Starting Nursery, Pre-school, and School – Talk with TLCs
OnlineDo you have a child born with OA/TOF starting nursery, preschool or school soon? Join our Talk with TLCs session to speak to other parents, share experiences and learn coping […]
Do you have a child born with OA/TOF starting nursery, preschool or school soon? Join our Talk with TLCs session to speak to other parents, share experiences and learn coping […]
If you didn’t get chance to see Dr Charles Shaw-Smith and Dr Bryn Webb presenting their “OA/TOF and the lost twin” hypothesis at our recent “Improving Care in OA/TOF” seminar […]
Join us for our 2024 Awareness Week and help us raise awareness of OA/TOF with health professionals and the wider public.More details to follow soon. /*! elementor-pro - v3.18.0 - […]
Raising awareness and generating change for the 300 million people worldwide living with a rare disease, their families and carers. Keep reading to see how you can get involved. How […]
Calling all adults born with OA/TOF. You’re invited for a virtual cuppa and chat with other adults born with OA/TOF. This informal meet-up is led by volunteers, who are also adults […]
Take part in our Big Splash Swimathon and help support TOFS while staying active! Choose to go it alone or get the whole family involved and set a group target.Pick your […]
Join Naomi, our TLC for South Wales, and her husband Darren for a virtual meet up on Monday 25th March at 8pm GMT. If you wish to attend please click […]
Do you have a child born with OA/TOF with additional VACTERL anomalies? Join our next Talk with TLC session to speak to other parents, share experiences and learn coping strategies. The […]
Meet other adults born with OA/TOF for a virtual cuppa and chat on the 4th April. This is an informal, safe and supportive space to meet others born with a […]
Members and associates are invited to join us for the 2024 Annual General Meeting of T.O.F.S.The T.O.F.S. Annual General Meeting will take place on 18 April 2024 by Zoom teleconference […]
Run the London Marathon for TOFS Latest news & updates on our 2024 London Marathon team Entry fee: £50 This fee goes towards the admin fees charged by the race […]
Please join us for our next live webinar with Cardiothoracic Consultant Surgeon, Joel Dunning on Thursday 25th April 7-8pm.Joel will be presenting and answering questions about Chest Wall Deformities, a […]
TOFS' members, Kerry and Joe have arranged a Charity football match in memory of Jaxon and Ezra.Kick off 3pm. Tickets £5 for adults and £2.50 for children over 3.PLUS :* face-painting* […]
Do you have a child born with OA/TOF starting nursery, preschool or school soon?Join our Talk with TLCs session to speak to other parents and share experiences. This is a […]
RideLondon – the world’s greatest festival of cycling returns on Sunday 26th May 2024 and you could ride for TOFS! Entry fee: £25 This fee goes towards the admin fees […]
Don’t miss your chance to meet up with other OA/TOF parents and families in South Wales. Naomi, TOFS Local Contact (TLC) for South Wales, is organising an informal get-together in […]
Calling all adults born with OA/TOF. You’re invited for a virtual cuppa and chat with other adults born with OA/TOF. This informal meet-up is led by volunteers, who are also adults born […]
The Teddy Toddle is back! The exciting fundraising event that challenges you to walk, run or even skip 5K for TOFS. From June 8th to 16th, we invite you and […]
Write your own piece of history in the heart of the South Downs as you chase the King from ancient coast to sweeping ridges. Entry fee: £40 (100km non-stop)£30 (50km […]
UPDATE: Wet Weather Plan - In case of bad weather, please meet up with Charlotte in the Pear Tree Café - just a few minutes walk from the bandstand (photo's […]
