BEGIN:VCALENDAR VERSION:2.0 PRODID:-//TOFS | OA/TOF Support - ECPv6.15.17.1//NONSGML v1.0//EN CALSCALE:GREGORIAN METHOD:PUBLISH X-ORIGINAL-URL:https://tofs.org.uk X-WR-CALDESC:Events for TOFS | OA/TOF Support REFRESH-INTERVAL;VALUE=DURATION:PT1H X-Robots-Tag:noindex X-PUBLISHED-TTL:PT1H BEGIN:VTIMEZONE TZID:Europe/London BEGIN:DAYLIGHT TZOFFSETFROM:+0000 TZOFFSETTO:+0100 TZNAME:BST DTSTART:20230326T010000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:+0100 TZOFFSETTO:+0000 TZNAME:GMT DTSTART:20231029T010000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:+0000 TZOFFSETTO:+0100 TZNAME:BST DTSTART:20240331T010000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:+0100 TZOFFSETTO:+0000 TZNAME:GMT DTSTART:20241027T010000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:+0000 TZOFFSETTO:+0100 TZNAME:BST DTSTART:20250330T010000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:+0100 TZOFFSETTO:+0000 TZNAME:GMT DTSTART:20251026T010000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:+0000 TZOFFSETTO:+0100 TZNAME:BST DTSTART:20260329T010000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:+0100 TZOFFSETTO:+0000 TZNAME:GMT DTSTART:20261025T010000 END:STANDARD END:VTIMEZONE BEGIN:VEVENT DTSTART;VALUE=DATE:20250628 DTEND;VALUE=DATE:20250629 DTSTAMP:20260511T051749 CREATED:20250410T094626Z LAST-MODIFIED:20250626T145624Z UID:10000110-1751068800-1751155199@tofs.org.uk SUMMARY:Peak District Ultra Challenge DESCRIPTION:Calling all adults born with OA/TOF. \nYou’re invited for a virtual cuppa and chat with other adults born with OA/TOF. \nThis informal meet-up is led by volunteers\, who are also adults born with OA/TOF\, and is a relaxed\, safe space to share stories and experiences with others that understand what you are going through. \nSo\, come along\, enjoy a relaxing cup of coffee (or tea) and meet others in the #OA / #TOF and #VACTERL community! \nMeet the volunteers: \n\nAlison born 1967\, OA/TOF (long gap). Had a colonic interposition repair at 2.5 years old at Manchester Children’s hospital (Pendlebury)\nKate\, born 1957\, OA/TOF (Short gap) and associated anomalies\nMichael\, born 1952 with OA/TOF short gap with various intervention.\nAlan\, O/A TOF surgery 1969 John Radcliffe Oxfordshire\, and VACTERL anomalies\n\nNote: TOFS charity is facilitating these events\, however they will be led by the Adult OA/TOF Working Group and the TOFS office staff won’t be taking part. \n \n \n \n \n \n \n \n Please note: Registration must be completed at least 24 hours before the start of the event. If registration deadlines are missed\, it’s likely that individuals will not be admitted to the meeting. \n \n \n \n \n \n \n \n \n CLICK HERE TO REGISTER\n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n Using Zoom \n \n \n \n In order to join this meeting\, you will need to pre-register and follow the unique link you will receive in your email. Please don’t share the link with another user as this could block access for you. Instead\, ask them to register for their own link. For the best experience\, we recommend downloading Zoom to your computer or mobile device before joining the meeting [click for more info]. It is also possible to access the meeting using your web browser (e.g. Chrome\, Safari\, Edge) without downloading any plugins or software [click for info]. The following video goes over the basic controls you can use while in a Zoom meeting. URL:https://tofs.org.uk/event/peak-district-ultra-challenge/ LOCATION:Bakewell\, Bakewell Showground\, DE45 1AH\, United Kingdom CATEGORIES:Fundraising ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2025/04/peak-district.png END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20250621 DTEND;VALUE=DATE:20250701 DTSTAMP:20260511T051749 CREATED:20250411T105341Z LAST-MODIFIED:20260501T172637Z UID:10000111-1750464000-1751327999@tofs.org.uk SUMMARY:Teddy Toddle 2025 DESCRIPTION:Calling all adults born with OA/TOF. \nYou’re invited for a virtual cuppa and chat with other adults born with OA/TOF. \nThis informal meet-up is led by volunteers\, who are also adults born with OA/TOF\, and is a relaxed\, safe space to share stories and experiences with others that understand what you are going through. \nSo\, come along\, enjoy a relaxing cup of coffee (or tea) and meet others in the #OA / #TOF and #VACTERL community! \nMeet the volunteers: \n\nAlison born 1967\, OA/TOF (long gap). Had a colonic interposition repair at 2.5 years old at Manchester Children’s hospital (Pendlebury)\nKate\, born 1957\, OA/TOF (Short gap) and associated anomalies\nMichael\, born 1952 with OA/TOF short gap with various intervention.\nAlan\, O/A TOF surgery 1969 John Radcliffe Oxfordshire\, and VACTERL anomalies\n\nNote: TOFS charity is facilitating these events\, however they will be led by the Adult OA/TOF Working Group and the TOFS office staff won’t be taking part. \n \n \n \n \n \n \n \n Please note: Registration must be completed at least 24 hours before the start of the event. If registration deadlines are missed\, it’s likely that individuals will not be admitted to the meeting. \n \n \n \n \n \n \n \n \n CLICK HERE TO REGISTER\n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n Using Zoom \n \n \n \n In order to join this meeting\, you will need to pre-register and follow the unique link you will receive in your email. Please don’t share the link with another user as this could block access for you. Instead\, ask them to register for their own link. For the best experience\, we recommend downloading Zoom to your computer or mobile device before joining the meeting [click for more info]. It is also possible to access the meeting using your web browser (e.g. Chrome\, Safari\, Edge) without downloading any plugins or software [click for info]. The following video goes over the basic controls you can use while in a Zoom meeting. URL:https://tofs.org.uk/event/teddy-toddle-2025/ LOCATION:Various locations CATEGORIES:Fundraising ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2025/04/teddy-toddle-icon.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20250605T200000 DTEND;TZID=Europe/London:20250605T210000 DTSTAMP:20260511T051749 CREATED:20250403T104119Z LAST-MODIFIED:20250414T103542Z UID:10000108-1749153600-1749157200@tofs.org.uk SUMMARY:Virtual meet-up for adults born with OA/TOF DESCRIPTION:Calling all adults born with OA/TOF. \nYou’re invited for a virtual cuppa and chat with other adults born with OA/TOF. \nThis informal meet-up is led by volunteers\, who are also adults born with OA/TOF\, and is a relaxed\, safe space to share stories and experiences with others that understand what you are going through. \nSo\, come along\, enjoy a relaxing cup of coffee (or tea) and meet others in the #OA / #TOF and #VACTERL community! \nMeet the volunteers: \n\nAlison born 1967\, OA/TOF (long gap). Had a colonic interposition repair at 2.5 years old at Manchester Children’s hospital (Pendlebury)\nKate\, born 1957\, OA/TOF (Short gap) and associated anomalies\nMichael\, born 1952 with OA/TOF short gap with various intervention.\nAlan\, O/A TOF surgery 1969 John Radcliffe Oxfordshire\, and VACTERL anomalies\n\nNote: TOFS charity is facilitating these events\, however they will be led by the Adult OA/TOF Working Group and the TOFS office staff won’t be taking part. \n \n \n \n \n \n \n \n Please note: Registration must be completed at least 24 hours before the start of the event. If registration deadlines are missed\, it’s likely that individuals will not be admitted to the meeting. \n \n \n \n \n \n \n \n \n CLICK HERE TO REGISTER\n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n Using Zoom \n \n \n \n In order to join this meeting\, you will need to pre-register and follow the unique link you will receive in your email. Please don’t share the link with another user as this could block access for you. Instead\, ask them to register for their own link. For the best experience\, we recommend downloading Zoom to your computer or mobile device before joining the meeting [click for more info]. It is also possible to access the meeting using your web browser (e.g. Chrome\, Safari\, Edge) without downloading any plugins or software [click for info]. The following video goes over the basic controls you can use while in a Zoom meeting. URL:https://tofs.org.uk/event/virtual-meet-up-for-adults-born-with-oa-tof-15/ LOCATION:Online CATEGORIES:Adult TOF ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2025/04/June.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20250501T200000 DTEND;TZID=Europe/London:20250501T210000 DTSTAMP:20260511T051749 CREATED:20250402T112938Z LAST-MODIFIED:20250402T112938Z UID:10000107-1746129600-1746133200@tofs.org.uk SUMMARY:Virtual meet-up for adults born with OA/TOF DESCRIPTION:Calling all adults born with OA/TOF. \nYou’re invited for a virtual cuppa and chat with other adults born with OA/TOF. \nThis informal meet-up is led by volunteers\, who are also adults born with OA/TOF\, and is a relaxed\, safe space to share stories and experiences with others that understand what you are going through. \nSo\, come along\, enjoy a relaxing cup of coffee (or tea) and meet others in the #OA / #TOF and #VACTERL community! \nMeet the volunteers: \n\nAlison born 1967\, OA/TOF (long gap). Had a colonic interposition repair at 2.5 years old at Manchester Children’s hospital (Pendlebury)\nKate\, born 1957\, OA/TOF (Short gap) and associated anomalies\nMichael\, born 1952 with OA/TOF short gap with various intervention.