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UID:10000129-1760227200-1760313599@tofs.org.uk
SUMMARY:Myles Clabby Memorial Cup
DESCRIPTION:TOFS 2026 Seminar Important Update:We’ve been made aware that there is a part closure on the Piccadilly Line on Saturday. Depending on which direction you’re coming from\, please walk from Holborn Station (we believe the central line is open) or get off the train at Kings Cross/St Pancras and walk from there. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									The TOFS seminar is being held at the Institute of Child Health (ICH)\, London on Saturday\, 21st March\, 2026. Why attendJoin us for our in-person OA/TOF Seminar in London to hear from some of the UK’s leading specialists on the work being done to improve the care of today’s OA/TOF children and to address the long-term issues affecting adults born with the condition. This is a great opportunity to meet\, make connections and share experiences with other families and adults born with OA/TOF and associated conditions. Who should attend?This seminar is aimed at adults born with OA/TOF\, parents and carers of children born with OA/TOF and medical professionals. Note: Registration on the day opens at 9.30am with presentations beginning at 10.30am. 								\n				\n				\n				\n									\n					\n						\n						\n							\n									CLICK HERE FOR TICKETS\n					\n					\n				\n								\n				\n					\n		\n				\n			\n						\n				\n									Event co-sponsored by  								\n				\n				\n				\n																														\n				\n				\n				\n																\n															\n															\n				\n				\n				\n									NIHR Great Ormond Street Hospital Biomedical Research Centre 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n				\n				\n					Presentations				\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Eating\, drinking & swallowing difficulties children born with OA/TOF								\n				\n				\n				\n									Presented by Dr Alex Stewart – Speech and Language Therapist (GOSH) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Experience of parents of children born with oesophageal atresia								\n				\n				\n				\n									Presented by Dr Vuokko Wallace – Clinical Psychologist\, University of Bath 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Gastro issues and Eosinophilic Oesophagitis (EoE) in OA/TOF patients								\n				\n				\n				\n									Presented by Dr Osvaldo Borrelli – Head of Clinical Service\, Consultant Paediatric Gastroenterologist (GOSH) and Honorary Senior Lecturer (UCL) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Role of TOF Multi Disciplinary Team (MDT) pathway in improving care in oesophageal atresia								\n				\n				\n				\n									Presented by Ms Dhanya Mullassery – Consultant Neonatal and Paediatric Surgeon (GOSH) and Honorary Senior Lecturer (UCL) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Respiratory updates from the INoEA (International Network of Esophageal Atresia) conference and ERS (European Respiratory Society) congress								\n				\n				\n				\n									Presented by Dr Caroline Love\, Chair of TOFS Medical Liaison & Research Subcommittee and Patient Advisory Committee member of the European Lung Foundation (ELF) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									Click here to see the full schedule 								\n				\n				\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									Any Questions?When is the seminar?The seminar is on March 21st\, 2026. Registration on the day opens at 9.30am with presentations beginning at 10.30am. The seminar will close at 4.30pm. How much are tickets?Tickets are free to TOFS’ Members\, Associates and Health Professionals. If you wish to join TOFS\, please sign up at – tofs.org.uk/join-tofs/ Is this a TOFS party?No\, this is an information seminar. Can I watch the seminar online?This is an in-person event only and will not be live streamed. We encourage members to attend in person to get the full benefits of the event\, listening to the speakers; interacting with the Q&A and discussion sessions; meeting TOFS volunteers and staff and chatting with other members of TOFS who will be attending. Some of the presentations may be recorded and posted online\, at a later date. Can I bring my child/children?Yes\, but you might prefer not to. Children below secondary school age are not permitted into the lecture room while presentations are being made. A separate room will be available on the day for families\, and the presentations will be relayed to a screen in that room. All children must be cared for by a responsible adult at all times. The excellent Coram’s Fields Children’s play park is just over the road from the venue. Will there be lunch?Yes\, a light lunch will be provided\, and seating will be available. Will I get a chance to speak to other families / people affected by OA/TOF?Yes\, we will have both lunch and refreshment breaks to allow you chance to chat with other attendees. Is there wheelchair access?We are very grateful to Great Ormond Street Hospital for providing our venue for the day. However\, this is an older building and while the venue is accessible to all\, the lecture theatre itself is accessible via stairs only. If you have any disability that may affect your access or participation in the event\, please let us know when ordering your tickets.Is there a cancellation deadline?Yes. If you can no longer attend\, please let us know via info@tofs.org.uk no later than 7 days before the seminar. This is to ensure that we only cater for the correct number of guests. Where is the seminar taking place?UCL Great Ormond Street Institute of Child Health\, WC1N 1EH If you have any further questions\, please contact us. 								\n				\n					\n		\n				\n			\n						\n				\n									\n					\n				\n											\n									\n\n			\n					\n								\n											\n									\n\n			\n					\n								\n											\n									\n\n			\n					\n								\n									\n															\n													\n						\n													\n																\n												\n				\n								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					How to get there				\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Where is the seminar?				\n				\n				\n				\n									The seminar is at the Institute of Child Health (ICH)\, which is a part of University College London – but situated on the GOSH site. The entrance to ICH is at 30 Guilford Street\, just north of Great Ormond Street itself. Postcode is WC1N 1 EH. 								\n				\n					\n		\n				\n			\n						\n				\n																\n															\n															\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									TOFS 2026 Seminar Important Update:We’ve been made aware that there is a part closure on the Piccadilly Line on Saturday. Depending on which direction you’re coming from\, please walk from Holborn Station (we believe the central line is open) or get off the train at Kings Cross/St Pancras and walk from there. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Public transport				\n				\n				\n				\n									The nearest tube station to ICH / GOSH is Russell Square on the Piccadilly Line. The next closest is Holborn\, on the Central and Piccadilly lines. Kings Cross and Euston stations are both only 0.8 miles away. Farringdon station (Elizabeth line and Metropolitan / Circle plus some overground commuter trains from Brighton\, Cambridge\, Huntingdon) is 0.9 miles. 								\n				\n				\n				\n					Travelling by car				\n				\n				\n				\n									Please note\, the venue is within both the London congestion charge zone and the  ULEZ (Ultra Low Emission) zone. There is some on-street metered parking around GOSH\, including in Guilford Street itself.  Much of this becomes free after 13:30 on a Saturday.  Moreover a significant amount of residents-only parking in this area becomes derestricted (i.e. free) on a Saturday afternoon. There are large underground public car parks close to GOSH at: Brunswick square (NCP) – postcode WC1N 1AF; the Imperial Hotel in Russell Square and underneath the Holiday Inn -Bloomsbury\, postcode WC1N 1HT. 								\n				\n					\n		\n				\n			\n						\n				\n					Outer London Tube stations with parking				\n				\n				\n				\n									Several tube stations near the end of the network in the North and West segments of outer London are close to the M25 and to some of the motorways into London. Unfortunately\, most of the stations listed below are within the ULEZ zone but  outside of the London congestion charge zone. Hillingdon (Metropolitan and Piccadilly lines). Has a car park which TfL says has 283 spaces. Postcode is UB10 9NR. This station is next to a junction on the A40 Western Avenue road\, only 5 miles from the M25 /M40 junction. Moreover\, the next station along the line (Ickenham) also has a large car park effectively providing an overflow car park. Stanmore (Jubilee line). Has a car park which TfL says has 450 spaces. Postcode is HA7 4PD. From the A41 Edgware way\, this is a direct drive along London Road. The A41 is accessed directly from M1 junction 4\, which is only 2 miles from the station. This is also close to the main A1 road. Cockfosters (Piccadilly line) Has a car park which TfL says has 232 spaces. Postcode is EN4 0DZ. It is a direct 3 mile drive down the A111 from the Potter’s Bar Junction (24) of the M25. Epping (Central line) Has a car park which Sabaparking says has 532 spaces. This station is outside the London ULEZ near to the junction of the M11 and M25. It is however not so convenient from the viewpoint of motorway junctions. Postcode is CM16 4HW.  Debden (Central line) Has a car park which Sabaparking says has 206 spaces. It is however only half a mile along the A 1168 from M11 junction 5 and also outside London ULEZ. Postcode is IG10 3TG. Upminster (District line) The car park here appears to be run by NCP\, which says there are 342 spaces. Postcode is RM14 2TD. It is only 3 miles from M25 junction 29\, via a route involving the A127 toward London. However it is inside the ULEZ. This might be a good option for those coming from East Anglia. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Nearby places to eat				\n				\n				\n				\n									Brunswick centre (https://maps.app.goo.gl/UwBNKmhUe9ciib1G9)  and opposite Russell Square station have a wide variety of places to eat\, including: Itsu\, Nandos\, LEON\, Pret\, Franco MancaLamb’s conduit street has a number of higher end restaurants.Redemptions roasters (Lamb’s conduit street) are great for coffee.
URL:https://tofs.org.uk/event/myles-clabby-memorial-cup/
LOCATION:St. Roch’s F.C\, 713 Royston Rd\, Glasgow\, G21 2DT\, United Kingdom
CATEGORIES:Fundraising
ATTACH;FMTTYPE=image/jpeg:https://tofs.org.uk/wp-content/uploads/2025/09/myles-clabby-memorial-cup-2025.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20251012
DTEND;VALUE=DATE:20251013
DTSTAMP:20260424T122850
CREATED:20241220T102338Z
LAST-MODIFIED:20250820T111602Z
UID:10000101-1760227200-1760313599@tofs.org.uk
SUMMARY:Royal Parks Half Marathon
DESCRIPTION:TOFS 2026 Seminar Important Update:We’ve been made aware that there is a part closure on the Piccadilly Line on Saturday. Depending on which direction you’re coming from\, please walk from Holborn Station (we believe the central line is open) or get off the train at Kings Cross/St Pancras and walk from there. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									The TOFS seminar is being held at the Institute of Child Health (ICH)\, London on Saturday\, 21st March\, 2026. Why attendJoin us for our in-person OA/TOF Seminar in London to hear from some of the UK’s leading specialists on the work being done to improve the care of today’s OA/TOF children and to address the long-term issues affecting adults born with the condition. This is a great opportunity to meet\, make connections and share experiences with other families and adults born with OA/TOF and associated conditions. Who should attend?This seminar is aimed at adults born with OA/TOF\, parents and carers of children born with OA/TOF and medical professionals. Note: Registration on the day opens at 9.30am with presentations beginning at 10.30am. 								\n				\n				\n				\n									\n					\n						\n						\n							\n									CLICK HERE FOR TICKETS\n					\n					\n				\n								\n				\n					\n		\n				\n			\n						\n				\n									Event co-sponsored by  								\n				\n				\n				\n																														\n				\n				\n				\n																\n															\n															\n				\n				\n				\n									NIHR Great Ormond Street Hospital Biomedical Research Centre 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n				\n				\n					Presentations				\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Eating\, drinking & swallowing difficulties children born with OA/TOF								\n				\n				\n				\n									Presented by Dr Alex Stewart – Speech and Language Therapist (GOSH) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Experience of parents of children born with oesophageal atresia								\n				\n				\n				\n									Presented by Dr Vuokko Wallace – Clinical Psychologist\, University of Bath 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Gastro issues and Eosinophilic Oesophagitis (EoE) in OA/TOF patients								\n				\n				\n				\n									Presented by Dr Osvaldo Borrelli – Head of Clinical Service\, Consultant Paediatric Gastroenterologist (GOSH) and Honorary Senior Lecturer (UCL) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Role of TOF Multi Disciplinary Team (MDT) pathway in improving care in oesophageal atresia								\n				\n				\n				\n									Presented by Ms Dhanya Mullassery – Consultant Neonatal and Paediatric Surgeon (GOSH) and Honorary Senior Lecturer (UCL) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Respiratory updates from the INoEA (International Network of Esophageal Atresia) conference and ERS (European Respiratory Society) congress								\n				\n				\n				\n									Presented by Dr Caroline Love\, Chair of TOFS Medical Liaison & Research Subcommittee and Patient Advisory Committee member of the European Lung Foundation (ELF) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									Click here to see the full schedule 								\n				\n				\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									Any Questions?When is the seminar?The seminar is on March 21st\, 2026. Registration on the day opens at 9.30am with presentations beginning at 10.30am. The seminar will close at 4.30pm. How much are tickets?Tickets are free to TOFS’ Members\, Associates and Health Professionals. If you wish to join TOFS\, please sign up at – tofs.org.uk/join-tofs/ Is this a TOFS party?No\, this is an information seminar. Can I watch the seminar online?This is an in-person event only and will not be live streamed. We encourage members to attend in person to get the full benefits of the event\, listening to the speakers; interacting with the Q&A and discussion sessions; meeting TOFS volunteers and staff and chatting with other members of TOFS who will be attending. Some of the presentations may be recorded and posted online\, at a later date. Can I bring my child/children?Yes\, but you might prefer not to. Children below secondary school age are not permitted into the lecture room while presentations are being made. A separate room will be available on the day for families\, and the presentations will be relayed to a screen in that room. All children must be cared for by a responsible adult at all times. The excellent Coram’s Fields Children’s play park is just over the road from the venue. Will there be lunch?Yes\, a light lunch will be provided\, and seating will be available. Will I get a chance to speak to other families / people affected by OA/TOF?Yes\, we will have both lunch and refreshment breaks to allow you chance to chat with other attendees. Is there wheelchair access?We are very grateful to Great Ormond Street Hospital for providing our venue for the day. However\, this is an older building and while the venue is accessible to all\, the lecture theatre itself is accessible via stairs only. If you have any disability that may affect your access or participation in the event\, please let us know when ordering your tickets.Is there a cancellation deadline?Yes. If you can no longer attend\, please let us know via info@tofs.org.uk no later than 7 days before the seminar. This is to ensure that we only cater for the correct number of guests. Where is the seminar taking place?UCL Great Ormond Street Institute of Child Health\, WC1N 1EH If you have any further questions\, please contact us. 								\n				\n					\n		\n				\n			\n						\n				\n									\n					\n				\n											\n									\n\n			\n					\n								\n											\n									\n\n			\n					\n								\n											\n									\n\n			\n					\n								\n									\n															\n													\n						\n													\n																\n												\n				\n								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					How to get there				\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Where is the seminar?				\n				\n				\n				\n									The seminar is at the Institute of Child Health (ICH)\, which is a part of University College London – but situated on the GOSH site. The entrance to ICH is at 30 Guilford Street\, just north of Great Ormond Street itself. Postcode is WC1N 1 EH. 								\n				\n					\n		\n				\n			\n						\n				\n																\n															\n															\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									TOFS 2026 Seminar Important Update:We’ve been made aware that there is a part closure on the Piccadilly Line on Saturday. Depending on which direction you’re coming from\, please walk from Holborn Station (we believe the central line is open) or get off the train at Kings Cross/St Pancras and walk from there. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Public transport				\n				\n				\n				\n									The nearest tube station to ICH / GOSH is Russell Square on the Piccadilly Line. The next closest is Holborn\, on the Central and Piccadilly lines. Kings Cross and Euston stations are both only 0.8 miles away. Farringdon station (Elizabeth line and Metropolitan / Circle plus some overground commuter trains from Brighton\, Cambridge\, Huntingdon) is 0.9 miles. 								\n				\n				\n				\n					Travelling by car				\n				\n				\n				\n									Please note\, the venue is within both the London congestion charge zone and the  ULEZ (Ultra Low Emission) zone. There is some on-street metered parking around GOSH\, including in Guilford Street itself.  Much of this becomes free after 13:30 on a Saturday.  Moreover a significant amount of residents-only parking in this area becomes derestricted (i.e. free) on a Saturday afternoon. There are large underground public car parks close to GOSH at: Brunswick square (NCP) – postcode WC1N 1AF; the Imperial Hotel in Russell Square and underneath the Holiday Inn -Bloomsbury\, postcode WC1N 1HT. 								\n				\n					\n		\n				\n			\n						\n				\n					Outer London Tube stations with parking				\n				\n				\n				\n									Several tube stations near the end of the network in the North and West segments of outer London are close to the M25 and to some of the motorways into London. Unfortunately\, most of the stations listed below are within the ULEZ zone but  outside of the London congestion charge zone. Hillingdon (Metropolitan and Piccadilly lines). Has a car park which TfL says has 283 spaces. Postcode is UB10 9NR. This station is next to a junction on the A40 Western Avenue road\, only 5 miles from the M25 /M40 junction. Moreover\, the next station along the line (Ickenham) also has a large car park effectively providing an overflow car park. Stanmore (Jubilee line). Has a car park which TfL says has 450 spaces. Postcode is HA7 4PD. From the A41 Edgware way\, this is a direct drive along London Road. The A41 is accessed directly from M1 junction 4\, which is only 2 miles from the station. This is also close to the main A1 road. Cockfosters (Piccadilly line) Has a car park which TfL says has 232 spaces. Postcode is EN4 0DZ. It is a direct 3 mile drive down the A111 from the Potter’s Bar Junction (24) of the M25. Epping (Central line) Has a car park which Sabaparking says has 532 spaces. This station is outside the London ULEZ near to the junction of the M11 and M25. It is however not so convenient from the viewpoint of motorway junctions. Postcode is CM16 4HW.  Debden (Central line) Has a car park which Sabaparking says has 206 spaces. It is however only half a mile along the A 1168 from M11 junction 5 and also outside London ULEZ. Postcode is IG10 3TG. Upminster (District line) The car park here appears to be run by NCP\, which says there are 342 spaces. Postcode is RM14 2TD. It is only 3 miles from M25 junction 29\, via a route involving the A127 toward London. However it is inside the ULEZ. This might be a good option for those coming from East Anglia. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Nearby places to eat				\n				\n				\n				\n									Brunswick centre (https://maps.app.goo.gl/UwBNKmhUe9ciib1G9)  and opposite Russell Square station have a wide variety of places to eat\, including: Itsu\, Nandos\, LEON\, Pret\, Franco MancaLamb’s conduit street has a number of higher end restaurants.Redemptions roasters (Lamb’s conduit street) are great for coffee.
URL:https://tofs.org.uk/event/royal-parks-half-marathon/
LOCATION:Hyde Park\, London\, W2 5DS\, United Kingdom
CATEGORIES:Fundraising
ATTACH;FMTTYPE=image/jpeg:https://tofs.org.uk/wp-content/uploads/2024/04/royal-parks-half.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20251008T190000
DTEND;TZID=Europe/London:20251008T200000
DTSTAMP:20260424T122850
CREATED:20250514T143508Z
LAST-MODIFIED:20250926T131336Z
UID:10000117-1759950000-1759953600@tofs.org.uk
SUMMARY:Live Q&A: OA/TOF related respiratory issues for adults
DESCRIPTION:TOFS 2026 Seminar Important Update:We’ve been made aware that there is a part closure on the Piccadilly Line on Saturday. Depending on which direction you’re coming from\, please walk from Holborn Station (we believe the central line is open) or get off the train at Kings Cross/St Pancras and walk from there. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									The TOFS seminar is being held at the Institute of Child Health (ICH)\, London on Saturday\, 21st March\, 2026. Why attendJoin us for our in-person OA/TOF Seminar in London to hear from some of the UK’s leading specialists on the work being done to improve the care of today’s OA/TOF children and to address the long-term issues affecting adults born with the condition. This is a great opportunity to meet\, make connections and share experiences with other families and adults born with OA/TOF and associated conditions. Who should attend?This seminar is aimed at adults born with OA/TOF\, parents and carers of children born with OA/TOF and medical professionals. Note: Registration on the day opens at 9.30am with presentations beginning at 10.30am. 								\n				\n				\n				\n									\n					\n						\n						\n							\n									CLICK HERE FOR TICKETS\n					\n					\n				\n								\n				\n					\n		\n				\n			\n						\n				\n									Event co-sponsored by  								\n				\n				\n				\n																														\n				\n				\n				\n																\n															\n															\n				\n				\n				\n									NIHR Great Ormond Street Hospital Biomedical Research Centre 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n				\n				\n					Presentations				\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Eating\, drinking & swallowing difficulties children born with OA/TOF								\n				\n				\n				\n									Presented by Dr Alex Stewart – Speech and Language Therapist (GOSH) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Experience of parents of children born with oesophageal atresia								\n				\n				\n				\n									Presented by Dr Vuokko Wallace – Clinical Psychologist\, University of Bath 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Gastro issues and Eosinophilic Oesophagitis (EoE) in OA/TOF patients								\n				\n				\n				\n									Presented by Dr Osvaldo Borrelli – Head of Clinical Service\, Consultant Paediatric Gastroenterologist (GOSH) and Honorary Senior Lecturer (UCL) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Role of TOF Multi Disciplinary Team (MDT) pathway in improving care in oesophageal atresia								\n				\n				\n				\n									Presented by Ms Dhanya Mullassery – Consultant Neonatal and Paediatric Surgeon (GOSH) and Honorary Senior Lecturer (UCL) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Respiratory updates from the INoEA (International Network of Esophageal Atresia) conference and ERS (European Respiratory Society) congress								\n				\n				\n				\n									Presented by Dr Caroline Love\, Chair of TOFS Medical Liaison & Research Subcommittee and Patient Advisory Committee member of the European Lung Foundation (ELF) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									Click here to see the full schedule 								\n				\n				\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									Any Questions?When is the seminar?The seminar is on March 21st\, 2026. Registration on the day opens at 9.30am with presentations beginning at 10.30am. The seminar will close at 4.30pm. How much are tickets?Tickets are free to TOFS’ Members\, Associates and Health Professionals. If you wish to join TOFS\, please sign up at – tofs.org.uk/join-tofs/ Is this a TOFS party?No\, this is an information seminar. Can I watch the seminar online?This is an in-person event only and will not be live streamed. We encourage members to attend in person to get the full benefits of the event\, listening to the speakers; interacting with the Q&A and discussion sessions; meeting TOFS volunteers and staff and chatting with other members of TOFS who will be attending. Some of the presentations may be recorded and posted online\, at a later date. Can I bring my child/children?Yes\, but you might prefer not to. Children below secondary school age are not permitted into the lecture room while presentations are being made. A separate room will be available on the day for families\, and the presentations will be relayed to a screen in that room. All children must be cared for by a responsible adult at all times. The excellent Coram’s Fields Children’s play park is just over the road from the venue. Will there be lunch?Yes\, a light lunch will be provided\, and seating will be available. Will I get a chance to speak to other families / people affected by OA/TOF?Yes\, we will have both lunch and refreshment breaks to allow you chance to chat with other attendees. Is there wheelchair access?We are very grateful to Great Ormond Street Hospital for providing our venue for the day. However\, this is an older building and while the venue is accessible to all\, the lecture theatre itself is accessible via stairs only. If you have any disability that may affect your access or participation in the event\, please let us know when ordering your tickets.Is there a cancellation deadline?Yes. If you can no longer attend\, please let us know via info@tofs.org.uk no later than 7 days before the seminar. This is to ensure that we only cater for the correct number of guests. Where is the seminar taking place?UCL Great Ormond Street Institute of Child Health\, WC1N 1EH If you have any further questions\, please contact us. 								\n				\n					\n		\n				\n			\n						\n				\n									\n					\n				\n											\n									\n\n			\n					\n								\n											\n									\n\n			\n					\n								\n											\n									\n\n			\n					\n								\n									\n															\n													\n						\n													\n																\n												\n				\n								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					How to get there				\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Where is the seminar?				\n				\n				\n				\n									The seminar is at the Institute of Child Health (ICH)\, which is a part of University College London – but situated on the GOSH site. The entrance to ICH is at 30 Guilford Street\, just north of Great Ormond Street itself. Postcode is WC1N 1 EH. 								\n				\n					\n		\n				\n			\n						\n				\n																\n															\n															\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									TOFS 2026 Seminar Important Update:We’ve been made aware that there is a part closure on the Piccadilly Line on Saturday. Depending on which direction you’re coming from\, please walk from Holborn Station (we believe the central line is open) or get off the train at Kings Cross/St Pancras and walk from there. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Public transport				\n				\n				\n				\n									The nearest tube station to ICH / GOSH is Russell Square on the Piccadilly Line. The next closest is Holborn\, on the Central and Piccadilly lines. Kings Cross and Euston stations are both only 0.8 miles away. Farringdon station (Elizabeth line and Metropolitan / Circle plus some overground commuter trains from Brighton\, Cambridge\, Huntingdon) is 0.9 miles. 								\n				\n				\n				\n					Travelling by car				\n				\n				\n				\n									Please note\, the venue is within both the London congestion charge zone and the  ULEZ (Ultra Low Emission) zone. There is some on-street metered parking around GOSH\, including in Guilford Street itself.  Much of this becomes free after 13:30 on a Saturday.  Moreover a significant amount of residents-only parking in this area becomes derestricted (i.e. free) on a Saturday afternoon. There are large underground public car parks close to GOSH at: Brunswick square (NCP) – postcode WC1N 1AF; the Imperial Hotel in Russell Square and underneath the Holiday Inn -Bloomsbury\, postcode WC1N 1HT. 								\n				\n					\n		\n				\n			\n						\n				\n					Outer London Tube stations with parking				\n				\n				\n				\n									Several tube stations near the end of the network in the North and West segments of outer London are close to the M25 and to some of the motorways into London. Unfortunately\, most of the stations listed below are within the ULEZ zone but  outside of the London congestion charge zone. Hillingdon (Metropolitan and Piccadilly lines). Has a car park which TfL says has 283 spaces. Postcode is UB10 9NR. This station is next to a junction on the A40 Western Avenue road\, only 5 miles from the M25 /M40 junction. Moreover\, the next station along the line (Ickenham) also has a large car park effectively providing an overflow car park. Stanmore (Jubilee line). Has a car park which TfL says has 450 spaces. Postcode is HA7 4PD. From the A41 Edgware way\, this is a direct drive along London Road. The A41 is accessed directly from M1 junction 4\, which is only 2 miles from the station. This is also close to the main A1 road. Cockfosters (Piccadilly line) Has a car park which TfL says has 232 spaces. Postcode is EN4 0DZ. It is a direct 3 mile drive down the A111 from the Potter’s Bar Junction (24) of the M25. Epping (Central line) Has a car park which Sabaparking says has 532 spaces. This station is outside the London ULEZ near to the junction of the M11 and M25. It is however not so convenient from the viewpoint of motorway junctions. Postcode is CM16 4HW.  Debden (Central line) Has a car park which Sabaparking says has 206 spaces. It is however only half a mile along the A 1168 from M11 junction 5 and also outside London ULEZ. Postcode is IG10 3TG. Upminster (District line) The car park here appears to be run by NCP\, which says there are 342 spaces. Postcode is RM14 2TD. It is only 3 miles from M25 junction 29\, via a route involving the A127 toward London. However it is inside the ULEZ. This might be a good option for those coming from East Anglia. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Nearby places to eat				\n				\n				\n				\n									Brunswick centre (https://maps.app.goo.gl/UwBNKmhUe9ciib1G9)  and opposite Russell Square station have a wide variety of places to eat\, including: Itsu\, Nandos\, LEON\, Pret\, Franco MancaLamb’s conduit street has a number of higher end restaurants.Redemptions roasters (Lamb’s conduit street) are great for coffee.
URL:https://tofs.org.uk/event/live-qa-oa-tof-related-respiratory-issues-for-adults/
LOCATION:Online
CATEGORIES:Adult TOF
ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2025/05/Oct25-NEW.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20251002T200000
DTEND;TZID=Europe/London:20251002T210000
DTSTAMP:20260424T122850
CREATED:20250812T094622Z
LAST-MODIFIED:20250812T095638Z
UID:10000125-1759435200-1759438800@tofs.org.uk
SUMMARY:Virtual meet-up for adults born with OA/TOF
DESCRIPTION:TOFS 2026 Seminar Important Update:We’ve been made aware that there is a part closure on the Piccadilly Line on Saturday. Depending on which direction you’re coming from\, please walk from Holborn Station (we believe the central line is open) or get off the train at Kings Cross/St Pancras and walk from there. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									The TOFS seminar is being held at the Institute of Child Health (ICH)\, London on Saturday\, 21st March\, 2026. Why attendJoin us for our in-person OA/TOF Seminar in London to hear from some of the UK’s leading specialists on the work being done to improve the care of today’s OA/TOF children and to address the long-term issues affecting adults born with the condition. This is a great opportunity to meet\, make connections and share experiences with other families and adults born with OA/TOF and associated conditions. Who should attend?This seminar is aimed at adults born with OA/TOF\, parents and carers of children born with OA/TOF and medical professionals. Note: Registration on the day opens at 9.30am with presentations beginning at 10.30am. 								\n				\n				\n				\n									\n					\n						\n						\n							\n									CLICK HERE FOR TICKETS\n					\n					\n				\n								\n				\n					\n		\n				\n			\n						\n				\n									Event co-sponsored by  								\n				\n				\n				\n																														\n				\n				\n				\n																\n															\n															\n				\n				\n				\n									NIHR Great Ormond Street Hospital Biomedical Research Centre 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n				\n				\n					Presentations				\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Eating\, drinking & swallowing difficulties children born with OA/TOF								\n				\n				\n				\n									Presented by Dr Alex Stewart – Speech and Language Therapist (GOSH) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Experience of parents of children born with oesophageal atresia								\n				\n				\n				\n									Presented by Dr Vuokko Wallace – Clinical Psychologist\, University of Bath 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Gastro issues and Eosinophilic Oesophagitis (EoE) in OA/TOF patients								\n				\n				\n				\n									Presented by Dr Osvaldo Borrelli – Head of Clinical Service\, Consultant Paediatric Gastroenterologist (GOSH) and Honorary Senior Lecturer (UCL) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Role of TOF Multi Disciplinary Team (MDT) pathway in improving care in oesophageal atresia								\n				\n				\n				\n									Presented by Ms Dhanya Mullassery – Consultant Neonatal and Paediatric Surgeon (GOSH) and Honorary Senior Lecturer (UCL) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Respiratory updates from the INoEA (International Network of Esophageal Atresia) conference and ERS (European Respiratory Society) congress								\n				\n				\n				\n									Presented by Dr Caroline Love\, Chair of TOFS Medical Liaison & Research Subcommittee and Patient Advisory Committee member of the European Lung Foundation (ELF) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									Click here to see the full schedule 								\n				\n				\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									Any Questions?When is the seminar?The seminar is on March 21st\, 2026. Registration on the day opens at 9.30am with presentations beginning at 10.30am. The seminar will close at 4.30pm. How much are tickets?Tickets are free to TOFS’ Members\, Associates and Health Professionals. If you wish to join TOFS\, please sign up at – tofs.org.uk/join-tofs/ Is this a TOFS party?No\, this is an information seminar. Can I watch the seminar online?This is an in-person event only and will not be live streamed. We encourage members to attend in person to get the full benefits of the event\, listening to the speakers; interacting with the Q&A and discussion sessions; meeting TOFS volunteers and staff and chatting with other members of TOFS who will be attending. Some of the presentations may be recorded and posted online\, at a later date. Can I bring my child/children?Yes\, but you might prefer not to. Children below secondary school age are not permitted into the lecture room while presentations are being made. A separate room will be available on the day for families\, and the presentations will be relayed to a screen in that room. All children must be cared for by a responsible adult at all times. The excellent Coram’s Fields Children’s play park is just over the road from the venue. Will there be lunch?Yes\, a light lunch will be provided\, and seating will be available. Will I get a chance to speak to other families / people affected by OA/TOF?Yes\, we will have both lunch and refreshment breaks to allow you chance to chat with other attendees. Is there wheelchair access?We are very grateful to Great Ormond Street Hospital for providing our venue for the day. However\, this is an older building and while the venue is accessible to all\, the lecture theatre itself is accessible via stairs only. If you have any disability that may affect your access or participation in the event\, please let us know when ordering your tickets.Is there a cancellation deadline?Yes. If you can no longer attend\, please let us know via info@tofs.org.uk no later than 7 days before the seminar. This is to ensure that we only cater for the correct number of guests. Where is the seminar taking place?UCL Great Ormond Street Institute of Child Health\, WC1N 1EH If you have any further questions\, please contact us. 								\n				\n					\n		\n				\n			\n						\n				\n									\n					\n				\n											\n									\n\n			\n					\n								\n											\n									\n\n			\n					\n								\n											\n									\n\n			\n					\n								\n									\n															\n													\n						\n													\n																\n												\n				\n								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					How to get there				\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Where is the seminar?				\n				\n				\n				\n									The seminar is at the Institute of Child Health (ICH)\, which is a part of University College London – but situated on the GOSH site. The entrance to ICH is at 30 Guilford Street\, just north of Great Ormond Street itself. Postcode is WC1N 1 EH. 								\n				\n					\n		\n				\n			\n						\n				\n																\n															\n															\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									TOFS 2026 Seminar Important Update:We’ve been made aware that there is a part closure on the Piccadilly Line on Saturday. Depending on which direction you’re coming from\, please walk from Holborn Station (we believe the central line is open) or get off the train at Kings Cross/St Pancras and walk from there. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Public transport				\n				\n				\n				\n									The nearest tube station to ICH / GOSH is Russell Square on the Piccadilly Line. The next closest is Holborn\, on the Central and Piccadilly lines. Kings Cross and Euston stations are both only 0.8 miles away. Farringdon station (Elizabeth line and Metropolitan / Circle plus some overground commuter trains from Brighton\, Cambridge\, Huntingdon) is 0.9 miles. 								\n				\n				\n				\n					Travelling by car				\n				\n				\n				\n									Please note\, the venue is within both the London congestion charge zone and the  ULEZ (Ultra Low Emission) zone. There is some on-street metered parking around GOSH\, including in Guilford Street itself.  Much of this becomes free after 13:30 on a Saturday.  Moreover a significant amount of residents-only parking in this area becomes derestricted (i.e. free) on a Saturday afternoon. There are large underground public car parks close to GOSH at: Brunswick square (NCP) – postcode WC1N 1AF; the Imperial Hotel in Russell Square and underneath the Holiday Inn -Bloomsbury\, postcode WC1N 1HT. 								\n				\n					\n		\n				\n			\n						\n				\n					Outer London Tube stations with parking				\n				\n				\n				\n									Several tube stations near the end of the network in the North and West segments of outer London are close to the M25 and to some of the motorways into London. Unfortunately\, most of the stations listed below are within the ULEZ zone but  outside of the London congestion charge zone. Hillingdon (Metropolitan and Piccadilly lines). Has a car park which TfL says has 283 spaces. Postcode is UB10 9NR. This station is next to a junction on the A40 Western Avenue road\, only 5 miles from the M25 /M40 junction. Moreover\, the next station along the line (Ickenham) also has a large car park effectively providing an overflow car park. Stanmore (Jubilee line). Has a car park which TfL says has 450 spaces. Postcode is HA7 4PD. From the A41 Edgware way\, this is a direct drive along London Road. The A41 is accessed directly from M1 junction 4\, which is only 2 miles from the station. This is also close to the main A1 road. Cockfosters (Piccadilly line) Has a car park which TfL says has 232 spaces. Postcode is EN4 0DZ. It is a direct 3 mile drive down the A111 from the Potter’s Bar Junction (24) of the M25. Epping (Central line) Has a car park which Sabaparking says has 532 spaces. This station is outside the London ULEZ near to the junction of the M11 and M25. It is however not so convenient from the viewpoint of motorway junctions. Postcode is CM16 4HW.  Debden (Central line) Has a car park which Sabaparking says has 206 spaces. It is however only half a mile along the A 1168 from M11 junction 5 and also outside London ULEZ. Postcode is IG10 3TG. Upminster (District line) The car park here appears to be run by NCP\, which says there are 342 spaces. Postcode is RM14 2TD. It is only 3 miles from M25 junction 29\, via a route involving the A127 toward London. However it is inside the ULEZ. This might be a good option for those coming from East Anglia. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Nearby places to eat				\n				\n				\n				\n									Brunswick centre (https://maps.app.goo.gl/UwBNKmhUe9ciib1G9)  and opposite Russell Square station have a wide variety of places to eat\, including: Itsu\, Nandos\, LEON\, Pret\, Franco MancaLamb’s conduit street has a number of higher end restaurants.Redemptions roasters (Lamb’s conduit street) are great for coffee.
