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X-ORIGINAL-URL:https://tofs.org.uk
X-WR-CALDESC:Events for TOFS | OA/TOF Support
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BEGIN:VEVENT
DTSTART;TZID=Europe/London:20251029T160000
DTEND;TZID=Europe/London:20251029T170000
DTSTAMP:20260420T232720
CREATED:20251001T150809Z
LAST-MODIFIED:20251023T140247Z
UID:10000131-1761753600-1761757200@tofs.org.uk
SUMMARY:ERS: Panel discussion on lifelong respiratory care in OA/TOF & CDH
DESCRIPTION:Members and Associates are invited to join us for the Annual General Meeting of T.O.F.S. The T.O.F.S. Annual General Meeting will take place on the 7th May\, 2026 by Zoom at 7:00 pm. Invited to attend: Council of Management\, TOFS office staff\, all Members and Associates. 								\n				\n				\n				\n									\n					\n						\n						\n							\n									CLICK HERE TO REGISTER\n					\n					\n				\n								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									AGENDA1. Welcome and confirmation of quorum 2. Introduction 3. Apologies for absence 4. Approval of the minutes of the 2025 AGM held 24th of April 2025 5. Annual Directors’ Report  6. Presentation of Accounts and Treasurer’s Report (Y/E Dec 31st\, 2025)  7. Re-appointment of accountants 8. Election of Trustees retiring by rotation and offering themselves for re-election a. Clare Johnsb. Darrell Hill 9. Election of Trustee a. Kate Tyler 10. Any other business 11. Close of Meeting  To’neill BalaTrustee & Hon. Secretary   								\n				\n					\n		\n				\n			\n						\n				\n									Who can attend?Please note\, all Members and Associates are welcome\, although only those with a membership status of “Member” can vote. To check or amend your status\, please login to the “Update My Details” page in the Members’ Area of the TOFS website. Please also note that\, per the Companies Act 2016\, those with a membership status of Member are entitled to appoint a proxy to attend and vote on their behalf at this meeting\, (Please contact the TOFS office for further details should you intend to do this). If you have any questions about the AGM\, please contact us. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n				\n				\n					Using Zoom				\n				\n				\n				\n									In order to join this meeting\, you will need to pre-register and follow the unique link you will receive in your email. Please don’t share the link with another user as this could block access for you. Instead\, ask them to register for their own link. \nFor the best experience\, we recommend downloading Zoom to your computer or mobile device before joining the meeting [click for more info]. \nIt is also possible to access the meeting using your web browser (e.g. Chrome\, Safari\, Edge) without downloading any plugins or software [click for info].
URL:https://tofs.org.uk/event/ers-panel-discussion-on-lifelong-respiratory-care-in-oa-tof-cdh/
LOCATION:Online
CATEGORIES:Professional
ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2025/10/ERS-European-Respiratory-Society-logo.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20251025
DTEND;VALUE=DATE:20251103
DTSTAMP:20260420T232720
CREATED:20250411T145009Z
LAST-MODIFIED:20251031T104618Z
UID:10000112-1761350400-1762127999@tofs.org.uk
SUMMARY:Big Splash Swimathon 2025
DESCRIPTION:Members and Associates are invited to join us for the Annual General Meeting of T.O.F.S. The T.O.F.S. Annual General Meeting will take place on the 7th May\, 2026 by Zoom at 7:00 pm. Invited to attend: Council of Management\, TOFS office staff\, all Members and Associates. 								\n				\n				\n				\n									\n					\n						\n						\n							\n									CLICK HERE TO REGISTER\n					\n					\n				\n								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									AGENDA1. Welcome and confirmation of quorum 2. Introduction 3. Apologies for absence 4. Approval of the minutes of the 2025 AGM held 24th of April 2025 5. Annual Directors’ Report  6. Presentation of Accounts and Treasurer’s Report (Y/E Dec 31st\, 2025)  7. Re-appointment of accountants 8. Election of Trustees retiring by rotation and offering themselves for re-election a. Clare Johnsb. Darrell Hill 9. Election of Trustee a. Kate Tyler 10. Any other business 11. Close of Meeting  To’neill BalaTrustee & Hon. Secretary   								\n				\n					\n		\n				\n			\n						\n				\n									Who can attend?Please note\, all Members and Associates are welcome\, although only those with a membership status of “Member” can vote. To check or amend your status\, please login to the “Update My Details” page in the Members’ Area of the TOFS website. Please also note that\, per the Companies Act 2016\, those with a membership status of Member are entitled to appoint a proxy to attend and vote on their behalf at this meeting\, (Please contact the TOFS office for further details should you intend to do this). If you have any questions about the AGM\, please contact us. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n				\n				\n					Using Zoom				\n				\n				\n				\n									In order to join this meeting\, you will need to pre-register and follow the unique link you will receive in your email. Please don’t share the link with another user as this could block access for you. Instead\, ask them to register for their own link. \nFor the best experience\, we recommend downloading Zoom to your computer or mobile device before joining the meeting [click for more info]. \nIt is also possible to access the meeting using your web browser (e.g. Chrome\, Safari\, Edge) without downloading any plugins or software [click for info].
URL:https://tofs.org.uk/event/big-splash-swimathon-2025/
LOCATION:Various locations
CATEGORIES:Fundraising
ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2025/04/big-splash-icon.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20251014T200000
DTEND;TZID=Europe/London:20251014T210000
DTSTAMP:20260420T232720
CREATED:20250926T131855Z
LAST-MODIFIED:20251001T112157Z
UID:10000130-1760472000-1760475600@tofs.org.uk
SUMMARY:Parent & Carer virtual meet-up
DESCRIPTION:Members and Associates are invited to join us for the Annual General Meeting of T.O.F.S. The T.O.F.S. Annual General Meeting will take place on the 7th May\, 2026 by Zoom at 7:00 pm. Invited to attend: Council of Management\, TOFS office staff\, all Members and Associates. 								\n				\n				\n				\n									\n					\n						\n						\n							\n									CLICK HERE TO REGISTER\n					\n					\n				\n								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									AGENDA1. Welcome and confirmation of quorum 2. Introduction 3. Apologies for absence 4. Approval of the minutes of the 2025 AGM held 24th of April 2025 5. Annual Directors’ Report  6. Presentation of Accounts and Treasurer’s Report (Y/E Dec 31st\, 2025)  7. Re-appointment of accountants 8. Election of Trustees retiring by rotation and offering themselves for re-election a. Clare Johnsb. Darrell Hill 9. Election of Trustee a. Kate Tyler 10. Any other business 11. Close of Meeting  To’neill BalaTrustee & Hon. Secretary   								\n				\n					\n		\n				\n			\n						\n				\n									Who can attend?Please note\, all Members and Associates are welcome\, although only those with a membership status of “Member” can vote. To check or amend your status\, please login to the “Update My Details” page in the Members’ Area of the TOFS website. Please also note that\, per the Companies Act 2016\, those with a membership status of Member are entitled to appoint a proxy to attend and vote on their behalf at this meeting\, (Please contact the TOFS office for further details should you intend to do this). If you have any questions about the AGM\, please contact us. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n				\n				\n					Using Zoom				\n				\n				\n				\n									In order to join this meeting\, you will need to pre-register and follow the unique link you will receive in your email. Please don’t share the link with another user as this could block access for you. Instead\, ask them to register for their own link. \nFor the best experience\, we recommend downloading Zoom to your computer or mobile device before joining the meeting [click for more info]. \nIt is also possible to access the meeting using your web browser (e.g. Chrome\, Safari\, Edge) without downloading any plugins or software [click for info].
