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X-WR-CALDESC:Events for TOFS | OA/TOF Support
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DTSTART;TZID=Europe/London:20260205T200000
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DTSTAMP:20260420T134953
CREATED:20251113T172609Z
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UID:10000151-1770321600-1770325200@tofs.org.uk
SUMMARY:Virtual meet-up for adults born with OA/TOF
DESCRIPTION:Don’t miss your chance to meet up with other OA/TOF parents and families from across Exeter and surrounding areas. Sarah\, TOFS Local Contact (TLC) for the South West of England\, is organising an informal get-together in Exeter and you are invited. When:9am – 12noonSaturday\, 4th July\, 2026 Where:Blue Ball Inn\, Sandygate Roundabout\, Exeter\, EX2 7JL [map] This event is free and being organised by Sarah herself.  If you are interested in attending\, please RSVP to Sarah direct via her email (click here) or via her details in the TLC section of the members website.  Hope you can make it. 								\n				\n				\n				\n									Please note\, this event is for parents & carers of children born with OA/TOF.
URL:https://tofs.org.uk/event/virtual-meet-up-for-adults-born-with-oa-tof-19/
LOCATION:Online
CATEGORIES:Adult TOF
ATTACH;FMTTYPE=image/jpeg:https://tofs.org.uk/wp-content/uploads/2025/11/05-02-26-Adult-cuppa-and-chat.jpg
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DTSTART;VALUE=DATE:20260223
DTEND;VALUE=DATE:20260302
DTSTAMP:20260420T134953
CREATED:20251127T150925Z
LAST-MODIFIED:20260213T115334Z
UID:10000155-1771804800-1772409599@tofs.org.uk
SUMMARY:OA/TOF Awareness Week 2026
DESCRIPTION:Don’t miss your chance to meet up with other OA/TOF parents and families from across Exeter and surrounding areas. Sarah\, TOFS Local Contact (TLC) for the South West of England\, is organising an informal get-together in Exeter and you are invited. When:9am – 12noonSaturday\, 4th July\, 2026 Where:Blue Ball Inn\, Sandygate Roundabout\, Exeter\, EX2 7JL [map] This event is free and being organised by Sarah herself.  If you are interested in attending\, please RSVP to Sarah direct via her email (click here) or via her details in the TLC section of the members website.  Hope you can make it. 								\n				\n				\n				\n									Please note\, this event is for parents & carers of children born with OA/TOF.
URL:https://tofs.org.uk/event/oa-tof-awareness-week-2026/
LOCATION:Various locations
CATEGORIES:TOFS
ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2025/11/TOFS-OA-TOF-Awareness-Week-Get-Ready.png
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DTSTART;TZID=Europe/London:20260224T200000
DTEND;TZID=Europe/London:20260224T210000
DTSTAMP:20260420T134953
CREATED:20251210T130911Z
LAST-MODIFIED:20251210T130938Z
UID:10000158-1771963200-1771966800@tofs.org.uk
SUMMARY:OA/TOF: A father’s perspective
DESCRIPTION:Don’t miss your chance to meet up with other OA/TOF parents and families from across Exeter and surrounding areas. Sarah\, TOFS Local Contact (TLC) for the South West of England\, is organising an informal get-together in Exeter and you are invited. When:9am – 12noonSaturday\, 4th July\, 2026 Where:Blue Ball Inn\, Sandygate Roundabout\, Exeter\, EX2 7JL [map] This event is free and being organised by Sarah herself.  If you are interested in attending\, please RSVP to Sarah direct via her email (click here) or via her details in the TLC section of the members website.  Hope you can make it. 								\n				\n				\n				\n									Please note\, this event is for parents & carers of children born with OA/TOF.
URL:https://tofs.org.uk/event/oa-tof-a-fathers-perspective/
LOCATION:Online
CATEGORIES:Parents & Carers
ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2025/12/02-24-Fathers-perspective-Cuppa-and-chat.png
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20260228
DTEND;VALUE=DATE:20260301
DTSTAMP:20260420T134953
CREATED:20251216T120951Z
LAST-MODIFIED:20260227T152403Z
UID:10000159-1772236800-1772323199@tofs.org.uk
SUMMARY:Rare Disease Day 2026
DESCRIPTION:Don’t miss your chance to meet up with other OA/TOF parents and families from across Exeter and surrounding areas. Sarah\, TOFS Local Contact (TLC) for the South West of England\, is organising an informal get-together in Exeter and you are invited. When:9am – 12noonSaturday\, 4th July\, 2026 Where:Blue Ball Inn\, Sandygate Roundabout\, Exeter\, EX2 7JL [map] This event is free and being organised by Sarah herself.  If you are interested in attending\, please RSVP to Sarah direct via her email (click here) or via her details in the TLC section of the members website.  Hope you can make it. 								\n				\n				\n				\n									Please note\, this event is for parents & carers of children born with OA/TOF.
URL:https://tofs.org.uk/event/rare-disease-day-2026/
LOCATION:Various locations
CATEGORIES:Support
ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2022/12/rare-disease-day.png
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