URL:https://tofs.org.uk/event/virtual-meet-up-for-adults-born-with-oa-tof-4/
LOCATION:Online
CATEGORIES:Adult TOF
ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2025/08/cuppa-and-chat-10-Oct25.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20250909T200000
DTEND;TZID=Europe/London:20250909T210000
DTSTAMP:20260424T122851
CREATED:20250429T101411Z
LAST-MODIFIED:20250812T153348Z
UID:10000115-1757448000-1757451600@tofs.org.uk
SUMMARY:OA/TOF: A father's perspective
DESCRIPTION:TOFS 2026 Seminar Important Update:We’ve been made aware that there is a part closure on the Piccadilly Line on Saturday. Depending on which direction you’re coming from\, please walk from Holborn Station (we believe the central line is open) or get off the train at Kings Cross/St Pancras and walk from there. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									The TOFS seminar is being held at the Institute of Child Health (ICH)\, London on Saturday\, 21st March\, 2026. Why attendJoin us for our in-person OA/TOF Seminar in London to hear from some of the UK’s leading specialists on the work being done to improve the care of today’s OA/TOF children and to address the long-term issues affecting adults born with the condition. This is a great opportunity to meet\, make connections and share experiences with other families and adults born with OA/TOF and associated conditions. Who should attend?This seminar is aimed at adults born with OA/TOF\, parents and carers of children born with OA/TOF and medical professionals. Note: Registration on the day opens at 9.30am with presentations beginning at 10.30am. 								\n				\n				\n				\n									\n					\n						\n						\n							\n									CLICK HERE FOR TICKETS\n					\n					\n				\n								\n				\n					\n		\n				\n			\n						\n				\n									Event co-sponsored by  								\n				\n				\n				\n																														\n				\n				\n				\n																\n															\n															\n				\n				\n				\n									NIHR Great Ormond Street Hospital Biomedical Research Centre 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n				\n				\n					Presentations				\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Eating\, drinking & swallowing difficulties children born with OA/TOF								\n				\n				\n				\n									Presented by Dr Alex Stewart – Speech and Language Therapist (GOSH) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Experience of parents of children born with oesophageal atresia								\n				\n				\n				\n									Presented by Dr Vuokko Wallace – Clinical Psychologist\, University of Bath 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Gastro issues and Eosinophilic Oesophagitis (EoE) in OA/TOF patients								\n				\n				\n				\n									Presented by Dr Osvaldo Borrelli – Head of Clinical Service\, Consultant Paediatric Gastroenterologist (GOSH) and Honorary Senior Lecturer (UCL) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Role of TOF Multi Disciplinary Team (MDT) pathway in improving care in oesophageal atresia								\n				\n				\n				\n									Presented by Ms Dhanya Mullassery – Consultant Neonatal and Paediatric Surgeon (GOSH) and Honorary Senior Lecturer (UCL) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Respiratory updates from the INoEA (International Network of Esophageal Atresia) conference and ERS (European Respiratory Society) congress								\n				\n				\n				\n									Presented by Dr Caroline Love\, Chair of TOFS Medical Liaison & Research Subcommittee and Patient Advisory Committee member of the European Lung Foundation (ELF) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									Click here to see the full schedule 								\n				\n				\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									Any Questions?When is the seminar?The seminar is on March 21st\, 2026. Registration on the day opens at 9.30am with presentations beginning at 10.30am. The seminar will close at 4.30pm. How much are tickets?Tickets are free to TOFS’ Members\, Associates and Health Professionals. If you wish to join TOFS\, please sign up at – tofs.org.uk/join-tofs/ Is this a TOFS party?No\, this is an information seminar. Can I watch the seminar online?This is an in-person event only and will not be live streamed. We encourage members to attend in person to get the full benefits of the event\, listening to the speakers; interacting with the Q&A and discussion sessions; meeting TOFS volunteers and staff and chatting with other members of TOFS who will be attending. Some of the presentations may be recorded and posted online\, at a later date. Can I bring my child/children?Yes\, but you might prefer not to. Children below secondary school age are not permitted into the lecture room while presentations are being made. A separate room will be available on the day for families\, and the presentations will be relayed to a screen in that room. All children must be cared for by a responsible adult at all times. The excellent Coram’s Fields Children’s play park is just over the road from the venue. Will there be lunch?Yes\, a light lunch will be provided\, and seating will be available. Will I get a chance to speak to other families / people affected by OA/TOF?Yes\, we will have both lunch and refreshment breaks to allow you chance to chat with other attendees. Is there wheelchair access?We are very grateful to Great Ormond Street Hospital for providing our venue for the day. However\, this is an older building and while the venue is accessible to all\, the lecture theatre itself is accessible via stairs only. If you have any disability that may affect your access or participation in the event\, please let us know when ordering your tickets.Is there a cancellation deadline?Yes. If you can no longer attend\, please let us know via info@tofs.org.uk no later than 7 days before the seminar. This is to ensure that we only cater for the correct number of guests. Where is the seminar taking place?UCL Great Ormond Street Institute of Child Health\, WC1N 1EH If you have any further questions\, please contact us. 								\n				\n					\n		\n				\n			\n						\n				\n									\n					\n				\n											\n									\n\n			\n					\n								\n											\n									\n\n			\n					\n								\n											\n									\n\n			\n					\n								\n									\n															\n													\n						\n													\n																\n												\n				\n								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					How to get there				\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Where is the seminar?				\n				\n				\n				\n									The seminar is at the Institute of Child Health (ICH)\, which is a part of University College London – but situated on the GOSH site. The entrance to ICH is at 30 Guilford Street\, just north of Great Ormond Street itself. Postcode is WC1N 1 EH. 								\n				\n					\n		\n				\n			\n						\n				\n																\n															\n															\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									TOFS 2026 Seminar Important Update:We’ve been made aware that there is a part closure on the Piccadilly Line on Saturday. Depending on which direction you’re coming from\, please walk from Holborn Station (we believe the central line is open) or get off the train at Kings Cross/St Pancras and walk from there. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Public transport				\n				\n				\n				\n									The nearest tube station to ICH / GOSH is Russell Square on the Piccadilly Line. The next closest is Holborn\, on the Central and Piccadilly lines. Kings Cross and Euston stations are both only 0.8 miles away. Farringdon station (Elizabeth line and Metropolitan / Circle plus some overground commuter trains from Brighton\, Cambridge\, Huntingdon) is 0.9 miles. 								\n				\n				\n				\n					Travelling by car				\n				\n				\n				\n									Please note\, the venue is within both the London congestion charge zone and the  ULEZ (Ultra Low Emission) zone. There is some on-street metered parking around GOSH\, including in Guilford Street itself.  Much of this becomes free after 13:30 on a Saturday.  Moreover a significant amount of residents-only parking in this area becomes derestricted (i.e. free) on a Saturday afternoon. There are large underground public car parks close to GOSH at: Brunswick square (NCP) – postcode WC1N 1AF; the Imperial Hotel in Russell Square and underneath the Holiday Inn -Bloomsbury\, postcode WC1N 1HT. 								\n				\n					\n		\n				\n			\n						\n				\n					Outer London Tube stations with parking				\n				\n				\n				\n									Several tube stations near the end of the network in the North and West segments of outer London are close to the M25 and to some of the motorways into London. Unfortunately\, most of the stations listed below are within the ULEZ zone but  outside of the London congestion charge zone. Hillingdon (Metropolitan and Piccadilly lines). Has a car park which TfL says has 283 spaces. Postcode is UB10 9NR. This station is next to a junction on the A40 Western Avenue road\, only 5 miles from the M25 /M40 junction. Moreover\, the next station along the line (Ickenham) also has a large car park effectively providing an overflow car park. Stanmore (Jubilee line). Has a car park which TfL says has 450 spaces. Postcode is HA7 4PD. From the A41 Edgware way\, this is a direct drive along London Road. The A41 is accessed directly from M1 junction 4\, which is only 2 miles from the station. This is also close to the main A1 road. Cockfosters (Piccadilly line) Has a car park which TfL says has 232 spaces. Postcode is EN4 0DZ. It is a direct 3 mile drive down the A111 from the Potter’s Bar Junction (24) of the M25. Epping (Central line) Has a car park which Sabaparking says has 532 spaces. This station is outside the London ULEZ near to the junction of the M11 and M25. It is however not so convenient from the viewpoint of motorway junctions. Postcode is CM16 4HW.  Debden (Central line) Has a car park which Sabaparking says has 206 spaces. It is however only half a mile along the A 1168 from M11 junction 5 and also outside London ULEZ. Postcode is IG10 3TG. Upminster (District line) The car park here appears to be run by NCP\, which says there are 342 spaces. Postcode is RM14 2TD. It is only 3 miles from M25 junction 29\, via a route involving the A127 toward London. However it is inside the ULEZ. This might be a good option for those coming from East Anglia. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Nearby places to eat				\n				\n				\n				\n									Brunswick centre (https://maps.app.goo.gl/UwBNKmhUe9ciib1G9)  and opposite Russell Square station have a wide variety of places to eat\, including: Itsu\, Nandos\, LEON\, Pret\, Franco MancaLamb’s conduit street has a number of higher end restaurants.Redemptions roasters (Lamb’s conduit street) are great for coffee.
URL:https://tofs.org.uk/event/tofs-dads-meet-up/
LOCATION:Online
CATEGORIES:Parents & Carers
ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2025/04/TLC-events-Sep-2025.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20250907
DTEND;VALUE=DATE:20250908
DTSTAMP:20260424T122851
CREATED:20240906T144810Z
LAST-MODIFIED:20250904T101123Z
UID:10000083-1757203200-1757289599@tofs.org.uk
SUMMARY:Great North Run 2025
DESCRIPTION:TOFS 2026 Seminar Important Update:We’ve been made aware that there is a part closure on the Piccadilly Line on Saturday. Depending on which direction you’re coming from\, please walk from Holborn Station (we believe the central line is open) or get off the train at Kings Cross/St Pancras and walk from there. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									The TOFS seminar is being held at the Institute of Child Health (ICH)\, London on Saturday\, 21st March\, 2026. Why attendJoin us for our in-person OA/TOF Seminar in London to hear from some of the UK’s leading specialists on the work being done to improve the care of today’s OA/TOF children and to address the long-term issues affecting adults born with the condition. This is a great opportunity to meet\, make connections and share experiences with other families and adults born with OA/TOF and associated conditions. Who should attend?This seminar is aimed at adults born with OA/TOF\, parents and carers of children born with OA/TOF and medical professionals. Note: Registration on the day opens at 9.30am with presentations beginning at 10.30am. 								\n				\n				\n				\n									\n					\n						\n						\n							\n									CLICK HERE FOR TICKETS\n					\n					\n				\n								\n				\n					\n		\n				\n			\n						\n				\n									Event co-sponsored by  								\n				\n				\n				\n																														\n				\n				\n				\n																\n															\n															\n				\n				\n				\n									NIHR Great Ormond Street Hospital Biomedical Research Centre 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n				\n				\n					Presentations				\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Eating\, drinking & swallowing difficulties children born with OA/TOF								\n				\n				\n				\n									Presented by Dr Alex Stewart – Speech and Language Therapist (GOSH) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Experience of parents of children born with oesophageal atresia								\n				\n				\n				\n									Presented by Dr Vuokko Wallace – Clinical Psychologist\, University of Bath 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Gastro issues and Eosinophilic Oesophagitis (EoE) in OA/TOF patients								\n				\n				\n				\n									Presented by Dr Osvaldo Borrelli – Head of Clinical Service\, Consultant Paediatric Gastroenterologist (GOSH) and Honorary Senior Lecturer (UCL) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Role of TOF Multi Disciplinary Team (MDT) pathway in improving care in oesophageal atresia								\n				\n				\n				\n									Presented by Ms Dhanya Mullassery – Consultant Neonatal and Paediatric Surgeon (GOSH) and Honorary Senior Lecturer (UCL) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Respiratory updates from the INoEA (International Network of Esophageal Atresia) conference and ERS (European Respiratory Society) congress								\n				\n				\n				\n									Presented by Dr Caroline Love\, Chair of TOFS Medical Liaison & Research Subcommittee and Patient Advisory Committee member of the European Lung Foundation (ELF) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									Click here to see the full schedule 								\n				\n				\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									Any Questions?When is the seminar?The seminar is on March 21st\, 2026. Registration on the day opens at 9.30am with presentations beginning at 10.30am. The seminar will close at 4.30pm. How much are tickets?Tickets are free to TOFS’ Members\, Associates and Health Professionals. If you wish to join TOFS\, please sign up at – tofs.org.uk/join-tofs/ Is this a TOFS party?No\, this is an information seminar. Can I watch the seminar online?This is an in-person event only and will not be live streamed. We encourage members to attend in person to get the full benefits of the event\, listening to the speakers; interacting with the Q&A and discussion sessions; meeting TOFS volunteers and staff and chatting with other members of TOFS who will be attending. Some of the presentations may be recorded and posted online\, at a later date. Can I bring my child/children?Yes\, but you might prefer not to. Children below secondary school age are not permitted into the lecture room while presentations are being made. A separate room will be available on the day for families\, and the presentations will be relayed to a screen in that room. All children must be cared for by a responsible adult at all times. The excellent Coram’s Fields Children’s play park is just over the road from the venue. Will there be lunch?Yes\, a light lunch will be provided\, and seating will be available. Will I get a chance to speak to other families / people affected by OA/TOF?Yes\, we will have both lunch and refreshment breaks to allow you chance to chat with other attendees. Is there wheelchair access?We are very grateful to Great Ormond Street Hospital for providing our venue for the day. However\, this is an older building and while the venue is accessible to all\, the lecture theatre itself is accessible via stairs only. If you have any disability that may affect your access or participation in the event\, please let us know when ordering your tickets.Is there a cancellation deadline?Yes. If you can no longer attend\, please let us know via info@tofs.org.uk no later than 7 days before the seminar. This is to ensure that we only cater for the correct number of guests. Where is the seminar taking place?UCL Great Ormond Street Institute of Child Health\, WC1N 1EH If you have any further questions\, please contact us. 								\n				\n					\n		\n				\n			\n						\n				\n									\n					\n				\n											\n									\n\n			\n					\n								\n											\n									\n\n			\n					\n								\n											\n									\n\n			\n					\n								\n									\n															\n													\n						\n													\n																\n												\n				\n								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					How to get there				\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Where is the seminar?				\n				\n				\n				\n									The seminar is at the Institute of Child Health (ICH)\, which is a part of University College London – but situated on the GOSH site. The entrance to ICH is at 30 Guilford Street\, just north of Great Ormond Street itself. Postcode is WC1N 1 EH. 								\n				\n					\n		\n				\n			\n						\n				\n																\n															\n															\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									TOFS 2026 Seminar Important Update:We’ve been made aware that there is a part closure on the Piccadilly Line on Saturday. Depending on which direction you’re coming from\, please walk from Holborn Station (we believe the central line is open) or get off the train at Kings Cross/St Pancras and walk from there. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Public transport				\n				\n				\n				\n									The nearest tube station to ICH / GOSH is Russell Square on the Piccadilly Line. The next closest is Holborn\, on the Central and Piccadilly lines. Kings Cross and Euston stations are both only 0.8 miles away. Farringdon station (Elizabeth line and Metropolitan / Circle plus some overground commuter trains from Brighton\, Cambridge\, Huntingdon) is 0.9 miles. 								\n				\n				\n				\n					Travelling by car				\n				\n				\n				\n									Please note\, the venue is within both the London congestion charge zone and the  ULEZ (Ultra Low Emission) zone. There is some on-street metered parking around GOSH\, including in Guilford Street itself.  Much of this becomes free after 13:30 on a Saturday.  Moreover a significant amount of residents-only parking in this area becomes derestricted (i.e. free) on a Saturday afternoon. There are large underground public car parks close to GOSH at: Brunswick square (NCP) – postcode WC1N 1AF; the Imperial Hotel in Russell Square and underneath the Holiday Inn -Bloomsbury\, postcode WC1N 1HT. 								\n				\n					\n		\n				\n			\n						\n				\n					Outer London Tube stations with parking				\n				\n				\n				\n									Several tube stations near the end of the network in the North and West segments of outer London are close to the M25 and to some of the motorways into London. Unfortunately\, most of the stations listed below are within the ULEZ zone but  outside of the London congestion charge zone. Hillingdon (Metropolitan and Piccadilly lines). Has a car park which TfL says has 283 spaces. Postcode is UB10 9NR. This station is next to a junction on the A40 Western Avenue road\, only 5 miles from the M25 /M40 junction. Moreover\, the next station along the line (Ickenham) also has a large car park effectively providing an overflow car park. Stanmore (Jubilee line). Has a car park which TfL says has 450 spaces. Postcode is HA7 4PD. From the A41 Edgware way\, this is a direct drive along London Road. The A41 is accessed directly from M1 junction 4\, which is only 2 miles from the station. This is also close to the main A1 road. Cockfosters (Piccadilly line) Has a car park which TfL says has 232 spaces. Postcode is EN4 0DZ. It is a direct 3 mile drive down the A111 from the Potter’s Bar Junction (24) of the M25. Epping (Central line) Has a car park which Sabaparking says has 532 spaces. This station is outside the London ULEZ near to the junction of the M11 and M25. It is however not so convenient from the viewpoint of motorway junctions. Postcode is CM16 4HW.  Debden (Central line) Has a car park which Sabaparking says has 206 spaces. It is however only half a mile along the A 1168 from M11 junction 5 and also outside London ULEZ. Postcode is IG10 3TG. Upminster (District line) The car park here appears to be run by NCP\, which says there are 342 spaces. Postcode is RM14 2TD. It is only 3 miles from M25 junction 29\, via a route involving the A127 toward London. However it is inside the ULEZ. This might be a good option for those coming from East Anglia. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Nearby places to eat				\n				\n				\n				\n									Brunswick centre (https://maps.app.goo.gl/UwBNKmhUe9ciib1G9)  and opposite Russell Square station have a wide variety of places to eat\, including: Itsu\, Nandos\, LEON\, Pret\, Franco MancaLamb’s conduit street has a number of higher end restaurants.Redemptions roasters (Lamb’s conduit street) are great for coffee.
URL:https://tofs.org.uk/event/great-north-run-2025/
LOCATION:Newcastle\, United Kingdom
CATEGORIES:Fundraising
ATTACH;FMTTYPE=image/jpeg:https://tofs.org.uk/wp-content/uploads/2023/09/WhatsApp-Image-2022-09-11-at-20.37.51-4-e1694096386805.jpeg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20250904T200000
DTEND;TZID=Europe/London:20250904T210000
DTSTAMP:20260424T122851
CREATED:20250812T085858Z
LAST-MODIFIED:20250812T091402Z
UID:10000124-1757016000-1757019600@tofs.org.uk
SUMMARY:Virtual meet-up for adults born with OA/TOF
DESCRIPTION:TOFS 2026 Seminar Important Update:We’ve been made aware that there is a part closure on the Piccadilly Line on Saturday. Depending on which direction you’re coming from\, please walk from Holborn Station (we believe the central line is open) or get off the train at Kings Cross/St Pancras and walk from there. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									The TOFS seminar is being held at the Institute of Child Health (ICH)\, London on Saturday\, 21st March\, 2026. Why attendJoin us for our in-person OA/TOF Seminar in London to hear from some of the UK’s leading specialists on the work being done to improve the care of today’s OA/TOF children and to address the long-term issues affecting adults born with the condition. This is a great opportunity to meet\, make connections and share experiences with other families and adults born with OA/TOF and associated conditions. Who should attend?This seminar is aimed at adults born with OA/TOF\, parents and carers of children born with OA/TOF and medical professionals. Note: Registration on the day opens at 9.30am with presentations beginning at 10.30am. 								\n				\n				\n				\n									\n					\n						\n						\n							\n									CLICK HERE FOR TICKETS\n					\n					\n				\n								\n				\n					\n		\n				\n			\n						\n				\n									Event co-sponsored by  								\n				\n				\n				\n																														\n				\n				\n				\n																\n															\n															\n				\n				\n				\n									NIHR Great Ormond Street Hospital Biomedical Research Centre 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n				\n				\n					Presentations				\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Eating\, drinking & swallowing difficulties children born with OA/TOF								\n				\n				\n				\n									Presented by Dr Alex Stewart – Speech and Language Therapist (GOSH) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Experience of parents of children born with oesophageal atresia								\n				\n				\n				\n									Presented by Dr Vuokko Wallace – Clinical Psychologist\, University of Bath 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Gastro issues and Eosinophilic Oesophagitis (EoE) in OA/TOF patients								\n				\n				\n				\n									Presented by Dr Osvaldo Borrelli – Head of Clinical Service\, Consultant Paediatric Gastroenterologist (GOSH) and Honorary Senior Lecturer (UCL) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Role of TOF Multi Disciplinary Team (MDT) pathway in improving care in oesophageal atresia								\n				\n				\n				\n									Presented by Ms Dhanya Mullassery – Consultant Neonatal and Paediatric Surgeon (GOSH) and Honorary Senior Lecturer (UCL) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Respiratory updates from the INoEA (International Network of Esophageal Atresia) conference and ERS (European Respiratory Society) congress								\n				\n				\n				\n									Presented by Dr Caroline Love\, Chair of TOFS Medical Liaison & Research Subcommittee and Patient Advisory Committee member of the European Lung Foundation (ELF) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									Click here to see the full schedule 								\n				\n				\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									Any Questions?When is the seminar?The seminar is on March 21st\, 2026. Registration on the day opens at 9.30am with presentations beginning at 10.30am. The seminar will close at 4.30pm. How much are tickets?Tickets are free to TOFS’ Members\, Associates and Health Professionals. If you wish to join TOFS\, please sign up at – tofs.org.uk/join-tofs/ Is this a TOFS party?No\, this is an information seminar. Can I watch the seminar online?This is an in-person event only and will not be live streamed. We encourage members to attend in person to get the full benefits of the event\, listening to the speakers; interacting with the Q&A and discussion sessions; meeting TOFS volunteers and staff and chatting with other members of TOFS who will be attending. Some of the presentations may be recorded and posted online\, at a later date. Can I bring my child/children?Yes\, but you might prefer not to. Children below secondary school age are not permitted into the lecture room while presentations are being made. A separate room will be available on the day for families\, and the presentations will be relayed to a screen in that room. All children must be cared for by a responsible adult at all times. The excellent Coram’s Fields Children’s play park is just over the road from the venue. Will there be lunch?Yes\, a light lunch will be provided\, and seating will be available. Will I get a chance to speak to other families / people affected by OA/TOF?Yes\, we will have both lunch and refreshment breaks to allow you chance to chat with other attendees. Is there wheelchair access?We are very grateful to Great Ormond Street Hospital for providing our venue for the day. However\, this is an older building and while the venue is accessible to all\, the lecture theatre itself is accessible via stairs only. If you have any disability that may affect your access or participation in the event\, please let us know when ordering your tickets.Is there a cancellation deadline?Yes. If you can no longer attend\, please let us know via info@tofs.org.uk no later than 7 days before the seminar. This is to ensure that we only cater for the correct number of guests. Where is the seminar taking place?UCL Great Ormond Street Institute of Child Health\, WC1N 1EH If you have any further questions\, please contact us. 								\n				\n					\n		\n				\n			\n						\n				\n									\n					\n				\n											\n									\n\n			\n					\n								\n											\n									\n\n			\n					\n								\n											\n									\n\n			\n					\n								\n									\n															\n													\n						\n													\n																\n												\n				\n								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					How to get there				\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Where is the seminar?				\n				\n				\n				\n									The seminar is at the Institute of Child Health (ICH)\, which is a part of University College London – but situated on the GOSH site. The entrance to ICH is at 30 Guilford Street\, just north of Great Ormond Street itself. Postcode is WC1N 1 EH. 								\n				\n					\n		\n				\n			\n						\n				\n																\n															\n															\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									TOFS 2026 Seminar Important Update:We’ve been made aware that there is a part closure on the Piccadilly Line on Saturday. Depending on which direction you’re coming from\, please walk from Holborn Station (we believe the central line is open) or get off the train at Kings Cross/St Pancras and walk from there. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Public transport				\n				\n				\n				\n									The nearest tube station to ICH / GOSH is Russell Square on the Piccadilly Line. The next closest is Holborn\, on the Central and Piccadilly lines. Kings Cross and Euston stations are both only 0.8 miles away. Farringdon station (Elizabeth line and Metropolitan / Circle plus some overground commuter trains from Brighton\, Cambridge\, Huntingdon) is 0.9 miles. 								\n				\n				\n				\n					Travelling by car				\n				\n				\n				\n									Please note\, the venue is within both the London congestion charge zone and the  ULEZ (Ultra Low Emission) zone. There is some on-street metered parking around GOSH\, including in Guilford Street itself.  Much of this becomes free after 13:30 on a Saturday.  Moreover a significant amount of residents-only parking in this area becomes derestricted (i.e. free) on a Saturday afternoon. There are large underground public car parks close to GOSH at: Brunswick square (NCP) – postcode WC1N 1AF; the Imperial Hotel in Russell Square and underneath the Holiday Inn -Bloomsbury\, postcode WC1N 1HT. 								\n				\n					\n		\n				\n			\n						\n				\n					Outer London Tube stations with parking				\n				\n				\n				\n									Several tube stations near the end of the network in the North and West segments of outer London are close to the M25 and to some of the motorways into London. Unfortunately\, most of the stations listed below are within the ULEZ zone but  outside of the London congestion charge zone. Hillingdon (Metropolitan and Piccadilly lines). Has a car park which TfL says has 283 spaces. Postcode is UB10 9NR. This station is next to a junction on the A40 Western Avenue road\, only 5 miles from the M25 /M40 junction. Moreover\, the next station along the line (Ickenham) also has a large car park effectively providing an overflow car park. Stanmore (Jubilee line). Has a car park which TfL says has 450 spaces. Postcode is HA7 4PD. From the A41 Edgware way\, this is a direct drive along London Road. The A41 is accessed directly from M1 junction 4\, which is only 2 miles from the station. This is also close to the main A1 road. Cockfosters (Piccadilly line) Has a car park which TfL says has 232 spaces. Postcode is EN4 0DZ. It is a direct 3 mile drive down the A111 from the Potter’s Bar Junction (24) of the M25. Epping (Central line) Has a car park which Sabaparking says has 532 spaces. This station is outside the London ULEZ near to the junction of the M11 and M25. It is however not so convenient from the viewpoint of motorway junctions. Postcode is CM16 4HW.  Debden (Central line) Has a car park which Sabaparking says has 206 spaces. It is however only half a mile along the A 1168 from M11 junction 5 and also outside London ULEZ. Postcode is IG10 3TG. Upminster (District line) The car park here appears to be run by NCP\, which says there are 342 spaces. Postcode is RM14 2TD. It is only 3 miles from M25 junction 29\, via a route involving the A127 toward London. However it is inside the ULEZ. This might be a good option for those coming from East Anglia. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Nearby places to eat				\n				\n				\n				\n									Brunswick centre (https://maps.app.goo.gl/UwBNKmhUe9ciib1G9)  and opposite Russell Square station have a wide variety of places to eat\, including: Itsu\, Nandos\, LEON\, Pret\, Franco MancaLamb’s conduit street has a number of higher end restaurants.Redemptions roasters (Lamb’s conduit street) are great for coffee.
URL:https://tofs.org.uk/event/virtual-meet-up-for-adults-born-with-oa-tof-3/
LOCATION:Online
CATEGORIES:Adult TOF
ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2025/08/cuppa-and-chat-9-Sep25.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20250830T103000
DTEND;TZID=Europe/London:20250830T123000
DTSTAMP:20260424T122851
CREATED:20250813T114404Z
LAST-MODIFIED:20250813T133955Z
UID:10000127-1756549800-1756557000@tofs.org.uk
SUMMARY:Local Meet-up: Birmingham
DESCRIPTION:TOFS 2026 Seminar Important Update:We’ve been made aware that there is a part closure on the Piccadilly Line on Saturday. Depending on which direction you’re coming from\, please walk from Holborn Station (we believe the central line is open) or get off the train at Kings Cross/St Pancras and walk from there. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									The TOFS seminar is being held at the Institute of Child Health (ICH)\, London on Saturday\, 21st March\, 2026. Why attendJoin us for our in-person OA/TOF Seminar in London to hear from some of the UK’s leading specialists on the work being done to improve the care of today’s OA/TOF children and to address the long-term issues affecting adults born with the condition. This is a great opportunity to meet\, make connections and share experiences with other families and adults born with OA/TOF and associated conditions. Who should attend?This seminar is aimed at adults born with OA/TOF\, parents and carers of children born with OA/TOF and medical professionals. Note: Registration on the day opens at 9.30am with presentations beginning at 10.30am. 								\n				\n				\n				\n									\n					\n						\n						\n							\n									CLICK HERE FOR TICKETS\n					\n					\n				\n								\n				\n					\n		\n				\n			\n						\n				\n									Event co-sponsored by  								\n				\n				\n				\n																														\n				\n				\n				\n																\n															\n															\n				\n				\n				\n									NIHR Great Ormond Street Hospital Biomedical Research Centre 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n				\n				\n					Presentations				\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Eating\, drinking & swallowing difficulties children born with OA/TOF								\n				\n				\n				\n									Presented by Dr Alex Stewart – Speech and Language Therapist (GOSH) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Experience of parents of children born with oesophageal atresia								\n				\n				\n				\n									Presented by Dr Vuokko Wallace – Clinical Psychologist\, University of Bath 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Gastro issues and Eosinophilic Oesophagitis (EoE) in OA/TOF patients								\n				\n				\n				\n									Presented by Dr Osvaldo Borrelli – Head of Clinical Service\, Consultant Paediatric Gastroenterologist (GOSH) and Honorary Senior Lecturer (UCL) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Role of TOF Multi Disciplinary Team (MDT) pathway in improving care in oesophageal atresia								\n				\n				\n				\n									Presented by Ms Dhanya Mullassery – Consultant Neonatal and Paediatric Surgeon (GOSH) and Honorary Senior Lecturer (UCL) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Respiratory updates from the INoEA (International Network of Esophageal Atresia) conference and ERS (European Respiratory Society) congress								\n				\n				\n				\n									Presented by Dr Caroline Love\, Chair of TOFS Medical Liaison & Research Subcommittee and Patient Advisory Committee member of the European Lung Foundation (ELF) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									Click here to see the full schedule 								\n				\n				\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									Any Questions?When is the seminar?The seminar is on March 21st\, 2026. Registration on the day opens at 9.30am with presentations beginning at 10.30am. The seminar will close at 4.30pm. How much are tickets?Tickets are free to TOFS’ Members\, Associates and Health Professionals. If you wish to join TOFS\, please sign up at – tofs.org.uk/join-tofs/ Is this a TOFS party?No\, this is an information seminar. Can I watch the seminar online?This is an in-person event only and will not be live streamed. We encourage members to attend in person to get the full benefits of the event\, listening to the speakers; interacting with the Q&A and discussion sessions; meeting TOFS volunteers and staff and chatting with other members of TOFS who will be attending. Some of the presentations may be recorded and posted online\, at a later date. Can I bring my child/children?Yes\, but you might prefer not to. Children below secondary school age are not permitted into the lecture room while presentations are being made. A separate room will be available on the day for families\, and the presentations will be relayed to a screen in that room. All children must be cared for by a responsible adult at all times. The excellent Coram’s Fields Children’s play park is just over the road from the venue. Will there be lunch?Yes\, a light lunch will be provided\, and seating will be available. Will I get a chance to speak to other families / people affected by OA/TOF?Yes\, we will have both lunch and refreshment breaks to allow you chance to chat with other attendees. Is there wheelchair access?We are very grateful to Great Ormond Street Hospital for providing our venue for the day. However\, this is an older building and while the venue is accessible to all\, the lecture theatre itself is accessible via stairs only. If you have any disability that may affect your access or participation in the event\, please let us know when ordering your tickets.Is there a cancellation deadline?Yes. If you can no longer attend\, please let us know via info@tofs.org.uk no later than 7 days before the seminar. This is to ensure that we only cater for the correct number of guests. Where is the seminar taking place?UCL Great Ormond Street Institute of Child Health\, WC1N 1EH If you have any further questions\, please contact us. 								\n				\n					\n		\n				\n			\n						\n				\n									\n					\n				\n											\n									\n\n			\n					\n								\n											\n									\n\n			\n					\n								\n											\n									\n\n			\n					\n								\n									\n															\n													\n						\n													\n																\n												\n				\n								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					How to get there				\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Where is the seminar?				\n				\n				\n				\n									The seminar is at the Institute of Child Health (ICH)\, which is a part of University College London – but situated on the GOSH site. The entrance to ICH is at 30 Guilford Street\, just north of Great Ormond Street itself. Postcode is WC1N 1 EH. 								\n				\n					\n		\n				\n			\n						\n				\n																\n															\n															\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									TOFS 2026 Seminar Important Update:We’ve been made aware that there is a part closure on the Piccadilly Line on Saturday. Depending on which direction you’re coming from\, please walk from Holborn Station (we believe the central line is open) or get off the train at Kings Cross/St Pancras and walk from there. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Public transport				\n				\n				\n				\n									The nearest tube station to ICH / GOSH is Russell Square on the Piccadilly Line. The next closest is Holborn\, on the Central and Piccadilly lines. Kings Cross and Euston stations are both only 0.8 miles away. Farringdon station (Elizabeth line and Metropolitan / Circle plus some overground commuter trains from Brighton\, Cambridge\, Huntingdon) is 0.9 miles. 								\n				\n				\n				\n					Travelling by car				\n				\n				\n				\n									Please note\, the venue is within both the London congestion charge zone and the  ULEZ (Ultra Low Emission) zone. There is some on-street metered parking around GOSH\, including in Guilford Street itself.  Much of this becomes free after 13:30 on a Saturday.  Moreover a significant amount of residents-only parking in this area becomes derestricted (i.e. free) on a Saturday afternoon. There are large underground public car parks close to GOSH at: Brunswick square (NCP) – postcode WC1N 1AF; the Imperial Hotel in Russell Square and underneath the Holiday Inn -Bloomsbury\, postcode WC1N 1HT. 								\n				\n					\n		\n				\n			\n						\n				\n					Outer London Tube stations with parking				\n				\n				\n				\n									Several tube stations near the end of the network in the North and West segments of outer London are close to the M25 and to some of the motorways into London. Unfortunately\, most of the stations listed below are within the ULEZ zone but  outside of the London congestion charge zone. Hillingdon (Metropolitan and Piccadilly lines). Has a car park which TfL says has 283 spaces. Postcode is UB10 9NR. This station is next to a junction on the A40 Western Avenue road\, only 5 miles from the M25 /M40 junction. Moreover\, the next station along the line (Ickenham) also has a large car park effectively providing an overflow car park. Stanmore (Jubilee line). Has a car park which TfL says has 450 spaces. Postcode is HA7 4PD. From the A41 Edgware way\, this is a direct drive along London Road. The A41 is accessed directly from M1 junction 4\, which is only 2 miles from the station. This is also close to the main A1 road. Cockfosters (Piccadilly line) Has a car park which TfL says has 232 spaces. Postcode is EN4 0DZ. It is a direct 3 mile drive down the A111 from the Potter’s Bar Junction (24) of the M25. Epping (Central line) Has a car park which Sabaparking says has 532 spaces. This station is outside the London ULEZ near to the junction of the M11 and M25. It is however not so convenient from the viewpoint of motorway junctions. Postcode is CM16 4HW.  Debden (Central line) Has a car park which Sabaparking says has 206 spaces. It is however only half a mile along the A 1168 from M11 junction 5 and also outside London ULEZ. Postcode is IG10 3TG. Upminster (District line) The car park here appears to be run by NCP\, which says there are 342 spaces. Postcode is RM14 2TD. It is only 3 miles from M25 junction 29\, via a route involving the A127 toward London. However it is inside the ULEZ. This might be a good option for those coming from East Anglia. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Nearby places to eat				\n				\n				\n				\n									Brunswick centre (https://maps.app.goo.gl/UwBNKmhUe9ciib1G9)  and opposite Russell Square station have a wide variety of places to eat\, including: Itsu\, Nandos\, LEON\, Pret\, Franco MancaLamb’s conduit street has a number of higher end restaurants.Redemptions roasters (Lamb’s conduit street) are great for coffee.
