is your occupation?							\n														\n											\n								\n												\n								Would you be happy to take part in promotional activities?This could include sharing your story on our website or news sources							\n						 Yes No				\n								\n												\n								If successful\, would you like to be included in our WhatsApp team group chat? (Mobile numbers and photos/chats will be visible to all who agree to join.)							\n						 Yes No				\n								\n												\n								Would you like to be added to our supporter mailing list to get occasional updates from TOFS?							\n						 Yes No				\n								\n					About your running experience				\n								\n												\n								Have you run a full or half marathon before?							\n						 Yes No				\n								\n									\n								\n												\n								Please let us know about your running experience. If you have run a full or half marathon before\,  please state which one(s) and time that you achieved. If you haven't\, please state your previous running experience.							\n										\n								\n												\n								Please indicate that you agree to our terms & conditions (shown below).							\n								\n			\n				\n				Yes\, I agree to be bound by the TOFS terms and conditions\, and also those of the TCS London Marathon. 			\n		\n						\n								\n									\n								\n					\n						\n																						Submit\n													\n					\n				\n			\n		\n						\n				\n					\n		\n				\n			\n						\n				\n									TOFS will support you by offering: Someone to talk to: an experienced TOFS runner – who has run the London Marathon in the past;A limited edition TOFS running vest with your name on to wear with pride on your big day;Disposable rain poncho to keep you dry on the way to\, and whilst waiting around at\, the start;Cheering from TOFS members with banners at a couple of pre-nominated spots along the route:  your family and friends are invited to join in at these cheering points; subject to spectators being allowed;TOFS T-shirts or baseball caps for your supporters (limited numbers\, upon request) so they have an amazing day too;Access to the organisers’ pre-race support; and a social media group just for you\, the TOFS runners;Important Notes:Please bear in mind that the organisers demand that you register in person in London during the four days leading up to the Marathon. Registration can be expected to close on the day before the Marathon\, in the afternoon.  Moreover\, you will need to make all your own transport and accommodation arrangements. Note that getting to the start at Greenwich\, early on the Sunday morning\, can present some transport difficulties. TOFS asks you to use the cost-effective Peoples Fundraising website (www.peoplesfundraising.com).  Any Questions? Get in touch or give us a call on 01159 613092. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									TCS London Marathon: TOFS Terms and Conditions – For runners with a TOFS allocated place 1. You confirm that the information on this form is complete and correct\, and that you will be 18 years of age or older on 25 April 2027. 2. You recognise that TOFS will retain for a reasonable period the information that you supply by applying on this form\, whether you are selected for a TOFS Golden Bond place or not. 3. You recognise that you apply and (if selected by TOFS) run the Marathon at your own risk in accordance with standard TCS London Marathon regulations and conditions\, which are in addition to these TOFS terms and conditions. 4. You confirm that\, so far as you are aware\, you have no medical or health issues which would mean that it would be unsafe or unwise for you to train for and run a marathon. 5. You confirm that you shall (if selected to run for TOFS using a TOFS Golden bond place) diligently undertake the running training that is appropriate as preparation for a Marathon\, in the months preceding the Marathon. 6. Should you be accepted to run for TOFS using a TOFS Golden bond place\, you agree to pay a registration fee of £50 to TOFS. This is to cover some administration costs\, and TOFS will ask for prompt payment. The fee will count towards your fund-raising pledge. If the fee is not cleared in the TOFS bank account within 21 days of you being sent notification by TOFS that you have been selected\, TOFS may select another person in your place. 7. You confirm that you shall (if allocated a TOFS Golden Bond place) make diligent efforts to contact donors and sponsors and set up fundraising mechanisms so as to raise at least the amount you have suggested for TOFS\, and TOFS shall be the only charity for which you raise funds in this event. You must show at least one month before the Marathon that your fundraising has commenced for instance by setting up a fundraising webpage and receiving at least an initial donation. We ask charity place runners to raise a minimum of 75% of their sponsorship by the event date\, with the remaining fundraising due 30 days after race day. 8. If allocated a TOFS Golden Bond place\, you are pledging to raise your suggested amount for TOFS and agreeing to make up any shortfall yourself or via your own further fundraising efforts to the required minimum of £1\,500 (excluding any Gift Aid\, which is to be in addition to the £1500) to be received by TOFS by the 30th June 2027. 9. All applications to TOFS are subject to a selection process to ensure that Golden Bond places are used to best possible fundraising effect commensurate with safety for all concerned\, at the sole discretion of TOFS. TOFS will wish to give preference in the selection process to runners who are TOFS members or otherwise have a clear connection with the TOF/OA condition: however\, TOFS is not obliged to do so. 10. If allocated a TOFS Golden Bond place\, you agree to inform TOFS as soon as possible in writing\, preferably by email\, should you become unable to take part in the Marathon. Once this is acknowledged by TOFS\, your minimum sponsorship obligation will cease. You understand that\, should you withdraw from your Golden Bond place\, the TOFS registration fee is non-refundable and will be retained by TOFS to cover expenses. 11. You agree that\, should you withdraw from your Golden Bond place\, you will co-operate and correspond with TOFS and the TCS London Marathon organisers such that another runner chosen by TOFS can take your Golden Bond place. At the discretion of TOFS\, and subject to some conditions\, you may be offered a TOFS place in the following year. 12. If you are unable to participate in the TCS London Marathon for any reason\, all donated monies collected by you or donated via third parties (such as fundraising websites) in support of TOFS must be forwarded to TOFS. Money which has been pledged to you on condition of your completing the event must be returned to the individual sponsors\, or donated to TOFS if those sponsors are happy to do so. Monies already received by TOFS will not be refunded. 13. If allocated a TOFS Golden Bond place\, you agree that images taken on the day of the Marathon may be used by TOFS to help promote our fundraising efforts. 14. You understand that\, if allocated a TOFS Golden Bond place\, you will be required to also complete in full (and online) the Official TCS London Marathon Golden Bond registration process before a date yet to be confirmed\, and to confirm to TOFS as soon as you have done so. As this will be done via the TCS London Marathon website\, you understand you will need to have internet access and access to an email address before this date. 15. You understand that\, if allocated a TOFS Golden Bond place\, you will need to “register” in person\, with suitable proof of your identity\, in the days immediately before the Marathon at the TCS London Marathon’s “Expo” designated pre-race registration point in London. 16. You understand that\, if allocated a TOFS Golden Bond place\, you will need to make your own arrangements at your own expense to get to the start line and return from the finish point. 17. You understand that it is your responsibility to take out your own insurance cover for personal accident benefits to whatever level you consider appropriate. By returning this form to TOFS you accept and agree to the terms and conditions listed above.
URL:https://tofs.org.uk/event/reflux-management-talk-with-tlcs/
LOCATION:Online
CATEGORIES:Parents & Carers
ATTACH;FMTTYPE=image/jpeg:https://tofs.org.uk/wp-content/uploads/2024/07/TLC-events-ads-13.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20241024T190000
DTEND;TZID=Europe/London:20241024T200000
DTSTAMP:20260430T222115
CREATED:20240920T161219Z
LAST-MODIFIED:20240920T161303Z
UID:10000084-1729796400-1729800000@tofs.org.uk
SUMMARY:Live Q&A: Feeding experiences and oral aversion
DESCRIPTION:Applications open!We have been allocated 4 charity “Golden Bond” places for the 2027 London Marathon race and are looking for runners to join our team. As we must pay the race organisers for each place we take\, we need to feel confident that the people who are selected to run will do so successfully and with minimal risk of injury to themselves. NOTE: The organisers have put in an application to run an extra London Marathon on the day before (Saturday 24th April). If this goes ahead\, there is a possibility that we may be able to access to additional places. Applications close on the 14th June 2026 but may change subject to the number of successful applicants. Note: last year applications closed in May – so please apply as soon as possible to avoid disappointment. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Entry fee:\n£50 				\n				\n				\n				\n									This fee goes towards the admin fees charged by the race organisers but will count towards your fundraising pledge. Payable to TOFS on successful application.  								\n				\n					\n		\n				\n			\n						\n				\n					Fundraising commitment: £1\,500				\n				\n				\n				\n									This is the minimum amount (before Gift Aid) that we would expect a runner to raise. But you don’t have to stop there! TOFS runners really go for it and most will raise over £2\,500 each\, with the average being nearly £3\,500!  								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n			\n			\n\n			\n			\n								\n					About you				\n								\n												\n								First Name							\n														\n											\n								\n												\n								Surname							\n														\n											\n								\n												\n								Email							\n														\n											\n								\n												\n								Mobile							\n								\n\n						\n								\n												\n								Home Address							\n										\n								\n												\n								Postcode							\n														\n											\n								\n												\n								Year of birth							\n														\n											\n								\n												\n								Do you know anyone who was born with OA/TOF?							\n						 Yes\, I was born with OA/TOF Yes\, my child was born with OA/TOF Yes\, a friend/relative was born with OA/TOF No\, I just want to help				\n								\n												\n								Please share with us your reasons for wanting to run the London Marathon for TOFS							\n										\n								\n												\n								Please indicate your running vest size							\n								\n			\n							\n			\n									Ladies - XS (33")\n									Ladies - S (35")\n									Ladies - M (37")\n									Ladies - L (40")\n									Ladies - XL (42")\n									Ladies - XXL (43")\n									_________________\n									Mens - XS (36")\n									Mens - S (38")\n									Mens - M (40")\n									Mens - L (43")\n									Mens - XL (46")\n									Mens - XXL (49")\n							\n		\n						\n								\n												\n								If your application is successful\, we will print your first name on your running vest. If you would rather use another name please let us know here.(Leave blank if using your first name as above.)							\n														\n											\n								\n					About your fundraising experience				\n								\n												\n								Have you raised funds for TOFS before?							\n						 Yes No				\n								\n												\n								If you have raised funds for TOFS\, please give details							\n										\n								\n												\n								Have you raised funds for other charities?							\n						 Yes No				\n								\n												\n								If you have raised funds for other charities\, please give details							\n										\n								\n												\n								How much do you think you can raise for TOFS in total?(Our minimum fundraising commitment for this event is £1\,500)							\n														\n											\n								\n												\n								Please give details of how you to plan to reach this target							\n										\n								\n												\n								Will your employer sponsor you or match your funds? 							\n						 Yes No Don't Know				\n								\n												\n								If YES - please let us know how your employer is likely to contribute to your fundraising							\n										\n								\n												\n								What is your occupation?							\n														\n											\n								\n												\n								Would you be happy to take part in promotional activities?This could include sharing your story on our website or news sources							\n						 Yes No				\n								\n												\n								If successful\, would you like to be included in our WhatsApp team group chat? (Mobile numbers and photos/chats will be visible to all who agree to join.)							\n						 Yes No				\n								\n												\n								Would you like to be added to our supporter mailing list to get occasional updates from TOFS?							\n						 Yes No				\n								\n					About your running experience				\n								\n												\n								Have you run a full or half marathon before?							\n						 Yes No				\n								\n									\n								\n												\n								Please let us know about your running experience. If you have run a full or half marathon before\,  please state which one(s) and time that you achieved. If you haven't\, please state your previous running experience.							\n										\n								\n												\n								Please indicate that you agree to our terms & conditions (shown below).							\n								\n			\n				\n				Yes\, I agree to be bound by the TOFS terms and conditions\, and also those of the TCS London Marathon. 			\n		\n						\n								\n									\n								\n					\n						\n																						Submit\n													\n					\n				\n			\n		\n						\n				\n					\n		\n				\n			\n						\n				\n									TOFS will support you by offering: Someone to talk to: an experienced TOFS runner – who has run the London Marathon in the past;A limited edition TOFS running vest with your name on to wear with pride on your big day;Disposable rain poncho to keep you dry on the way to\, and whilst waiting around at\, the start;Cheering from TOFS members with banners at a couple of pre-nominated spots along the route:  your family and friends are invited to join in at these cheering points; subject to spectators being allowed;TOFS T-shirts or baseball caps for your supporters (limited numbers\, upon request) so they have an amazing day too;Access to the organisers’ pre-race support; and a social media group just for you\, the TOFS runners;Important Notes:Please bear in mind that the organisers demand that you register in person in London during the four days leading up to the Marathon. Registration can be expected to close on the day before the Marathon\, in the afternoon.  Moreover\, you will need to make all your own transport and accommodation arrangements. Note that getting to the start at Greenwich\, early on the Sunday morning\, can present some transport difficulties. TOFS asks you to use the cost-effective Peoples Fundraising website (www.peoplesfundraising.com).  Any Questions? Get in touch or give us a call on 01159 613092. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									TCS London Marathon: TOFS Terms and Conditions – For runners with a TOFS allocated place 1. You confirm that the information on this form is complete and correct\, and that you will be 18 years of age or older on 25 April 2027. 2. You recognise that TOFS will retain for a reasonable period the information that you supply by applying on this form\, whether you are selected for a TOFS Golden Bond place or not. 3. You recognise that you apply and (if selected by TOFS) run the Marathon at your own risk in accordance with standard TCS London Marathon regulations and conditions\, which are in addition to these TOFS terms and conditions. 4. You confirm that\, so far as you are aware\, you have no medical or health issues which would mean that it would be unsafe or unwise for you to train for and run a marathon. 5. You confirm that you shall (if selected to run for TOFS using a TOFS Golden bond place) diligently undertake the running training that is appropriate as preparation for a Marathon\, in the months preceding the Marathon. 6. Should you be accepted to run for TOFS using a TOFS Golden bond place\, you agree to pay a registration fee of £50 to TOFS. This is to cover some administration costs\, and TOFS will ask for prompt payment. The fee will count towards your fund-raising pledge. If the fee is not cleared in the TOFS bank account within 21 days of you being sent notification by TOFS that you have been selected\, TOFS may select another person in your place. 7. You confirm that you shall (if allocated a TOFS Golden Bond place) make diligent efforts to contact donors and sponsors and set up fundraising mechanisms so as to raise at least the amount you have suggested for TOFS\, and TOFS shall be the only charity for which you raise funds in this event. You must show at least one month before the Marathon that your fundraising has commenced for instance by setting up a fundraising webpage and receiving at least an initial donation. We ask charity place runners to raise a minimum of 75% of their sponsorship by the event date\, with the remaining fundraising due 30 days after race day. 8. If allocated a TOFS Golden Bond place\, you are pledging to raise your suggested amount for TOFS and agreeing to make up any shortfall yourself or via your own further fundraising efforts to the required minimum of £1\,500 (excluding any Gift Aid\, which is to be in addition to the £1500) to be received by TOFS by the 30th June 2027. 9. All applications to TOFS are subject to a selection process to ensure that Golden Bond places are used to best possible fundraising effect commensurate with safety for all concerned\, at the sole discretion of TOFS. TOFS will wish to give preference in the selection process to runners who are TOFS members or otherwise have a clear connection with the TOF/OA condition: however\, TOFS is not obliged to do so. 10. If allocated a TOFS Golden Bond place\, you agree to inform TOFS as soon as possible in writing\, preferably by email\, should you become unable to take part in the Marathon. Once this is acknowledged by TOFS\, your minimum sponsorship obligation will cease. You understand that\, should you withdraw from your Golden Bond place\, the TOFS registration fee is non-refundable and will be retained by TOFS to cover expenses. 11. You agree that\, should you withdraw from your Golden Bond place\, you will co-operate and correspond with TOFS and the TCS London Marathon organisers such that another runner chosen by TOFS can take your Golden Bond place. At the discretion of TOFS\, and subject to some conditions\, you may be offered a TOFS place in the following year. 12. If you are unable to participate in the TCS London Marathon for any reason\, all donated monies collected by you or donated via third parties (such as fundraising websites) in support of TOFS must be forwarded to TOFS. Money which has been pledged to you on condition of your completing the event must be returned to the individual sponsors\, or donated to TOFS if those sponsors are happy to do so. Monies already received by TOFS will not be refunded. 13. If allocated a TOFS Golden Bond place\, you agree that images taken on the day of the Marathon may be used by TOFS to help promote our fundraising efforts. 14. You understand that\, if allocated a TOFS Golden Bond place\, you will be required to also complete in full (and online) the Official TCS London Marathon Golden Bond registration process before a date yet to be confirmed\, and to confirm to TOFS as soon as you have done so. As this will be done via the TCS London Marathon website\, you understand you will need to have internet access and access to an email address before this date. 15. You understand that\, if allocated a TOFS Golden Bond place\, you will need to “register” in person\, with suitable proof of your identity\, in the days immediately before the Marathon at the TCS London Marathon’s “Expo” designated pre-race registration point in London. 16. You understand that\, if allocated a TOFS Golden Bond place\, you will need to make your own arrangements at your own expense to get to the start line and return from the finish point. 17. You understand that it is your responsibility to take out your own insurance cover for personal accident benefits to whatever level you consider appropriate. By returning this form to TOFS you accept and agree to the terms and conditions listed above.
URL:https://tofs.org.uk/event/live-qa-feeding-experiences-and-oral-aversion/
LOCATION:Online
CATEGORIES:Adult TOF,Parents & Carers
ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2024/09/Event-Pin-Feeding-Experiences-and-Oral-Aversion.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20241103T100000
DTEND;TZID=Europe/London:20241103T140000
DTSTAMP:20260430T222115
CREATED:20241014T093726Z
LAST-MODIFIED:20241014T100618Z
UID:10000086-1730628000-1730642400@tofs.org.uk
SUMMARY:Local Meet-up – Brisbane
DESCRIPTION:Applications open!We have been allocated 4 charity “Golden Bond” places for the 2027 London Marathon race and are looking for runners to join our team. As we must pay the race organisers for each place we take\, we need to feel confident that the people who are selected to run will do so successfully and with minimal risk of injury to themselves. NOTE: The organisers have put in an application to run an extra London Marathon on the day before (Saturday 24th April). If this goes ahead\, there is a possibility that we may be able to access to additional places. Applications close on the 14th June 2026 but may change subject to the number of successful applicants. Note: last year applications closed in May – so please apply as soon as possible to avoid disappointment. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Entry fee:\n£50 				\n				\n				\n				\n									This fee goes towards the admin fees charged by the race organisers but will count towards your fundraising pledge. Payable to TOFS on successful application.  								\n				\n					\n		\n				\n			\n						\n				\n					Fundraising commitment: £1\,500				\n				\n				\n				\n									This is the minimum amount (before Gift Aid) that we would expect a runner to raise. But you don’t have to stop there! TOFS runners really go for it and most will raise over £2\,500 each\, with the average being nearly £3\,500!  								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n			\n			\n\n			\n			\n								\n					About you				\n								\n												\n								First Name							\n														\n											\n								\n												\n								Surname							\n														\n											\n								\n												\n								Email							\n														\n											\n								\n												\n								Mobile							\n								\n\n						\n								\n												\n								Home Address							\n										\n								\n												\n								Postcode							\n														\n											\n								\n												\n								Year of birth							\n														\n											\n								\n												\n								Do you know anyone who was born with OA/TOF?							\n						 Yes\, I was born with OA/TOF Yes\, my child was born with OA/TOF Yes\, a friend/relative was born with OA/TOF No\, I just want to help				\n								\n												\n								Please share with us your reasons for wanting to run the London Marathon for TOFS							\n										\n								\n												\n								Please indicate your running vest size							\n								\n			\n							\n			\n									Ladies - XS (33")\n									Ladies - S (35")\n									Ladies - M (37")\n									Ladies - L (40")\n									Ladies - XL (42")\n									Ladies - XXL (43")\n									_________________\n									Mens - XS (36")\n									Mens - S (38")\n									Mens - M (40")\n									Mens - L (43")\n									Mens - XL (46")\n									Mens - XXL (49")\n							\n		\n						\n								\n												\n								If your application is successful\, we will print your first name on your running vest. If you would rather use another name please let us know here.(Leave blank if using your first name as above.)							\n														\n											\n								\n					About your fundraising experience				\n								\n												\n								Have you raised funds for TOFS before?							\n						 Yes No				\n								\n												\n								If you have raised funds for TOFS\, please give details							\n										\n								\n												\n								Have you raised funds for other charities?							\n						 Yes No				\n								\n												\n								If you have raised funds for other charities\, please give details							\n										\n								\n												\n								How much do you think you can raise for TOFS in total?(Our minimum fundraising commitment for this event is £1\,500)							\n														\n											\n								\n												\n								Please give details of how you to plan to reach this target							\n										\n								\n												\n								Will your employer sponsor you or match your funds? 							\n						 Yes No Don't Know				\n								\n												\n								If YES - please let us know how your employer is likely to contribute to your fundraising							\n										\n								\n												\n								What is your occupation?							\n														\n											\n								\n												\n								Would you be happy to take part in promotional activities?This could include sharing your story on our website or news sources							\n						 Yes No				\n								\n												\n								If successful\, would you like to be included in our WhatsApp team group chat? (Mobile numbers and photos/chats will be visible to all who agree to join.)							\n						 Yes No				\n								\n												\n								Would you like to be added to our supporter mailing list to get occasional updates from TOFS?							\n						 Yes No				\n								\n					About your running experience				\n								\n												\n								Have you run a full or half marathon before?							\n						 Yes No				\n								\n									\n								\n												\n								Please let us know about your running experience. If you have run a full or half marathon before\,  please state which one(s) and time that you achieved. If you haven't\, please state your previous running experience.							\n										\n								\n												\n								Please indicate that you agree to our terms & conditions (shown below).							\n								\n			\n				\n				Yes\, I agree to be bound by the TOFS terms and conditions\, and also those of the TCS London Marathon. 			\n		\n						\n								\n									\n								\n					\n						\n																						Submit\n													\n					\n				\n			\n		\n						\n				\n					\n		\n				\n			\n						\n				\n									TOFS will support you by offering: Someone to talk to: an experienced TOFS runner – who has run the London Marathon in the past;A limited edition TOFS running vest with your name on to wear with pride on your big day;Disposable rain poncho to keep you dry on the way to\, and whilst waiting around at\, the start;Cheering from TOFS members with banners at a couple of pre-nominated spots along the route:  your family and friends are invited to join in at these cheering points; subject to spectators being allowed;TOFS T-shirts or baseball caps for your supporters (limited numbers\, upon request) so they have an amazing day too;Access to the organisers’ pre-race support; and a social media group just for you\, the TOFS runners;Important Notes:Please bear in mind that the organisers demand that you register in person in London during the four days leading up to the Marathon. Registration can be expected to close on the day before the Marathon\, in the afternoon.  Moreover\, you will need to make all your own transport and accommodation arrangements. Note that getting to the start at Greenwich\, early on the Sunday morning\, can present some transport difficulties. TOFS asks you to use the cost-effective Peoples Fundraising website (www.peoplesfundraising.com).  Any Questions? Get in touch or give us a call on 01159 613092. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									TCS London Marathon: TOFS Terms and Conditions – For runners with a TOFS allocated place 1. You confirm that the information on this form is complete and correct\, and that you will be 18 years of age or older on 25 April 2027. 2. You recognise that TOFS will retain for a reasonable period the information that you supply by applying on this form\, whether you are selected for a TOFS Golden Bond place or not. 3. You recognise that you apply and (if selected by TOFS) run the Marathon at your own risk in accordance with standard TCS London Marathon regulations and conditions\, which are in addition to these TOFS terms and conditions. 4. You confirm that\, so far as you are aware\, you have no medical or health issues which would mean that it would be unsafe or unwise for you to train for and run a marathon. 5. You confirm that you shall (if selected to run for TOFS using a TOFS Golden bond place) diligently undertake the running training that is appropriate as preparation for a Marathon\, in the months preceding the Marathon. 6. Should you be accepted to run for TOFS using a TOFS Golden bond place\, you agree to pay a registration fee of £50 to TOFS. This is to cover some administration costs\, and TOFS will ask for prompt payment. The fee will count towards your fund-raising pledge. If the fee is not cleared in the TOFS bank account within 21 days of you being sent notification by TOFS that you have been selected\, TOFS may select another person in your place. 7. You confirm that you shall (if allocated a TOFS Golden Bond place) make diligent efforts to contact donors and sponsors and set up fundraising mechanisms so as to raise at least the amount you have suggested for TOFS\, and TOFS shall be the only charity for which you raise funds in this event. You must show at least one month before the Marathon that your fundraising has commenced for instance by setting up a fundraising webpage and receiving at least an initial donation. We ask charity place runners to raise a minimum of 75% of their sponsorship by the event date\, with the remaining fundraising due 30 days after race day. 8. If allocated a TOFS Golden Bond place\, you are pledging to raise your suggested amount for TOFS and agreeing to make up any shortfall yourself or via your own further fundraising efforts to the required minimum of £1\,500 (excluding any Gift Aid\, which is to be in addition to the £1500) to be received by TOFS by the 30th June 2027. 9. All applications to TOFS are subject to a selection process to ensure that Golden Bond places are used to best possible fundraising effect commensurate with safety for all concerned\, at the sole discretion of TOFS. TOFS will wish to give preference in the selection process to runners who are TOFS members or otherwise have a clear connection with the TOF/OA condition: however\, TOFS is not obliged to do so. 10. If allocated a TOFS Golden Bond place\, you agree to inform TOFS as soon as possible in writing\, preferably by email\, should you become unable to take part in the Marathon. Once this is acknowledged by TOFS\, your minimum sponsorship obligation will cease. You understand that\, should you withdraw from your Golden Bond place\, the TOFS registration fee is non-refundable and will be retained by TOFS to cover expenses. 11. You agree that\, should you withdraw from your Golden Bond place\, you will co-operate and correspond with TOFS and the TCS London Marathon organisers such that another runner chosen by TOFS can take your Golden Bond place. At the discretion of TOFS\, and subject to some conditions\, you may be offered a TOFS place in the following year. 12. If you are unable to participate in the TCS London Marathon for any reason\, all donated monies collected by you or donated via third parties (such as fundraising websites) in support of TOFS must be forwarded to TOFS. Money which has been pledged to you on condition of your completing the event must be returned to the individual sponsors\, or donated to TOFS if those sponsors are happy to do so. Monies already received by TOFS will not be refunded. 13. If allocated a TOFS Golden Bond place\, you agree that images taken on the day of the Marathon may be used by TOFS to help promote our fundraising efforts. 14. You understand that\, if allocated a TOFS Golden Bond place\, you will be required to also complete in full (and online) the Official TCS London Marathon Golden Bond registration process before a date yet to be confirmed\, and to confirm to TOFS as soon as you have done so. As this will be done via the TCS London Marathon website\, you understand you will need to have internet access and access to an email address before this date. 15. You understand that\, if allocated a TOFS Golden Bond place\, you will need to “register” in person\, with suitable proof of your identity\, in the days immediately before the Marathon at the TCS London Marathon’s “Expo” designated pre-race registration point in London. 16. You understand that\, if allocated a TOFS Golden Bond place\, you will need to make your own arrangements at your own expense to get to the start line and return from the finish point. 17. You understand that it is your responsibility to take out your own insurance cover for personal accident benefits to whatever level you consider appropriate. By returning this form to TOFS you accept and agree to the terms and conditions listed above.
