Write your own piece of history in the heart of the South Downs as you chase the King from ancient coast to sweeping ridges. Entry fee: £40 (100km non-stop)£30 (50km Coastal or Castle only, ex. camping) This fee goes towards the admin fees charged by the race organisers but will count towards your fundraising pledge. […]
UPDATE: Wet Weather Plan - In case of bad weather, please meet up with Charlotte in the Pear Tree Café - just a few minutes walk from the bandstand (photo's below). Unfortunately, we've been let down by Royal Mail so there will be no TOFS banners on show but Charlotte will be there to welcome […]
Do you have a teenager born with OA/TOF and have questions about transitioning into adult care? Join our Talk with TLCs online session and meet other parents in a similar situation. It's a great opportunity to share experiences and get support. The session will be held via Zoom and hosted by two of our TLCs, […]
Calling all adults born with OA/TOF.You’re invited for a virtual cuppa and chat with other adults born with OA/TOF.This informal meet-up is led by volunteers, who are also adults born with OA/TOF, and is a relaxed, safe space to share stories and experiences with others that understand what you are going through.So, come along, enjoy a relaxing […]
Please join us for our next live webinar with retired Paediatrician & Neonatologist, Dr Una MacFayden, on Monday 15th July, 7-8pm.Una will be presenting and answering questions about 'leaving paediatric care and negotiating adult services'. Discussing shared decision making in adult care; and the work she is undertaking where young adults with a chronic condition […]
Don’t miss your chance to meet up with other OA/TOF parents and families in the North West. To'neill, TOFS Local Contact (TLC) for Manchester, is organising an informal get-together in Stockport and you are invited. When : Friday, 2nd August Where: Ladybridge Connect Centre, Stockport, SK8 5NZ This event is being organised by To'neill herself. If you […]
Calling all adults born with OA/TOF.You’re invited for a virtual cuppa and chat with other adults born with OA/TOF.This informal meet-up is led by volunteers, who are also adults born with OA/TOF, and is a relaxed, safe space to share stories and experiences with others that understand what you are going through.So, come along, enjoy a relaxing […]
Please note this local meet-up has been cancelled by the organiser and will be rearranged for a future date.
Calling all adults born with OA/TOF.You’re invited for a virtual cuppa and chat with other adults born with OA/TOF.This informal meet-up is led by volunteers, who are also adults born with OA/TOF, and is a relaxed, safe space to share stories and experiences with others that understand what you are going through.So, come along, enjoy a relaxing […]
Run for TOFS in the 2024 Great North Run and help to make a difference in the lives of those born unable to swallow. 60,000 determined and dedicated runners make the Great North Run the World’s biggest and best half marathon – famous for its warm North East welcome, unbeatable atmosphere and the millions raised […]
Organiser update:There is a car park at Strawberry Field.Please use the main entrance at the centre of the building (rather than the shop entrance), you will see a set of stairs straight in front of you - go down the stairs and turn right.There is no entrance fee to Strawberry Field.The room has a private […]
Don’t miss your chance to meet up with other OA/TOF parents and families in North Yorkshire. Tracey, TOFS Local Contact (TLC) for Leeds, is organising an informal picnic/get-together at Roundhay Park and you are invited.When:Sunday, 14th July Address:Roundhay Park, 9 Park Ave, Roundhay, Leeds, LS8 2WFWhere to meet-up:On the right hand side, just past the Lakeside Car Park […]
Calling all adults born with OA/TOF.You’re invited for a virtual cuppa and chat with other adults born with OA/TOF.This informal meet-up is led by volunteers, who are also adults born with OA/TOF, and is a relaxed, safe space to share stories and experiences with others that understand what you are going through.So, come along, enjoy a relaxing […]
Do you have a child born with OA/TOF and have questions about managing reflux?Join our Talk with TLCs online session and meet other parents in a similar situation. It’s a great opportunity to share experiences and get support.The session will be held via Zoom and hosted by two of our TLCs, To'neill and Naomi, both […]
Please join us for our next live Q&A on issues with feeding experiences and oral aversion for those born with OA/TOF.For this session, we will be joined by Maya Asir.Maya is the lead for the inpatient Speech and Language Therapy service at Evelina London Children’s Hospital. She has been a paediatric Speech and Language Therapist […]
TOFS Member Bryony is organising a meet-up in Brisbane, Australia. This is a great opportunity to meet up with other OA/TOF parents and families in Queensland. When:10am-2pm Sunday, 3rd November Where to meet-up:South Bank Brisbane This event is being organised by Bryony herself. If you are interested in attending, then please reach out to Bryony […]
Calling all adults born with OA/TOF. You’re invited for a virtual cuppa and chat with other adults born with OA/TOF. This informal meet-up is led by volunteers, who are also adults born with OA/TOF, and is a relaxed, safe space to share stories and experiences with others that understand what you are going through. So, come along, […]
Run for TOFS at the UK’s biggest Theme Park, Alton Towers, on Saturday 16th and Sunday 17th November 2024 for the 5k, 10k & Half Marathon event around the park. Entry fee £15 (+booking charge) - Juniors£20 (+booking charge) - AdultsThis fee goes towards covering your subsidised entry cost and the admin fees charged by […]
Click here to see the full Seminar schedule and to meet the speakers.Join us in Warrington to hear from some leading experts and specialists from a variety of healthcare professions, who work with OA/TOF patients. It is also a great chance to chat with other members; meet the TOFS volunteers and staff team and meet […]
Don’t miss your chance to meet up with other OA/TOF parents and families in London.Laura Bell, TOFS Local Contact (TLC) for Kent and Sussex, and Carrie Semark, TOFS volunteer have organised an informal get-together in London and you are invited.When : Sunday, 17th November, 2024Where: Ronald McDonald House Evelina 17th November 2024, 12-3pmThis event is […]
Don’t miss your chance to meet up with other OA/TOF parents and families in Liverpool and from across Merseyside..Alan & Carolyn, TOFS Local Contacts (TLC) for Liverpool, are organising an informal Christmas get-together in Liverpool and you are invited.When:Saturday, 30th November, 2024Where:Best Western Premier Suites Hotel & SpaRibblers Lane, Knowsley, Liverpool L34 9HAThis event is […]