URL:https://tofs.org.uk/event/local-meet-up-birmingham/
LOCATION:Ronald McDonald House Birmingham\, St Mary’s Row\, Birmingham\, B4 6NY\, United Kingdom
CATEGORIES:Parents & Carers
ATTACH;FMTTYPE=image/jpeg:https://tofs.org.uk/wp-content/uploads/2024/04/local-meet-up.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20250807T200000
DTEND;TZID=Europe/London:20250807T210000
DTSTAMP:20260424T122851
CREATED:20250711T140446Z
LAST-MODIFIED:20250714T105943Z
UID:10000123-1754596800-1754600400@tofs.org.uk
SUMMARY:Virtual meet-up for adults born with OA/TOF
DESCRIPTION:TOFS 2026 Seminar Important Update:We’ve been made aware that there is a part closure on the Piccadilly Line on Saturday. Depending on which direction you’re coming from\, please walk from Holborn Station (we believe the central line is open) or get off the train at Kings Cross/St Pancras and walk from there. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									The TOFS seminar is being held at the Institute of Child Health (ICH)\, London on Saturday\, 21st March\, 2026. Why attendJoin us for our in-person OA/TOF Seminar in London to hear from some of the UK’s leading specialists on the work being done to improve the care of today’s OA/TOF children and to address the long-term issues affecting adults born with the condition. This is a great opportunity to meet\, make connections and share experiences with other families and adults born with OA/TOF and associated conditions. Who should attend?This seminar is aimed at adults born with OA/TOF\, parents and carers of children born with OA/TOF and medical professionals. Note: Registration on the day opens at 9.30am with presentations beginning at 10.30am. 								\n				\n				\n				\n									\n					\n						\n						\n							\n									CLICK HERE FOR TICKETS\n					\n					\n				\n								\n				\n					\n		\n				\n			\n						\n				\n									Event co-sponsored by  								\n				\n				\n				\n																														\n				\n				\n				\n																\n															\n															\n				\n				\n				\n									NIHR Great Ormond Street Hospital Biomedical Research Centre 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n				\n				\n					Presentations				\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Eating\, drinking & swallowing difficulties children born with OA/TOF								\n				\n				\n				\n									Presented by Dr Alex Stewart – Speech and Language Therapist (GOSH) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Experience of parents of children born with oesophageal atresia								\n				\n				\n				\n									Presented by Dr Vuokko Wallace – Clinical Psychologist\, University of Bath 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Gastro issues and Eosinophilic Oesophagitis (EoE) in OA/TOF patients								\n				\n				\n				\n									Presented by Dr Osvaldo Borrelli – Head of Clinical Service\, Consultant Paediatric Gastroenterologist (GOSH) and Honorary Senior Lecturer (UCL) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Role of TOF Multi Disciplinary Team (MDT) pathway in improving care in oesophageal atresia								\n				\n				\n				\n									Presented by Ms Dhanya Mullassery – Consultant Neonatal and Paediatric Surgeon (GOSH) and Honorary Senior Lecturer (UCL) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Respiratory updates from the INoEA (International Network of Esophageal Atresia) conference and ERS (European Respiratory Society) congress								\n				\n				\n				\n									Presented by Dr Caroline Love\, Chair of TOFS Medical Liaison & Research Subcommittee and Patient Advisory Committee member of the European Lung Foundation (ELF) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									Click here to see the full schedule 								\n				\n				\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									Any Questions?When is the seminar?The seminar is on March 21st\, 2026. Registration on the day opens at 9.30am with presentations beginning at 10.30am. The seminar will close at 4.30pm. How much are tickets?Tickets are free to TOFS’ Members\, Associates and Health Professionals. If you wish to join TOFS\, please sign up at – tofs.org.uk/join-tofs/ Is this a TOFS party?No\, this is an information seminar. Can I watch the seminar online?This is an in-person event only and will not be live streamed. We encourage members to attend in person to get the full benefits of the event\, listening to the speakers; interacting with the Q&A and discussion sessions; meeting TOFS volunteers and staff and chatting with other members of TOFS who will be attending. Some of the presentations may be recorded and posted online\, at a later date. Can I bring my child/children?Yes\, but you might prefer not to. Children below secondary school age are not permitted into the lecture room while presentations are being made. A separate room will be available on the day for families\, and the presentations will be relayed to a screen in that room. All children must be cared for by a responsible adult at all times. The excellent Coram’s Fields Children’s play park is just over the road from the venue. Will there be lunch?Yes\, a light lunch will be provided\, and seating will be available. Will I get a chance to speak to other families / people affected by OA/TOF?Yes\, we will have both lunch and refreshment breaks to allow you chance to chat with other attendees. Is there wheelchair access?We are very grateful to Great Ormond Street Hospital for providing our venue for the day. However\, this is an older building and while the venue is accessible to all\, the lecture theatre itself is accessible via stairs only. If you have any disability that may affect your access or participation in the event\, please let us know when ordering your tickets.Is there a cancellation deadline?Yes. If you can no longer attend\, please let us know via info@tofs.org.uk no later than 7 days before the seminar. This is to ensure that we only cater for the correct number of guests. Where is the seminar taking place?UCL Great Ormond Street Institute of Child Health\, WC1N 1EH If you have any further questions\, please contact us. 								\n				\n					\n		\n				\n			\n						\n				\n									\n					\n				\n											\n									\n\n			\n					\n								\n											\n									\n\n			\n					\n								\n											\n									\n\n			\n					\n								\n									\n															\n													\n						\n													\n																\n												\n				\n								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					How to get there				\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Where is the seminar?				\n				\n				\n				\n									The seminar is at the Institute of Child Health (ICH)\, which is a part of University College London – but situated on the GOSH site. The entrance to ICH is at 30 Guilford Street\, just north of Great Ormond Street itself. Postcode is WC1N 1 EH. 								\n				\n					\n		\n				\n			\n						\n				\n																\n															\n															\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									TOFS 2026 Seminar Important Update:We’ve been made aware that there is a part closure on the Piccadilly Line on Saturday. Depending on which direction you’re coming from\, please walk from Holborn Station (we believe the central line is open) or get off the train at Kings Cross/St Pancras and walk from there. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Public transport				\n				\n				\n				\n									The nearest tube station to ICH / GOSH is Russell Square on the Piccadilly Line. The next closest is Holborn\, on the Central and Piccadilly lines. Kings Cross and Euston stations are both only 0.8 miles away. Farringdon station (Elizabeth line and Metropolitan / Circle plus some overground commuter trains from Brighton\, Cambridge\, Huntingdon) is 0.9 miles. 								\n				\n				\n				\n					Travelling by car				\n				\n				\n				\n									Please note\, the venue is within both the London congestion charge zone and the  ULEZ (Ultra Low Emission) zone. There is some on-street metered parking around GOSH\, including in Guilford Street itself.  Much of this becomes free after 13:30 on a Saturday.  Moreover a significant amount of residents-only parking in this area becomes derestricted (i.e. free) on a Saturday afternoon. There are large underground public car parks close to GOSH at: Brunswick square (NCP) – postcode WC1N 1AF; the Imperial Hotel in Russell Square and underneath the Holiday Inn -Bloomsbury\, postcode WC1N 1HT. 								\n				\n					\n		\n				\n			\n						\n				\n					Outer London Tube stations with parking				\n				\n				\n				\n									Several tube stations near the end of the network in the North and West segments of outer London are close to the M25 and to some of the motorways into London. Unfortunately\, most of the stations listed below are within the ULEZ zone but  outside of the London congestion charge zone. Hillingdon (Metropolitan and Piccadilly lines). Has a car park which TfL says has 283 spaces. Postcode is UB10 9NR. This station is next to a junction on the A40 Western Avenue road\, only 5 miles from the M25 /M40 junction. Moreover\, the next station along the line (Ickenham) also has a large car park effectively providing an overflow car park. Stanmore (Jubilee line). Has a car park which TfL says has 450 spaces. Postcode is HA7 4PD. From the A41 Edgware way\, this is a direct drive along London Road. The A41 is accessed directly from M1 junction 4\, which is only 2 miles from the station. This is also close to the main A1 road. Cockfosters (Piccadilly line) Has a car park which TfL says has 232 spaces. Postcode is EN4 0DZ. It is a direct 3 mile drive down the A111 from the Potter’s Bar Junction (24) of the M25. Epping (Central line) Has a car park which Sabaparking says has 532 spaces. This station is outside the London ULEZ near to the junction of the M11 and M25. It is however not so convenient from the viewpoint of motorway junctions. Postcode is CM16 4HW.  Debden (Central line) Has a car park which Sabaparking says has 206 spaces. It is however only half a mile along the A 1168 from M11 junction 5 and also outside London ULEZ. Postcode is IG10 3TG. Upminster (District line) The car park here appears to be run by NCP\, which says there are 342 spaces. Postcode is RM14 2TD. It is only 3 miles from M25 junction 29\, via a route involving the A127 toward London. However it is inside the ULEZ. This might be a good option for those coming from East Anglia. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Nearby places to eat				\n				\n				\n				\n									Brunswick centre (https://maps.app.goo.gl/UwBNKmhUe9ciib1G9)  and opposite Russell Square station have a wide variety of places to eat\, including: Itsu\, Nandos\, LEON\, Pret\, Franco MancaLamb’s conduit street has a number of higher end restaurants.Redemptions roasters (Lamb’s conduit street) are great for coffee.
URL:https://tofs.org.uk/event/virtual-meet-up-for-adults-born-with-oa-tof-2/
LOCATION:Online
ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2025/07/cuppa-and-chat-august25.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20250713T140000
DTEND;TZID=Europe/London:20250713T160000
DTSTAMP:20260424T122851
CREATED:20250623T135846Z
LAST-MODIFIED:20250623T135927Z
UID:10000120-1752415200-1752422400@tofs.org.uk
SUMMARY:Local Meet-up: Cardiff
DESCRIPTION:TOFS 2026 Seminar Important Update:We’ve been made aware that there is a part closure on the Piccadilly Line on Saturday. Depending on which direction you’re coming from\, please walk from Holborn Station (we believe the central line is open) or get off the train at Kings Cross/St Pancras and walk from there. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									The TOFS seminar is being held at the Institute of Child Health (ICH)\, London on Saturday\, 21st March\, 2026. Why attendJoin us for our in-person OA/TOF Seminar in London to hear from some of the UK’s leading specialists on the work being done to improve the care of today’s OA/TOF children and to address the long-term issues affecting adults born with the condition. This is a great opportunity to meet\, make connections and share experiences with other families and adults born with OA/TOF and associated conditions. Who should attend?This seminar is aimed at adults born with OA/TOF\, parents and carers of children born with OA/TOF and medical professionals. Note: Registration on the day opens at 9.30am with presentations beginning at 10.30am. 								\n				\n				\n				\n									\n					\n						\n						\n							\n									CLICK HERE FOR TICKETS\n					\n					\n				\n								\n				\n					\n		\n				\n			\n						\n				\n									Event co-sponsored by  								\n				\n				\n				\n																														\n				\n				\n				\n																\n															\n															\n				\n				\n				\n									NIHR Great Ormond Street Hospital Biomedical Research Centre 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n				\n				\n					Presentations				\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Eating\, drinking & swallowing difficulties children born with OA/TOF								\n				\n				\n				\n									Presented by Dr Alex Stewart – Speech and Language Therapist (GOSH) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Experience of parents of children born with oesophageal atresia								\n				\n				\n				\n									Presented by Dr Vuokko Wallace – Clinical Psychologist\, University of Bath 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Gastro issues and Eosinophilic Oesophagitis (EoE) in OA/TOF patients								\n				\n				\n				\n									Presented by Dr Osvaldo Borrelli – Head of Clinical Service\, Consultant Paediatric Gastroenterologist (GOSH) and Honorary Senior Lecturer (UCL) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Role of TOF Multi Disciplinary Team (MDT) pathway in improving care in oesophageal atresia								\n				\n				\n				\n									Presented by Ms Dhanya Mullassery – Consultant Neonatal and Paediatric Surgeon (GOSH) and Honorary Senior Lecturer (UCL) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Respiratory updates from the INoEA (International Network of Esophageal Atresia) conference and ERS (European Respiratory Society) congress								\n				\n				\n				\n									Presented by Dr Caroline Love\, Chair of TOFS Medical Liaison & Research Subcommittee and Patient Advisory Committee member of the European Lung Foundation (ELF) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									Click here to see the full schedule 								\n				\n				\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									Any Questions?When is the seminar?The seminar is on March 21st\, 2026. Registration on the day opens at 9.30am with presentations beginning at 10.30am. The seminar will close at 4.30pm. How much are tickets?Tickets are free to TOFS’ Members\, Associates and Health Professionals. If you wish to join TOFS\, please sign up at – tofs.org.uk/join-tofs/ Is this a TOFS party?No\, this is an information seminar. Can I watch the seminar online?This is an in-person event only and will not be live streamed. We encourage members to attend in person to get the full benefits of the event\, listening to the speakers; interacting with the Q&A and discussion sessions; meeting TOFS volunteers and staff and chatting with other members of TOFS who will be attending. Some of the presentations may be recorded and posted online\, at a later date. Can I bring my child/children?Yes\, but you might prefer not to. Children below secondary school age are not permitted into the lecture room while presentations are being made. A separate room will be available on the day for families\, and the presentations will be relayed to a screen in that room. All children must be cared for by a responsible adult at all times. The excellent Coram’s Fields Children’s play park is just over the road from the venue. Will there be lunch?Yes\, a light lunch will be provided\, and seating will be available. Will I get a chance to speak to other families / people affected by OA/TOF?Yes\, we will have both lunch and refreshment breaks to allow you chance to chat with other attendees. Is there wheelchair access?We are very grateful to Great Ormond Street Hospital for providing our venue for the day. However\, this is an older building and while the venue is accessible to all\, the lecture theatre itself is accessible via stairs only. If you have any disability that may affect your access or participation in the event\, please let us know when ordering your tickets.Is there a cancellation deadline?Yes. If you can no longer attend\, please let us know via info@tofs.org.uk no later than 7 days before the seminar. This is to ensure that we only cater for the correct number of guests. Where is the seminar taking place?UCL Great Ormond Street Institute of Child Health\, WC1N 1EH If you have any further questions\, please contact us. 								\n				\n					\n		\n				\n			\n						\n				\n									\n					\n				\n											\n									\n\n			\n					\n								\n											\n									\n\n			\n					\n								\n											\n									\n\n			\n					\n								\n									\n															\n													\n						\n													\n																\n												\n				\n								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					How to get there				\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Where is the seminar?				\n				\n				\n				\n									The seminar is at the Institute of Child Health (ICH)\, which is a part of University College London – but situated on the GOSH site. The entrance to ICH is at 30 Guilford Street\, just north of Great Ormond Street itself. Postcode is WC1N 1 EH. 								\n				\n					\n		\n				\n			\n						\n				\n																\n															\n															\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									TOFS 2026 Seminar Important Update:We’ve been made aware that there is a part closure on the Piccadilly Line on Saturday. Depending on which direction you’re coming from\, please walk from Holborn Station (we believe the central line is open) or get off the train at Kings Cross/St Pancras and walk from there. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Public transport				\n				\n				\n				\n									The nearest tube station to ICH / GOSH is Russell Square on the Piccadilly Line. The next closest is Holborn\, on the Central and Piccadilly lines. Kings Cross and Euston stations are both only 0.8 miles away. Farringdon station (Elizabeth line and Metropolitan / Circle plus some overground commuter trains from Brighton\, Cambridge\, Huntingdon) is 0.9 miles. 								\n				\n				\n				\n					Travelling by car				\n				\n				\n				\n									Please note\, the venue is within both the London congestion charge zone and the  ULEZ (Ultra Low Emission) zone. There is some on-street metered parking around GOSH\, including in Guilford Street itself.  Much of this becomes free after 13:30 on a Saturday.  Moreover a significant amount of residents-only parking in this area becomes derestricted (i.e. free) on a Saturday afternoon. There are large underground public car parks close to GOSH at: Brunswick square (NCP) – postcode WC1N 1AF; the Imperial Hotel in Russell Square and underneath the Holiday Inn -Bloomsbury\, postcode WC1N 1HT. 								\n				\n					\n		\n				\n			\n						\n				\n					Outer London Tube stations with parking				\n				\n				\n				\n									Several tube stations near the end of the network in the North and West segments of outer London are close to the M25 and to some of the motorways into London. Unfortunately\, most of the stations listed below are within the ULEZ zone but  outside of the London congestion charge zone. Hillingdon (Metropolitan and Piccadilly lines). Has a car park which TfL says has 283 spaces. Postcode is UB10 9NR. This station is next to a junction on the A40 Western Avenue road\, only 5 miles from the M25 /M40 junction. Moreover\, the next station along the line (Ickenham) also has a large car park effectively providing an overflow car park. Stanmore (Jubilee line). Has a car park which TfL says has 450 spaces. Postcode is HA7 4PD. From the A41 Edgware way\, this is a direct drive along London Road. The A41 is accessed directly from M1 junction 4\, which is only 2 miles from the station. This is also close to the main A1 road. Cockfosters (Piccadilly line) Has a car park which TfL says has 232 spaces. Postcode is EN4 0DZ. It is a direct 3 mile drive down the A111 from the Potter’s Bar Junction (24) of the M25. Epping (Central line) Has a car park which Sabaparking says has 532 spaces. This station is outside the London ULEZ near to the junction of the M11 and M25. It is however not so convenient from the viewpoint of motorway junctions. Postcode is CM16 4HW.  Debden (Central line) Has a car park which Sabaparking says has 206 spaces. It is however only half a mile along the A 1168 from M11 junction 5 and also outside London ULEZ. Postcode is IG10 3TG. Upminster (District line) The car park here appears to be run by NCP\, which says there are 342 spaces. Postcode is RM14 2TD. It is only 3 miles from M25 junction 29\, via a route involving the A127 toward London. However it is inside the ULEZ. This might be a good option for those coming from East Anglia. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Nearby places to eat				\n				\n				\n				\n									Brunswick centre (https://maps.app.goo.gl/UwBNKmhUe9ciib1G9)  and opposite Russell Square station have a wide variety of places to eat\, including: Itsu\, Nandos\, LEON\, Pret\, Franco MancaLamb’s conduit street has a number of higher end restaurants.Redemptions roasters (Lamb’s conduit street) are great for coffee.
URL:https://tofs.org.uk/event/local-meet-up-cardiff/
LOCATION:Ronald McDonald House Cardiff\, Heath Park Way\, Cardiff\, CF14 4AY\, United Kingdom
ATTACH;FMTTYPE=image/jpeg:https://tofs.org.uk/wp-content/uploads/2024/04/local-meet-up.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20250703T200000
DTEND;TZID=Europe/London:20250703T210000
DTSTAMP:20260424T122851
CREATED:20250403T104335Z
LAST-MODIFIED:20250414T103644Z
UID:10000109-1751572800-1751576400@tofs.org.uk
SUMMARY:Virtual meet-up for adults born with OA/TOF
DESCRIPTION:TOFS 2026 Seminar Important Update:We’ve been made aware that there is a part closure on the Piccadilly Line on Saturday. Depending on which direction you’re coming from\, please walk from Holborn Station (we believe the central line is open) or get off the train at Kings Cross/St Pancras and walk from there. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									The TOFS seminar is being held at the Institute of Child Health (ICH)\, London on Saturday\, 21st March\, 2026. Why attendJoin us for our in-person OA/TOF Seminar in London to hear from some of the UK’s leading specialists on the work being done to improve the care of today’s OA/TOF children and to address the long-term issues affecting adults born with the condition. This is a great opportunity to meet\, make connections and share experiences with other families and adults born with OA/TOF and associated conditions. Who should attend?This seminar is aimed at adults born with OA/TOF\, parents and carers of children born with OA/TOF and medical professionals. Note: Registration on the day opens at 9.30am with presentations beginning at 10.30am. 								\n				\n				\n				\n									\n					\n						\n						\n							\n									CLICK HERE FOR TICKETS\n					\n					\n				\n								\n				\n					\n		\n				\n			\n						\n				\n									Event co-sponsored by  								\n				\n				\n				\n																														\n				\n				\n				\n																\n															\n															\n				\n				\n				\n									NIHR Great Ormond Street Hospital Biomedical Research Centre 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n				\n				\n					Presentations				\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Eating\, drinking & swallowing difficulties children born with OA/TOF								\n				\n				\n				\n									Presented by Dr Alex Stewart – Speech and Language Therapist (GOSH) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Experience of parents of children born with oesophageal atresia								\n				\n				\n				\n									Presented by Dr Vuokko Wallace – Clinical Psychologist\, University of Bath 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Gastro issues and Eosinophilic Oesophagitis (EoE) in OA/TOF patients								\n				\n				\n				\n									Presented by Dr Osvaldo Borrelli – Head of Clinical Service\, Consultant Paediatric Gastroenterologist (GOSH) and Honorary Senior Lecturer (UCL) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Role of TOF Multi Disciplinary Team (MDT) pathway in improving care in oesophageal atresia								\n				\n				\n				\n									Presented by Ms Dhanya Mullassery – Consultant Neonatal and Paediatric Surgeon (GOSH) and Honorary Senior Lecturer (UCL) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Respiratory updates from the INoEA (International Network of Esophageal Atresia) conference and ERS (European Respiratory Society) congress								\n				\n				\n				\n									Presented by Dr Caroline Love\, Chair of TOFS Medical Liaison & Research Subcommittee and Patient Advisory Committee member of the European Lung Foundation (ELF) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									Click here to see the full schedule 								\n				\n				\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									Any Questions?When is the seminar?The seminar is on March 21st\, 2026. Registration on the day opens at 9.30am with presentations beginning at 10.30am. The seminar will close at 4.30pm. How much are tickets?Tickets are free to TOFS’ Members\, Associates and Health Professionals. If you wish to join TOFS\, please sign up at – tofs.org.uk/join-tofs/ Is this a TOFS party?No\, this is an information seminar. Can I watch the seminar online?This is an in-person event only and will not be live streamed. We encourage members to attend in person to get the full benefits of the event\, listening to the speakers; interacting with the Q&A and discussion sessions; meeting TOFS volunteers and staff and chatting with other members of TOFS who will be attending. Some of the presentations may be recorded and posted online\, at a later date. Can I bring my child/children?Yes\, but you might prefer not to. Children below secondary school age are not permitted into the lecture room while presentations are being made. A separate room will be available on the day for families\, and the presentations will be relayed to a screen in that room. All children must be cared for by a responsible adult at all times. The excellent Coram’s Fields Children’s play park is just over the road from the venue. Will there be lunch?Yes\, a light lunch will be provided\, and seating will be available. Will I get a chance to speak to other families / people affected by OA/TOF?Yes\, we will have both lunch and refreshment breaks to allow you chance to chat with other attendees. Is there wheelchair access?We are very grateful to Great Ormond Street Hospital for providing our venue for the day. However\, this is an older building and while the venue is accessible to all\, the lecture theatre itself is accessible via stairs only. If you have any disability that may affect your access or participation in the event\, please let us know when ordering your tickets.Is there a cancellation deadline?Yes. If you can no longer attend\, please let us know via info@tofs.org.uk no later than 7 days before the seminar. This is to ensure that we only cater for the correct number of guests. Where is the seminar taking place?UCL Great Ormond Street Institute of Child Health\, WC1N 1EH If you have any further questions\, please contact us. 								\n				\n					\n		\n				\n			\n						\n				\n									\n					\n				\n											\n									\n\n			\n					\n								\n											\n									\n\n			\n					\n								\n											\n									\n\n			\n					\n								\n									\n															\n													\n						\n													\n																\n												\n				\n								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					How to get there				\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Where is the seminar?				\n				\n				\n				\n									The seminar is at the Institute of Child Health (ICH)\, which is a part of University College London – but situated on the GOSH site. The entrance to ICH is at 30 Guilford Street\, just north of Great Ormond Street itself. Postcode is WC1N 1 EH. 								\n				\n					\n		\n				\n			\n						\n				\n																\n															\n															\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									TOFS 2026 Seminar Important Update:We’ve been made aware that there is a part closure on the Piccadilly Line on Saturday. Depending on which direction you’re coming from\, please walk from Holborn Station (we believe the central line is open) or get off the train at Kings Cross/St Pancras and walk from there. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Public transport				\n				\n				\n				\n									The nearest tube station to ICH / GOSH is Russell Square on the Piccadilly Line. The next closest is Holborn\, on the Central and Piccadilly lines. Kings Cross and Euston stations are both only 0.8 miles away. Farringdon station (Elizabeth line and Metropolitan / Circle plus some overground commuter trains from Brighton\, Cambridge\, Huntingdon) is 0.9 miles. 								\n				\n				\n				\n					Travelling by car				\n				\n				\n				\n									Please note\, the venue is within both the London congestion charge zone and the  ULEZ (Ultra Low Emission) zone. There is some on-street metered parking around GOSH\, including in Guilford Street itself.  Much of this becomes free after 13:30 on a Saturday.  Moreover a significant amount of residents-only parking in this area becomes derestricted (i.e. free) on a Saturday afternoon. There are large underground public car parks close to GOSH at: Brunswick square (NCP) – postcode WC1N 1AF; the Imperial Hotel in Russell Square and underneath the Holiday Inn -Bloomsbury\, postcode WC1N 1HT. 								\n				\n					\n		\n				\n			\n						\n				\n					Outer London Tube stations with parking				\n				\n				\n				\n									Several tube stations near the end of the network in the North and West segments of outer London are close to the M25 and to some of the motorways into London. Unfortunately\, most of the stations listed below are within the ULEZ zone but  outside of the London congestion charge zone. Hillingdon (Metropolitan and Piccadilly lines). Has a car park which TfL says has 283 spaces. Postcode is UB10 9NR. This station is next to a junction on the A40 Western Avenue road\, only 5 miles from the M25 /M40 junction. Moreover\, the next station along the line (Ickenham) also has a large car park effectively providing an overflow car park. Stanmore (Jubilee line). Has a car park which TfL says has 450 spaces. Postcode is HA7 4PD. From the A41 Edgware way\, this is a direct drive along London Road. The A41 is accessed directly from M1 junction 4\, which is only 2 miles from the station. This is also close to the main A1 road. Cockfosters (Piccadilly line) Has a car park which TfL says has 232 spaces. Postcode is EN4 0DZ. It is a direct 3 mile drive down the A111 from the Potter’s Bar Junction (24) of the M25. Epping (Central line) Has a car park which Sabaparking says has 532 spaces. This station is outside the London ULEZ near to the junction of the M11 and M25. It is however not so convenient from the viewpoint of motorway junctions. Postcode is CM16 4HW.  Debden (Central line) Has a car park which Sabaparking says has 206 spaces. It is however only half a mile along the A 1168 from M11 junction 5 and also outside London ULEZ. Postcode is IG10 3TG. Upminster (District line) The car park here appears to be run by NCP\, which says there are 342 spaces. Postcode is RM14 2TD. It is only 3 miles from M25 junction 29\, via a route involving the A127 toward London. However it is inside the ULEZ. This might be a good option for those coming from East Anglia. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Nearby places to eat				\n				\n				\n				\n									Brunswick centre (https://maps.app.goo.gl/UwBNKmhUe9ciib1G9)  and opposite Russell Square station have a wide variety of places to eat\, including: Itsu\, Nandos\, LEON\, Pret\, Franco MancaLamb’s conduit street has a number of higher end restaurants.Redemptions roasters (Lamb’s conduit street) are great for coffee.