URL:https://tofs.org.uk/event/local-meet-up-brisbane/
LOCATION:South Bank\, Little Stanley St\, Brisbane\, 4101\, Australia
ATTACH;FMTTYPE=image/jpeg:https://tofs.org.uk/wp-content/uploads/2024/04/local-meet-up.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20241107T190000
DTEND;TZID=Europe/London:20241107T200000
DTSTAMP:20260430T222115
CREATED:20241010T080802Z
LAST-MODIFIED:20241010T080802Z
UID:10000085-1731006000-1731009600@tofs.org.uk
SUMMARY:Virtual meet-up for adults born with OA/TOF
DESCRIPTION:Applications open!We have been allocated 4 charity “Golden Bond” places for the 2027 London Marathon race and are looking for runners to join our team. As we must pay the race organisers for each place we take\, we need to feel confident that the people who are selected to run will do so successfully and with minimal risk of injury to themselves. NOTE: The organisers have put in an application to run an extra London Marathon on the day before (Saturday 24th April). If this goes ahead\, there is a possibility that we may be able to access to additional places. Applications close on the 14th June 2026 but may change subject to the number of successful applicants. Note: last year applications closed in May – so please apply as soon as possible to avoid disappointment. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Entry fee:\n£50 				\n				\n				\n				\n									This fee goes towards the admin fees charged by the race organisers but will count towards your fundraising pledge. Payable to TOFS on successful application.  								\n				\n					\n		\n				\n			\n						\n				\n					Fundraising commitment: £1\,500				\n				\n				\n				\n									This is the minimum amount (before Gift Aid) that we would expect a runner to raise. But you don’t have to stop there! TOFS runners really go for it and most will raise over £2\,500 each\, with the average being nearly £3\,500!  								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n			\n			\n\n			\n			\n								\n					About you				\n								\n												\n								First Name							\n														\n											\n								\n												\n								Surname							\n														\n											\n								\n												\n								Email							\n														\n											\n								\n												\n								Mobile							\n								\n\n						\n								\n												\n								Home Address							\n										\n								\n												\n								Postcode							\n														\n											\n								\n												\n								Year of birth							\n														\n											\n								\n												\n								Do you know anyone who was born with OA/TOF?							\n						 Yes\, I was born with OA/TOF Yes\, my child was born with OA/TOF Yes\, a friend/relative was born with OA/TOF No\, I just want to help				\n								\n												\n								Please share with us your reasons for wanting to run the London Marathon for TOFS							\n										\n								\n												\n								Please indicate your running vest size							\n								\n			\n							\n			\n									Ladies - XS (33")\n									Ladies - S (35")\n									Ladies - M (37")\n									Ladies - L (40")\n									Ladies - XL (42")\n									Ladies - XXL (43")\n									_________________\n									Mens - XS (36")\n									Mens - S (38")\n									Mens - M (40")\n									Mens - L (43")\n									Mens - XL (46")\n									Mens - XXL (49")\n							\n		\n						\n								\n												\n								If your application is successful\, we will print your first name on your running vest. If you would rather use another name please let us know here.(Leave blank if using your first name as above.)							\n														\n											\n								\n					About your fundraising experience				\n								\n												\n								Have you raised funds for TOFS before?							\n						 Yes No				\n								\n												\n								If you have raised funds for TOFS\, please give details							\n										\n								\n												\n								Have you raised funds for other charities?							\n						 Yes No				\n								\n												\n								If you have raised funds for other charities\, please give details							\n										\n								\n												\n								How much do you think you can raise for TOFS in total?(Our minimum fundraising commitment for this event is £1\,500)							\n														\n											\n								\n												\n								Please give details of how you to plan to reach this target							\n										\n								\n												\n								Will your employer sponsor you or match your funds? 							\n						 Yes No Don't Know				\n								\n												\n								If YES - please let us know how your employer is likely to contribute to your fundraising							\n										\n								\n												\n								What is your occupation?							\n														\n											\n								\n												\n								Would you be happy to take part in promotional activities?This could include sharing your story on our website or news sources							\n						 Yes No				\n								\n												\n								If successful\, would you like to be included in our WhatsApp team group chat? (Mobile numbers and photos/chats will be visible to all who agree to join.)							\n						 Yes No				\n								\n												\n								Would you like to be added to our supporter mailing list to get occasional updates from TOFS?							\n						 Yes No				\n								\n					About your running experience				\n								\n												\n								Have you run a full or half marathon before?							\n						 Yes No				\n								\n									\n								\n												\n								Please let us know about your running experience. If you have run a full or half marathon before\,  please state which one(s) and time that you achieved. If you haven't\, please state your previous running experience.							\n										\n								\n												\n								Please indicate that you agree to our terms & conditions (shown below).							\n								\n			\n				\n				Yes\, I agree to be bound by the TOFS terms and conditions\, and also those of the TCS London Marathon. 			\n		\n						\n								\n									\n								\n					\n						\n																						Submit\n													\n					\n				\n			\n		\n						\n				\n					\n		\n				\n			\n						\n				\n									TOFS will support you by offering: Someone to talk to: an experienced TOFS runner – who has run the London Marathon in the past;A limited edition TOFS running vest with your name on to wear with pride on your big day;Disposable rain poncho to keep you dry on the way to\, and whilst waiting around at\, the start;Cheering from TOFS members with banners at a couple of pre-nominated spots along the route:  your family and friends are invited to join in at these cheering points; subject to spectators being allowed;TOFS T-shirts or baseball caps for your supporters (limited numbers\, upon request) so they have an amazing day too;Access to the organisers’ pre-race support; and a social media group just for you\, the TOFS runners;Important Notes:Please bear in mind that the organisers demand that you register in person in London during the four days leading up to the Marathon. Registration can be expected to close on the day before the Marathon\, in the afternoon.  Moreover\, you will need to make all your own transport and accommodation arrangements. Note that getting to the start at Greenwich\, early on the Sunday morning\, can present some transport difficulties. TOFS asks you to use the cost-effective Peoples Fundraising website (www.peoplesfundraising.com).  Any Questions? Get in touch or give us a call on 01159 613092. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									TCS London Marathon: TOFS Terms and Conditions – For runners with a TOFS allocated place 1. You confirm that the information on this form is complete and correct\, and that you will be 18 years of age or older on 25 April 2027. 2. You recognise that TOFS will retain for a reasonable period the information that you supply by applying on this form\, whether you are selected for a TOFS Golden Bond place or not. 3. You recognise that you apply and (if selected by TOFS) run the Marathon at your own risk in accordance with standard TCS London Marathon regulations and conditions\, which are in addition to these TOFS terms and conditions. 4. You confirm that\, so far as you are aware\, you have no medical or health issues which would mean that it would be unsafe or unwise for you to train for and run a marathon. 5. You confirm that you shall (if selected to run for TOFS using a TOFS Golden bond place) diligently undertake the running training that is appropriate as preparation for a Marathon\, in the months preceding the Marathon. 6. Should you be accepted to run for TOFS using a TOFS Golden bond place\, you agree to pay a registration fee of £50 to TOFS. This is to cover some administration costs\, and TOFS will ask for prompt payment. The fee will count towards your fund-raising pledge. If the fee is not cleared in the TOFS bank account within 21 days of you being sent notification by TOFS that you have been selected\, TOFS may select another person in your place. 7. You confirm that you shall (if allocated a TOFS Golden Bond place) make diligent efforts to contact donors and sponsors and set up fundraising mechanisms so as to raise at least the amount you have suggested for TOFS\, and TOFS shall be the only charity for which you raise funds in this event. You must show at least one month before the Marathon that your fundraising has commenced for instance by setting up a fundraising webpage and receiving at least an initial donation. We ask charity place runners to raise a minimum of 75% of their sponsorship by the event date\, with the remaining fundraising due 30 days after race day. 8. If allocated a TOFS Golden Bond place\, you are pledging to raise your suggested amount for TOFS and agreeing to make up any shortfall yourself or via your own further fundraising efforts to the required minimum of £1\,500 (excluding any Gift Aid\, which is to be in addition to the £1500) to be received by TOFS by the 30th June 2027. 9. All applications to TOFS are subject to a selection process to ensure that Golden Bond places are used to best possible fundraising effect commensurate with safety for all concerned\, at the sole discretion of TOFS. TOFS will wish to give preference in the selection process to runners who are TOFS members or otherwise have a clear connection with the TOF/OA condition: however\, TOFS is not obliged to do so. 10. If allocated a TOFS Golden Bond place\, you agree to inform TOFS as soon as possible in writing\, preferably by email\, should you become unable to take part in the Marathon. Once this is acknowledged by TOFS\, your minimum sponsorship obligation will cease. You understand that\, should you withdraw from your Golden Bond place\, the TOFS registration fee is non-refundable and will be retained by TOFS to cover expenses. 11. You agree that\, should you withdraw from your Golden Bond place\, you will co-operate and correspond with TOFS and the TCS London Marathon organisers such that another runner chosen by TOFS can take your Golden Bond place. At the discretion of TOFS\, and subject to some conditions\, you may be offered a TOFS place in the following year. 12. If you are unable to participate in the TCS London Marathon for any reason\, all donated monies collected by you or donated via third parties (such as fundraising websites) in support of TOFS must be forwarded to TOFS. Money which has been pledged to you on condition of your completing the event must be returned to the individual sponsors\, or donated to TOFS if those sponsors are happy to do so. Monies already received by TOFS will not be refunded. 13. If allocated a TOFS Golden Bond place\, you agree that images taken on the day of the Marathon may be used by TOFS to help promote our fundraising efforts. 14. You understand that\, if allocated a TOFS Golden Bond place\, you will be required to also complete in full (and online) the Official TCS London Marathon Golden Bond registration process before a date yet to be confirmed\, and to confirm to TOFS as soon as you have done so. As this will be done via the TCS London Marathon website\, you understand you will need to have internet access and access to an email address before this date. 15. You understand that\, if allocated a TOFS Golden Bond place\, you will need to “register” in person\, with suitable proof of your identity\, in the days immediately before the Marathon at the TCS London Marathon’s “Expo” designated pre-race registration point in London. 16. You understand that\, if allocated a TOFS Golden Bond place\, you will need to make your own arrangements at your own expense to get to the start line and return from the finish point. 17. You understand that it is your responsibility to take out your own insurance cover for personal accident benefits to whatever level you consider appropriate. By returning this form to TOFS you accept and agree to the terms and conditions listed above.
URL:https://tofs.org.uk/event/virtual-meet-up-for-adults-born-with-oa-tof-8/
LOCATION:Online
CATEGORIES:Adult TOF
ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2024/05/cuppa-and-chat-coffee.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20241116
DTEND;VALUE=DATE:20241118
DTSTAMP:20260430T222115
CREATED:20240130T161620Z
LAST-MODIFIED:20240201T114653Z
UID:10000054-1731715200-1731887999@tofs.org.uk
SUMMARY:Run Alton Towers
DESCRIPTION:Applications open!We have been allocated 4 charity “Golden Bond” places for the 2027 London Marathon race and are looking for runners to join our team. As we must pay the race organisers for each place we take\, we need to feel confident that the people who are selected to run will do so successfully and with minimal risk of injury to themselves. NOTE: The organisers have put in an application to run an extra London Marathon on the day before (Saturday 24th April). If this goes ahead\, there is a possibility that we may be able to access to additional places. Applications close on the 14th June 2026 but may change subject to the number of successful applicants. Note: last year applications closed in May – so please apply as soon as possible to avoid disappointment. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Entry fee:\n£50 				\n				\n				\n				\n									This fee goes towards the admin fees charged by the race organisers but will count towards your fundraising pledge. Payable to TOFS on successful application.  								\n				\n					\n		\n				\n			\n						\n				\n					Fundraising commitment: £1\,500				\n				\n				\n				\n									This is the minimum amount (before Gift Aid) that we would expect a runner to raise. But you don’t have to stop there! TOFS runners really go for it and most will raise over £2\,500 each\, with the average being nearly £3\,500!  								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n			\n			\n\n			\n			\n								\n					About you				\n								\n												\n								First Name							\n														\n											\n								\n												\n								Surname							\n														\n											\n								\n												\n								Email							\n														\n											\n								\n												\n								Mobile							\n								\n\n						\n								\n												\n								Home Address							\n										\n								\n												\n								Postcode							\n														\n											\n								\n												\n								Year of birth							\n														\n											\n								\n												\n								Do you know anyone who was born with OA/TOF?							\n						 Yes\, I was born with OA/TOF Yes\, my child was born with OA/TOF Yes\, a friend/relative was born with OA/TOF No\, I just want to help				\n								\n												\n								Please share with us your reasons for wanting to run the London Marathon for TOFS							\n										\n								\n												\n								Please indicate your running vest size							\n								\n			\n							\n			\n									Ladies - XS (33")\n									Ladies - S (35")\n									Ladies - M (37")\n									Ladies - L (40")\n									Ladies - XL (42")\n									Ladies - XXL (43")\n									_________________\n									Mens - XS (36")\n									Mens - S (38")\n									Mens - M (40")\n									Mens - L (43")\n									Mens - XL (46")\n									Mens - XXL (49")\n							\n		\n						\n								\n												\n								If your application is successful\, we will print your first name on your running vest. If you would rather use another name please let us know here.(Leave blank if using your first name as above.)							\n														\n											\n								\n					About your fundraising experience				\n								\n												\n								Have you raised funds for TOFS before?							\n						 Yes No				\n								\n												\n								If you have raised funds for TOFS\, please give details							\n										\n								\n												\n								Have you raised funds for other charities?							\n						 Yes No				\n								\n												\n								If you have raised funds for other charities\, please give details							\n										\n								\n												\n								How much do you think you can raise for TOFS in total?(Our minimum fundraising commitment for this event is £1\,500)							\n														\n											\n								\n												\n								Please give details of how you to plan to reach this target							\n										\n								\n												\n								Will your employer sponsor you or match your funds? 							\n						 Yes No Don't Know				\n								\n												\n								If YES - please let us know how your employer is likely to contribute to your fundraising							\n										\n								\n												\n								What is your occupation?							\n														\n											\n								\n												\n								Would you be happy to take part in promotional activities?This could include sharing your story on our website or news sources							\n						 Yes No				\n								\n												\n								If successful\, would you like to be included in our WhatsApp team group chat? (Mobile numbers and photos/chats will be visible to all who agree to join.)							\n						 Yes No				\n								\n												\n								Would you like to be added to our supporter mailing list to get occasional updates from TOFS?							\n						 Yes No				\n								\n					About your running experience				\n								\n												\n								Have you run a full or half marathon before?							\n						 Yes No				\n								\n									\n								\n												\n								Please let us know about your running experience. If you have run a full or half marathon before\,  please state which one(s) and time that you achieved. If you haven't\, please state your previous running experience.							\n										\n								\n												\n								Please indicate that you agree to our terms & conditions (shown below).							\n								\n			\n				\n				Yes\, I agree to be bound by the TOFS terms and conditions\, and also those of the TCS London Marathon. 			\n		\n						\n								\n									\n								\n					\n						\n																						Submit\n													\n					\n				\n			\n		\n						\n				\n					\n		\n				\n			\n						\n				\n									TOFS will support you by offering: Someone to talk to: an experienced TOFS runner – who has run the London Marathon in the past;A limited edition TOFS running vest with your name on to wear with pride on your big day;Disposable rain poncho to keep you dry on the way to\, and whilst waiting around at\, the start;Cheering from TOFS members with banners at a couple of pre-nominated spots along the route:  your family and friends are invited to join in at these cheering points; subject to spectators being allowed;TOFS T-shirts or baseball caps for your supporters (limited numbers\, upon request) so they have an amazing day too;Access to the organisers’ pre-race support; and a social media group just for you\, the TOFS runners;Important Notes:Please bear in mind that the organisers demand that you register in person in London during the four days leading up to the Marathon. Registration can be expected to close on the day before the Marathon\, in the afternoon.  Moreover\, you will need to make all your own transport and accommodation arrangements. Note that getting to the start at Greenwich\, early on the Sunday morning\, can present some transport difficulties. TOFS asks you to use the cost-effective Peoples Fundraising website (www.peoplesfundraising.com).  Any Questions? Get in touch or give us a call on 01159 613092. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									TCS London Marathon: TOFS Terms and Conditions – For runners with a TOFS allocated place 1. You confirm that the information on this form is complete and correct\, and that you will be 18 years of age or older on 25 April 2027. 2. You recognise that TOFS will retain for a reasonable period the information that you supply by applying on this form\, whether you are selected for a TOFS Golden Bond place or not. 3. You recognise that you apply and (if selected by TOFS) run the Marathon at your own risk in accordance with standard TCS London Marathon regulations and conditions\, which are in addition to these TOFS terms and conditions. 4. You confirm that\, so far as you are aware\, you have no medical or health issues which would mean that it would be unsafe or unwise for you to train for and run a marathon. 5. You confirm that you shall (if selected to run for TOFS using a TOFS Golden bond place) diligently undertake the running training that is appropriate as preparation for a Marathon\, in the months preceding the Marathon. 6. Should you be accepted to run for TOFS using a TOFS Golden bond place\, you agree to pay a registration fee of £50 to TOFS. This is to cover some administration costs\, and TOFS will ask for prompt payment. The fee will count towards your fund-raising pledge. If the fee is not cleared in the TOFS bank account within 21 days of you being sent notification by TOFS that you have been selected\, TOFS may select another person in your place. 7. You confirm that you shall (if allocated a TOFS Golden Bond place) make diligent efforts to contact donors and sponsors and set up fundraising mechanisms so as to raise at least the amount you have suggested for TOFS\, and TOFS shall be the only charity for which you raise funds in this event. You must show at least one month before the Marathon that your fundraising has commenced for instance by setting up a fundraising webpage and receiving at least an initial donation. We ask charity place runners to raise a minimum of 75% of their sponsorship by the event date\, with the remaining fundraising due 30 days after race day. 8. If allocated a TOFS Golden Bond place\, you are pledging to raise your suggested amount for TOFS and agreeing to make up any shortfall yourself or via your own further fundraising efforts to the required minimum of £1\,500 (excluding any Gift Aid\, which is to be in addition to the £1500) to be received by TOFS by the 30th June 2027. 9. All applications to TOFS are subject to a selection process to ensure that Golden Bond places are used to best possible fundraising effect commensurate with safety for all concerned\, at the sole discretion of TOFS. TOFS will wish to give preference in the selection process to runners who are TOFS members or otherwise have a clear connection with the TOF/OA condition: however\, TOFS is not obliged to do so. 10. If allocated a TOFS Golden Bond place\, you agree to inform TOFS as soon as possible in writing\, preferably by email\, should you become unable to take part in the Marathon. Once this is acknowledged by TOFS\, your minimum sponsorship obligation will cease. You understand that\, should you withdraw from your Golden Bond place\, the TOFS registration fee is non-refundable and will be retained by TOFS to cover expenses. 11. You agree that\, should you withdraw from your Golden Bond place\, you will co-operate and correspond with TOFS and the TCS London Marathon organisers such that another runner chosen by TOFS can take your Golden Bond place. At the discretion of TOFS\, and subject to some conditions\, you may be offered a TOFS place in the following year. 12. If you are unable to participate in the TCS London Marathon for any reason\, all donated monies collected by you or donated via third parties (such as fundraising websites) in support of TOFS must be forwarded to TOFS. Money which has been pledged to you on condition of your completing the event must be returned to the individual sponsors\, or donated to TOFS if those sponsors are happy to do so. Monies already received by TOFS will not be refunded. 13. If allocated a TOFS Golden Bond place\, you agree that images taken on the day of the Marathon may be used by TOFS to help promote our fundraising efforts. 14. You understand that\, if allocated a TOFS Golden Bond place\, you will be required to also complete in full (and online) the Official TCS London Marathon Golden Bond registration process before a date yet to be confirmed\, and to confirm to TOFS as soon as you have done so. As this will be done via the TCS London Marathon website\, you understand you will need to have internet access and access to an email address before this date. 15. You understand that\, if allocated a TOFS Golden Bond place\, you will need to “register” in person\, with suitable proof of your identity\, in the days immediately before the Marathon at the TCS London Marathon’s “Expo” designated pre-race registration point in London. 16. You understand that\, if allocated a TOFS Golden Bond place\, you will need to make your own arrangements at your own expense to get to the start line and return from the finish point. 17. You understand that it is your responsibility to take out your own insurance cover for personal accident benefits to whatever level you consider appropriate. By returning this form to TOFS you accept and agree to the terms and conditions listed above.
URL:https://tofs.org.uk/event/run-alton-towers/
LOCATION:Alton Towers\, Farley Lane\, Alton\, Staffordshire\, ST10 4DB\, United Kingdom
CATEGORIES:Fundraising
ATTACH;FMTTYPE=image/jpeg:https://tofs.org.uk/wp-content/uploads/2024/01/Run-Alton-Towers5.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20241116T123000
DTEND;TZID=Europe/London:20241116T170000
DTSTAMP:20260430T222115
CREATED:20240502T082238Z
LAST-MODIFIED:20241003T075639Z
UID:10000067-1731760200-1731776400@tofs.org.uk
SUMMARY:TOFS Seminar 2024
DESCRIPTION:Applications open!We have been allocated 4 charity “Golden Bond” places for the 2027 London Marathon race and are looking for runners to join our team. As we must pay the race organisers for each place we take\, we need to feel confident that the people who are selected to run will do so successfully and with minimal risk of injury to themselves. NOTE: The organisers have put in an application to run an extra London Marathon on the day before (Saturday 24th April). If this goes ahead\, there is a possibility that we may be able to access to additional places. Applications close on the 14th June 2026 but may change subject to the number of successful applicants. Note: last year applications closed in May – so please apply as soon as possible to avoid disappointment. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Entry fee:\n£50 				\n				\n				\n				\n									This fee goes towards the admin fees charged by the race organisers but will count towards your fundraising pledge. Payable to TOFS on successful application.  								\n				\n					\n		\n				\n			\n						\n				\n					Fundraising commitment: £1\,500				\n				\n				\n				\n									This is the minimum amount (before Gift Aid) that we would expect a runner to raise. But you don’t have to stop there! TOFS runners really go for it and most will raise over £2\,500 each\, with the average being nearly £3\,500!  								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n			\n			\n\n			\n			\n								\n					About you				\n								\n												\n								First Name							\n														\n											\n								\n												\n								Surname							\n														\n											\n								\n												\n								Email							\n														\n											\n								\n												\n								Mobile							\n								\n\n						\n								\n												\n								Home Address							\n										\n								\n												\n								Postcode							\n														\n											\n								\n												\n								Year of birth							\n														\n											\n								\n												\n								Do you know anyone who was born with OA/TOF?							\n						 Yes\, I was born with OA/TOF Yes\, my child was born with OA/TOF Yes\, a friend/relative was born with OA/TOF No\, I just want to help				\n								\n												\n								Please share with us your reasons for wanting to run the London Marathon for TOFS							\n										\n								\n												\n								Please indicate your running vest size							\n								\n			\n							\n			\n									Ladies - XS (33")\n									Ladies - S (35")\n									Ladies - M (37")\n									Ladies - L (40")\n									Ladies - XL (42")\n									Ladies - XXL (43")\n									_________________\n									Mens - XS (36")\n									Mens - S (38")\n									Mens - M (40")\n									Mens - L (43")\n									Mens - XL (46")\n									Mens - XXL (49")\n							\n		\n						\n								\n												\n								If your application is successful\, we will print your first name on your running vest. If you would rather use another name please let us know here.(Leave blank if using your first name as above.)							\n														\n											\n								\n					About your fundraising experience				\n								\n												\n								Have you raised funds for TOFS before?							\n						 Yes No				\n								\n												\n								If you have raised funds for TOFS\, please give details							\n										\n								\n												\n								Have you raised funds for other charities?							\n						 Yes No				\n								\n												\n								If you have raised funds for other charities\, please give details							\n										\n								\n												\n								How much do you think you can raise for TOFS in total?(Our minimum fundraising commitment for this event is £1\,500)							\n														\n											\n								\n												\n								Please give details of how you to plan to reach this target							\n										\n								\n												\n								Will your employer sponsor you or match your funds? 							\n						 Yes No Don't Know				\n								\n												\n								If YES - please let us know how your employer is likely to contribute to your fundraising							\n										\n								\n												\n								What is your occupation?							\n														\n											\n								\n												\n								Would you be happy to take part in promotional activities?This could include sharing your story on our website or news sources							\n						 Yes No				\n								\n												\n								If successful\, would you like to be included in our WhatsApp team group chat? (Mobile numbers and photos/chats will be visible to all who agree to join.)							\n						 Yes No				\n								\n												\n								Would you like to be added to our supporter mailing list to get occasional updates from TOFS?							\n						 Yes No				\n								\n					About your running experience				\n								\n												\n								Have you run a full or half marathon before?							\n						 Yes No				\n								\n									\n								\n												\n								Please let us know about your running experience. If you have run a full or half marathon before\,  please state which one(s) and time that you achieved. If you haven't\, please state your previous running experience.							\n										\n								\n												\n								Please indicate that you agree to our terms & conditions (shown below).							\n								\n			\n				\n				Yes\, I agree to be bound by the TOFS terms and conditions\, and also those of the TCS London Marathon. 			\n		\n						\n								\n									\n								\n					\n						\n																						Submit\n													\n					\n				\n			\n		\n						\n				\n					\n		\n				\n			\n						\n				\n									TOFS will support you by offering: Someone to talk to: an experienced TOFS runner – who has run the London Marathon in the past;A limited edition TOFS running vest with your name on to wear with pride on your big day;Disposable rain poncho to keep you dry on the way to\, and whilst waiting around at\, the start;Cheering from TOFS members with banners at a couple of pre-nominated spots along the route:  your family and friends are invited to join in at these cheering points; subject to spectators being allowed;TOFS T-shirts or baseball caps for your supporters (limited numbers\, upon request) so they have an amazing day too;Access to the organisers’ pre-race support; and a social media group just for you\, the TOFS runners;Important Notes:Please bear in mind that the organisers demand that you register in person in London during the four days leading up to the Marathon. Registration can be expected to close on the day before the Marathon\, in the afternoon.  Moreover\, you will need to make all your own transport and accommodation arrangements. Note that getting to the start at Greenwich\, early on the Sunday morning\, can present some transport difficulties. TOFS asks you to use the cost-effective Peoples Fundraising website (www.peoplesfundraising.com).  Any Questions? Get in touch or give us a call on 01159 613092. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									TCS London Marathon: TOFS Terms and Conditions – For runners with a TOFS allocated place 1. You confirm that the information on this form is complete and correct\, and that you will be 18 years of age or older on 25 April 2027. 2. You recognise that TOFS will retain for a reasonable period the information that you supply by applying on this form\, whether you are selected for a TOFS Golden Bond place or not. 3. You recognise that you apply and (if selected by TOFS) run the Marathon at your own risk in accordance with standard TCS London Marathon regulations and conditions\, which are in addition to these TOFS terms and conditions. 4. You confirm that\, so far as you are aware\, you have no medical or health issues which would mean that it would be unsafe or unwise for you to train for and run a marathon. 5. You confirm that you shall (if selected to run for TOFS using a TOFS Golden bond place) diligently undertake the running training that is appropriate as preparation for a Marathon\, in the months preceding the Marathon. 6. Should you be accepted to run for TOFS using a TOFS Golden bond place\, you agree to pay a registration fee of £50 to TOFS. This is to cover some administration costs\, and TOFS will ask for prompt payment. The fee will count towards your fund-raising pledge. If the fee is not cleared in the TOFS bank account within 21 days of you being sent notification by TOFS that you have been selected\, TOFS may select another person in your place. 7. You confirm that you shall (if allocated a TOFS Golden Bond place) make diligent efforts to contact donors and sponsors and set up fundraising mechanisms so as to raise at least the amount you have suggested for TOFS\, and TOFS shall be the only charity for which you raise funds in this event. You must show at least one month before the Marathon that your fundraising has commenced for instance by setting up a fundraising webpage and receiving at least an initial donation. We ask charity place runners to raise a minimum of 75% of their sponsorship by the event date\, with the remaining fundraising due 30 days after race day. 8. If allocated a TOFS Golden Bond place\, you are pledging to raise your suggested amount for TOFS and agreeing to make up any shortfall yourself or via your own further fundraising efforts to the required minimum of £1\,500 (excluding any Gift Aid\, which is to be in addition to the £1500) to be received by TOFS by the 30th June 2027. 9. All applications to TOFS are subject to a selection process to ensure that Golden Bond places are used to best possible fundraising effect commensurate with safety for all concerned\, at the sole discretion of TOFS. TOFS will wish to give preference in the selection process to runners who are TOFS members or otherwise have a clear connection with the TOF/OA condition: however\, TOFS is not obliged to do so. 10. If allocated a TOFS Golden Bond place\, you agree to inform TOFS as soon as possible in writing\, preferably by email\, should you become unable to take part in the Marathon. Once this is acknowledged by TOFS\, your minimum sponsorship obligation will cease. You understand that\, should you withdraw from your Golden Bond place\, the TOFS registration fee is non-refundable and will be retained by TOFS to cover expenses. 11. You agree that\, should you withdraw from your Golden Bond place\, you will co-operate and correspond with TOFS and the TCS London Marathon organisers such that another runner chosen by TOFS can take your Golden Bond place. At the discretion of TOFS\, and subject to some conditions\, you may be offered a TOFS place in the following year. 12. If you are unable to participate in the TCS London Marathon for any reason\, all donated monies collected by you or donated via third parties (such as fundraising websites) in support of TOFS must be forwarded to TOFS. Money which has been pledged to you on condition of your completing the event must be returned to the individual sponsors\, or donated to TOFS if those sponsors are happy to do so. Monies already received by TOFS will not be refunded. 13. If allocated a TOFS Golden Bond place\, you agree that images taken on the day of the Marathon may be used by TOFS to help promote our fundraising efforts. 14. You understand that\, if allocated a TOFS Golden Bond place\, you will be required to also complete in full (and online) the Official TCS London Marathon Golden Bond registration process before a date yet to be confirmed\, and to confirm to TOFS as soon as you have done so. As this will be done via the TCS London Marathon website\, you understand you will need to have internet access and access to an email address before this date. 15. You understand that\, if allocated a TOFS Golden Bond place\, you will need to “register” in person\, with suitable proof of your identity\, in the days immediately before the Marathon at the TCS London Marathon’s “Expo” designated pre-race registration point in London. 16. You understand that\, if allocated a TOFS Golden Bond place\, you will need to make your own arrangements at your own expense to get to the start line and return from the finish point. 17. You understand that it is your responsibility to take out your own insurance cover for personal accident benefits to whatever level you consider appropriate. By returning this form to TOFS you accept and agree to the terms and conditions listed above.
URL:https://tofs.org.uk/event/adult-family-information-seminar/
LOCATION:EngineRooms\, Birchwood Park\, Warrington\, Cheshire\, WA3 6YN\, United Kingdom
ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2020/05/tofs-logo-no-text-500x500-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20241117T120000
DTEND;TZID=Europe/London:20241117T150000
DTSTAMP:20260430T222115
CREATED:20241106T085426Z
LAST-MODIFIED:20241106T090619Z
UID:10000088-1731844800-1731855600@tofs.org.uk
SUMMARY:Local Meet-up: London
DESCRIPTION:Applications open!We have been allocated 4 charity “Golden Bond” places for the 2027 London Marathon race and are looking for runners to join our team. As we must pay the race organisers for each place we take\, we need to feel confident that the people who are selected to run will do so successfully and with minimal risk of injury to themselves. NOTE: The organisers have put in an application to run an extra London Marathon on the day before (Saturday 24th April). If this goes ahead\, there is a possibility that we may be able to access to additional places. Applications close on the 14th June 2026 but may change subject to the number of successful applicants. Note: last year applications closed in May – so please apply as soon as possible to avoid disappointment. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Entry fee:\n£50 				\n				\n				\n				\n									This fee goes towards the admin fees charged by the race organisers but will count towards your fundraising pledge. Payable to TOFS on successful application.  								\n				\n					\n		\n				\n			\n						\n				\n					Fundraising commitment: £1\,500				\n				\n				\n				\n									This is the minimum amount (before Gift Aid) that we would expect a runner to raise. But you don’t have to stop there! TOFS runners really go for it and most will raise over £2\,500 each\, with the average being nearly £3\,500!  								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n			\n			\n\n			\n			\n								\n					About you				\n								\n												\n								First Name							\n														\n											\n								\n												\n								Surname							\n														\n											\n								\n												\n								Email							\n														\n											\n								\n												\n								Mobile							\n								\n\n						\n								\n												\n								Home Address							\n										\n								\n												\n								Postcode							\n														\n											\n								\n												\n								Year of birth							\n														\n											\n								\n												\n								Do you know anyone who was born with OA/TOF?							\n						 Yes\, I was born with OA/TOF Yes\, my child was born with OA/TOF Yes\, a friend/relative was born with OA/TOF No\, I just want to help				\n								\n												\n								Please share with us your reasons for wanting to run the London Marathon for TOFS							\n										\n								\n												\n								Please indicate your running vest size							\n								\n			\n							\n			\n									Ladies - XS (33")\n									Ladies - S (35")\n									Ladies - M (37")\n									Ladies - L (40")\n									Ladies - XL (42")\n									Ladies - XXL (43")\n									_________________\n									Mens - XS (36")\n									Mens - S (38")\n									Mens - M (40")\n									Mens - L (43")\n									Mens - XL (46")\n									Mens - XXL (49")\n							\n		\n						\n								\n												\n								If your application is successful\, we will print your first name on your running vest. If you would rather use another name please let us know here.(Leave blank if using your first name as above.)							\n														\n											\n								\n					About your fundraising experience				\n								\n												\n								Have you raised funds for TOFS before?							\n						 Yes No				\n								\n												\n								If you have raised funds for TOFS\, please give details							\n										\n								\n												\n								Have you raised funds for other charities?							\n						 Yes No				\n								\n												\n								If you have raised funds for other charities\, please give details							\n										\n								\n												\n								How much do you think you can raise for TOFS in total?(Our minimum fundraising commitment for this event is £1\,500)							\n														\n											\n								\n												\n								Please give details of how you to plan to reach this target							\n										\n								\n												\n								Will your employer sponsor you or match your funds? 							\n						 Yes No Don't Know				\n								\n												\n								If YES - please let us know how your employer is likely to contribute to your fundraising							\n										\n								\n												\n								What is your occupation?							\n														\n											\n								\n												\n								Would you be happy to take part in promotional activities?This could include sharing your story on our website or news sources							\n						 Yes No				\n								\n												\n								If successful\, would you like to be included in our WhatsApp team group chat? (Mobile numbers and photos/chats will be visible to all who agree to join.)							\n						 Yes No				\n								\n												\n								Would you like to be added to our supporter mailing list to get occasional updates from TOFS?							\n						 Yes No				\n								\n					About your running experience				\n								\n												\n								Have you run a full or half marathon before?							\n						 Yes No				\n								\n									\n								\n												\n								Please let us know about your running experience. If you have run a full or half marathon before\,  please state which one(s) and time that you achieved. If you haven't\, please state your previous running experience.							\n										\n								\n												\n								Please indicate that you agree to our terms & conditions (shown below).							\n								\n			\n				\n				Yes\, I agree to be bound by the TOFS terms and conditions\, and also those of the TCS London Marathon. 			\n		\n						\n								\n									\n								\n					\n						\n																						Submit\n													\n					\n				\n			\n		\n						\n				\n					\n		\n				\n			\n						\n				\n									TOFS will support you by offering: Someone to talk to: an experienced TOFS runner – who has run the London Marathon in the past;A limited edition TOFS running vest with your name on to wear with pride on your big day;Disposable rain poncho to keep you dry on the way to\, and whilst waiting around at\, the start;Cheering from TOFS members with banners at a couple of pre-nominated spots along the route:  your family and friends are invited to join in at these cheering points; subject to spectators being allowed;TOFS T-shirts or baseball caps for your supporters (limited numbers\, upon request) so they have an amazing day too;Access to the organisers’ pre-race support; and a social media group just for you\, the TOFS runners;Important Notes:Please bear in mind that the organisers demand that you register in person in London during the four days leading up to the Marathon. Registration can be expected to close on the day before the Marathon\, in the afternoon.  Moreover\, you will need to make all your own transport and accommodation arrangements. Note that getting to the start at Greenwich\, early on the Sunday morning\, can present some transport difficulties. TOFS asks you to use the cost-effective Peoples Fundraising website (www.peoplesfundraising.com).  Any Questions? Get in touch or give us a call on 01159 613092. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									TCS London Marathon: TOFS Terms and Conditions – For runners with a TOFS allocated place 1. You confirm that the information on this form is complete and correct\, and that you will be 18 years of age or older on 25 April 2027. 2. You recognise that TOFS will retain for a reasonable period the information that you supply by applying on this form\, whether you are selected for a TOFS Golden Bond place or not. 3. You recognise that you apply and (if selected by TOFS) run the Marathon at your own risk in accordance with standard TCS London Marathon regulations and conditions\, which are in addition to these TOFS terms and conditions. 4. You confirm that\, so far as you are aware\, you have no medical or health issues which would mean that it would be unsafe or unwise for you to train for and run a marathon. 5. You confirm that you shall (if selected to run for TOFS using a TOFS Golden bond place) diligently undertake the running training that is appropriate as preparation for a Marathon\, in the months preceding the Marathon. 6. Should you be accepted to run for TOFS using a TOFS Golden bond place\, you agree to pay a registration fee of £50 to TOFS. This is to cover some administration costs\, and TOFS will ask for prompt payment. The fee will count towards your fund-raising pledge. If the fee is not cleared in the TOFS bank account within 21 days of you being sent notification by TOFS that you have been selected\, TOFS may select another person in your place. 7. You confirm that you shall (if allocated a TOFS Golden Bond place) make diligent efforts to contact donors and sponsors and set up fundraising mechanisms so as to raise at least the amount you have suggested for TOFS\, and TOFS shall be the only charity for which you raise funds in this event. You must show at least one month before the Marathon that your fundraising has commenced for instance by setting up a fundraising webpage and receiving at least an initial donation. We ask charity place runners to raise a minimum of 75% of their sponsorship by the event date\, with the remaining fundraising due 30 days after race day. 8. If allocated a TOFS Golden Bond place\, you are pledging to raise your suggested amount for TOFS and agreeing to make up any shortfall yourself or via your own further fundraising efforts to the required minimum of £1\,500 (excluding any Gift Aid\, which is to be in addition to the £1500) to be received by TOFS by the 30th June 2027. 9. All applications to TOFS are subject to a selection process to ensure that Golden Bond places are used to best possible fundraising effect commensurate with safety for all concerned\, at the sole discretion of TOFS. TOFS will wish to give preference in the selection process to runners who are TOFS members or otherwise have a clear connection with the TOF/OA condition: however\, TOFS is not obliged to do so. 10. If allocated a TOFS Golden Bond place\, you agree to inform TOFS as soon as possible in writing\, preferably by email\, should you become unable to take part in the Marathon. Once this is acknowledged by TOFS\, your minimum sponsorship obligation will cease. You understand that\, should you withdraw from your Golden Bond place\, the TOFS registration fee is non-refundable and will be retained by TOFS to cover expenses. 11. You agree that\, should you withdraw from your Golden Bond place\, you will co-operate and correspond with TOFS and the TCS London Marathon organisers such that another runner chosen by TOFS can take your Golden Bond place. At the discretion of TOFS\, and subject to some conditions\, you may be offered a TOFS place in the following year. 12. If you are unable to participate in the TCS London Marathon for any reason\, all donated monies collected by you or donated via third parties (such as fundraising websites) in support of TOFS must be forwarded to TOFS. Money which has been pledged to you on condition of your completing the event must be returned to the individual sponsors\, or donated to TOFS if those sponsors are happy to do so. Monies already received by TOFS will not be refunded. 13. If allocated a TOFS Golden Bond place\, you agree that images taken on the day of the Marathon may be used by TOFS to help promote our fundraising efforts. 14. You understand that\, if allocated a TOFS Golden Bond place\, you will be required to also complete in full (and online) the Official TCS London Marathon Golden Bond registration process before a date yet to be confirmed\, and to confirm to TOFS as soon as you have done so. As this will be done via the TCS London Marathon website\, you understand you will need to have internet access and access to an email address before this date. 15. You understand that\, if allocated a TOFS Golden Bond place\, you will need to “register” in person\, with suitable proof of your identity\, in the days immediately before the Marathon at the TCS London Marathon’s “Expo” designated pre-race registration point in London. 16. You understand that\, if allocated a TOFS Golden Bond place\, you will need to make your own arrangements at your own expense to get to the start line and return from the finish point. 17. You understand that it is your responsibility to take out your own insurance cover for personal accident benefits to whatever level you consider appropriate. By returning this form to TOFS you accept and agree to the terms and conditions listed above.