URL:https://tofs.org.uk/event/parent-carer-virtual-meet-up/
LOCATION:Online
CATEGORIES:Parents & Carers
ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2025/09/Parent-Cuppa-and-chat-14OCT25.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20251012
DTEND;VALUE=DATE:20251013
DTSTAMP:20260420T232720
CREATED:20250918T113605Z
LAST-MODIFIED:20250918T115239Z
UID:10000129-1760227200-1760313599@tofs.org.uk
SUMMARY:Myles Clabby Memorial Cup
DESCRIPTION:Members and Associates are invited to join us for the Annual General Meeting of T.O.F.S. The T.O.F.S. Annual General Meeting will take place on the 7th May\, 2026 by Zoom at 7:00 pm. Invited to attend: Council of Management\, TOFS office staff\, all Members and Associates. 								\n				\n				\n				\n									\n					\n						\n						\n							\n									CLICK HERE TO REGISTER\n					\n					\n				\n								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									AGENDA1. Welcome and confirmation of quorum 2. Introduction 3. Apologies for absence 4. Approval of the minutes of the 2025 AGM held 24th of April 2025 5. Annual Directors’ Report  6. Presentation of Accounts and Treasurer’s Report (Y/E Dec 31st\, 2025)  7. Re-appointment of accountants 8. Election of Trustees retiring by rotation and offering themselves for re-election a. Clare Johnsb. Darrell Hill 9. Election of Trustee a. Kate Tyler 10. Any other business 11. Close of Meeting  To’neill BalaTrustee & Hon. Secretary   								\n				\n					\n		\n				\n			\n						\n				\n									Who can attend?Please note\, all Members and Associates are welcome\, although only those with a membership status of “Member” can vote. To check or amend your status\, please login to the “Update My Details” page in the Members’ Area of the TOFS website. Please also note that\, per the Companies Act 2016\, those with a membership status of Member are entitled to appoint a proxy to attend and vote on their behalf at this meeting\, (Please contact the TOFS office for further details should you intend to do this). If you have any questions about the AGM\, please contact us. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n				\n				\n					Using Zoom				\n				\n				\n				\n									In order to join this meeting\, you will need to pre-register and follow the unique link you will receive in your email. Please don’t share the link with another user as this could block access for you. Instead\, ask them to register for their own link. \nFor the best experience\, we recommend downloading Zoom to your computer or mobile device before joining the meeting [click for more info]. \nIt is also possible to access the meeting using your web browser (e.g. Chrome\, Safari\, Edge) without downloading any plugins or software [click for info].
URL:https://tofs.org.uk/event/myles-clabby-memorial-cup/
LOCATION:St. Roch’s F.C\, 713 Royston Rd\, Glasgow\, G21 2DT\, United Kingdom
CATEGORIES:Fundraising
ATTACH;FMTTYPE=image/jpeg:https://tofs.org.uk/wp-content/uploads/2025/09/myles-clabby-memorial-cup-2025.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20251012
DTEND;VALUE=DATE:20251013
DTSTAMP:20260420T232720
CREATED:20241220T102338Z
LAST-MODIFIED:20250820T111602Z
UID:10000101-1760227200-1760313599@tofs.org.uk
SUMMARY:Royal Parks Half Marathon
DESCRIPTION:Members and Associates are invited to join us for the Annual General Meeting of T.O.F.S. The T.O.F.S. Annual General Meeting will take place on the 7th May\, 2026 by Zoom at 7:00 pm. Invited to attend: Council of Management\, TOFS office staff\, all Members and Associates. 								\n				\n				\n				\n									\n					\n						\n						\n							\n									CLICK HERE TO REGISTER\n					\n					\n				\n								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									AGENDA1. Welcome and confirmation of quorum 2. Introduction 3. Apologies for absence 4. Approval of the minutes of the 2025 AGM held 24th of April 2025 5. Annual Directors’ Report  6. Presentation of Accounts and Treasurer’s Report (Y/E Dec 31st\, 2025)  7. Re-appointment of accountants 8. Election of Trustees retiring by rotation and offering themselves for re-election a. Clare Johnsb. Darrell Hill 9. Election of Trustee a. Kate Tyler 10. Any other business 11. Close of Meeting  To’neill BalaTrustee & Hon. Secretary   								\n				\n					\n		\n				\n			\n						\n				\n									Who can attend?Please note\, all Members and Associates are welcome\, although only those with a membership status of “Member” can vote. To check or amend your status\, please login to the “Update My Details” page in the Members’ Area of the TOFS website. Please also note that\, per the Companies Act 2016\, those with a membership status of Member are entitled to appoint a proxy to attend and vote on their behalf at this meeting\, (Please contact the TOFS office for further details should you intend to do this). If you have any questions about the AGM\, please contact us. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n				\n				\n					Using Zoom				\n				\n				\n				\n									In order to join this meeting\, you will need to pre-register and follow the unique link you will receive in your email. Please don’t share the link with another user as this could block access for you. Instead\, ask them to register for their own link. \nFor the best experience\, we recommend downloading Zoom to your computer or mobile device before joining the meeting [click for more info]. \nIt is also possible to access the meeting using your web browser (e.g. Chrome\, Safari\, Edge) without downloading any plugins or software [click for info].
URL:https://tofs.org.uk/event/royal-parks-half-marathon/
LOCATION:Hyde Park\, London\, W2 5DS\, United Kingdom
CATEGORIES:Fundraising
ATTACH;FMTTYPE=image/jpeg:https://tofs.org.uk/wp-content/uploads/2024/04/royal-parks-half.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20251008T190000
DTEND;TZID=Europe/London:20251008T200000
DTSTAMP:20260420T232720
CREATED:20250514T143508Z
LAST-MODIFIED:20250926T131336Z
UID:10000117-1759950000-1759953600@tofs.org.uk
SUMMARY:Live Q&A: OA/TOF related respiratory issues for adults
DESCRIPTION:Members and Associates are invited to join us for the Annual General Meeting of T.O.F.S. The T.O.F.S. Annual General Meeting will take place on the 7th May\, 2026 by Zoom at 7:00 pm. Invited to attend: Council of Management\, TOFS office staff\, all Members and Associates. 								\n				\n				\n				\n									\n					\n						\n						\n							\n									CLICK HERE TO REGISTER\n					\n					\n				\n								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									AGENDA1. Welcome and confirmation of quorum 2. Introduction 3. Apologies for absence 4. Approval of the minutes of the 2025 AGM held 24th of April 2025 5. Annual Directors’ Report  6. Presentation of Accounts and Treasurer’s Report (Y/E Dec 31st\, 2025)  7. Re-appointment of accountants 8. Election of Trustees retiring by rotation and offering themselves for re-election a. Clare Johnsb. Darrell Hill 9. Election of Trustee a. Kate Tyler 10. Any other business 11. Close of Meeting  To’neill BalaTrustee & Hon. Secretary   								\n				\n					\n		\n				\n			\n						\n				\n									Who can attend?Please note\, all Members and Associates are welcome\, although only those with a membership status of “Member” can vote. To check or amend your status\, please login to the “Update My Details” page in the Members’ Area of the TOFS website. Please also note that\, per the Companies Act 2016\, those with a membership status of Member are entitled to appoint a proxy to attend and vote on their behalf at this meeting\, (Please contact the TOFS office for further details should you intend to do this). If you have any questions about the AGM\, please contact us. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n				\n				\n					Using Zoom				\n				\n				\n				\n									In order to join this meeting\, you will need to pre-register and follow the unique link you will receive in your email. Please don’t share the link with another user as this could block access for you. Instead\, ask them to register for their own link. \nFor the best experience\, we recommend downloading Zoom to your computer or mobile device before joining the meeting [click for more info]. \nIt is also possible to access the meeting using your web browser (e.g. Chrome\, Safari\, Edge) without downloading any plugins or software [click for info].