\nAlan\, O/A TOF surgery 1969 John Radcliffe Oxfordshire\, and VACTERL anomalies\n\nNote: TOFS charity is facilitating these events\, however they will be led by the Adult OA/TOF Working Group and the TOFS office staff won’t be taking part. \n \n \n \n \n \n \n \n Please note: Registration must be completed at least 24 hours before the start of the event. If registration deadlines are missed\, it’s likely that individuals will not be admitted to the meeting. \n \n \n \n \n \n \n \n \n CLICK HERE TO REGISTER\n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n Using Zoom \n \n \n \n In order to join this meeting\, you will need to pre-register and follow the unique link you will receive in your email. Please don’t share the link with another user as this could block access for you. Instead\, ask them to register for their own link. For the best experience\, we recommend downloading Zoom to your computer or mobile device before joining the meeting [click for more info]. It is also possible to access the meeting using your web browser (e.g. Chrome\, Safari\, Edge) without downloading any plugins or software [click for info]. The following video goes over the basic controls you can use while in a Zoom meeting. URL:https://tofs.org.uk/event/virtual-meet-up-for-adults-born-with-oa-tof-14/ LOCATION:Online CATEGORIES:Adult TOF ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2025/04/may25.png END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20250430 DTEND;VALUE=DATE:20250504 DTSTAMP:20260511T051749 CREATED:20240212T151545Z LAST-MODIFIED:20240708T153710Z UID:10000057-1745971200-1746316799@tofs.org.uk SUMMARY:InoEA 25 DESCRIPTION:Calling all adults born with OA/TOF. \nYou’re invited for a virtual cuppa and chat with other adults born with OA/TOF. \nThis informal meet-up is led by volunteers\, who are also adults born with OA/TOF\, and is a relaxed\, safe space to share stories and experiences with others that understand what you are going through. \nSo\, come along\, enjoy a relaxing cup of coffee (or tea) and meet others in the #OA / #TOF and #VACTERL community! \nMeet the volunteers: \n\nAlison born 1967\, OA/TOF (long gap). Had a colonic interposition repair at 2.5 years old at Manchester Children’s hospital (Pendlebury)\nKate\, born 1957\, OA/TOF (Short gap) and associated anomalies\nMichael\, born 1952 with OA/TOF short gap with various intervention.\nAlan\, O/A TOF surgery 1969 John Radcliffe Oxfordshire\, and VACTERL anomalies\n\nNote: TOFS charity is facilitating these events\, however they will be led by the Adult OA/TOF Working Group and the TOFS office staff won’t be taking part. \n \n \n \n \n \n \n \n Please note: Registration must be completed at least 24 hours before the start of the event. If registration deadlines are missed\, it’s likely that individuals will not be admitted to the meeting. \n \n \n \n \n \n \n \n \n CLICK HERE TO REGISTER\n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n Using Zoom \n \n \n \n In order to join this meeting\, you will need to pre-register and follow the unique link you will receive in your email. Please don’t share the link with another user as this could block access for you. Instead\, ask them to register for their own link. For the best experience\, we recommend downloading Zoom to your computer or mobile device before joining the meeting [click for more info]. It is also possible to access the meeting using your web browser (e.g. Chrome\, Safari\, Edge) without downloading any plugins or software [click for info]. The following video goes over the basic controls you can use while in a Zoom meeting. URL:https://tofs.org.uk/event/inoea-25/ LOCATION:Renaissance Polat İstanbul Hotel\, Sahilyolu Cad.No:2 Yesilyurt\, Istanbul\, 34149\, Turkey ATTACH;FMTTYPE=image/jpeg:https://tofs.org.uk/wp-content/uploads/2024/02/inoea25.jpg END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20250427 DTEND;VALUE=DATE:20250428 DTSTAMP:20260511T051749 CREATED:20240421T160414Z LAST-MODIFIED:20250427T164618Z UID:10000065-1745712000-1745798399@tofs.org.uk SUMMARY:London Marathon 2025 DESCRIPTION:Calling all adults born with OA/TOF. \nYou’re invited for a virtual cuppa and chat with other adults born with OA/TOF. \nThis informal meet-up is led by volunteers\, who are also adults born with OA/TOF\, and is a relaxed\, safe space to share stories and experiences with others that understand what you are going through. \nSo\, come along\, enjoy a relaxing cup of coffee (or tea) and meet others in the #OA / #TOF and #VACTERL community! \nMeet the volunteers: \n\nAlison born 1967\, OA/TOF (long gap). Had a colonic interposition repair at 2.5 years old at Manchester Children’s hospital (Pendlebury)\nKate\, born 1957\, OA/TOF (Short gap) and associated anomalies\nMichael\, born 1952 with OA/TOF short gap with various intervention.\nAlan\, O/A TOF surgery 1969 John Radcliffe Oxfordshire\, and VACTERL anomalies\n\nNote: TOFS charity is facilitating these events\, however they will be led by the Adult OA/TOF Working Group and the TOFS office staff won’t be taking part. \n \n \n \n \n \n \n \n Please note: Registration must be completed at least 24 hours before the start of the event. If registration deadlines are missed\, it’s likely that individuals will not be admitted to the meeting. \n \n \n \n \n \n \n \n \n CLICK HERE TO REGISTER\n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n Using Zoom \n \n \n \n In order to join this meeting\, you will need to pre-register and follow the unique link you will receive in your email. Please don’t share the link with another user as this could block access for you. Instead\, ask them to register for their own link. For the best experience\, we recommend downloading Zoom to your computer or mobile device before joining the meeting [click for more info]. It is also possible to access the meeting using your web browser (e.g. Chrome\, Safari\, Edge) without downloading any plugins or software [click for info]. The following video goes over the basic controls you can use while in a Zoom meeting. URL:https://tofs.org.uk/event/london-marathon-2025/ LOCATION:London\, London\, United Kingdom CATEGORIES:Fundraising ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2024/04/Thank-you-to-our-amazing-London-Marathon-runners.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20250424T190000 DTEND;TZID=Europe/London:20250424T200000 DTSTAMP:20260511T051749 CREATED:20241126T113022Z LAST-MODIFIED:20250404T091840Z UID:10000092-1745521200-1745524800@tofs.org.uk SUMMARY:TOFS Annual General Meeting DESCRIPTION:Calling all adults born with OA/TOF. \nYou’re invited for a virtual cuppa and chat with other adults born with OA/TOF. \nThis informal meet-up is led by volunteers\, who are also adults born with OA/TOF\, and is a relaxed\, safe space to share stories and experiences with others that understand what you are going through. \nSo\, come along\, enjoy a relaxing cup of coffee (or tea) and meet others in the #OA / #TOF and #VACTERL community! \nMeet the volunteers: \n\nAlison born 1967\, OA/TOF (long gap). Had a colonic interposition repair at 2.5 years old at Manchester Children’s hospital (Pendlebury)\nKate\, born 1957\, OA/TOF (Short gap) and associated anomalies\nMichael\, born 1952 with OA/TOF short gap with various intervention.\nAlan\, O/A TOF surgery 1969 John Radcliffe Oxfordshire\, and VACTERL anomalies\n\nNote: TOFS charity is facilitating these events\, however they will be led by the Adult OA/TOF Working Group and the TOFS office staff won’t be taking part. \n \n \n \n \n \n \n \n Please note: Registration must be completed at least 24 hours before the start of the event. If registration deadlines are missed\, it’s likely that individuals will not be admitted to the meeting. \n \n \n \n \n \n \n \n \n CLICK HERE TO REGISTER\n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n Using Zoom \n \n \n \n In order to join this meeting\, you will need to pre-register and follow the unique link you will receive in your email. Please don’t share the link with another user as this could block access for you. Instead\, ask them to register for their own link. For the best experience\, we recommend downloading Zoom to your computer or mobile device before joining the meeting [click for more info]. It is also possible to access the meeting using your web browser (e.g. Chrome\, Safari\, Edge) without downloading any plugins or software [click for info]. The following video goes over the basic controls you can use while in a Zoom meeting. URL:https://tofs.org.uk/event/tofs-annual-general-meeting/ LOCATION:Online CATEGORIES:TOFS ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2020/05/tofs-logo-no-text-500x500-1.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20250408T200000 DTEND;TZID=Europe/London:20250408T210000 DTSTAMP:20260511T051749 CREATED:20250214T111646Z LAST-MODIFIED:20250327T084714Z UID:10000104-1744142400-1744146000@tofs.org.uk SUMMARY:Talk with TLCs: Top tips for travelling with your child born with OA/TOF DESCRIPTION:Calling all adults born with OA/TOF. \nYou’re invited for a virtual cuppa and chat with other adults born with OA/TOF. \nThis informal meet-up is led by volunteers\, who are also adults born with OA/TOF\, and is a relaxed\, safe space to share stories and experiences with others that understand what you are going through. \nSo\, come along\, enjoy a relaxing cup of coffee (or tea) and meet others in the #OA / #TOF and #VACTERL community! \nMeet the volunteers: \n\nAlison born 1967\, OA/TOF (long gap). Had a colonic interposition repair at 2.5 years old at Manchester Children’s hospital (Pendlebury)\nKate\, born 1957\, OA/TOF (Short gap) and associated anomalies\nMichael\, born 1952 with OA/TOF short gap with various intervention.