URL:https://tofs.org.uk/event/local-meet-up-london/
LOCATION:Ronald McDonald House Evelina London\, 216 Lambeth Road\, London\, SE1\, United Kingdom
ATTACH;FMTTYPE=image/jpeg:https://tofs.org.uk/wp-content/uploads/2024/04/local-meet-up.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20241130T140000
DTEND;TZID=Europe/London:20241130T160000
DTSTAMP:20260430T222115
CREATED:20241105T144459Z
LAST-MODIFIED:20241114T110706Z
UID:10000087-1732975200-1732982400@tofs.org.uk
SUMMARY:Local Meet-up: Liverpool
DESCRIPTION:Applications open!We have been allocated 4 charity “Golden Bond” places for the 2027 London Marathon race and are looking for runners to join our team. As we must pay the race organisers for each place we take\, we need to feel confident that the people who are selected to run will do so successfully and with minimal risk of injury to themselves. NOTE: The organisers have put in an application to run an extra London Marathon on the day before (Saturday 24th April). If this goes ahead\, there is a possibility that we may be able to access to additional places. Applications close on the 14th June 2026 but may change subject to the number of successful applicants. Note: last year applications closed in May – so please apply as soon as possible to avoid disappointment. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Entry fee:\n£50 				\n				\n				\n				\n									This fee goes towards the admin fees charged by the race organisers but will count towards your fundraising pledge. Payable to TOFS on successful application.  								\n				\n					\n		\n				\n			\n						\n				\n					Fundraising commitment: £1\,500				\n				\n				\n				\n									This is the minimum amount (before Gift Aid) that we would expect a runner to raise. But you don’t have to stop there! TOFS runners really go for it and most will raise over £2\,500 each\, with the average being nearly £3\,500!  								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n			\n			\n\n			\n			\n								\n					About you				\n								\n												\n								First Name							\n														\n											\n								\n												\n								Surname							\n														\n											\n								\n												\n								Email							\n														\n											\n								\n												\n								Mobile							\n								\n\n						\n								\n												\n								Home Address							\n										\n								\n												\n								Postcode							\n														\n											\n								\n												\n								Year of birth							\n														\n											\n								\n												\n								Do you know anyone who was born with OA/TOF?							\n						 Yes\, I was born with OA/TOF Yes\, my child was born with OA/TOF Yes\, a friend/relative was born with OA/TOF No\, I just want to help				\n								\n												\n								Please share with us your reasons for wanting to run the London Marathon for TOFS							\n										\n								\n												\n								Please indicate your running vest size							\n								\n			\n							\n			\n									Ladies - XS (33")\n									Ladies - S (35")\n									Ladies - M (37")\n									Ladies - L (40")\n									Ladies - XL (42")\n									Ladies - XXL (43")\n									_________________\n									Mens - XS (36")\n									Mens - S (38")\n									Mens - M (40")\n									Mens - L (43")\n									Mens - XL (46")\n									Mens - XXL (49")\n							\n		\n						\n								\n												\n								If your application is successful\, we will print your first name on your running vest. If you would rather use another name please let us know here.(Leave blank if using your first name as above.)							\n														\n											\n								\n					About your fundraising experience				\n								\n												\n								Have you raised funds for TOFS before?							\n						 Yes No				\n								\n												\n								If you have raised funds for TOFS\, please give details							\n										\n								\n												\n								Have you raised funds for other charities?							\n						 Yes No				\n								\n												\n								If you have raised funds for other charities\, please give details							\n										\n								\n												\n								How much do you think you can raise for TOFS in total?(Our minimum fundraising commitment for this event is £1\,500)							\n														\n											\n								\n												\n								Please give details of how you to plan to reach this target							\n										\n								\n												\n								Will your employer sponsor you or match your funds? 							\n						 Yes No Don't Know				\n								\n												\n								If YES - please let us know how your employer is likely to contribute to your fundraising							\n										\n								\n												\n								What is your occupation?							\n														\n											\n								\n												\n								Would you be happy to take part in promotional activities?This could include sharing your story on our website or news sources							\n						 Yes No				\n								\n												\n								If successful\, would you like to be included in our WhatsApp team group chat? (Mobile numbers and photos/chats will be visible to all who agree to join.)							\n						 Yes No				\n								\n												\n								Would you like to be added to our supporter mailing list to get occasional updates from TOFS?							\n						 Yes No				\n								\n					About your running experience				\n								\n												\n								Have you run a full or half marathon before?							\n						 Yes No				\n								\n									\n								\n												\n								Please let us know about your running experience. If you have run a full or half marathon before\,  please state which one(s) and time that you achieved. If you haven't\, please state your previous running experience.							\n										\n								\n												\n								Please indicate that you agree to our terms & conditions (shown below).							\n								\n			\n				\n				Yes\, I agree to be bound by the TOFS terms and conditions\, and also those of the TCS London Marathon. 			\n		\n						\n								\n									\n								\n					\n						\n																						Submit\n													\n					\n				\n			\n		\n						\n				\n					\n		\n				\n			\n						\n				\n									TOFS will support you by offering: Someone to talk to: an experienced TOFS runner – who has run the London Marathon in the past;A limited edition TOFS running vest with your name on to wear with pride on your big day;Disposable rain poncho to keep you dry on the way to\, and whilst waiting around at\, the start;Cheering from TOFS members with banners at a couple of pre-nominated spots along the route:  your family and friends are invited to join in at these cheering points; subject to spectators being allowed;TOFS T-shirts or baseball caps for your supporters (limited numbers\, upon request) so they have an amazing day too;Access to the organisers’ pre-race support; and a social media group just for you\, the TOFS runners;Important Notes:Please bear in mind that the organisers demand that you register in person in London during the four days leading up to the Marathon. Registration can be expected to close on the day before the Marathon\, in the afternoon.  Moreover\, you will need to make all your own transport and accommodation arrangements. Note that getting to the start at Greenwich\, early on the Sunday morning\, can present some transport difficulties. TOFS asks you to use the cost-effective Peoples Fundraising website (www.peoplesfundraising.com).  Any Questions? Get in touch or give us a call on 01159 613092. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									TCS London Marathon: TOFS Terms and Conditions – For runners with a TOFS allocated place 1. You confirm that the information on this form is complete and correct\, and that you will be 18 years of age or older on 25 April 2027. 2. You recognise that TOFS will retain for a reasonable period the information that you supply by applying on this form\, whether you are selected for a TOFS Golden Bond place or not. 3. You recognise that you apply and (if selected by TOFS) run the Marathon at your own risk in accordance with standard TCS London Marathon regulations and conditions\, which are in addition to these TOFS terms and conditions. 4. You confirm that\, so far as you are aware\, you have no medical or health issues which would mean that it would be unsafe or unwise for you to train for and run a marathon. 5. You confirm that you shall (if selected to run for TOFS using a TOFS Golden bond place) diligently undertake the running training that is appropriate as preparation for a Marathon\, in the months preceding the Marathon. 6. Should you be accepted to run for TOFS using a TOFS Golden bond place\, you agree to pay a registration fee of £50 to TOFS. This is to cover some administration costs\, and TOFS will ask for prompt payment. The fee will count towards your fund-raising pledge. If the fee is not cleared in the TOFS bank account within 21 days of you being sent notification by TOFS that you have been selected\, TOFS may select another person in your place. 7. You confirm that you shall (if allocated a TOFS Golden Bond place) make diligent efforts to contact donors and sponsors and set up fundraising mechanisms so as to raise at least the amount you have suggested for TOFS\, and TOFS shall be the only charity for which you raise funds in this event. You must show at least one month before the Marathon that your fundraising has commenced for instance by setting up a fundraising webpage and receiving at least an initial donation. We ask charity place runners to raise a minimum of 75% of their sponsorship by the event date\, with the remaining fundraising due 30 days after race day. 8. If allocated a TOFS Golden Bond place\, you are pledging to raise your suggested amount for TOFS and agreeing to make up any shortfall yourself or via your own further fundraising efforts to the required minimum of £1\,500 (excluding any Gift Aid\, which is to be in addition to the £1500) to be received by TOFS by the 30th June 2027. 9. All applications to TOFS are subject to a selection process to ensure that Golden Bond places are used to best possible fundraising effect commensurate with safety for all concerned\, at the sole discretion of TOFS. TOFS will wish to give preference in the selection process to runners who are TOFS members or otherwise have a clear connection with the TOF/OA condition: however\, TOFS is not obliged to do so. 10. If allocated a TOFS Golden Bond place\, you agree to inform TOFS as soon as possible in writing\, preferably by email\, should you become unable to take part in the Marathon. Once this is acknowledged by TOFS\, your minimum sponsorship obligation will cease. You understand that\, should you withdraw from your Golden Bond place\, the TOFS registration fee is non-refundable and will be retained by TOFS to cover expenses. 11. You agree that\, should you withdraw from your Golden Bond place\, you will co-operate and correspond with TOFS and the TCS London Marathon organisers such that another runner chosen by TOFS can take your Golden Bond place. At the discretion of TOFS\, and subject to some conditions\, you may be offered a TOFS place in the following year. 12. If you are unable to participate in the TCS London Marathon for any reason\, all donated monies collected by you or donated via third parties (such as fundraising websites) in support of TOFS must be forwarded to TOFS. Money which has been pledged to you on condition of your completing the event must be returned to the individual sponsors\, or donated to TOFS if those sponsors are happy to do so. Monies already received by TOFS will not be refunded. 13. If allocated a TOFS Golden Bond place\, you agree that images taken on the day of the Marathon may be used by TOFS to help promote our fundraising efforts. 14. You understand that\, if allocated a TOFS Golden Bond place\, you will be required to also complete in full (and online) the Official TCS London Marathon Golden Bond registration process before a date yet to be confirmed\, and to confirm to TOFS as soon as you have done so. As this will be done via the TCS London Marathon website\, you understand you will need to have internet access and access to an email address before this date. 15. You understand that\, if allocated a TOFS Golden Bond place\, you will need to “register” in person\, with suitable proof of your identity\, in the days immediately before the Marathon at the TCS London Marathon’s “Expo” designated pre-race registration point in London. 16. You understand that\, if allocated a TOFS Golden Bond place\, you will need to make your own arrangements at your own expense to get to the start line and return from the finish point. 17. You understand that it is your responsibility to take out your own insurance cover for personal accident benefits to whatever level you consider appropriate. By returning this form to TOFS you accept and agree to the terms and conditions listed above.
URL:https://tofs.org.uk/event/local-meet-up-liverpool/
LOCATION:Bowring Park Golf Club\, Roby Road\, Huyton\, Liverpool\, L36 4HD\, United Kingdom
ATTACH;FMTTYPE=image/jpeg:https://tofs.org.uk/wp-content/uploads/2024/04/local-meet-up.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20241205T190000
DTEND;TZID=Europe/London:20241205T200000
DTSTAMP:20260430T222115
CREATED:20241112T151836Z
LAST-MODIFIED:20241112T151857Z
UID:10000089-1733425200-1733428800@tofs.org.uk
SUMMARY:Virtual meet-up for adults born with OA/TOF
DESCRIPTION:Applications open!We have been allocated 4 charity “Golden Bond” places for the 2027 London Marathon race and are looking for runners to join our team. As we must pay the race organisers for each place we take\, we need to feel confident that the people who are selected to run will do so successfully and with minimal risk of injury to themselves. NOTE: The organisers have put in an application to run an extra London Marathon on the day before (Saturday 24th April). If this goes ahead\, there is a possibility that we may be able to access to additional places. Applications close on the 14th June 2026 but may change subject to the number of successful applicants. Note: last year applications closed in May – so please apply as soon as possible to avoid disappointment. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Entry fee:\n£50 				\n				\n				\n				\n									This fee goes towards the admin fees charged by the race organisers but will count towards your fundraising pledge. Payable to TOFS on successful application.  								\n				\n					\n		\n				\n			\n						\n				\n					Fundraising commitment: £1\,500				\n				\n				\n				\n									This is the minimum amount (before Gift Aid) that we would expect a runner to raise. But you don’t have to stop there! TOFS runners really go for it and most will raise over £2\,500 each\, with the average being nearly £3\,500!  								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n			\n			\n\n			\n			\n								\n					About you				\n								\n												\n								First Name							\n														\n											\n								\n												\n								Surname							\n														\n											\n								\n												\n								Email							\n														\n											\n								\n												\n								Mobile							\n								\n\n						\n								\n												\n								Home Address							\n										\n								\n												\n								Postcode							\n														\n											\n								\n												\n								Year of birth							\n														\n											\n								\n												\n								Do you know anyone who was born with OA/TOF?							\n						 Yes\, I was born with OA/TOF Yes\, my child was born with OA/TOF Yes\, a friend/relative was born with OA/TOF No\, I just want to help				\n								\n												\n								Please share with us your reasons for wanting to run the London Marathon for TOFS							\n										\n								\n												\n								Please indicate your running vest size							\n								\n			\n							\n			\n									Ladies - XS (33")\n									Ladies - S (35")\n									Ladies - M (37")\n									Ladies - L (40")\n									Ladies - XL (42")\n									Ladies - XXL (43")\n									_________________\n									Mens - XS (36")\n									Mens - S (38")\n									Mens - M (40")\n									Mens - L (43")\n									Mens - XL (46")\n									Mens - XXL (49")\n							\n		\n						\n								\n												\n								If your application is successful\, we will print your first name on your running vest. If you would rather use another name please let us know here.(Leave blank if using your first name as above.)							\n														\n											\n								\n					About your fundraising experience				\n								\n												\n								Have you raised funds for TOFS before?							\n						 Yes No				\n								\n												\n								If you have raised funds for TOFS\, please give details							\n										\n								\n												\n								Have you raised funds for other charities?							\n						 Yes No				\n								\n												\n								If you have raised funds for other charities\, please give details							\n										\n								\n												\n								How much do you think you can raise for TOFS in total?(Our minimum fundraising commitment for this event is £1\,500)							\n														\n											\n								\n												\n								Please give details of how you to plan to reach this target							\n										\n								\n												\n								Will your employer sponsor you or match your funds? 							\n						 Yes No Don't Know				\n								\n												\n								If YES - please let us know how your employer is likely to contribute to your fundraising							\n										\n								\n												\n								What is your occupation?							\n														\n											\n								\n												\n								Would you be happy to take part in promotional activities?This could include sharing your story on our website or news sources							\n						 Yes No				\n								\n												\n								If successful\, would you like to be included in our WhatsApp team group chat? (Mobile numbers and photos/chats will be visible to all who agree to join.)							\n						 Yes No				\n								\n												\n								Would you like to be added to our supporter mailing list to get occasional updates from TOFS?							\n						 Yes No				\n								\n					About your running experience				\n								\n												\n								Have you run a full or half marathon before?							\n						 Yes No				\n								\n									\n								\n												\n								Please let us know about your running experience. If you have run a full or half marathon before\,  please state which one(s) and time that you achieved. If you haven't\, please state your previous running experience.							\n										\n								\n												\n								Please indicate that you agree to our terms & conditions (shown below).							\n								\n			\n				\n				Yes\, I agree to be bound by the TOFS terms and conditions\, and also those of the TCS London Marathon. 			\n		\n						\n								\n									\n								\n					\n						\n																						Submit\n													\n					\n				\n			\n		\n						\n				\n					\n		\n				\n			\n						\n				\n									TOFS will support you by offering: Someone to talk to: an experienced TOFS runner – who has run the London Marathon in the past;A limited edition TOFS running vest with your name on to wear with pride on your big day;Disposable rain poncho to keep you dry on the way to\, and whilst waiting around at\, the start;Cheering from TOFS members with banners at a couple of pre-nominated spots along the route:  your family and friends are invited to join in at these cheering points; subject to spectators being allowed;TOFS T-shirts or baseball caps for your supporters (limited numbers\, upon request) so they have an amazing day too;Access to the organisers’ pre-race support; and a social media group just for you\, the TOFS runners;Important Notes:Please bear in mind that the organisers demand that you register in person in London during the four days leading up to the Marathon. Registration can be expected to close on the day before the Marathon\, in the afternoon.  Moreover\, you will need to make all your own transport and accommodation arrangements. Note that getting to the start at Greenwich\, early on the Sunday morning\, can present some transport difficulties. TOFS asks you to use the cost-effective Peoples Fundraising website (www.peoplesfundraising.com).  Any Questions? Get in touch or give us a call on 01159 613092. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									TCS London Marathon: TOFS Terms and Conditions – For runners with a TOFS allocated place 1. You confirm that the information on this form is complete and correct\, and that you will be 18 years of age or older on 25 April 2027. 2. You recognise that TOFS will retain for a reasonable period the information that you supply by applying on this form\, whether you are selected for a TOFS Golden Bond place or not. 3. You recognise that you apply and (if selected by TOFS) run the Marathon at your own risk in accordance with standard TCS London Marathon regulations and conditions\, which are in addition to these TOFS terms and conditions. 4. You confirm that\, so far as you are aware\, you have no medical or health issues which would mean that it would be unsafe or unwise for you to train for and run a marathon. 5. You confirm that you shall (if selected to run for TOFS using a TOFS Golden bond place) diligently undertake the running training that is appropriate as preparation for a Marathon\, in the months preceding the Marathon. 6. Should you be accepted to run for TOFS using a TOFS Golden bond place\, you agree to pay a registration fee of £50 to TOFS. This is to cover some administration costs\, and TOFS will ask for prompt payment. The fee will count towards your fund-raising pledge. If the fee is not cleared in the TOFS bank account within 21 days of you being sent notification by TOFS that you have been selected\, TOFS may select another person in your place. 7. You confirm that you shall (if allocated a TOFS Golden Bond place) make diligent efforts to contact donors and sponsors and set up fundraising mechanisms so as to raise at least the amount you have suggested for TOFS\, and TOFS shall be the only charity for which you raise funds in this event. You must show at least one month before the Marathon that your fundraising has commenced for instance by setting up a fundraising webpage and receiving at least an initial donation. We ask charity place runners to raise a minimum of 75% of their sponsorship by the event date\, with the remaining fundraising due 30 days after race day. 8. If allocated a TOFS Golden Bond place\, you are pledging to raise your suggested amount for TOFS and agreeing to make up any shortfall yourself or via your own further fundraising efforts to the required minimum of £1\,500 (excluding any Gift Aid\, which is to be in addition to the £1500) to be received by TOFS by the 30th June 2027. 9. All applications to TOFS are subject to a selection process to ensure that Golden Bond places are used to best possible fundraising effect commensurate with safety for all concerned\, at the sole discretion of TOFS. TOFS will wish to give preference in the selection process to runners who are TOFS members or otherwise have a clear connection with the TOF/OA condition: however\, TOFS is not obliged to do so. 10. If allocated a TOFS Golden Bond place\, you agree to inform TOFS as soon as possible in writing\, preferably by email\, should you become unable to take part in the Marathon. Once this is acknowledged by TOFS\, your minimum sponsorship obligation will cease. You understand that\, should you withdraw from your Golden Bond place\, the TOFS registration fee is non-refundable and will be retained by TOFS to cover expenses. 11. You agree that\, should you withdraw from your Golden Bond place\, you will co-operate and correspond with TOFS and the TCS London Marathon organisers such that another runner chosen by TOFS can take your Golden Bond place. At the discretion of TOFS\, and subject to some conditions\, you may be offered a TOFS place in the following year. 12. If you are unable to participate in the TCS London Marathon for any reason\, all donated monies collected by you or donated via third parties (such as fundraising websites) in support of TOFS must be forwarded to TOFS. Money which has been pledged to you on condition of your completing the event must be returned to the individual sponsors\, or donated to TOFS if those sponsors are happy to do so. Monies already received by TOFS will not be refunded. 13. If allocated a TOFS Golden Bond place\, you agree that images taken on the day of the Marathon may be used by TOFS to help promote our fundraising efforts. 14. You understand that\, if allocated a TOFS Golden Bond place\, you will be required to also complete in full (and online) the Official TCS London Marathon Golden Bond registration process before a date yet to be confirmed\, and to confirm to TOFS as soon as you have done so. As this will be done via the TCS London Marathon website\, you understand you will need to have internet access and access to an email address before this date. 15. You understand that\, if allocated a TOFS Golden Bond place\, you will need to “register” in person\, with suitable proof of your identity\, in the days immediately before the Marathon at the TCS London Marathon’s “Expo” designated pre-race registration point in London. 16. You understand that\, if allocated a TOFS Golden Bond place\, you will need to make your own arrangements at your own expense to get to the start line and return from the finish point. 17. You understand that it is your responsibility to take out your own insurance cover for personal accident benefits to whatever level you consider appropriate. By returning this form to TOFS you accept and agree to the terms and conditions listed above.
URL:https://tofs.org.uk/event/virtual-meet-up-for-adults-born-with-oa-tof-9/
LOCATION:Online
ATTACH;FMTTYPE=image/jpeg:https://tofs.org.uk/wp-content/uploads/2024/11/cuppa-and-chat-05dec25.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20241216T190000
DTEND;TZID=Europe/London:20241216T200000
DTSTAMP:20260430T222115
CREATED:20241209T165550Z
LAST-MODIFIED:20241209T165655Z
UID:10000093-1734375600-1734379200@tofs.org.uk
SUMMARY:Virtual meet-up for adults born with OA/TOF
DESCRIPTION:Applications open!We have been allocated 4 charity “Golden Bond” places for the 2027 London Marathon race and are looking for runners to join our team. As we must pay the race organisers for each place we take\, we need to feel confident that the people who are selected to run will do so successfully and with minimal risk of injury to themselves. NOTE: The organisers have put in an application to run an extra London Marathon on the day before (Saturday 24th April). If this goes ahead\, there is a possibility that we may be able to access to additional places. Applications close on the 14th June 2026 but may change subject to the number of successful applicants. Note: last year applications closed in May – so please apply as soon as possible to avoid disappointment. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Entry fee:\n£50 				\n				\n				\n				\n									This fee goes towards the admin fees charged by the race organisers but will count towards your fundraising pledge. Payable to TOFS on successful application.  								\n				\n					\n		\n				\n			\n						\n				\n					Fundraising commitment: £1\,500				\n				\n				\n				\n									This is the minimum amount (before Gift Aid) that we would expect a runner to raise. But you don’t have to stop there! TOFS runners really go for it and most will raise over £2\,500 each\, with the average being nearly £3\,500!  								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n			\n			\n\n			\n			\n								\n					About you				\n								\n												\n								First Name							\n														\n											\n								\n												\n								Surname							\n														\n											\n								\n												\n								Email							\n														\n											\n								\n												\n								Mobile							\n								\n\n						\n								\n												\n								Home Address							\n										\n								\n												\n								Postcode							\n														\n											\n								\n												\n								Year of birth							\n														\n											\n								\n												\n								Do you know anyone who was born with OA/TOF?							\n						 Yes\, I was born with OA/TOF Yes\, my child was born with OA/TOF Yes\, a friend/relative was born with OA/TOF No\, I just want to help				\n								\n												\n								Please share with us your reasons for wanting to run the London Marathon for TOFS							\n										\n								\n												\n								Please indicate your running vest size							\n								\n			\n							\n			\n									Ladies - XS (33")\n									Ladies - S (35")\n									Ladies - M (37")\n									Ladies - L (40")\n									Ladies - XL (42")\n									Ladies - XXL (43")\n									_________________\n									Mens - XS (36")\n									Mens - S (38")\n									Mens - M (40")\n									Mens - L (43")\n									Mens - XL (46")\n									Mens - XXL (49")\n							\n		\n						\n								\n												\n								If your application is successful\, we will print your first name on your running vest. If you would rather use another name please let us know here.(Leave blank if using your first name as above.)							\n														\n											\n								\n					About your fundraising experience				\n								\n												\n								Have you raised funds for TOFS before?							\n						 Yes No				\n								\n												\n								If you have raised funds for TOFS\, please give details							\n										\n								\n												\n								Have you raised funds for other charities?							\n						 Yes No				\n								\n												\n								If you have raised funds for other charities\, please give details							\n										\n								\n												\n								How much do you think you can raise for TOFS in total?(Our minimum fundraising commitment for this event is £1\,500)							\n														\n											\n								\n												\n								Please give details of how you to plan to reach this target							\n										\n								\n												\n								Will your employer sponsor you or match your funds? 							\n						 Yes No Don't Know				\n								\n												\n								If YES - please let us know how your employer is likely to contribute to your fundraising							\n										\n								\n												\n								What is your occupation?							\n														\n											\n								\n												\n								Would you be happy to take part in promotional activities?This could include sharing your story on our website or news sources							\n						 Yes No				\n								\n												\n								If successful\, would you like to be included in our WhatsApp team group chat? (Mobile numbers and photos/chats will be visible to all who agree to join.)							\n						 Yes No				\n								\n												\n								Would you like to be added to our supporter mailing list to get occasional updates from TOFS?							\n						 Yes No				\n								\n					About your running experience				\n								\n												\n								Have you run a full or half marathon before?							\n						 Yes No				\n								\n									\n								\n												\n								Please let us know about your running experience. If you have run a full or half marathon before\,  please state which one(s) and time that you achieved. If you haven't\, please state your previous running experience.							\n										\n								\n												\n								Please indicate that you agree to our terms & conditions (shown below).							\n								\n			\n				\n				Yes\, I agree to be bound by the TOFS terms and conditions\, and also those of the TCS London Marathon. 			\n		\n						\n								\n									\n								\n					\n						\n																						Submit\n													\n					\n				\n			\n		\n						\n				\n					\n		\n				\n			\n						\n				\n									TOFS will support you by offering: Someone to talk to: an experienced TOFS runner – who has run the London Marathon in the past;A limited edition TOFS running vest with your name on to wear with pride on your big day;Disposable rain poncho to keep you dry on the way to\, and whilst waiting around at\, the start;Cheering from TOFS members with banners at a couple of pre-nominated spots along the route:  your family and friends are invited to join in at these cheering points; subject to spectators being allowed;TOFS T-shirts or baseball caps for your supporters (limited numbers\, upon request) so they have an amazing day too;Access to the organisers’ pre-race support; and a social media group just for you\, the TOFS runners;Important Notes:Please bear in mind that the organisers demand that you register in person in London during the four days leading up to the Marathon. Registration can be expected to close on the day before the Marathon\, in the afternoon.  Moreover\, you will need to make all your own transport and accommodation arrangements. Note that getting to the start at Greenwich\, early on the Sunday morning\, can present some transport difficulties. TOFS asks you to use the cost-effective Peoples Fundraising website (www.peoplesfundraising.com).  Any Questions? Get in touch or give us a call on 01159 613092. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									TCS London Marathon: TOFS Terms and Conditions – For runners with a TOFS allocated place 1. You confirm that the information on this form is complete and correct\, and that you will be 18 years of age or older on 25 April 2027. 2. You recognise that TOFS will retain for a reasonable period the information that you supply by applying on this form\, whether you are selected for a TOFS Golden Bond place or not. 3. You recognise that you apply and (if selected by TOFS) run the Marathon at your own risk in accordance with standard TCS London Marathon regulations and conditions\, which are in addition to these TOFS terms and conditions. 4. You confirm that\, so far as you are aware\, you have no medical or health issues which would mean that it would be unsafe or unwise for you to train for and run a marathon. 5. You confirm that you shall (if selected to run for TOFS using a TOFS Golden bond place) diligently undertake the running training that is appropriate as preparation for a Marathon\, in the months preceding the Marathon. 6. Should you be accepted to run for TOFS using a TOFS Golden bond place\, you agree to pay a registration fee of £50 to TOFS. This is to cover some administration costs\, and TOFS will ask for prompt payment. The fee will count towards your fund-raising pledge. If the fee is not cleared in the TOFS bank account within 21 days of you being sent notification by TOFS that you have been selected\, TOFS may select another person in your place. 7. You confirm that you shall (if allocated a TOFS Golden Bond place) make diligent efforts to contact donors and sponsors and set up fundraising mechanisms so as to raise at least the amount you have suggested for TOFS\, and TOFS shall be the only charity for which you raise funds in this event. You must show at least one month before the Marathon that your fundraising has commenced for instance by setting up a fundraising webpage and receiving at least an initial donation. We ask charity place runners to raise a minimum of 75% of their sponsorship by the event date\, with the remaining fundraising due 30 days after race day. 8. If allocated a TOFS Golden Bond place\, you are pledging to raise your suggested amount for TOFS and agreeing to make up any shortfall yourself or via your own further fundraising efforts to the required minimum of £1\,500 (excluding any Gift Aid\, which is to be in addition to the £1500) to be received by TOFS by the 30th June 2027. 9. All applications to TOFS are subject to a selection process to ensure that Golden Bond places are used to best possible fundraising effect commensurate with safety for all concerned\, at the sole discretion of TOFS. TOFS will wish to give preference in the selection process to runners who are TOFS members or otherwise have a clear connection with the TOF/OA condition: however\, TOFS is not obliged to do so. 10. If allocated a TOFS Golden Bond place\, you agree to inform TOFS as soon as possible in writing\, preferably by email\, should you become unable to take part in the Marathon. Once this is acknowledged by TOFS\, your minimum sponsorship obligation will cease. You understand that\, should you withdraw from your Golden Bond place\, the TOFS registration fee is non-refundable and will be retained by TOFS to cover expenses. 11. You agree that\, should you withdraw from your Golden Bond place\, you will co-operate and correspond with TOFS and the TCS London Marathon organisers such that another runner chosen by TOFS can take your Golden Bond place. At the discretion of TOFS\, and subject to some conditions\, you may be offered a TOFS place in the following year. 12. If you are unable to participate in the TCS London Marathon for any reason\, all donated monies collected by you or donated via third parties (such as fundraising websites) in support of TOFS must be forwarded to TOFS. Money which has been pledged to you on condition of your completing the event must be returned to the individual sponsors\, or donated to TOFS if those sponsors are happy to do so. Monies already received by TOFS will not be refunded. 13. If allocated a TOFS Golden Bond place\, you agree that images taken on the day of the Marathon may be used by TOFS to help promote our fundraising efforts. 14. You understand that\, if allocated a TOFS Golden Bond place\, you will be required to also complete in full (and online) the Official TCS London Marathon Golden Bond registration process before a date yet to be confirmed\, and to confirm to TOFS as soon as you have done so. As this will be done via the TCS London Marathon website\, you understand you will need to have internet access and access to an email address before this date. 15. You understand that\, if allocated a TOFS Golden Bond place\, you will need to “register” in person\, with suitable proof of your identity\, in the days immediately before the Marathon at the TCS London Marathon’s “Expo” designated pre-race registration point in London. 16. You understand that\, if allocated a TOFS Golden Bond place\, you will need to make your own arrangements at your own expense to get to the start line and return from the finish point. 17. You understand that it is your responsibility to take out your own insurance cover for personal accident benefits to whatever level you consider appropriate. By returning this form to TOFS you accept and agree to the terms and conditions listed above.