URL:https://tofs.org.uk/event/live-qa-oa-tof-related-respiratory-issues-for-adults/
LOCATION:Online
CATEGORIES:Adult TOF
ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2025/05/Oct25-NEW.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20251002T200000
DTEND;TZID=Europe/London:20251002T210000
DTSTAMP:20260420T232720
CREATED:20250812T094622Z
LAST-MODIFIED:20250812T095638Z
UID:10000125-1759435200-1759438800@tofs.org.uk
SUMMARY:Virtual meet-up for adults born with OA/TOF
DESCRIPTION:Members and Associates are invited to join us for the Annual General Meeting of T.O.F.S. The T.O.F.S. Annual General Meeting will take place on the 7th May\, 2026 by Zoom at 7:00 pm. Invited to attend: Council of Management\, TOFS office staff\, all Members and Associates. 								\n				\n				\n				\n									\n					\n						\n						\n							\n									CLICK HERE TO REGISTER\n					\n					\n				\n								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									AGENDA1. Welcome and confirmation of quorum 2. Introduction 3. Apologies for absence 4. Approval of the minutes of the 2025 AGM held 24th of April 2025 5. Annual Directors’ Report  6. Presentation of Accounts and Treasurer’s Report (Y/E Dec 31st\, 2025)  7. Re-appointment of accountants 8. Election of Trustees retiring by rotation and offering themselves for re-election a. Clare Johnsb. Darrell Hill 9. Election of Trustee a. Kate Tyler 10. Any other business 11. Close of Meeting  To’neill BalaTrustee & Hon. Secretary   								\n				\n					\n		\n				\n			\n						\n				\n									Who can attend?Please note\, all Members and Associates are welcome\, although only those with a membership status of “Member” can vote. To check or amend your status\, please login to the “Update My Details” page in the Members’ Area of the TOFS website. Please also note that\, per the Companies Act 2016\, those with a membership status of Member are entitled to appoint a proxy to attend and vote on their behalf at this meeting\, (Please contact the TOFS office for further details should you intend to do this). If you have any questions about the AGM\, please contact us. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n				\n				\n					Using Zoom				\n				\n				\n				\n									In order to join this meeting\, you will need to pre-register and follow the unique link you will receive in your email. Please don’t share the link with another user as this could block access for you. Instead\, ask them to register for their own link. \nFor the best experience\, we recommend downloading Zoom to your computer or mobile device before joining the meeting [click for more info]. \nIt is also possible to access the meeting using your web browser (e.g. Chrome\, Safari\, Edge) without downloading any plugins or software [click for info].
URL:https://tofs.org.uk/event/virtual-meet-up-for-adults-born-with-oa-tof-4/
LOCATION:Online
CATEGORIES:Adult TOF
ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2025/08/cuppa-and-chat-10-Oct25.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20250909T200000
DTEND;TZID=Europe/London:20250909T210000
DTSTAMP:20260420T232720
CREATED:20250429T101411Z
LAST-MODIFIED:20250812T153348Z
UID:10000115-1757448000-1757451600@tofs.org.uk
SUMMARY:OA/TOF: A father's perspective
DESCRIPTION:Members and Associates are invited to join us for the Annual General Meeting of T.O.F.S. The T.O.F.S. Annual General Meeting will take place on the 7th May\, 2026 by Zoom at 7:00 pm. Invited to attend: Council of Management\, TOFS office staff\, all Members and Associates. 								\n				\n				\n				\n									\n					\n						\n						\n							\n									CLICK HERE TO REGISTER\n					\n					\n				\n								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									AGENDA1. Welcome and confirmation of quorum 2. Introduction 3. Apologies for absence 4. Approval of the minutes of the 2025 AGM held 24th of April 2025 5. Annual Directors’ Report  6. Presentation of Accounts and Treasurer’s Report (Y/E Dec 31st\, 2025)  7. Re-appointment of accountants 8. Election of Trustees retiring by rotation and offering themselves for re-election a. Clare Johnsb. Darrell Hill 9. Election of Trustee a. Kate Tyler 10. Any other business 11. Close of Meeting  To’neill BalaTrustee & Hon. Secretary   								\n				\n					\n		\n				\n			\n						\n				\n									Who can attend?Please note\, all Members and Associates are welcome\, although only those with a membership status of “Member” can vote. To check or amend your status\, please login to the “Update My Details” page in the Members’ Area of the TOFS website. Please also note that\, per the Companies Act 2016\, those with a membership status of Member are entitled to appoint a proxy to attend and vote on their behalf at this meeting\, (Please contact the TOFS office for further details should you intend to do this). If you have any questions about the AGM\, please contact us. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n				\n				\n					Using Zoom				\n				\n				\n				\n									In order to join this meeting\, you will need to pre-register and follow the unique link you will receive in your email. Please don’t share the link with another user as this could block access for you. Instead\, ask them to register for their own link. \nFor the best experience\, we recommend downloading Zoom to your computer or mobile device before joining the meeting [click for more info]. \nIt is also possible to access the meeting using your web browser (e.g. Chrome\, Safari\, Edge) without downloading any plugins or software [click for info].
URL:https://tofs.org.uk/event/tofs-dads-meet-up/
LOCATION:Online
CATEGORIES:Parents & Carers
ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2025/04/TLC-events-Sep-2025.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20250907
DTEND;VALUE=DATE:20250908
DTSTAMP:20260420T232720
CREATED:20240906T144810Z
LAST-MODIFIED:20250904T101123Z
UID:10000083-1757203200-1757289599@tofs.org.uk
SUMMARY:Great North Run 2025
DESCRIPTION:Members and Associates are invited to join us for the Annual General Meeting of T.O.F.S. The T.O.F.S. Annual General Meeting will take place on the 7th May\, 2026 by Zoom at 7:00 pm. Invited to attend: Council of Management\, TOFS office staff\, all Members and Associates. 								\n				\n				\n				\n									\n					\n						\n						\n							\n									CLICK HERE TO REGISTER\n					\n					\n				\n								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									AGENDA1. Welcome and confirmation of quorum 2. Introduction 3. Apologies for absence 4. Approval of the minutes of the 2025 AGM held 24th of April 2025 5. Annual Directors’ Report  6. Presentation of Accounts and Treasurer’s Report (Y/E Dec 31st\, 2025)  7. Re-appointment of accountants 8. Election of Trustees retiring by rotation and offering themselves for re-election a. Clare Johnsb. Darrell Hill 9. Election of Trustee a. Kate Tyler 10. Any other business 11. Close of Meeting  To’neill BalaTrustee & Hon. Secretary   								\n				\n					\n		\n				\n			\n						\n				\n									Who can attend?Please note\, all Members and Associates are welcome\, although only those with a membership status of “Member” can vote. To check or amend your status\, please login to the “Update My Details” page in the Members’ Area of the TOFS website. Please also note that\, per the Companies Act 2016\, those with a membership status of Member are entitled to appoint a proxy to attend and vote on their behalf at this meeting\, (Please contact the TOFS office for further details should you intend to do this). If you have any questions about the AGM\, please contact us. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n				\n				\n					Using Zoom				\n				\n				\n				\n									In order to join this meeting\, you will need to pre-register and follow the unique link you will receive in your email. Please don’t share the link with another user as this could block access for you. Instead\, ask them to register for their own link. \nFor the best experience\, we recommend downloading Zoom to your computer or mobile device before joining the meeting [click for more info]. \nIt is also possible to access the meeting using your web browser (e.g. Chrome\, Safari\, Edge) without downloading any plugins or software [click for info].