URL:https://tofs.org.uk/event/virtual-meet-up-for-adults-born-with-oa-tof-16/
LOCATION:Online
CATEGORIES:Adult TOF
ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2025/04/july.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20250628
DTEND;VALUE=DATE:20250629
DTSTAMP:20260424T122851
CREATED:20250529T090523Z
LAST-MODIFIED:20250529T091045Z
UID:10000119-1751068800-1751155199@tofs.org.uk
SUMMARY:VACTERL Association Support Group Get-Together 2025
DESCRIPTION:TOFS 2026 Seminar Important Update:We’ve been made aware that there is a part closure on the Piccadilly Line on Saturday. Depending on which direction you’re coming from\, please walk from Holborn Station (we believe the central line is open) or get off the train at Kings Cross/St Pancras and walk from there. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									The TOFS seminar is being held at the Institute of Child Health (ICH)\, London on Saturday\, 21st March\, 2026. Why attendJoin us for our in-person OA/TOF Seminar in London to hear from some of the UK’s leading specialists on the work being done to improve the care of today’s OA/TOF children and to address the long-term issues affecting adults born with the condition. This is a great opportunity to meet\, make connections and share experiences with other families and adults born with OA/TOF and associated conditions. Who should attend?This seminar is aimed at adults born with OA/TOF\, parents and carers of children born with OA/TOF and medical professionals. Note: Registration on the day opens at 9.30am with presentations beginning at 10.30am. 								\n				\n				\n				\n									\n					\n						\n						\n							\n									CLICK HERE FOR TICKETS\n					\n					\n				\n								\n				\n					\n		\n				\n			\n						\n				\n									Event co-sponsored by  								\n				\n				\n				\n																														\n				\n				\n				\n																\n															\n															\n				\n				\n				\n									NIHR Great Ormond Street Hospital Biomedical Research Centre 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n				\n				\n					Presentations				\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Eating\, drinking & swallowing difficulties children born with OA/TOF								\n				\n				\n				\n									Presented by Dr Alex Stewart – Speech and Language Therapist (GOSH) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Experience of parents of children born with oesophageal atresia								\n				\n				\n				\n									Presented by Dr Vuokko Wallace – Clinical Psychologist\, University of Bath 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Gastro issues and Eosinophilic Oesophagitis (EoE) in OA/TOF patients								\n				\n				\n				\n									Presented by Dr Osvaldo Borrelli – Head of Clinical Service\, Consultant Paediatric Gastroenterologist (GOSH) and Honorary Senior Lecturer (UCL) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Role of TOF Multi Disciplinary Team (MDT) pathway in improving care in oesophageal atresia								\n				\n				\n				\n									Presented by Ms Dhanya Mullassery – Consultant Neonatal and Paediatric Surgeon (GOSH) and Honorary Senior Lecturer (UCL) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Respiratory updates from the INoEA (International Network of Esophageal Atresia) conference and ERS (European Respiratory Society) congress								\n				\n				\n				\n									Presented by Dr Caroline Love\, Chair of TOFS Medical Liaison & Research Subcommittee and Patient Advisory Committee member of the European Lung Foundation (ELF) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									Click here to see the full schedule 								\n				\n				\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									Any Questions?When is the seminar?The seminar is on March 21st\, 2026. Registration on the day opens at 9.30am with presentations beginning at 10.30am. The seminar will close at 4.30pm. How much are tickets?Tickets are free to TOFS’ Members\, Associates and Health Professionals. If you wish to join TOFS\, please sign up at – tofs.org.uk/join-tofs/ Is this a TOFS party?No\, this is an information seminar. Can I watch the seminar online?This is an in-person event only and will not be live streamed. We encourage members to attend in person to get the full benefits of the event\, listening to the speakers; interacting with the Q&A and discussion sessions; meeting TOFS volunteers and staff and chatting with other members of TOFS who will be attending. Some of the presentations may be recorded and posted online\, at a later date. Can I bring my child/children?Yes\, but you might prefer not to. Children below secondary school age are not permitted into the lecture room while presentations are being made. A separate room will be available on the day for families\, and the presentations will be relayed to a screen in that room. All children must be cared for by a responsible adult at all times. The excellent Coram’s Fields Children’s play park is just over the road from the venue. Will there be lunch?Yes\, a light lunch will be provided\, and seating will be available. Will I get a chance to speak to other families / people affected by OA/TOF?Yes\, we will have both lunch and refreshment breaks to allow you chance to chat with other attendees. Is there wheelchair access?We are very grateful to Great Ormond Street Hospital for providing our venue for the day. However\, this is an older building and while the venue is accessible to all\, the lecture theatre itself is accessible via stairs only. If you have any disability that may affect your access or participation in the event\, please let us know when ordering your tickets.Is there a cancellation deadline?Yes. If you can no longer attend\, please let us know via info@tofs.org.uk no later than 7 days before the seminar. This is to ensure that we only cater for the correct number of guests. Where is the seminar taking place?UCL Great Ormond Street Institute of Child Health\, WC1N 1EH If you have any further questions\, please contact us. 								\n				\n					\n		\n				\n			\n						\n				\n									\n					\n				\n											\n									\n\n			\n					\n								\n											\n									\n\n			\n					\n								\n											\n									\n\n			\n					\n								\n									\n															\n													\n						\n													\n																\n												\n				\n								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					How to get there				\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Where is the seminar?				\n				\n				\n				\n									The seminar is at the Institute of Child Health (ICH)\, which is a part of University College London – but situated on the GOSH site. The entrance to ICH is at 30 Guilford Street\, just north of Great Ormond Street itself. Postcode is WC1N 1 EH. 								\n				\n					\n		\n				\n			\n						\n				\n																\n															\n															\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									TOFS 2026 Seminar Important Update:We’ve been made aware that there is a part closure on the Piccadilly Line on Saturday. Depending on which direction you’re coming from\, please walk from Holborn Station (we believe the central line is open) or get off the train at Kings Cross/St Pancras and walk from there. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Public transport				\n				\n				\n				\n									The nearest tube station to ICH / GOSH is Russell Square on the Piccadilly Line. The next closest is Holborn\, on the Central and Piccadilly lines. Kings Cross and Euston stations are both only 0.8 miles away. Farringdon station (Elizabeth line and Metropolitan / Circle plus some overground commuter trains from Brighton\, Cambridge\, Huntingdon) is 0.9 miles. 								\n				\n				\n				\n					Travelling by car				\n				\n				\n				\n									Please note\, the venue is within both the London congestion charge zone and the  ULEZ (Ultra Low Emission) zone. There is some on-street metered parking around GOSH\, including in Guilford Street itself.  Much of this becomes free after 13:30 on a Saturday.  Moreover a significant amount of residents-only parking in this area becomes derestricted (i.e. free) on a Saturday afternoon. There are large underground public car parks close to GOSH at: Brunswick square (NCP) – postcode WC1N 1AF; the Imperial Hotel in Russell Square and underneath the Holiday Inn -Bloomsbury\, postcode WC1N 1HT. 								\n				\n					\n		\n				\n			\n						\n				\n					Outer London Tube stations with parking				\n				\n				\n				\n									Several tube stations near the end of the network in the North and West segments of outer London are close to the M25 and to some of the motorways into London. Unfortunately\, most of the stations listed below are within the ULEZ zone but  outside of the London congestion charge zone. Hillingdon (Metropolitan and Piccadilly lines). Has a car park which TfL says has 283 spaces. Postcode is UB10 9NR. This station is next to a junction on the A40 Western Avenue road\, only 5 miles from the M25 /M40 junction. Moreover\, the next station along the line (Ickenham) also has a large car park effectively providing an overflow car park. Stanmore (Jubilee line). Has a car park which TfL says has 450 spaces. Postcode is HA7 4PD. From the A41 Edgware way\, this is a direct drive along London Road. The A41 is accessed directly from M1 junction 4\, which is only 2 miles from the station. This is also close to the main A1 road. Cockfosters (Piccadilly line) Has a car park which TfL says has 232 spaces. Postcode is EN4 0DZ. It is a direct 3 mile drive down the A111 from the Potter’s Bar Junction (24) of the M25. Epping (Central line) Has a car park which Sabaparking says has 532 spaces. This station is outside the London ULEZ near to the junction of the M11 and M25. It is however not so convenient from the viewpoint of motorway junctions. Postcode is CM16 4HW.  Debden (Central line) Has a car park which Sabaparking says has 206 spaces. It is however only half a mile along the A 1168 from M11 junction 5 and also outside London ULEZ. Postcode is IG10 3TG. Upminster (District line) The car park here appears to be run by NCP\, which says there are 342 spaces. Postcode is RM14 2TD. It is only 3 miles from M25 junction 29\, via a route involving the A127 toward London. However it is inside the ULEZ. This might be a good option for those coming from East Anglia. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Nearby places to eat				\n				\n				\n				\n									Brunswick centre (https://maps.app.goo.gl/UwBNKmhUe9ciib1G9)  and opposite Russell Square station have a wide variety of places to eat\, including: Itsu\, Nandos\, LEON\, Pret\, Franco MancaLamb’s conduit street has a number of higher end restaurants.Redemptions roasters (Lamb’s conduit street) are great for coffee.
URL:https://tofs.org.uk/event/vacterl-association-support-group-get-together-2025/
LOCATION:The Great Barr Hotel\, Newton Road Great Barr\, Birmingham\, B43 6HS
CATEGORIES:Adult TOF,Parents & Carers
ATTACH;FMTTYPE=image/jpeg:https://tofs.org.uk/wp-content/uploads/2025/05/vacterl_logo_medium.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20250628
DTEND;VALUE=DATE:20250629
DTSTAMP:20260424T122851
CREATED:20250410T094626Z
LAST-MODIFIED:20250626T145624Z
UID:10000110-1751068800-1751155199@tofs.org.uk
SUMMARY:Peak District Ultra Challenge
DESCRIPTION:TOFS 2026 Seminar Important Update:We’ve been made aware that there is a part closure on the Piccadilly Line on Saturday. Depending on which direction you’re coming from\, please walk from Holborn Station (we believe the central line is open) or get off the train at Kings Cross/St Pancras and walk from there. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									The TOFS seminar is being held at the Institute of Child Health (ICH)\, London on Saturday\, 21st March\, 2026. Why attendJoin us for our in-person OA/TOF Seminar in London to hear from some of the UK’s leading specialists on the work being done to improve the care of today’s OA/TOF children and to address the long-term issues affecting adults born with the condition. This is a great opportunity to meet\, make connections and share experiences with other families and adults born with OA/TOF and associated conditions. Who should attend?This seminar is aimed at adults born with OA/TOF\, parents and carers of children born with OA/TOF and medical professionals. Note: Registration on the day opens at 9.30am with presentations beginning at 10.30am. 								\n				\n				\n				\n									\n					\n						\n						\n							\n									CLICK HERE FOR TICKETS\n					\n					\n				\n								\n				\n					\n		\n				\n			\n						\n				\n									Event co-sponsored by  								\n				\n				\n				\n																														\n				\n				\n				\n																\n															\n															\n				\n				\n				\n									NIHR Great Ormond Street Hospital Biomedical Research Centre 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n				\n				\n					Presentations				\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Eating\, drinking & swallowing difficulties children born with OA/TOF								\n				\n				\n				\n									Presented by Dr Alex Stewart – Speech and Language Therapist (GOSH) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Experience of parents of children born with oesophageal atresia								\n				\n				\n				\n									Presented by Dr Vuokko Wallace – Clinical Psychologist\, University of Bath 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Gastro issues and Eosinophilic Oesophagitis (EoE) in OA/TOF patients								\n				\n				\n				\n									Presented by Dr Osvaldo Borrelli – Head of Clinical Service\, Consultant Paediatric Gastroenterologist (GOSH) and Honorary Senior Lecturer (UCL) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Role of TOF Multi Disciplinary Team (MDT) pathway in improving care in oesophageal atresia								\n				\n				\n				\n									Presented by Ms Dhanya Mullassery – Consultant Neonatal and Paediatric Surgeon (GOSH) and Honorary Senior Lecturer (UCL) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Respiratory updates from the INoEA (International Network of Esophageal Atresia) conference and ERS (European Respiratory Society) congress								\n				\n				\n				\n									Presented by Dr Caroline Love\, Chair of TOFS Medical Liaison & Research Subcommittee and Patient Advisory Committee member of the European Lung Foundation (ELF) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									Click here to see the full schedule 								\n				\n				\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									Any Questions?When is the seminar?The seminar is on March 21st\, 2026. Registration on the day opens at 9.30am with presentations beginning at 10.30am. The seminar will close at 4.30pm. How much are tickets?Tickets are free to TOFS’ Members\, Associates and Health Professionals. If you wish to join TOFS\, please sign up at – tofs.org.uk/join-tofs/ Is this a TOFS party?No\, this is an information seminar. Can I watch the seminar online?This is an in-person event only and will not be live streamed. We encourage members to attend in person to get the full benefits of the event\, listening to the speakers; interacting with the Q&A and discussion sessions; meeting TOFS volunteers and staff and chatting with other members of TOFS who will be attending. Some of the presentations may be recorded and posted online\, at a later date. Can I bring my child/children?Yes\, but you might prefer not to. Children below secondary school age are not permitted into the lecture room while presentations are being made. A separate room will be available on the day for families\, and the presentations will be relayed to a screen in that room. All children must be cared for by a responsible adult at all times. The excellent Coram’s Fields Children’s play park is just over the road from the venue. Will there be lunch?Yes\, a light lunch will be provided\, and seating will be available. Will I get a chance to speak to other families / people affected by OA/TOF?Yes\, we will have both lunch and refreshment breaks to allow you chance to chat with other attendees. Is there wheelchair access?We are very grateful to Great Ormond Street Hospital for providing our venue for the day. However\, this is an older building and while the venue is accessible to all\, the lecture theatre itself is accessible via stairs only. If you have any disability that may affect your access or participation in the event\, please let us know when ordering your tickets.Is there a cancellation deadline?Yes. If you can no longer attend\, please let us know via info@tofs.org.uk no later than 7 days before the seminar. This is to ensure that we only cater for the correct number of guests. Where is the seminar taking place?UCL Great Ormond Street Institute of Child Health\, WC1N 1EH If you have any further questions\, please contact us. 								\n				\n					\n		\n				\n			\n						\n				\n									\n					\n				\n											\n									\n\n			\n					\n								\n											\n									\n\n			\n					\n								\n											\n									\n\n			\n					\n								\n									\n															\n													\n						\n													\n																\n												\n				\n								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					How to get there				\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Where is the seminar?				\n				\n				\n				\n									The seminar is at the Institute of Child Health (ICH)\, which is a part of University College London – but situated on the GOSH site. The entrance to ICH is at 30 Guilford Street\, just north of Great Ormond Street itself. Postcode is WC1N 1 EH. 								\n				\n					\n		\n				\n			\n						\n				\n																\n															\n															\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									TOFS 2026 Seminar Important Update:We’ve been made aware that there is a part closure on the Piccadilly Line on Saturday. Depending on which direction you’re coming from\, please walk from Holborn Station (we believe the central line is open) or get off the train at Kings Cross/St Pancras and walk from there. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Public transport				\n				\n				\n				\n									The nearest tube station to ICH / GOSH is Russell Square on the Piccadilly Line. The next closest is Holborn\, on the Central and Piccadilly lines. Kings Cross and Euston stations are both only 0.8 miles away. Farringdon station (Elizabeth line and Metropolitan / Circle plus some overground commuter trains from Brighton\, Cambridge\, Huntingdon) is 0.9 miles. 								\n				\n				\n				\n					Travelling by car				\n				\n				\n				\n									Please note\, the venue is within both the London congestion charge zone and the  ULEZ (Ultra Low Emission) zone. There is some on-street metered parking around GOSH\, including in Guilford Street itself.  Much of this becomes free after 13:30 on a Saturday.  Moreover a significant amount of residents-only parking in this area becomes derestricted (i.e. free) on a Saturday afternoon. There are large underground public car parks close to GOSH at: Brunswick square (NCP) – postcode WC1N 1AF; the Imperial Hotel in Russell Square and underneath the Holiday Inn -Bloomsbury\, postcode WC1N 1HT. 								\n				\n					\n		\n				\n			\n						\n				\n					Outer London Tube stations with parking				\n				\n				\n				\n									Several tube stations near the end of the network in the North and West segments of outer London are close to the M25 and to some of the motorways into London. Unfortunately\, most of the stations listed below are within the ULEZ zone but  outside of the London congestion charge zone. Hillingdon (Metropolitan and Piccadilly lines). Has a car park which TfL says has 283 spaces. Postcode is UB10 9NR. This station is next to a junction on the A40 Western Avenue road\, only 5 miles from the M25 /M40 junction. Moreover\, the next station along the line (Ickenham) also has a large car park effectively providing an overflow car park. Stanmore (Jubilee line). Has a car park which TfL says has 450 spaces. Postcode is HA7 4PD. From the A41 Edgware way\, this is a direct drive along London Road. The A41 is accessed directly from M1 junction 4\, which is only 2 miles from the station. This is also close to the main A1 road. Cockfosters (Piccadilly line) Has a car park which TfL says has 232 spaces. Postcode is EN4 0DZ. It is a direct 3 mile drive down the A111 from the Potter’s Bar Junction (24) of the M25. Epping (Central line) Has a car park which Sabaparking says has 532 spaces. This station is outside the London ULEZ near to the junction of the M11 and M25. It is however not so convenient from the viewpoint of motorway junctions. Postcode is CM16 4HW.  Debden (Central line) Has a car park which Sabaparking says has 206 spaces. It is however only half a mile along the A 1168 from M11 junction 5 and also outside London ULEZ. Postcode is IG10 3TG. Upminster (District line) The car park here appears to be run by NCP\, which says there are 342 spaces. Postcode is RM14 2TD. It is only 3 miles from M25 junction 29\, via a route involving the A127 toward London. However it is inside the ULEZ. This might be a good option for those coming from East Anglia. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Nearby places to eat				\n				\n				\n				\n									Brunswick centre (https://maps.app.goo.gl/UwBNKmhUe9ciib1G9)  and opposite Russell Square station have a wide variety of places to eat\, including: Itsu\, Nandos\, LEON\, Pret\, Franco MancaLamb’s conduit street has a number of higher end restaurants.Redemptions roasters (Lamb’s conduit street) are great for coffee.
URL:https://tofs.org.uk/event/peak-district-ultra-challenge/
LOCATION:Bakewell\, Bakewell Showground\, DE45 1AH\, United Kingdom
CATEGORIES:Fundraising
ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2025/04/peak-district.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20250621
DTEND;VALUE=DATE:20250701
DTSTAMP:20260424T122851
CREATED:20250411T105341Z
LAST-MODIFIED:20250704T095944Z
UID:10000111-1750464000-1751327999@tofs.org.uk
SUMMARY:Teddy Toddle 2025
DESCRIPTION:TOFS 2026 Seminar Important Update:We’ve been made aware that there is a part closure on the Piccadilly Line on Saturday. Depending on which direction you’re coming from\, please walk from Holborn Station (we believe the central line is open) or get off the train at Kings Cross/St Pancras and walk from there. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									The TOFS seminar is being held at the Institute of Child Health (ICH)\, London on Saturday\, 21st March\, 2026. Why attendJoin us for our in-person OA/TOF Seminar in London to hear from some of the UK’s leading specialists on the work being done to improve the care of today’s OA/TOF children and to address the long-term issues affecting adults born with the condition. This is a great opportunity to meet\, make connections and share experiences with other families and adults born with OA/TOF and associated conditions. Who should attend?This seminar is aimed at adults born with OA/TOF\, parents and carers of children born with OA/TOF and medical professionals. Note: Registration on the day opens at 9.30am with presentations beginning at 10.30am. 								\n				\n				\n				\n									\n					\n						\n						\n							\n									CLICK HERE FOR TICKETS\n					\n					\n				\n								\n				\n					\n		\n				\n			\n						\n				\n									Event co-sponsored by  								\n				\n				\n				\n																														\n				\n				\n				\n																\n															\n															\n				\n				\n				\n									NIHR Great Ormond Street Hospital Biomedical Research Centre 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n				\n				\n					Presentations				\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Eating\, drinking & swallowing difficulties children born with OA/TOF								\n				\n				\n				\n									Presented by Dr Alex Stewart – Speech and Language Therapist (GOSH) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Experience of parents of children born with oesophageal atresia								\n				\n				\n				\n									Presented by Dr Vuokko Wallace – Clinical Psychologist\, University of Bath 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Gastro issues and Eosinophilic Oesophagitis (EoE) in OA/TOF patients								\n				\n				\n				\n									Presented by Dr Osvaldo Borrelli – Head of Clinical Service\, Consultant Paediatric Gastroenterologist (GOSH) and Honorary Senior Lecturer (UCL) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Role of TOF Multi Disciplinary Team (MDT) pathway in improving care in oesophageal atresia								\n				\n				\n				\n									Presented by Ms Dhanya Mullassery – Consultant Neonatal and Paediatric Surgeon (GOSH) and Honorary Senior Lecturer (UCL) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Respiratory updates from the INoEA (International Network of Esophageal Atresia) conference and ERS (European Respiratory Society) congress								\n				\n				\n				\n									Presented by Dr Caroline Love\, Chair of TOFS Medical Liaison & Research Subcommittee and Patient Advisory Committee member of the European Lung Foundation (ELF) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									Click here to see the full schedule 								\n				\n				\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									Any Questions?When is the seminar?The seminar is on March 21st\, 2026. Registration on the day opens at 9.30am with presentations beginning at 10.30am. The seminar will close at 4.30pm. How much are tickets?Tickets are free to TOFS’ Members\, Associates and Health Professionals. If you wish to join TOFS\, please sign up at – tofs.org.uk/join-tofs/ Is this a TOFS party?No\, this is an information seminar. Can I watch the seminar online?This is an in-person event only and will not be live streamed. We encourage members to attend in person to get the full benefits of the event\, listening to the speakers; interacting with the Q&A and discussion sessions; meeting TOFS volunteers and staff and chatting with other members of TOFS who will be attending. Some of the presentations may be recorded and posted online\, at a later date. Can I bring my child/children?Yes\, but you might prefer not to. Children below secondary school age are not permitted into the lecture room while presentations are being made. A separate room will be available on the day for families\, and the presentations will be relayed to a screen in that room. All children must be cared for by a responsible adult at all times. The excellent Coram’s Fields Children’s play park is just over the road from the venue. Will there be lunch?Yes\, a light lunch will be provided\, and seating will be available. Will I get a chance to speak to other families / people affected by OA/TOF?Yes\, we will have both lunch and refreshment breaks to allow you chance to chat with other attendees. Is there wheelchair access?We are very grateful to Great Ormond Street Hospital for providing our venue for the day. However\, this is an older building and while the venue is accessible to all\, the lecture theatre itself is accessible via stairs only. If you have any disability that may affect your access or participation in the event\, please let us know when ordering your tickets.Is there a cancellation deadline?Yes. If you can no longer attend\, please let us know via info@tofs.org.uk no later than 7 days before the seminar. This is to ensure that we only cater for the correct number of guests. Where is the seminar taking place?UCL Great Ormond Street Institute of Child Health\, WC1N 1EH If you have any further questions\, please contact us. 								\n				\n					\n		\n				\n			\n						\n				\n									\n					\n				\n											\n									\n\n			\n					\n								\n											\n									\n\n			\n					\n								\n											\n									\n\n			\n					\n								\n									\n															\n													\n						\n													\n																\n												\n				\n								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					How to get there				\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Where is the seminar?				\n				\n				\n				\n									The seminar is at the Institute of Child Health (ICH)\, which is a part of University College London – but situated on the GOSH site. The entrance to ICH is at 30 Guilford Street\, just north of Great Ormond Street itself. Postcode is WC1N 1 EH. 								\n				\n					\n		\n				\n			\n						\n				\n																\n															\n															\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									TOFS 2026 Seminar Important Update:We’ve been made aware that there is a part closure on the Piccadilly Line on Saturday. Depending on which direction you’re coming from\, please walk from Holborn Station (we believe the central line is open) or get off the train at Kings Cross/St Pancras and walk from there. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Public transport				\n				\n				\n				\n									The nearest tube station to ICH / GOSH is Russell Square on the Piccadilly Line. The next closest is Holborn\, on the Central and Piccadilly lines. Kings Cross and Euston stations are both only 0.8 miles away. Farringdon station (Elizabeth line and Metropolitan / Circle plus some overground commuter trains from Brighton\, Cambridge\, Huntingdon) is 0.9 miles. 								\n				\n				\n				\n					Travelling by car				\n				\n				\n				\n									Please note\, the venue is within both the London congestion charge zone and the  ULEZ (Ultra Low Emission) zone. There is some on-street metered parking around GOSH\, including in Guilford Street itself.  Much of this becomes free after 13:30 on a Saturday.  Moreover a significant amount of residents-only parking in this area becomes derestricted (i.e. free) on a Saturday afternoon. There are large underground public car parks close to GOSH at: Brunswick square (NCP) – postcode WC1N 1AF; the Imperial Hotel in Russell Square and underneath the Holiday Inn -Bloomsbury\, postcode WC1N 1HT. 								\n				\n					\n		\n				\n			\n						\n				\n					Outer London Tube stations with parking				\n				\n				\n				\n									Several tube stations near the end of the network in the North and West segments of outer London are close to the M25 and to some of the motorways into London. Unfortunately\, most of the stations listed below are within the ULEZ zone but  outside of the London congestion charge zone. Hillingdon (Metropolitan and Piccadilly lines). Has a car park which TfL says has 283 spaces. Postcode is UB10 9NR. This station is next to a junction on the A40 Western Avenue road\, only 5 miles from the M25 /M40 junction. Moreover\, the next station along the line (Ickenham) also has a large car park effectively providing an overflow car park. Stanmore (Jubilee line). Has a car park which TfL says has 450 spaces. Postcode is HA7 4PD. From the A41 Edgware way\, this is a direct drive along London Road. The A41 is accessed directly from M1 junction 4\, which is only 2 miles from the station. This is also close to the main A1 road. Cockfosters (Piccadilly line) Has a car park which TfL says has 232 spaces. Postcode is EN4 0DZ. It is a direct 3 mile drive down the A111 from the Potter’s Bar Junction (24) of the M25. Epping (Central line) Has a car park which Sabaparking says has 532 spaces. This station is outside the London ULEZ near to the junction of the M11 and M25. It is however not so convenient from the viewpoint of motorway junctions. Postcode is CM16 4HW.  Debden (Central line) Has a car park which Sabaparking says has 206 spaces. It is however only half a mile along the A 1168 from M11 junction 5 and also outside London ULEZ. Postcode is IG10 3TG. Upminster (District line) The car park here appears to be run by NCP\, which says there are 342 spaces. Postcode is RM14 2TD. It is only 3 miles from M25 junction 29\, via a route involving the A127 toward London. However it is inside the ULEZ. This might be a good option for those coming from East Anglia. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Nearby places to eat				\n				\n				\n				\n									Brunswick centre (https://maps.app.goo.gl/UwBNKmhUe9ciib1G9)  and opposite Russell Square station have a wide variety of places to eat\, including: Itsu\, Nandos\, LEON\, Pret\, Franco MancaLamb’s conduit street has a number of higher end restaurants.Redemptions roasters (Lamb’s conduit street) are great for coffee.
URL:https://tofs.org.uk/event/teddy-toddle-2025/
LOCATION:Various locations
CATEGORIES:Fundraising
ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2025/04/teddy-toddle-icon.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20250605T200000
DTEND;TZID=Europe/London:20250605T210000
DTSTAMP:20260424T122851
CREATED:20250403T104119Z
LAST-MODIFIED:20250414T103542Z
UID:10000108-1749153600-1749157200@tofs.org.uk
SUMMARY:Virtual meet-up for adults born with OA/TOF
DESCRIPTION:TOFS 2026 Seminar Important Update:We’ve been made aware that there is a part closure on the Piccadilly Line on Saturday. Depending on which direction you’re coming from\, please walk from Holborn Station (we believe the central line is open) or get off the train at Kings Cross/St Pancras and walk from there. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									The TOFS seminar is being held at the Institute of Child Health (ICH)\, London on Saturday\, 21st March\, 2026. Why attendJoin us for our in-person OA/TOF Seminar in London to hear from some of the UK’s leading specialists on the work being done to improve the care of today’s OA/TOF children and to address the long-term issues affecting adults born with the condition. This is a great opportunity to meet\, make connections and share experiences with other families and adults born with OA/TOF and associated conditions. Who should attend?This seminar is aimed at adults born with OA/TOF\, parents and carers of children born with OA/TOF and medical professionals. Note: Registration on the day opens at 9.30am with presentations beginning at 10.30am. 								\n				\n				\n				\n									\n					\n						\n						\n							\n									CLICK HERE FOR TICKETS\n					\n					\n				\n								\n				\n					\n		\n				\n			\n						\n				\n									Event co-sponsored by  								\n				\n				\n				\n																														\n				\n				\n				\n																\n															\n															\n				\n				\n				\n									NIHR Great Ormond Street Hospital Biomedical Research Centre 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n				\n				\n					Presentations				\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Eating\, drinking & swallowing difficulties children born with OA/TOF								\n				\n				\n				\n									Presented by Dr Alex Stewart – Speech and Language Therapist (GOSH) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Experience of parents of children born with oesophageal atresia								\n				\n				\n				\n									Presented by Dr Vuokko Wallace – Clinical Psychologist\, University of Bath 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Gastro issues and Eosinophilic Oesophagitis (EoE) in OA/TOF patients								\n				\n				\n				\n									Presented by Dr Osvaldo Borrelli – Head of Clinical Service\, Consultant Paediatric Gastroenterologist (GOSH) and Honorary Senior Lecturer (UCL) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Role of TOF Multi Disciplinary Team (MDT) pathway in improving care in oesophageal atresia								\n				\n				\n				\n									Presented by Ms Dhanya Mullassery – Consultant Neonatal and Paediatric Surgeon (GOSH) and Honorary Senior Lecturer (UCL) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Respiratory updates from the INoEA (International Network of Esophageal Atresia) conference and ERS (European Respiratory Society) congress								\n				\n				\n				\n									Presented by Dr Caroline Love\, Chair of TOFS Medical Liaison & Research Subcommittee and Patient Advisory Committee member of the European Lung Foundation (ELF) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									Click here to see the full schedule 								\n				\n				\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									Any Questions?When is the seminar?The seminar is on March 21st\, 2026. Registration on the day opens at 9.30am with presentations beginning at 10.30am. The seminar will close at 4.30pm. How much are tickets?Tickets are free to TOFS’ Members\, Associates and Health Professionals. If you wish to join TOFS\, please sign up at – tofs.org.uk/join-tofs/ Is this a TOFS party?No\, this is an information seminar. Can I watch the seminar online?This is an in-person event only and will not be live streamed. We encourage members to attend in person to get the full benefits of the event\, listening to the speakers; interacting with the Q&A and discussion sessions; meeting TOFS volunteers and staff and chatting with other members of TOFS who will be attending. Some of the presentations may be recorded and posted online\, at a later date. Can I bring my child/children?Yes\, but you might prefer not to. Children below secondary school age are not permitted into the lecture room while presentations are being made. A separate room will be available on the day for families\, and the presentations will be relayed to a screen in that room. All children must be cared for by a responsible adult at all times. The excellent Coram’s Fields Children’s play park is just over the road from the venue. Will there be lunch?Yes\, a light lunch will be provided\, and seating will be available. Will I get a chance to speak to other families / people affected by OA/TOF?Yes\, we will have both lunch and refreshment breaks to allow you chance to chat with other attendees. Is there wheelchair access?We are very grateful to Great Ormond Street Hospital for providing our venue for the day. However\, this is an older building and while the venue is accessible to all\, the lecture theatre itself is accessible via stairs only. If you have any disability that may affect your access or participation in the event\, please let us know when ordering your tickets.Is there a cancellation deadline?Yes. If you can no longer attend\, please let us know via info@tofs.org.uk no later than 7 days before the seminar. This is to ensure that we only cater for the correct number of guests. Where is the seminar taking place?UCL Great Ormond Street Institute of Child Health\, WC1N 1EH If you have any further questions\, please contact us. 								\n				\n					\n		\n				\n			\n						\n				\n									\n					\n				\n											\n									\n\n			\n					\n								\n											\n									\n\n			\n					\n								\n											\n									\n\n			\n					\n								\n									\n															\n													\n						\n													\n																\n												\n				\n								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					How to get there				\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Where is the seminar?				\n				\n				\n				\n									The seminar is at the Institute of Child Health (ICH)\, which is a part of University College London – but situated on the GOSH site. The entrance to ICH is at 30 Guilford Street\, just north of Great Ormond Street itself. Postcode is WC1N 1 EH. 								\n				\n					\n		\n				\n			\n						\n				\n																\n															\n															\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									TOFS 2026 Seminar Important Update:We’ve been made aware that there is a part closure on the Piccadilly Line on Saturday. Depending on which direction you’re coming from\, please walk from Holborn Station (we believe the central line is open) or get off the train at Kings Cross/St Pancras and walk from there. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Public transport				\n				\n				\n				\n									The nearest tube station to ICH / GOSH is Russell Square on the Piccadilly Line. The next closest is Holborn\, on the Central and Piccadilly lines. Kings Cross and Euston stations are both only 0.8 miles away. Farringdon station (Elizabeth line and Metropolitan / Circle plus some overground commuter trains from Brighton\, Cambridge\, Huntingdon) is 0.9 miles. 								\n				\n				\n				\n					Travelling by car				\n				\n				\n				\n									Please note\, the venue is within both the London congestion charge zone and the  ULEZ (Ultra Low Emission) zone. There is some on-street metered parking around GOSH\, including in Guilford Street itself.  Much of this becomes free after 13:30 on a Saturday.  Moreover a significant amount of residents-only parking in this area becomes derestricted (i.e. free) on a Saturday afternoon. There are large underground public car parks close to GOSH at: Brunswick square (NCP) – postcode WC1N 1AF; the Imperial Hotel in Russell Square and underneath the Holiday Inn -Bloomsbury\, postcode WC1N 1HT. 								\n				\n					\n		\n				\n			\n						\n				\n					Outer London Tube stations with parking				\n				\n				\n				\n									Several tube stations near the end of the network in the North and West segments of outer London are close to the M25 and to some of the motorways into London. Unfortunately\, most of the stations listed below are within the ULEZ zone but  outside of the London congestion charge zone. Hillingdon (Metropolitan and Piccadilly lines). Has a car park which TfL says has 283 spaces. Postcode is UB10 9NR. This station is next to a junction on the A40 Western Avenue road\, only 5 miles from the M25 /M40 junction. Moreover\, the next station along the line (Ickenham) also has a large car park effectively providing an overflow car park. Stanmore (Jubilee line). Has a car park which TfL says has 450 spaces. Postcode is HA7 4PD. From the A41 Edgware way\, this is a direct drive along London Road. The A41 is accessed directly from M1 junction 4\, which is only 2 miles from the station. This is also close to the main A1 road. Cockfosters (Piccadilly line) Has a car park which TfL says has 232 spaces. Postcode is EN4 0DZ. It is a direct 3 mile drive down the A111 from the Potter’s Bar Junction (24) of the M25. Epping (Central line) Has a car park which Sabaparking says has 532 spaces. This station is outside the London ULEZ near to the junction of the M11 and M25. It is however not so convenient from the viewpoint of motorway junctions. Postcode is CM16 4HW.  Debden (Central line) Has a car park which Sabaparking says has 206 spaces. It is however only half a mile along the A 1168 from M11 junction 5 and also outside London ULEZ. Postcode is IG10 3TG. Upminster (District line) The car park here appears to be run by NCP\, which says there are 342 spaces. Postcode is RM14 2TD. It is only 3 miles from M25 junction 29\, via a route involving the A127 toward London. However it is inside the ULEZ. This might be a good option for those coming from East Anglia. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Nearby places to eat				\n				\n				\n				\n									Brunswick centre (https://maps.app.goo.gl/UwBNKmhUe9ciib1G9)  and opposite Russell Square station have a wide variety of places to eat\, including: Itsu\, Nandos\, LEON\, Pret\, Franco MancaLamb’s conduit street has a number of higher end restaurants.Redemptions roasters (Lamb’s conduit street) are great for coffee.