URL:https://tofs.org.uk/event/virtual-meet-up-for-adults-born-with-oa-tof-10/
LOCATION:Online
CATEGORIES:Adult TOF
ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2024/12/cuppa-and-chat-l6dec.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20250102T200000
DTEND;TZID=Europe/London:20250102T210000
DTSTAMP:20260430T222115
CREATED:20241216T112411Z
LAST-MODIFIED:20241217T155920Z
UID:10000096-1735848000-1735851600@tofs.org.uk
SUMMARY:Virtual meet-up for adults born with OA/TOF
DESCRIPTION:Applications open!We have been allocated 4 charity “Golden Bond” places for the 2027 London Marathon race and are looking for runners to join our team. As we must pay the race organisers for each place we take\, we need to feel confident that the people who are selected to run will do so successfully and with minimal risk of injury to themselves. NOTE: The organisers have put in an application to run an extra London Marathon on the day before (Saturday 24th April). If this goes ahead\, there is a possibility that we may be able to access to additional places. Applications close on the 14th June 2026 but may change subject to the number of successful applicants. Note: last year applications closed in May – so please apply as soon as possible to avoid disappointment. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Entry fee:\n£50 				\n				\n				\n				\n									This fee goes towards the admin fees charged by the race organisers but will count towards your fundraising pledge. Payable to TOFS on successful application.  								\n				\n					\n		\n				\n			\n						\n				\n					Fundraising commitment: £1\,500				\n				\n				\n				\n									This is the minimum amount (before Gift Aid) that we would expect a runner to raise. But you don’t have to stop there! TOFS runners really go for it and most will raise over £2\,500 each\, with the average being nearly £3\,500!  								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n			\n			\n\n			\n			\n								\n					About you				\n								\n												\n								First Name							\n														\n											\n								\n												\n								Surname							\n														\n											\n								\n												\n								Email							\n														\n											\n								\n												\n								Mobile							\n								\n\n						\n								\n												\n								Home Address							\n										\n								\n												\n								Postcode							\n														\n											\n								\n												\n								Year of birth							\n														\n											\n								\n												\n								Do you know anyone who was born with OA/TOF?							\n						 Yes\, I was born with OA/TOF Yes\, my child was born with OA/TOF Yes\, a friend/relative was born with OA/TOF No\, I just want to help				\n								\n												\n								Please share with us your reasons for wanting to run the London Marathon for TOFS							\n										\n								\n												\n								Please indicate your running vest size							\n								\n			\n							\n			\n									Ladies - XS (33")\n									Ladies - S (35")\n									Ladies - M (37")\n									Ladies - L (40")\n									Ladies - XL (42")\n									Ladies - XXL (43")\n									_________________\n									Mens - XS (36")\n									Mens - S (38")\n									Mens - M (40")\n									Mens - L (43")\n									Mens - XL (46")\n									Mens - XXL (49")\n							\n		\n						\n								\n												\n								If your application is successful\, we will print your first name on your running vest. If you would rather use another name please let us know here.(Leave blank if using your first name as above.)							\n														\n											\n								\n					About your fundraising experience				\n								\n												\n								Have you raised funds for TOFS before?							\n						 Yes No				\n								\n												\n								If you have raised funds for TOFS\, please give details							\n										\n								\n												\n								Have you raised funds for other charities?							\n						 Yes No				\n								\n												\n								If you have raised funds for other charities\, please give details							\n										\n								\n												\n								How much do you think you can raise for TOFS in total?(Our minimum fundraising commitment for this event is £1\,500)							\n														\n											\n								\n												\n								Please give details of how you to plan to reach this target							\n										\n								\n												\n								Will your employer sponsor you or match your funds? 							\n						 Yes No Don't Know				\n								\n												\n								If YES - please let us know how your employer is likely to contribute to your fundraising							\n										\n								\n												\n								What is your occupation?							\n														\n											\n								\n												\n								Would you be happy to take part in promotional activities?This could include sharing your story on our website or news sources							\n						 Yes No				\n								\n												\n								If successful\, would you like to be included in our WhatsApp team group chat? (Mobile numbers and photos/chats will be visible to all who agree to join.)							\n						 Yes No				\n								\n												\n								Would you like to be added to our supporter mailing list to get occasional updates from TOFS?							\n						 Yes No				\n								\n					About your running experience				\n								\n												\n								Have you run a full or half marathon before?							\n						 Yes No				\n								\n									\n								\n												\n								Please let us know about your running experience. If you have run a full or half marathon before\,  please state which one(s) and time that you achieved. If you haven't\, please state your previous running experience.							\n										\n								\n												\n								Please indicate that you agree to our terms & conditions (shown below).							\n								\n			\n				\n				Yes\, I agree to be bound by the TOFS terms and conditions\, and also those of the TCS London Marathon. 			\n		\n						\n								\n									\n								\n					\n						\n																						Submit\n													\n					\n				\n			\n		\n						\n				\n					\n		\n				\n			\n						\n				\n									TOFS will support you by offering: Someone to talk to: an experienced TOFS runner – who has run the London Marathon in the past;A limited edition TOFS running vest with your name on to wear with pride on your big day;Disposable rain poncho to keep you dry on the way to\, and whilst waiting around at\, the start;Cheering from TOFS members with banners at a couple of pre-nominated spots along the route:  your family and friends are invited to join in at these cheering points; subject to spectators being allowed;TOFS T-shirts or baseball caps for your supporters (limited numbers\, upon request) so they have an amazing day too;Access to the organisers’ pre-race support; and a social media group just for you\, the TOFS runners;Important Notes:Please bear in mind that the organisers demand that you register in person in London during the four days leading up to the Marathon. Registration can be expected to close on the day before the Marathon\, in the afternoon.  Moreover\, you will need to make all your own transport and accommodation arrangements. Note that getting to the start at Greenwich\, early on the Sunday morning\, can present some transport difficulties. TOFS asks you to use the cost-effective Peoples Fundraising website (www.peoplesfundraising.com).  Any Questions? Get in touch or give us a call on 01159 613092. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									TCS London Marathon: TOFS Terms and Conditions – For runners with a TOFS allocated place 1. You confirm that the information on this form is complete and correct\, and that you will be 18 years of age or older on 25 April 2027. 2. You recognise that TOFS will retain for a reasonable period the information that you supply by applying on this form\, whether you are selected for a TOFS Golden Bond place or not. 3. You recognise that you apply and (if selected by TOFS) run the Marathon at your own risk in accordance with standard TCS London Marathon regulations and conditions\, which are in addition to these TOFS terms and conditions. 4. You confirm that\, so far as you are aware\, you have no medical or health issues which would mean that it would be unsafe or unwise for you to train for and run a marathon. 5. You confirm that you shall (if selected to run for TOFS using a TOFS Golden bond place) diligently undertake the running training that is appropriate as preparation for a Marathon\, in the months preceding the Marathon. 6. Should you be accepted to run for TOFS using a TOFS Golden bond place\, you agree to pay a registration fee of £50 to TOFS. This is to cover some administration costs\, and TOFS will ask for prompt payment. The fee will count towards your fund-raising pledge. If the fee is not cleared in the TOFS bank account within 21 days of you being sent notification by TOFS that you have been selected\, TOFS may select another person in your place. 7. You confirm that you shall (if allocated a TOFS Golden Bond place) make diligent efforts to contact donors and sponsors and set up fundraising mechanisms so as to raise at least the amount you have suggested for TOFS\, and TOFS shall be the only charity for which you raise funds in this event. You must show at least one month before the Marathon that your fundraising has commenced for instance by setting up a fundraising webpage and receiving at least an initial donation. We ask charity place runners to raise a minimum of 75% of their sponsorship by the event date\, with the remaining fundraising due 30 days after race day. 8. If allocated a TOFS Golden Bond place\, you are pledging to raise your suggested amount for TOFS and agreeing to make up any shortfall yourself or via your own further fundraising efforts to the required minimum of £1\,500 (excluding any Gift Aid\, which is to be in addition to the £1500) to be received by TOFS by the 30th June 2027. 9. All applications to TOFS are subject to a selection process to ensure that Golden Bond places are used to best possible fundraising effect commensurate with safety for all concerned\, at the sole discretion of TOFS. TOFS will wish to give preference in the selection process to runners who are TOFS members or otherwise have a clear connection with the TOF/OA condition: however\, TOFS is not obliged to do so. 10. If allocated a TOFS Golden Bond place\, you agree to inform TOFS as soon as possible in writing\, preferably by email\, should you become unable to take part in the Marathon. Once this is acknowledged by TOFS\, your minimum sponsorship obligation will cease. You understand that\, should you withdraw from your Golden Bond place\, the TOFS registration fee is non-refundable and will be retained by TOFS to cover expenses. 11. You agree that\, should you withdraw from your Golden Bond place\, you will co-operate and correspond with TOFS and the TCS London Marathon organisers such that another runner chosen by TOFS can take your Golden Bond place. At the discretion of TOFS\, and subject to some conditions\, you may be offered a TOFS place in the following year. 12. If you are unable to participate in the TCS London Marathon for any reason\, all donated monies collected by you or donated via third parties (such as fundraising websites) in support of TOFS must be forwarded to TOFS. Money which has been pledged to you on condition of your completing the event must be returned to the individual sponsors\, or donated to TOFS if those sponsors are happy to do so. Monies already received by TOFS will not be refunded. 13. If allocated a TOFS Golden Bond place\, you agree that images taken on the day of the Marathon may be used by TOFS to help promote our fundraising efforts. 14. You understand that\, if allocated a TOFS Golden Bond place\, you will be required to also complete in full (and online) the Official TCS London Marathon Golden Bond registration process before a date yet to be confirmed\, and to confirm to TOFS as soon as you have done so. As this will be done via the TCS London Marathon website\, you understand you will need to have internet access and access to an email address before this date. 15. You understand that\, if allocated a TOFS Golden Bond place\, you will need to “register” in person\, with suitable proof of your identity\, in the days immediately before the Marathon at the TCS London Marathon’s “Expo” designated pre-race registration point in London. 16. You understand that\, if allocated a TOFS Golden Bond place\, you will need to make your own arrangements at your own expense to get to the start line and return from the finish point. 17. You understand that it is your responsibility to take out your own insurance cover for personal accident benefits to whatever level you consider appropriate. By returning this form to TOFS you accept and agree to the terms and conditions listed above.
URL:https://tofs.org.uk/event/virtual-meet-up-for-adults-born-with-oa-tof-11/
LOCATION:Online
CATEGORIES:Adult TOF
ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2024/12/cuppa-and-chat-Jan-2.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20250126T110000
DTEND;TZID=Europe/London:20250126T130000
DTSTAMP:20260430T222115
CREATED:20241120T164519Z
LAST-MODIFIED:20241120T165036Z
UID:10000091-1737889200-1737896400@tofs.org.uk
SUMMARY:Local Meet-up: Essex
DESCRIPTION:Applications open!We have been allocated 4 charity “Golden Bond” places for the 2027 London Marathon race and are looking for runners to join our team. As we must pay the race organisers for each place we take\, we need to feel confident that the people who are selected to run will do so successfully and with minimal risk of injury to themselves. NOTE: The organisers have put in an application to run an extra London Marathon on the day before (Saturday 24th April). If this goes ahead\, there is a possibility that we may be able to access to additional places. Applications close on the 14th June 2026 but may change subject to the number of successful applicants. Note: last year applications closed in May – so please apply as soon as possible to avoid disappointment. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Entry fee:\n£50 				\n				\n				\n				\n									This fee goes towards the admin fees charged by the race organisers but will count towards your fundraising pledge. Payable to TOFS on successful application.  								\n				\n					\n		\n				\n			\n						\n				\n					Fundraising commitment: £1\,500				\n				\n				\n				\n									This is the minimum amount (before Gift Aid) that we would expect a runner to raise. But you don’t have to stop there! TOFS runners really go for it and most will raise over £2\,500 each\, with the average being nearly £3\,500!  								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n			\n			\n\n			\n			\n								\n					About you				\n								\n												\n								First Name							\n														\n											\n								\n												\n								Surname							\n														\n											\n								\n												\n								Email							\n														\n											\n								\n												\n								Mobile							\n								\n\n						\n								\n												\n								Home Address							\n										\n								\n												\n								Postcode							\n														\n											\n								\n												\n								Year of birth							\n														\n											\n								\n												\n								Do you know anyone who was born with OA/TOF?							\n						 Yes\, I was born with OA/TOF Yes\, my child was born with OA/TOF Yes\, a friend/relative was born with OA/TOF No\, I just want to help				\n								\n												\n								Please share with us your reasons for wanting to run the London Marathon for TOFS							\n										\n								\n												\n								Please indicate your running vest size							\n								\n			\n							\n			\n									Ladies - XS (33")\n									Ladies - S (35")\n									Ladies - M (37")\n									Ladies - L (40")\n									Ladies - XL (42")\n									Ladies - XXL (43")\n									_________________\n									Mens - XS (36")\n									Mens - S (38")\n									Mens - M (40")\n									Mens - L (43")\n									Mens - XL (46")\n									Mens - XXL (49")\n							\n		\n						\n								\n												\n								If your application is successful\, we will print your first name on your running vest. If you would rather use another name please let us know here.(Leave blank if using your first name as above.)							\n														\n											\n								\n					About your fundraising experience				\n								\n												\n								Have you raised funds for TOFS before?							\n						 Yes No				\n								\n												\n								If you have raised funds for TOFS\, please give details							\n										\n								\n												\n								Have you raised funds for other charities?							\n						 Yes No				\n								\n												\n								If you have raised funds for other charities\, please give details							\n										\n								\n												\n								How much do you think you can raise for TOFS in total?(Our minimum fundraising commitment for this event is £1\,500)							\n														\n											\n								\n												\n								Please give details of how you to plan to reach this target							\n										\n								\n												\n								Will your employer sponsor you or match your funds? 							\n						 Yes No Don't Know				\n								\n												\n								If YES - please let us know how your employer is likely to contribute to your fundraising							\n										\n								\n												\n								What is your occupation?							\n														\n											\n								\n												\n								Would you be happy to take part in promotional activities?This could include sharing your story on our website or news sources							\n						 Yes No				\n								\n												\n								If successful\, would you like to be included in our WhatsApp team group chat? (Mobile numbers and photos/chats will be visible to all who agree to join.)							\n						 Yes No				\n								\n												\n								Would you like to be added to our supporter mailing list to get occasional updates from TOFS?							\n						 Yes No				\n								\n					About your running experience				\n								\n												\n								Have you run a full or half marathon before?							\n						 Yes No				\n								\n									\n								\n												\n								Please let us know about your running experience. If you have run a full or half marathon before\,  please state which one(s) and time that you achieved. If you haven't\, please state your previous running experience.							\n										\n								\n												\n								Please indicate that you agree to our terms & conditions (shown below).							\n								\n			\n				\n				Yes\, I agree to be bound by the TOFS terms and conditions\, and also those of the TCS London Marathon. 			\n		\n						\n								\n									\n								\n					\n						\n																						Submit\n													\n					\n				\n			\n		\n						\n				\n					\n		\n				\n			\n						\n				\n									TOFS will support you by offering: Someone to talk to: an experienced TOFS runner – who has run the London Marathon in the past;A limited edition TOFS running vest with your name on to wear with pride on your big day;Disposable rain poncho to keep you dry on the way to\, and whilst waiting around at\, the start;Cheering from TOFS members with banners at a couple of pre-nominated spots along the route:  your family and friends are invited to join in at these cheering points; subject to spectators being allowed;TOFS T-shirts or baseball caps for your supporters (limited numbers\, upon request) so they have an amazing day too;Access to the organisers’ pre-race support; and a social media group just for you\, the TOFS runners;Important Notes:Please bear in mind that the organisers demand that you register in person in London during the four days leading up to the Marathon. Registration can be expected to close on the day before the Marathon\, in the afternoon.  Moreover\, you will need to make all your own transport and accommodation arrangements. Note that getting to the start at Greenwich\, early on the Sunday morning\, can present some transport difficulties. TOFS asks you to use the cost-effective Peoples Fundraising website (www.peoplesfundraising.com).  Any Questions? Get in touch or give us a call on 01159 613092. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									TCS London Marathon: TOFS Terms and Conditions – For runners with a TOFS allocated place 1. You confirm that the information on this form is complete and correct\, and that you will be 18 years of age or older on 25 April 2027. 2. You recognise that TOFS will retain for a reasonable period the information that you supply by applying on this form\, whether you are selected for a TOFS Golden Bond place or not. 3. You recognise that you apply and (if selected by TOFS) run the Marathon at your own risk in accordance with standard TCS London Marathon regulations and conditions\, which are in addition to these TOFS terms and conditions. 4. You confirm that\, so far as you are aware\, you have no medical or health issues which would mean that it would be unsafe or unwise for you to train for and run a marathon. 5. You confirm that you shall (if selected to run for TOFS using a TOFS Golden bond place) diligently undertake the running training that is appropriate as preparation for a Marathon\, in the months preceding the Marathon. 6. Should you be accepted to run for TOFS using a TOFS Golden bond place\, you agree to pay a registration fee of £50 to TOFS. This is to cover some administration costs\, and TOFS will ask for prompt payment. The fee will count towards your fund-raising pledge. If the fee is not cleared in the TOFS bank account within 21 days of you being sent notification by TOFS that you have been selected\, TOFS may select another person in your place. 7. You confirm that you shall (if allocated a TOFS Golden Bond place) make diligent efforts to contact donors and sponsors and set up fundraising mechanisms so as to raise at least the amount you have suggested for TOFS\, and TOFS shall be the only charity for which you raise funds in this event. You must show at least one month before the Marathon that your fundraising has commenced for instance by setting up a fundraising webpage and receiving at least an initial donation. We ask charity place runners to raise a minimum of 75% of their sponsorship by the event date\, with the remaining fundraising due 30 days after race day. 8. If allocated a TOFS Golden Bond place\, you are pledging to raise your suggested amount for TOFS and agreeing to make up any shortfall yourself or via your own further fundraising efforts to the required minimum of £1\,500 (excluding any Gift Aid\, which is to be in addition to the £1500) to be received by TOFS by the 30th June 2027. 9. All applications to TOFS are subject to a selection process to ensure that Golden Bond places are used to best possible fundraising effect commensurate with safety for all concerned\, at the sole discretion of TOFS. TOFS will wish to give preference in the selection process to runners who are TOFS members or otherwise have a clear connection with the TOF/OA condition: however\, TOFS is not obliged to do so. 10. If allocated a TOFS Golden Bond place\, you agree to inform TOFS as soon as possible in writing\, preferably by email\, should you become unable to take part in the Marathon. Once this is acknowledged by TOFS\, your minimum sponsorship obligation will cease. You understand that\, should you withdraw from your Golden Bond place\, the TOFS registration fee is non-refundable and will be retained by TOFS to cover expenses. 11. You agree that\, should you withdraw from your Golden Bond place\, you will co-operate and correspond with TOFS and the TCS London Marathon organisers such that another runner chosen by TOFS can take your Golden Bond place. At the discretion of TOFS\, and subject to some conditions\, you may be offered a TOFS place in the following year. 12. If you are unable to participate in the TCS London Marathon for any reason\, all donated monies collected by you or donated via third parties (such as fundraising websites) in support of TOFS must be forwarded to TOFS. Money which has been pledged to you on condition of your completing the event must be returned to the individual sponsors\, or donated to TOFS if those sponsors are happy to do so. Monies already received by TOFS will not be refunded. 13. If allocated a TOFS Golden Bond place\, you agree that images taken on the day of the Marathon may be used by TOFS to help promote our fundraising efforts. 14. You understand that\, if allocated a TOFS Golden Bond place\, you will be required to also complete in full (and online) the Official TCS London Marathon Golden Bond registration process before a date yet to be confirmed\, and to confirm to TOFS as soon as you have done so. As this will be done via the TCS London Marathon website\, you understand you will need to have internet access and access to an email address before this date. 15. You understand that\, if allocated a TOFS Golden Bond place\, you will need to “register” in person\, with suitable proof of your identity\, in the days immediately before the Marathon at the TCS London Marathon’s “Expo” designated pre-race registration point in London. 16. You understand that\, if allocated a TOFS Golden Bond place\, you will need to make your own arrangements at your own expense to get to the start line and return from the finish point. 17. You understand that it is your responsibility to take out your own insurance cover for personal accident benefits to whatever level you consider appropriate. By returning this form to TOFS you accept and agree to the terms and conditions listed above.
URL:https://tofs.org.uk/event/local-meet-up-essex/
LOCATION:Mace Playce – Soft Play Centre\, Unit 3\, Cuton Hall Lane\, Chelmsford\, CM2 6PB\, United Kingdom
ATTACH;FMTTYPE=image/jpeg:https://tofs.org.uk/wp-content/uploads/2024/04/local-meet-up.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20250129T190000
DTEND;TZID=Europe/London:20250129T200000
DTSTAMP:20260430T222115
CREATED:20241211T143050Z
LAST-MODIFIED:20241212T172302Z
UID:10000094-1738177200-1738180800@tofs.org.uk
SUMMARY:Live Q&A: Long term OA/TOF related gastro issues
DESCRIPTION:Applications open!We have been allocated 4 charity “Golden Bond” places for the 2027 London Marathon race and are looking for runners to join our team. As we must pay the race organisers for each place we take\, we need to feel confident that the people who are selected to run will do so successfully and with minimal risk of injury to themselves. NOTE: The organisers have put in an application to run an extra London Marathon on the day before (Saturday 24th April). If this goes ahead\, there is a possibility that we may be able to access to additional places. Applications close on the 14th June 2026 but may change subject to the number of successful applicants. Note: last year applications closed in May – so please apply as soon as possible to avoid disappointment. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Entry fee:\n£50 				\n				\n				\n				\n									This fee goes towards the admin fees charged by the race organisers but will count towards your fundraising pledge. Payable to TOFS on successful application.  								\n				\n					\n		\n				\n			\n						\n				\n					Fundraising commitment: £1\,500				\n				\n				\n				\n									This is the minimum amount (before Gift Aid) that we would expect a runner to raise. But you don’t have to stop there! TOFS runners really go for it and most will raise over £2\,500 each\, with the average being nearly £3\,500!  								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n			\n			\n\n			\n			\n								\n					About you				\n								\n												\n								First Name							\n														\n											\n								\n												\n								Surname							\n														\n											\n								\n												\n								Email							\n														\n											\n								\n												\n								Mobile							\n								\n\n						\n								\n												\n								Home Address							\n										\n								\n												\n								Postcode							\n														\n											\n								\n												\n								Year of birth							\n														\n											\n								\n												\n								Do you know anyone who was born with OA/TOF?							\n						 Yes\, I was born with OA/TOF Yes\, my child was born with OA/TOF Yes\, a friend/relative was born with OA/TOF No\, I just want to help				\n								\n												\n								Please share with us your reasons for wanting to run the London Marathon for TOFS							\n										\n								\n												\n								Please indicate your running vest size							\n								\n			\n							\n			\n									Ladies - XS (33")\n									Ladies - S (35")\n									Ladies - M (37")\n									Ladies - L (40")\n									Ladies - XL (42")\n									Ladies - XXL (43")\n									_________________\n									Mens - XS (36")\n									Mens - S (38")\n									Mens - M (40")\n									Mens - L (43")\n									Mens - XL (46")\n									Mens - XXL (49")\n							\n		\n						\n								\n												\n								If your application is successful\, we will print your first name on your running vest. If you would rather use another name please let us know here.(Leave blank if using your first name as above.)							\n														\n											\n								\n					About your fundraising experience				\n								\n												\n								Have you raised funds for TOFS before?							\n						 Yes No				\n								\n												\n								If you have raised funds for TOFS\, please give details							\n										\n								\n												\n								Have you raised funds for other charities?							\n						 Yes No				\n								\n												\n								If you have raised funds for other charities\, please give details							\n										\n								\n												\n								How much do you think you can raise for TOFS in total?(Our minimum fundraising commitment for this event is £1\,500)							\n														\n											\n								\n												\n								Please give details of how you to plan to reach this target							\n										\n								\n												\n								Will your employer sponsor you or match your funds? 							\n						 Yes No Don't Know				\n								\n												\n								If YES - please let us know how your employer is likely to contribute to your fundraising							\n										\n								\n												\n								What is your occupation?							\n														\n											\n								\n												\n								Would you be happy to take part in promotional activities?This could include sharing your story on our website or news sources							\n						 Yes No				\n								\n												\n								If successful\, would you like to be included in our WhatsApp team group chat? (Mobile numbers and photos/chats will be visible to all who agree to join.)							\n						 Yes No				\n								\n												\n								Would you like to be added to our supporter mailing list to get occasional updates from TOFS?							\n						 Yes No				\n								\n					About your running experience				\n								\n												\n								Have you run a full or half marathon before?							\n						 Yes No				\n								\n									\n								\n												\n								Please let us know about your running experience. If you have run a full or half marathon before\,  please state which one(s) and time that you achieved. If you haven't\, please state your previous running experience.							\n										\n								\n												\n								Please indicate that you agree to our terms & conditions (shown below).							\n								\n			\n				\n				Yes\, I agree to be bound by the TOFS terms and conditions\, and also those of the TCS London Marathon. 			\n		\n						\n								\n									\n								\n					\n						\n																						Submit\n													\n					\n				\n			\n		\n						\n				\n					\n		\n				\n			\n						\n				\n									TOFS will support you by offering: Someone to talk to: an experienced TOFS runner – who has run the London Marathon in the past;A limited edition TOFS running vest with your name on to wear with pride on your big day;Disposable rain poncho to keep you dry on the way to\, and whilst waiting around at\, the start;Cheering from TOFS members with banners at a couple of pre-nominated spots along the route:  your family and friends are invited to join in at these cheering points; subject to spectators being allowed;TOFS T-shirts or baseball caps for your supporters (limited numbers\, upon request) so they have an amazing day too;Access to the organisers’ pre-race support; and a social media group just for you\, the TOFS runners;Important Notes:Please bear in mind that the organisers demand that you register in person in London during the four days leading up to the Marathon. Registration can be expected to close on the day before the Marathon\, in the afternoon.  Moreover\, you will need to make all your own transport and accommodation arrangements. Note that getting to the start at Greenwich\, early on the Sunday morning\, can present some transport difficulties. TOFS asks you to use the cost-effective Peoples Fundraising website (www.peoplesfundraising.com).  Any Questions? Get in touch or give us a call on 01159 613092. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									TCS London Marathon: TOFS Terms and Conditions – For runners with a TOFS allocated place 1. You confirm that the information on this form is complete and correct\, and that you will be 18 years of age or older on 25 April 2027. 2. You recognise that TOFS will retain for a reasonable period the information that you supply by applying on this form\, whether you are selected for a TOFS Golden Bond place or not. 3. You recognise that you apply and (if selected by TOFS) run the Marathon at your own risk in accordance with standard TCS London Marathon regulations and conditions\, which are in addition to these TOFS terms and conditions. 4. You confirm that\, so far as you are aware\, you have no medical or health issues which would mean that it would be unsafe or unwise for you to train for and run a marathon. 5. You confirm that you shall (if selected to run for TOFS using a TOFS Golden bond place) diligently undertake the running training that is appropriate as preparation for a Marathon\, in the months preceding the Marathon. 6. Should you be accepted to run for TOFS using a TOFS Golden bond place\, you agree to pay a registration fee of £50 to TOFS. This is to cover some administration costs\, and TOFS will ask for prompt payment. The fee will count towards your fund-raising pledge. If the fee is not cleared in the TOFS bank account within 21 days of you being sent notification by TOFS that you have been selected\, TOFS may select another person in your place. 7. You confirm that you shall (if allocated a TOFS Golden Bond place) make diligent efforts to contact donors and sponsors and set up fundraising mechanisms so as to raise at least the amount you have suggested for TOFS\, and TOFS shall be the only charity for which you raise funds in this event. You must show at least one month before the Marathon that your fundraising has commenced for instance by setting up a fundraising webpage and receiving at least an initial donation. We ask charity place runners to raise a minimum of 75% of their sponsorship by the event date\, with the remaining fundraising due 30 days after race day. 8. If allocated a TOFS Golden Bond place\, you are pledging to raise your suggested amount for TOFS and agreeing to make up any shortfall yourself or via your own further fundraising efforts to the required minimum of £1\,500 (excluding any Gift Aid\, which is to be in addition to the £1500) to be received by TOFS by the 30th June 2027. 9. All applications to TOFS are subject to a selection process to ensure that Golden Bond places are used to best possible fundraising effect commensurate with safety for all concerned\, at the sole discretion of TOFS. TOFS will wish to give preference in the selection process to runners who are TOFS members or otherwise have a clear connection with the TOF/OA condition: however\, TOFS is not obliged to do so. 10. If allocated a TOFS Golden Bond place\, you agree to inform TOFS as soon as possible in writing\, preferably by email\, should you become unable to take part in the Marathon. Once this is acknowledged by TOFS\, your minimum sponsorship obligation will cease. You understand that\, should you withdraw from your Golden Bond place\, the TOFS registration fee is non-refundable and will be retained by TOFS to cover expenses. 11. You agree that\, should you withdraw from your Golden Bond place\, you will co-operate and correspond with TOFS and the TCS London Marathon organisers such that another runner chosen by TOFS can take your Golden Bond place. At the discretion of TOFS\, and subject to some conditions\, you may be offered a TOFS place in the following year. 12. If you are unable to participate in the TCS London Marathon for any reason\, all donated monies collected by you or donated via third parties (such as fundraising websites) in support of TOFS must be forwarded to TOFS. Money which has been pledged to you on condition of your completing the event must be returned to the individual sponsors\, or donated to TOFS if those sponsors are happy to do so. Monies already received by TOFS will not be refunded. 13. If allocated a TOFS Golden Bond place\, you agree that images taken on the day of the Marathon may be used by TOFS to help promote our fundraising efforts. 14. You understand that\, if allocated a TOFS Golden Bond place\, you will be required to also complete in full (and online) the Official TCS London Marathon Golden Bond registration process before a date yet to be confirmed\, and to confirm to TOFS as soon as you have done so. As this will be done via the TCS London Marathon website\, you understand you will need to have internet access and access to an email address before this date. 15. You understand that\, if allocated a TOFS Golden Bond place\, you will need to “register” in person\, with suitable proof of your identity\, in the days immediately before the Marathon at the TCS London Marathon’s “Expo” designated pre-race registration point in London. 16. You understand that\, if allocated a TOFS Golden Bond place\, you will need to make your own arrangements at your own expense to get to the start line and return from the finish point. 17. You understand that it is your responsibility to take out your own insurance cover for personal accident benefits to whatever level you consider appropriate. By returning this form to TOFS you accept and agree to the terms and conditions listed above.