URL:https://tofs.org.uk/event/great-north-run-2025/
LOCATION:Newcastle\, United Kingdom
CATEGORIES:Fundraising
ATTACH;FMTTYPE=image/jpeg:https://tofs.org.uk/wp-content/uploads/2023/09/WhatsApp-Image-2022-09-11-at-20.37.51-4-e1694096386805.jpeg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20250904T200000
DTEND;TZID=Europe/London:20250904T210000
DTSTAMP:20260420T232720
CREATED:20250812T085858Z
LAST-MODIFIED:20250812T091402Z
UID:10000124-1757016000-1757019600@tofs.org.uk
SUMMARY:Virtual meet-up for adults born with OA/TOF
DESCRIPTION:Members and Associates are invited to join us for the Annual General Meeting of T.O.F.S. The T.O.F.S. Annual General Meeting will take place on the 7th May\, 2026 by Zoom at 7:00 pm. Invited to attend: Council of Management\, TOFS office staff\, all Members and Associates. 								\n				\n				\n				\n									\n					\n						\n						\n							\n									CLICK HERE TO REGISTER\n					\n					\n				\n								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									AGENDA1. Welcome and confirmation of quorum 2. Introduction 3. Apologies for absence 4. Approval of the minutes of the 2025 AGM held 24th of April 2025 5. Annual Directors’ Report  6. Presentation of Accounts and Treasurer’s Report (Y/E Dec 31st\, 2025)  7. Re-appointment of accountants 8. Election of Trustees retiring by rotation and offering themselves for re-election a. Clare Johnsb. Darrell Hill 9. Election of Trustee a. Kate Tyler 10. Any other business 11. Close of Meeting  To’neill BalaTrustee & Hon. Secretary   								\n				\n					\n		\n				\n			\n						\n				\n									Who can attend?Please note\, all Members and Associates are welcome\, although only those with a membership status of “Member” can vote. To check or amend your status\, please login to the “Update My Details” page in the Members’ Area of the TOFS website. Please also note that\, per the Companies Act 2016\, those with a membership status of Member are entitled to appoint a proxy to attend and vote on their behalf at this meeting\, (Please contact the TOFS office for further details should you intend to do this). If you have any questions about the AGM\, please contact us. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n				\n				\n					Using Zoom				\n				\n				\n				\n									In order to join this meeting\, you will need to pre-register and follow the unique link you will receive in your email. Please don’t share the link with another user as this could block access for you. Instead\, ask them to register for their own link. \nFor the best experience\, we recommend downloading Zoom to your computer or mobile device before joining the meeting [click for more info]. \nIt is also possible to access the meeting using your web browser (e.g. Chrome\, Safari\, Edge) without downloading any plugins or software [click for info].
URL:https://tofs.org.uk/event/virtual-meet-up-for-adults-born-with-oa-tof-3/
LOCATION:Online
CATEGORIES:Adult TOF
ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2025/08/cuppa-and-chat-9-Sep25.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20250830T103000
DTEND;TZID=Europe/London:20250830T123000
DTSTAMP:20260420T232720
CREATED:20250813T114404Z
LAST-MODIFIED:20250813T133955Z
UID:10000127-1756549800-1756557000@tofs.org.uk
SUMMARY:Local Meet-up: Birmingham
DESCRIPTION:Members and Associates are invited to join us for the Annual General Meeting of T.O.F.S. The T.O.F.S. Annual General Meeting will take place on the 7th May\, 2026 by Zoom at 7:00 pm. Invited to attend: Council of Management\, TOFS office staff\, all Members and Associates. 								\n				\n				\n				\n									\n					\n						\n						\n							\n									CLICK HERE TO REGISTER\n					\n					\n				\n								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									AGENDA1. Welcome and confirmation of quorum 2. Introduction 3. Apologies for absence 4. Approval of the minutes of the 2025 AGM held 24th of April 2025 5. Annual Directors’ Report  6. Presentation of Accounts and Treasurer’s Report (Y/E Dec 31st\, 2025)  7. Re-appointment of accountants 8. Election of Trustees retiring by rotation and offering themselves for re-election a. Clare Johnsb. Darrell Hill 9. Election of Trustee a. Kate Tyler 10. Any other business 11. Close of Meeting  To’neill BalaTrustee & Hon. Secretary   								\n				\n					\n		\n				\n			\n						\n				\n									Who can attend?Please note\, all Members and Associates are welcome\, although only those with a membership status of “Member” can vote. To check or amend your status\, please login to the “Update My Details” page in the Members’ Area of the TOFS website. Please also note that\, per the Companies Act 2016\, those with a membership status of Member are entitled to appoint a proxy to attend and vote on their behalf at this meeting\, (Please contact the TOFS office for further details should you intend to do this). If you have any questions about the AGM\, please contact us. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n				\n				\n					Using Zoom				\n				\n				\n				\n									In order to join this meeting\, you will need to pre-register and follow the unique link you will receive in your email. Please don’t share the link with another user as this could block access for you. Instead\, ask them to register for their own link. \nFor the best experience\, we recommend downloading Zoom to your computer or mobile device before joining the meeting [click for more info]. \nIt is also possible to access the meeting using your web browser (e.g. Chrome\, Safari\, Edge) without downloading any plugins or software [click for info].
URL:https://tofs.org.uk/event/local-meet-up-birmingham/
LOCATION:Ronald McDonald House Birmingham\, St Mary’s Row\, Birmingham\, B4 6NY\, United Kingdom
CATEGORIES:Parents & Carers
ATTACH;FMTTYPE=image/jpeg:https://tofs.org.uk/wp-content/uploads/2024/04/local-meet-up.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20250807T200000
DTEND;TZID=Europe/London:20250807T210000
DTSTAMP:20260420T232720
CREATED:20250711T140446Z
LAST-MODIFIED:20250714T105943Z
UID:10000123-1754596800-1754600400@tofs.org.uk
SUMMARY:Virtual meet-up for adults born with OA/TOF
DESCRIPTION:Members and Associates are invited to join us for the Annual General Meeting of T.O.F.S. The T.O.F.S. Annual General Meeting will take place on the 7th May\, 2026 by Zoom at 7:00 pm. Invited to attend: Council of Management\, TOFS office staff\, all Members and Associates. 								\n				\n				\n				\n									\n					\n						\n						\n							\n									CLICK HERE TO REGISTER\n					\n					\n				\n								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									AGENDA1. Welcome and confirmation of quorum 2. Introduction 3. Apologies for absence 4. Approval of the minutes of the 2025 AGM held 24th of April 2025 5. Annual Directors’ Report  6. Presentation of Accounts and Treasurer’s Report (Y/E Dec 31st\, 2025)  7. Re-appointment of accountants 8. Election of Trustees retiring by rotation and offering themselves for re-election a. Clare Johnsb. Darrell Hill 9. Election of Trustee a. Kate Tyler 10. Any other business 11. Close of Meeting  To’neill BalaTrustee & Hon. Secretary   								\n				\n					\n		\n				\n			\n						\n				\n									Who can attend?Please note\, all Members and Associates are welcome\, although only those with a membership status of “Member” can vote. To check or amend your status\, please login to the “Update My Details” page in the Members’ Area of the TOFS website. Please also note that\, per the Companies Act 2016\, those with a membership status of Member are entitled to appoint a proxy to attend and vote on their behalf at this meeting\, (Please contact the TOFS office for further details should you intend to do this). If you have any questions about the AGM\, please contact us. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n				\n				\n					Using Zoom				\n				\n				\n				\n									In order to join this meeting\, you will need to pre-register and follow the unique link you will receive in your email. Please don’t share the link with another user as this could block access for you. Instead\, ask them to register for their own link. \nFor the best experience\, we recommend downloading Zoom to your computer or mobile device before joining the meeting [click for more info]. \nIt is also possible to access the meeting using your web browser (e.g. Chrome\, Safari\, Edge) without downloading any plugins or software [click for info].