\nAlan\, O/A TOF surgery 1969 John Radcliffe Oxfordshire\, and VACTERL anomalies\n\nNote: TOFS charity is facilitating these events\, however they will be led by the Adult OA/TOF Working Group and the TOFS office staff won’t be taking part. \n \n \n \n \n \n \n \n Please note: Registration must be completed at least 24 hours before the start of the event. If registration deadlines are missed\, it’s likely that individuals will not be admitted to the meeting. \n \n \n \n \n \n \n \n \n CLICK HERE TO REGISTER\n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n Using Zoom \n \n \n \n In order to join this meeting\, you will need to pre-register and follow the unique link you will receive in your email. Please don’t share the link with another user as this could block access for you. Instead\, ask them to register for their own link. For the best experience\, we recommend downloading Zoom to your computer or mobile device before joining the meeting [click for more info]. It is also possible to access the meeting using your web browser (e.g. Chrome\, Safari\, Edge) without downloading any plugins or software [click for info]. The following video goes over the basic controls you can use while in a Zoom meeting. URL:https://tofs.org.uk/event/talk-with-tlcs-top-tips-for-travelling-with-your-child-born-with-oa-tof/ LOCATION:Online CATEGORIES:Parents & Carers,Support ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2025/02/Talk-with-TLCs-Travelling-tips.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20250403T200000 DTEND;TZID=Europe/London:20250403T210000 DTSTAMP:20260511T051749 CREATED:20250310T162433Z LAST-MODIFIED:20250310T162500Z UID:10000106-1743710400-1743714000@tofs.org.uk SUMMARY:Virtual meet-up for adults born with OA/TOF DESCRIPTION:Calling all adults born with OA/TOF. \nYou’re invited for a virtual cuppa and chat with other adults born with OA/TOF. \nThis informal meet-up is led by volunteers\, who are also adults born with OA/TOF\, and is a relaxed\, safe space to share stories and experiences with others that understand what you are going through. \nSo\, come along\, enjoy a relaxing cup of coffee (or tea) and meet others in the #OA / #TOF and #VACTERL community! \nMeet the volunteers: \n\nAlison born 1967\, OA/TOF (long gap). Had a colonic interposition repair at 2.5 years old at Manchester Children’s hospital (Pendlebury)\nKate\, born 1957\, OA/TOF (Short gap) and associated anomalies\nMichael\, born 1952 with OA/TOF short gap with various intervention.\nAlan\, O/A TOF surgery 1969 John Radcliffe Oxfordshire\, and VACTERL anomalies\n\nNote: TOFS charity is facilitating these events\, however they will be led by the Adult OA/TOF Working Group and the TOFS office staff won’t be taking part. \n \n \n \n \n \n \n \n Please note: Registration must be completed at least 24 hours before the start of the event. If registration deadlines are missed\, it’s likely that individuals will not be admitted to the meeting. \n \n \n \n \n \n \n \n \n CLICK HERE TO REGISTER\n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n Using Zoom \n \n \n \n In order to join this meeting\, you will need to pre-register and follow the unique link you will receive in your email. Please don’t share the link with another user as this could block access for you. Instead\, ask them to register for their own link. For the best experience\, we recommend downloading Zoom to your computer or mobile device before joining the meeting [click for more info]. It is also possible to access the meeting using your web browser (e.g. Chrome\, Safari\, Edge) without downloading any plugins or software [click for info]. The following video goes over the basic controls you can use while in a Zoom meeting. URL:https://tofs.org.uk/event/virtual-meet-up-for-adults-born-with-oa-tof/ LOCATION:Online CATEGORIES:Adult TOF ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2025/03/cuppa-and-chat-april2.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20250312T183000 DTEND;TZID=Europe/London:20250312T193000 DTSTAMP:20260511T051749 CREATED:20241212T113557Z LAST-MODIFIED:20250227T171103Z UID:10000095-1741804200-1741807800@tofs.org.uk SUMMARY:Live Q&A: Managing medications effectively DESCRIPTION:Calling all adults born with OA/TOF. \nYou’re invited for a virtual cuppa and chat with other adults born with OA/TOF. \nThis informal meet-up is led by volunteers\, who are also adults born with OA/TOF\, and is a relaxed\, safe space to share stories and experiences with others that understand what you are going through. \nSo\, come along\, enjoy a relaxing cup of coffee (or tea) and meet others in the #OA / #TOF and #VACTERL community! \nMeet the volunteers: \n\nAlison born 1967\, OA/TOF (long gap). Had a colonic interposition repair at 2.5 years old at Manchester Children’s hospital (Pendlebury)\nKate\, born 1957\, OA/TOF (Short gap) and associated anomalies\nMichael\, born 1952 with OA/TOF short gap with various intervention.\nAlan\, O/A TOF surgery 1969 John Radcliffe Oxfordshire\, and VACTERL anomalies\n\nNote: TOFS charity is facilitating these events\, however they will be led by the Adult OA/TOF Working Group and the TOFS office staff won’t be taking part. \n \n \n \n \n \n \n \n Please note: Registration must be completed at least 24 hours before the start of the event. If registration deadlines are missed\, it’s likely that individuals will not be admitted to the meeting. \n \n \n \n \n \n \n \n \n CLICK HERE TO REGISTER\n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n Using Zoom \n \n \n \n In order to join this meeting\, you will need to pre-register and follow the unique link you will receive in your email. Please don’t share the link with another user as this could block access for you. Instead\, ask them to register for their own link. For the best experience\, we recommend downloading Zoom to your computer or mobile device before joining the meeting [click for more info]. It is also possible to access the meeting using your web browser (e.g. Chrome\, Safari\, Edge) without downloading any plugins or software [click for info]. The following video goes over the basic controls you can use while in a Zoom meeting. URL:https://tofs.org.uk/event/live-qa-managing-medications-effectively/ LOCATION:Online CATEGORIES:Parents & Carers ATTACH;FMTTYPE=image/jpeg:https://tofs.org.uk/wp-content/uploads/2024/12/Chew-Adverts-6.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20250306T200000 DTEND;TZID=Europe/London:20250306T210000 DTSTAMP:20260511T051749 CREATED:20241216T112514Z LAST-MODIFIED:20250115T110032Z UID:10000098-1741291200-1741294800@tofs.org.uk SUMMARY:Virtual meet-up for adults born with OA/TOF DESCRIPTION:Calling all adults born with OA/TOF. \nYou’re invited for a virtual cuppa and chat with other adults born with OA/TOF. \nThis informal meet-up is led by volunteers\, who are also adults born with OA/TOF\, and is a relaxed\, safe space to share stories and experiences with others that understand what you are going through. \nSo\, come along\, enjoy a relaxing cup of coffee (or tea) and meet others in the #OA / #TOF and #VACTERL community! \nMeet the volunteers: \n\nAlison born 1967\, OA/TOF (long gap). Had a colonic interposition repair at 2.5 years old at Manchester Children’s hospital (Pendlebury)\nKate\, born 1957\, OA/TOF (Short gap) and associated anomalies\nMichael\, born 1952 with OA/TOF short gap with various intervention.\nAlan\, O/A TOF surgery 1969 John Radcliffe Oxfordshire\, and VACTERL anomalies\n\nNote: TOFS charity is facilitating these events\, however they will be led by the Adult OA/TOF Working Group and the TOFS office staff won’t be taking part. \n \n \n \n \n \n \n \n Please note: Registration must be completed at least 24 hours before the start of the event. If registration deadlines are missed\, it’s likely that individuals will not be admitted to the meeting. \n \n \n \n \n \n \n \n \n CLICK HERE TO REGISTER\n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n Using Zoom \n \n \n \n In order to join this meeting\, you will need to pre-register and follow the unique link you will receive in your email. Please don’t share the link with another user as this could block access for you. Instead\, ask them to register for their own link. For the best experience\, we recommend downloading Zoom to your computer or mobile device before joining the meeting [click for more info]. It is also possible to access the meeting using your web browser (e.g. Chrome\, Safari\, Edge) without downloading any plugins or software [click for info]. The following video goes over the basic controls you can use while in a Zoom meeting. URL:https://tofs.org.uk/event/virtual-meet-up-for-adults-born-with-oa-tof-12/ LOCATION:Online CATEGORIES:Adult TOF ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2024/12/cuppa-and-chat-march-1.