Calling all adults born with OA/TOF.You’re invited for a virtual cuppa and chat with other adults born with OA/TOF.This informal meet-up is led by volunteers, who are also adults born with OA/TOF, and is a relaxed, safe space to share stories and experiences with others that understand what you are going through.So, come along, enjoy a relaxing […]
Please join us for our next live webinar with retired Paediatrician & Neonatologist, Dr Una MacFayden, on Monday 15th July, 7-8pm.Una will be presenting and answering questions about 'leaving paediatric care and negotiating adult services'. Discussing shared decision making in adult care; and the work she is undertaking where young adults with a chronic condition […]
Don’t miss your chance to meet up with other OA/TOF parents and families in the North West. To'neill, TOFS Local Contact (TLC) for Manchester, is organising an informal get-together in Stockport and you are invited. When : Friday, 2nd August Where: Ladybridge Connect Centre, Stockport, SK8 5NZ This event is being organised by To'neill herself. If you […]
Calling all adults born with OA/TOF.You’re invited for a virtual cuppa and chat with other adults born with OA/TOF.This informal meet-up is led by volunteers, who are also adults born with OA/TOF, and is a relaxed, safe space to share stories and experiences with others that understand what you are going through.So, come along, enjoy a relaxing […]
Please note this local meet-up has been cancelled by the organiser and will be rearranged for a future date.
Calling all adults born with OA/TOF.You’re invited for a virtual cuppa and chat with other adults born with OA/TOF.This informal meet-up is led by volunteers, who are also adults born with OA/TOF, and is a relaxed, safe space to share stories and experiences with others that understand what you are going through.So, come along, enjoy a relaxing […]
Run for TOFS in the 2024 Great North Run and help to make a difference in the lives of those born unable to swallow. 60,000 determined and dedicated runners make the Great North Run the World’s biggest and best half marathon – famous for its warm North East welcome, unbeatable atmosphere and the millions raised […]
Organiser update:There is a car park at Strawberry Field.Please use the main entrance at the centre of the building (rather than the shop entrance), you will see a set of stairs straight in front of you - go down the stairs and turn right.There is no entrance fee to Strawberry Field.The room has a private […]
Don’t miss your chance to meet up with other OA/TOF parents and families in North Yorkshire. Tracey, TOFS Local Contact (TLC) for Leeds, is organising an informal picnic/get-together at Roundhay Park and you are invited.When:Sunday, 14th July Address:Roundhay Park, 9 Park Ave, Roundhay, Leeds, LS8 2WFWhere to meet-up:On the right hand side, just past the Lakeside Car Park […]
Calling all adults born with OA/TOF.You’re invited for a virtual cuppa and chat with other adults born with OA/TOF.This informal meet-up is led by volunteers, who are also adults born with OA/TOF, and is a relaxed, safe space to share stories and experiences with others that understand what you are going through.So, come along, enjoy a relaxing […]
Do you have a child born with OA/TOF and have questions about managing reflux?Join our Talk with TLCs online session and meet other parents in a similar situation. It’s a great opportunity to share experiences and get support.The session will be held via Zoom and hosted by two of our TLCs, To'neill and Naomi, both […]
Please join us for our next live Q&A on issues with feeding experiences and oral aversion for those born with OA/TOF.For this session, we will be joined by Maya Asir.Maya is the lead for the inpatient Speech and Language Therapy service at Evelina London Children’s Hospital. She has been a paediatric Speech and Language Therapist […]
TOFS Member Bryony is organising a meet-up in Brisbane, Australia. This is a great opportunity to meet up with other OA/TOF parents and families in Queensland. When:10am-2pm Sunday, 3rd November Where to meet-up:South Bank Brisbane This event is being organised by Bryony herself. If you are interested in attending, then please reach out to Bryony […]
Calling all adults born with OA/TOF. You’re invited for a virtual cuppa and chat with other adults born with OA/TOF. This informal meet-up is led by volunteers, who are also adults born with OA/TOF, and is a relaxed, safe space to share stories and experiences with others that understand what you are going through. So, come along, […]
Run for TOFS at the UK’s biggest Theme Park, Alton Towers, on Saturday 16th and Sunday 17th November 2024 for the 5k, 10k & Half Marathon event around the park. Entry fee £15 (+booking charge) - Juniors£20 (+booking charge) - AdultsThis fee goes towards covering your subsidised entry cost and the admin fees charged by […]
Click here to see the full Seminar schedule and to meet the speakers.Join us in Warrington to hear from some leading experts and specialists from a variety of healthcare professions, who work with OA/TOF patients. It is also a great chance to chat with other members; meet the TOFS volunteers and staff team and meet […]
Don’t miss your chance to meet up with other OA/TOF parents and families in London.Laura Bell, TOFS Local Contact (TLC) for Kent and Sussex, and Carrie Semark, TOFS volunteer have organised an informal get-together in London and you are invited.When : Sunday, 17th November, 2024Where: Ronald McDonald House Evelina 17th November 2024, 12-3pmThis event is […]
Don’t miss your chance to meet up with other OA/TOF parents and families in Liverpool and from across Merseyside..Alan & Carolyn, TOFS Local Contacts (TLC) for Liverpool, are organising an informal Christmas get-together in Liverpool and you are invited.When:Saturday, 30th November, 2024Where:Best Western Premier Suites Hotel & SpaRibblers Lane, Knowsley, Liverpool L34 9HAThis event is […]