URL:https://tofs.org.uk/event/virtual-meet-up-for-adults-born-with-oa-tof-2/
LOCATION:Online
ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2025/07/cuppa-and-chat-august25.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20250713T140000
DTEND;TZID=Europe/London:20250713T160000
DTSTAMP:20260420T232720
CREATED:20250623T135846Z
LAST-MODIFIED:20250623T135927Z
UID:10000120-1752415200-1752422400@tofs.org.uk
SUMMARY:Local Meet-up: Cardiff
DESCRIPTION:Members and Associates are invited to join us for the Annual General Meeting of T.O.F.S. The T.O.F.S. Annual General Meeting will take place on the 7th May\, 2026 by Zoom at 7:00 pm. Invited to attend: Council of Management\, TOFS office staff\, all Members and Associates. 								\n				\n				\n				\n									\n					\n						\n						\n							\n									CLICK HERE TO REGISTER\n					\n					\n				\n								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									AGENDA1. Welcome and confirmation of quorum 2. Introduction 3. Apologies for absence 4. Approval of the minutes of the 2025 AGM held 24th of April 2025 5. Annual Directors’ Report  6. Presentation of Accounts and Treasurer’s Report (Y/E Dec 31st\, 2025)  7. Re-appointment of accountants 8. Election of Trustees retiring by rotation and offering themselves for re-election a. Clare Johnsb. Darrell Hill 9. Election of Trustee a. Kate Tyler 10. Any other business 11. Close of Meeting  To’neill BalaTrustee & Hon. Secretary   								\n				\n					\n		\n				\n			\n						\n				\n									Who can attend?Please note\, all Members and Associates are welcome\, although only those with a membership status of “Member” can vote. To check or amend your status\, please login to the “Update My Details” page in the Members’ Area of the TOFS website. Please also note that\, per the Companies Act 2016\, those with a membership status of Member are entitled to appoint a proxy to attend and vote on their behalf at this meeting\, (Please contact the TOFS office for further details should you intend to do this). If you have any questions about the AGM\, please contact us. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n				\n				\n					Using Zoom				\n				\n				\n				\n									In order to join this meeting\, you will need to pre-register and follow the unique link you will receive in your email. Please don’t share the link with another user as this could block access for you. Instead\, ask them to register for their own link. \nFor the best experience\, we recommend downloading Zoom to your computer or mobile device before joining the meeting [click for more info]. \nIt is also possible to access the meeting using your web browser (e.g. Chrome\, Safari\, Edge) without downloading any plugins or software [click for info].
URL:https://tofs.org.uk/event/local-meet-up-cardiff/
LOCATION:Ronald McDonald House Cardiff\, Heath Park Way\, Cardiff\, CF14 4AY\, United Kingdom
ATTACH;FMTTYPE=image/jpeg:https://tofs.org.uk/wp-content/uploads/2024/04/local-meet-up.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20250703T200000
DTEND;TZID=Europe/London:20250703T210000
DTSTAMP:20260420T232720
CREATED:20250403T104335Z
LAST-MODIFIED:20250414T103644Z
UID:10000109-1751572800-1751576400@tofs.org.uk
SUMMARY:Virtual meet-up for adults born with OA/TOF
DESCRIPTION:Members and Associates are invited to join us for the Annual General Meeting of T.O.F.S. The T.O.F.S. Annual General Meeting will take place on the 7th May\, 2026 by Zoom at 7:00 pm. Invited to attend: Council of Management\, TOFS office staff\, all Members and Associates. 								\n				\n				\n				\n									\n					\n						\n						\n							\n									CLICK HERE TO REGISTER\n					\n					\n				\n								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									AGENDA1. Welcome and confirmation of quorum 2. Introduction 3. Apologies for absence 4. Approval of the minutes of the 2025 AGM held 24th of April 2025 5. Annual Directors’ Report  6. Presentation of Accounts and Treasurer’s Report (Y/E Dec 31st\, 2025)  7. Re-appointment of accountants 8. Election of Trustees retiring by rotation and offering themselves for re-election a. Clare Johnsb. Darrell Hill 9. Election of Trustee a. Kate Tyler 10. Any other business 11. Close of Meeting  To’neill BalaTrustee & Hon. Secretary   								\n				\n					\n		\n				\n			\n						\n				\n									Who can attend?Please note\, all Members and Associates are welcome\, although only those with a membership status of “Member” can vote. To check or amend your status\, please login to the “Update My Details” page in the Members’ Area of the TOFS website. Please also note that\, per the Companies Act 2016\, those with a membership status of Member are entitled to appoint a proxy to attend and vote on their behalf at this meeting\, (Please contact the TOFS office for further details should you intend to do this). If you have any questions about the AGM\, please contact us. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n				\n				\n					Using Zoom				\n				\n				\n				\n									In order to join this meeting\, you will need to pre-register and follow the unique link you will receive in your email. Please don’t share the link with another user as this could block access for you. Instead\, ask them to register for their own link. \nFor the best experience\, we recommend downloading Zoom to your computer or mobile device before joining the meeting [click for more info]. \nIt is also possible to access the meeting using your web browser (e.g. Chrome\, Safari\, Edge) without downloading any plugins or software [click for info].
URL:https://tofs.org.uk/event/virtual-meet-up-for-adults-born-with-oa-tof-16/
LOCATION:Online
CATEGORIES:Adult TOF
ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2025/04/july.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20250628
DTEND;VALUE=DATE:20250629
DTSTAMP:20260420T232720
CREATED:20250529T090523Z
LAST-MODIFIED:20250529T091045Z
UID:10000119-1751068800-1751155199@tofs.org.uk
SUMMARY:VACTERL Association Support Group Get-Together 2025
DESCRIPTION:Members and Associates are invited to join us for the Annual General Meeting of T.O.F.S. The T.O.F.S. Annual General Meeting will take place on the 7th May\, 2026 by Zoom at 7:00 pm. Invited to attend: Council of Management\, TOFS office staff\, all Members and Associates. 								\n				\n				\n				\n									\n					\n						\n						\n							\n									CLICK HERE TO REGISTER\n					\n					\n				\n								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									AGENDA1. Welcome and confirmation of quorum 2. Introduction 3. Apologies for absence 4. Approval of the minutes of the 2025 AGM held 24th of April 2025 5. Annual Directors’ Report  6. Presentation of Accounts and Treasurer’s Report (Y/E Dec 31st\, 2025)  7. Re-appointment of accountants 8. Election of Trustees retiring by rotation and offering themselves for re-election a. Clare Johnsb. Darrell Hill 9. Election of Trustee a. Kate Tyler 10. Any other business 11. Close of Meeting  To’neill BalaTrustee & Hon. Secretary   								\n				\n					\n		\n				\n			\n						\n				\n									Who can attend?Please note\, all Members and Associates are welcome\, although only those with a membership status of “Member” can vote. To check or amend your status\, please login to the “Update My Details” page in the Members’ Area of the TOFS website. Please also note that\, per the Companies Act 2016\, those with a membership status of Member are entitled to appoint a proxy to attend and vote on their behalf at this meeting\, (Please contact the TOFS office for further details should you intend to do this). If you have any questions about the AGM\, please contact us. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n				\n				\n					Using Zoom				\n				\n				\n				\n									In order to join this meeting\, you will need to pre-register and follow the unique link you will receive in your email. Please don’t share the link with another user as this could block access for you. Instead\, ask them to register for their own link. \nFor the best experience\, we recommend downloading Zoom to your computer or mobile device before joining the meeting [click for more info]. \nIt is also possible to access the meeting using your web browser (e.g. Chrome\, Safari\, Edge) without downloading any plugins or software [click for info].
