Please join us at 7pm on Wednesday 18th of October for our next live Q&A session. We will be joined by Iain Yardley, consultant neonatal and paediatric surgeon and is head of Paediatric Surgery at Evelina London Children's Hospital.Iain will be answering your questions around reflux and related issues in babies and children born with OA/TOF.When: Wednesday, 18th […]
Watch TOFS take on Sands United in this battle of the giants!
Join us for the Improving Care in OA/TOF seminar in London.See the event round-up hereClick here to see the full event scheduleClick here for information on how to get involved with the “lost twin” genetic study at the seminarClick here for directions and information on nearby places to eatWhy attend Hear from some of the […]
Please join us for our next live Q&A session with Paediatric Respiratory Consultant, Dr Rebecca Thursfield on the 6th of December. Dr Thursfield manages children with a range of respiratory conditions including cough, wheeze, recurrent infections, immunodeficiency and cystic fibrosis. She has led the joint tracheo-oesophageal clinic for almost 10 years and manages children with OA/TOF.She is passionate […]
Do you have a child born with OA/TOF starting nursery, preschool or school soon? Join our Talk with TLCs session to speak to other parents, share experiences and learn coping strategies.The session will be held via Zoom and facilitated by two of our TOFS Local Contacts (TLCs), Naomi Webborn and Cara Macdonald – both are […]
If you didn’t get chance to see Dr Charles Shaw-Smith and Dr Bryn Webb presenting their “OA/TOF and the lost twin” hypothesis at our recent “Improving Care in OA/TOF” seminar then don’t miss your chance to hear all about it and discover how you can get involved.Dr Shaw-Smith and Dr Webb will be joining us […]
Join us for our 2024 Awareness Week and help us raise awareness of OA/TOF with health professionals and the wider public.More details to follow soon. /*! elementor-pro - v3.18.0 - 20-12-2023 */ .elementor-widget-countdown .elementor-countdown-expire--message{display:none;padding:20px;text-align:center}.elementor-widget-countdown .elementor-countdown-wrapper{flex-direction:row}.elementor-widget-countdown .elementor-countdown-item{padding:20px 0;text-align:center;color:#fff}.elementor-widget-countdown .elementor-countdown-digits,.elementor-widget-countdown .elementor-countdown-label{line-height:1}.elementor-widget-countdown .elementor-countdown-digits{font-size:69px}.elementor-widget-countdown .elementor-countdown-label{font-size:19px}.elementor-widget-countdown.elementor-countdown--label-block .elementor-countdown-wrapper{display:flex;justify-content:center;margin-right:auto;margin-left:auto}.elementor-widget-countdown.elementor-countdown--label-block .elementor-countdown-digits,.elementor-widget-countdown.elementor-countdown--label-block .elementor-countdown-label{display:block}.elementor-widget-countdown.elementor-countdown--label-block .elementor-countdown-item{flex-basis:0;flex-grow:1}.elementor-widget-countdown.elementor-countdown--label-inline{text-align:center}.elementor-widget-countdown.elementor-countdown--label-inline .elementor-countdown-item{display:inline-block;padding-left:5px;padding-right:5px} Days Hours Minutes Seconds
Raising awareness and generating change for the 300 million people worldwide living with a rare disease, their families and carers. Keep reading to see how you can get involved. How to get involved Light up for Rare At 7pm on the 29th Feb, show your colours and join the global chain of lights! Play this […]
Calling all adults born with OA/TOF. You’re invited for a virtual cuppa and chat with other adults born with OA/TOF. This informal meet-up is led by volunteers, who are also adults born with OA/TOF, and is a relaxed, safe space to share stories and experiences with others that understand what you are going through. So, come along, […]
Take part in our Big Splash Swimathon and help support TOFS while staying active! Choose to go it alone or get the whole family involved and set a group target.Pick your distance from our Mini splash right up to 10K or go freestyle and pick your own.Get down to your local pool, lido or brave the […]
Join Naomi, our TLC for South Wales, and her husband Darren for a virtual meet up on Monday 25th March at 8pm GMT. If you wish to attend please click here to register and receive your zoom link. /*! elementor - v3.18.0 - 20-12-2023 */.elementor-widget-image{text-align:center}.elementor-widget-image a{display:inline-block}.elementor-widget-image a img{width:48px}.elementor-widget-image img{vertical-align:middle;display:inline-block}
Do you have a child born with OA/TOF with additional VACTERL anomalies? Join our next Talk with TLC session to speak to other parents, share experiences and learn coping strategies. The session will be held via Zoom and facilitated by two of our TOFS Local Contacts, Tracey Fish and Laura Bell – both are volunteers and […]
Meet other adults born with OA/TOF for a virtual cuppa and chat on the 4th April. This is an informal, safe and supportive space to meet others born with a similar condition and share or listen to experiences. This session is facilitated by TOFS' volunteers who are all adults born with OA/TOF who can signpost […]
Members and associates are invited to join us for the 2024 Annual General Meeting of T.O.F.S.The T.O.F.S. Annual General Meeting will take place on 18 April 2024 by Zoom teleconference at 7:00 pm. Invited to attend: Council of Management, TOFS office staff, all Members and AssociatesAgenda1. Registration and welcome2. Introduction by Chairman3. Apologies for absence4. Approval […]
Run the London Marathon for TOFS Latest news & updates on our 2024 London Marathon team Entry fee: £50 This fee goes towards the admin fees charged by the race organisers but will count towards your fundraising pledge. Payable to TOFS on successful application. Fundraising commitment: £1,500 This is the minimum amount (before Gift Aid) […]
Please join us for our next live webinar with Cardiothoracic Consultant Surgeon, Joel Dunning on Thursday 25th April 7-8pm.Joel will be presenting and answering questions about Chest Wall Deformities, a condition that can affect some born with OA/TOF due to repair surgery in infancy. Chest wall deformities are also part of the VACTERL Association.If you […]