URL:https://tofs.org.uk/event/live-qa-long-term-oa-tof-related-gastro-issues/
LOCATION:Online
CATEGORIES:Adult TOF
ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2024/12/Chew-Adverts2.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20250206T200000
DTEND;TZID=Europe/London:20250206T210000
DTSTAMP:20260430T222115
CREATED:20241216T113119Z
LAST-MODIFIED:20250115T105344Z
UID:10000097-1738872000-1738875600@tofs.org.uk
SUMMARY:Virtual meet-up for adults born with OA/TOF
DESCRIPTION:Applications open!We have been allocated 4 charity “Golden Bond” places for the 2027 London Marathon race and are looking for runners to join our team. As we must pay the race organisers for each place we take\, we need to feel confident that the people who are selected to run will do so successfully and with minimal risk of injury to themselves. NOTE: The organisers have put in an application to run an extra London Marathon on the day before (Saturday 24th April). If this goes ahead\, there is a possibility that we may be able to access to additional places. Applications close on the 14th June 2026 but may change subject to the number of successful applicants. Note: last year applications closed in May – so please apply as soon as possible to avoid disappointment. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Entry fee:\n£50 				\n				\n				\n				\n									This fee goes towards the admin fees charged by the race organisers but will count towards your fundraising pledge. Payable to TOFS on successful application.  								\n				\n					\n		\n				\n			\n						\n				\n					Fundraising commitment: £1\,500				\n				\n				\n				\n									This is the minimum amount (before Gift Aid) that we would expect a runner to raise. But you don’t have to stop there! TOFS runners really go for it and most will raise over £2\,500 each\, with the average being nearly £3\,500!  								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n			\n			\n\n			\n			\n								\n					About you				\n								\n												\n								First Name							\n														\n											\n								\n												\n								Surname							\n														\n											\n								\n												\n								Email							\n														\n											\n								\n												\n								Mobile							\n								\n\n						\n								\n												\n								Home Address							\n										\n								\n												\n								Postcode							\n														\n											\n								\n												\n								Year of birth							\n														\n											\n								\n												\n								Do you know anyone who was born with OA/TOF?							\n						 Yes\, I was born with OA/TOF Yes\, my child was born with OA/TOF Yes\, a friend/relative was born with OA/TOF No\, I just want to help				\n								\n												\n								Please share with us your reasons for wanting to run the London Marathon for TOFS							\n										\n								\n												\n								Please indicate your running vest size							\n								\n			\n							\n			\n									Ladies - XS (33")\n									Ladies - S (35")\n									Ladies - M (37")\n									Ladies - L (40")\n									Ladies - XL (42")\n									Ladies - XXL (43")\n									_________________\n									Mens - XS (36")\n									Mens - S (38")\n									Mens - M (40")\n									Mens - L (43")\n									Mens - XL (46")\n									Mens - XXL (49")\n							\n		\n						\n								\n												\n								If your application is successful\, we will print your first name on your running vest. If you would rather use another name please let us know here.(Leave blank if using your first name as above.)							\n														\n											\n								\n					About your fundraising experience				\n								\n												\n								Have you raised funds for TOFS before?							\n						 Yes No				\n								\n												\n								If you have raised funds for TOFS\, please give details							\n										\n								\n												\n								Have you raised funds for other charities?							\n						 Yes No				\n								\n												\n								If you have raised funds for other charities\, please give details							\n										\n								\n												\n								How much do you think you can raise for TOFS in total?(Our minimum fundraising commitment for this event is £1\,500)							\n														\n											\n								\n												\n								Please give details of how you to plan to reach this target							\n										\n								\n												\n								Will your employer sponsor you or match your funds? 							\n						 Yes No Don't Know				\n								\n												\n								If YES - please let us know how your employer is likely to contribute to your fundraising							\n										\n								\n												\n								What is your occupation?							\n														\n											\n								\n												\n								Would you be happy to take part in promotional activities?This could include sharing your story on our website or news sources							\n						 Yes No				\n								\n												\n								If successful\, would you like to be included in our WhatsApp team group chat? (Mobile numbers and photos/chats will be visible to all who agree to join.)							\n						 Yes No				\n								\n												\n								Would you like to be added to our supporter mailing list to get occasional updates from TOFS?							\n						 Yes No				\n								\n					About your running experience				\n								\n												\n								Have you run a full or half marathon before?							\n						 Yes No				\n								\n									\n								\n												\n								Please let us know about your running experience. If you have run a full or half marathon before\,  please state which one(s) and time that you achieved. If you haven't\, please state your previous running experience.							\n										\n								\n												\n								Please indicate that you agree to our terms & conditions (shown below).							\n								\n			\n				\n				Yes\, I agree to be bound by the TOFS terms and conditions\, and also those of the TCS London Marathon. 			\n		\n						\n								\n									\n								\n					\n						\n																						Submit\n													\n					\n				\n			\n		\n						\n				\n					\n		\n				\n			\n						\n				\n									TOFS will support you by offering: Someone to talk to: an experienced TOFS runner – who has run the London Marathon in the past;A limited edition TOFS running vest with your name on to wear with pride on your big day;Disposable rain poncho to keep you dry on the way to\, and whilst waiting around at\, the start;Cheering from TOFS members with banners at a couple of pre-nominated spots along the route:  your family and friends are invited to join in at these cheering points; subject to spectators being allowed;TOFS T-shirts or baseball caps for your supporters (limited numbers\, upon request) so they have an amazing day too;Access to the organisers’ pre-race support; and a social media group just for you\, the TOFS runners;Important Notes:Please bear in mind that the organisers demand that you register in person in London during the four days leading up to the Marathon. Registration can be expected to close on the day before the Marathon\, in the afternoon.  Moreover\, you will need to make all your own transport and accommodation arrangements. Note that getting to the start at Greenwich\, early on the Sunday morning\, can present some transport difficulties. TOFS asks you to use the cost-effective Peoples Fundraising website (www.peoplesfundraising.com).  Any Questions? Get in touch or give us a call on 01159 613092. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									TCS London Marathon: TOFS Terms and Conditions – For runners with a TOFS allocated place 1. You confirm that the information on this form is complete and correct\, and that you will be 18 years of age or older on 25 April 2027. 2. You recognise that TOFS will retain for a reasonable period the information that you supply by applying on this form\, whether you are selected for a TOFS Golden Bond place or not. 3. You recognise that you apply and (if selected by TOFS) run the Marathon at your own risk in accordance with standard TCS London Marathon regulations and conditions\, which are in addition to these TOFS terms and conditions. 4. You confirm that\, so far as you are aware\, you have no medical or health issues which would mean that it would be unsafe or unwise for you to train for and run a marathon. 5. You confirm that you shall (if selected to run for TOFS using a TOFS Golden bond place) diligently undertake the running training that is appropriate as preparation for a Marathon\, in the months preceding the Marathon. 6. Should you be accepted to run for TOFS using a TOFS Golden bond place\, you agree to pay a registration fee of £50 to TOFS. This is to cover some administration costs\, and TOFS will ask for prompt payment. The fee will count towards your fund-raising pledge. If the fee is not cleared in the TOFS bank account within 21 days of you being sent notification by TOFS that you have been selected\, TOFS may select another person in your place. 7. You confirm that you shall (if allocated a TOFS Golden Bond place) make diligent efforts to contact donors and sponsors and set up fundraising mechanisms so as to raise at least the amount you have suggested for TOFS\, and TOFS shall be the only charity for which you raise funds in this event. You must show at least one month before the Marathon that your fundraising has commenced for instance by setting up a fundraising webpage and receiving at least an initial donation. We ask charity place runners to raise a minimum of 75% of their sponsorship by the event date\, with the remaining fundraising due 30 days after race day. 8. If allocated a TOFS Golden Bond place\, you are pledging to raise your suggested amount for TOFS and agreeing to make up any shortfall yourself or via your own further fundraising efforts to the required minimum of £1\,500 (excluding any Gift Aid\, which is to be in addition to the £1500) to be received by TOFS by the 30th June 2027. 9. All applications to TOFS are subject to a selection process to ensure that Golden Bond places are used to best possible fundraising effect commensurate with safety for all concerned\, at the sole discretion of TOFS. TOFS will wish to give preference in the selection process to runners who are TOFS members or otherwise have a clear connection with the TOF/OA condition: however\, TOFS is not obliged to do so. 10. If allocated a TOFS Golden Bond place\, you agree to inform TOFS as soon as possible in writing\, preferably by email\, should you become unable to take part in the Marathon. Once this is acknowledged by TOFS\, your minimum sponsorship obligation will cease. You understand that\, should you withdraw from your Golden Bond place\, the TOFS registration fee is non-refundable and will be retained by TOFS to cover expenses. 11. You agree that\, should you withdraw from your Golden Bond place\, you will co-operate and correspond with TOFS and the TCS London Marathon organisers such that another runner chosen by TOFS can take your Golden Bond place. At the discretion of TOFS\, and subject to some conditions\, you may be offered a TOFS place in the following year. 12. If you are unable to participate in the TCS London Marathon for any reason\, all donated monies collected by you or donated via third parties (such as fundraising websites) in support of TOFS must be forwarded to TOFS. Money which has been pledged to you on condition of your completing the event must be returned to the individual sponsors\, or donated to TOFS if those sponsors are happy to do so. Monies already received by TOFS will not be refunded. 13. If allocated a TOFS Golden Bond place\, you agree that images taken on the day of the Marathon may be used by TOFS to help promote our fundraising efforts. 14. You understand that\, if allocated a TOFS Golden Bond place\, you will be required to also complete in full (and online) the Official TCS London Marathon Golden Bond registration process before a date yet to be confirmed\, and to confirm to TOFS as soon as you have done so. As this will be done via the TCS London Marathon website\, you understand you will need to have internet access and access to an email address before this date. 15. You understand that\, if allocated a TOFS Golden Bond place\, you will need to “register” in person\, with suitable proof of your identity\, in the days immediately before the Marathon at the TCS London Marathon’s “Expo” designated pre-race registration point in London. 16. You understand that\, if allocated a TOFS Golden Bond place\, you will need to make your own arrangements at your own expense to get to the start line and return from the finish point. 17. You understand that it is your responsibility to take out your own insurance cover for personal accident benefits to whatever level you consider appropriate. By returning this form to TOFS you accept and agree to the terms and conditions listed above.
URL:https://tofs.org.uk/event/virtual-meet-up-for-adults-born-with-oa-tof-13/
LOCATION:Online
CATEGORIES:Adult TOF
ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2024/12/cuppa-and-chat-Feb.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20250213T200000
DTEND;TZID=Europe/London:20250213T210000
DTSTAMP:20260430T222115
CREATED:20241218T094525Z
LAST-MODIFIED:20241218T094816Z
UID:10000100-1739476800-1739480400@tofs.org.uk
SUMMARY:Starting Nursery\, Pre-school\, and School - Talk with TLCs
DESCRIPTION:Applications open!We have been allocated 4 charity “Golden Bond” places for the 2027 London Marathon race and are looking for runners to join our team. As we must pay the race organisers for each place we take\, we need to feel confident that the people who are selected to run will do so successfully and with minimal risk of injury to themselves. NOTE: The organisers have put in an application to run an extra London Marathon on the day before (Saturday 24th April). If this goes ahead\, there is a possibility that we may be able to access to additional places. Applications close on the 14th June 2026 but may change subject to the number of successful applicants. Note: last year applications closed in May – so please apply as soon as possible to avoid disappointment. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Entry fee:\n£50 				\n				\n				\n				\n									This fee goes towards the admin fees charged by the race organisers but will count towards your fundraising pledge. Payable to TOFS on successful application.  								\n				\n					\n		\n				\n			\n						\n				\n					Fundraising commitment: £1\,500				\n				\n				\n				\n									This is the minimum amount (before Gift Aid) that we would expect a runner to raise. But you don’t have to stop there! TOFS runners really go for it and most will raise over £2\,500 each\, with the average being nearly £3\,500!  								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n			\n			\n\n			\n			\n								\n					About you				\n								\n												\n								First Name							\n														\n											\n								\n												\n								Surname							\n														\n											\n								\n												\n								Email							\n														\n											\n								\n												\n								Mobile							\n								\n\n						\n								\n												\n								Home Address							\n										\n								\n												\n								Postcode							\n														\n											\n								\n												\n								Year of birth							\n														\n											\n								\n												\n								Do you know anyone who was born with OA/TOF?							\n						 Yes\, I was born with OA/TOF Yes\, my child was born with OA/TOF Yes\, a friend/relative was born with OA/TOF No\, I just want to help				\n								\n												\n								Please share with us your reasons for wanting to run the London Marathon for TOFS							\n										\n								\n												\n								Please indicate your running vest size							\n								\n			\n							\n			\n									Ladies - XS (33")\n									Ladies - S (35")\n									Ladies - M (37")\n									Ladies - L (40")\n									Ladies - XL (42")\n									Ladies - XXL (43")\n									_________________\n									Mens - XS (36")\n									Mens - S (38")\n									Mens - M (40")\n									Mens - L (43")\n									Mens - XL (46")\n									Mens - XXL (49")\n							\n		\n						\n								\n												\n								If your application is successful\, we will print your first name on your running vest. If you would rather use another name please let us know here.(Leave blank if using your first name as above.)							\n														\n											\n								\n					About your fundraising experience				\n								\n												\n								Have you raised funds for TOFS before?							\n						 Yes No				\n								\n												\n								If you have raised funds for TOFS\, please give details							\n										\n								\n												\n								Have you raised funds for other charities?							\n						 Yes No				\n								\n												\n								If you have raised funds for other charities\, please give details							\n										\n								\n												\n								How much do you think you can raise for TOFS in total?(Our minimum fundraising commitment for this event is £1\,500)							\n														\n											\n								\n												\n								Please give details of how you to plan to reach this target							\n										\n								\n												\n								Will your employer sponsor you or match your funds? 							\n						 Yes No Don't Know				\n								\n												\n								If YES - please let us know how your employer is likely to contribute to your fundraising							\n										\n								\n												\n								What is your occupation?							\n														\n											\n								\n												\n								Would you be happy to take part in promotional activities?This could include sharing your story on our website or news sources							\n						 Yes No				\n								\n												\n								If successful\, would you like to be included in our WhatsApp team group chat? (Mobile numbers and photos/chats will be visible to all who agree to join.)							\n						 Yes No				\n								\n												\n								Would you like to be added to our supporter mailing list to get occasional updates from TOFS?							\n						 Yes No				\n								\n					About your running experience				\n								\n												\n								Have you run a full or half marathon before?							\n						 Yes No				\n								\n									\n								\n												\n								Please let us know about your running experience. If you have run a full or half marathon before\,  please state which one(s) and time that you achieved. If you haven't\, please state your previous running experience.							\n										\n								\n												\n								Please indicate that you agree to our terms & conditions (shown below).							\n								\n			\n				\n				Yes\, I agree to be bound by the TOFS terms and conditions\, and also those of the TCS London Marathon. 			\n		\n						\n								\n									\n								\n					\n						\n																						Submit\n													\n					\n				\n			\n		\n						\n				\n					\n		\n				\n			\n						\n				\n									TOFS will support you by offering: Someone to talk to: an experienced TOFS runner – who has run the London Marathon in the past;A limited edition TOFS running vest with your name on to wear with pride on your big day;Disposable rain poncho to keep you dry on the way to\, and whilst waiting around at\, the start;Cheering from TOFS members with banners at a couple of pre-nominated spots along the route:  your family and friends are invited to join in at these cheering points; subject to spectators being allowed;TOFS T-shirts or baseball caps for your supporters (limited numbers\, upon request) so they have an amazing day too;Access to the organisers’ pre-race support; and a social media group just for you\, the TOFS runners;Important Notes:Please bear in mind that the organisers demand that you register in person in London during the four days leading up to the Marathon. Registration can be expected to close on the day before the Marathon\, in the afternoon.  Moreover\, you will need to make all your own transport and accommodation arrangements. Note that getting to the start at Greenwich\, early on the Sunday morning\, can present some transport difficulties. TOFS asks you to use the cost-effective Peoples Fundraising website (www.peoplesfundraising.com).  Any Questions? Get in touch or give us a call on 01159 613092. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									TCS London Marathon: TOFS Terms and Conditions – For runners with a TOFS allocated place 1. You confirm that the information on this form is complete and correct\, and that you will be 18 years of age or older on 25 April 2027. 2. You recognise that TOFS will retain for a reasonable period the information that you supply by applying on this form\, whether you are selected for a TOFS Golden Bond place or not. 3. You recognise that you apply and (if selected by TOFS) run the Marathon at your own risk in accordance with standard TCS London Marathon regulations and conditions\, which are in addition to these TOFS terms and conditions. 4. You confirm that\, so far as you are aware\, you have no medical or health issues which would mean that it would be unsafe or unwise for you to train for and run a marathon. 5. You confirm that you shall (if selected to run for TOFS using a TOFS Golden bond place) diligently undertake the running training that is appropriate as preparation for a Marathon\, in the months preceding the Marathon. 6. Should you be accepted to run for TOFS using a TOFS Golden bond place\, you agree to pay a registration fee of £50 to TOFS. This is to cover some administration costs\, and TOFS will ask for prompt payment. The fee will count towards your fund-raising pledge. If the fee is not cleared in the TOFS bank account within 21 days of you being sent notification by TOFS that you have been selected\, TOFS may select another person in your place. 7. You confirm that you shall (if allocated a TOFS Golden Bond place) make diligent efforts to contact donors and sponsors and set up fundraising mechanisms so as to raise at least the amount you have suggested for TOFS\, and TOFS shall be the only charity for which you raise funds in this event. You must show at least one month before the Marathon that your fundraising has commenced for instance by setting up a fundraising webpage and receiving at least an initial donation. We ask charity place runners to raise a minimum of 75% of their sponsorship by the event date\, with the remaining fundraising due 30 days after race day. 8. If allocated a TOFS Golden Bond place\, you are pledging to raise your suggested amount for TOFS and agreeing to make up any shortfall yourself or via your own further fundraising efforts to the required minimum of £1\,500 (excluding any Gift Aid\, which is to be in addition to the £1500) to be received by TOFS by the 30th June 2027. 9. All applications to TOFS are subject to a selection process to ensure that Golden Bond places are used to best possible fundraising effect commensurate with safety for all concerned\, at the sole discretion of TOFS. TOFS will wish to give preference in the selection process to runners who are TOFS members or otherwise have a clear connection with the TOF/OA condition: however\, TOFS is not obliged to do so. 10. If allocated a TOFS Golden Bond place\, you agree to inform TOFS as soon as possible in writing\, preferably by email\, should you become unable to take part in the Marathon. Once this is acknowledged by TOFS\, your minimum sponsorship obligation will cease. You understand that\, should you withdraw from your Golden Bond place\, the TOFS registration fee is non-refundable and will be retained by TOFS to cover expenses. 11. You agree that\, should you withdraw from your Golden Bond place\, you will co-operate and correspond with TOFS and the TCS London Marathon organisers such that another runner chosen by TOFS can take your Golden Bond place. At the discretion of TOFS\, and subject to some conditions\, you may be offered a TOFS place in the following year. 12. If you are unable to participate in the TCS London Marathon for any reason\, all donated monies collected by you or donated via third parties (such as fundraising websites) in support of TOFS must be forwarded to TOFS. Money which has been pledged to you on condition of your completing the event must be returned to the individual sponsors\, or donated to TOFS if those sponsors are happy to do so. Monies already received by TOFS will not be refunded. 13. If allocated a TOFS Golden Bond place\, you agree that images taken on the day of the Marathon may be used by TOFS to help promote our fundraising efforts. 14. You understand that\, if allocated a TOFS Golden Bond place\, you will be required to also complete in full (and online) the Official TCS London Marathon Golden Bond registration process before a date yet to be confirmed\, and to confirm to TOFS as soon as you have done so. As this will be done via the TCS London Marathon website\, you understand you will need to have internet access and access to an email address before this date. 15. You understand that\, if allocated a TOFS Golden Bond place\, you will need to “register” in person\, with suitable proof of your identity\, in the days immediately before the Marathon at the TCS London Marathon’s “Expo” designated pre-race registration point in London. 16. You understand that\, if allocated a TOFS Golden Bond place\, you will need to make your own arrangements at your own expense to get to the start line and return from the finish point. 17. You understand that it is your responsibility to take out your own insurance cover for personal accident benefits to whatever level you consider appropriate. By returning this form to TOFS you accept and agree to the terms and conditions listed above.
URL:https://tofs.org.uk/event/starting-nursery-pre-school-and-school-talk-with-tlcs-2/
LOCATION:Online
CATEGORIES:Parents & Carers
ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2024/12/Feb25-School-Talk-with-TLCs.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20250224
DTEND;VALUE=DATE:20250303
DTSTAMP:20260430T222115
CREATED:20250117T102455Z
LAST-MODIFIED:20250224T093510Z
UID:10000102-1740355200-1740959999@tofs.org.uk
SUMMARY:OA/TOF Awareness Week 2025
DESCRIPTION:Applications open!We have been allocated 4 charity “Golden Bond” places for the 2027 London Marathon race and are looking for runners to join our team. As we must pay the race organisers for each place we take\, we need to feel confident that the people who are selected to run will do so successfully and with minimal risk of injury to themselves. NOTE: The organisers have put in an application to run an extra London Marathon on the day before (Saturday 24th April). If this goes ahead\, there is a possibility that we may be able to access to additional places. Applications close on the 14th June 2026 but may change subject to the number of successful applicants. Note: last year applications closed in May – so please apply as soon as possible to avoid disappointment. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Entry fee:\n£50 				\n				\n				\n				\n									This fee goes towards the admin fees charged by the race organisers but will count towards your fundraising pledge. Payable to TOFS on successful application.  								\n				\n					\n		\n				\n			\n						\n				\n					Fundraising commitment: £1\,500				\n				\n				\n				\n									This is the minimum amount (before Gift Aid) that we would expect a runner to raise. But you don’t have to stop there! TOFS runners really go for it and most will raise over £2\,500 each\, with the average being nearly £3\,500!  								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n			\n			\n\n			\n			\n								\n					About you				\n								\n												\n								First Name							\n														\n											\n								\n												\n								Surname							\n														\n											\n								\n												\n								Email							\n														\n											\n								\n												\n								Mobile							\n								\n\n						\n								\n												\n								Home Address							\n										\n								\n												\n								Postcode							\n														\n											\n								\n												\n								Year of birth							\n														\n											\n								\n												\n								Do you know anyone who was born with OA/TOF?							\n						 Yes\, I was born with OA/TOF Yes\, my child was born with OA/TOF Yes\, a friend/relative was born with OA/TOF No\, I just want to help				\n								\n												\n								Please share with us your reasons for wanting to run the London Marathon for TOFS							\n										\n								\n												\n								Please indicate your running vest size							\n								\n			\n							\n			\n									Ladies - XS (33")\n									Ladies - S (35")\n									Ladies - M (37")\n									Ladies - L (40")\n									Ladies - XL (42")\n									Ladies - XXL (43")\n									_________________\n									Mens - XS (36")\n									Mens - S (38")\n									Mens - M (40")\n									Mens - L (43")\n									Mens - XL (46")\n									Mens - XXL (49")\n							\n		\n						\n								\n												\n								If your application is successful\, we will print your first name on your running vest. If you would rather use another name please let us know here.(Leave blank if using your first name as above.)							\n														\n											\n								\n					About your fundraising experience				\n								\n												\n								Have you raised funds for TOFS before?							\n						 Yes No				\n								\n												\n								If you have raised funds for TOFS\, please give details							\n										\n								\n												\n								Have you raised funds for other charities?							\n						 Yes No				\n								\n												\n								If you have raised funds for other charities\, please give details							\n										\n								\n												\n								How much do you think you can raise for TOFS in total?(Our minimum fundraising commitment for this event is £1\,500)							\n														\n											\n								\n												\n								Please give details of how you to plan to reach this target							\n										\n								\n												\n								Will your employer sponsor you or match your funds? 							\n						 Yes No Don't Know				\n								\n												\n								If YES - please let us know how your employer is likely to contribute to your fundraising							\n										\n								\n												\n								What is your occupation?							\n														\n											\n								\n												\n								Would you be happy to take part in promotional activities?This could include sharing your story on our website or news sources							\n						 Yes No				\n								\n												\n								If successful\, would you like to be included in our WhatsApp team group chat? (Mobile numbers and photos/chats will be visible to all who agree to join.)							\n						 Yes No				\n								\n												\n								Would you like to be added to our supporter mailing list to get occasional updates from TOFS?							\n						 Yes No				\n								\n					About your running experience				\n								\n												\n								Have you run a full or half marathon before?							\n						 Yes No				\n								\n									\n								\n												\n								Please let us know about your running experience. If you have run a full or half marathon before\,  please state which one(s) and time that you achieved. If you haven't\, please state your previous running experience.							\n										\n								\n												\n								Please indicate that you agree to our terms & conditions (shown below).							\n								\n			\n				\n				Yes\, I agree to be bound by the TOFS terms and conditions\, and also those of the TCS London Marathon. 			\n		\n						\n								\n									\n								\n					\n						\n																						Submit\n													\n					\n				\n			\n		\n						\n				\n					\n		\n				\n			\n						\n				\n									TOFS will support you by offering: Someone to talk to: an experienced TOFS runner – who has run the London Marathon in the past;A limited edition TOFS running vest with your name on to wear with pride on your big day;Disposable rain poncho to keep you dry on the way to\, and whilst waiting around at\, the start;Cheering from TOFS members with banners at a couple of pre-nominated spots along the route:  your family and friends are invited to join in at these cheering points; subject to spectators being allowed;TOFS T-shirts or baseball caps for your supporters (limited numbers\, upon request) so they have an amazing day too;Access to the organisers’ pre-race support; and a social media group just for you\, the TOFS runners;Important Notes:Please bear in mind that the organisers demand that you register in person in London during the four days leading up to the Marathon. Registration can be expected to close on the day before the Marathon\, in the afternoon.  Moreover\, you will need to make all your own transport and accommodation arrangements. Note that getting to the start at Greenwich\, early on the Sunday morning\, can present some transport difficulties. TOFS asks you to use the cost-effective Peoples Fundraising website (www.peoplesfundraising.com).  Any Questions? Get in touch or give us a call on 01159 613092. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									TCS London Marathon: TOFS Terms and Conditions – For runners with a TOFS allocated place 1. You confirm that the information on this form is complete and correct\, and that you will be 18 years of age or older on 25 April 2027. 2. You recognise that TOFS will retain for a reasonable period the information that you supply by applying on this form\, whether you are selected for a TOFS Golden Bond place or not. 3. You recognise that you apply and (if selected by TOFS) run the Marathon at your own risk in accordance with standard TCS London Marathon regulations and conditions\, which are in addition to these TOFS terms and conditions. 4. You confirm that\, so far as you are aware\, you have no medical or health issues which would mean that it would be unsafe or unwise for you to train for and run a marathon. 5. You confirm that you shall (if selected to run for TOFS using a TOFS Golden bond place) diligently undertake the running training that is appropriate as preparation for a Marathon\, in the months preceding the Marathon. 6. Should you be accepted to run for TOFS using a TOFS Golden bond place\, you agree to pay a registration fee of £50 to TOFS. This is to cover some administration costs\, and TOFS will ask for prompt payment. The fee will count towards your fund-raising pledge. If the fee is not cleared in the TOFS bank account within 21 days of you being sent notification by TOFS that you have been selected\, TOFS may select another person in your place. 7. You confirm that you shall (if allocated a TOFS Golden Bond place) make diligent efforts to contact donors and sponsors and set up fundraising mechanisms so as to raise at least the amount you have suggested for TOFS\, and TOFS shall be the only charity for which you raise funds in this event. You must show at least one month before the Marathon that your fundraising has commenced for instance by setting up a fundraising webpage and receiving at least an initial donation. We ask charity place runners to raise a minimum of 75% of their sponsorship by the event date\, with the remaining fundraising due 30 days after race day. 8. If allocated a TOFS Golden Bond place\, you are pledging to raise your suggested amount for TOFS and agreeing to make up any shortfall yourself or via your own further fundraising efforts to the required minimum of £1\,500 (excluding any Gift Aid\, which is to be in addition to the £1500) to be received by TOFS by the 30th June 2027. 9. All applications to TOFS are subject to a selection process to ensure that Golden Bond places are used to best possible fundraising effect commensurate with safety for all concerned\, at the sole discretion of TOFS. TOFS will wish to give preference in the selection process to runners who are TOFS members or otherwise have a clear connection with the TOF/OA condition: however\, TOFS is not obliged to do so. 10. If allocated a TOFS Golden Bond place\, you agree to inform TOFS as soon as possible in writing\, preferably by email\, should you become unable to take part in the Marathon. Once this is acknowledged by TOFS\, your minimum sponsorship obligation will cease. You understand that\, should you withdraw from your Golden Bond place\, the TOFS registration fee is non-refundable and will be retained by TOFS to cover expenses. 11. You agree that\, should you withdraw from your Golden Bond place\, you will co-operate and correspond with TOFS and the TCS London Marathon organisers such that another runner chosen by TOFS can take your Golden Bond place. At the discretion of TOFS\, and subject to some conditions\, you may be offered a TOFS place in the following year. 12. If you are unable to participate in the TCS London Marathon for any reason\, all donated monies collected by you or donated via third parties (such as fundraising websites) in support of TOFS must be forwarded to TOFS. Money which has been pledged to you on condition of your completing the event must be returned to the individual sponsors\, or donated to TOFS if those sponsors are happy to do so. Monies already received by TOFS will not be refunded. 13. If allocated a TOFS Golden Bond place\, you agree that images taken on the day of the Marathon may be used by TOFS to help promote our fundraising efforts. 14. You understand that\, if allocated a TOFS Golden Bond place\, you will be required to also complete in full (and online) the Official TCS London Marathon Golden Bond registration process before a date yet to be confirmed\, and to confirm to TOFS as soon as you have done so. As this will be done via the TCS London Marathon website\, you understand you will need to have internet access and access to an email address before this date. 15. You understand that\, if allocated a TOFS Golden Bond place\, you will need to “register” in person\, with suitable proof of your identity\, in the days immediately before the Marathon at the TCS London Marathon’s “Expo” designated pre-race registration point in London. 16. You understand that\, if allocated a TOFS Golden Bond place\, you will need to make your own arrangements at your own expense to get to the start line and return from the finish point. 17. You understand that it is your responsibility to take out your own insurance cover for personal accident benefits to whatever level you consider appropriate. By returning this form to TOFS you accept and agree to the terms and conditions listed above.