URL:https://tofs.org.uk/event/vacterl-association-support-group-get-together-2025/
LOCATION:The Great Barr Hotel\, Newton Road Great Barr\, Birmingham\, B43 6HS
CATEGORIES:Adult TOF,Parents & Carers
ATTACH;FMTTYPE=image/jpeg:https://tofs.org.uk/wp-content/uploads/2025/05/vacterl_logo_medium.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20250628
DTEND;VALUE=DATE:20250629
DTSTAMP:20260420T232720
CREATED:20250410T094626Z
LAST-MODIFIED:20250626T145624Z
UID:10000110-1751068800-1751155199@tofs.org.uk
SUMMARY:Peak District Ultra Challenge
DESCRIPTION:Members and Associates are invited to join us for the Annual General Meeting of T.O.F.S. The T.O.F.S. Annual General Meeting will take place on the 7th May\, 2026 by Zoom at 7:00 pm. Invited to attend: Council of Management\, TOFS office staff\, all Members and Associates. 								\n				\n				\n				\n									\n					\n						\n						\n							\n									CLICK HERE TO REGISTER\n					\n					\n				\n								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									AGENDA1. Welcome and confirmation of quorum 2. Introduction 3. Apologies for absence 4. Approval of the minutes of the 2025 AGM held 24th of April 2025 5. Annual Directors’ Report  6. Presentation of Accounts and Treasurer’s Report (Y/E Dec 31st\, 2025)  7. Re-appointment of accountants 8. Election of Trustees retiring by rotation and offering themselves for re-election a. Clare Johnsb. Darrell Hill 9. Election of Trustee a. Kate Tyler 10. Any other business 11. Close of Meeting  To’neill BalaTrustee & Hon. Secretary   								\n				\n					\n		\n				\n			\n						\n				\n									Who can attend?Please note\, all Members and Associates are welcome\, although only those with a membership status of “Member” can vote. To check or amend your status\, please login to the “Update My Details” page in the Members’ Area of the TOFS website. Please also note that\, per the Companies Act 2016\, those with a membership status of Member are entitled to appoint a proxy to attend and vote on their behalf at this meeting\, (Please contact the TOFS office for further details should you intend to do this). If you have any questions about the AGM\, please contact us. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n				\n				\n					Using Zoom				\n				\n				\n				\n									In order to join this meeting\, you will need to pre-register and follow the unique link you will receive in your email. Please don’t share the link with another user as this could block access for you. Instead\, ask them to register for their own link. \nFor the best experience\, we recommend downloading Zoom to your computer or mobile device before joining the meeting [click for more info]. \nIt is also possible to access the meeting using your web browser (e.g. Chrome\, Safari\, Edge) without downloading any plugins or software [click for info].
URL:https://tofs.org.uk/event/peak-district-ultra-challenge/
LOCATION:Bakewell\, Bakewell Showground\, DE45 1AH\, United Kingdom
CATEGORIES:Fundraising
ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2025/04/peak-district.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20250621
DTEND;VALUE=DATE:20250701
DTSTAMP:20260420T232720
CREATED:20250411T105341Z
LAST-MODIFIED:20250704T095944Z
UID:10000111-1750464000-1751327999@tofs.org.uk
SUMMARY:Teddy Toddle 2025
DESCRIPTION:Members and Associates are invited to join us for the Annual General Meeting of T.O.F.S. The T.O.F.S. Annual General Meeting will take place on the 7th May\, 2026 by Zoom at 7:00 pm. Invited to attend: Council of Management\, TOFS office staff\, all Members and Associates. 								\n				\n				\n				\n									\n					\n						\n						\n							\n									CLICK HERE TO REGISTER\n					\n					\n				\n								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									AGENDA1. Welcome and confirmation of quorum 2. Introduction 3. Apologies for absence 4. Approval of the minutes of the 2025 AGM held 24th of April 2025 5. Annual Directors’ Report  6. Presentation of Accounts and Treasurer’s Report (Y/E Dec 31st\, 2025)  7. Re-appointment of accountants 8. Election of Trustees retiring by rotation and offering themselves for re-election a. Clare Johnsb. Darrell Hill 9. Election of Trustee a. Kate Tyler 10. Any other business 11. Close of Meeting  To’neill BalaTrustee & Hon. Secretary   								\n				\n					\n		\n				\n			\n						\n				\n									Who can attend?Please note\, all Members and Associates are welcome\, although only those with a membership status of “Member” can vote. To check or amend your status\, please login to the “Update My Details” page in the Members’ Area of the TOFS website. Please also note that\, per the Companies Act 2016\, those with a membership status of Member are entitled to appoint a proxy to attend and vote on their behalf at this meeting\, (Please contact the TOFS office for further details should you intend to do this). If you have any questions about the AGM\, please contact us. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n				\n				\n					Using Zoom				\n				\n				\n				\n									In order to join this meeting\, you will need to pre-register and follow the unique link you will receive in your email. Please don’t share the link with another user as this could block access for you. Instead\, ask them to register for their own link. \nFor the best experience\, we recommend downloading Zoom to your computer or mobile device before joining the meeting [click for more info]. \nIt is also possible to access the meeting using your web browser (e.g. Chrome\, Safari\, Edge) without downloading any plugins or software [click for info].
URL:https://tofs.org.uk/event/teddy-toddle-2025/
LOCATION:Various locations
CATEGORIES:Fundraising
ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2025/04/teddy-toddle-icon.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20250605T200000
DTEND;TZID=Europe/London:20250605T210000
DTSTAMP:20260420T232720
CREATED:20250403T104119Z
LAST-MODIFIED:20250414T103542Z
UID:10000108-1749153600-1749157200@tofs.org.uk
SUMMARY:Virtual meet-up for adults born with OA/TOF
DESCRIPTION:Members and Associates are invited to join us for the Annual General Meeting of T.O.F.S. The T.O.F.S. Annual General Meeting will take place on the 7th May\, 2026 by Zoom at 7:00 pm. Invited to attend: Council of Management\, TOFS office staff\, all Members and Associates. 								\n				\n				\n				\n									\n					\n						\n						\n							\n									CLICK HERE TO REGISTER\n					\n					\n				\n								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									AGENDA1. Welcome and confirmation of quorum 2. Introduction 3. Apologies for absence 4. Approval of the minutes of the 2025 AGM held 24th of April 2025 5. Annual Directors’ Report  6. Presentation of Accounts and Treasurer’s Report (Y/E Dec 31st\, 2025)  7. Re-appointment of accountants 8. Election of Trustees retiring by rotation and offering themselves for re-election a. Clare Johnsb. Darrell Hill 9. Election of Trustee a. Kate Tyler 10. Any other business 11. Close of Meeting  To’neill BalaTrustee & Hon. Secretary   								\n				\n					\n		\n				\n			\n						\n				\n									Who can attend?Please note\, all Members and Associates are welcome\, although only those with a membership status of “Member” can vote. To check or amend your status\, please login to the “Update My Details” page in the Members’ Area of the TOFS website. Please also note that\, per the Companies Act 2016\, those with a membership status of Member are entitled to appoint a proxy to attend and vote on their behalf at this meeting\, (Please contact the TOFS office for further details should you intend to do this). If you have any questions about the AGM\, please contact us. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n				\n				\n					Using Zoom				\n				\n				\n				\n									In order to join this meeting\, you will need to pre-register and follow the unique link you will receive in your email. Please don’t share the link with another user as this could block access for you. Instead\, ask them to register for their own link. \nFor the best experience\, we recommend downloading Zoom to your computer or mobile device before joining the meeting [click for more info]. \nIt is also possible to access the meeting using your web browser (e.g. Chrome\, Safari\, Edge) without downloading any plugins or software [click for info].
URL:https://tofs.org.uk/event/virtual-meet-up-for-adults-born-with-oa-tof-15/
LOCATION:Online
CATEGORIES:Adult TOF
ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2025/04/June.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20250501T200000
DTEND;TZID=Europe/London:20250501T210000
DTSTAMP:20260420T232720
CREATED:20250402T112938Z
LAST-MODIFIED:20250402T112938Z
UID:10000107-1746129600-1746133200@tofs.org.uk
SUMMARY:Virtual meet-up for adults born with OA/TOF
DESCRIPTION:Members and Associates are invited to join us for the Annual General Meeting of T.O.F.S. The T.O.F.S. Annual General Meeting will take place on the 7th May\, 2026 by Zoom at 7:00 pm. Invited to attend: Council of Management\, TOFS office staff\, all Members and Associates. 								\n				\n				\n				\n									\n					\n						\n						\n							\n									CLICK HERE TO REGISTER\n					\n					\n				\n								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									AGENDA1. Welcome and confirmation of quorum 2. Introduction 3. Apologies for absence 4. Approval of the minutes of the 2025 AGM held 24th of April 2025 5. Annual Directors’ Report  6. Presentation of Accounts and Treasurer’s Report (Y/E Dec 31st\, 2025)  7. Re-appointment of accountants 8. Election of Trustees retiring by rotation and offering themselves for re-election a. Clare Johnsb. Darrell Hill 9. Election of Trustee a. Kate Tyler 10. Any other business 11. Close of Meeting  To’neill BalaTrustee & Hon. Secretary   								\n				\n					\n		\n				\n			\n						\n				\n									Who can attend?Please note\, all Members and Associates are welcome\, although only those with a membership status of “Member” can vote. To check or amend your status\, please login to the “Update My Details” page in the Members’ Area of the TOFS website. Please also note that\, per the Companies Act 2016\, those with a membership status of Member are entitled to appoint a proxy to attend and vote on their behalf at this meeting\, (Please contact the TOFS office for further details should you intend to do this). If you have any questions about the AGM\, please contact us. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n				\n				\n					Using Zoom				\n				\n				\n				\n									In order to join this meeting\, you will need to pre-register and follow the unique link you will receive in your email. Please don’t share the link with another user as this could block access for you. Instead\, ask them to register for their own link. \nFor the best experience\, we recommend downloading Zoom to your computer or mobile device before joining the meeting [click for more info]. \nIt is also possible to access the meeting using your web browser (e.g. Chrome\, Safari\, Edge) without downloading any plugins or software [click for info].