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20250305T150000 DTEND;TZID=Europe/London:20250305T160000 DTSTAMP:20260511T051749 CREATED:20250303T122830Z LAST-MODIFIED:20250303T122915Z UID:10000105-1741186800-1741190400@tofs.org.uk SUMMARY:ERNICA: A traumatic Diagnosis - the (early) parent-child interaction in (rare) chronic paediatric diseases DESCRIPTION:Calling all adults born with OA/TOF. \nYou’re invited for a virtual cuppa and chat with other adults born with OA/TOF. \nThis informal meet-up is led by volunteers\, who are also adults born with OA/TOF\, and is a relaxed\, safe space to share stories and experiences with others that understand what you are going through. \nSo\, come along\, enjoy a relaxing cup of coffee (or tea) and meet others in the #OA / #TOF and #VACTERL community! \nMeet the volunteers: \n\nAlison born 1967\, OA/TOF (long gap). Had a colonic interposition repair at 2.5 years old at Manchester Children’s hospital (Pendlebury)\nKate\, born 1957\, OA/TOF (Short gap) and associated anomalies\nMichael\, born 1952 with OA/TOF short gap with various intervention.\nAlan\, O/A TOF surgery 1969 John Radcliffe Oxfordshire\, and VACTERL anomalies\n\nNote: TOFS charity is facilitating these events\, however they will be led by the Adult OA/TOF Working Group and the TOFS office staff won’t be taking part. \n \n \n \n \n \n \n \n Please note: Registration must be completed at least 24 hours before the start of the event. If registration deadlines are missed\, it’s likely that individuals will not be admitted to the meeting. \n \n \n \n \n \n \n \n \n CLICK HERE TO REGISTER\n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n Using Zoom \n \n \n \n In order to join this meeting\, you will need to pre-register and follow the unique link you will receive in your email. Please don’t share the link with another user as this could block access for you. Instead\, ask them to register for their own link. For the best experience\, we recommend downloading Zoom to your computer or mobile device before joining the meeting [click for more info]. It is also possible to access the meeting using your web browser (e.g. Chrome\, Safari\, Edge) without downloading any plugins or software [click for info]. The following video goes over the basic controls you can use while in a Zoom meeting. URL:https://tofs.org.uk/event/ernica-a-traumatic-diagnosis-the-early-parent-child-interaction-in-rare-chronic-paediatric-diseases/ LOCATION:Online CATEGORIES:Parents & Carers,Professional,Support ATTACH;FMTTYPE=image/jpeg:https://tofs.org.uk/wp-content/uploads/2022/11/EARNICA_400x400.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20250301T121500 DTEND;TZID=Europe/London:20250301T163000 DTSTAMP:20260511T051749 CREATED:20241116T120046Z LAST-MODIFIED:20250225T164055Z UID:10000090-1740831300-1740846600@tofs.org.uk SUMMARY:TOFS Seminar 2025 DESCRIPTION:Calling all adults born with OA/TOF. \nYou’re invited for a virtual cuppa and chat with other adults born with OA/TOF. \nThis informal meet-up is led by volunteers\, who are also adults born with OA/TOF\, and is a relaxed\, safe space to share stories and experiences with others that understand what you are going through. \nSo\, come along\, enjoy a relaxing cup of coffee (or tea) and meet others in the #OA / #TOF and #VACTERL community! \nMeet the volunteers: \n\nAlison born 1967\, OA/TOF (long gap). Had a colonic interposition repair at 2.5 years old at Manchester Children’s hospital (Pendlebury)\nKate\, born 1957\, OA/TOF (Short gap) and associated anomalies\nMichael\, born 1952 with OA/TOF short gap with various intervention.\nAlan\, O/A TOF surgery 1969 John Radcliffe Oxfordshire\, and VACTERL anomalies\n\nNote: TOFS charity is facilitating these events\, however they will be led by the Adult OA/TOF Working Group and the TOFS office staff won’t be taking part. \n \n \n \n \n \n \n \n Please note: Registration must be completed at least 24 hours before the start of the event. If registration deadlines are missed\, it’s likely that individuals will not be admitted to the meeting. \n \n \n \n \n \n \n \n \n CLICK HERE TO REGISTER\n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n Using Zoom \n \n \n \n In order to join this meeting\, you will need to pre-register and follow the unique link you will receive in your email. Please don’t share the link with another user as this could block access for you. Instead\, ask them to register for their own link. For the best experience\, we recommend downloading Zoom to your computer or mobile device before joining the meeting [click for more info]. It is also possible to access the meeting using your web browser (e.g. Chrome\, Safari\, Edge) without downloading any plugins or software [click for info]. The following video goes over the basic controls you can use while in a Zoom meeting. URL:https://tofs.org.uk/event/tofs-seminar-2025/ LOCATION:St Michaels Centre\,\, The Green\, Stoke Gifford\, Bristol\, BS34 8PD\, United Kingdom CATEGORIES:Adult TOF,Parents & Carers,Professional,Support ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2024/08/tofs-logo-tiny-1.png END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20250228 DTEND;VALUE=DATE:20250301 DTSTAMP:20260511T051749 CREATED:20250210T110913Z LAST-MODIFIED:20250227T110305Z UID:10000103-1740700800-1740787199@tofs.org.uk SUMMARY:Rare Disease Day 2025 DESCRIPTION:Calling all adults born with OA/TOF. \nYou’re invited for a virtual cuppa and chat with other adults born with OA/TOF. \nThis informal meet-up is led by volunteers\, who are also adults born with OA/TOF\, and is a relaxed\, safe space to share stories and experiences with others that understand what you are going through. \nSo\, come along\, enjoy a relaxing cup of coffee (or tea) and meet others in the #OA / #TOF and #VACTERL community! \nMeet the volunteers: \n\nAlison born 1967\, OA/TOF (long gap). Had a colonic interposition repair at 2.5 years old at Manchester Children’s hospital (Pendlebury)\nKate\, born 1957\, OA/TOF (Short gap) and associated anomalies\nMichael\, born 1952 with OA/TOF short gap with various intervention.\nAlan\, O/A TOF surgery 1969 John Radcliffe Oxfordshire\, and VACTERL anomalies\n\nNote: TOFS charity is facilitating these events\, however they will be led by the Adult OA/TOF Working Group and the TOFS office staff won’t be taking part. \n \n \n \n \n \n \n \n Please note: Registration must be completed at least 24 hours before the start of the event. If registration deadlines are missed\, it’s likely that individuals will not be admitted to the meeting. \n \n \n \n \n \n \n \n \n CLICK HERE TO REGISTER\n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n Using Zoom \n \n \n \n In order to join this meeting\, you will need to pre-register and follow the unique link you will receive in your email. Please don’t share the link with another user as this could block access for you. Instead\, ask them to register for their own link. For the best experience\, we recommend downloading Zoom to your computer or mobile device before joining the meeting [click for more info]. It is also possible to access the meeting using your web browser (e.g. Chrome\, Safari\, Edge) without downloading any plugins or software [click for info]. The following video goes over the basic controls you can use while in a Zoom meeting. URL:https://tofs.org.uk/event/rare-disease-day-2025/ LOCATION:Various locations ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2022/12/rare-disease-day.png END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20250224 DTEND;VALUE=DATE:20250303 DTSTAMP:20260511T051749 CREATED:20250117T102455Z LAST-MODIFIED:20250224T093510Z UID:10000102-1740355200-1740959999@tofs.org.uk SUMMARY:OA/TOF Awareness Week 2025 DESCRIPTION:Calling all adults born with OA/TOF. \nYou’re invited for a virtual cuppa and chat with other adults born with OA/TOF. \nThis informal meet-up is led by volunteers\, who are also adults born with OA/TOF\, and is a relaxed\, safe space to share stories and experiences with others that understand what you are going through. \nSo\, come along\, enjoy a relaxing cup of coffee (or tea) and meet others in the #OA / #TOF and #VACTERL community! \nMeet the volunteers: \n\nAlison born 1967\, OA/TOF (long gap). Had a colonic interposition repair at 2.5 years old at Manchester Children’s hospital (Pendlebury)\nKate\, born 1957\, OA/TOF (Short gap) and associated anomalies\nMichael\, born 1952 with OA/TOF short gap with various intervention.\nAlan\, O/A TOF surgery 1969 John Radcliffe Oxfordshire\, and VACTERL anomalies\n\nNote: TOFS charity is facilitating these events\, however they will be led by the Adult OA/TOF Working Group and the TOFS office staff won’t be taking part. \n \n \n \n \n \n \n \n Please note: Registration must be completed at least 24 hours before the start of the event. If registration deadlines are missed\, it’s likely that individuals will not be admitted to the meeting. \n \n \n \n \n \n \n \n \n CLICK HERE TO REGISTER\n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n Using Zoom \n \n \n \n In order to join this meeting\, you will need to pre-register and follow the unique link you will receive in your email. Please don’t share the link with another user as this could block access for you. Instead\, ask them to register for their own link. For the best experience\, we recommend downloading Zoom to your computer or mobile device before joining the meeting [click for more info]. It is also possible to access the meeting using your web browser (e.g. Chrome\, Safari\, Edge) without downloading any plugins or software [click for info]. The following video goes over the basic controls you can use while in a Zoom meeting. URL:https://tofs.org.uk/event/tofs-awareness-week-2025/ LOCATION:Various locations ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2025/01/Awareness-Week-2025-get-ready-1.