URL:https://tofs.org.uk/event/virtual-meet-up-for-adults-born-with-oa-tof-15/
LOCATION:Online
CATEGORIES:Adult TOF
ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2025/04/June.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20250501T200000
DTEND;TZID=Europe/London:20250501T210000
DTSTAMP:20260424T122851
CREATED:20250402T112938Z
LAST-MODIFIED:20250402T112938Z
UID:10000107-1746129600-1746133200@tofs.org.uk
SUMMARY:Virtual meet-up for adults born with OA/TOF
DESCRIPTION:TOFS 2026 Seminar Important Update:We’ve been made aware that there is a part closure on the Piccadilly Line on Saturday. Depending on which direction you’re coming from\, please walk from Holborn Station (we believe the central line is open) or get off the train at Kings Cross/St Pancras and walk from there. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									The TOFS seminar is being held at the Institute of Child Health (ICH)\, London on Saturday\, 21st March\, 2026. Why attendJoin us for our in-person OA/TOF Seminar in London to hear from some of the UK’s leading specialists on the work being done to improve the care of today’s OA/TOF children and to address the long-term issues affecting adults born with the condition. This is a great opportunity to meet\, make connections and share experiences with other families and adults born with OA/TOF and associated conditions. Who should attend?This seminar is aimed at adults born with OA/TOF\, parents and carers of children born with OA/TOF and medical professionals. Note: Registration on the day opens at 9.30am with presentations beginning at 10.30am. 								\n				\n				\n				\n									\n					\n						\n						\n							\n									CLICK HERE FOR TICKETS\n					\n					\n				\n								\n				\n					\n		\n				\n			\n						\n				\n									Event co-sponsored by  								\n				\n				\n				\n																														\n				\n				\n				\n																\n															\n															\n				\n				\n				\n									NIHR Great Ormond Street Hospital Biomedical Research Centre 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n				\n				\n					Presentations				\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Eating\, drinking & swallowing difficulties children born with OA/TOF								\n				\n				\n				\n									Presented by Dr Alex Stewart – Speech and Language Therapist (GOSH) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Experience of parents of children born with oesophageal atresia								\n				\n				\n				\n									Presented by Dr Vuokko Wallace – Clinical Psychologist\, University of Bath 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Gastro issues and Eosinophilic Oesophagitis (EoE) in OA/TOF patients								\n				\n				\n				\n									Presented by Dr Osvaldo Borrelli – Head of Clinical Service\, Consultant Paediatric Gastroenterologist (GOSH) and Honorary Senior Lecturer (UCL) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Role of TOF Multi Disciplinary Team (MDT) pathway in improving care in oesophageal atresia								\n				\n				\n				\n									Presented by Ms Dhanya Mullassery – Consultant Neonatal and Paediatric Surgeon (GOSH) and Honorary Senior Lecturer (UCL) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Respiratory updates from the INoEA (International Network of Esophageal Atresia) conference and ERS (European Respiratory Society) congress								\n				\n				\n				\n									Presented by Dr Caroline Love\, Chair of TOFS Medical Liaison & Research Subcommittee and Patient Advisory Committee member of the European Lung Foundation (ELF) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									Click here to see the full schedule 								\n				\n				\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									Any Questions?When is the seminar?The seminar is on March 21st\, 2026. Registration on the day opens at 9.30am with presentations beginning at 10.30am. The seminar will close at 4.30pm. How much are tickets?Tickets are free to TOFS’ Members\, Associates and Health Professionals. If you wish to join TOFS\, please sign up at – tofs.org.uk/join-tofs/ Is this a TOFS party?No\, this is an information seminar. Can I watch the seminar online?This is an in-person event only and will not be live streamed. We encourage members to attend in person to get the full benefits of the event\, listening to the speakers; interacting with the Q&A and discussion sessions; meeting TOFS volunteers and staff and chatting with other members of TOFS who will be attending. Some of the presentations may be recorded and posted online\, at a later date. Can I bring my child/children?Yes\, but you might prefer not to. Children below secondary school age are not permitted into the lecture room while presentations are being made. A separate room will be available on the day for families\, and the presentations will be relayed to a screen in that room. All children must be cared for by a responsible adult at all times. The excellent Coram’s Fields Children’s play park is just over the road from the venue. Will there be lunch?Yes\, a light lunch will be provided\, and seating will be available. Will I get a chance to speak to other families / people affected by OA/TOF?Yes\, we will have both lunch and refreshment breaks to allow you chance to chat with other attendees. Is there wheelchair access?We are very grateful to Great Ormond Street Hospital for providing our venue for the day. However\, this is an older building and while the venue is accessible to all\, the lecture theatre itself is accessible via stairs only. If you have any disability that may affect your access or participation in the event\, please let us know when ordering your tickets.Is there a cancellation deadline?Yes. If you can no longer attend\, please let us know via info@tofs.org.uk no later than 7 days before the seminar. This is to ensure that we only cater for the correct number of guests. Where is the seminar taking place?UCL Great Ormond Street Institute of Child Health\, WC1N 1EH If you have any further questions\, please contact us. 								\n				\n					\n		\n				\n			\n						\n				\n									\n					\n				\n											\n									\n\n			\n					\n								\n											\n									\n\n			\n					\n								\n											\n									\n\n			\n					\n								\n									\n															\n													\n						\n													\n																\n												\n				\n								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					How to get there				\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Where is the seminar?				\n				\n				\n				\n									The seminar is at the Institute of Child Health (ICH)\, which is a part of University College London – but situated on the GOSH site. The entrance to ICH is at 30 Guilford Street\, just north of Great Ormond Street itself. Postcode is WC1N 1 EH. 								\n				\n					\n		\n				\n			\n						\n				\n																\n															\n															\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									TOFS 2026 Seminar Important Update:We’ve been made aware that there is a part closure on the Piccadilly Line on Saturday. Depending on which direction you’re coming from\, please walk from Holborn Station (we believe the central line is open) or get off the train at Kings Cross/St Pancras and walk from there. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Public transport				\n				\n				\n				\n									The nearest tube station to ICH / GOSH is Russell Square on the Piccadilly Line. The next closest is Holborn\, on the Central and Piccadilly lines. Kings Cross and Euston stations are both only 0.8 miles away. Farringdon station (Elizabeth line and Metropolitan / Circle plus some overground commuter trains from Brighton\, Cambridge\, Huntingdon) is 0.9 miles. 								\n				\n				\n				\n					Travelling by car				\n				\n				\n				\n									Please note\, the venue is within both the London congestion charge zone and the  ULEZ (Ultra Low Emission) zone. There is some on-street metered parking around GOSH\, including in Guilford Street itself.  Much of this becomes free after 13:30 on a Saturday.  Moreover a significant amount of residents-only parking in this area becomes derestricted (i.e. free) on a Saturday afternoon. There are large underground public car parks close to GOSH at: Brunswick square (NCP) – postcode WC1N 1AF; the Imperial Hotel in Russell Square and underneath the Holiday Inn -Bloomsbury\, postcode WC1N 1HT. 								\n				\n					\n		\n				\n			\n						\n				\n					Outer London Tube stations with parking				\n				\n				\n				\n									Several tube stations near the end of the network in the North and West segments of outer London are close to the M25 and to some of the motorways into London. Unfortunately\, most of the stations listed below are within the ULEZ zone but  outside of the London congestion charge zone. Hillingdon (Metropolitan and Piccadilly lines). Has a car park which TfL says has 283 spaces. Postcode is UB10 9NR. This station is next to a junction on the A40 Western Avenue road\, only 5 miles from the M25 /M40 junction. Moreover\, the next station along the line (Ickenham) also has a large car park effectively providing an overflow car park. Stanmore (Jubilee line). Has a car park which TfL says has 450 spaces. Postcode is HA7 4PD. From the A41 Edgware way\, this is a direct drive along London Road. The A41 is accessed directly from M1 junction 4\, which is only 2 miles from the station. This is also close to the main A1 road. Cockfosters (Piccadilly line) Has a car park which TfL says has 232 spaces. Postcode is EN4 0DZ. It is a direct 3 mile drive down the A111 from the Potter’s Bar Junction (24) of the M25. Epping (Central line) Has a car park which Sabaparking says has 532 spaces. This station is outside the London ULEZ near to the junction of the M11 and M25. It is however not so convenient from the viewpoint of motorway junctions. Postcode is CM16 4HW.  Debden (Central line) Has a car park which Sabaparking says has 206 spaces. It is however only half a mile along the A 1168 from M11 junction 5 and also outside London ULEZ. Postcode is IG10 3TG. Upminster (District line) The car park here appears to be run by NCP\, which says there are 342 spaces. Postcode is RM14 2TD. It is only 3 miles from M25 junction 29\, via a route involving the A127 toward London. However it is inside the ULEZ. This might be a good option for those coming from East Anglia. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Nearby places to eat				\n				\n				\n				\n									Brunswick centre (https://maps.app.goo.gl/UwBNKmhUe9ciib1G9)  and opposite Russell Square station have a wide variety of places to eat\, including: Itsu\, Nandos\, LEON\, Pret\, Franco MancaLamb’s conduit street has a number of higher end restaurants.Redemptions roasters (Lamb’s conduit street) are great for coffee.
URL:https://tofs.org.uk/event/virtual-meet-up-for-adults-born-with-oa-tof-14/
LOCATION:Online
CATEGORIES:Adult TOF
ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2025/04/may25.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20250430
DTEND;VALUE=DATE:20250504
DTSTAMP:20260424T122851
CREATED:20240212T151545Z
LAST-MODIFIED:20240708T153710Z
UID:10000057-1745971200-1746316799@tofs.org.uk
SUMMARY:InoEA 25
DESCRIPTION:TOFS 2026 Seminar Important Update:We’ve been made aware that there is a part closure on the Piccadilly Line on Saturday. Depending on which direction you’re coming from\, please walk from Holborn Station (we believe the central line is open) or get off the train at Kings Cross/St Pancras and walk from there. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									The TOFS seminar is being held at the Institute of Child Health (ICH)\, London on Saturday\, 21st March\, 2026. Why attendJoin us for our in-person OA/TOF Seminar in London to hear from some of the UK’s leading specialists on the work being done to improve the care of today’s OA/TOF children and to address the long-term issues affecting adults born with the condition. This is a great opportunity to meet\, make connections and share experiences with other families and adults born with OA/TOF and associated conditions. Who should attend?This seminar is aimed at adults born with OA/TOF\, parents and carers of children born with OA/TOF and medical professionals. Note: Registration on the day opens at 9.30am with presentations beginning at 10.30am. 								\n				\n				\n				\n									\n					\n						\n						\n							\n									CLICK HERE FOR TICKETS\n					\n					\n				\n								\n				\n					\n		\n				\n			\n						\n				\n									Event co-sponsored by  								\n				\n				\n				\n																														\n				\n				\n				\n																\n															\n															\n				\n				\n				\n									NIHR Great Ormond Street Hospital Biomedical Research Centre 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n				\n				\n					Presentations				\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Eating\, drinking & swallowing difficulties children born with OA/TOF								\n				\n				\n				\n									Presented by Dr Alex Stewart – Speech and Language Therapist (GOSH) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Experience of parents of children born with oesophageal atresia								\n				\n				\n				\n									Presented by Dr Vuokko Wallace – Clinical Psychologist\, University of Bath 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Gastro issues and Eosinophilic Oesophagitis (EoE) in OA/TOF patients								\n				\n				\n				\n									Presented by Dr Osvaldo Borrelli – Head of Clinical Service\, Consultant Paediatric Gastroenterologist (GOSH) and Honorary Senior Lecturer (UCL) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Role of TOF Multi Disciplinary Team (MDT) pathway in improving care in oesophageal atresia								\n				\n				\n				\n									Presented by Ms Dhanya Mullassery – Consultant Neonatal and Paediatric Surgeon (GOSH) and Honorary Senior Lecturer (UCL) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Respiratory updates from the INoEA (International Network of Esophageal Atresia) conference and ERS (European Respiratory Society) congress								\n				\n				\n				\n									Presented by Dr Caroline Love\, Chair of TOFS Medical Liaison & Research Subcommittee and Patient Advisory Committee member of the European Lung Foundation (ELF) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									Click here to see the full schedule 								\n				\n				\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									Any Questions?When is the seminar?The seminar is on March 21st\, 2026. Registration on the day opens at 9.30am with presentations beginning at 10.30am. The seminar will close at 4.30pm. How much are tickets?Tickets are free to TOFS’ Members\, Associates and Health Professionals. If you wish to join TOFS\, please sign up at – tofs.org.uk/join-tofs/ Is this a TOFS party?No\, this is an information seminar. Can I watch the seminar online?This is an in-person event only and will not be live streamed. We encourage members to attend in person to get the full benefits of the event\, listening to the speakers; interacting with the Q&A and discussion sessions; meeting TOFS volunteers and staff and chatting with other members of TOFS who will be attending. Some of the presentations may be recorded and posted online\, at a later date. Can I bring my child/children?Yes\, but you might prefer not to. Children below secondary school age are not permitted into the lecture room while presentations are being made. A separate room will be available on the day for families\, and the presentations will be relayed to a screen in that room. All children must be cared for by a responsible adult at all times. The excellent Coram’s Fields Children’s play park is just over the road from the venue. Will there be lunch?Yes\, a light lunch will be provided\, and seating will be available. Will I get a chance to speak to other families / people affected by OA/TOF?Yes\, we will have both lunch and refreshment breaks to allow you chance to chat with other attendees. Is there wheelchair access?We are very grateful to Great Ormond Street Hospital for providing our venue for the day. However\, this is an older building and while the venue is accessible to all\, the lecture theatre itself is accessible via stairs only. If you have any disability that may affect your access or participation in the event\, please let us know when ordering your tickets.Is there a cancellation deadline?Yes. If you can no longer attend\, please let us know via info@tofs.org.uk no later than 7 days before the seminar. This is to ensure that we only cater for the correct number of guests. Where is the seminar taking place?UCL Great Ormond Street Institute of Child Health\, WC1N 1EH If you have any further questions\, please contact us. 								\n				\n					\n		\n				\n			\n						\n				\n									\n					\n				\n											\n									\n\n			\n					\n								\n											\n									\n\n			\n					\n								\n											\n									\n\n			\n					\n								\n									\n															\n													\n						\n													\n																\n												\n				\n								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					How to get there				\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Where is the seminar?				\n				\n				\n				\n									The seminar is at the Institute of Child Health (ICH)\, which is a part of University College London – but situated on the GOSH site. The entrance to ICH is at 30 Guilford Street\, just north of Great Ormond Street itself. Postcode is WC1N 1 EH. 								\n				\n					\n		\n				\n			\n						\n				\n																\n															\n															\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									TOFS 2026 Seminar Important Update:We’ve been made aware that there is a part closure on the Piccadilly Line on Saturday. Depending on which direction you’re coming from\, please walk from Holborn Station (we believe the central line is open) or get off the train at Kings Cross/St Pancras and walk from there. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Public transport				\n				\n				\n				\n									The nearest tube station to ICH / GOSH is Russell Square on the Piccadilly Line. The next closest is Holborn\, on the Central and Piccadilly lines. Kings Cross and Euston stations are both only 0.8 miles away. Farringdon station (Elizabeth line and Metropolitan / Circle plus some overground commuter trains from Brighton\, Cambridge\, Huntingdon) is 0.9 miles. 								\n				\n				\n				\n					Travelling by car				\n				\n				\n				\n									Please note\, the venue is within both the London congestion charge zone and the  ULEZ (Ultra Low Emission) zone. There is some on-street metered parking around GOSH\, including in Guilford Street itself.  Much of this becomes free after 13:30 on a Saturday.  Moreover a significant amount of residents-only parking in this area becomes derestricted (i.e. free) on a Saturday afternoon. There are large underground public car parks close to GOSH at: Brunswick square (NCP) – postcode WC1N 1AF; the Imperial Hotel in Russell Square and underneath the Holiday Inn -Bloomsbury\, postcode WC1N 1HT. 								\n				\n					\n		\n				\n			\n						\n				\n					Outer London Tube stations with parking				\n				\n				\n				\n									Several tube stations near the end of the network in the North and West segments of outer London are close to the M25 and to some of the motorways into London. Unfortunately\, most of the stations listed below are within the ULEZ zone but  outside of the London congestion charge zone. Hillingdon (Metropolitan and Piccadilly lines). Has a car park which TfL says has 283 spaces. Postcode is UB10 9NR. This station is next to a junction on the A40 Western Avenue road\, only 5 miles from the M25 /M40 junction. Moreover\, the next station along the line (Ickenham) also has a large car park effectively providing an overflow car park. Stanmore (Jubilee line). Has a car park which TfL says has 450 spaces. Postcode is HA7 4PD. From the A41 Edgware way\, this is a direct drive along London Road. The A41 is accessed directly from M1 junction 4\, which is only 2 miles from the station. This is also close to the main A1 road. Cockfosters (Piccadilly line) Has a car park which TfL says has 232 spaces. Postcode is EN4 0DZ. It is a direct 3 mile drive down the A111 from the Potter’s Bar Junction (24) of the M25. Epping (Central line) Has a car park which Sabaparking says has 532 spaces. This station is outside the London ULEZ near to the junction of the M11 and M25. It is however not so convenient from the viewpoint of motorway junctions. Postcode is CM16 4HW.  Debden (Central line) Has a car park which Sabaparking says has 206 spaces. It is however only half a mile along the A 1168 from M11 junction 5 and also outside London ULEZ. Postcode is IG10 3TG. Upminster (District line) The car park here appears to be run by NCP\, which says there are 342 spaces. Postcode is RM14 2TD. It is only 3 miles from M25 junction 29\, via a route involving the A127 toward London. However it is inside the ULEZ. This might be a good option for those coming from East Anglia. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Nearby places to eat				\n				\n				\n				\n									Brunswick centre (https://maps.app.goo.gl/UwBNKmhUe9ciib1G9)  and opposite Russell Square station have a wide variety of places to eat\, including: Itsu\, Nandos\, LEON\, Pret\, Franco MancaLamb’s conduit street has a number of higher end restaurants.Redemptions roasters (Lamb’s conduit street) are great for coffee.
URL:https://tofs.org.uk/event/inoea-25/
LOCATION:Renaissance Polat İstanbul Hotel\, Sahilyolu Cad.No:2 Yesilyurt\, Istanbul\, 34149\, Turkey
ATTACH;FMTTYPE=image/jpeg:https://tofs.org.uk/wp-content/uploads/2024/02/inoea25.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20250427
DTEND;VALUE=DATE:20250428
DTSTAMP:20260424T122851
CREATED:20240421T160414Z
LAST-MODIFIED:20250427T164618Z
UID:10000065-1745712000-1745798399@tofs.org.uk
SUMMARY:London Marathon 2025
DESCRIPTION:TOFS 2026 Seminar Important Update:We’ve been made aware that there is a part closure on the Piccadilly Line on Saturday. Depending on which direction you’re coming from\, please walk from Holborn Station (we believe the central line is open) or get off the train at Kings Cross/St Pancras and walk from there. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									The TOFS seminar is being held at the Institute of Child Health (ICH)\, London on Saturday\, 21st March\, 2026. Why attendJoin us for our in-person OA/TOF Seminar in London to hear from some of the UK’s leading specialists on the work being done to improve the care of today’s OA/TOF children and to address the long-term issues affecting adults born with the condition. This is a great opportunity to meet\, make connections and share experiences with other families and adults born with OA/TOF and associated conditions. Who should attend?This seminar is aimed at adults born with OA/TOF\, parents and carers of children born with OA/TOF and medical professionals. Note: Registration on the day opens at 9.30am with presentations beginning at 10.30am. 								\n				\n				\n				\n									\n					\n						\n						\n							\n									CLICK HERE FOR TICKETS\n					\n					\n				\n								\n				\n					\n		\n				\n			\n						\n				\n									Event co-sponsored by  								\n				\n				\n				\n																														\n				\n				\n				\n																\n															\n															\n				\n				\n				\n									NIHR Great Ormond Street Hospital Biomedical Research Centre 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n				\n				\n					Presentations				\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Eating\, drinking & swallowing difficulties children born with OA/TOF								\n				\n				\n				\n									Presented by Dr Alex Stewart – Speech and Language Therapist (GOSH) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Experience of parents of children born with oesophageal atresia								\n				\n				\n				\n									Presented by Dr Vuokko Wallace – Clinical Psychologist\, University of Bath 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Gastro issues and Eosinophilic Oesophagitis (EoE) in OA/TOF patients								\n				\n				\n				\n									Presented by Dr Osvaldo Borrelli – Head of Clinical Service\, Consultant Paediatric Gastroenterologist (GOSH) and Honorary Senior Lecturer (UCL) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Role of TOF Multi Disciplinary Team (MDT) pathway in improving care in oesophageal atresia								\n				\n				\n				\n									Presented by Ms Dhanya Mullassery – Consultant Neonatal and Paediatric Surgeon (GOSH) and Honorary Senior Lecturer (UCL) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Respiratory updates from the INoEA (International Network of Esophageal Atresia) conference and ERS (European Respiratory Society) congress								\n				\n				\n				\n									Presented by Dr Caroline Love\, Chair of TOFS Medical Liaison & Research Subcommittee and Patient Advisory Committee member of the European Lung Foundation (ELF) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									Click here to see the full schedule 								\n				\n				\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									Any Questions?When is the seminar?The seminar is on March 21st\, 2026. Registration on the day opens at 9.30am with presentations beginning at 10.30am. The seminar will close at 4.30pm. How much are tickets?Tickets are free to TOFS’ Members\, Associates and Health Professionals. If you wish to join TOFS\, please sign up at – tofs.org.uk/join-tofs/ Is this a TOFS party?No\, this is an information seminar. Can I watch the seminar online?This is an in-person event only and will not be live streamed. We encourage members to attend in person to get the full benefits of the event\, listening to the speakers; interacting with the Q&A and discussion sessions; meeting TOFS volunteers and staff and chatting with other members of TOFS who will be attending. Some of the presentations may be recorded and posted online\, at a later date. Can I bring my child/children?Yes\, but you might prefer not to. Children below secondary school age are not permitted into the lecture room while presentations are being made. A separate room will be available on the day for families\, and the presentations will be relayed to a screen in that room. All children must be cared for by a responsible adult at all times. The excellent Coram’s Fields Children’s play park is just over the road from the venue. Will there be lunch?Yes\, a light lunch will be provided\, and seating will be available. Will I get a chance to speak to other families / people affected by OA/TOF?Yes\, we will have both lunch and refreshment breaks to allow you chance to chat with other attendees. Is there wheelchair access?We are very grateful to Great Ormond Street Hospital for providing our venue for the day. However\, this is an older building and while the venue is accessible to all\, the lecture theatre itself is accessible via stairs only. If you have any disability that may affect your access or participation in the event\, please let us know when ordering your tickets.Is there a cancellation deadline?Yes. If you can no longer attend\, please let us know via info@tofs.org.uk no later than 7 days before the seminar. This is to ensure that we only cater for the correct number of guests. Where is the seminar taking place?UCL Great Ormond Street Institute of Child Health\, WC1N 1EH If you have any further questions\, please contact us. 								\n				\n					\n		\n				\n			\n						\n				\n									\n					\n				\n											\n									\n\n			\n					\n								\n											\n									\n\n			\n					\n								\n											\n									\n\n			\n					\n								\n									\n															\n													\n						\n													\n																\n												\n				\n								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					How to get there				\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Where is the seminar?				\n				\n				\n				\n									The seminar is at the Institute of Child Health (ICH)\, which is a part of University College London – but situated on the GOSH site. The entrance to ICH is at 30 Guilford Street\, just north of Great Ormond Street itself. Postcode is WC1N 1 EH. 								\n				\n					\n		\n				\n			\n						\n				\n																\n															\n															\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									TOFS 2026 Seminar Important Update:We’ve been made aware that there is a part closure on the Piccadilly Line on Saturday. Depending on which direction you’re coming from\, please walk from Holborn Station (we believe the central line is open) or get off the train at Kings Cross/St Pancras and walk from there. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Public transport				\n				\n				\n				\n									The nearest tube station to ICH / GOSH is Russell Square on the Piccadilly Line. The next closest is Holborn\, on the Central and Piccadilly lines. Kings Cross and Euston stations are both only 0.8 miles away. Farringdon station (Elizabeth line and Metropolitan / Circle plus some overground commuter trains from Brighton\, Cambridge\, Huntingdon) is 0.9 miles. 								\n				\n				\n				\n					Travelling by car				\n				\n				\n				\n									Please note\, the venue is within both the London congestion charge zone and the  ULEZ (Ultra Low Emission) zone. There is some on-street metered parking around GOSH\, including in Guilford Street itself.  Much of this becomes free after 13:30 on a Saturday.  Moreover a significant amount of residents-only parking in this area becomes derestricted (i.e. free) on a Saturday afternoon. There are large underground public car parks close to GOSH at: Brunswick square (NCP) – postcode WC1N 1AF; the Imperial Hotel in Russell Square and underneath the Holiday Inn -Bloomsbury\, postcode WC1N 1HT. 								\n				\n					\n		\n				\n			\n						\n				\n					Outer London Tube stations with parking				\n				\n				\n				\n									Several tube stations near the end of the network in the North and West segments of outer London are close to the M25 and to some of the motorways into London. Unfortunately\, most of the stations listed below are within the ULEZ zone but  outside of the London congestion charge zone. Hillingdon (Metropolitan and Piccadilly lines). Has a car park which TfL says has 283 spaces. Postcode is UB10 9NR. This station is next to a junction on the A40 Western Avenue road\, only 5 miles from the M25 /M40 junction. Moreover\, the next station along the line (Ickenham) also has a large car park effectively providing an overflow car park. Stanmore (Jubilee line). Has a car park which TfL says has 450 spaces. Postcode is HA7 4PD. From the A41 Edgware way\, this is a direct drive along London Road. The A41 is accessed directly from M1 junction 4\, which is only 2 miles from the station. This is also close to the main A1 road. Cockfosters (Piccadilly line) Has a car park which TfL says has 232 spaces. Postcode is EN4 0DZ. It is a direct 3 mile drive down the A111 from the Potter’s Bar Junction (24) of the M25. Epping (Central line) Has a car park which Sabaparking says has 532 spaces. This station is outside the London ULEZ near to the junction of the M11 and M25. It is however not so convenient from the viewpoint of motorway junctions. Postcode is CM16 4HW.  Debden (Central line) Has a car park which Sabaparking says has 206 spaces. It is however only half a mile along the A 1168 from M11 junction 5 and also outside London ULEZ. Postcode is IG10 3TG. Upminster (District line) The car park here appears to be run by NCP\, which says there are 342 spaces. Postcode is RM14 2TD. It is only 3 miles from M25 junction 29\, via a route involving the A127 toward London. However it is inside the ULEZ. This might be a good option for those coming from East Anglia. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Nearby places to eat				\n				\n				\n				\n									Brunswick centre (https://maps.app.goo.gl/UwBNKmhUe9ciib1G9)  and opposite Russell Square station have a wide variety of places to eat\, including: Itsu\, Nandos\, LEON\, Pret\, Franco MancaLamb’s conduit street has a number of higher end restaurants.Redemptions roasters (Lamb’s conduit street) are great for coffee.
URL:https://tofs.org.uk/event/london-marathon-2025/
LOCATION:London\, London\, United Kingdom
CATEGORIES:Fundraising
ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2024/04/Thank-you-to-our-amazing-London-Marathon-runners.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20250424T190000
DTEND;TZID=Europe/London:20250424T200000
DTSTAMP:20260424T122851
CREATED:20241126T113022Z
LAST-MODIFIED:20250404T091840Z
UID:10000092-1745521200-1745524800@tofs.org.uk
SUMMARY:TOFS Annual General Meeting
DESCRIPTION:TOFS 2026 Seminar Important Update:We’ve been made aware that there is a part closure on the Piccadilly Line on Saturday. Depending on which direction you’re coming from\, please walk from Holborn Station (we believe the central line is open) or get off the train at Kings Cross/St Pancras and walk from there. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									The TOFS seminar is being held at the Institute of Child Health (ICH)\, London on Saturday\, 21st March\, 2026. Why attendJoin us for our in-person OA/TOF Seminar in London to hear from some of the UK’s leading specialists on the work being done to improve the care of today’s OA/TOF children and to address the long-term issues affecting adults born with the condition. This is a great opportunity to meet\, make connections and share experiences with other families and adults born with OA/TOF and associated conditions. Who should attend?This seminar is aimed at adults born with OA/TOF\, parents and carers of children born with OA/TOF and medical professionals. Note: Registration on the day opens at 9.30am with presentations beginning at 10.30am. 								\n				\n				\n				\n									\n					\n						\n						\n							\n									CLICK HERE FOR TICKETS\n					\n					\n				\n								\n				\n					\n		\n				\n			\n						\n				\n									Event co-sponsored by  								\n				\n				\n				\n																														\n				\n				\n				\n																\n															\n															\n				\n				\n				\n									NIHR Great Ormond Street Hospital Biomedical Research Centre 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n				\n				\n					Presentations				\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Eating\, drinking & swallowing difficulties children born with OA/TOF								\n				\n				\n				\n									Presented by Dr Alex Stewart – Speech and Language Therapist (GOSH) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Experience of parents of children born with oesophageal atresia								\n				\n				\n				\n									Presented by Dr Vuokko Wallace – Clinical Psychologist\, University of Bath 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Gastro issues and Eosinophilic Oesophagitis (EoE) in OA/TOF patients								\n				\n				\n				\n									Presented by Dr Osvaldo Borrelli – Head of Clinical Service\, Consultant Paediatric Gastroenterologist (GOSH) and Honorary Senior Lecturer (UCL) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Role of TOF Multi Disciplinary Team (MDT) pathway in improving care in oesophageal atresia								\n				\n				\n				\n									Presented by Ms Dhanya Mullassery – Consultant Neonatal and Paediatric Surgeon (GOSH) and Honorary Senior Lecturer (UCL) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Respiratory updates from the INoEA (International Network of Esophageal Atresia) conference and ERS (European Respiratory Society) congress								\n				\n				\n				\n									Presented by Dr Caroline Love\, Chair of TOFS Medical Liaison & Research Subcommittee and Patient Advisory Committee member of the European Lung Foundation (ELF) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									Click here to see the full schedule 								\n				\n				\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									Any Questions?When is the seminar?The seminar is on March 21st\, 2026. Registration on the day opens at 9.30am with presentations beginning at 10.30am. The seminar will close at 4.30pm. How much are tickets?Tickets are free to TOFS’ Members\, Associates and Health Professionals. If you wish to join TOFS\, please sign up at – tofs.org.uk/join-tofs/ Is this a TOFS party?No\, this is an information seminar. Can I watch the seminar online?This is an in-person event only and will not be live streamed. We encourage members to attend in person to get the full benefits of the event\, listening to the speakers; interacting with the Q&A and discussion sessions; meeting TOFS volunteers and staff and chatting with other members of TOFS who will be attending. Some of the presentations may be recorded and posted online\, at a later date. Can I bring my child/children?Yes\, but you might prefer not to. Children below secondary school age are not permitted into the lecture room while presentations are being made. A separate room will be available on the day for families\, and the presentations will be relayed to a screen in that room. All children must be cared for by a responsible adult at all times. The excellent Coram’s Fields Children’s play park is just over the road from the venue. Will there be lunch?Yes\, a light lunch will be provided\, and seating will be available. Will I get a chance to speak to other families / people affected by OA/TOF?Yes\, we will have both lunch and refreshment breaks to allow you chance to chat with other attendees. Is there wheelchair access?We are very grateful to Great Ormond Street Hospital for providing our venue for the day. However\, this is an older building and while the venue is accessible to all\, the lecture theatre itself is accessible via stairs only. If you have any disability that may affect your access or participation in the event\, please let us know when ordering your tickets.Is there a cancellation deadline?Yes. If you can no longer attend\, please let us know via info@tofs.org.uk no later than 7 days before the seminar. This is to ensure that we only cater for the correct number of guests. Where is the seminar taking place?UCL Great Ormond Street Institute of Child Health\, WC1N 1EH If you have any further questions\, please contact us. 								\n				\n					\n		\n				\n			\n						\n				\n									\n					\n				\n											\n									\n\n			\n					\n								\n											\n									\n\n			\n					\n								\n											\n									\n\n			\n					\n								\n									\n															\n													\n						\n													\n																\n												\n				\n								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					How to get there				\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Where is the seminar?				\n				\n				\n				\n									The seminar is at the Institute of Child Health (ICH)\, which is a part of University College London – but situated on the GOSH site. The entrance to ICH is at 30 Guilford Street\, just north of Great Ormond Street itself. Postcode is WC1N 1 EH. 								\n				\n					\n		\n				\n			\n						\n				\n																\n															\n															\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									TOFS 2026 Seminar Important Update:We’ve been made aware that there is a part closure on the Piccadilly Line on Saturday. Depending on which direction you’re coming from\, please walk from Holborn Station (we believe the central line is open) or get off the train at Kings Cross/St Pancras and walk from there. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Public transport				\n				\n				\n				\n									The nearest tube station to ICH / GOSH is Russell Square on the Piccadilly Line. The next closest is Holborn\, on the Central and Piccadilly lines. Kings Cross and Euston stations are both only 0.8 miles away. Farringdon station (Elizabeth line and Metropolitan / Circle plus some overground commuter trains from Brighton\, Cambridge\, Huntingdon) is 0.9 miles. 								\n				\n				\n				\n					Travelling by car				\n				\n				\n				\n									Please note\, the venue is within both the London congestion charge zone and the  ULEZ (Ultra Low Emission) zone. There is some on-street metered parking around GOSH\, including in Guilford Street itself.  Much of this becomes free after 13:30 on a Saturday.  Moreover a significant amount of residents-only parking in this area becomes derestricted (i.e. free) on a Saturday afternoon. There are large underground public car parks close to GOSH at: Brunswick square (NCP) – postcode WC1N 1AF; the Imperial Hotel in Russell Square and underneath the Holiday Inn -Bloomsbury\, postcode WC1N 1HT. 								\n				\n					\n		\n				\n			\n						\n				\n					Outer London Tube stations with parking				\n				\n				\n				\n									Several tube stations near the end of the network in the North and West segments of outer London are close to the M25 and to some of the motorways into London. Unfortunately\, most of the stations listed below are within the ULEZ zone but  outside of the London congestion charge zone. Hillingdon (Metropolitan and Piccadilly lines). Has a car park which TfL says has 283 spaces. Postcode is UB10 9NR. This station is next to a junction on the A40 Western Avenue road\, only 5 miles from the M25 /M40 junction. Moreover\, the next station along the line (Ickenham) also has a large car park effectively providing an overflow car park. Stanmore (Jubilee line). Has a car park which TfL says has 450 spaces. Postcode is HA7 4PD. From the A41 Edgware way\, this is a direct drive along London Road. The A41 is accessed directly from M1 junction 4\, which is only 2 miles from the station. This is also close to the main A1 road. Cockfosters (Piccadilly line) Has a car park which TfL says has 232 spaces. Postcode is EN4 0DZ. It is a direct 3 mile drive down the A111 from the Potter’s Bar Junction (24) of the M25. Epping (Central line) Has a car park which Sabaparking says has 532 spaces. This station is outside the London ULEZ near to the junction of the M11 and M25. It is however not so convenient from the viewpoint of motorway junctions. Postcode is CM16 4HW.  Debden (Central line) Has a car park which Sabaparking says has 206 spaces. It is however only half a mile along the A 1168 from M11 junction 5 and also outside London ULEZ. Postcode is IG10 3TG. Upminster (District line) The car park here appears to be run by NCP\, which says there are 342 spaces. Postcode is RM14 2TD. It is only 3 miles from M25 junction 29\, via a route involving the A127 toward London. However it is inside the ULEZ. This might be a good option for those coming from East Anglia. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Nearby places to eat				\n				\n				\n				\n									Brunswick centre (https://maps.app.goo.gl/UwBNKmhUe9ciib1G9)  and opposite Russell Square station have a wide variety of places to eat\, including: Itsu\, Nandos\, LEON\, Pret\, Franco MancaLamb’s conduit street has a number of higher end restaurants.Redemptions roasters (Lamb’s conduit street) are great for coffee.
