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Webinar: “OA/TOF and the lost twin” hypothesis

Online

If you didn’t get chance to see Dr Charles Shaw-Smith and Dr Bryn Webb presenting their “OA/TOF and the lost twin” hypothesis at our recent “Improving Care in OA/TOF” seminar […]

TOFS Awareness Week 2024

Various locations

Join us for our 2024 Awareness Week and help us raise awareness of OA/TOF with health professionals and the wider public.More details to follow soon. /*! elementor-pro - v3.18.0 - […]

Rare Disease Day 2024

Various locations

Raising awareness and generating change for the 300 million people worldwide living with a rare disease, their families and carers. Keep reading to see how you can get involved.  How […]

Virtual meet-up for adults born with OA/TOF

Online

Calling all adults born with OA/TOF. You’re invited for a virtual cuppa and chat with other adults born with OA/TOF. This informal meet-up is led by volunteers, who are also adults […]

Big Splash Swimathon 2024

Various locations

Take part in our Big Splash Swimathon and help support TOFS while staying active! Choose to go it alone or get the whole family involved and set a group target.Pick your […]

Member virtual meet-up – South Wales

Online

Join Naomi, our TLC for South Wales, and her husband Darren for a virtual meet up on Monday 25th March at 8pm GMT. If you wish to attend please click […]

Virtual meet-up for adults born with OA/TOF

Online

Meet other adults born with OA/TOF for a virtual cuppa and chat on the 4th April. This is an informal, safe and supportive space to meet others born with a […]

TOFS Annual General Meeting 2024

Online

Members and associates are invited to join us for the 2024 Annual General Meeting of T.O.F.S.The T.O.F.S. Annual General Meeting will take place on 18 April 2024 by Zoom teleconference […]

London Marathon 2024

London , United Kingdom

Run the London Marathon for TOFS Latest news & updates on our 2024 London Marathon team Entry fee: £50 This fee goes towards the admin fees charged by the race […]

Webinar: Chest Wall Deformities

Online

Please join us for our next live webinar with Cardiothoracic Consultant Surgeon, Joel Dunning on Thursday 25th April 7-8pm.Joel will be presenting and answering questions about  Chest Wall Deformities, a […]

Charity football match

Lakeside Sports Ground A1306 Arterial Road, Grays, Essex

TOFS' members, Kerry and Joe have arranged a Charity football match in memory of Jaxon and Ezra.Kick off 3pm. Tickets £5 for adults and £2.50 for children over 3.PLUS :* face-painting* […]

Starting nursery, preschool or school

Online

Do you have a child born with OA/TOF starting nursery, preschool or school soon?Join our Talk with TLCs session to speak to other parents and share experiences. This is a […]

RideLondon 2024

London , United Kingdom

RideLondon  – the world’s greatest festival of cycling returns on Sunday 26th May 2024 and you could ride for TOFS! Entry fee: £25 This fee goes towards the admin fees […]

Local Meet-up – Cardiff

Ronald McDonald House Cardiff Heath Park Way, Cardiff, United Kingdom

Don’t miss your chance to meet up with other OA/TOF parents and families in South Wales. Naomi, TOFS Local Contact (TLC) for South Wales, is organising an informal get-together in […]

Virtual meet-up for adults born with OA/TOF

Online

Calling all adults born with OA/TOF. You’re invited for a virtual cuppa and chat with other adults born with OA/TOF. This informal meet-up is led by volunteers, who are also adults born […]

Teddy Toddle 2024

The Teddy Toddle is back! The exciting fundraising event that challenges you to walk, run or even skip 5K for TOFS. From June 8th to 16th, we invite you and […]

Race to the King – Ultra Trail Run

Goodwood Racecourse Selhurstpark Rd, Chichester, United Kingdom

Write your own piece of history in the heart of the South Downs as you chase the King from ancient coast to sweeping ridges. Entry fee: £40 (100km non-stop)£30 (50km […]

Local meet-up – London

London , United Kingdom

UPDATE: Wet Weather Plan - In case of bad weather, please meet up with Charlotte in the Pear Tree Café - just a few minutes walk from the bandstand (photo's […]