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20250213T200000 DTEND;TZID=Europe/London:20250213T210000 DTSTAMP:20260511T051749 CREATED:20241218T094525Z LAST-MODIFIED:20241218T094816Z UID:10000100-1739476800-1739480400@tofs.org.uk SUMMARY:Starting Nursery\, Pre-school\, and School - Talk with TLCs DESCRIPTION:Calling all adults born with OA/TOF. \nYou’re invited for a virtual cuppa and chat with other adults born with OA/TOF. \nThis informal meet-up is led by volunteers\, who are also adults born with OA/TOF\, and is a relaxed\, safe space to share stories and experiences with others that understand what you are going through. \nSo\, come along\, enjoy a relaxing cup of coffee (or tea) and meet others in the #OA / #TOF and #VACTERL community! \nMeet the volunteers: \n\nAlison born 1967\, OA/TOF (long gap). Had a colonic interposition repair at 2.5 years old at Manchester Children’s hospital (Pendlebury)\nKate\, born 1957\, OA/TOF (Short gap) and associated anomalies\nMichael\, born 1952 with OA/TOF short gap with various intervention.\nAlan\, O/A TOF surgery 1969 John Radcliffe Oxfordshire\, and VACTERL anomalies\n\nNote: TOFS charity is facilitating these events\, however they will be led by the Adult OA/TOF Working Group and the TOFS office staff won’t be taking part. \n \n \n \n \n \n \n \n Please note: Registration must be completed at least 24 hours before the start of the event. If registration deadlines are missed\, it’s likely that individuals will not be admitted to the meeting. \n \n \n \n \n \n \n \n \n CLICK HERE TO REGISTER\n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n Using Zoom \n \n \n \n In order to join this meeting\, you will need to pre-register and follow the unique link you will receive in your email. Please don’t share the link with another user as this could block access for you. Instead\, ask them to register for their own link. For the best experience\, we recommend downloading Zoom to your computer or mobile device before joining the meeting [click for more info]. It is also possible to access the meeting using your web browser (e.g. Chrome\, Safari\, Edge) without downloading any plugins or software [click for info]. The following video goes over the basic controls you can use while in a Zoom meeting. URL:https://tofs.org.uk/event/starting-nursery-pre-school-and-school-talk-with-tlcs-2/ LOCATION:Online CATEGORIES:Parents & Carers ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2024/12/Feb25-School-Talk-with-TLCs.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20250206T200000 DTEND;TZID=Europe/London:20250206T210000 DTSTAMP:20260511T051749 CREATED:20241216T113119Z LAST-MODIFIED:20250115T105344Z UID:10000097-1738872000-1738875600@tofs.org.uk SUMMARY:Virtual meet-up for adults born with OA/TOF DESCRIPTION:Calling all adults born with OA/TOF. \nYou’re invited for a virtual cuppa and chat with other adults born with OA/TOF. \nThis informal meet-up is led by volunteers\, who are also adults born with OA/TOF\, and is a relaxed\, safe space to share stories and experiences with others that understand what you are going through. \nSo\, come along\, enjoy a relaxing cup of coffee (or tea) and meet others in the #OA / #TOF and #VACTERL community! \nMeet the volunteers: \n\nAlison born 1967\, OA/TOF (long gap). Had a colonic interposition repair at 2.5 years old at Manchester Children’s hospital (Pendlebury)\nKate\, born 1957\, OA/TOF (Short gap) and associated anomalies\nMichael\, born 1952 with OA/TOF short gap with various intervention.\nAlan\, O/A TOF surgery 1969 John Radcliffe Oxfordshire\, and VACTERL anomalies\n\nNote: TOFS charity is facilitating these events\, however they will be led by the Adult OA/TOF Working Group and the TOFS office staff won’t be taking part. \n \n \n \n \n \n \n \n Please note: Registration must be completed at least 24 hours before the start of the event. If registration deadlines are missed\, it’s likely that individuals will not be admitted to the meeting. \n \n \n \n \n \n \n \n \n CLICK HERE TO REGISTER\n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n Using Zoom \n \n \n \n In order to join this meeting\, you will need to pre-register and follow the unique link you will receive in your email. Please don’t share the link with another user as this could block access for you. Instead\, ask them to register for their own link. For the best experience\, we recommend downloading Zoom to your computer or mobile device before joining the meeting [click for more info]. It is also possible to access the meeting using your web browser (e.g. Chrome\, Safari\, Edge) without downloading any plugins or software [click for info]. The following video goes over the basic controls you can use while in a Zoom meeting. URL:https://tofs.org.uk/event/virtual-meet-up-for-adults-born-with-oa-tof-13/ LOCATION:Online CATEGORIES:Adult TOF ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2024/12/cuppa-and-chat-Feb.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20250129T190000 DTEND;TZID=Europe/London:20250129T200000 DTSTAMP:20260511T051749 CREATED:20241211T143050Z LAST-MODIFIED:20241212T172302Z UID:10000094-1738177200-1738180800@tofs.org.uk SUMMARY:Live Q&A: Long term OA/TOF related gastro issues DESCRIPTION:Calling all adults born with OA/TOF. \nYou’re invited for a virtual cuppa and chat with other adults born with OA/TOF. \nThis informal meet-up is led by volunteers\, who are also adults born with OA/TOF\, and is a relaxed\, safe space to share stories and experiences with others that understand what you are going through. \nSo\, come along\, enjoy a relaxing cup of coffee (or tea) and meet others in the #OA / #TOF and #VACTERL community! \nMeet the volunteers: \n\nAlison born 1967\, OA/TOF (long gap). Had a colonic interposition repair at 2.5 years old at Manchester Children’s hospital (Pendlebury)\nKate\, born 1957\, OA/TOF (Short gap) and associated anomalies\nMichael\, born 1952 with OA/TOF short gap with various intervention.\nAlan\, O/A TOF surgery 1969 John Radcliffe Oxfordshire\, and VACTERL anomalies\n\nNote: TOFS charity is facilitating these events\, however they will be led by the Adult OA/TOF Working Group and the TOFS office staff won’t be taking part. \n \n \n \n \n \n \n \n Please note: Registration must be completed at least 24 hours before the start of the event. If registration deadlines are missed\, it’s likely that individuals will not be admitted to the meeting. \n \n \n \n \n \n \n \n \n CLICK HERE TO REGISTER\n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n Using Zoom \n \n \n \n In order to join this meeting\, you will need to pre-register and follow the unique link you will receive in your email. Please don’t share the link with another user as this could block access for you. Instead\, ask them to register for their own link. For the best experience\, we recommend downloading Zoom to your computer or mobile device before joining the meeting [click for more info]. It is also possible to access the meeting using your web browser (e.g. Chrome\, Safari\, Edge) without downloading any plugins or software [click for info]. The following video goes over the basic controls you can use while in a Zoom meeting. URL:https://tofs.org.uk/event/live-qa-long-term-oa-tof-related-gastro-issues/ LOCATION:Online CATEGORIES:Adult TOF ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2024/12/Chew-Adverts2.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20250126T110000 DTEND;TZID=Europe/London:20250126T130000 DTSTAMP:20260511T051749 CREATED:20241120T164519Z LAST-MODIFIED:20241120T165036Z UID:10000091-1737889200-1737896400@tofs.org.uk SUMMARY:Local Meet-up: Essex DESCRIPTION:Calling all adults born with OA/TOF. \nYou’re invited for a virtual cuppa and chat with other adults born with OA/TOF. \nThis informal meet-up is led by volunteers\, who are also adults born with OA/TOF\, and is a relaxed\, safe space to share stories and experiences with others that understand what you are going through. \nSo\, come along\, enjoy a relaxing cup of coffee (or tea) and meet others in the #OA / #TOF and #VACTERL community! \nMeet the volunteers: \n\nAlison born 1967\, OA/TOF (long gap). Had a colonic interposition repair at 2.5 years old at Manchester Children’s hospital (Pendlebury)\nKate\, born 1957\, OA/TOF (Short gap) and associated anomalies\nMichael\, born 1952 with OA/TOF short gap with various intervention.