URL:https://tofs.org.uk/event/tofs-annual-general-meeting/
LOCATION:Online
CATEGORIES:TOFS
ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2020/05/tofs-logo-no-text-500x500-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20250408T200000
DTEND;TZID=Europe/London:20250408T210000
DTSTAMP:20260424T122851
CREATED:20250214T111646Z
LAST-MODIFIED:20250327T084714Z
UID:10000104-1744142400-1744146000@tofs.org.uk
SUMMARY:Talk with TLCs: Top tips for travelling with your child born with OA/TOF
DESCRIPTION:TOFS 2026 Seminar Important Update:We’ve been made aware that there is a part closure on the Piccadilly Line on Saturday. Depending on which direction you’re coming from\, please walk from Holborn Station (we believe the central line is open) or get off the train at Kings Cross/St Pancras and walk from there. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									The TOFS seminar is being held at the Institute of Child Health (ICH)\, London on Saturday\, 21st March\, 2026. Why attendJoin us for our in-person OA/TOF Seminar in London to hear from some of the UK’s leading specialists on the work being done to improve the care of today’s OA/TOF children and to address the long-term issues affecting adults born with the condition. This is a great opportunity to meet\, make connections and share experiences with other families and adults born with OA/TOF and associated conditions. Who should attend?This seminar is aimed at adults born with OA/TOF\, parents and carers of children born with OA/TOF and medical professionals. Note: Registration on the day opens at 9.30am with presentations beginning at 10.30am. 								\n				\n				\n				\n									\n					\n						\n						\n							\n									CLICK HERE FOR TICKETS\n					\n					\n				\n								\n				\n					\n		\n				\n			\n						\n				\n									Event co-sponsored by  								\n				\n				\n				\n																														\n				\n				\n				\n																\n															\n															\n				\n				\n				\n									NIHR Great Ormond Street Hospital Biomedical Research Centre 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n				\n				\n					Presentations				\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Eating\, drinking & swallowing difficulties children born with OA/TOF								\n				\n				\n				\n									Presented by Dr Alex Stewart – Speech and Language Therapist (GOSH) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Experience of parents of children born with oesophageal atresia								\n				\n				\n				\n									Presented by Dr Vuokko Wallace – Clinical Psychologist\, University of Bath 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Gastro issues and Eosinophilic Oesophagitis (EoE) in OA/TOF patients								\n				\n				\n				\n									Presented by Dr Osvaldo Borrelli – Head of Clinical Service\, Consultant Paediatric Gastroenterologist (GOSH) and Honorary Senior Lecturer (UCL) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Role of TOF Multi Disciplinary Team (MDT) pathway in improving care in oesophageal atresia								\n				\n				\n				\n									Presented by Ms Dhanya Mullassery – Consultant Neonatal and Paediatric Surgeon (GOSH) and Honorary Senior Lecturer (UCL) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Respiratory updates from the INoEA (International Network of Esophageal Atresia) conference and ERS (European Respiratory Society) congress								\n				\n				\n				\n									Presented by Dr Caroline Love\, Chair of TOFS Medical Liaison & Research Subcommittee and Patient Advisory Committee member of the European Lung Foundation (ELF) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									Click here to see the full schedule 								\n				\n				\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									Any Questions?When is the seminar?The seminar is on March 21st\, 2026. Registration on the day opens at 9.30am with presentations beginning at 10.30am. The seminar will close at 4.30pm. How much are tickets?Tickets are free to TOFS’ Members\, Associates and Health Professionals. If you wish to join TOFS\, please sign up at – tofs.org.uk/join-tofs/ Is this a TOFS party?No\, this is an information seminar. Can I watch the seminar online?This is an in-person event only and will not be live streamed. We encourage members to attend in person to get the full benefits of the event\, listening to the speakers; interacting with the Q&A and discussion sessions; meeting TOFS volunteers and staff and chatting with other members of TOFS who will be attending. Some of the presentations may be recorded and posted online\, at a later date. Can I bring my child/children?Yes\, but you might prefer not to. Children below secondary school age are not permitted into the lecture room while presentations are being made. A separate room will be available on the day for families\, and the presentations will be relayed to a screen in that room. All children must be cared for by a responsible adult at all times. The excellent Coram’s Fields Children’s play park is just over the road from the venue. Will there be lunch?Yes\, a light lunch will be provided\, and seating will be available. Will I get a chance to speak to other families / people affected by OA/TOF?Yes\, we will have both lunch and refreshment breaks to allow you chance to chat with other attendees. Is there wheelchair access?We are very grateful to Great Ormond Street Hospital for providing our venue for the day. However\, this is an older building and while the venue is accessible to all\, the lecture theatre itself is accessible via stairs only. If you have any disability that may affect your access or participation in the event\, please let us know when ordering your tickets.Is there a cancellation deadline?Yes. If you can no longer attend\, please let us know via info@tofs.org.uk no later than 7 days before the seminar. This is to ensure that we only cater for the correct number of guests. Where is the seminar taking place?UCL Great Ormond Street Institute of Child Health\, WC1N 1EH If you have any further questions\, please contact us. 								\n				\n					\n		\n				\n			\n						\n				\n									\n					\n				\n											\n									\n\n			\n					\n								\n											\n									\n\n			\n					\n								\n											\n									\n\n			\n					\n								\n									\n															\n													\n						\n													\n																\n												\n				\n								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					How to get there				\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Where is the seminar?				\n				\n				\n				\n									The seminar is at the Institute of Child Health (ICH)\, which is a part of University College London – but situated on the GOSH site. The entrance to ICH is at 30 Guilford Street\, just north of Great Ormond Street itself. Postcode is WC1N 1 EH. 								\n				\n					\n		\n				\n			\n						\n				\n																\n															\n															\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									TOFS 2026 Seminar Important Update:We’ve been made aware that there is a part closure on the Piccadilly Line on Saturday. Depending on which direction you’re coming from\, please walk from Holborn Station (we believe the central line is open) or get off the train at Kings Cross/St Pancras and walk from there. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Public transport				\n				\n				\n				\n									The nearest tube station to ICH / GOSH is Russell Square on the Piccadilly Line. The next closest is Holborn\, on the Central and Piccadilly lines. Kings Cross and Euston stations are both only 0.8 miles away. Farringdon station (Elizabeth line and Metropolitan / Circle plus some overground commuter trains from Brighton\, Cambridge\, Huntingdon) is 0.9 miles. 								\n				\n				\n				\n					Travelling by car				\n				\n				\n				\n									Please note\, the venue is within both the London congestion charge zone and the  ULEZ (Ultra Low Emission) zone. There is some on-street metered parking around GOSH\, including in Guilford Street itself.  Much of this becomes free after 13:30 on a Saturday.  Moreover a significant amount of residents-only parking in this area becomes derestricted (i.e. free) on a Saturday afternoon. There are large underground public car parks close to GOSH at: Brunswick square (NCP) – postcode WC1N 1AF; the Imperial Hotel in Russell Square and underneath the Holiday Inn -Bloomsbury\, postcode WC1N 1HT. 								\n				\n					\n		\n				\n			\n						\n				\n					Outer London Tube stations with parking				\n				\n				\n				\n									Several tube stations near the end of the network in the North and West segments of outer London are close to the M25 and to some of the motorways into London. Unfortunately\, most of the stations listed below are within the ULEZ zone but  outside of the London congestion charge zone. Hillingdon (Metropolitan and Piccadilly lines). Has a car park which TfL says has 283 spaces. Postcode is UB10 9NR. This station is next to a junction on the A40 Western Avenue road\, only 5 miles from the M25 /M40 junction. Moreover\, the next station along the line (Ickenham) also has a large car park effectively providing an overflow car park. Stanmore (Jubilee line). Has a car park which TfL says has 450 spaces. Postcode is HA7 4PD. From the A41 Edgware way\, this is a direct drive along London Road. The A41 is accessed directly from M1 junction 4\, which is only 2 miles from the station. This is also close to the main A1 road. Cockfosters (Piccadilly line) Has a car park which TfL says has 232 spaces. Postcode is EN4 0DZ. It is a direct 3 mile drive down the A111 from the Potter’s Bar Junction (24) of the M25. Epping (Central line) Has a car park which Sabaparking says has 532 spaces. This station is outside the London ULEZ near to the junction of the M11 and M25. It is however not so convenient from the viewpoint of motorway junctions. Postcode is CM16 4HW.  Debden (Central line) Has a car park which Sabaparking says has 206 spaces. It is however only half a mile along the A 1168 from M11 junction 5 and also outside London ULEZ. Postcode is IG10 3TG. Upminster (District line) The car park here appears to be run by NCP\, which says there are 342 spaces. Postcode is RM14 2TD. It is only 3 miles from M25 junction 29\, via a route involving the A127 toward London. However it is inside the ULEZ. This might be a good option for those coming from East Anglia. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Nearby places to eat				\n				\n				\n				\n									Brunswick centre (https://maps.app.goo.gl/UwBNKmhUe9ciib1G9)  and opposite Russell Square station have a wide variety of places to eat\, including: Itsu\, Nandos\, LEON\, Pret\, Franco MancaLamb’s conduit street has a number of higher end restaurants.Redemptions roasters (Lamb’s conduit street) are great for coffee.
URL:https://tofs.org.uk/event/talk-with-tlcs-top-tips-for-travelling-with-your-child-born-with-oa-tof/
LOCATION:Online
CATEGORIES:Parents & Carers,Support
ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2025/02/Talk-with-TLCs-Travelling-tips.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20250403T200000
DTEND;TZID=Europe/London:20250403T210000
DTSTAMP:20260424T122851
CREATED:20250310T162433Z
LAST-MODIFIED:20250310T162500Z
UID:10000106-1743710400-1743714000@tofs.org.uk
SUMMARY:Virtual meet-up for adults born with OA/TOF
DESCRIPTION:TOFS 2026 Seminar Important Update:We’ve been made aware that there is a part closure on the Piccadilly Line on Saturday. Depending on which direction you’re coming from\, please walk from Holborn Station (we believe the central line is open) or get off the train at Kings Cross/St Pancras and walk from there. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									The TOFS seminar is being held at the Institute of Child Health (ICH)\, London on Saturday\, 21st March\, 2026. Why attendJoin us for our in-person OA/TOF Seminar in London to hear from some of the UK’s leading specialists on the work being done to improve the care of today’s OA/TOF children and to address the long-term issues affecting adults born with the condition. This is a great opportunity to meet\, make connections and share experiences with other families and adults born with OA/TOF and associated conditions. Who should attend?This seminar is aimed at adults born with OA/TOF\, parents and carers of children born with OA/TOF and medical professionals. Note: Registration on the day opens at 9.30am with presentations beginning at 10.30am. 								\n				\n				\n				\n									\n					\n						\n						\n							\n									CLICK HERE FOR TICKETS\n					\n					\n				\n								\n				\n					\n		\n				\n			\n						\n				\n									Event co-sponsored by  								\n				\n				\n				\n																														\n				\n				\n				\n																\n															\n															\n				\n				\n				\n									NIHR Great Ormond Street Hospital Biomedical Research Centre 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n				\n				\n					Presentations				\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Eating\, drinking & swallowing difficulties children born with OA/TOF								\n				\n				\n				\n									Presented by Dr Alex Stewart – Speech and Language Therapist (GOSH) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Experience of parents of children born with oesophageal atresia								\n				\n				\n				\n									Presented by Dr Vuokko Wallace – Clinical Psychologist\, University of Bath 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Gastro issues and Eosinophilic Oesophagitis (EoE) in OA/TOF patients								\n				\n				\n				\n									Presented by Dr Osvaldo Borrelli – Head of Clinical Service\, Consultant Paediatric Gastroenterologist (GOSH) and Honorary Senior Lecturer (UCL) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Role of TOF Multi Disciplinary Team (MDT) pathway in improving care in oesophageal atresia								\n				\n				\n				\n									Presented by Ms Dhanya Mullassery – Consultant Neonatal and Paediatric Surgeon (GOSH) and Honorary Senior Lecturer (UCL) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Respiratory updates from the INoEA (International Network of Esophageal Atresia) conference and ERS (European Respiratory Society) congress								\n				\n				\n				\n									Presented by Dr Caroline Love\, Chair of TOFS Medical Liaison & Research Subcommittee and Patient Advisory Committee member of the European Lung Foundation (ELF) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									Click here to see the full schedule 								\n				\n				\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									Any Questions?When is the seminar?The seminar is on March 21st\, 2026. Registration on the day opens at 9.30am with presentations beginning at 10.30am. The seminar will close at 4.30pm. How much are tickets?Tickets are free to TOFS’ Members\, Associates and Health Professionals. If you wish to join TOFS\, please sign up at – tofs.org.uk/join-tofs/ Is this a TOFS party?No\, this is an information seminar. Can I watch the seminar online?This is an in-person event only and will not be live streamed. We encourage members to attend in person to get the full benefits of the event\, listening to the speakers; interacting with the Q&A and discussion sessions; meeting TOFS volunteers and staff and chatting with other members of TOFS who will be attending. Some of the presentations may be recorded and posted online\, at a later date. Can I bring my child/children?Yes\, but you might prefer not to. Children below secondary school age are not permitted into the lecture room while presentations are being made. A separate room will be available on the day for families\, and the presentations will be relayed to a screen in that room. All children must be cared for by a responsible adult at all times. The excellent Coram’s Fields Children’s play park is just over the road from the venue. Will there be lunch?Yes\, a light lunch will be provided\, and seating will be available. Will I get a chance to speak to other families / people affected by OA/TOF?Yes\, we will have both lunch and refreshment breaks to allow you chance to chat with other attendees. Is there wheelchair access?We are very grateful to Great Ormond Street Hospital for providing our venue for the day. However\, this is an older building and while the venue is accessible to all\, the lecture theatre itself is accessible via stairs only. If you have any disability that may affect your access or participation in the event\, please let us know when ordering your tickets.Is there a cancellation deadline?Yes. If you can no longer attend\, please let us know via info@tofs.org.uk no later than 7 days before the seminar. This is to ensure that we only cater for the correct number of guests. Where is the seminar taking place?UCL Great Ormond Street Institute of Child Health\, WC1N 1EH If you have any further questions\, please contact us. 								\n				\n					\n		\n				\n			\n						\n				\n									\n					\n				\n											\n									\n\n			\n					\n								\n											\n									\n\n			\n					\n								\n											\n									\n\n			\n					\n								\n									\n															\n													\n						\n													\n																\n												\n				\n								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					How to get there				\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Where is the seminar?				\n				\n				\n				\n									The seminar is at the Institute of Child Health (ICH)\, which is a part of University College London – but situated on the GOSH site. The entrance to ICH is at 30 Guilford Street\, just north of Great Ormond Street itself. Postcode is WC1N 1 EH. 								\n				\n					\n		\n				\n			\n						\n				\n																\n															\n															\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									TOFS 2026 Seminar Important Update:We’ve been made aware that there is a part closure on the Piccadilly Line on Saturday. Depending on which direction you’re coming from\, please walk from Holborn Station (we believe the central line is open) or get off the train at Kings Cross/St Pancras and walk from there. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Public transport				\n				\n				\n				\n									The nearest tube station to ICH / GOSH is Russell Square on the Piccadilly Line. The next closest is Holborn\, on the Central and Piccadilly lines. Kings Cross and Euston stations are both only 0.8 miles away. Farringdon station (Elizabeth line and Metropolitan / Circle plus some overground commuter trains from Brighton\, Cambridge\, Huntingdon) is 0.9 miles. 								\n				\n				\n				\n					Travelling by car				\n				\n				\n				\n									Please note\, the venue is within both the London congestion charge zone and the  ULEZ (Ultra Low Emission) zone. There is some on-street metered parking around GOSH\, including in Guilford Street itself.  Much of this becomes free after 13:30 on a Saturday.  Moreover a significant amount of residents-only parking in this area becomes derestricted (i.e. free) on a Saturday afternoon. There are large underground public car parks close to GOSH at: Brunswick square (NCP) – postcode WC1N 1AF; the Imperial Hotel in Russell Square and underneath the Holiday Inn -Bloomsbury\, postcode WC1N 1HT. 								\n				\n					\n		\n				\n			\n						\n				\n					Outer London Tube stations with parking				\n				\n				\n				\n									Several tube stations near the end of the network in the North and West segments of outer London are close to the M25 and to some of the motorways into London. Unfortunately\, most of the stations listed below are within the ULEZ zone but  outside of the London congestion charge zone. Hillingdon (Metropolitan and Piccadilly lines). Has a car park which TfL says has 283 spaces. Postcode is UB10 9NR. This station is next to a junction on the A40 Western Avenue road\, only 5 miles from the M25 /M40 junction. Moreover\, the next station along the line (Ickenham) also has a large car park effectively providing an overflow car park. Stanmore (Jubilee line). Has a car park which TfL says has 450 spaces. Postcode is HA7 4PD. From the A41 Edgware way\, this is a direct drive along London Road. The A41 is accessed directly from M1 junction 4\, which is only 2 miles from the station. This is also close to the main A1 road. Cockfosters (Piccadilly line) Has a car park which TfL says has 232 spaces. Postcode is EN4 0DZ. It is a direct 3 mile drive down the A111 from the Potter’s Bar Junction (24) of the M25. Epping (Central line) Has a car park which Sabaparking says has 532 spaces. This station is outside the London ULEZ near to the junction of the M11 and M25. It is however not so convenient from the viewpoint of motorway junctions. Postcode is CM16 4HW.  Debden (Central line) Has a car park which Sabaparking says has 206 spaces. It is however only half a mile along the A 1168 from M11 junction 5 and also outside London ULEZ. Postcode is IG10 3TG. Upminster (District line) The car park here appears to be run by NCP\, which says there are 342 spaces. Postcode is RM14 2TD. It is only 3 miles from M25 junction 29\, via a route involving the A127 toward London. However it is inside the ULEZ. This might be a good option for those coming from East Anglia. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Nearby places to eat				\n				\n				\n				\n									Brunswick centre (https://maps.app.goo.gl/UwBNKmhUe9ciib1G9)  and opposite Russell Square station have a wide variety of places to eat\, including: Itsu\, Nandos\, LEON\, Pret\, Franco MancaLamb’s conduit street has a number of higher end restaurants.Redemptions roasters (Lamb’s conduit street) are great for coffee.
URL:https://tofs.org.uk/event/virtual-meet-up-for-adults-born-with-oa-tof/
LOCATION:Online
CATEGORIES:Adult TOF
ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2025/03/cuppa-and-chat-april2.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20250312T183000
DTEND;TZID=Europe/London:20250312T193000
DTSTAMP:20260424T122851
CREATED:20241212T113557Z
LAST-MODIFIED:20250227T171103Z
UID:10000095-1741804200-1741807800@tofs.org.uk
SUMMARY:Live Q&A: Managing medications effectively
DESCRIPTION:TOFS 2026 Seminar Important Update:We’ve been made aware that there is a part closure on the Piccadilly Line on Saturday. Depending on which direction you’re coming from\, please walk from Holborn Station (we believe the central line is open) or get off the train at Kings Cross/St Pancras and walk from there. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									The TOFS seminar is being held at the Institute of Child Health (ICH)\, London on Saturday\, 21st March\, 2026. Why attendJoin us for our in-person OA/TOF Seminar in London to hear from some of the UK’s leading specialists on the work being done to improve the care of today’s OA/TOF children and to address the long-term issues affecting adults born with the condition. This is a great opportunity to meet\, make connections and share experiences with other families and adults born with OA/TOF and associated conditions. Who should attend?This seminar is aimed at adults born with OA/TOF\, parents and carers of children born with OA/TOF and medical professionals. Note: Registration on the day opens at 9.30am with presentations beginning at 10.30am. 								\n				\n				\n				\n									\n					\n						\n						\n							\n									CLICK HERE FOR TICKETS\n					\n					\n				\n								\n				\n					\n		\n				\n			\n						\n				\n									Event co-sponsored by  								\n				\n				\n				\n																														\n				\n				\n				\n																\n															\n															\n				\n				\n				\n									NIHR Great Ormond Street Hospital Biomedical Research Centre 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n				\n				\n					Presentations				\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Eating\, drinking & swallowing difficulties children born with OA/TOF								\n				\n				\n				\n									Presented by Dr Alex Stewart – Speech and Language Therapist (GOSH) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Experience of parents of children born with oesophageal atresia								\n				\n				\n				\n									Presented by Dr Vuokko Wallace – Clinical Psychologist\, University of Bath 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Gastro issues and Eosinophilic Oesophagitis (EoE) in OA/TOF patients								\n				\n				\n				\n									Presented by Dr Osvaldo Borrelli – Head of Clinical Service\, Consultant Paediatric Gastroenterologist (GOSH) and Honorary Senior Lecturer (UCL) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Role of TOF Multi Disciplinary Team (MDT) pathway in improving care in oesophageal atresia								\n				\n				\n				\n									Presented by Ms Dhanya Mullassery – Consultant Neonatal and Paediatric Surgeon (GOSH) and Honorary Senior Lecturer (UCL) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Respiratory updates from the INoEA (International Network of Esophageal Atresia) conference and ERS (European Respiratory Society) congress								\n				\n				\n				\n									Presented by Dr Caroline Love\, Chair of TOFS Medical Liaison & Research Subcommittee and Patient Advisory Committee member of the European Lung Foundation (ELF) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									Click here to see the full schedule 								\n				\n				\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									Any Questions?When is the seminar?The seminar is on March 21st\, 2026. Registration on the day opens at 9.30am with presentations beginning at 10.30am. The seminar will close at 4.30pm. How much are tickets?Tickets are free to TOFS’ Members\, Associates and Health Professionals. If you wish to join TOFS\, please sign up at – tofs.org.uk/join-tofs/ Is this a TOFS party?No\, this is an information seminar. Can I watch the seminar online?This is an in-person event only and will not be live streamed. We encourage members to attend in person to get the full benefits of the event\, listening to the speakers; interacting with the Q&A and discussion sessions; meeting TOFS volunteers and staff and chatting with other members of TOFS who will be attending. Some of the presentations may be recorded and posted online\, at a later date. Can I bring my child/children?Yes\, but you might prefer not to. Children below secondary school age are not permitted into the lecture room while presentations are being made. A separate room will be available on the day for families\, and the presentations will be relayed to a screen in that room. All children must be cared for by a responsible adult at all times. The excellent Coram’s Fields Children’s play park is just over the road from the venue. Will there be lunch?Yes\, a light lunch will be provided\, and seating will be available. Will I get a chance to speak to other families / people affected by OA/TOF?Yes\, we will have both lunch and refreshment breaks to allow you chance to chat with other attendees. Is there wheelchair access?We are very grateful to Great Ormond Street Hospital for providing our venue for the day. However\, this is an older building and while the venue is accessible to all\, the lecture theatre itself is accessible via stairs only. If you have any disability that may affect your access or participation in the event\, please let us know when ordering your tickets.Is there a cancellation deadline?Yes. If you can no longer attend\, please let us know via info@tofs.org.uk no later than 7 days before the seminar. This is to ensure that we only cater for the correct number of guests. Where is the seminar taking place?UCL Great Ormond Street Institute of Child Health\, WC1N 1EH If you have any further questions\, please contact us. 								\n				\n					\n		\n				\n			\n						\n				\n									\n					\n				\n											\n									\n\n			\n					\n								\n											\n									\n\n			\n					\n								\n											\n									\n\n			\n					\n								\n									\n															\n													\n						\n													\n																\n												\n				\n								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					How to get there				\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Where is the seminar?				\n				\n				\n				\n									The seminar is at the Institute of Child Health (ICH)\, which is a part of University College London – but situated on the GOSH site. The entrance to ICH is at 30 Guilford Street\, just north of Great Ormond Street itself. Postcode is WC1N 1 EH. 								\n				\n					\n		\n				\n			\n						\n				\n																\n															\n															\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									TOFS 2026 Seminar Important Update:We’ve been made aware that there is a part closure on the Piccadilly Line on Saturday. Depending on which direction you’re coming from\, please walk from Holborn Station (we believe the central line is open) or get off the train at Kings Cross/St Pancras and walk from there. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Public transport				\n				\n				\n				\n									The nearest tube station to ICH / GOSH is Russell Square on the Piccadilly Line. The next closest is Holborn\, on the Central and Piccadilly lines. Kings Cross and Euston stations are both only 0.8 miles away. Farringdon station (Elizabeth line and Metropolitan / Circle plus some overground commuter trains from Brighton\, Cambridge\, Huntingdon) is 0.9 miles. 								\n				\n				\n				\n					Travelling by car				\n				\n				\n				\n									Please note\, the venue is within both the London congestion charge zone and the  ULEZ (Ultra Low Emission) zone. There is some on-street metered parking around GOSH\, including in Guilford Street itself.  Much of this becomes free after 13:30 on a Saturday.  Moreover a significant amount of residents-only parking in this area becomes derestricted (i.e. free) on a Saturday afternoon. There are large underground public car parks close to GOSH at: Brunswick square (NCP) – postcode WC1N 1AF; the Imperial Hotel in Russell Square and underneath the Holiday Inn -Bloomsbury\, postcode WC1N 1HT. 								\n				\n					\n		\n				\n			\n						\n				\n					Outer London Tube stations with parking				\n				\n				\n				\n									Several tube stations near the end of the network in the North and West segments of outer London are close to the M25 and to some of the motorways into London. Unfortunately\, most of the stations listed below are within the ULEZ zone but  outside of the London congestion charge zone. Hillingdon (Metropolitan and Piccadilly lines). Has a car park which TfL says has 283 spaces. Postcode is UB10 9NR. This station is next to a junction on the A40 Western Avenue road\, only 5 miles from the M25 /M40 junction. Moreover\, the next station along the line (Ickenham) also has a large car park effectively providing an overflow car park. Stanmore (Jubilee line). Has a car park which TfL says has 450 spaces. Postcode is HA7 4PD. From the A41 Edgware way\, this is a direct drive along London Road. The A41 is accessed directly from M1 junction 4\, which is only 2 miles from the station. This is also close to the main A1 road. Cockfosters (Piccadilly line) Has a car park which TfL says has 232 spaces. Postcode is EN4 0DZ. It is a direct 3 mile drive down the A111 from the Potter’s Bar Junction (24) of the M25. Epping (Central line) Has a car park which Sabaparking says has 532 spaces. This station is outside the London ULEZ near to the junction of the M11 and M25. It is however not so convenient from the viewpoint of motorway junctions. Postcode is CM16 4HW.  Debden (Central line) Has a car park which Sabaparking says has 206 spaces. It is however only half a mile along the A 1168 from M11 junction 5 and also outside London ULEZ. Postcode is IG10 3TG. Upminster (District line) The car park here appears to be run by NCP\, which says there are 342 spaces. Postcode is RM14 2TD. It is only 3 miles from M25 junction 29\, via a route involving the A127 toward London. However it is inside the ULEZ. This might be a good option for those coming from East Anglia. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Nearby places to eat				\n				\n				\n				\n									Brunswick centre (https://maps.app.goo.gl/UwBNKmhUe9ciib1G9)  and opposite Russell Square station have a wide variety of places to eat\, including: Itsu\, Nandos\, LEON\, Pret\, Franco MancaLamb’s conduit street has a number of higher end restaurants.Redemptions roasters (Lamb’s conduit street) are great for coffee.
URL:https://tofs.org.uk/event/live-qa-managing-medications-effectively/
LOCATION:Online
CATEGORIES:Parents & Carers
ATTACH;FMTTYPE=image/jpeg:https://tofs.org.uk/wp-content/uploads/2024/12/Chew-Adverts-6.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20250306T200000
DTEND;TZID=Europe/London:20250306T210000
DTSTAMP:20260424T122851
CREATED:20241216T112514Z
LAST-MODIFIED:20250115T110032Z
UID:10000098-1741291200-1741294800@tofs.org.uk
SUMMARY:Virtual meet-up for adults born with OA/TOF
DESCRIPTION:TOFS 2026 Seminar Important Update:We’ve been made aware that there is a part closure on the Piccadilly Line on Saturday. Depending on which direction you’re coming from\, please walk from Holborn Station (we believe the central line is open) or get off the train at Kings Cross/St Pancras and walk from there. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									The TOFS seminar is being held at the Institute of Child Health (ICH)\, London on Saturday\, 21st March\, 2026. Why attendJoin us for our in-person OA/TOF Seminar in London to hear from some of the UK’s leading specialists on the work being done to improve the care of today’s OA/TOF children and to address the long-term issues affecting adults born with the condition. This is a great opportunity to meet\, make connections and share experiences with other families and adults born with OA/TOF and associated conditions. Who should attend?This seminar is aimed at adults born with OA/TOF\, parents and carers of children born with OA/TOF and medical professionals. Note: Registration on the day opens at 9.30am with presentations beginning at 10.30am. 								\n				\n				\n				\n									\n					\n						\n						\n							\n									CLICK HERE FOR TICKETS\n					\n					\n				\n								\n				\n					\n		\n				\n			\n						\n				\n									Event co-sponsored by  								\n				\n				\n				\n																														\n				\n				\n				\n																\n															\n															\n				\n				\n				\n									NIHR Great Ormond Street Hospital Biomedical Research Centre 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n				\n				\n					Presentations				\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Eating\, drinking & swallowing difficulties children born with OA/TOF								\n				\n				\n				\n									Presented by Dr Alex Stewart – Speech and Language Therapist (GOSH) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Experience of parents of children born with oesophageal atresia								\n				\n				\n				\n									Presented by Dr Vuokko Wallace – Clinical Psychologist\, University of Bath 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Gastro issues and Eosinophilic Oesophagitis (EoE) in OA/TOF patients								\n				\n				\n				\n									Presented by Dr Osvaldo Borrelli – Head of Clinical Service\, Consultant Paediatric Gastroenterologist (GOSH) and Honorary Senior Lecturer (UCL) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Role of TOF Multi Disciplinary Team (MDT) pathway in improving care in oesophageal atresia								\n				\n				\n				\n									Presented by Ms Dhanya Mullassery – Consultant Neonatal and Paediatric Surgeon (GOSH) and Honorary Senior Lecturer (UCL) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Respiratory updates from the INoEA (International Network of Esophageal Atresia) conference and ERS (European Respiratory Society) congress								\n				\n				\n				\n									Presented by Dr Caroline Love\, Chair of TOFS Medical Liaison & Research Subcommittee and Patient Advisory Committee member of the European Lung Foundation (ELF) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									Click here to see the full schedule 								\n				\n				\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									Any Questions?When is the seminar?The seminar is on March 21st\, 2026. Registration on the day opens at 9.30am with presentations beginning at 10.30am. The seminar will close at 4.30pm. How much are tickets?Tickets are free to TOFS’ Members\, Associates and Health Professionals. If you wish to join TOFS\, please sign up at – tofs.org.uk/join-tofs/ Is this a TOFS party?No\, this is an information seminar. Can I watch the seminar online?This is an in-person event only and will not be live streamed. We encourage members to attend in person to get the full benefits of the event\, listening to the speakers; interacting with the Q&A and discussion sessions; meeting TOFS volunteers and staff and chatting with other members of TOFS who will be attending. Some of the presentations may be recorded and posted online\, at a later date. Can I bring my child/children?Yes\, but you might prefer not to. Children below secondary school age are not permitted into the lecture room while presentations are being made. A separate room will be available on the day for families\, and the presentations will be relayed to a screen in that room. All children must be cared for by a responsible adult at all times. The excellent Coram’s Fields Children’s play park is just over the road from the venue. Will there be lunch?Yes\, a light lunch will be provided\, and seating will be available. Will I get a chance to speak to other families / people affected by OA/TOF?Yes\, we will have both lunch and refreshment breaks to allow you chance to chat with other attendees. Is there wheelchair access?We are very grateful to Great Ormond Street Hospital for providing our venue for the day. However\, this is an older building and while the venue is accessible to all\, the lecture theatre itself is accessible via stairs only. If you have any disability that may affect your access or participation in the event\, please let us know when ordering your tickets.Is there a cancellation deadline?Yes. If you can no longer attend\, please let us know via info@tofs.org.uk no later than 7 days before the seminar. This is to ensure that we only cater for the correct number of guests. Where is the seminar taking place?UCL Great Ormond Street Institute of Child Health\, WC1N 1EH If you have any further questions\, please contact us. 								\n				\n					\n		\n				\n			\n						\n				\n									\n					\n				\n											\n									\n\n			\n					\n								\n											\n									\n\n			\n					\n								\n											\n									\n\n			\n					\n								\n									\n															\n													\n						\n													\n																\n												\n				\n								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					How to get there				\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Where is the seminar?				\n				\n				\n				\n									The seminar is at the Institute of Child Health (ICH)\, which is a part of University College London – but situated on the GOSH site. The entrance to ICH is at 30 Guilford Street\, just north of Great Ormond Street itself. Postcode is WC1N 1 EH. 								\n				\n					\n		\n				\n			\n						\n				\n																\n															\n															\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									TOFS 2026 Seminar Important Update:We’ve been made aware that there is a part closure on the Piccadilly Line on Saturday. Depending on which direction you’re coming from\, please walk from Holborn Station (we believe the central line is open) or get off the train at Kings Cross/St Pancras and walk from there. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Public transport				\n				\n				\n				\n									The nearest tube station to ICH / GOSH is Russell Square on the Piccadilly Line. The next closest is Holborn\, on the Central and Piccadilly lines. Kings Cross and Euston stations are both only 0.8 miles away. Farringdon station (Elizabeth line and Metropolitan / Circle plus some overground commuter trains from Brighton\, Cambridge\, Huntingdon) is 0.9 miles. 								\n				\n				\n				\n					Travelling by car				\n				\n				\n				\n									Please note\, the venue is within both the London congestion charge zone and the  ULEZ (Ultra Low Emission) zone. There is some on-street metered parking around GOSH\, including in Guilford Street itself.  Much of this becomes free after 13:30 on a Saturday.  Moreover a significant amount of residents-only parking in this area becomes derestricted (i.e. free) on a Saturday afternoon. There are large underground public car parks close to GOSH at: Brunswick square (NCP) – postcode WC1N 1AF; the Imperial Hotel in Russell Square and underneath the Holiday Inn -Bloomsbury\, postcode WC1N 1HT. 								\n				\n					\n		\n				\n			\n						\n				\n					Outer London Tube stations with parking				\n				\n				\n				\n									Several tube stations near the end of the network in the North and West segments of outer London are close to the M25 and to some of the motorways into London. Unfortunately\, most of the stations listed below are within the ULEZ zone but  outside of the London congestion charge zone. Hillingdon (Metropolitan and Piccadilly lines). Has a car park which TfL says has 283 spaces. Postcode is UB10 9NR. This station is next to a junction on the A40 Western Avenue road\, only 5 miles from the M25 /M40 junction. Moreover\, the next station along the line (Ickenham) also has a large car park effectively providing an overflow car park. Stanmore (Jubilee line). Has a car park which TfL says has 450 spaces. Postcode is HA7 4PD. From the A41 Edgware way\, this is a direct drive along London Road. The A41 is accessed directly from M1 junction 4\, which is only 2 miles from the station. This is also close to the main A1 road. Cockfosters (Piccadilly line) Has a car park which TfL says has 232 spaces. Postcode is EN4 0DZ. It is a direct 3 mile drive down the A111 from the Potter’s Bar Junction (24) of the M25. Epping (Central line) Has a car park which Sabaparking says has 532 spaces. This station is outside the London ULEZ near to the junction of the M11 and M25. It is however not so convenient from the viewpoint of motorway junctions. Postcode is CM16 4HW.  Debden (Central line) Has a car park which Sabaparking says has 206 spaces. It is however only half a mile along the A 1168 from M11 junction 5 and also outside London ULEZ. Postcode is IG10 3TG. Upminster (District line) The car park here appears to be run by NCP\, which says there are 342 spaces. Postcode is RM14 2TD. It is only 3 miles from M25 junction 29\, via a route involving the A127 toward London. However it is inside the ULEZ. This might be a good option for those coming from East Anglia. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Nearby places to eat				\n				\n				\n				\n									Brunswick centre (https://maps.app.goo.gl/UwBNKmhUe9ciib1G9)  and opposite Russell Square station have a wide variety of places to eat\, including: Itsu\, Nandos\, LEON\, Pret\, Franco MancaLamb’s conduit street has a number of higher end restaurants.Redemptions roasters (Lamb’s conduit street) are great for coffee.