URL:https://tofs.org.uk/event/virtual-meet-up-for-adults-born-with-oa-tof-14/
LOCATION:Online
CATEGORIES:Adult TOF
ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2025/04/may25.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20250430
DTEND;VALUE=DATE:20250504
DTSTAMP:20260420T232720
CREATED:20240212T151545Z
LAST-MODIFIED:20240708T153710Z
UID:10000057-1745971200-1746316799@tofs.org.uk
SUMMARY:InoEA 25
DESCRIPTION:Members and Associates are invited to join us for the Annual General Meeting of T.O.F.S. The T.O.F.S. Annual General Meeting will take place on the 7th May\, 2026 by Zoom at 7:00 pm. Invited to attend: Council of Management\, TOFS office staff\, all Members and Associates. 								\n				\n				\n				\n									\n					\n						\n						\n							\n									CLICK HERE TO REGISTER\n					\n					\n				\n								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									AGENDA1. Welcome and confirmation of quorum 2. Introduction 3. Apologies for absence 4. Approval of the minutes of the 2025 AGM held 24th of April 2025 5. Annual Directors’ Report  6. Presentation of Accounts and Treasurer’s Report (Y/E Dec 31st\, 2025)  7. Re-appointment of accountants 8. Election of Trustees retiring by rotation and offering themselves for re-election a. Clare Johnsb. Darrell Hill 9. Election of Trustee a. Kate Tyler 10. Any other business 11. Close of Meeting  To’neill BalaTrustee & Hon. Secretary   								\n				\n					\n		\n				\n			\n						\n				\n									Who can attend?Please note\, all Members and Associates are welcome\, although only those with a membership status of “Member” can vote. To check or amend your status\, please login to the “Update My Details” page in the Members’ Area of the TOFS website. Please also note that\, per the Companies Act 2016\, those with a membership status of Member are entitled to appoint a proxy to attend and vote on their behalf at this meeting\, (Please contact the TOFS office for further details should you intend to do this). If you have any questions about the AGM\, please contact us. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n				\n				\n					Using Zoom				\n				\n				\n				\n									In order to join this meeting\, you will need to pre-register and follow the unique link you will receive in your email. Please don’t share the link with another user as this could block access for you. Instead\, ask them to register for their own link. \nFor the best experience\, we recommend downloading Zoom to your computer or mobile device before joining the meeting [click for more info]. \nIt is also possible to access the meeting using your web browser (e.g. Chrome\, Safari\, Edge) without downloading any plugins or software [click for info].
URL:https://tofs.org.uk/event/inoea-25/
LOCATION:Renaissance Polat İstanbul Hotel\, Sahilyolu Cad.No:2 Yesilyurt\, Istanbul\, 34149\, Turkey
ATTACH;FMTTYPE=image/jpeg:https://tofs.org.uk/wp-content/uploads/2024/02/inoea25.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20250427
DTEND;VALUE=DATE:20250428
DTSTAMP:20260420T232720
CREATED:20240421T160414Z
LAST-MODIFIED:20250427T164618Z
UID:10000065-1745712000-1745798399@tofs.org.uk
SUMMARY:London Marathon 2025
DESCRIPTION:Members and Associates are invited to join us for the Annual General Meeting of T.O.F.S. The T.O.F.S. Annual General Meeting will take place on the 7th May\, 2026 by Zoom at 7:00 pm. Invited to attend: Council of Management\, TOFS office staff\, all Members and Associates. 								\n				\n				\n				\n									\n					\n						\n						\n							\n									CLICK HERE TO REGISTER\n					\n					\n				\n								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									AGENDA1. Welcome and confirmation of quorum 2. Introduction 3. Apologies for absence 4. Approval of the minutes of the 2025 AGM held 24th of April 2025 5. Annual Directors’ Report  6. Presentation of Accounts and Treasurer’s Report (Y/E Dec 31st\, 2025)  7. Re-appointment of accountants 8. Election of Trustees retiring by rotation and offering themselves for re-election a. Clare Johnsb. Darrell Hill 9. Election of Trustee a. Kate Tyler 10. Any other business 11. Close of Meeting  To’neill BalaTrustee & Hon. Secretary   								\n				\n					\n		\n				\n			\n						\n				\n									Who can attend?Please note\, all Members and Associates are welcome\, although only those with a membership status of “Member” can vote. To check or amend your status\, please login to the “Update My Details” page in the Members’ Area of the TOFS website. Please also note that\, per the Companies Act 2016\, those with a membership status of Member are entitled to appoint a proxy to attend and vote on their behalf at this meeting\, (Please contact the TOFS office for further details should you intend to do this). If you have any questions about the AGM\, please contact us. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n				\n				\n					Using Zoom				\n				\n				\n				\n									In order to join this meeting\, you will need to pre-register and follow the unique link you will receive in your email. Please don’t share the link with another user as this could block access for you. Instead\, ask them to register for their own link. \nFor the best experience\, we recommend downloading Zoom to your computer or mobile device before joining the meeting [click for more info]. \nIt is also possible to access the meeting using your web browser (e.g. Chrome\, Safari\, Edge) without downloading any plugins or software [click for info].
URL:https://tofs.org.uk/event/london-marathon-2025/
LOCATION:London\, London\, United Kingdom
CATEGORIES:Fundraising
ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2024/04/Thank-you-to-our-amazing-London-Marathon-runners.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20250424T190000
DTEND;TZID=Europe/London:20250424T200000
DTSTAMP:20260420T232720
CREATED:20241126T113022Z
LAST-MODIFIED:20250404T091840Z
UID:10000092-1745521200-1745524800@tofs.org.uk
SUMMARY:TOFS Annual General Meeting
DESCRIPTION:Members and Associates are invited to join us for the Annual General Meeting of T.O.F.S. The T.O.F.S. Annual General Meeting will take place on the 7th May\, 2026 by Zoom at 7:00 pm. Invited to attend: Council of Management\, TOFS office staff\, all Members and Associates. 								\n				\n				\n				\n									\n					\n						\n						\n							\n									CLICK HERE TO REGISTER\n					\n					\n				\n								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									AGENDA1. Welcome and confirmation of quorum 2. Introduction 3. Apologies for absence 4. Approval of the minutes of the 2025 AGM held 24th of April 2025 5. Annual Directors’ Report  6. Presentation of Accounts and Treasurer’s Report (Y/E Dec 31st\, 2025)  7. Re-appointment of accountants 8. Election of Trustees retiring by rotation and offering themselves for re-election a. Clare Johnsb. Darrell Hill 9. Election of Trustee a. Kate Tyler 10. Any other business 11. Close of Meeting  To’neill BalaTrustee & Hon. Secretary   								\n				\n					\n		\n				\n			\n						\n				\n									Who can attend?Please note\, all Members and Associates are welcome\, although only those with a membership status of “Member” can vote. To check or amend your status\, please login to the “Update My Details” page in the Members’ Area of the TOFS website. Please also note that\, per the Companies Act 2016\, those with a membership status of Member are entitled to appoint a proxy to attend and vote on their behalf at this meeting\, (Please contact the TOFS office for further details should you intend to do this). If you have any questions about the AGM\, please contact us. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n				\n				\n					Using Zoom				\n				\n				\n				\n									In order to join this meeting\, you will need to pre-register and follow the unique link you will receive in your email. Please don’t share the link with another user as this could block access for you. Instead\, ask them to register for their own link. \nFor the best experience\, we recommend downloading Zoom to your computer or mobile device before joining the meeting [click for more info]. \nIt is also possible to access the meeting using your web browser (e.g. Chrome\, Safari\, Edge) without downloading any plugins or software [click for info].