\nAlan\, O/A TOF surgery 1969 John Radcliffe Oxfordshire\, and VACTERL anomalies\n\nNote: TOFS charity is facilitating these events\, however they will be led by the Adult OA/TOF Working Group and the TOFS office staff won’t be taking part. \n \n \n \n \n \n \n \n Please note: Registration must be completed at least 24 hours before the start of the event. If registration deadlines are missed\, it’s likely that individuals will not be admitted to the meeting. \n \n \n \n \n \n \n \n \n CLICK HERE TO REGISTER\n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n Using Zoom \n \n \n \n In order to join this meeting\, you will need to pre-register and follow the unique link you will receive in your email. Please don’t share the link with another user as this could block access for you. Instead\, ask them to register for their own link. For the best experience\, we recommend downloading Zoom to your computer or mobile device before joining the meeting [click for more info]. It is also possible to access the meeting using your web browser (e.g. Chrome\, Safari\, Edge) without downloading any plugins or software [click for info]. The following video goes over the basic controls you can use while in a Zoom meeting. URL:https://tofs.org.uk/event/local-meet-up-essex/ LOCATION:Mace Playce – Soft Play Centre\, Unit 3\, Cuton Hall Lane\, Chelmsford\, CM2 6PB\, United Kingdom ATTACH;FMTTYPE=image/jpeg:https://tofs.org.uk/wp-content/uploads/2024/04/local-meet-up.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20250102T200000 DTEND;TZID=Europe/London:20250102T210000 DTSTAMP:20260511T051749 CREATED:20241216T112411Z LAST-MODIFIED:20241217T155920Z UID:10000096-1735848000-1735851600@tofs.org.uk SUMMARY:Virtual meet-up for adults born with OA/TOF DESCRIPTION:Calling all adults born with OA/TOF. \nYou’re invited for a virtual cuppa and chat with other adults born with OA/TOF. \nThis informal meet-up is led by volunteers\, who are also adults born with OA/TOF\, and is a relaxed\, safe space to share stories and experiences with others that understand what you are going through. \nSo\, come along\, enjoy a relaxing cup of coffee (or tea) and meet others in the #OA / #TOF and #VACTERL community! \nMeet the volunteers: \n\nAlison born 1967\, OA/TOF (long gap). Had a colonic interposition repair at 2.5 years old at Manchester Children’s hospital (Pendlebury)\nKate\, born 1957\, OA/TOF (Short gap) and associated anomalies\nMichael\, born 1952 with OA/TOF short gap with various intervention.\nAlan\, O/A TOF surgery 1969 John Radcliffe Oxfordshire\, and VACTERL anomalies\n\nNote: TOFS charity is facilitating these events\, however they will be led by the Adult OA/TOF Working Group and the TOFS office staff won’t be taking part. \n \n \n \n \n \n \n \n Please note: Registration must be completed at least 24 hours before the start of the event. If registration deadlines are missed\, it’s likely that individuals will not be admitted to the meeting. \n \n \n \n \n \n \n \n \n CLICK HERE TO REGISTER\n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n Using Zoom \n \n \n \n In order to join this meeting\, you will need to pre-register and follow the unique link you will receive in your email. Please don’t share the link with another user as this could block access for you. Instead\, ask them to register for their own link. For the best experience\, we recommend downloading Zoom to your computer or mobile device before joining the meeting [click for more info]. It is also possible to access the meeting using your web browser (e.g. Chrome\, Safari\, Edge) without downloading any plugins or software [click for info]. The following video goes over the basic controls you can use while in a Zoom meeting. URL:https://tofs.org.uk/event/virtual-meet-up-for-adults-born-with-oa-tof-11/ LOCATION:Online CATEGORIES:Adult TOF ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2024/12/cuppa-and-chat-Jan-2.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20241216T190000 DTEND;TZID=Europe/London:20241216T200000 DTSTAMP:20260511T051749 CREATED:20241209T165550Z LAST-MODIFIED:20241209T165655Z UID:10000093-1734375600-1734379200@tofs.org.uk SUMMARY:Virtual meet-up for adults born with OA/TOF DESCRIPTION:Calling all adults born with OA/TOF. \nYou’re invited for a virtual cuppa and chat with other adults born with OA/TOF. \nThis informal meet-up is led by volunteers\, who are also adults born with OA/TOF\, and is a relaxed\, safe space to share stories and experiences with others that understand what you are going through. \nSo\, come along\, enjoy a relaxing cup of coffee (or tea) and meet others in the #OA / #TOF and #VACTERL community! \nMeet the volunteers: \n\nAlison born 1967\, OA/TOF (long gap). Had a colonic interposition repair at 2.5 years old at Manchester Children’s hospital (Pendlebury)\nKate\, born 1957\, OA/TOF (Short gap) and associated anomalies\nMichael\, born 1952 with OA/TOF short gap with various intervention.\nAlan\, O/A TOF surgery 1969 John Radcliffe Oxfordshire\, and VACTERL anomalies\n\nNote: TOFS charity is facilitating these events\, however they will be led by the Adult OA/TOF Working Group and the TOFS office staff won’t be taking part. \n \n \n \n \n \n \n \n Please note: Registration must be completed at least 24 hours before the start of the event. If registration deadlines are missed\, it’s likely that individuals will not be admitted to the meeting. \n \n \n \n \n \n \n \n \n CLICK HERE TO REGISTER\n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n Using Zoom \n \n \n \n In order to join this meeting\, you will need to pre-register and follow the unique link you will receive in your email. Please don’t share the link with another user as this could block access for you. Instead\, ask them to register for their own link. For the best experience\, we recommend downloading Zoom to your computer or mobile device before joining the meeting [click for more info]. It is also possible to access the meeting using your web browser (e.g. Chrome\, Safari\, Edge) without downloading any plugins or software [click for info]. The following video goes over the basic controls you can use while in a Zoom meeting. URL:https://tofs.org.uk/event/virtual-meet-up-for-adults-born-with-oa-tof-10/ LOCATION:Online CATEGORIES:Adult TOF ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2024/12/cuppa-and-chat-l6dec.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20241205T190000 DTEND;TZID=Europe/London:20241205T200000 DTSTAMP:20260511T051749 CREATED:20241112T151836Z LAST-MODIFIED:20241112T151857Z UID:10000089-1733425200-1733428800@tofs.org.uk SUMMARY:Virtual meet-up for adults born with OA/TOF DESCRIPTION:Calling all adults born with OA/TOF. \nYou’re invited for a virtual cuppa and chat with other adults born with OA/TOF. \nThis informal meet-up is led by volunteers\, who are also adults born with OA/TOF\, and is a relaxed\, safe space to share stories and experiences with others that understand what you are going through. \nSo\, come along\, enjoy a relaxing cup of coffee (or tea) and meet others in the #OA / #TOF and #VACTERL community! \nMeet the volunteers: \n\nAlison born 1967\, OA/TOF (long gap). Had a colonic interposition repair at 2.5 years old at Manchester Children’s hospital (Pendlebury)\nKate\, born 1957\, OA/TOF (Short gap) and associated anomalies\nMichael\, born 1952 with OA/TOF short gap with various intervention.\nAlan\, O/A TOF surgery 1969 John Radcliffe Oxfordshire\, and VACTERL anomalies\n\nNote: TOFS charity is facilitating these events\, however they will be led by the Adult OA/TOF Working Group and the TOFS office staff won’t be taking part. \n \n \n \n \n \n \n \n Please note: Registration must be completed at least 24 hours before the start of the event. If registration deadlines are missed\, it’s likely that individuals will not be admitted to the meeting. \n \n \n \n \n \n \n \n \n CLICK HERE TO REGISTER\n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n Using Zoom \n \n \n \n In order to join this meeting\, you will need to pre-register and follow the unique link you will receive in your email. Please don’t share the link with another user as this could block access for you. Instead\, ask them to register for their own link. For the best experience\, we recommend downloading Zoom to your computer or mobile device before joining the meeting [click for more info]. It is also possible to access the meeting using your web browser (e.g. Chrome\, Safari\, Edge) without downloading any plugins or software [click for info]. The following video goes over the basic controls you can use while in a Zoom meeting. URL:https://tofs.org.uk/event/virtual-meet-up-for-adults-born-with-oa-tof-9/ LOCATION:Online ATTACH;FMTTYPE=image/jpeg:https://tofs.org.uk/wp-content/uploads/2024/11/cuppa-and-chat-05dec25.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20241130T140000 DTEND;TZID=Europe/London:20241130T160000 DTSTAMP:20260511T051749 CREATED:20241105T144459Z LAST-MODIFIED:20241114T110706Z UID:10000087-1732975200-1732982400@tofs.org.uk SUMMARY:Local Meet-up: Liverpool DESCRIPTION:Calling all adults born with OA/TOF. \nYou’re invited for a virtual cuppa and chat with other adults born with OA/TOF. \nThis informal meet-up is led by volunteers\, who are also adults born with OA/TOF\, and is a relaxed\, safe space to share stories and experiences with others that understand what you are going through. \nSo\, come along\, enjoy a relaxing cup of coffee (or tea) and meet others in the #OA / #TOF and #VACTERL community! \nMeet the volunteers: \n\nAlison born 1967\, OA/TOF (long gap). Had a colonic interposition repair at 2.5 years old at Manchester Children’s hospital (Pendlebury)\nKate\, born 1957\, OA/TOF (Short gap) and associated anomalies\nMichael\, born 1952 with OA/TOF short gap with various intervention.