URL:https://tofs.org.uk/event/virtual-meet-up-for-adults-born-with-oa-tof-12/
LOCATION:Online
CATEGORIES:Adult TOF
ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2024/12/cuppa-and-chat-march-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20250305T150000
DTEND;TZID=Europe/London:20250305T160000
DTSTAMP:20260424T122851
CREATED:20250303T122830Z
LAST-MODIFIED:20250303T122915Z
UID:10000105-1741186800-1741190400@tofs.org.uk
SUMMARY:ERNICA: A traumatic Diagnosis - the (early) parent-child interaction in (rare) chronic paediatric diseases
DESCRIPTION:TOFS 2026 Seminar Important Update:We’ve been made aware that there is a part closure on the Piccadilly Line on Saturday. Depending on which direction you’re coming from\, please walk from Holborn Station (we believe the central line is open) or get off the train at Kings Cross/St Pancras and walk from there. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									The TOFS seminar is being held at the Institute of Child Health (ICH)\, London on Saturday\, 21st March\, 2026. Why attendJoin us for our in-person OA/TOF Seminar in London to hear from some of the UK’s leading specialists on the work being done to improve the care of today’s OA/TOF children and to address the long-term issues affecting adults born with the condition. This is a great opportunity to meet\, make connections and share experiences with other families and adults born with OA/TOF and associated conditions. Who should attend?This seminar is aimed at adults born with OA/TOF\, parents and carers of children born with OA/TOF and medical professionals. Note: Registration on the day opens at 9.30am with presentations beginning at 10.30am. 								\n				\n				\n				\n									\n					\n						\n						\n							\n									CLICK HERE FOR TICKETS\n					\n					\n				\n								\n				\n					\n		\n				\n			\n						\n				\n									Event co-sponsored by  								\n				\n				\n				\n																														\n				\n				\n				\n																\n															\n															\n				\n				\n				\n									NIHR Great Ormond Street Hospital Biomedical Research Centre 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n				\n				\n					Presentations				\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Eating\, drinking & swallowing difficulties children born with OA/TOF								\n				\n				\n				\n									Presented by Dr Alex Stewart – Speech and Language Therapist (GOSH) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Experience of parents of children born with oesophageal atresia								\n				\n				\n				\n									Presented by Dr Vuokko Wallace – Clinical Psychologist\, University of Bath 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Gastro issues and Eosinophilic Oesophagitis (EoE) in OA/TOF patients								\n				\n				\n				\n									Presented by Dr Osvaldo Borrelli – Head of Clinical Service\, Consultant Paediatric Gastroenterologist (GOSH) and Honorary Senior Lecturer (UCL) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Role of TOF Multi Disciplinary Team (MDT) pathway in improving care in oesophageal atresia								\n				\n				\n				\n									Presented by Ms Dhanya Mullassery – Consultant Neonatal and Paediatric Surgeon (GOSH) and Honorary Senior Lecturer (UCL) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Respiratory updates from the INoEA (International Network of Esophageal Atresia) conference and ERS (European Respiratory Society) congress								\n				\n				\n				\n									Presented by Dr Caroline Love\, Chair of TOFS Medical Liaison & Research Subcommittee and Patient Advisory Committee member of the European Lung Foundation (ELF) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									Click here to see the full schedule 								\n				\n				\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									Any Questions?When is the seminar?The seminar is on March 21st\, 2026. Registration on the day opens at 9.30am with presentations beginning at 10.30am. The seminar will close at 4.30pm. How much are tickets?Tickets are free to TOFS’ Members\, Associates and Health Professionals. If you wish to join TOFS\, please sign up at – tofs.org.uk/join-tofs/ Is this a TOFS party?No\, this is an information seminar. Can I watch the seminar online?This is an in-person event only and will not be live streamed. We encourage members to attend in person to get the full benefits of the event\, listening to the speakers; interacting with the Q&A and discussion sessions; meeting TOFS volunteers and staff and chatting with other members of TOFS who will be attending. Some of the presentations may be recorded and posted online\, at a later date. Can I bring my child/children?Yes\, but you might prefer not to. Children below secondary school age are not permitted into the lecture room while presentations are being made. A separate room will be available on the day for families\, and the presentations will be relayed to a screen in that room. All children must be cared for by a responsible adult at all times. The excellent Coram’s Fields Children’s play park is just over the road from the venue. Will there be lunch?Yes\, a light lunch will be provided\, and seating will be available. Will I get a chance to speak to other families / people affected by OA/TOF?Yes\, we will have both lunch and refreshment breaks to allow you chance to chat with other attendees. Is there wheelchair access?We are very grateful to Great Ormond Street Hospital for providing our venue for the day. However\, this is an older building and while the venue is accessible to all\, the lecture theatre itself is accessible via stairs only. If you have any disability that may affect your access or participation in the event\, please let us know when ordering your tickets.Is there a cancellation deadline?Yes. If you can no longer attend\, please let us know via info@tofs.org.uk no later than 7 days before the seminar. This is to ensure that we only cater for the correct number of guests. Where is the seminar taking place?UCL Great Ormond Street Institute of Child Health\, WC1N 1EH If you have any further questions\, please contact us. 								\n				\n					\n		\n				\n			\n						\n				\n									\n					\n				\n											\n									\n\n			\n					\n								\n											\n									\n\n			\n					\n								\n											\n									\n\n			\n					\n								\n									\n															\n													\n						\n													\n																\n												\n				\n								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					How to get there				\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Where is the seminar?				\n				\n				\n				\n									The seminar is at the Institute of Child Health (ICH)\, which is a part of University College London – but situated on the GOSH site. The entrance to ICH is at 30 Guilford Street\, just north of Great Ormond Street itself. Postcode is WC1N 1 EH. 								\n				\n					\n		\n				\n			\n						\n				\n																\n															\n															\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									TOFS 2026 Seminar Important Update:We’ve been made aware that there is a part closure on the Piccadilly Line on Saturday. Depending on which direction you’re coming from\, please walk from Holborn Station (we believe the central line is open) or get off the train at Kings Cross/St Pancras and walk from there. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Public transport				\n				\n				\n				\n									The nearest tube station to ICH / GOSH is Russell Square on the Piccadilly Line. The next closest is Holborn\, on the Central and Piccadilly lines. Kings Cross and Euston stations are both only 0.8 miles away. Farringdon station (Elizabeth line and Metropolitan / Circle plus some overground commuter trains from Brighton\, Cambridge\, Huntingdon) is 0.9 miles. 								\n				\n				\n				\n					Travelling by car				\n				\n				\n				\n									Please note\, the venue is within both the London congestion charge zone and the  ULEZ (Ultra Low Emission) zone. There is some on-street metered parking around GOSH\, including in Guilford Street itself.  Much of this becomes free after 13:30 on a Saturday.  Moreover a significant amount of residents-only parking in this area becomes derestricted (i.e. free) on a Saturday afternoon. There are large underground public car parks close to GOSH at: Brunswick square (NCP) – postcode WC1N 1AF; the Imperial Hotel in Russell Square and underneath the Holiday Inn -Bloomsbury\, postcode WC1N 1HT. 								\n				\n					\n		\n				\n			\n						\n				\n					Outer London Tube stations with parking				\n				\n				\n				\n									Several tube stations near the end of the network in the North and West segments of outer London are close to the M25 and to some of the motorways into London. Unfortunately\, most of the stations listed below are within the ULEZ zone but  outside of the London congestion charge zone. Hillingdon (Metropolitan and Piccadilly lines). Has a car park which TfL says has 283 spaces. Postcode is UB10 9NR. This station is next to a junction on the A40 Western Avenue road\, only 5 miles from the M25 /M40 junction. Moreover\, the next station along the line (Ickenham) also has a large car park effectively providing an overflow car park. Stanmore (Jubilee line). Has a car park which TfL says has 450 spaces. Postcode is HA7 4PD. From the A41 Edgware way\, this is a direct drive along London Road. The A41 is accessed directly from M1 junction 4\, which is only 2 miles from the station. This is also close to the main A1 road. Cockfosters (Piccadilly line) Has a car park which TfL says has 232 spaces. Postcode is EN4 0DZ. It is a direct 3 mile drive down the A111 from the Potter’s Bar Junction (24) of the M25. Epping (Central line) Has a car park which Sabaparking says has 532 spaces. This station is outside the London ULEZ near to the junction of the M11 and M25. It is however not so convenient from the viewpoint of motorway junctions. Postcode is CM16 4HW.  Debden (Central line) Has a car park which Sabaparking says has 206 spaces. It is however only half a mile along the A 1168 from M11 junction 5 and also outside London ULEZ. Postcode is IG10 3TG. Upminster (District line) The car park here appears to be run by NCP\, which says there are 342 spaces. Postcode is RM14 2TD. It is only 3 miles from M25 junction 29\, via a route involving the A127 toward London. However it is inside the ULEZ. This might be a good option for those coming from East Anglia. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Nearby places to eat				\n				\n				\n				\n									Brunswick centre (https://maps.app.goo.gl/UwBNKmhUe9ciib1G9)  and opposite Russell Square station have a wide variety of places to eat\, including: Itsu\, Nandos\, LEON\, Pret\, Franco MancaLamb’s conduit street has a number of higher end restaurants.Redemptions roasters (Lamb’s conduit street) are great for coffee.
URL:https://tofs.org.uk/event/ernica-a-traumatic-diagnosis-the-early-parent-child-interaction-in-rare-chronic-paediatric-diseases/
LOCATION:Online
CATEGORIES:Parents & Carers,Professional,Support
ATTACH;FMTTYPE=image/jpeg:https://tofs.org.uk/wp-content/uploads/2022/11/EARNICA_400x400.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20250301T121500
DTEND;TZID=Europe/London:20250301T163000
DTSTAMP:20260424T122851
CREATED:20241116T120046Z
LAST-MODIFIED:20250225T164055Z
UID:10000090-1740831300-1740846600@tofs.org.uk
SUMMARY:TOFS Seminar 2025
DESCRIPTION:TOFS 2026 Seminar Important Update:We’ve been made aware that there is a part closure on the Piccadilly Line on Saturday. Depending on which direction you’re coming from\, please walk from Holborn Station (we believe the central line is open) or get off the train at Kings Cross/St Pancras and walk from there. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									The TOFS seminar is being held at the Institute of Child Health (ICH)\, London on Saturday\, 21st March\, 2026. Why attendJoin us for our in-person OA/TOF Seminar in London to hear from some of the UK’s leading specialists on the work being done to improve the care of today’s OA/TOF children and to address the long-term issues affecting adults born with the condition. This is a great opportunity to meet\, make connections and share experiences with other families and adults born with OA/TOF and associated conditions. Who should attend?This seminar is aimed at adults born with OA/TOF\, parents and carers of children born with OA/TOF and medical professionals. Note: Registration on the day opens at 9.30am with presentations beginning at 10.30am. 								\n				\n				\n				\n									\n					\n						\n						\n							\n									CLICK HERE FOR TICKETS\n					\n					\n				\n								\n				\n					\n		\n				\n			\n						\n				\n									Event co-sponsored by  								\n				\n				\n				\n																														\n				\n				\n				\n																\n															\n															\n				\n				\n				\n									NIHR Great Ormond Street Hospital Biomedical Research Centre 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n				\n				\n					Presentations				\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Eating\, drinking & swallowing difficulties children born with OA/TOF								\n				\n				\n				\n									Presented by Dr Alex Stewart – Speech and Language Therapist (GOSH) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Experience of parents of children born with oesophageal atresia								\n				\n				\n				\n									Presented by Dr Vuokko Wallace – Clinical Psychologist\, University of Bath 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Gastro issues and Eosinophilic Oesophagitis (EoE) in OA/TOF patients								\n				\n				\n				\n									Presented by Dr Osvaldo Borrelli – Head of Clinical Service\, Consultant Paediatric Gastroenterologist (GOSH) and Honorary Senior Lecturer (UCL) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Role of TOF Multi Disciplinary Team (MDT) pathway in improving care in oesophageal atresia								\n				\n				\n				\n									Presented by Ms Dhanya Mullassery – Consultant Neonatal and Paediatric Surgeon (GOSH) and Honorary Senior Lecturer (UCL) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Respiratory updates from the INoEA (International Network of Esophageal Atresia) conference and ERS (European Respiratory Society) congress								\n				\n				\n				\n									Presented by Dr Caroline Love\, Chair of TOFS Medical Liaison & Research Subcommittee and Patient Advisory Committee member of the European Lung Foundation (ELF) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									Click here to see the full schedule 								\n				\n				\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									Any Questions?When is the seminar?The seminar is on March 21st\, 2026. Registration on the day opens at 9.30am with presentations beginning at 10.30am. The seminar will close at 4.30pm. How much are tickets?Tickets are free to TOFS’ Members\, Associates and Health Professionals. If you wish to join TOFS\, please sign up at – tofs.org.uk/join-tofs/ Is this a TOFS party?No\, this is an information seminar. Can I watch the seminar online?This is an in-person event only and will not be live streamed. We encourage members to attend in person to get the full benefits of the event\, listening to the speakers; interacting with the Q&A and discussion sessions; meeting TOFS volunteers and staff and chatting with other members of TOFS who will be attending. Some of the presentations may be recorded and posted online\, at a later date. Can I bring my child/children?Yes\, but you might prefer not to. Children below secondary school age are not permitted into the lecture room while presentations are being made. A separate room will be available on the day for families\, and the presentations will be relayed to a screen in that room. All children must be cared for by a responsible adult at all times. The excellent Coram’s Fields Children’s play park is just over the road from the venue. Will there be lunch?Yes\, a light lunch will be provided\, and seating will be available. Will I get a chance to speak to other families / people affected by OA/TOF?Yes\, we will have both lunch and refreshment breaks to allow you chance to chat with other attendees. Is there wheelchair access?We are very grateful to Great Ormond Street Hospital for providing our venue for the day. However\, this is an older building and while the venue is accessible to all\, the lecture theatre itself is accessible via stairs only. If you have any disability that may affect your access or participation in the event\, please let us know when ordering your tickets.Is there a cancellation deadline?Yes. If you can no longer attend\, please let us know via info@tofs.org.uk no later than 7 days before the seminar. This is to ensure that we only cater for the correct number of guests. Where is the seminar taking place?UCL Great Ormond Street Institute of Child Health\, WC1N 1EH If you have any further questions\, please contact us. 								\n				\n					\n		\n				\n			\n						\n				\n									\n					\n				\n											\n									\n\n			\n					\n								\n											\n									\n\n			\n					\n								\n											\n									\n\n			\n					\n								\n									\n															\n													\n						\n													\n																\n												\n				\n								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					How to get there				\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Where is the seminar?				\n				\n				\n				\n									The seminar is at the Institute of Child Health (ICH)\, which is a part of University College London – but situated on the GOSH site. The entrance to ICH is at 30 Guilford Street\, just north of Great Ormond Street itself. Postcode is WC1N 1 EH. 								\n				\n					\n		\n				\n			\n						\n				\n																\n															\n															\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									TOFS 2026 Seminar Important Update:We’ve been made aware that there is a part closure on the Piccadilly Line on Saturday. Depending on which direction you’re coming from\, please walk from Holborn Station (we believe the central line is open) or get off the train at Kings Cross/St Pancras and walk from there. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Public transport				\n				\n				\n				\n									The nearest tube station to ICH / GOSH is Russell Square on the Piccadilly Line. The next closest is Holborn\, on the Central and Piccadilly lines. Kings Cross and Euston stations are both only 0.8 miles away. Farringdon station (Elizabeth line and Metropolitan / Circle plus some overground commuter trains from Brighton\, Cambridge\, Huntingdon) is 0.9 miles. 								\n				\n				\n				\n					Travelling by car				\n				\n				\n				\n									Please note\, the venue is within both the London congestion charge zone and the  ULEZ (Ultra Low Emission) zone. There is some on-street metered parking around GOSH\, including in Guilford Street itself.  Much of this becomes free after 13:30 on a Saturday.  Moreover a significant amount of residents-only parking in this area becomes derestricted (i.e. free) on a Saturday afternoon. There are large underground public car parks close to GOSH at: Brunswick square (NCP) – postcode WC1N 1AF; the Imperial Hotel in Russell Square and underneath the Holiday Inn -Bloomsbury\, postcode WC1N 1HT. 								\n				\n					\n		\n				\n			\n						\n				\n					Outer London Tube stations with parking				\n				\n				\n				\n									Several tube stations near the end of the network in the North and West segments of outer London are close to the M25 and to some of the motorways into London. Unfortunately\, most of the stations listed below are within the ULEZ zone but  outside of the London congestion charge zone. Hillingdon (Metropolitan and Piccadilly lines). Has a car park which TfL says has 283 spaces. Postcode is UB10 9NR. This station is next to a junction on the A40 Western Avenue road\, only 5 miles from the M25 /M40 junction. Moreover\, the next station along the line (Ickenham) also has a large car park effectively providing an overflow car park. Stanmore (Jubilee line). Has a car park which TfL says has 450 spaces. Postcode is HA7 4PD. From the A41 Edgware way\, this is a direct drive along London Road. The A41 is accessed directly from M1 junction 4\, which is only 2 miles from the station. This is also close to the main A1 road. Cockfosters (Piccadilly line) Has a car park which TfL says has 232 spaces. Postcode is EN4 0DZ. It is a direct 3 mile drive down the A111 from the Potter’s Bar Junction (24) of the M25. Epping (Central line) Has a car park which Sabaparking says has 532 spaces. This station is outside the London ULEZ near to the junction of the M11 and M25. It is however not so convenient from the viewpoint of motorway junctions. Postcode is CM16 4HW.  Debden (Central line) Has a car park which Sabaparking says has 206 spaces. It is however only half a mile along the A 1168 from M11 junction 5 and also outside London ULEZ. Postcode is IG10 3TG. Upminster (District line) The car park here appears to be run by NCP\, which says there are 342 spaces. Postcode is RM14 2TD. It is only 3 miles from M25 junction 29\, via a route involving the A127 toward London. However it is inside the ULEZ. This might be a good option for those coming from East Anglia. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Nearby places to eat				\n				\n				\n				\n									Brunswick centre (https://maps.app.goo.gl/UwBNKmhUe9ciib1G9)  and opposite Russell Square station have a wide variety of places to eat\, including: Itsu\, Nandos\, LEON\, Pret\, Franco MancaLamb’s conduit street has a number of higher end restaurants.Redemptions roasters (Lamb’s conduit street) are great for coffee.
URL:https://tofs.org.uk/event/tofs-seminar-2025/
LOCATION:St Michaels Centre\,\, The Green\, Stoke Gifford\, Bristol\, BS34 8PD\, United Kingdom
CATEGORIES:Adult TOF,Parents & Carers,Professional,Support
ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2024/08/tofs-logo-tiny-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20250228
DTEND;VALUE=DATE:20250301
DTSTAMP:20260424T122851
CREATED:20250210T110913Z
LAST-MODIFIED:20250227T110305Z
UID:10000103-1740700800-1740787199@tofs.org.uk
SUMMARY:Rare Disease Day 2025
DESCRIPTION:TOFS 2026 Seminar Important Update:We’ve been made aware that there is a part closure on the Piccadilly Line on Saturday. Depending on which direction you’re coming from\, please walk from Holborn Station (we believe the central line is open) or get off the train at Kings Cross/St Pancras and walk from there. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									The TOFS seminar is being held at the Institute of Child Health (ICH)\, London on Saturday\, 21st March\, 2026. Why attendJoin us for our in-person OA/TOF Seminar in London to hear from some of the UK’s leading specialists on the work being done to improve the care of today’s OA/TOF children and to address the long-term issues affecting adults born with the condition. This is a great opportunity to meet\, make connections and share experiences with other families and adults born with OA/TOF and associated conditions. Who should attend?This seminar is aimed at adults born with OA/TOF\, parents and carers of children born with OA/TOF and medical professionals. Note: Registration on the day opens at 9.30am with presentations beginning at 10.30am. 								\n				\n				\n				\n									\n					\n						\n						\n							\n									CLICK HERE FOR TICKETS\n					\n					\n				\n								\n				\n					\n		\n				\n			\n						\n				\n									Event co-sponsored by  								\n				\n				\n				\n																														\n				\n				\n				\n																\n															\n															\n				\n				\n				\n									NIHR Great Ormond Street Hospital Biomedical Research Centre 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n				\n				\n					Presentations				\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Eating\, drinking & swallowing difficulties children born with OA/TOF								\n				\n				\n				\n									Presented by Dr Alex Stewart – Speech and Language Therapist (GOSH) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Experience of parents of children born with oesophageal atresia								\n				\n				\n				\n									Presented by Dr Vuokko Wallace – Clinical Psychologist\, University of Bath 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Gastro issues and Eosinophilic Oesophagitis (EoE) in OA/TOF patients								\n				\n				\n				\n									Presented by Dr Osvaldo Borrelli – Head of Clinical Service\, Consultant Paediatric Gastroenterologist (GOSH) and Honorary Senior Lecturer (UCL) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Role of TOF Multi Disciplinary Team (MDT) pathway in improving care in oesophageal atresia								\n				\n				\n				\n									Presented by Ms Dhanya Mullassery – Consultant Neonatal and Paediatric Surgeon (GOSH) and Honorary Senior Lecturer (UCL) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Respiratory updates from the INoEA (International Network of Esophageal Atresia) conference and ERS (European Respiratory Society) congress								\n				\n				\n				\n									Presented by Dr Caroline Love\, Chair of TOFS Medical Liaison & Research Subcommittee and Patient Advisory Committee member of the European Lung Foundation (ELF) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									Click here to see the full schedule 								\n				\n				\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									Any Questions?When is the seminar?The seminar is on March 21st\, 2026. Registration on the day opens at 9.30am with presentations beginning at 10.30am. The seminar will close at 4.30pm. How much are tickets?Tickets are free to TOFS’ Members\, Associates and Health Professionals. If you wish to join TOFS\, please sign up at – tofs.org.uk/join-tofs/ Is this a TOFS party?No\, this is an information seminar. Can I watch the seminar online?This is an in-person event only and will not be live streamed. We encourage members to attend in person to get the full benefits of the event\, listening to the speakers; interacting with the Q&A and discussion sessions; meeting TOFS volunteers and staff and chatting with other members of TOFS who will be attending. Some of the presentations may be recorded and posted online\, at a later date. Can I bring my child/children?Yes\, but you might prefer not to. Children below secondary school age are not permitted into the lecture room while presentations are being made. A separate room will be available on the day for families\, and the presentations will be relayed to a screen in that room. All children must be cared for by a responsible adult at all times. The excellent Coram’s Fields Children’s play park is just over the road from the venue. Will there be lunch?Yes\, a light lunch will be provided\, and seating will be available. Will I get a chance to speak to other families / people affected by OA/TOF?Yes\, we will have both lunch and refreshment breaks to allow you chance to chat with other attendees. Is there wheelchair access?We are very grateful to Great Ormond Street Hospital for providing our venue for the day. However\, this is an older building and while the venue is accessible to all\, the lecture theatre itself is accessible via stairs only. If you have any disability that may affect your access or participation in the event\, please let us know when ordering your tickets.Is there a cancellation deadline?Yes. If you can no longer attend\, please let us know via info@tofs.org.uk no later than 7 days before the seminar. This is to ensure that we only cater for the correct number of guests. Where is the seminar taking place?UCL Great Ormond Street Institute of Child Health\, WC1N 1EH If you have any further questions\, please contact us. 								\n				\n					\n		\n				\n			\n						\n				\n									\n					\n				\n											\n									\n\n			\n					\n								\n											\n									\n\n			\n					\n								\n											\n									\n\n			\n					\n								\n									\n															\n													\n						\n													\n																\n												\n				\n								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					How to get there				\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Where is the seminar?				\n				\n				\n				\n									The seminar is at the Institute of Child Health (ICH)\, which is a part of University College London – but situated on the GOSH site. The entrance to ICH is at 30 Guilford Street\, just north of Great Ormond Street itself. Postcode is WC1N 1 EH. 								\n				\n					\n		\n				\n			\n						\n				\n																\n															\n															\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									TOFS 2026 Seminar Important Update:We’ve been made aware that there is a part closure on the Piccadilly Line on Saturday. Depending on which direction you’re coming from\, please walk from Holborn Station (we believe the central line is open) or get off the train at Kings Cross/St Pancras and walk from there. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Public transport				\n				\n				\n				\n									The nearest tube station to ICH / GOSH is Russell Square on the Piccadilly Line. The next closest is Holborn\, on the Central and Piccadilly lines. Kings Cross and Euston stations are both only 0.8 miles away. Farringdon station (Elizabeth line and Metropolitan / Circle plus some overground commuter trains from Brighton\, Cambridge\, Huntingdon) is 0.9 miles. 								\n				\n				\n				\n					Travelling by car				\n				\n				\n				\n									Please note\, the venue is within both the London congestion charge zone and the  ULEZ (Ultra Low Emission) zone. There is some on-street metered parking around GOSH\, including in Guilford Street itself.  Much of this becomes free after 13:30 on a Saturday.  Moreover a significant amount of residents-only parking in this area becomes derestricted (i.e. free) on a Saturday afternoon. There are large underground public car parks close to GOSH at: Brunswick square (NCP) – postcode WC1N 1AF; the Imperial Hotel in Russell Square and underneath the Holiday Inn -Bloomsbury\, postcode WC1N 1HT. 								\n				\n					\n		\n				\n			\n						\n				\n					Outer London Tube stations with parking				\n				\n				\n				\n									Several tube stations near the end of the network in the North and West segments of outer London are close to the M25 and to some of the motorways into London. Unfortunately\, most of the stations listed below are within the ULEZ zone but  outside of the London congestion charge zone. Hillingdon (Metropolitan and Piccadilly lines). Has a car park which TfL says has 283 spaces. Postcode is UB10 9NR. This station is next to a junction on the A40 Western Avenue road\, only 5 miles from the M25 /M40 junction. Moreover\, the next station along the line (Ickenham) also has a large car park effectively providing an overflow car park. Stanmore (Jubilee line). Has a car park which TfL says has 450 spaces. Postcode is HA7 4PD. From the A41 Edgware way\, this is a direct drive along London Road. The A41 is accessed directly from M1 junction 4\, which is only 2 miles from the station. This is also close to the main A1 road. Cockfosters (Piccadilly line) Has a car park which TfL says has 232 spaces. Postcode is EN4 0DZ. It is a direct 3 mile drive down the A111 from the Potter’s Bar Junction (24) of the M25. Epping (Central line) Has a car park which Sabaparking says has 532 spaces. This station is outside the London ULEZ near to the junction of the M11 and M25. It is however not so convenient from the viewpoint of motorway junctions. Postcode is CM16 4HW.  Debden (Central line) Has a car park which Sabaparking says has 206 spaces. It is however only half a mile along the A 1168 from M11 junction 5 and also outside London ULEZ. Postcode is IG10 3TG. Upminster (District line) The car park here appears to be run by NCP\, which says there are 342 spaces. Postcode is RM14 2TD. It is only 3 miles from M25 junction 29\, via a route involving the A127 toward London. However it is inside the ULEZ. This might be a good option for those coming from East Anglia. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Nearby places to eat				\n				\n				\n				\n									Brunswick centre (https://maps.app.goo.gl/UwBNKmhUe9ciib1G9)  and opposite Russell Square station have a wide variety of places to eat\, including: Itsu\, Nandos\, LEON\, Pret\, Franco MancaLamb’s conduit street has a number of higher end restaurants.Redemptions roasters (Lamb’s conduit street) are great for coffee.