URL:https://tofs.org.uk/event/tofs-awareness-week-2025/
LOCATION:Various locations
ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2025/01/Awareness-Week-2025-get-ready-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20250228
DTEND;VALUE=DATE:20250301
DTSTAMP:20260430T222115
CREATED:20250210T110913Z
LAST-MODIFIED:20250227T110305Z
UID:10000103-1740700800-1740787199@tofs.org.uk
SUMMARY:Rare Disease Day 2025
DESCRIPTION:Applications open!We have been allocated 4 charity “Golden Bond” places for the 2027 London Marathon race and are looking for runners to join our team. As we must pay the race organisers for each place we take\, we need to feel confident that the people who are selected to run will do so successfully and with minimal risk of injury to themselves. NOTE: The organisers have put in an application to run an extra London Marathon on the day before (Saturday 24th April). If this goes ahead\, there is a possibility that we may be able to access to additional places. Applications close on the 14th June 2026 but may change subject to the number of successful applicants. Note: last year applications closed in May – so please apply as soon as possible to avoid disappointment. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Entry fee:\n£50 				\n				\n				\n				\n									This fee goes towards the admin fees charged by the race organisers but will count towards your fundraising pledge. Payable to TOFS on successful application.  								\n				\n					\n		\n				\n			\n						\n				\n					Fundraising commitment: £1\,500				\n				\n				\n				\n									This is the minimum amount (before Gift Aid) that we would expect a runner to raise. But you don’t have to stop there! TOFS runners really go for it and most will raise over £2\,500 each\, with the average being nearly £3\,500!  								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n			\n			\n\n			\n			\n								\n					About you				\n								\n												\n								First Name							\n														\n											\n								\n												\n								Surname							\n														\n											\n								\n												\n								Email							\n														\n											\n								\n												\n								Mobile							\n								\n\n						\n								\n												\n								Home Address							\n										\n								\n												\n								Postcode							\n														\n											\n								\n												\n								Year of birth							\n														\n											\n								\n												\n								Do you know anyone who was born with OA/TOF?							\n						 Yes\, I was born with OA/TOF Yes\, my child was born with OA/TOF Yes\, a friend/relative was born with OA/TOF No\, I just want to help				\n								\n												\n								Please share with us your reasons for wanting to run the London Marathon for TOFS							\n										\n								\n												\n								Please indicate your running vest size							\n								\n			\n							\n			\n									Ladies - XS (33")\n									Ladies - S (35")\n									Ladies - M (37")\n									Ladies - L (40")\n									Ladies - XL (42")\n									Ladies - XXL (43")\n									_________________\n									Mens - XS (36")\n									Mens - S (38")\n									Mens - M (40")\n									Mens - L (43")\n									Mens - XL (46")\n									Mens - XXL (49")\n							\n		\n						\n								\n												\n								If your application is successful\, we will print your first name on your running vest. If you would rather use another name please let us know here.(Leave blank if using your first name as above.)							\n														\n											\n								\n					About your fundraising experience				\n								\n												\n								Have you raised funds for TOFS before?							\n						 Yes No				\n								\n												\n								If you have raised funds for TOFS\, please give details							\n										\n								\n												\n								Have you raised funds for other charities?							\n						 Yes No				\n								\n												\n								If you have raised funds for other charities\, please give details							\n										\n								\n												\n								How much do you think you can raise for TOFS in total?(Our minimum fundraising commitment for this event is £1\,500)							\n														\n											\n								\n												\n								Please give details of how you to plan to reach this target							\n										\n								\n												\n								Will your employer sponsor you or match your funds? 							\n						 Yes No Don't Know				\n								\n												\n								If YES - please let us know how your employer is likely to contribute to your fundraising							\n										\n								\n												\n								What is your occupation?							\n														\n											\n								\n												\n								Would you be happy to take part in promotional activities?This could include sharing your story on our website or news sources							\n						 Yes No				\n								\n												\n								If successful\, would you like to be included in our WhatsApp team group chat? (Mobile numbers and photos/chats will be visible to all who agree to join.)							\n						 Yes No				\n								\n												\n								Would you like to be added to our supporter mailing list to get occasional updates from TOFS?							\n						 Yes No				\n								\n					About your running experience				\n								\n												\n								Have you run a full or half marathon before?							\n						 Yes No				\n								\n									\n								\n												\n								Please let us know about your running experience. If you have run a full or half marathon before\,  please state which one(s) and time that you achieved. If you haven't\, please state your previous running experience.							\n										\n								\n												\n								Please indicate that you agree to our terms & conditions (shown below).							\n								\n			\n				\n				Yes\, I agree to be bound by the TOFS terms and conditions\, and also those of the TCS London Marathon. 			\n		\n						\n								\n									\n								\n					\n						\n																						Submit\n													\n					\n				\n			\n		\n						\n				\n					\n		\n				\n			\n						\n				\n									TOFS will support you by offering: Someone to talk to: an experienced TOFS runner – who has run the London Marathon in the past;A limited edition TOFS running vest with your name on to wear with pride on your big day;Disposable rain poncho to keep you dry on the way to\, and whilst waiting around at\, the start;Cheering from TOFS members with banners at a couple of pre-nominated spots along the route:  your family and friends are invited to join in at these cheering points; subject to spectators being allowed;TOFS T-shirts or baseball caps for your supporters (limited numbers\, upon request) so they have an amazing day too;Access to the organisers’ pre-race support; and a social media group just for you\, the TOFS runners;Important Notes:Please bear in mind that the organisers demand that you register in person in London during the four days leading up to the Marathon. Registration can be expected to close on the day before the Marathon\, in the afternoon.  Moreover\, you will need to make all your own transport and accommodation arrangements. Note that getting to the start at Greenwich\, early on the Sunday morning\, can present some transport difficulties. TOFS asks you to use the cost-effective Peoples Fundraising website (www.peoplesfundraising.com).  Any Questions? Get in touch or give us a call on 01159 613092. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									TCS London Marathon: TOFS Terms and Conditions – For runners with a TOFS allocated place 1. You confirm that the information on this form is complete and correct\, and that you will be 18 years of age or older on 25 April 2027. 2. You recognise that TOFS will retain for a reasonable period the information that you supply by applying on this form\, whether you are selected for a TOFS Golden Bond place or not. 3. You recognise that you apply and (if selected by TOFS) run the Marathon at your own risk in accordance with standard TCS London Marathon regulations and conditions\, which are in addition to these TOFS terms and conditions. 4. You confirm that\, so far as you are aware\, you have no medical or health issues which would mean that it would be unsafe or unwise for you to train for and run a marathon. 5. You confirm that you shall (if selected to run for TOFS using a TOFS Golden bond place) diligently undertake the running training that is appropriate as preparation for a Marathon\, in the months preceding the Marathon. 6. Should you be accepted to run for TOFS using a TOFS Golden bond place\, you agree to pay a registration fee of £50 to TOFS. This is to cover some administration costs\, and TOFS will ask for prompt payment. The fee will count towards your fund-raising pledge. If the fee is not cleared in the TOFS bank account within 21 days of you being sent notification by TOFS that you have been selected\, TOFS may select another person in your place. 7. You confirm that you shall (if allocated a TOFS Golden Bond place) make diligent efforts to contact donors and sponsors and set up fundraising mechanisms so as to raise at least the amount you have suggested for TOFS\, and TOFS shall be the only charity for which you raise funds in this event. You must show at least one month before the Marathon that your fundraising has commenced for instance by setting up a fundraising webpage and receiving at least an initial donation. We ask charity place runners to raise a minimum of 75% of their sponsorship by the event date\, with the remaining fundraising due 30 days after race day. 8. If allocated a TOFS Golden Bond place\, you are pledging to raise your suggested amount for TOFS and agreeing to make up any shortfall yourself or via your own further fundraising efforts to the required minimum of £1\,500 (excluding any Gift Aid\, which is to be in addition to the £1500) to be received by TOFS by the 30th June 2027. 9. All applications to TOFS are subject to a selection process to ensure that Golden Bond places are used to best possible fundraising effect commensurate with safety for all concerned\, at the sole discretion of TOFS. TOFS will wish to give preference in the selection process to runners who are TOFS members or otherwise have a clear connection with the TOF/OA condition: however\, TOFS is not obliged to do so. 10. If allocated a TOFS Golden Bond place\, you agree to inform TOFS as soon as possible in writing\, preferably by email\, should you become unable to take part in the Marathon. Once this is acknowledged by TOFS\, your minimum sponsorship obligation will cease. You understand that\, should you withdraw from your Golden Bond place\, the TOFS registration fee is non-refundable and will be retained by TOFS to cover expenses. 11. You agree that\, should you withdraw from your Golden Bond place\, you will co-operate and correspond with TOFS and the TCS London Marathon organisers such that another runner chosen by TOFS can take your Golden Bond place. At the discretion of TOFS\, and subject to some conditions\, you may be offered a TOFS place in the following year. 12. If you are unable to participate in the TCS London Marathon for any reason\, all donated monies collected by you or donated via third parties (such as fundraising websites) in support of TOFS must be forwarded to TOFS. Money which has been pledged to you on condition of your completing the event must be returned to the individual sponsors\, or donated to TOFS if those sponsors are happy to do so. Monies already received by TOFS will not be refunded. 13. If allocated a TOFS Golden Bond place\, you agree that images taken on the day of the Marathon may be used by TOFS to help promote our fundraising efforts. 14. You understand that\, if allocated a TOFS Golden Bond place\, you will be required to also complete in full (and online) the Official TCS London Marathon Golden Bond registration process before a date yet to be confirmed\, and to confirm to TOFS as soon as you have done so. As this will be done via the TCS London Marathon website\, you understand you will need to have internet access and access to an email address before this date. 15. You understand that\, if allocated a TOFS Golden Bond place\, you will need to “register” in person\, with suitable proof of your identity\, in the days immediately before the Marathon at the TCS London Marathon’s “Expo” designated pre-race registration point in London. 16. You understand that\, if allocated a TOFS Golden Bond place\, you will need to make your own arrangements at your own expense to get to the start line and return from the finish point. 17. You understand that it is your responsibility to take out your own insurance cover for personal accident benefits to whatever level you consider appropriate. By returning this form to TOFS you accept and agree to the terms and conditions listed above.
URL:https://tofs.org.uk/event/rare-disease-day-2025/
LOCATION:Various locations
ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2022/12/rare-disease-day.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20250301T121500
DTEND;TZID=Europe/London:20250301T163000
DTSTAMP:20260430T222115
CREATED:20241116T120046Z
LAST-MODIFIED:20250225T164055Z
UID:10000090-1740831300-1740846600@tofs.org.uk
SUMMARY:TOFS Seminar 2025
DESCRIPTION:Applications open!We have been allocated 4 charity “Golden Bond” places for the 2027 London Marathon race and are looking for runners to join our team. As we must pay the race organisers for each place we take\, we need to feel confident that the people who are selected to run will do so successfully and with minimal risk of injury to themselves. NOTE: The organisers have put in an application to run an extra London Marathon on the day before (Saturday 24th April). If this goes ahead\, there is a possibility that we may be able to access to additional places. Applications close on the 14th June 2026 but may change subject to the number of successful applicants. Note: last year applications closed in May – so please apply as soon as possible to avoid disappointment. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Entry fee:\n£50 				\n				\n				\n				\n									This fee goes towards the admin fees charged by the race organisers but will count towards your fundraising pledge. Payable to TOFS on successful application.  								\n				\n					\n		\n				\n			\n						\n				\n					Fundraising commitment: £1\,500				\n				\n				\n				\n									This is the minimum amount (before Gift Aid) that we would expect a runner to raise. But you don’t have to stop there! TOFS runners really go for it and most will raise over £2\,500 each\, with the average being nearly £3\,500!  								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n			\n			\n\n			\n			\n								\n					About you				\n								\n												\n								First Name							\n														\n											\n								\n												\n								Surname							\n														\n											\n								\n												\n								Email							\n														\n											\n								\n												\n								Mobile							\n								\n\n						\n								\n												\n								Home Address							\n										\n								\n												\n								Postcode							\n														\n											\n								\n												\n								Year of birth							\n														\n											\n								\n												\n								Do you know anyone who was born with OA/TOF?							\n						 Yes\, I was born with OA/TOF Yes\, my child was born with OA/TOF Yes\, a friend/relative was born with OA/TOF No\, I just want to help				\n								\n												\n								Please share with us your reasons for wanting to run the London Marathon for TOFS							\n										\n								\n												\n								Please indicate your running vest size							\n								\n			\n							\n			\n									Ladies - XS (33")\n									Ladies - S (35")\n									Ladies - M (37")\n									Ladies - L (40")\n									Ladies - XL (42")\n									Ladies - XXL (43")\n									_________________\n									Mens - XS (36")\n									Mens - S (38")\n									Mens - M (40")\n									Mens - L (43")\n									Mens - XL (46")\n									Mens - XXL (49")\n							\n		\n						\n								\n												\n								If your application is successful\, we will print your first name on your running vest. If you would rather use another name please let us know here.(Leave blank if using your first name as above.)							\n														\n											\n								\n					About your fundraising experience				\n								\n												\n								Have you raised funds for TOFS before?							\n						 Yes No				\n								\n												\n								If you have raised funds for TOFS\, please give details							\n										\n								\n												\n								Have you raised funds for other charities?							\n						 Yes No				\n								\n												\n								If you have raised funds for other charities\, please give details							\n										\n								\n												\n								How much do you think you can raise for TOFS in total?(Our minimum fundraising commitment for this event is £1\,500)							\n														\n											\n								\n												\n								Please give details of how you to plan to reach this target							\n										\n								\n												\n								Will your employer sponsor you or match your funds? 							\n						 Yes No Don't Know				\n								\n												\n								If YES - please let us know how your employer is likely to contribute to your fundraising							\n										\n								\n												\n								What is your occupation?							\n														\n											\n								\n												\n								Would you be happy to take part in promotional activities?This could include sharing your story on our website or news sources							\n						 Yes No				\n								\n												\n								If successful\, would you like to be included in our WhatsApp team group chat? (Mobile numbers and photos/chats will be visible to all who agree to join.)							\n						 Yes No				\n								\n												\n								Would you like to be added to our supporter mailing list to get occasional updates from TOFS?							\n						 Yes No				\n								\n					About your running experience				\n								\n												\n								Have you run a full or half marathon before?							\n						 Yes No				\n								\n									\n								\n												\n								Please let us know about your running experience. If you have run a full or half marathon before\,  please state which one(s) and time that you achieved. If you haven't\, please state your previous running experience.							\n										\n								\n												\n								Please indicate that you agree to our terms & conditions (shown below).							\n								\n			\n				\n				Yes\, I agree to be bound by the TOFS terms and conditions\, and also those of the TCS London Marathon. 			\n		\n						\n								\n									\n								\n					\n						\n																						Submit\n													\n					\n				\n			\n		\n						\n				\n					\n		\n				\n			\n						\n				\n									TOFS will support you by offering: Someone to talk to: an experienced TOFS runner – who has run the London Marathon in the past;A limited edition TOFS running vest with your name on to wear with pride on your big day;Disposable rain poncho to keep you dry on the way to\, and whilst waiting around at\, the start;Cheering from TOFS members with banners at a couple of pre-nominated spots along the route:  your family and friends are invited to join in at these cheering points; subject to spectators being allowed;TOFS T-shirts or baseball caps for your supporters (limited numbers\, upon request) so they have an amazing day too;Access to the organisers’ pre-race support; and a social media group just for you\, the TOFS runners;Important Notes:Please bear in mind that the organisers demand that you register in person in London during the four days leading up to the Marathon. Registration can be expected to close on the day before the Marathon\, in the afternoon.  Moreover\, you will need to make all your own transport and accommodation arrangements. Note that getting to the start at Greenwich\, early on the Sunday morning\, can present some transport difficulties. TOFS asks you to use the cost-effective Peoples Fundraising website (www.peoplesfundraising.com).  Any Questions? Get in touch or give us a call on 01159 613092. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									TCS London Marathon: TOFS Terms and Conditions – For runners with a TOFS allocated place 1. You confirm that the information on this form is complete and correct\, and that you will be 18 years of age or older on 25 April 2027. 2. You recognise that TOFS will retain for a reasonable period the information that you supply by applying on this form\, whether you are selected for a TOFS Golden Bond place or not. 3. You recognise that you apply and (if selected by TOFS) run the Marathon at your own risk in accordance with standard TCS London Marathon regulations and conditions\, which are in addition to these TOFS terms and conditions. 4. You confirm that\, so far as you are aware\, you have no medical or health issues which would mean that it would be unsafe or unwise for you to train for and run a marathon. 5. You confirm that you shall (if selected to run for TOFS using a TOFS Golden bond place) diligently undertake the running training that is appropriate as preparation for a Marathon\, in the months preceding the Marathon. 6. Should you be accepted to run for TOFS using a TOFS Golden bond place\, you agree to pay a registration fee of £50 to TOFS. This is to cover some administration costs\, and TOFS will ask for prompt payment. The fee will count towards your fund-raising pledge. If the fee is not cleared in the TOFS bank account within 21 days of you being sent notification by TOFS that you have been selected\, TOFS may select another person in your place. 7. You confirm that you shall (if allocated a TOFS Golden Bond place) make diligent efforts to contact donors and sponsors and set up fundraising mechanisms so as to raise at least the amount you have suggested for TOFS\, and TOFS shall be the only charity for which you raise funds in this event. You must show at least one month before the Marathon that your fundraising has commenced for instance by setting up a fundraising webpage and receiving at least an initial donation. We ask charity place runners to raise a minimum of 75% of their sponsorship by the event date\, with the remaining fundraising due 30 days after race day. 8. If allocated a TOFS Golden Bond place\, you are pledging to raise your suggested amount for TOFS and agreeing to make up any shortfall yourself or via your own further fundraising efforts to the required minimum of £1\,500 (excluding any Gift Aid\, which is to be in addition to the £1500) to be received by TOFS by the 30th June 2027. 9. All applications to TOFS are subject to a selection process to ensure that Golden Bond places are used to best possible fundraising effect commensurate with safety for all concerned\, at the sole discretion of TOFS. TOFS will wish to give preference in the selection process to runners who are TOFS members or otherwise have a clear connection with the TOF/OA condition: however\, TOFS is not obliged to do so. 10. If allocated a TOFS Golden Bond place\, you agree to inform TOFS as soon as possible in writing\, preferably by email\, should you become unable to take part in the Marathon. Once this is acknowledged by TOFS\, your minimum sponsorship obligation will cease. You understand that\, should you withdraw from your Golden Bond place\, the TOFS registration fee is non-refundable and will be retained by TOFS to cover expenses. 11. You agree that\, should you withdraw from your Golden Bond place\, you will co-operate and correspond with TOFS and the TCS London Marathon organisers such that another runner chosen by TOFS can take your Golden Bond place. At the discretion of TOFS\, and subject to some conditions\, you may be offered a TOFS place in the following year. 12. If you are unable to participate in the TCS London Marathon for any reason\, all donated monies collected by you or donated via third parties (such as fundraising websites) in support of TOFS must be forwarded to TOFS. Money which has been pledged to you on condition of your completing the event must be returned to the individual sponsors\, or donated to TOFS if those sponsors are happy to do so. Monies already received by TOFS will not be refunded. 13. If allocated a TOFS Golden Bond place\, you agree that images taken on the day of the Marathon may be used by TOFS to help promote our fundraising efforts. 14. You understand that\, if allocated a TOFS Golden Bond place\, you will be required to also complete in full (and online) the Official TCS London Marathon Golden Bond registration process before a date yet to be confirmed\, and to confirm to TOFS as soon as you have done so. As this will be done via the TCS London Marathon website\, you understand you will need to have internet access and access to an email address before this date. 15. You understand that\, if allocated a TOFS Golden Bond place\, you will need to “register” in person\, with suitable proof of your identity\, in the days immediately before the Marathon at the TCS London Marathon’s “Expo” designated pre-race registration point in London. 16. You understand that\, if allocated a TOFS Golden Bond place\, you will need to make your own arrangements at your own expense to get to the start line and return from the finish point. 17. You understand that it is your responsibility to take out your own insurance cover for personal accident benefits to whatever level you consider appropriate. By returning this form to TOFS you accept and agree to the terms and conditions listed above.
URL:https://tofs.org.uk/event/tofs-seminar-2025/
LOCATION:St Michaels Centre\,\, The Green\, Stoke Gifford\, Bristol\, BS34 8PD\, United Kingdom
CATEGORIES:Adult TOF,Parents & Carers,Professional,Support
ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2024/08/tofs-logo-tiny-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20250305T150000
DTEND;TZID=Europe/London:20250305T160000
DTSTAMP:20260430T222115
CREATED:20250303T122830Z
LAST-MODIFIED:20250303T122915Z
UID:10000105-1741186800-1741190400@tofs.org.uk
SUMMARY:ERNICA: A traumatic Diagnosis - the (early) parent-child interaction in (rare) chronic paediatric diseases
DESCRIPTION:Applications open!We have been allocated 4 charity “Golden Bond” places for the 2027 London Marathon race and are looking for runners to join our team. As we must pay the race organisers for each place we take\, we need to feel confident that the people who are selected to run will do so successfully and with minimal risk of injury to themselves. NOTE: The organisers have put in an application to run an extra London Marathon on the day before (Saturday 24th April). If this goes ahead\, there is a possibility that we may be able to access to additional places. Applications close on the 14th June 2026 but may change subject to the number of successful applicants. Note: last year applications closed in May – so please apply as soon as possible to avoid disappointment. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Entry fee:\n£50 				\n				\n				\n				\n									This fee goes towards the admin fees charged by the race organisers but will count towards your fundraising pledge. Payable to TOFS on successful application.  								\n				\n					\n		\n				\n			\n						\n				\n					Fundraising commitment: £1\,500				\n				\n				\n				\n									This is the minimum amount (before Gift Aid) that we would expect a runner to raise. But you don’t have to stop there! TOFS runners really go for it and most will raise over £2\,500 each\, with the average being nearly £3\,500!  								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n			\n			\n\n			\n			\n								\n					About you				\n								\n												\n								First Name							\n														\n											\n								\n												\n								Surname							\n														\n											\n								\n												\n								Email							\n														\n											\n								\n												\n								Mobile							\n								\n\n						\n								\n												\n								Home Address							\n										\n								\n												\n								Postcode							\n														\n											\n								\n												\n								Year of birth							\n														\n											\n								\n												\n								Do you know anyone who was born with OA/TOF?							\n						 Yes\, I was born with OA/TOF Yes\, my child was born with OA/TOF Yes\, a friend/relative was born with OA/TOF No\, I just want to help				\n								\n												\n								Please share with us your reasons for wanting to run the London Marathon for TOFS							\n										\n								\n												\n								Please indicate your running vest size							\n								\n			\n							\n			\n									Ladies - XS (33")\n									Ladies - S (35")\n									Ladies - M (37")\n									Ladies - L (40")\n									Ladies - XL (42")\n									Ladies - XXL (43")\n									_________________\n									Mens - XS (36")\n									Mens - S (38")\n									Mens - M (40")\n									Mens - L (43")\n									Mens - XL (46")\n									Mens - XXL (49")\n							\n		\n						\n								\n												\n								If your application is successful\, we will print your first name on your running vest. If you would rather use another name please let us know here.(Leave blank if using your first name as above.)							\n														\n											\n								\n					About your fundraising experience				\n								\n												\n								Have you raised funds for TOFS before?							\n						 Yes No				\n								\n												\n								If you have raised funds for TOFS\, please give details							\n										\n								\n												\n								Have you raised funds for other charities?							\n						 Yes No				\n								\n												\n								If you have raised funds for other charities\, please give details							\n										\n								\n												\n								How much do you think you can raise for TOFS in total?(Our minimum fundraising commitment for this event is £1\,500)							\n														\n											\n								\n												\n								Please give details of how you to plan to reach this target							\n										\n								\n												\n								Will your employer sponsor you or match your funds? 							\n						 Yes No Don't Know				\n								\n												\n								If YES - please let us know how your employer is likely to contribute to your fundraising							\n										\n								\n												\n								What is your occupation?							\n														\n											\n								\n												\n								Would you be happy to take part in promotional activities?This could include sharing your story on our website or news sources							\n						 Yes No				\n								\n												\n								If successful\, would you like to be included in our WhatsApp team group chat? (Mobile numbers and photos/chats will be visible to all who agree to join.)							\n						 Yes No				\n								\n												\n								Would you like to be added to our supporter mailing list to get occasional updates from TOFS?							\n						 Yes No				\n								\n					About your running experience				\n								\n												\n								Have you run a full or half marathon before?							\n						 Yes No				\n								\n									\n								\n												\n								Please let us know about your running experience. If you have run a full or half marathon before\,  please state which one(s) and time that you achieved. If you haven't\, please state your previous running experience.							\n										\n								\n												\n								Please indicate that you agree to our terms & conditions (shown below).							\n								\n			\n				\n				Yes\, I agree to be bound by the TOFS terms and conditions\, and also those of the TCS London Marathon. 			\n		\n						\n								\n									\n								\n					\n						\n																						Submit\n													\n					\n				\n			\n		\n						\n				\n					\n		\n				\n			\n						\n				\n									TOFS will support you by offering: Someone to talk to: an experienced TOFS runner – who has run the London Marathon in the past;A limited edition TOFS running vest with your name on to wear with pride on your big day;Disposable rain poncho to keep you dry on the way to\, and whilst waiting around at\, the start;Cheering from TOFS members with banners at a couple of pre-nominated spots along the route:  your family and friends are invited to join in at these cheering points; subject to spectators being allowed;TOFS T-shirts or baseball caps for your supporters (limited numbers\, upon request) so they have an amazing day too;Access to the organisers’ pre-race support; and a social media group just for you\, the TOFS runners;Important Notes:Please bear in mind that the organisers demand that you register in person in London during the four days leading up to the Marathon. Registration can be expected to close on the day before the Marathon\, in the afternoon.  Moreover\, you will need to make all your own transport and accommodation arrangements. Note that getting to the start at Greenwich\, early on the Sunday morning\, can present some transport difficulties. TOFS asks you to use the cost-effective Peoples Fundraising website (www.peoplesfundraising.com).  Any Questions? Get in touch or give us a call on 01159 613092. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									TCS London Marathon: TOFS Terms and Conditions – For runners with a TOFS allocated place 1. You confirm that the information on this form is complete and correct\, and that you will be 18 years of age or older on 25 April 2027. 2. You recognise that TOFS will retain for a reasonable period the information that you supply by applying on this form\, whether you are selected for a TOFS Golden Bond place or not. 3. You recognise that you apply and (if selected by TOFS) run the Marathon at your own risk in accordance with standard TCS London Marathon regulations and conditions\, which are in addition to these TOFS terms and conditions. 4. You confirm that\, so far as you are aware\, you have no medical or health issues which would mean that it would be unsafe or unwise for you to train for and run a marathon. 5. You confirm that you shall (if selected to run for TOFS using a TOFS Golden bond place) diligently undertake the running training that is appropriate as preparation for a Marathon\, in the months preceding the Marathon. 6. Should you be accepted to run for TOFS using a TOFS Golden bond place\, you agree to pay a registration fee of £50 to TOFS. This is to cover some administration costs\, and TOFS will ask for prompt payment. The fee will count towards your fund-raising pledge. If the fee is not cleared in the TOFS bank account within 21 days of you being sent notification by TOFS that you have been selected\, TOFS may select another person in your place. 7. You confirm that you shall (if allocated a TOFS Golden Bond place) make diligent efforts to contact donors and sponsors and set up fundraising mechanisms so as to raise at least the amount you have suggested for TOFS\, and TOFS shall be the only charity for which you raise funds in this event. You must show at least one month before the Marathon that your fundraising has commenced for instance by setting up a fundraising webpage and receiving at least an initial donation. We ask charity place runners to raise a minimum of 75% of their sponsorship by the event date\, with the remaining fundraising due 30 days after race day. 8. If allocated a TOFS Golden Bond place\, you are pledging to raise your suggested amount for TOFS and agreeing to make up any shortfall yourself or via your own further fundraising efforts to the required minimum of £1\,500 (excluding any Gift Aid\, which is to be in addition to the £1500) to be received by TOFS by the 30th June 2027. 9. All applications to TOFS are subject to a selection process to ensure that Golden Bond places are used to best possible fundraising effect commensurate with safety for all concerned\, at the sole discretion of TOFS. TOFS will wish to give preference in the selection process to runners who are TOFS members or otherwise have a clear connection with the TOF/OA condition: however\, TOFS is not obliged to do so. 10. If allocated a TOFS Golden Bond place\, you agree to inform TOFS as soon as possible in writing\, preferably by email\, should you become unable to take part in the Marathon. Once this is acknowledged by TOFS\, your minimum sponsorship obligation will cease. You understand that\, should you withdraw from your Golden Bond place\, the TOFS registration fee is non-refundable and will be retained by TOFS to cover expenses. 11. You agree that\, should you withdraw from your Golden Bond place\, you will co-operate and correspond with TOFS and the TCS London Marathon organisers such that another runner chosen by TOFS can take your Golden Bond place. At the discretion of TOFS\, and subject to some conditions\, you may be offered a TOFS place in the following year. 12. If you are unable to participate in the TCS London Marathon for any reason\, all donated monies collected by you or donated via third parties (such as fundraising websites) in support of TOFS must be forwarded to TOFS. Money which has been pledged to you on condition of your completing the event must be returned to the individual sponsors\, or donated to TOFS if those sponsors are happy to do so. Monies already received by TOFS will not be refunded. 13. If allocated a TOFS Golden Bond place\, you agree that images taken on the day of the Marathon may be used by TOFS to help promote our fundraising efforts. 14. You understand that\, if allocated a TOFS Golden Bond place\, you will be required to also complete in full (and online) the Official TCS London Marathon Golden Bond registration process before a date yet to be confirmed\, and to confirm to TOFS as soon as you have done so. As this will be done via the TCS London Marathon website\, you understand you will need to have internet access and access to an email address before this date. 15. You understand that\, if allocated a TOFS Golden Bond place\, you will need to “register” in person\, with suitable proof of your identity\, in the days immediately before the Marathon at the TCS London Marathon’s “Expo” designated pre-race registration point in London. 16. You understand that\, if allocated a TOFS Golden Bond place\, you will need to make your own arrangements at your own expense to get to the start line and return from the finish point. 17. You understand that it is your responsibility to take out your own insurance cover for personal accident benefits to whatever level you consider appropriate. By returning this form to TOFS you accept and agree to the terms and conditions listed above.