\nAlan\, O/A TOF surgery 1969 John Radcliffe Oxfordshire\, and VACTERL anomalies\n\nNote: TOFS charity is facilitating these events\, however they will be led by the Adult OA/TOF Working Group and the TOFS office staff won’t be taking part. \n \n \n \n \n \n \n \n Please note: Registration must be completed at least 24 hours before the start of the event. If registration deadlines are missed\, it’s likely that individuals will not be admitted to the meeting. \n \n \n \n \n \n \n \n \n CLICK HERE TO REGISTER\n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n Using Zoom \n \n \n \n In order to join this meeting\, you will need to pre-register and follow the unique link you will receive in your email. Please don’t share the link with another user as this could block access for you. Instead\, ask them to register for their own link. For the best experience\, we recommend downloading Zoom to your computer or mobile device before joining the meeting [click for more info]. It is also possible to access the meeting using your web browser (e.g. Chrome\, Safari\, Edge) without downloading any plugins or software [click for info]. The following video goes over the basic controls you can use while in a Zoom meeting. URL:https://tofs.org.uk/event/local-meet-up-liverpool/ LOCATION:Bowring Park Golf Club\, Roby Road\, Huyton\, Liverpool\, L36 4HD\, United Kingdom ATTACH;FMTTYPE=image/jpeg:https://tofs.org.uk/wp-content/uploads/2024/04/local-meet-up.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20241117T120000 DTEND;TZID=Europe/London:20241117T150000 DTSTAMP:20260511T051749 CREATED:20241106T085426Z LAST-MODIFIED:20241106T090619Z UID:10000088-1731844800-1731855600@tofs.org.uk SUMMARY:Local Meet-up: London DESCRIPTION:Calling all adults born with OA/TOF. \nYou’re invited for a virtual cuppa and chat with other adults born with OA/TOF. \nThis informal meet-up is led by volunteers\, who are also adults born with OA/TOF\, and is a relaxed\, safe space to share stories and experiences with others that understand what you are going through. \nSo\, come along\, enjoy a relaxing cup of coffee (or tea) and meet others in the #OA / #TOF and #VACTERL community! \nMeet the volunteers: \n\nAlison born 1967\, OA/TOF (long gap). Had a colonic interposition repair at 2.5 years old at Manchester Children’s hospital (Pendlebury)\nKate\, born 1957\, OA/TOF (Short gap) and associated anomalies\nMichael\, born 1952 with OA/TOF short gap with various intervention.\nAlan\, O/A TOF surgery 1969 John Radcliffe Oxfordshire\, and VACTERL anomalies\n\nNote: TOFS charity is facilitating these events\, however they will be led by the Adult OA/TOF Working Group and the TOFS office staff won’t be taking part. \n \n \n \n \n \n \n \n Please note: Registration must be completed at least 24 hours before the start of the event. If registration deadlines are missed\, it’s likely that individuals will not be admitted to the meeting. \n \n \n \n \n \n \n \n \n CLICK HERE TO REGISTER\n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n Using Zoom \n \n \n \n In order to join this meeting\, you will need to pre-register and follow the unique link you will receive in your email. Please don’t share the link with another user as this could block access for you. Instead\, ask them to register for their own link. For the best experience\, we recommend downloading Zoom to your computer or mobile device before joining the meeting [click for more info]. It is also possible to access the meeting using your web browser (e.g. Chrome\, Safari\, Edge) without downloading any plugins or software [click for info]. The following video goes over the basic controls you can use while in a Zoom meeting. URL:https://tofs.org.uk/event/local-meet-up-london/ LOCATION:Ronald McDonald House Evelina London\, 216 Lambeth Road\, London\, SE1\, United Kingdom ATTACH;FMTTYPE=image/jpeg:https://tofs.org.uk/wp-content/uploads/2024/04/local-meet-up.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20241116T123000 DTEND;TZID=Europe/London:20241116T170000 DTSTAMP:20260511T051749 CREATED:20240502T082238Z LAST-MODIFIED:20241003T075639Z UID:10000067-1731760200-1731776400@tofs.org.uk SUMMARY:TOFS Seminar 2024 DESCRIPTION:Calling all adults born with OA/TOF. \nYou’re invited for a virtual cuppa and chat with other adults born with OA/TOF. \nThis informal meet-up is led by volunteers\, who are also adults born with OA/TOF\, and is a relaxed\, safe space to share stories and experiences with others that understand what you are going through. \nSo\, come along\, enjoy a relaxing cup of coffee (or tea) and meet others in the #OA / #TOF and #VACTERL community! \nMeet the volunteers: \n\nAlison born 1967\, OA/TOF (long gap). Had a colonic interposition repair at 2.5 years old at Manchester Children’s hospital (Pendlebury)\nKate\, born 1957\, OA/TOF (Short gap) and associated anomalies\nMichael\, born 1952 with OA/TOF short gap with various intervention.\nAlan\, O/A TOF surgery 1969 John Radcliffe Oxfordshire\, and VACTERL anomalies\n\nNote: TOFS charity is facilitating these events\, however they will be led by the Adult OA/TOF Working Group and the TOFS office staff won’t be taking part. \n \n \n \n \n \n \n \n Please note: Registration must be completed at least 24 hours before the start of the event. If registration deadlines are missed\, it’s likely that individuals will not be admitted to the meeting. \n \n \n \n \n \n \n \n \n CLICK HERE TO REGISTER\n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n Using Zoom \n \n \n \n In order to join this meeting\, you will need to pre-register and follow the unique link you will receive in your email. Please don’t share the link with another user as this could block access for you. Instead\, ask them to register for their own link. For the best experience\, we recommend downloading Zoom to your computer or mobile device before joining the meeting [click for more info]. It is also possible to access the meeting using your web browser (e.g. Chrome\, Safari\, Edge) without downloading any plugins or software [click for info]. The following video goes over the basic controls you can use while in a Zoom meeting. URL:https://tofs.org.uk/event/adult-family-information-seminar/ LOCATION:EngineRooms\, Birchwood Park\, Warrington\, Cheshire\, WA3 6YN\, United Kingdom ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2020/05/tofs-logo-no-text-500x500-1.png END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20241116 DTEND;VALUE=DATE:20241118 DTSTAMP:20260511T051749 CREATED:20240130T161620Z LAST-MODIFIED:20240201T114653Z UID:10000054-1731715200-1731887999@tofs.org.uk SUMMARY:Run Alton Towers DESCRIPTION:Calling all adults born with OA/TOF. \nYou’re invited for a virtual cuppa and chat with other adults born with OA/TOF. \nThis informal meet-up is led by volunteers\, who are also adults born with OA/TOF\, and is a relaxed\, safe space to share stories and experiences with others that understand what you are going through. \nSo\, come along\, enjoy a relaxing cup of coffee (or tea) and meet others in the #OA / #TOF and #VACTERL community! \nMeet the volunteers: \n\nAlison born 1967\, OA/TOF (long gap). Had a colonic interposition repair at 2.5 years old at Manchester Children’s hospital (Pendlebury)\nKate\, born 1957\, OA/TOF (Short gap) and associated anomalies\nMichael\, born 1952 with OA/TOF short gap with various intervention.\nAlan\, O/A TOF surgery 1969 John Radcliffe Oxfordshire\, and VACTERL anomalies\n\nNote: TOFS charity is facilitating these events\, however they will be led by the Adult OA/TOF Working Group and the TOFS office staff won’t be taking part. \n \n \n \n \n \n \n \n Please note: Registration must be completed at least 24 hours before the start of the event. If registration deadlines are missed\, it’s likely that individuals will not be admitted to the meeting. \n \n \n \n \n \n \n \n \n CLICK HERE TO REGISTER\n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n Using Zoom \n \n \n \n In order to join this meeting\, you will need to pre-register and follow the unique link you will receive in your email. Please don’t share the link with another user as this could block access for you. Instead\, ask them to register for their own link. For the best experience\, we recommend downloading Zoom to your computer or mobile device before joining the meeting [click for more info]. It is also possible to access the meeting using your web browser (e.g. Chrome\, Safari\, Edge) without downloading any plugins or software [click for info]. The following video goes over the basic controls you can use while in a Zoom meeting. URL:https://tofs.org.uk/event/run-alton-towers/ LOCATION:Alton Towers\, Farley Lane\, Alton\, Staffordshire\, ST10 4DB\, United Kingdom CATEGORIES:Fundraising ATTACH;FMTTYPE=image/jpeg:https://tofs.org.uk/wp-content/uploads/2024/01/Run-Alton-Towers5.