URL:https://tofs.org.uk/event/rare-disease-day-2025/
LOCATION:Various locations
ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2022/12/rare-disease-day.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20250224
DTEND;VALUE=DATE:20250303
DTSTAMP:20260424T122851
CREATED:20250117T102455Z
LAST-MODIFIED:20250224T093510Z
UID:10000102-1740355200-1740959999@tofs.org.uk
SUMMARY:OA/TOF Awareness Week 2025
DESCRIPTION:TOFS 2026 Seminar Important Update:We’ve been made aware that there is a part closure on the Piccadilly Line on Saturday. Depending on which direction you’re coming from\, please walk from Holborn Station (we believe the central line is open) or get off the train at Kings Cross/St Pancras and walk from there. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									The TOFS seminar is being held at the Institute of Child Health (ICH)\, London on Saturday\, 21st March\, 2026. Why attendJoin us for our in-person OA/TOF Seminar in London to hear from some of the UK’s leading specialists on the work being done to improve the care of today’s OA/TOF children and to address the long-term issues affecting adults born with the condition. This is a great opportunity to meet\, make connections and share experiences with other families and adults born with OA/TOF and associated conditions. Who should attend?This seminar is aimed at adults born with OA/TOF\, parents and carers of children born with OA/TOF and medical professionals. Note: Registration on the day opens at 9.30am with presentations beginning at 10.30am. 								\n				\n				\n				\n									\n					\n						\n						\n							\n									CLICK HERE FOR TICKETS\n					\n					\n				\n								\n				\n					\n		\n				\n			\n						\n				\n									Event co-sponsored by  								\n				\n				\n				\n																														\n				\n				\n				\n																\n															\n															\n				\n				\n				\n									NIHR Great Ormond Street Hospital Biomedical Research Centre 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n				\n				\n					Presentations				\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Eating\, drinking & swallowing difficulties children born with OA/TOF								\n				\n				\n				\n									Presented by Dr Alex Stewart – Speech and Language Therapist (GOSH) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Experience of parents of children born with oesophageal atresia								\n				\n				\n				\n									Presented by Dr Vuokko Wallace – Clinical Psychologist\, University of Bath 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Gastro issues and Eosinophilic Oesophagitis (EoE) in OA/TOF patients								\n				\n				\n				\n									Presented by Dr Osvaldo Borrelli – Head of Clinical Service\, Consultant Paediatric Gastroenterologist (GOSH) and Honorary Senior Lecturer (UCL) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Role of TOF Multi Disciplinary Team (MDT) pathway in improving care in oesophageal atresia								\n				\n				\n				\n									Presented by Ms Dhanya Mullassery – Consultant Neonatal and Paediatric Surgeon (GOSH) and Honorary Senior Lecturer (UCL) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Respiratory updates from the INoEA (International Network of Esophageal Atresia) conference and ERS (European Respiratory Society) congress								\n				\n				\n				\n									Presented by Dr Caroline Love\, Chair of TOFS Medical Liaison & Research Subcommittee and Patient Advisory Committee member of the European Lung Foundation (ELF) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									Click here to see the full schedule 								\n				\n				\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									Any Questions?When is the seminar?The seminar is on March 21st\, 2026. Registration on the day opens at 9.30am with presentations beginning at 10.30am. The seminar will close at 4.30pm. How much are tickets?Tickets are free to TOFS’ Members\, Associates and Health Professionals. If you wish to join TOFS\, please sign up at – tofs.org.uk/join-tofs/ Is this a TOFS party?No\, this is an information seminar. Can I watch the seminar online?This is an in-person event only and will not be live streamed. We encourage members to attend in person to get the full benefits of the event\, listening to the speakers; interacting with the Q&A and discussion sessions; meeting TOFS volunteers and staff and chatting with other members of TOFS who will be attending. Some of the presentations may be recorded and posted online\, at a later date. Can I bring my child/children?Yes\, but you might prefer not to. Children below secondary school age are not permitted into the lecture room while presentations are being made. A separate room will be available on the day for families\, and the presentations will be relayed to a screen in that room. All children must be cared for by a responsible adult at all times. The excellent Coram’s Fields Children’s play park is just over the road from the venue. Will there be lunch?Yes\, a light lunch will be provided\, and seating will be available. Will I get a chance to speak to other families / people affected by OA/TOF?Yes\, we will have both lunch and refreshment breaks to allow you chance to chat with other attendees. Is there wheelchair access?We are very grateful to Great Ormond Street Hospital for providing our venue for the day. However\, this is an older building and while the venue is accessible to all\, the lecture theatre itself is accessible via stairs only. If you have any disability that may affect your access or participation in the event\, please let us know when ordering your tickets.Is there a cancellation deadline?Yes. If you can no longer attend\, please let us know via info@tofs.org.uk no later than 7 days before the seminar. This is to ensure that we only cater for the correct number of guests. Where is the seminar taking place?UCL Great Ormond Street Institute of Child Health\, WC1N 1EH If you have any further questions\, please contact us. 								\n				\n					\n		\n				\n			\n						\n				\n									\n					\n				\n											\n									\n\n			\n					\n								\n											\n									\n\n			\n					\n								\n											\n									\n\n			\n					\n								\n									\n															\n													\n						\n													\n																\n												\n				\n								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					How to get there				\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Where is the seminar?				\n				\n				\n				\n									The seminar is at the Institute of Child Health (ICH)\, which is a part of University College London – but situated on the GOSH site. The entrance to ICH is at 30 Guilford Street\, just north of Great Ormond Street itself. Postcode is WC1N 1 EH. 								\n				\n					\n		\n				\n			\n						\n				\n																\n															\n															\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									TOFS 2026 Seminar Important Update:We’ve been made aware that there is a part closure on the Piccadilly Line on Saturday. Depending on which direction you’re coming from\, please walk from Holborn Station (we believe the central line is open) or get off the train at Kings Cross/St Pancras and walk from there. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Public transport				\n				\n				\n				\n									The nearest tube station to ICH / GOSH is Russell Square on the Piccadilly Line. The next closest is Holborn\, on the Central and Piccadilly lines. Kings Cross and Euston stations are both only 0.8 miles away. Farringdon station (Elizabeth line and Metropolitan / Circle plus some overground commuter trains from Brighton\, Cambridge\, Huntingdon) is 0.9 miles. 								\n				\n				\n				\n					Travelling by car				\n				\n				\n				\n									Please note\, the venue is within both the London congestion charge zone and the  ULEZ (Ultra Low Emission) zone. There is some on-street metered parking around GOSH\, including in Guilford Street itself.  Much of this becomes free after 13:30 on a Saturday.  Moreover a significant amount of residents-only parking in this area becomes derestricted (i.e. free) on a Saturday afternoon. There are large underground public car parks close to GOSH at: Brunswick square (NCP) – postcode WC1N 1AF; the Imperial Hotel in Russell Square and underneath the Holiday Inn -Bloomsbury\, postcode WC1N 1HT. 								\n				\n					\n		\n				\n			\n						\n				\n					Outer London Tube stations with parking				\n				\n				\n				\n									Several tube stations near the end of the network in the North and West segments of outer London are close to the M25 and to some of the motorways into London. Unfortunately\, most of the stations listed below are within the ULEZ zone but  outside of the London congestion charge zone. Hillingdon (Metropolitan and Piccadilly lines). Has a car park which TfL says has 283 spaces. Postcode is UB10 9NR. This station is next to a junction on the A40 Western Avenue road\, only 5 miles from the M25 /M40 junction. Moreover\, the next station along the line (Ickenham) also has a large car park effectively providing an overflow car park. Stanmore (Jubilee line). Has a car park which TfL says has 450 spaces. Postcode is HA7 4PD. From the A41 Edgware way\, this is a direct drive along London Road. The A41 is accessed directly from M1 junction 4\, which is only 2 miles from the station. This is also close to the main A1 road. Cockfosters (Piccadilly line) Has a car park which TfL says has 232 spaces. Postcode is EN4 0DZ. It is a direct 3 mile drive down the A111 from the Potter’s Bar Junction (24) of the M25. Epping (Central line) Has a car park which Sabaparking says has 532 spaces. This station is outside the London ULEZ near to the junction of the M11 and M25. It is however not so convenient from the viewpoint of motorway junctions. Postcode is CM16 4HW.  Debden (Central line) Has a car park which Sabaparking says has 206 spaces. It is however only half a mile along the A 1168 from M11 junction 5 and also outside London ULEZ. Postcode is IG10 3TG. Upminster (District line) The car park here appears to be run by NCP\, which says there are 342 spaces. Postcode is RM14 2TD. It is only 3 miles from M25 junction 29\, via a route involving the A127 toward London. However it is inside the ULEZ. This might be a good option for those coming from East Anglia. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Nearby places to eat				\n				\n				\n				\n									Brunswick centre (https://maps.app.goo.gl/UwBNKmhUe9ciib1G9)  and opposite Russell Square station have a wide variety of places to eat\, including: Itsu\, Nandos\, LEON\, Pret\, Franco MancaLamb’s conduit street has a number of higher end restaurants.Redemptions roasters (Lamb’s conduit street) are great for coffee.
URL:https://tofs.org.uk/event/tofs-awareness-week-2025/
LOCATION:Various locations
ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2025/01/Awareness-Week-2025-get-ready-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20250213T200000
DTEND;TZID=Europe/London:20250213T210000
DTSTAMP:20260424T122851
CREATED:20241218T094525Z
LAST-MODIFIED:20241218T094816Z
UID:10000100-1739476800-1739480400@tofs.org.uk
SUMMARY:Starting Nursery\, Pre-school\, and School - Talk with TLCs
DESCRIPTION:TOFS 2026 Seminar Important Update:We’ve been made aware that there is a part closure on the Piccadilly Line on Saturday. Depending on which direction you’re coming from\, please walk from Holborn Station (we believe the central line is open) or get off the train at Kings Cross/St Pancras and walk from there. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									The TOFS seminar is being held at the Institute of Child Health (ICH)\, London on Saturday\, 21st March\, 2026. Why attendJoin us for our in-person OA/TOF Seminar in London to hear from some of the UK’s leading specialists on the work being done to improve the care of today’s OA/TOF children and to address the long-term issues affecting adults born with the condition. This is a great opportunity to meet\, make connections and share experiences with other families and adults born with OA/TOF and associated conditions. Who should attend?This seminar is aimed at adults born with OA/TOF\, parents and carers of children born with OA/TOF and medical professionals. Note: Registration on the day opens at 9.30am with presentations beginning at 10.30am. 								\n				\n				\n				\n									\n					\n						\n						\n							\n									CLICK HERE FOR TICKETS\n					\n					\n				\n								\n				\n					\n		\n				\n			\n						\n				\n									Event co-sponsored by  								\n				\n				\n				\n																														\n				\n				\n				\n																\n															\n															\n				\n				\n				\n									NIHR Great Ormond Street Hospital Biomedical Research Centre 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n				\n				\n					Presentations				\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Eating\, drinking & swallowing difficulties children born with OA/TOF								\n				\n				\n				\n									Presented by Dr Alex Stewart – Speech and Language Therapist (GOSH) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Experience of parents of children born with oesophageal atresia								\n				\n				\n				\n									Presented by Dr Vuokko Wallace – Clinical Psychologist\, University of Bath 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Gastro issues and Eosinophilic Oesophagitis (EoE) in OA/TOF patients								\n				\n				\n				\n									Presented by Dr Osvaldo Borrelli – Head of Clinical Service\, Consultant Paediatric Gastroenterologist (GOSH) and Honorary Senior Lecturer (UCL) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Role of TOF Multi Disciplinary Team (MDT) pathway in improving care in oesophageal atresia								\n				\n				\n				\n									Presented by Ms Dhanya Mullassery – Consultant Neonatal and Paediatric Surgeon (GOSH) and Honorary Senior Lecturer (UCL) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Respiratory updates from the INoEA (International Network of Esophageal Atresia) conference and ERS (European Respiratory Society) congress								\n				\n				\n				\n									Presented by Dr Caroline Love\, Chair of TOFS Medical Liaison & Research Subcommittee and Patient Advisory Committee member of the European Lung Foundation (ELF) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									Click here to see the full schedule 								\n				\n				\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									Any Questions?When is the seminar?The seminar is on March 21st\, 2026. Registration on the day opens at 9.30am with presentations beginning at 10.30am. The seminar will close at 4.30pm. How much are tickets?Tickets are free to TOFS’ Members\, Associates and Health Professionals. If you wish to join TOFS\, please sign up at – tofs.org.uk/join-tofs/ Is this a TOFS party?No\, this is an information seminar. Can I watch the seminar online?This is an in-person event only and will not be live streamed. We encourage members to attend in person to get the full benefits of the event\, listening to the speakers; interacting with the Q&A and discussion sessions; meeting TOFS volunteers and staff and chatting with other members of TOFS who will be attending. Some of the presentations may be recorded and posted online\, at a later date. Can I bring my child/children?Yes\, but you might prefer not to. Children below secondary school age are not permitted into the lecture room while presentations are being made. A separate room will be available on the day for families\, and the presentations will be relayed to a screen in that room. All children must be cared for by a responsible adult at all times. The excellent Coram’s Fields Children’s play park is just over the road from the venue. Will there be lunch?Yes\, a light lunch will be provided\, and seating will be available. Will I get a chance to speak to other families / people affected by OA/TOF?Yes\, we will have both lunch and refreshment breaks to allow you chance to chat with other attendees. Is there wheelchair access?We are very grateful to Great Ormond Street Hospital for providing our venue for the day. However\, this is an older building and while the venue is accessible to all\, the lecture theatre itself is accessible via stairs only. If you have any disability that may affect your access or participation in the event\, please let us know when ordering your tickets.Is there a cancellation deadline?Yes. If you can no longer attend\, please let us know via info@tofs.org.uk no later than 7 days before the seminar. This is to ensure that we only cater for the correct number of guests. Where is the seminar taking place?UCL Great Ormond Street Institute of Child Health\, WC1N 1EH If you have any further questions\, please contact us. 								\n				\n					\n		\n				\n			\n						\n				\n									\n					\n				\n											\n									\n\n			\n					\n								\n											\n									\n\n			\n					\n								\n											\n									\n\n			\n					\n								\n									\n															\n													\n						\n													\n																\n												\n				\n								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					How to get there				\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Where is the seminar?				\n				\n				\n				\n									The seminar is at the Institute of Child Health (ICH)\, which is a part of University College London – but situated on the GOSH site. The entrance to ICH is at 30 Guilford Street\, just north of Great Ormond Street itself. Postcode is WC1N 1 EH. 								\n				\n					\n		\n				\n			\n						\n				\n																\n															\n															\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									TOFS 2026 Seminar Important Update:We’ve been made aware that there is a part closure on the Piccadilly Line on Saturday. Depending on which direction you’re coming from\, please walk from Holborn Station (we believe the central line is open) or get off the train at Kings Cross/St Pancras and walk from there. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Public transport				\n				\n				\n				\n									The nearest tube station to ICH / GOSH is Russell Square on the Piccadilly Line. The next closest is Holborn\, on the Central and Piccadilly lines. Kings Cross and Euston stations are both only 0.8 miles away. Farringdon station (Elizabeth line and Metropolitan / Circle plus some overground commuter trains from Brighton\, Cambridge\, Huntingdon) is 0.9 miles. 								\n				\n				\n				\n					Travelling by car				\n				\n				\n				\n									Please note\, the venue is within both the London congestion charge zone and the  ULEZ (Ultra Low Emission) zone. There is some on-street metered parking around GOSH\, including in Guilford Street itself.  Much of this becomes free after 13:30 on a Saturday.  Moreover a significant amount of residents-only parking in this area becomes derestricted (i.e. free) on a Saturday afternoon. There are large underground public car parks close to GOSH at: Brunswick square (NCP) – postcode WC1N 1AF; the Imperial Hotel in Russell Square and underneath the Holiday Inn -Bloomsbury\, postcode WC1N 1HT. 								\n				\n					\n		\n				\n			\n						\n				\n					Outer London Tube stations with parking				\n				\n				\n				\n									Several tube stations near the end of the network in the North and West segments of outer London are close to the M25 and to some of the motorways into London. Unfortunately\, most of the stations listed below are within the ULEZ zone but  outside of the London congestion charge zone. Hillingdon (Metropolitan and Piccadilly lines). Has a car park which TfL says has 283 spaces. Postcode is UB10 9NR. This station is next to a junction on the A40 Western Avenue road\, only 5 miles from the M25 /M40 junction. Moreover\, the next station along the line (Ickenham) also has a large car park effectively providing an overflow car park. Stanmore (Jubilee line). Has a car park which TfL says has 450 spaces. Postcode is HA7 4PD. From the A41 Edgware way\, this is a direct drive along London Road. The A41 is accessed directly from M1 junction 4\, which is only 2 miles from the station. This is also close to the main A1 road. Cockfosters (Piccadilly line) Has a car park which TfL says has 232 spaces. Postcode is EN4 0DZ. It is a direct 3 mile drive down the A111 from the Potter’s Bar Junction (24) of the M25. Epping (Central line) Has a car park which Sabaparking says has 532 spaces. This station is outside the London ULEZ near to the junction of the M11 and M25. It is however not so convenient from the viewpoint of motorway junctions. Postcode is CM16 4HW.  Debden (Central line) Has a car park which Sabaparking says has 206 spaces. It is however only half a mile along the A 1168 from M11 junction 5 and also outside London ULEZ. Postcode is IG10 3TG. Upminster (District line) The car park here appears to be run by NCP\, which says there are 342 spaces. Postcode is RM14 2TD. It is only 3 miles from M25 junction 29\, via a route involving the A127 toward London. However it is inside the ULEZ. This might be a good option for those coming from East Anglia. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Nearby places to eat				\n				\n				\n				\n									Brunswick centre (https://maps.app.goo.gl/UwBNKmhUe9ciib1G9)  and opposite Russell Square station have a wide variety of places to eat\, including: Itsu\, Nandos\, LEON\, Pret\, Franco MancaLamb’s conduit street has a number of higher end restaurants.Redemptions roasters (Lamb’s conduit street) are great for coffee.
URL:https://tofs.org.uk/event/starting-nursery-pre-school-and-school-talk-with-tlcs-2/
LOCATION:Online
CATEGORIES:Parents & Carers
ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2024/12/Feb25-School-Talk-with-TLCs.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20250206T200000
DTEND;TZID=Europe/London:20250206T210000
DTSTAMP:20260424T122851
CREATED:20241216T113119Z
LAST-MODIFIED:20250115T105344Z
UID:10000097-1738872000-1738875600@tofs.org.uk
SUMMARY:Virtual meet-up for adults born with OA/TOF
DESCRIPTION:TOFS 2026 Seminar Important Update:We’ve been made aware that there is a part closure on the Piccadilly Line on Saturday. Depending on which direction you’re coming from\, please walk from Holborn Station (we believe the central line is open) or get off the train at Kings Cross/St Pancras and walk from there. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									The TOFS seminar is being held at the Institute of Child Health (ICH)\, London on Saturday\, 21st March\, 2026. Why attendJoin us for our in-person OA/TOF Seminar in London to hear from some of the UK’s leading specialists on the work being done to improve the care of today’s OA/TOF children and to address the long-term issues affecting adults born with the condition. This is a great opportunity to meet\, make connections and share experiences with other families and adults born with OA/TOF and associated conditions. Who should attend?This seminar is aimed at adults born with OA/TOF\, parents and carers of children born with OA/TOF and medical professionals. Note: Registration on the day opens at 9.30am with presentations beginning at 10.30am. 								\n				\n				\n				\n									\n					\n						\n						\n							\n									CLICK HERE FOR TICKETS\n					\n					\n				\n								\n				\n					\n		\n				\n			\n						\n				\n									Event co-sponsored by  								\n				\n				\n				\n																														\n				\n				\n				\n																\n															\n															\n				\n				\n				\n									NIHR Great Ormond Street Hospital Biomedical Research Centre 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n				\n				\n					Presentations				\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Eating\, drinking & swallowing difficulties children born with OA/TOF								\n				\n				\n				\n									Presented by Dr Alex Stewart – Speech and Language Therapist (GOSH) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Experience of parents of children born with oesophageal atresia								\n				\n				\n				\n									Presented by Dr Vuokko Wallace – Clinical Psychologist\, University of Bath 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Gastro issues and Eosinophilic Oesophagitis (EoE) in OA/TOF patients								\n				\n				\n				\n									Presented by Dr Osvaldo Borrelli – Head of Clinical Service\, Consultant Paediatric Gastroenterologist (GOSH) and Honorary Senior Lecturer (UCL) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Role of TOF Multi Disciplinary Team (MDT) pathway in improving care in oesophageal atresia								\n				\n				\n				\n									Presented by Ms Dhanya Mullassery – Consultant Neonatal and Paediatric Surgeon (GOSH) and Honorary Senior Lecturer (UCL) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Respiratory updates from the INoEA (International Network of Esophageal Atresia) conference and ERS (European Respiratory Society) congress								\n				\n				\n				\n									Presented by Dr Caroline Love\, Chair of TOFS Medical Liaison & Research Subcommittee and Patient Advisory Committee member of the European Lung Foundation (ELF) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									Click here to see the full schedule 								\n				\n				\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									Any Questions?When is the seminar?The seminar is on March 21st\, 2026. Registration on the day opens at 9.30am with presentations beginning at 10.30am. The seminar will close at 4.30pm. How much are tickets?Tickets are free to TOFS’ Members\, Associates and Health Professionals. If you wish to join TOFS\, please sign up at – tofs.org.uk/join-tofs/ Is this a TOFS party?No\, this is an information seminar. Can I watch the seminar online?This is an in-person event only and will not be live streamed. We encourage members to attend in person to get the full benefits of the event\, listening to the speakers; interacting with the Q&A and discussion sessions; meeting TOFS volunteers and staff and chatting with other members of TOFS who will be attending. Some of the presentations may be recorded and posted online\, at a later date. Can I bring my child/children?Yes\, but you might prefer not to. Children below secondary school age are not permitted into the lecture room while presentations are being made. A separate room will be available on the day for families\, and the presentations will be relayed to a screen in that room. All children must be cared for by a responsible adult at all times. The excellent Coram’s Fields Children’s play park is just over the road from the venue. Will there be lunch?Yes\, a light lunch will be provided\, and seating will be available. Will I get a chance to speak to other families / people affected by OA/TOF?Yes\, we will have both lunch and refreshment breaks to allow you chance to chat with other attendees. Is there wheelchair access?We are very grateful to Great Ormond Street Hospital for providing our venue for the day. However\, this is an older building and while the venue is accessible to all\, the lecture theatre itself is accessible via stairs only. If you have any disability that may affect your access or participation in the event\, please let us know when ordering your tickets.Is there a cancellation deadline?Yes. If you can no longer attend\, please let us know via info@tofs.org.uk no later than 7 days before the seminar. This is to ensure that we only cater for the correct number of guests. Where is the seminar taking place?UCL Great Ormond Street Institute of Child Health\, WC1N 1EH If you have any further questions\, please contact us. 								\n				\n					\n		\n				\n			\n						\n				\n									\n					\n				\n											\n									\n\n			\n					\n								\n											\n									\n\n			\n					\n								\n											\n									\n\n			\n					\n								\n									\n															\n													\n						\n													\n																\n												\n				\n								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					How to get there				\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Where is the seminar?				\n				\n				\n				\n									The seminar is at the Institute of Child Health (ICH)\, which is a part of University College London – but situated on the GOSH site. The entrance to ICH is at 30 Guilford Street\, just north of Great Ormond Street itself. Postcode is WC1N 1 EH. 								\n				\n					\n		\n				\n			\n						\n				\n																\n															\n															\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									TOFS 2026 Seminar Important Update:We’ve been made aware that there is a part closure on the Piccadilly Line on Saturday. Depending on which direction you’re coming from\, please walk from Holborn Station (we believe the central line is open) or get off the train at Kings Cross/St Pancras and walk from there. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Public transport				\n				\n				\n				\n									The nearest tube station to ICH / GOSH is Russell Square on the Piccadilly Line. The next closest is Holborn\, on the Central and Piccadilly lines. Kings Cross and Euston stations are both only 0.8 miles away. Farringdon station (Elizabeth line and Metropolitan / Circle plus some overground commuter trains from Brighton\, Cambridge\, Huntingdon) is 0.9 miles. 								\n				\n				\n				\n					Travelling by car				\n				\n				\n				\n									Please note\, the venue is within both the London congestion charge zone and the  ULEZ (Ultra Low Emission) zone. There is some on-street metered parking around GOSH\, including in Guilford Street itself.  Much of this becomes free after 13:30 on a Saturday.  Moreover a significant amount of residents-only parking in this area becomes derestricted (i.e. free) on a Saturday afternoon. There are large underground public car parks close to GOSH at: Brunswick square (NCP) – postcode WC1N 1AF; the Imperial Hotel in Russell Square and underneath the Holiday Inn -Bloomsbury\, postcode WC1N 1HT. 								\n				\n					\n		\n				\n			\n						\n				\n					Outer London Tube stations with parking				\n				\n				\n				\n									Several tube stations near the end of the network in the North and West segments of outer London are close to the M25 and to some of the motorways into London. Unfortunately\, most of the stations listed below are within the ULEZ zone but  outside of the London congestion charge zone. Hillingdon (Metropolitan and Piccadilly lines). Has a car park which TfL says has 283 spaces. Postcode is UB10 9NR. This station is next to a junction on the A40 Western Avenue road\, only 5 miles from the M25 /M40 junction. Moreover\, the next station along the line (Ickenham) also has a large car park effectively providing an overflow car park. Stanmore (Jubilee line). Has a car park which TfL says has 450 spaces. Postcode is HA7 4PD. From the A41 Edgware way\, this is a direct drive along London Road. The A41 is accessed directly from M1 junction 4\, which is only 2 miles from the station. This is also close to the main A1 road. Cockfosters (Piccadilly line) Has a car park which TfL says has 232 spaces. Postcode is EN4 0DZ. It is a direct 3 mile drive down the A111 from the Potter’s Bar Junction (24) of the M25. Epping (Central line) Has a car park which Sabaparking says has 532 spaces. This station is outside the London ULEZ near to the junction of the M11 and M25. It is however not so convenient from the viewpoint of motorway junctions. Postcode is CM16 4HW.  Debden (Central line) Has a car park which Sabaparking says has 206 spaces. It is however only half a mile along the A 1168 from M11 junction 5 and also outside London ULEZ. Postcode is IG10 3TG. Upminster (District line) The car park here appears to be run by NCP\, which says there are 342 spaces. Postcode is RM14 2TD. It is only 3 miles from M25 junction 29\, via a route involving the A127 toward London. However it is inside the ULEZ. This might be a good option for those coming from East Anglia. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Nearby places to eat				\n				\n				\n				\n									Brunswick centre (https://maps.app.goo.gl/UwBNKmhUe9ciib1G9)  and opposite Russell Square station have a wide variety of places to eat\, including: Itsu\, Nandos\, LEON\, Pret\, Franco MancaLamb’s conduit street has a number of higher end restaurants.Redemptions roasters (Lamb’s conduit street) are great for coffee.
URL:https://tofs.org.uk/event/virtual-meet-up-for-adults-born-with-oa-tof-13/
LOCATION:Online
CATEGORIES:Adult TOF
ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2024/12/cuppa-and-chat-Feb.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20250129T190000
DTEND;TZID=Europe/London:20250129T200000
DTSTAMP:20260424T122851
CREATED:20241211T143050Z
LAST-MODIFIED:20241212T172302Z
UID:10000094-1738177200-1738180800@tofs.org.uk
SUMMARY:Live Q&A: Long term OA/TOF related gastro issues
DESCRIPTION:TOFS 2026 Seminar Important Update:We’ve been made aware that there is a part closure on the Piccadilly Line on Saturday. Depending on which direction you’re coming from\, please walk from Holborn Station (we believe the central line is open) or get off the train at Kings Cross/St Pancras and walk from there. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									The TOFS seminar is being held at the Institute of Child Health (ICH)\, London on Saturday\, 21st March\, 2026. Why attendJoin us for our in-person OA/TOF Seminar in London to hear from some of the UK’s leading specialists on the work being done to improve the care of today’s OA/TOF children and to address the long-term issues affecting adults born with the condition. This is a great opportunity to meet\, make connections and share experiences with other families and adults born with OA/TOF and associated conditions. Who should attend?This seminar is aimed at adults born with OA/TOF\, parents and carers of children born with OA/TOF and medical professionals. Note: Registration on the day opens at 9.30am with presentations beginning at 10.30am. 								\n				\n				\n				\n									\n					\n						\n						\n							\n									CLICK HERE FOR TICKETS\n					\n					\n				\n								\n				\n					\n		\n				\n			\n						\n				\n									Event co-sponsored by  								\n				\n				\n				\n																														\n				\n				\n				\n																\n															\n															\n				\n				\n				\n									NIHR Great Ormond Street Hospital Biomedical Research Centre 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n				\n				\n					Presentations				\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Eating\, drinking & swallowing difficulties children born with OA/TOF								\n				\n				\n				\n									Presented by Dr Alex Stewart – Speech and Language Therapist (GOSH) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Experience of parents of children born with oesophageal atresia								\n				\n				\n				\n									Presented by Dr Vuokko Wallace – Clinical Psychologist\, University of Bath 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Gastro issues and Eosinophilic Oesophagitis (EoE) in OA/TOF patients								\n				\n				\n				\n									Presented by Dr Osvaldo Borrelli – Head of Clinical Service\, Consultant Paediatric Gastroenterologist (GOSH) and Honorary Senior Lecturer (UCL) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Role of TOF Multi Disciplinary Team (MDT) pathway in improving care in oesophageal atresia								\n				\n				\n				\n									Presented by Ms Dhanya Mullassery – Consultant Neonatal and Paediatric Surgeon (GOSH) and Honorary Senior Lecturer (UCL) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Respiratory updates from the INoEA (International Network of Esophageal Atresia) conference and ERS (European Respiratory Society) congress								\n				\n				\n				\n									Presented by Dr Caroline Love\, Chair of TOFS Medical Liaison & Research Subcommittee and Patient Advisory Committee member of the European Lung Foundation (ELF) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									Click here to see the full schedule 								\n				\n				\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									Any Questions?When is the seminar?The seminar is on March 21st\, 2026. Registration on the day opens at 9.30am with presentations beginning at 10.30am. The seminar will close at 4.30pm. How much are tickets?Tickets are free to TOFS’ Members\, Associates and Health Professionals. If you wish to join TOFS\, please sign up at – tofs.org.uk/join-tofs/ Is this a TOFS party?No\, this is an information seminar. Can I watch the seminar online?This is an in-person event only and will not be live streamed. We encourage members to attend in person to get the full benefits of the event\, listening to the speakers; interacting with the Q&A and discussion sessions; meeting TOFS volunteers and staff and chatting with other members of TOFS who will be attending. Some of the presentations may be recorded and posted online\, at a later date. Can I bring my child/children?Yes\, but you might prefer not to. Children below secondary school age are not permitted into the lecture room while presentations are being made. A separate room will be available on the day for families\, and the presentations will be relayed to a screen in that room. All children must be cared for by a responsible adult at all times. The excellent Coram’s Fields Children’s play park is just over the road from the venue. Will there be lunch?Yes\, a light lunch will be provided\, and seating will be available. Will I get a chance to speak to other families / people affected by OA/TOF?Yes\, we will have both lunch and refreshment breaks to allow you chance to chat with other attendees. Is there wheelchair access?We are very grateful to Great Ormond Street Hospital for providing our venue for the day. However\, this is an older building and while the venue is accessible to all\, the lecture theatre itself is accessible via stairs only. If you have any disability that may affect your access or participation in the event\, please let us know when ordering your tickets.Is there a cancellation deadline?Yes. If you can no longer attend\, please let us know via info@tofs.org.uk no later than 7 days before the seminar. This is to ensure that we only cater for the correct number of guests. Where is the seminar taking place?UCL Great Ormond Street Institute of Child Health\, WC1N 1EH If you have any further questions\, please contact us. 								\n				\n					\n		\n				\n			\n						\n				\n									\n					\n				\n											\n									\n\n			\n					\n								\n											\n									\n\n			\n					\n								\n											\n									\n\n			\n					\n								\n									\n															\n													\n						\n													\n																\n												\n				\n								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					How to get there				\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Where is the seminar?				\n				\n				\n				\n									The seminar is at the Institute of Child Health (ICH)\, which is a part of University College London – but situated on the GOSH site. The entrance to ICH is at 30 Guilford Street\, just north of Great Ormond Street itself. Postcode is WC1N 1 EH. 								\n				\n					\n		\n				\n			\n						\n				\n																\n															\n															\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									TOFS 2026 Seminar Important Update:We’ve been made aware that there is a part closure on the Piccadilly Line on Saturday. Depending on which direction you’re coming from\, please walk from Holborn Station (we believe the central line is open) or get off the train at Kings Cross/St Pancras and walk from there. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Public transport				\n				\n				\n				\n									The nearest tube station to ICH / GOSH is Russell Square on the Piccadilly Line. The next closest is Holborn\, on the Central and Piccadilly lines. Kings Cross and Euston stations are both only 0.8 miles away. Farringdon station (Elizabeth line and Metropolitan / Circle plus some overground commuter trains from Brighton\, Cambridge\, Huntingdon) is 0.9 miles. 								\n				\n				\n				\n					Travelling by car				\n				\n				\n				\n									Please note\, the venue is within both the London congestion charge zone and the  ULEZ (Ultra Low Emission) zone. There is some on-street metered parking around GOSH\, including in Guilford Street itself.  Much of this becomes free after 13:30 on a Saturday.  Moreover a significant amount of residents-only parking in this area becomes derestricted (i.e. free) on a Saturday afternoon. There are large underground public car parks close to GOSH at: Brunswick square (NCP) – postcode WC1N 1AF; the Imperial Hotel in Russell Square and underneath the Holiday Inn -Bloomsbury\, postcode WC1N 1HT. 								\n				\n					\n		\n				\n			\n						\n				\n					Outer London Tube stations with parking				\n				\n				\n				\n									Several tube stations near the end of the network in the North and West segments of outer London are close to the M25 and to some of the motorways into London. Unfortunately\, most of the stations listed below are within the ULEZ zone but  outside of the London congestion charge zone. Hillingdon (Metropolitan and Piccadilly lines). Has a car park which TfL says has 283 spaces. Postcode is UB10 9NR. This station is next to a junction on the A40 Western Avenue road\, only 5 miles from the M25 /M40 junction. Moreover\, the next station along the line (Ickenham) also has a large car park effectively providing an overflow car park. Stanmore (Jubilee line). Has a car park which TfL says has 450 spaces. Postcode is HA7 4PD. From the A41 Edgware way\, this is a direct drive along London Road. The A41 is accessed directly from M1 junction 4\, which is only 2 miles from the station. This is also close to the main A1 road. Cockfosters (Piccadilly line) Has a car park which TfL says has 232 spaces. Postcode is EN4 0DZ. It is a direct 3 mile drive down the A111 from the Potter’s Bar Junction (24) of the M25. Epping (Central line) Has a car park which Sabaparking says has 532 spaces. This station is outside the London ULEZ near to the junction of the M11 and M25. It is however not so convenient from the viewpoint of motorway junctions. Postcode is CM16 4HW.  Debden (Central line) Has a car park which Sabaparking says has 206 spaces. It is however only half a mile along the A 1168 from M11 junction 5 and also outside London ULEZ. Postcode is IG10 3TG. Upminster (District line) The car park here appears to be run by NCP\, which says there are 342 spaces. Postcode is RM14 2TD. It is only 3 miles from M25 junction 29\, via a route involving the A127 toward London. However it is inside the ULEZ. This might be a good option for those coming from East Anglia. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Nearby places to eat				\n				\n				\n				\n									Brunswick centre (https://maps.app.goo.gl/UwBNKmhUe9ciib1G9)  and opposite Russell Square station have a wide variety of places to eat\, including: Itsu\, Nandos\, LEON\, Pret\, Franco MancaLamb’s conduit street has a number of higher end restaurants.Redemptions roasters (Lamb’s conduit street) are great for coffee.
URL:https://tofs.org.uk/event/live-qa-long-term-oa-tof-related-gastro-issues/
LOCATION:Online
CATEGORIES:Adult TOF
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