URL:https://tofs.org.uk/event/ernica-a-traumatic-diagnosis-the-early-parent-child-interaction-in-rare-chronic-paediatric-diseases/
LOCATION:Online
CATEGORIES:Parents & Carers,Professional,Support
ATTACH;FMTTYPE=image/jpeg:https://tofs.org.uk/wp-content/uploads/2022/11/EARNICA_400x400.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20250306T200000
DTEND;TZID=Europe/London:20250306T210000
DTSTAMP:20260430T222115
CREATED:20241216T112514Z
LAST-MODIFIED:20250115T110032Z
UID:10000098-1741291200-1741294800@tofs.org.uk
SUMMARY:Virtual meet-up for adults born with OA/TOF
DESCRIPTION:Applications open!We have been allocated 4 charity “Golden Bond” places for the 2027 London Marathon race and are looking for runners to join our team. As we must pay the race organisers for each place we take\, we need to feel confident that the people who are selected to run will do so successfully and with minimal risk of injury to themselves. NOTE: The organisers have put in an application to run an extra London Marathon on the day before (Saturday 24th April). If this goes ahead\, there is a possibility that we may be able to access to additional places. Applications close on the 14th June 2026 but may change subject to the number of successful applicants. Note: last year applications closed in May – so please apply as soon as possible to avoid disappointment. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Entry fee:\n£50 				\n				\n				\n				\n									This fee goes towards the admin fees charged by the race organisers but will count towards your fundraising pledge. Payable to TOFS on successful application.  								\n				\n					\n		\n				\n			\n						\n				\n					Fundraising commitment: £1\,500				\n				\n				\n				\n									This is the minimum amount (before Gift Aid) that we would expect a runner to raise. But you don’t have to stop there! TOFS runners really go for it and most will raise over £2\,500 each\, with the average being nearly £3\,500!  								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n			\n			\n\n			\n			\n								\n					About you				\n								\n												\n								First Name							\n														\n											\n								\n												\n								Surname							\n														\n											\n								\n												\n								Email							\n														\n											\n								\n												\n								Mobile							\n								\n\n						\n								\n												\n								Home Address							\n										\n								\n												\n								Postcode							\n														\n											\n								\n												\n								Year of birth							\n														\n											\n								\n												\n								Do you know anyone who was born with OA/TOF?							\n						 Yes\, I was born with OA/TOF Yes\, my child was born with OA/TOF Yes\, a friend/relative was born with OA/TOF No\, I just want to help				\n								\n												\n								Please share with us your reasons for wanting to run the London Marathon for TOFS							\n										\n								\n												\n								Please indicate your running vest size							\n								\n			\n							\n			\n									Ladies - XS (33")\n									Ladies - S (35")\n									Ladies - M (37")\n									Ladies - L (40")\n									Ladies - XL (42")\n									Ladies - XXL (43")\n									_________________\n									Mens - XS (36")\n									Mens - S (38")\n									Mens - M (40")\n									Mens - L (43")\n									Mens - XL (46")\n									Mens - XXL (49")\n							\n		\n						\n								\n												\n								If your application is successful\, we will print your first name on your running vest. If you would rather use another name please let us know here.(Leave blank if using your first name as above.)							\n														\n											\n								\n					About your fundraising experience				\n								\n												\n								Have you raised funds for TOFS before?							\n						 Yes No				\n								\n												\n								If you have raised funds for TOFS\, please give details							\n										\n								\n												\n								Have you raised funds for other charities?							\n						 Yes No				\n								\n												\n								If you have raised funds for other charities\, please give details							\n										\n								\n												\n								How much do you think you can raise for TOFS in total?(Our minimum fundraising commitment for this event is £1\,500)							\n														\n											\n								\n												\n								Please give details of how you to plan to reach this target							\n										\n								\n												\n								Will your employer sponsor you or match your funds? 							\n						 Yes No Don't Know				\n								\n												\n								If YES - please let us know how your employer is likely to contribute to your fundraising							\n										\n								\n												\n								What is your occupation?							\n														\n											\n								\n												\n								Would you be happy to take part in promotional activities?This could include sharing your story on our website or news sources							\n						 Yes No				\n								\n												\n								If successful\, would you like to be included in our WhatsApp team group chat? (Mobile numbers and photos/chats will be visible to all who agree to join.)							\n						 Yes No				\n								\n												\n								Would you like to be added to our supporter mailing list to get occasional updates from TOFS?							\n						 Yes No				\n								\n					About your running experience				\n								\n												\n								Have you run a full or half marathon before?							\n						 Yes No				\n								\n									\n								\n												\n								Please let us know about your running experience. If you have run a full or half marathon before\,  please state which one(s) and time that you achieved. If you haven't\, please state your previous running experience.							\n										\n								\n												\n								Please indicate that you agree to our terms & conditions (shown below).							\n								\n			\n				\n				Yes\, I agree to be bound by the TOFS terms and conditions\, and also those of the TCS London Marathon. 			\n		\n						\n								\n									\n								\n					\n						\n																						Submit\n													\n					\n				\n			\n		\n						\n				\n					\n		\n				\n			\n						\n				\n									TOFS will support you by offering: Someone to talk to: an experienced TOFS runner – who has run the London Marathon in the past;A limited edition TOFS running vest with your name on to wear with pride on your big day;Disposable rain poncho to keep you dry on the way to\, and whilst waiting around at\, the start;Cheering from TOFS members with banners at a couple of pre-nominated spots along the route:  your family and friends are invited to join in at these cheering points; subject to spectators being allowed;TOFS T-shirts or baseball caps for your supporters (limited numbers\, upon request) so they have an amazing day too;Access to the organisers’ pre-race support; and a social media group just for you\, the TOFS runners;Important Notes:Please bear in mind that the organisers demand that you register in person in London during the four days leading up to the Marathon. Registration can be expected to close on the day before the Marathon\, in the afternoon.  Moreover\, you will need to make all your own transport and accommodation arrangements. Note that getting to the start at Greenwich\, early on the Sunday morning\, can present some transport difficulties. TOFS asks you to use the cost-effective Peoples Fundraising website (www.peoplesfundraising.com).  Any Questions? Get in touch or give us a call on 01159 613092. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									TCS London Marathon: TOFS Terms and Conditions – For runners with a TOFS allocated place 1. You confirm that the information on this form is complete and correct\, and that you will be 18 years of age or older on 25 April 2027. 2. You recognise that TOFS will retain for a reasonable period the information that you supply by applying on this form\, whether you are selected for a TOFS Golden Bond place or not. 3. You recognise that you apply and (if selected by TOFS) run the Marathon at your own risk in accordance with standard TCS London Marathon regulations and conditions\, which are in addition to these TOFS terms and conditions. 4. You confirm that\, so far as you are aware\, you have no medical or health issues which would mean that it would be unsafe or unwise for you to train for and run a marathon. 5. You confirm that you shall (if selected to run for TOFS using a TOFS Golden bond place) diligently undertake the running training that is appropriate as preparation for a Marathon\, in the months preceding the Marathon. 6. Should you be accepted to run for TOFS using a TOFS Golden bond place\, you agree to pay a registration fee of £50 to TOFS. This is to cover some administration costs\, and TOFS will ask for prompt payment. The fee will count towards your fund-raising pledge. If the fee is not cleared in the TOFS bank account within 21 days of you being sent notification by TOFS that you have been selected\, TOFS may select another person in your place. 7. You confirm that you shall (if allocated a TOFS Golden Bond place) make diligent efforts to contact donors and sponsors and set up fundraising mechanisms so as to raise at least the amount you have suggested for TOFS\, and TOFS shall be the only charity for which you raise funds in this event. You must show at least one month before the Marathon that your fundraising has commenced for instance by setting up a fundraising webpage and receiving at least an initial donation. We ask charity place runners to raise a minimum of 75% of their sponsorship by the event date\, with the remaining fundraising due 30 days after race day. 8. If allocated a TOFS Golden Bond place\, you are pledging to raise your suggested amount for TOFS and agreeing to make up any shortfall yourself or via your own further fundraising efforts to the required minimum of £1\,500 (excluding any Gift Aid\, which is to be in addition to the £1500) to be received by TOFS by the 30th June 2027. 9. All applications to TOFS are subject to a selection process to ensure that Golden Bond places are used to best possible fundraising effect commensurate with safety for all concerned\, at the sole discretion of TOFS. TOFS will wish to give preference in the selection process to runners who are TOFS members or otherwise have a clear connection with the TOF/OA condition: however\, TOFS is not obliged to do so. 10. If allocated a TOFS Golden Bond place\, you agree to inform TOFS as soon as possible in writing\, preferably by email\, should you become unable to take part in the Marathon. Once this is acknowledged by TOFS\, your minimum sponsorship obligation will cease. You understand that\, should you withdraw from your Golden Bond place\, the TOFS registration fee is non-refundable and will be retained by TOFS to cover expenses. 11. You agree that\, should you withdraw from your Golden Bond place\, you will co-operate and correspond with TOFS and the TCS London Marathon organisers such that another runner chosen by TOFS can take your Golden Bond place. At the discretion of TOFS\, and subject to some conditions\, you may be offered a TOFS place in the following year. 12. If you are unable to participate in the TCS London Marathon for any reason\, all donated monies collected by you or donated via third parties (such as fundraising websites) in support of TOFS must be forwarded to TOFS. Money which has been pledged to you on condition of your completing the event must be returned to the individual sponsors\, or donated to TOFS if those sponsors are happy to do so. Monies already received by TOFS will not be refunded. 13. If allocated a TOFS Golden Bond place\, you agree that images taken on the day of the Marathon may be used by TOFS to help promote our fundraising efforts. 14. You understand that\, if allocated a TOFS Golden Bond place\, you will be required to also complete in full (and online) the Official TCS London Marathon Golden Bond registration process before a date yet to be confirmed\, and to confirm to TOFS as soon as you have done so. As this will be done via the TCS London Marathon website\, you understand you will need to have internet access and access to an email address before this date. 15. You understand that\, if allocated a TOFS Golden Bond place\, you will need to “register” in person\, with suitable proof of your identity\, in the days immediately before the Marathon at the TCS London Marathon’s “Expo” designated pre-race registration point in London. 16. You understand that\, if allocated a TOFS Golden Bond place\, you will need to make your own arrangements at your own expense to get to the start line and return from the finish point. 17. You understand that it is your responsibility to take out your own insurance cover for personal accident benefits to whatever level you consider appropriate. By returning this form to TOFS you accept and agree to the terms and conditions listed above.
URL:https://tofs.org.uk/event/virtual-meet-up-for-adults-born-with-oa-tof-12/
LOCATION:Online
CATEGORIES:Adult TOF
ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2024/12/cuppa-and-chat-march-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20250312T183000
DTEND;TZID=Europe/London:20250312T193000
DTSTAMP:20260430T222115
CREATED:20241212T113557Z
LAST-MODIFIED:20250227T171103Z
UID:10000095-1741804200-1741807800@tofs.org.uk
SUMMARY:Live Q&A: Managing medications effectively
DESCRIPTION:Applications open!We have been allocated 4 charity “Golden Bond” places for the 2027 London Marathon race and are looking for runners to join our team. As we must pay the race organisers for each place we take\, we need to feel confident that the people who are selected to run will do so successfully and with minimal risk of injury to themselves. NOTE: The organisers have put in an application to run an extra London Marathon on the day before (Saturday 24th April). If this goes ahead\, there is a possibility that we may be able to access to additional places. Applications close on the 14th June 2026 but may change subject to the number of successful applicants. Note: last year applications closed in May – so please apply as soon as possible to avoid disappointment. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Entry fee:\n£50 				\n				\n				\n				\n									This fee goes towards the admin fees charged by the race organisers but will count towards your fundraising pledge. Payable to TOFS on successful application.  								\n				\n					\n		\n				\n			\n						\n				\n					Fundraising commitment: £1\,500				\n				\n				\n				\n									This is the minimum amount (before Gift Aid) that we would expect a runner to raise. But you don’t have to stop there! TOFS runners really go for it and most will raise over £2\,500 each\, with the average being nearly £3\,500!  								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n			\n			\n\n			\n			\n								\n					About you				\n								\n												\n								First Name							\n														\n											\n								\n												\n								Surname							\n														\n											\n								\n												\n								Email							\n														\n											\n								\n												\n								Mobile							\n								\n\n						\n								\n												\n								Home Address							\n										\n								\n												\n								Postcode							\n														\n											\n								\n												\n								Year of birth							\n														\n											\n								\n												\n								Do you know anyone who was born with OA/TOF?							\n						 Yes\, I was born with OA/TOF Yes\, my child was born with OA/TOF Yes\, a friend/relative was born with OA/TOF No\, I just want to help				\n								\n												\n								Please share with us your reasons for wanting to run the London Marathon for TOFS							\n										\n								\n												\n								Please indicate your running vest size							\n								\n			\n							\n			\n									Ladies - XS (33")\n									Ladies - S (35")\n									Ladies - M (37")\n									Ladies - L (40")\n									Ladies - XL (42")\n									Ladies - XXL (43")\n									_________________\n									Mens - XS (36")\n									Mens - S (38")\n									Mens - M (40")\n									Mens - L (43")\n									Mens - XL (46")\n									Mens - XXL (49")\n							\n		\n						\n								\n												\n								If your application is successful\, we will print your first name on your running vest. If you would rather use another name please let us know here.(Leave blank if using your first name as above.)							\n														\n											\n								\n					About your fundraising experience				\n								\n												\n								Have you raised funds for TOFS before?							\n						 Yes No				\n								\n												\n								If you have raised funds for TOFS\, please give details							\n										\n								\n												\n								Have you raised funds for other charities?							\n						 Yes No				\n								\n												\n								If you have raised funds for other charities\, please give details							\n										\n								\n												\n								How much do you think you can raise for TOFS in total?(Our minimum fundraising commitment for this event is £1\,500)							\n														\n											\n								\n												\n								Please give details of how you to plan to reach this target							\n										\n								\n												\n								Will your employer sponsor you or match your funds? 							\n						 Yes No Don't Know				\n								\n												\n								If YES - please let us know how your employer is likely to contribute to your fundraising							\n										\n								\n												\n								What is your occupation?							\n														\n											\n								\n												\n								Would you be happy to take part in promotional activities?This could include sharing your story on our website or news sources							\n						 Yes No				\n								\n												\n								If successful\, would you like to be included in our WhatsApp team group chat? (Mobile numbers and photos/chats will be visible to all who agree to join.)							\n						 Yes No				\n								\n												\n								Would you like to be added to our supporter mailing list to get occasional updates from TOFS?							\n						 Yes No				\n								\n					About your running experience				\n								\n												\n								Have you run a full or half marathon before?							\n						 Yes No				\n								\n									\n								\n												\n								Please let us know about your running experience. If you have run a full or half marathon before\,  please state which one(s) and time that you achieved. If you haven't\, please state your previous running experience.							\n										\n								\n												\n								Please indicate that you agree to our terms & conditions (shown below).							\n								\n			\n				\n				Yes\, I agree to be bound by the TOFS terms and conditions\, and also those of the TCS London Marathon. 			\n		\n						\n								\n									\n								\n					\n						\n																						Submit\n													\n					\n				\n			\n		\n						\n				\n					\n		\n				\n			\n						\n				\n									TOFS will support you by offering: Someone to talk to: an experienced TOFS runner – who has run the London Marathon in the past;A limited edition TOFS running vest with your name on to wear with pride on your big day;Disposable rain poncho to keep you dry on the way to\, and whilst waiting around at\, the start;Cheering from TOFS members with banners at a couple of pre-nominated spots along the route:  your family and friends are invited to join in at these cheering points; subject to spectators being allowed;TOFS T-shirts or baseball caps for your supporters (limited numbers\, upon request) so they have an amazing day too;Access to the organisers’ pre-race support; and a social media group just for you\, the TOFS runners;Important Notes:Please bear in mind that the organisers demand that you register in person in London during the four days leading up to the Marathon. Registration can be expected to close on the day before the Marathon\, in the afternoon.  Moreover\, you will need to make all your own transport and accommodation arrangements. Note that getting to the start at Greenwich\, early on the Sunday morning\, can present some transport difficulties. TOFS asks you to use the cost-effective Peoples Fundraising website (www.peoplesfundraising.com).  Any Questions? Get in touch or give us a call on 01159 613092. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									TCS London Marathon: TOFS Terms and Conditions – For runners with a TOFS allocated place 1. You confirm that the information on this form is complete and correct\, and that you will be 18 years of age or older on 25 April 2027. 2. You recognise that TOFS will retain for a reasonable period the information that you supply by applying on this form\, whether you are selected for a TOFS Golden Bond place or not. 3. You recognise that you apply and (if selected by TOFS) run the Marathon at your own risk in accordance with standard TCS London Marathon regulations and conditions\, which are in addition to these TOFS terms and conditions. 4. You confirm that\, so far as you are aware\, you have no medical or health issues which would mean that it would be unsafe or unwise for you to train for and run a marathon. 5. You confirm that you shall (if selected to run for TOFS using a TOFS Golden bond place) diligently undertake the running training that is appropriate as preparation for a Marathon\, in the months preceding the Marathon. 6. Should you be accepted to run for TOFS using a TOFS Golden bond place\, you agree to pay a registration fee of £50 to TOFS. This is to cover some administration costs\, and TOFS will ask for prompt payment. The fee will count towards your fund-raising pledge. If the fee is not cleared in the TOFS bank account within 21 days of you being sent notification by TOFS that you have been selected\, TOFS may select another person in your place. 7. You confirm that you shall (if allocated a TOFS Golden Bond place) make diligent efforts to contact donors and sponsors and set up fundraising mechanisms so as to raise at least the amount you have suggested for TOFS\, and TOFS shall be the only charity for which you raise funds in this event. You must show at least one month before the Marathon that your fundraising has commenced for instance by setting up a fundraising webpage and receiving at least an initial donation. We ask charity place runners to raise a minimum of 75% of their sponsorship by the event date\, with the remaining fundraising due 30 days after race day. 8. If allocated a TOFS Golden Bond place\, you are pledging to raise your suggested amount for TOFS and agreeing to make up any shortfall yourself or via your own further fundraising efforts to the required minimum of £1\,500 (excluding any Gift Aid\, which is to be in addition to the £1500) to be received by TOFS by the 30th June 2027. 9. All applications to TOFS are subject to a selection process to ensure that Golden Bond places are used to best possible fundraising effect commensurate with safety for all concerned\, at the sole discretion of TOFS. TOFS will wish to give preference in the selection process to runners who are TOFS members or otherwise have a clear connection with the TOF/OA condition: however\, TOFS is not obliged to do so. 10. If allocated a TOFS Golden Bond place\, you agree to inform TOFS as soon as possible in writing\, preferably by email\, should you become unable to take part in the Marathon. Once this is acknowledged by TOFS\, your minimum sponsorship obligation will cease. You understand that\, should you withdraw from your Golden Bond place\, the TOFS registration fee is non-refundable and will be retained by TOFS to cover expenses. 11. You agree that\, should you withdraw from your Golden Bond place\, you will co-operate and correspond with TOFS and the TCS London Marathon organisers such that another runner chosen by TOFS can take your Golden Bond place. At the discretion of TOFS\, and subject to some conditions\, you may be offered a TOFS place in the following year. 12. If you are unable to participate in the TCS London Marathon for any reason\, all donated monies collected by you or donated via third parties (such as fundraising websites) in support of TOFS must be forwarded to TOFS. Money which has been pledged to you on condition of your completing the event must be returned to the individual sponsors\, or donated to TOFS if those sponsors are happy to do so. Monies already received by TOFS will not be refunded. 13. If allocated a TOFS Golden Bond place\, you agree that images taken on the day of the Marathon may be used by TOFS to help promote our fundraising efforts. 14. You understand that\, if allocated a TOFS Golden Bond place\, you will be required to also complete in full (and online) the Official TCS London Marathon Golden Bond registration process before a date yet to be confirmed\, and to confirm to TOFS as soon as you have done so. As this will be done via the TCS London Marathon website\, you understand you will need to have internet access and access to an email address before this date. 15. You understand that\, if allocated a TOFS Golden Bond place\, you will need to “register” in person\, with suitable proof of your identity\, in the days immediately before the Marathon at the TCS London Marathon’s “Expo” designated pre-race registration point in London. 16. You understand that\, if allocated a TOFS Golden Bond place\, you will need to make your own arrangements at your own expense to get to the start line and return from the finish point. 17. You understand that it is your responsibility to take out your own insurance cover for personal accident benefits to whatever level you consider appropriate. By returning this form to TOFS you accept and agree to the terms and conditions listed above.
URL:https://tofs.org.uk/event/live-qa-managing-medications-effectively/
LOCATION:Online
CATEGORIES:Parents & Carers
ATTACH;FMTTYPE=image/jpeg:https://tofs.org.uk/wp-content/uploads/2024/12/Chew-Adverts-6.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20250403T200000
DTEND;TZID=Europe/London:20250403T210000
DTSTAMP:20260430T222115
CREATED:20250310T162433Z
LAST-MODIFIED:20250310T162500Z
UID:10000106-1743710400-1743714000@tofs.org.uk
SUMMARY:Virtual meet-up for adults born with OA/TOF
DESCRIPTION:Applications open!We have been allocated 4 charity “Golden Bond” places for the 2027 London Marathon race and are looking for runners to join our team. As we must pay the race organisers for each place we take\, we need to feel confident that the people who are selected to run will do so successfully and with minimal risk of injury to themselves. NOTE: The organisers have put in an application to run an extra London Marathon on the day before (Saturday 24th April). If this goes ahead\, there is a possibility that we may be able to access to additional places. Applications close on the 14th June 2026 but may change subject to the number of successful applicants. Note: last year applications closed in May – so please apply as soon as possible to avoid disappointment. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Entry fee:\n£50 				\n				\n				\n				\n									This fee goes towards the admin fees charged by the race organisers but will count towards your fundraising pledge. Payable to TOFS on successful application.  								\n				\n					\n		\n				\n			\n						\n				\n					Fundraising commitment: £1\,500				\n				\n				\n				\n									This is the minimum amount (before Gift Aid) that we would expect a runner to raise. But you don’t have to stop there! TOFS runners really go for it and most will raise over £2\,500 each\, with the average being nearly £3\,500!  								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n			\n			\n\n			\n			\n								\n					About you				\n								\n												\n								First Name							\n														\n											\n								\n												\n								Surname							\n														\n											\n								\n												\n								Email							\n														\n											\n								\n												\n								Mobile							\n								\n\n						\n								\n												\n								Home Address							\n										\n								\n												\n								Postcode							\n														\n											\n								\n												\n								Year of birth							\n														\n											\n								\n												\n								Do you know anyone who was born with OA/TOF?							\n						 Yes\, I was born with OA/TOF Yes\, my child was born with OA/TOF Yes\, a friend/relative was born with OA/TOF No\, I just want to help				\n								\n												\n								Please share with us your reasons for wanting to run the London Marathon for TOFS							\n										\n								\n												\n								Please indicate your running vest size							\n								\n			\n							\n			\n									Ladies - XS (33")\n									Ladies - S (35")\n									Ladies - M (37")\n									Ladies - L (40")\n									Ladies - XL (42")\n									Ladies - XXL (43")\n									_________________\n									Mens - XS (36")\n									Mens - S (38")\n									Mens - M (40")\n									Mens - L (43")\n									Mens - XL (46")\n									Mens - XXL (49")\n							\n		\n						\n								\n												\n								If your application is successful\, we will print your first name on your running vest. If you would rather use another name please let us know here.(Leave blank if using your first name as above.)							\n														\n											\n								\n					About your fundraising experience				\n								\n												\n								Have you raised funds for TOFS before?							\n						 Yes No				\n								\n												\n								If you have raised funds for TOFS\, please give details							\n										\n								\n												\n								Have you raised funds for other charities?							\n						 Yes No				\n								\n												\n								If you have raised funds for other charities\, please give details							\n										\n								\n												\n								How much do you think you can raise for TOFS in total?(Our minimum fundraising commitment for this event is £1\,500)							\n														\n											\n								\n												\n								Please give details of how you to plan to reach this target							\n										\n								\n												\n								Will your employer sponsor you or match your funds? 							\n						 Yes No Don't Know				\n								\n												\n								If YES - please let us know how your employer is likely to contribute to your fundraising							\n										\n								\n												\n								What is your occupation?							\n														\n											\n								\n												\n								Would you be happy to take part in promotional activities?This could include sharing your story on our website or news sources							\n						 Yes No				\n								\n												\n								If successful\, would you like to be included in our WhatsApp team group chat? (Mobile numbers and photos/chats will be visible to all who agree to join.)							\n						 Yes No				\n								\n												\n								Would you like to be added to our supporter mailing list to get occasional updates from TOFS?							\n						 Yes No				\n								\n					About your running experience				\n								\n												\n								Have you run a full or half marathon before?							\n						 Yes No				\n								\n									\n								\n												\n								Please let us know about your running experience. If you have run a full or half marathon before\,  please state which one(s) and time that you achieved. If you haven't\, please state your previous running experience.							\n										\n								\n												\n								Please indicate that you agree to our terms & conditions (shown below).							\n								\n			\n				\n				Yes\, I agree to be bound by the TOFS terms and conditions\, and also those of the TCS London Marathon. 			\n		\n						\n								\n									\n								\n					\n						\n																						Submit\n													\n					\n				\n			\n		\n						\n				\n					\n		\n				\n			\n						\n				\n									TOFS will support you by offering: Someone to talk to: an experienced TOFS runner – who has run the London Marathon in the past;A limited edition TOFS running vest with your name on to wear with pride on your big day;Disposable rain poncho to keep you dry on the way to\, and whilst waiting around at\, the start;Cheering from TOFS members with banners at a couple of pre-nominated spots along the route:  your family and friends are invited to join in at these cheering points; subject to spectators being allowed;TOFS T-shirts or baseball caps for your supporters (limited numbers\, upon request) so they have an amazing day too;Access to the organisers’ pre-race support; and a social media group just for you\, the TOFS runners;Important Notes:Please bear in mind that the organisers demand that you register in person in London during the four days leading up to the Marathon. Registration can be expected to close on the day before the Marathon\, in the afternoon.  Moreover\, you will need to make all your own transport and accommodation arrangements. Note that getting to the start at Greenwich\, early on the Sunday morning\, can present some transport difficulties. TOFS asks you to use the cost-effective Peoples Fundraising website (www.peoplesfundraising.com).  Any Questions? Get in touch or give us a call on 01159 613092. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									TCS London Marathon: TOFS Terms and Conditions – For runners with a TOFS allocated place 1. You confirm that the information on this form is complete and correct\, and that you will be 18 years of age or older on 25 April 2027. 2. You recognise that TOFS will retain for a reasonable period the information that you supply by applying on this form\, whether you are selected for a TOFS Golden Bond place or not. 3. You recognise that you apply and (if selected by TOFS) run the Marathon at your own risk in accordance with standard TCS London Marathon regulations and conditions\, which are in addition to these TOFS terms and conditions. 4. You confirm that\, so far as you are aware\, you have no medical or health issues which would mean that it would be unsafe or unwise for you to train for and run a marathon. 5. You confirm that you shall (if selected to run for TOFS using a TOFS Golden bond place) diligently undertake the running training that is appropriate as preparation for a Marathon\, in the months preceding the Marathon. 6. Should you be accepted to run for TOFS using a TOFS Golden bond place\, you agree to pay a registration fee of £50 to TOFS. This is to cover some administration costs\, and TOFS will ask for prompt payment. The fee will count towards your fund-raising pledge. If the fee is not cleared in the TOFS bank account within 21 days of you being sent notification by TOFS that you have been selected\, TOFS may select another person in your place. 7. You confirm that you shall (if allocated a TOFS Golden Bond place) make diligent efforts to contact donors and sponsors and set up fundraising mechanisms so as to raise at least the amount you have suggested for TOFS\, and TOFS shall be the only charity for which you raise funds in this event. You must show at least one month before the Marathon that your fundraising has commenced for instance by setting up a fundraising webpage and receiving at least an initial donation. We ask charity place runners to raise a minimum of 75% of their sponsorship by the event date\, with the remaining fundraising due 30 days after race day. 8. If allocated a TOFS Golden Bond place\, you are pledging to raise your suggested amount for TOFS and agreeing to make up any shortfall yourself or via your own further fundraising efforts to the required minimum of £1\,500 (excluding any Gift Aid\, which is to be in addition to the £1500) to be received by TOFS by the 30th June 2027. 9. All applications to TOFS are subject to a selection process to ensure that Golden Bond places are used to best possible fundraising effect commensurate with safety for all concerned\, at the sole discretion of TOFS. TOFS will wish to give preference in the selection process to runners who are TOFS members or otherwise have a clear connection with the TOF/OA condition: however\, TOFS is not obliged to do so. 10. If allocated a TOFS Golden Bond place\, you agree to inform TOFS as soon as possible in writing\, preferably by email\, should you become unable to take part in the Marathon. Once this is acknowledged by TOFS\, your minimum sponsorship obligation will cease. You understand that\, should you withdraw from your Golden Bond place\, the TOFS registration fee is non-refundable and will be retained by TOFS to cover expenses. 11. You agree that\, should you withdraw from your Golden Bond place\, you will co-operate and correspond with TOFS and the TCS London Marathon organisers such that another runner chosen by TOFS can take your Golden Bond place. At the discretion of TOFS\, and subject to some conditions\, you may be offered a TOFS place in the following year. 12. If you are unable to participate in the TCS London Marathon for any reason\, all donated monies collected by you or donated via third parties (such as fundraising websites) in support of TOFS must be forwarded to TOFS. Money which has been pledged to you on condition of your completing the event must be returned to the individual sponsors\, or donated to TOFS if those sponsors are happy to do so. Monies already received by TOFS will not be refunded. 13. If allocated a TOFS Golden Bond place\, you agree that images taken on the day of the Marathon may be used by TOFS to help promote our fundraising efforts. 14. You understand that\, if allocated a TOFS Golden Bond place\, you will be required to also complete in full (and online) the Official TCS London Marathon Golden Bond registration process before a date yet to be confirmed\, and to confirm to TOFS as soon as you have done so. As this will be done via the TCS London Marathon website\, you understand you will need to have internet access and access to an email address before this date. 15. You understand that\, if allocated a TOFS Golden Bond place\, you will need to “register” in person\, with suitable proof of your identity\, in the days immediately before the Marathon at the TCS London Marathon’s “Expo” designated pre-race registration point in London. 16. You understand that\, if allocated a TOFS Golden Bond place\, you will need to make your own arrangements at your own expense to get to the start line and return from the finish point. 17. You understand that it is your responsibility to take out your own insurance cover for personal accident benefits to whatever level you consider appropriate. By returning this form to TOFS you accept and agree to the terms and conditions listed above.