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20241107T190000 DTEND;TZID=Europe/London:20241107T200000 DTSTAMP:20260511T051749 CREATED:20241010T080802Z LAST-MODIFIED:20241010T080802Z UID:10000085-1731006000-1731009600@tofs.org.uk SUMMARY:Virtual meet-up for adults born with OA/TOF DESCRIPTION:Calling all adults born with OA/TOF. \nYou’re invited for a virtual cuppa and chat with other adults born with OA/TOF. \nThis informal meet-up is led by volunteers\, who are also adults born with OA/TOF\, and is a relaxed\, safe space to share stories and experiences with others that understand what you are going through. \nSo\, come along\, enjoy a relaxing cup of coffee (or tea) and meet others in the #OA / #TOF and #VACTERL community! \nMeet the volunteers: \n\nAlison born 1967\, OA/TOF (long gap). Had a colonic interposition repair at 2.5 years old at Manchester Children’s hospital (Pendlebury)\nKate\, born 1957\, OA/TOF (Short gap) and associated anomalies\nMichael\, born 1952 with OA/TOF short gap with various intervention.\nAlan\, O/A TOF surgery 1969 John Radcliffe Oxfordshire\, and VACTERL anomalies\n\nNote: TOFS charity is facilitating these events\, however they will be led by the Adult OA/TOF Working Group and the TOFS office staff won’t be taking part. \n \n \n \n \n \n \n \n Please note: Registration must be completed at least 24 hours before the start of the event. If registration deadlines are missed\, it’s likely that individuals will not be admitted to the meeting. \n \n \n \n \n \n \n \n \n CLICK HERE TO REGISTER\n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n Using Zoom \n \n \n \n In order to join this meeting\, you will need to pre-register and follow the unique link you will receive in your email. Please don’t share the link with another user as this could block access for you. Instead\, ask them to register for their own link. For the best experience\, we recommend downloading Zoom to your computer or mobile device before joining the meeting [click for more info]. It is also possible to access the meeting using your web browser (e.g. Chrome\, Safari\, Edge) without downloading any plugins or software [click for info]. The following video goes over the basic controls you can use while in a Zoom meeting. URL:https://tofs.org.uk/event/virtual-meet-up-for-adults-born-with-oa-tof-8/ LOCATION:Online CATEGORIES:Adult TOF ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2024/05/cuppa-and-chat-coffee.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20241103T100000 DTEND;TZID=Europe/London:20241103T140000 DTSTAMP:20260511T051749 CREATED:20241014T093726Z LAST-MODIFIED:20241014T100618Z UID:10000086-1730628000-1730642400@tofs.org.uk SUMMARY:Local Meet-up – Brisbane DESCRIPTION:Calling all adults born with OA/TOF. \nYou’re invited for a virtual cuppa and chat with other adults born with OA/TOF. \nThis informal meet-up is led by volunteers\, who are also adults born with OA/TOF\, and is a relaxed\, safe space to share stories and experiences with others that understand what you are going through. \nSo\, come along\, enjoy a relaxing cup of coffee (or tea) and meet others in the #OA / #TOF and #VACTERL community! \nMeet the volunteers: \n\nAlison born 1967\, OA/TOF (long gap). Had a colonic interposition repair at 2.5 years old at Manchester Children’s hospital (Pendlebury)\nKate\, born 1957\, OA/TOF (Short gap) and associated anomalies\nMichael\, born 1952 with OA/TOF short gap with various intervention.\nAlan\, O/A TOF surgery 1969 John Radcliffe Oxfordshire\, and VACTERL anomalies\n\nNote: TOFS charity is facilitating these events\, however they will be led by the Adult OA/TOF Working Group and the TOFS office staff won’t be taking part. \n \n \n \n \n \n \n \n Please note: Registration must be completed at least 24 hours before the start of the event. If registration deadlines are missed\, it’s likely that individuals will not be admitted to the meeting. \n \n \n \n \n \n \n \n \n CLICK HERE TO REGISTER\n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n Using Zoom \n \n \n \n In order to join this meeting\, you will need to pre-register and follow the unique link you will receive in your email. Please don’t share the link with another user as this could block access for you. Instead\, ask them to register for their own link. For the best experience\, we recommend downloading Zoom to your computer or mobile device before joining the meeting [click for more info]. It is also possible to access the meeting using your web browser (e.g. Chrome\, Safari\, Edge) without downloading any plugins or software [click for info]. The following video goes over the basic controls you can use while in a Zoom meeting. URL:https://tofs.org.uk/event/local-meet-up-brisbane/ LOCATION:South Bank\, Little Stanley St\, Brisbane\, 4101\, Australia ATTACH;FMTTYPE=image/jpeg:https://tofs.org.uk/wp-content/uploads/2024/04/local-meet-up.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20241024T190000 DTEND;TZID=Europe/London:20241024T200000 DTSTAMP:20260511T051749 CREATED:20240920T161219Z LAST-MODIFIED:20240920T161303Z UID:10000084-1729796400-1729800000@tofs.org.uk SUMMARY:Live Q&A: Feeding experiences and oral aversion DESCRIPTION:Calling all adults born with OA/TOF. \nYou’re invited for a virtual cuppa and chat with other adults born with OA/TOF. \nThis informal meet-up is led by volunteers\, who are also adults born with OA/TOF\, and is a relaxed\, safe space to share stories and experiences with others that understand what you are going through. \nSo\, come along\, enjoy a relaxing cup of coffee (or tea) and meet others in the #OA / #TOF and #VACTERL community! \nMeet the volunteers: \n\nAlison born 1967\, OA/TOF (long gap). Had a colonic interposition repair at 2.5 years old at Manchester Children’s hospital (Pendlebury)\nKate\, born 1957\, OA/TOF (Short gap) and associated anomalies\nMichael\, born 1952 with OA/TOF short gap with various intervention.\nAlan\, O/A TOF surgery 1969 John Radcliffe Oxfordshire\, and VACTERL anomalies\n\nNote: TOFS charity is facilitating these events\, however they will be led by the Adult OA/TOF Working Group and the TOFS office staff won’t be taking part. \n \n \n \n \n \n \n \n Please note: Registration must be completed at least 24 hours before the start of the event. If registration deadlines are missed\, it’s likely that individuals will not be admitted to the meeting. \n \n \n \n \n \n \n \n \n CLICK HERE TO REGISTER\n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n Using Zoom \n \n \n \n In order to join this meeting\, you will need to pre-register and follow the unique link you will receive in your email. Please don’t share the link with another user as this could block access for you. Instead\, ask them to register for their own link. For the best experience\, we recommend downloading Zoom to your computer or mobile device before joining the meeting [click for more info]. It is also possible to access the meeting using your web browser (e.g. Chrome\, Safari\, Edge) without downloading any plugins or software [click for info]. The following video goes over the basic controls you can use while in a Zoom meeting. URL:https://tofs.org.uk/event/live-qa-feeding-experiences-and-oral-aversion/ LOCATION:Online CATEGORIES:Adult TOF,Parents & Carers ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2024/09/Event-Pin-Feeding-Experiences-and-Oral-Aversion.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20241001T200000 DTEND;TZID=Europe/London:20241001T210000 DTSTAMP:20260511T051749 CREATED:20240730T140649Z LAST-MODIFIED:20240730T140844Z UID:10000080-1727812800-1727816400@tofs.org.uk SUMMARY:Reflux management: Talk with TLCs DESCRIPTION:Calling all adults born with OA/TOF. \nYou’re invited for a virtual cuppa and chat with other adults born with OA/TOF. \nThis informal meet-up is led by volunteers\, who are also adults born with OA/TOF\, and is a relaxed\, safe space to share stories and experiences with others that understand what you are going through. \nSo\, come along\, enjoy a relaxing cup of coffee (or tea) and meet others in the #OA / #TOF and #VACTERL community! \nMeet the volunteers: \n\nAlison born 1967\, OA/TOF (long gap). Had a colonic interposition repair at 2.5 years old at Manchester Children’s hospital (Pendlebury)\nKate\, born 1957\, OA/TOF (Short gap) and associated anomalies\nMichael\, born 1952 with OA/TOF short gap with various intervention.\nAlan\, O/A TOF surgery 1969 John Radcliffe Oxfordshire\, and VACTERL anomalies\n\nNote: TOFS charity is facilitating these events\, however they will be led by the Adult OA/TOF Working Group and the TOFS office staff won’t be taking part. \n \n \n \n \n \n \n \n Please note: Registration must be completed at least 24 hours before the start of the event. If registration deadlines are missed\, it’s likely that individuals will not be admitted to the meeting. \n \n \n \n \n \n \n \n \n CLICK HERE TO REGISTER\n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n \n Using Zoom \n \n \n \n In order to join this meeting\, you will need to pre-register and follow the unique link you will receive in your email. Please don’t share the link with another user as this could block access for you. Instead\, ask them to register for their own link. For the best experience\, we recommend downloading Zoom to your computer or mobile device before joining the meeting [click for more info]. It is also possible to access the meeting using your web browser (e.g. Chrome\, Safari\, Edge) without downloading any plugins or software [click for info]. The following video goes over the basic controls you can use while in a Zoom meeting. URL:https://tofs.org.uk/event/reflux-management-talk-with-tlcs/ LOCATION:Online CATEGORIES:Parents & Carers ATTACH;FMTTYPE=image/jpeg:https://tofs.org.uk/wp-content/uploads/2024/07/TLC-events-ads-13.jpg END:VEVENT END:VCALENDAR