TOFS | OA/TOF Support

OA/TOF Awareness Week 2025
2025-02-24 - 2025-03-02 | Various locations
The adidas Manchester Marathon, the UK’s second largest marathon and one of Europe’s largest is an iconic event drawing participants from all over the world to the vibrant streets of Greater Manchester. The event prides itself in welcoming all to take on the 26.2 mile challenge, from some superb elite runners, to those who thought completing a marathon would never be possible. Many regular runners find this the ideal event to get a personal best time, whilst everybody finds the incredible Mancunian support throughout the course unforgettable.

Entry fee:
£50

+ booking fee Your place will be subsidised by TOFS. Your entry fee goes towards the admin fees that the race organisers charge us.

Fundraising commitment: £500

This is the minimum amount (before Gift Aid) that we would expect a participant to raise for a TOFS subsidised place. But you don’t have to stop there! Most of our runners raise a lot more than the minimum!

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Note: Applications for this event are managed via our partner, Run for Charity. Scroll down to see our terms and conditions for this event.

Charity places come at a cost to TOFS, and sponsorship targets ensure we do not lose out on our investment and are able to raise as much as possible to support our vital work. We ask charity place participants to raise 75% of their sponsorship by the event date, with the remaining fundraising due 30 days after race day. Gift Aid is not included in your sponsorship target, and neither is your registration fee. Registration fees for charity places in events are non-refundable and non-transferrable

Note: Applications for this event are managed via our partner, Run for Charity. Scroll down to see our terms and conditions for this event.

TOFS Terms and Conditions

You confirm that the information on your application form is complete and correct, and that you will be 18 years of age or older on the day of the event.You recognise that TOFS will retain for a reasonable period the information that you supply by applying, whether you are selected for a TOFS place or not.You recognise that you apply and (if selected by TOFS) run at your own risk in accordance with standard organiser’s regulations and conditions, which are in addition to these TOFS terms and conditions.You confirm that, so far as you are aware, you have no medical or health issues which would mean that it would be unsafe or unwise for you to train for and run this event.You confirm that you shall (if selected to run for TOFS) diligently undertake the running training that is appropriate as preparation for a half marathon, in the months preceding the run.Should you be accepted to run for TOFS using a TOFS place, you agree to pay a non refundable registration fee (+booking fee). This is to cover some of the administration costs that the charity will be charged by the organiser. The fee will not count towards your fund-raising pledge. The fee must be cleared in the TOFS bank account within 21 days of applying.You confirm that you shall make diligent efforts to contact donors and sponsors and set up fundraising mechanisms so as to raise at least the minimum amount you have agreed to, and TOFS shall be the only charity for which you raise funds in this eventIf allocated a place, you are pledging to raise the minimum target as specified for the event by TOFS and agreeing to make up any shortfall yourself or via your own further fundraising efforts to the required minimum. You must show at least one month before the event that your fundraising has commenced for instance by setting up a fundraising webpage and receiving at least an initial donation. Participants must raise at least 75% of the minimum target by the event date.All monies raised is to be received by TOFS within 30 days of the event date.If allocated a place, you agree to inform TOFS as soon as possible in writing, preferably by email, should you become unable to take part in the event. Once this is acknowledged by TOFS, your minimum sponsorship obligation will cease. You understand that, should you withdraw from your place, the registration fee is non-refundable and will be retained by TOFS to cover expenses.You agree that, should you withdraw from your place, you will co-operate and correspond with TOFS and the event organisers such that another runner chosen by TOFS can take your place. At the discretion of TOFS, and subject to some conditions, you may be offered a TOFS place in the next year’s event.If you are unable to participate in the event for any reason, all donated monies collected by you or donated via third parties (such as fundraising websites) in support of TOFS must be forwarded to TOFS. Money which has been pledged to you on condition of your completing the event must be returned to the individual sponsors, or donated to TOFS if those sponsors are happy to do so. Monies already received by TOFS will not be refunded.If allocated a TOFS place, you agree that images taken on the day of the event may be used by TOFS to help promote the charity, our cause and our fundraising efforts.You understand that, if allocated a TOFS place, you will be required to also complete in full (and online) the organiser’s registration process, and to confirm to TOFS as soon as you have done so.You understand that it is your responsibility to take out your own insurance cover for personal accident benefits to whatever level you consider appropriate.By applying for this event, you accept and agree to the terms and conditions listed above.

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TOFS Seminar 2025
2025-03-01 12:15 - 16:30 (Europe/London) | St Michaels Centre,, The Green, Stoke Gifford, Bristol, BS34 8PD, United Kingdom

ERNICA: A traumatic Diagnosis - the (early) parent-child interaction in (rare) chronic paediatric diseases
2025-03-05 15:00 - 16:00 | Online

Virtual meet-up for adults born with OA/TOF
2025-03-06 20:00 - 21:00 | Online

Live Q&A: Managing medications effectively
2025-03-12 18:30 - 19:30 | Online