URL:https://tofs.org.uk/event/virtual-meet-up-for-adults-born-with-oa-tof/
LOCATION:Online
CATEGORIES:Adult TOF
ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2025/03/cuppa-and-chat-april2.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20250408T200000
DTEND;TZID=Europe/London:20250408T210000
DTSTAMP:20260430T222115
CREATED:20250214T111646Z
LAST-MODIFIED:20250327T084714Z
UID:10000104-1744142400-1744146000@tofs.org.uk
SUMMARY:Talk with TLCs: Top tips for travelling with your child born with OA/TOF
DESCRIPTION:Applications open!We have been allocated 4 charity “Golden Bond” places for the 2027 London Marathon race and are looking for runners to join our team. As we must pay the race organisers for each place we take\, we need to feel confident that the people who are selected to run will do so successfully and with minimal risk of injury to themselves. NOTE: The organisers have put in an application to run an extra London Marathon on the day before (Saturday 24th April). If this goes ahead\, there is a possibility that we may be able to access to additional places. Applications close on the 14th June 2026 but may change subject to the number of successful applicants. Note: last year applications closed in May – so please apply as soon as possible to avoid disappointment. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Entry fee:\n£50 				\n				\n				\n				\n									This fee goes towards the admin fees charged by the race organisers but will count towards your fundraising pledge. Payable to TOFS on successful application.  								\n				\n					\n		\n				\n			\n						\n				\n					Fundraising commitment: £1\,500				\n				\n				\n				\n									This is the minimum amount (before Gift Aid) that we would expect a runner to raise. But you don’t have to stop there! TOFS runners really go for it and most will raise over £2\,500 each\, with the average being nearly £3\,500!  								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n			\n			\n\n			\n			\n								\n					About you				\n								\n												\n								First Name							\n														\n											\n								\n												\n								Surname							\n														\n											\n								\n												\n								Email							\n														\n											\n								\n												\n								Mobile							\n								\n\n						\n								\n												\n								Home Address							\n										\n								\n												\n								Postcode							\n														\n											\n								\n												\n								Year of birth							\n														\n											\n								\n												\n								Do you know anyone who was born with OA/TOF?							\n						 Yes\, I was born with OA/TOF Yes\, my child was born with OA/TOF Yes\, a friend/relative was born with OA/TOF No\, I just want to help				\n								\n												\n								Please share with us your reasons for wanting to run the London Marathon for TOFS							\n										\n								\n												\n								Please indicate your running vest size							\n								\n			\n							\n			\n									Ladies - XS (33")\n									Ladies - S (35")\n									Ladies - M (37")\n									Ladies - L (40")\n									Ladies - XL (42")\n									Ladies - XXL (43")\n									_________________\n									Mens - XS (36")\n									Mens - S (38")\n									Mens - M (40")\n									Mens - L (43")\n									Mens - XL (46")\n									Mens - XXL (49")\n							\n		\n						\n								\n												\n								If your application is successful\, we will print your first name on your running vest. If you would rather use another name please let us know here.(Leave blank if using your first name as above.)							\n														\n											\n								\n					About your fundraising experience				\n								\n												\n								Have you raised funds for TOFS before?							\n						 Yes No				\n								\n												\n								If you have raised funds for TOFS\, please give details							\n										\n								\n												\n								Have you raised funds for other charities?							\n						 Yes No				\n								\n												\n								If you have raised funds for other charities\, please give details							\n										\n								\n												\n								How much do you think you can raise for TOFS in total?(Our minimum fundraising commitment for this event is £1\,500)							\n														\n											\n								\n												\n								Please give details of how you to plan to reach this target							\n										\n								\n												\n								Will your employer sponsor you or match your funds? 							\n						 Yes No Don't Know				\n								\n												\n								If YES - please let us know how your employer is likely to contribute to your fundraising							\n										\n								\n												\n								What is your occupation?							\n														\n											\n								\n												\n								Would you be happy to take part in promotional activities?This could include sharing your story on our website or news sources							\n						 Yes No				\n								\n												\n								If successful\, would you like to be included in our WhatsApp team group chat? (Mobile numbers and photos/chats will be visible to all who agree to join.)							\n						 Yes No				\n								\n												\n								Would you like to be added to our supporter mailing list to get occasional updates from TOFS?							\n						 Yes No				\n								\n					About your running experience				\n								\n												\n								Have you run a full or half marathon before?							\n						 Yes No				\n								\n									\n								\n												\n								Please let us know about your running experience. If you have run a full or half marathon before\,  please state which one(s) and time that you achieved. If you haven't\, please state your previous running experience.							\n										\n								\n												\n								Please indicate that you agree to our terms & conditions (shown below).							\n								\n			\n				\n				Yes\, I agree to be bound by the TOFS terms and conditions\, and also those of the TCS London Marathon. 			\n		\n						\n								\n									\n								\n					\n						\n																						Submit\n													\n					\n				\n			\n		\n						\n				\n					\n		\n				\n			\n						\n				\n									TOFS will support you by offering: Someone to talk to: an experienced TOFS runner – who has run the London Marathon in the past;A limited edition TOFS running vest with your name on to wear with pride on your big day;Disposable rain poncho to keep you dry on the way to\, and whilst waiting around at\, the start;Cheering from TOFS members with banners at a couple of pre-nominated spots along the route:  your family and friends are invited to join in at these cheering points; subject to spectators being allowed;TOFS T-shirts or baseball caps for your supporters (limited numbers\, upon request) so they have an amazing day too;Access to the organisers’ pre-race support; and a social media group just for you\, the TOFS runners;Important Notes:Please bear in mind that the organisers demand that you register in person in London during the four days leading up to the Marathon. Registration can be expected to close on the day before the Marathon\, in the afternoon.  Moreover\, you will need to make all your own transport and accommodation arrangements. Note that getting to the start at Greenwich\, early on the Sunday morning\, can present some transport difficulties. TOFS asks you to use the cost-effective Peoples Fundraising website (www.peoplesfundraising.com).  Any Questions? Get in touch or give us a call on 01159 613092. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									TCS London Marathon: TOFS Terms and Conditions – For runners with a TOFS allocated place 1. You confirm that the information on this form is complete and correct\, and that you will be 18 years of age or older on 25 April 2027. 2. You recognise that TOFS will retain for a reasonable period the information that you supply by applying on this form\, whether you are selected for a TOFS Golden Bond place or not. 3. You recognise that you apply and (if selected by TOFS) run the Marathon at your own risk in accordance with standard TCS London Marathon regulations and conditions\, which are in addition to these TOFS terms and conditions. 4. You confirm that\, so far as you are aware\, you have no medical or health issues which would mean that it would be unsafe or unwise for you to train for and run a marathon. 5. You confirm that you shall (if selected to run for TOFS using a TOFS Golden bond place) diligently undertake the running training that is appropriate as preparation for a Marathon\, in the months preceding the Marathon. 6. Should you be accepted to run for TOFS using a TOFS Golden bond place\, you agree to pay a registration fee of £50 to TOFS. This is to cover some administration costs\, and TOFS will ask for prompt payment. The fee will count towards your fund-raising pledge. If the fee is not cleared in the TOFS bank account within 21 days of you being sent notification by TOFS that you have been selected\, TOFS may select another person in your place. 7. You confirm that you shall (if allocated a TOFS Golden Bond place) make diligent efforts to contact donors and sponsors and set up fundraising mechanisms so as to raise at least the amount you have suggested for TOFS\, and TOFS shall be the only charity for which you raise funds in this event. You must show at least one month before the Marathon that your fundraising has commenced for instance by setting up a fundraising webpage and receiving at least an initial donation. We ask charity place runners to raise a minimum of 75% of their sponsorship by the event date\, with the remaining fundraising due 30 days after race day. 8. If allocated a TOFS Golden Bond place\, you are pledging to raise your suggested amount for TOFS and agreeing to make up any shortfall yourself or via your own further fundraising efforts to the required minimum of £1\,500 (excluding any Gift Aid\, which is to be in addition to the £1500) to be received by TOFS by the 30th June 2027. 9. All applications to TOFS are subject to a selection process to ensure that Golden Bond places are used to best possible fundraising effect commensurate with safety for all concerned\, at the sole discretion of TOFS. TOFS will wish to give preference in the selection process to runners who are TOFS members or otherwise have a clear connection with the TOF/OA condition: however\, TOFS is not obliged to do so. 10. If allocated a TOFS Golden Bond place\, you agree to inform TOFS as soon as possible in writing\, preferably by email\, should you become unable to take part in the Marathon. Once this is acknowledged by TOFS\, your minimum sponsorship obligation will cease. You understand that\, should you withdraw from your Golden Bond place\, the TOFS registration fee is non-refundable and will be retained by TOFS to cover expenses. 11. You agree that\, should you withdraw from your Golden Bond place\, you will co-operate and correspond with TOFS and the TCS London Marathon organisers such that another runner chosen by TOFS can take your Golden Bond place. At the discretion of TOFS\, and subject to some conditions\, you may be offered a TOFS place in the following year. 12. If you are unable to participate in the TCS London Marathon for any reason\, all donated monies collected by you or donated via third parties (such as fundraising websites) in support of TOFS must be forwarded to TOFS. Money which has been pledged to you on condition of your completing the event must be returned to the individual sponsors\, or donated to TOFS if those sponsors are happy to do so. Monies already received by TOFS will not be refunded. 13. If allocated a TOFS Golden Bond place\, you agree that images taken on the day of the Marathon may be used by TOFS to help promote our fundraising efforts. 14. You understand that\, if allocated a TOFS Golden Bond place\, you will be required to also complete in full (and online) the Official TCS London Marathon Golden Bond registration process before a date yet to be confirmed\, and to confirm to TOFS as soon as you have done so. As this will be done via the TCS London Marathon website\, you understand you will need to have internet access and access to an email address before this date. 15. You understand that\, if allocated a TOFS Golden Bond place\, you will need to “register” in person\, with suitable proof of your identity\, in the days immediately before the Marathon at the TCS London Marathon’s “Expo” designated pre-race registration point in London. 16. You understand that\, if allocated a TOFS Golden Bond place\, you will need to make your own arrangements at your own expense to get to the start line and return from the finish point. 17. You understand that it is your responsibility to take out your own insurance cover for personal accident benefits to whatever level you consider appropriate. By returning this form to TOFS you accept and agree to the terms and conditions listed above.
URL:https://tofs.org.uk/event/talk-with-tlcs-top-tips-for-travelling-with-your-child-born-with-oa-tof/
LOCATION:Online
CATEGORIES:Parents & Carers,Support
ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2025/02/Talk-with-TLCs-Travelling-tips.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20250424T190000
DTEND;TZID=Europe/London:20250424T200000
DTSTAMP:20260430T222115
CREATED:20241126T113022Z
LAST-MODIFIED:20250404T091840Z
UID:10000092-1745521200-1745524800@tofs.org.uk
SUMMARY:TOFS Annual General Meeting
DESCRIPTION:Applications open!We have been allocated 4 charity “Golden Bond” places for the 2027 London Marathon race and are looking for runners to join our team. As we must pay the race organisers for each place we take\, we need to feel confident that the people who are selected to run will do so successfully and with minimal risk of injury to themselves. NOTE: The organisers have put in an application to run an extra London Marathon on the day before (Saturday 24th April). If this goes ahead\, there is a possibility that we may be able to access to additional places. Applications close on the 14th June 2026 but may change subject to the number of successful applicants. Note: last year applications closed in May – so please apply as soon as possible to avoid disappointment. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Entry fee:\n£50 				\n				\n				\n				\n									This fee goes towards the admin fees charged by the race organisers but will count towards your fundraising pledge. Payable to TOFS on successful application.  								\n				\n					\n		\n				\n			\n						\n				\n					Fundraising commitment: £1\,500				\n				\n				\n				\n									This is the minimum amount (before Gift Aid) that we would expect a runner to raise. But you don’t have to stop there! TOFS runners really go for it and most will raise over £2\,500 each\, with the average being nearly £3\,500!  								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n			\n			\n\n			\n			\n								\n					About you				\n								\n												\n								First Name							\n														\n											\n								\n												\n								Surname							\n														\n											\n								\n												\n								Email							\n														\n											\n								\n												\n								Mobile							\n								\n\n						\n								\n												\n								Home Address							\n										\n								\n												\n								Postcode							\n														\n											\n								\n												\n								Year of birth							\n														\n											\n								\n												\n								Do you know anyone who was born with OA/TOF?							\n						 Yes\, I was born with OA/TOF Yes\, my child was born with OA/TOF Yes\, a friend/relative was born with OA/TOF No\, I just want to help				\n								\n												\n								Please share with us your reasons for wanting to run the London Marathon for TOFS							\n										\n								\n												\n								Please indicate your running vest size							\n								\n			\n							\n			\n									Ladies - XS (33")\n									Ladies - S (35")\n									Ladies - M (37")\n									Ladies - L (40")\n									Ladies - XL (42")\n									Ladies - XXL (43")\n									_________________\n									Mens - XS (36")\n									Mens - S (38")\n									Mens - M (40")\n									Mens - L (43")\n									Mens - XL (46")\n									Mens - XXL (49")\n							\n		\n						\n								\n												\n								If your application is successful\, we will print your first name on your running vest. If you would rather use another name please let us know here.(Leave blank if using your first name as above.)							\n														\n											\n								\n					About your fundraising experience				\n								\n												\n								Have you raised funds for TOFS before?							\n						 Yes No				\n								\n												\n								If you have raised funds for TOFS\, please give details							\n										\n								\n												\n								Have you raised funds for other charities?							\n						 Yes No				\n								\n												\n								If you have raised funds for other charities\, please give details							\n										\n								\n												\n								How much do you think you can raise for TOFS in total?(Our minimum fundraising commitment for this event is £1\,500)							\n														\n											\n								\n												\n								Please give details of how you to plan to reach this target							\n										\n								\n												\n								Will your employer sponsor you or match your funds? 							\n						 Yes No Don't Know				\n								\n												\n								If YES - please let us know how your employer is likely to contribute to your fundraising							\n										\n								\n												\n								What is your occupation?							\n														\n											\n								\n												\n								Would you be happy to take part in promotional activities?This could include sharing your story on our website or news sources							\n						 Yes No				\n								\n												\n								If successful\, would you like to be included in our WhatsApp team group chat? (Mobile numbers and photos/chats will be visible to all who agree to join.)							\n						 Yes No				\n								\n												\n								Would you like to be added to our supporter mailing list to get occasional updates from TOFS?							\n						 Yes No				\n								\n					About your running experience				\n								\n												\n								Have you run a full or half marathon before?							\n						 Yes No				\n								\n									\n								\n												\n								Please let us know about your running experience. If you have run a full or half marathon before\,  please state which one(s) and time that you achieved. If you haven't\, please state your previous running experience.							\n										\n								\n												\n								Please indicate that you agree to our terms & conditions (shown below).							\n								\n			\n				\n				Yes\, I agree to be bound by the TOFS terms and conditions\, and also those of the TCS London Marathon. 			\n		\n						\n								\n									\n								\n					\n						\n																						Submit\n													\n					\n				\n			\n		\n						\n				\n					\n		\n				\n			\n						\n				\n									TOFS will support you by offering: Someone to talk to: an experienced TOFS runner – who has run the London Marathon in the past;A limited edition TOFS running vest with your name on to wear with pride on your big day;Disposable rain poncho to keep you dry on the way to\, and whilst waiting around at\, the start;Cheering from TOFS members with banners at a couple of pre-nominated spots along the route:  your family and friends are invited to join in at these cheering points; subject to spectators being allowed;TOFS T-shirts or baseball caps for your supporters (limited numbers\, upon request) so they have an amazing day too;Access to the organisers’ pre-race support; and a social media group just for you\, the TOFS runners;Important Notes:Please bear in mind that the organisers demand that you register in person in London during the four days leading up to the Marathon. Registration can be expected to close on the day before the Marathon\, in the afternoon.  Moreover\, you will need to make all your own transport and accommodation arrangements. Note that getting to the start at Greenwich\, early on the Sunday morning\, can present some transport difficulties. TOFS asks you to use the cost-effective Peoples Fundraising website (www.peoplesfundraising.com).  Any Questions? Get in touch or give us a call on 01159 613092. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									TCS London Marathon: TOFS Terms and Conditions – For runners with a TOFS allocated place 1. You confirm that the information on this form is complete and correct\, and that you will be 18 years of age or older on 25 April 2027. 2. You recognise that TOFS will retain for a reasonable period the information that you supply by applying on this form\, whether you are selected for a TOFS Golden Bond place or not. 3. You recognise that you apply and (if selected by TOFS) run the Marathon at your own risk in accordance with standard TCS London Marathon regulations and conditions\, which are in addition to these TOFS terms and conditions. 4. You confirm that\, so far as you are aware\, you have no medical or health issues which would mean that it would be unsafe or unwise for you to train for and run a marathon. 5. You confirm that you shall (if selected to run for TOFS using a TOFS Golden bond place) diligently undertake the running training that is appropriate as preparation for a Marathon\, in the months preceding the Marathon. 6. Should you be accepted to run for TOFS using a TOFS Golden bond place\, you agree to pay a registration fee of £50 to TOFS. This is to cover some administration costs\, and TOFS will ask for prompt payment. The fee will count towards your fund-raising pledge. If the fee is not cleared in the TOFS bank account within 21 days of you being sent notification by TOFS that you have been selected\, TOFS may select another person in your place. 7. You confirm that you shall (if allocated a TOFS Golden Bond place) make diligent efforts to contact donors and sponsors and set up fundraising mechanisms so as to raise at least the amount you have suggested for TOFS\, and TOFS shall be the only charity for which you raise funds in this event. You must show at least one month before the Marathon that your fundraising has commenced for instance by setting up a fundraising webpage and receiving at least an initial donation. We ask charity place runners to raise a minimum of 75% of their sponsorship by the event date\, with the remaining fundraising due 30 days after race day. 8. If allocated a TOFS Golden Bond place\, you are pledging to raise your suggested amount for TOFS and agreeing to make up any shortfall yourself or via your own further fundraising efforts to the required minimum of £1\,500 (excluding any Gift Aid\, which is to be in addition to the £1500) to be received by TOFS by the 30th June 2027. 9. All applications to TOFS are subject to a selection process to ensure that Golden Bond places are used to best possible fundraising effect commensurate with safety for all concerned\, at the sole discretion of TOFS. TOFS will wish to give preference in the selection process to runners who are TOFS members or otherwise have a clear connection with the TOF/OA condition: however\, TOFS is not obliged to do so. 10. If allocated a TOFS Golden Bond place\, you agree to inform TOFS as soon as possible in writing\, preferably by email\, should you become unable to take part in the Marathon. Once this is acknowledged by TOFS\, your minimum sponsorship obligation will cease. You understand that\, should you withdraw from your Golden Bond place\, the TOFS registration fee is non-refundable and will be retained by TOFS to cover expenses. 11. You agree that\, should you withdraw from your Golden Bond place\, you will co-operate and correspond with TOFS and the TCS London Marathon organisers such that another runner chosen by TOFS can take your Golden Bond place. At the discretion of TOFS\, and subject to some conditions\, you may be offered a TOFS place in the following year. 12. If you are unable to participate in the TCS London Marathon for any reason\, all donated monies collected by you or donated via third parties (such as fundraising websites) in support of TOFS must be forwarded to TOFS. Money which has been pledged to you on condition of your completing the event must be returned to the individual sponsors\, or donated to TOFS if those sponsors are happy to do so. Monies already received by TOFS will not be refunded. 13. If allocated a TOFS Golden Bond place\, you agree that images taken on the day of the Marathon may be used by TOFS to help promote our fundraising efforts. 14. You understand that\, if allocated a TOFS Golden Bond place\, you will be required to also complete in full (and online) the Official TCS London Marathon Golden Bond registration process before a date yet to be confirmed\, and to confirm to TOFS as soon as you have done so. As this will be done via the TCS London Marathon website\, you understand you will need to have internet access and access to an email address before this date. 15. You understand that\, if allocated a TOFS Golden Bond place\, you will need to “register” in person\, with suitable proof of your identity\, in the days immediately before the Marathon at the TCS London Marathon’s “Expo” designated pre-race registration point in London. 16. You understand that\, if allocated a TOFS Golden Bond place\, you will need to make your own arrangements at your own expense to get to the start line and return from the finish point. 17. You understand that it is your responsibility to take out your own insurance cover for personal accident benefits to whatever level you consider appropriate. By returning this form to TOFS you accept and agree to the terms and conditions listed above.
URL:https://tofs.org.uk/event/tofs-annual-general-meeting/
LOCATION:Online
CATEGORIES:TOFS
ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2020/05/tofs-logo-no-text-500x500-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20250427
DTEND;VALUE=DATE:20250428
DTSTAMP:20260430T222115
CREATED:20240421T160414Z
LAST-MODIFIED:20250427T164618Z
UID:10000065-1745712000-1745798399@tofs.org.uk
SUMMARY:London Marathon 2025
DESCRIPTION:Applications open!We have been allocated 4 charity “Golden Bond” places for the 2027 London Marathon race and are looking for runners to join our team. As we must pay the race organisers for each place we take\, we need to feel confident that the people who are selected to run will do so successfully and with minimal risk of injury to themselves. NOTE: The organisers have put in an application to run an extra London Marathon on the day before (Saturday 24th April). If this goes ahead\, there is a possibility that we may be able to access to additional places. Applications close on the 14th June 2026 but may change subject to the number of successful applicants. Note: last year applications closed in May – so please apply as soon as possible to avoid disappointment. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Entry fee:\n£50 				\n				\n				\n				\n									This fee goes towards the admin fees charged by the race organisers but will count towards your fundraising pledge. Payable to TOFS on successful application.  								\n				\n					\n		\n				\n			\n						\n				\n					Fundraising commitment: £1\,500				\n				\n				\n				\n									This is the minimum amount (before Gift Aid) that we would expect a runner to raise. But you don’t have to stop there! TOFS runners really go for it and most will raise over £2\,500 each\, with the average being nearly £3\,500!  								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n			\n			\n\n			\n			\n								\n					About you				\n								\n												\n								First Name							\n														\n											\n								\n												\n								Surname							\n														\n											\n								\n												\n								Email							\n														\n											\n								\n												\n								Mobile							\n								\n\n						\n								\n												\n								Home Address							\n										\n								\n												\n								Postcode							\n														\n											\n								\n												\n								Year of birth							\n														\n											\n								\n												\n								Do you know anyone who was born with OA/TOF?							\n						 Yes\, I was born with OA/TOF Yes\, my child was born with OA/TOF Yes\, a friend/relative was born with OA/TOF No\, I just want to help				\n								\n												\n								Please share with us your reasons for wanting to run the London Marathon for TOFS							\n										\n								\n												\n								Please indicate your running vest size							\n								\n			\n							\n			\n									Ladies - XS (33")\n									Ladies - S (35")\n									Ladies - M (37")\n									Ladies - L (40")\n									Ladies - XL (42")\n									Ladies - XXL (43")\n									_________________\n									Mens - XS (36")\n									Mens - S (38")\n									Mens - M (40")\n									Mens - L (43")\n									Mens - XL (46")\n									Mens - XXL (49")\n							\n		\n						\n								\n												\n								If your application is successful\, we will print your first name on your running vest. If you would rather use another name please let us know here.(Leave blank if using your first name as above.)							\n														\n											\n								\n					About your fundraising experience				\n								\n												\n								Have you raised funds for TOFS before?							\n						 Yes No				\n								\n												\n								If you have raised funds for TOFS\, please give details							\n										\n								\n												\n								Have you raised funds for other charities?							\n						 Yes No				\n								\n												\n								If you have raised funds for other charities\, please give details							\n										\n								\n												\n								How much do you think you can raise for TOFS in total?(Our minimum fundraising commitment for this event is £1\,500)							\n														\n											\n								\n												\n								Please give details of how you to plan to reach this target							\n										\n								\n												\n								Will your employer sponsor you or match your funds? 							\n						 Yes No Don't Know				\n								\n												\n								If YES - please let us know how your employer is likely to contribute to your fundraising							\n										\n								\n												\n								What is your occupation?							\n														\n											\n								\n												\n								Would you be happy to take part in promotional activities?This could include sharing your story on our website or news sources							\n						 Yes No				\n								\n												\n								If successful\, would you like to be included in our WhatsApp team group chat? (Mobile numbers and photos/chats will be visible to all who agree to join.)							\n						 Yes No				\n								\n												\n								Would you like to be added to our supporter mailing list to get occasional updates from TOFS?							\n						 Yes No				\n								\n					About your running experience				\n								\n												\n								Have you run a full or half marathon before?							\n						 Yes No				\n								\n									\n								\n												\n								Please let us know about your running experience. If you have run a full or half marathon before\,  please state which one(s) and time that you achieved. If you haven't\, please state your previous running experience.							\n										\n								\n												\n								Please indicate that you agree to our terms & conditions (shown below).							\n								\n			\n				\n				Yes\, I agree to be bound by the TOFS terms and conditions\, and also those of the TCS London Marathon. 			\n		\n						\n								\n									\n								\n					\n						\n																						Submit\n													\n					\n				\n			\n		\n						\n				\n					\n		\n				\n			\n						\n				\n									TOFS will support you by offering: Someone to talk to: an experienced TOFS runner – who has run the London Marathon in the past;A limited edition TOFS running vest with your name on to wear with pride on your big day;Disposable rain poncho to keep you dry on the way to\, and whilst waiting around at\, the start;Cheering from TOFS members with banners at a couple of pre-nominated spots along the route:  your family and friends are invited to join in at these cheering points; subject to spectators being allowed;TOFS T-shirts or baseball caps for your supporters (limited numbers\, upon request) so they have an amazing day too;Access to the organisers’ pre-race support; and a social media group just for you\, the TOFS runners;Important Notes:Please bear in mind that the organisers demand that you register in person in London during the four days leading up to the Marathon. Registration can be expected to close on the day before the Marathon\, in the afternoon.  Moreover\, you will need to make all your own transport and accommodation arrangements. Note that getting to the start at Greenwich\, early on the Sunday morning\, can present some transport difficulties. TOFS asks you to use the cost-effective Peoples Fundraising website (www.peoplesfundraising.com).  Any Questions? Get in touch or give us a call on 01159 613092. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									TCS London Marathon: TOFS Terms and Conditions – For runners with a TOFS allocated place 1. You confirm that the information on this form is complete and correct\, and that you will be 18 years of age or older on 25 April 2027. 2. You recognise that TOFS will retain for a reasonable period the information that you supply by applying on this form\, whether you are selected for a TOFS Golden Bond place or not. 3. You recognise that you apply and (if selected by TOFS) run the Marathon at your own risk in accordance with standard TCS London Marathon regulations and conditions\, which are in addition to these TOFS terms and conditions. 4. You confirm that\, so far as you are aware\, you have no medical or health issues which would mean that it would be unsafe or unwise for you to train for and run a marathon. 5. You confirm that you shall (if selected to run for TOFS using a TOFS Golden bond place) diligently undertake the running training that is appropriate as preparation for a Marathon\, in the months preceding the Marathon. 6. Should you be accepted to run for TOFS using a TOFS Golden bond place\, you agree to pay a registration fee of £50 to TOFS. This is to cover some administration costs\, and TOFS will ask for prompt payment. The fee will count towards your fund-raising pledge. If the fee is not cleared in the TOFS bank account within 21 days of you being sent notification by TOFS that you have been selected\, TOFS may select another person in your place. 7. You confirm that you shall (if allocated a TOFS Golden Bond place) make diligent efforts to contact donors and sponsors and set up fundraising mechanisms so as to raise at least the amount you have suggested for TOFS\, and TOFS shall be the only charity for which you raise funds in this event. You must show at least one month before the Marathon that your fundraising has commenced for instance by setting up a fundraising webpage and receiving at least an initial donation. We ask charity place runners to raise a minimum of 75% of their sponsorship by the event date\, with the remaining fundraising due 30 days after race day. 8. If allocated a TOFS Golden Bond place\, you are pledging to raise your suggested amount for TOFS and agreeing to make up any shortfall yourself or via your own further fundraising efforts to the required minimum of £1\,500 (excluding any Gift Aid\, which is to be in addition to the £1500) to be received by TOFS by the 30th June 2027. 9. All applications to TOFS are subject to a selection process to ensure that Golden Bond places are used to best possible fundraising effect commensurate with safety for all concerned\, at the sole discretion of TOFS. TOFS will wish to give preference in the selection process to runners who are TOFS members or otherwise have a clear connection with the TOF/OA condition: however\, TOFS is not obliged to do so. 10. If allocated a TOFS Golden Bond place\, you agree to inform TOFS as soon as possible in writing\, preferably by email\, should you become unable to take part in the Marathon. Once this is acknowledged by TOFS\, your minimum sponsorship obligation will cease. You understand that\, should you withdraw from your Golden Bond place\, the TOFS registration fee is non-refundable and will be retained by TOFS to cover expenses. 11. You agree that\, should you withdraw from your Golden Bond place\, you will co-operate and correspond with TOFS and the TCS London Marathon organisers such that another runner chosen by TOFS can take your Golden Bond place. At the discretion of TOFS\, and subject to some conditions\, you may be offered a TOFS place in the following year. 12. If you are unable to participate in the TCS London Marathon for any reason\, all donated monies collected by you or donated via third parties (such as fundraising websites) in support of TOFS must be forwarded to TOFS. Money which has been pledged to you on condition of your completing the event must be returned to the individual sponsors\, or donated to TOFS if those sponsors are happy to do so. Monies already received by TOFS will not be refunded. 13. If allocated a TOFS Golden Bond place\, you agree that images taken on the day of the Marathon may be used by TOFS to help promote our fundraising efforts. 14. You understand that\, if allocated a TOFS Golden Bond place\, you will be required to also complete in full (and online) the Official TCS London Marathon Golden Bond registration process before a date yet to be confirmed\, and to confirm to TOFS as soon as you have done so. As this will be done via the TCS London Marathon website\, you understand you will need to have internet access and access to an email address before this date. 15. You understand that\, if allocated a TOFS Golden Bond place\, you will need to “register” in person\, with suitable proof of your identity\, in the days immediately before the Marathon at the TCS London Marathon’s “Expo” designated pre-race registration point in London. 16. You understand that\, if allocated a TOFS Golden Bond place\, you will need to make your own arrangements at your own expense to get to the start line and return from the finish point. 17. You understand that it is your responsibility to take out your own insurance cover for personal accident benefits to whatever level you consider appropriate. By returning this form to TOFS you accept and agree to the terms and conditions listed above.
URL:https://tofs.org.uk/event/london-marathon-2025/
LOCATION:London\, London\, United Kingdom
CATEGORIES:Fundraising
ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2024/04/Thank-you-to-our-amazing-London-Marathon-runners.png
END:VEVENT
END:VCALENDAR