URL:https://tofs.org.uk/event/tofs-annual-general-meeting/
LOCATION:Online
CATEGORIES:TOFS
ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2020/05/tofs-logo-no-text-500x500-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20250408T200000
DTEND;TZID=Europe/London:20250408T210000
DTSTAMP:20260420T232720
CREATED:20250214T111646Z
LAST-MODIFIED:20250327T084714Z
UID:10000104-1744142400-1744146000@tofs.org.uk
SUMMARY:Talk with TLCs: Top tips for travelling with your child born with OA/TOF
DESCRIPTION:Members and Associates are invited to join us for the Annual General Meeting of T.O.F.S. The T.O.F.S. Annual General Meeting will take place on the 7th May\, 2026 by Zoom at 7:00 pm. Invited to attend: Council of Management\, TOFS office staff\, all Members and Associates. 								\n				\n				\n				\n									\n					\n						\n						\n							\n									CLICK HERE TO REGISTER\n					\n					\n				\n								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									AGENDA1. Welcome and confirmation of quorum 2. Introduction 3. Apologies for absence 4. Approval of the minutes of the 2025 AGM held 24th of April 2025 5. Annual Directors’ Report  6. Presentation of Accounts and Treasurer’s Report (Y/E Dec 31st\, 2025)  7. Re-appointment of accountants 8. Election of Trustees retiring by rotation and offering themselves for re-election a. Clare Johnsb. Darrell Hill 9. Election of Trustee a. Kate Tyler 10. Any other business 11. Close of Meeting  To’neill BalaTrustee & Hon. Secretary   								\n				\n					\n		\n				\n			\n						\n				\n									Who can attend?Please note\, all Members and Associates are welcome\, although only those with a membership status of “Member” can vote. To check or amend your status\, please login to the “Update My Details” page in the Members’ Area of the TOFS website. Please also note that\, per the Companies Act 2016\, those with a membership status of Member are entitled to appoint a proxy to attend and vote on their behalf at this meeting\, (Please contact the TOFS office for further details should you intend to do this). If you have any questions about the AGM\, please contact us. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n				\n				\n					Using Zoom				\n				\n				\n				\n									In order to join this meeting\, you will need to pre-register and follow the unique link you will receive in your email. Please don’t share the link with another user as this could block access for you. Instead\, ask them to register for their own link. \nFor the best experience\, we recommend downloading Zoom to your computer or mobile device before joining the meeting [click for more info]. \nIt is also possible to access the meeting using your web browser (e.g. Chrome\, Safari\, Edge) without downloading any plugins or software [click for info].
URL:https://tofs.org.uk/event/talk-with-tlcs-top-tips-for-travelling-with-your-child-born-with-oa-tof/
LOCATION:Online
CATEGORIES:Parents & Carers,Support
ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2025/02/Talk-with-TLCs-Travelling-tips.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20250403T200000
DTEND;TZID=Europe/London:20250403T210000
DTSTAMP:20260420T232720
CREATED:20250310T162433Z
LAST-MODIFIED:20250310T162500Z
UID:10000106-1743710400-1743714000@tofs.org.uk
SUMMARY:Virtual meet-up for adults born with OA/TOF
DESCRIPTION:Members and Associates are invited to join us for the Annual General Meeting of T.O.F.S. The T.O.F.S. Annual General Meeting will take place on the 7th May\, 2026 by Zoom at 7:00 pm. Invited to attend: Council of Management\, TOFS office staff\, all Members and Associates. 								\n				\n				\n				\n									\n					\n						\n						\n							\n									CLICK HERE TO REGISTER\n					\n					\n				\n								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									AGENDA1. Welcome and confirmation of quorum 2. Introduction 3. Apologies for absence 4. Approval of the minutes of the 2025 AGM held 24th of April 2025 5. Annual Directors’ Report  6. Presentation of Accounts and Treasurer’s Report (Y/E Dec 31st\, 2025)  7. Re-appointment of accountants 8. Election of Trustees retiring by rotation and offering themselves for re-election a. Clare Johnsb. Darrell Hill 9. Election of Trustee a. Kate Tyler 10. Any other business 11. Close of Meeting  To’neill BalaTrustee & Hon. Secretary   								\n				\n					\n		\n				\n			\n						\n				\n									Who can attend?Please note\, all Members and Associates are welcome\, although only those with a membership status of “Member” can vote. To check or amend your status\, please login to the “Update My Details” page in the Members’ Area of the TOFS website. Please also note that\, per the Companies Act 2016\, those with a membership status of Member are entitled to appoint a proxy to attend and vote on their behalf at this meeting\, (Please contact the TOFS office for further details should you intend to do this). If you have any questions about the AGM\, please contact us. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n				\n				\n					Using Zoom				\n				\n				\n				\n									In order to join this meeting\, you will need to pre-register and follow the unique link you will receive in your email. Please don’t share the link with another user as this could block access for you. Instead\, ask them to register for their own link. \nFor the best experience\, we recommend downloading Zoom to your computer or mobile device before joining the meeting [click for more info]. \nIt is also possible to access the meeting using your web browser (e.g. Chrome\, Safari\, Edge) without downloading any plugins or software [click for info].
URL:https://tofs.org.uk/event/virtual-meet-up-for-adults-born-with-oa-tof/
LOCATION:Online
CATEGORIES:Adult TOF
ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2025/03/cuppa-and-chat-april2.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20250312T183000
DTEND;TZID=Europe/London:20250312T193000
DTSTAMP:20260420T232720
CREATED:20241212T113557Z
LAST-MODIFIED:20250227T171103Z
UID:10000095-1741804200-1741807800@tofs.org.uk
SUMMARY:Live Q&A: Managing medications effectively
DESCRIPTION:Members and Associates are invited to join us for the Annual General Meeting of T.O.F.S. The T.O.F.S. Annual General Meeting will take place on the 7th May\, 2026 by Zoom at 7:00 pm. Invited to attend: Council of Management\, TOFS office staff\, all Members and Associates. 								\n				\n				\n				\n									\n					\n						\n						\n							\n									CLICK HERE TO REGISTER\n					\n					\n				\n								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									AGENDA1. Welcome and confirmation of quorum 2. Introduction 3. Apologies for absence 4. Approval of the minutes of the 2025 AGM held 24th of April 2025 5. Annual Directors’ Report  6. Presentation of Accounts and Treasurer’s Report (Y/E Dec 31st\, 2025)  7. Re-appointment of accountants 8. Election of Trustees retiring by rotation and offering themselves for re-election a. Clare Johnsb. Darrell Hill 9. Election of Trustee a. Kate Tyler 10. Any other business 11. Close of Meeting  To’neill BalaTrustee & Hon. Secretary   								\n				\n					\n		\n				\n			\n						\n				\n									Who can attend?Please note\, all Members and Associates are welcome\, although only those with a membership status of “Member” can vote. To check or amend your status\, please login to the “Update My Details” page in the Members’ Area of the TOFS website. Please also note that\, per the Companies Act 2016\, those with a membership status of Member are entitled to appoint a proxy to attend and vote on their behalf at this meeting\, (Please contact the TOFS office for further details should you intend to do this). If you have any questions about the AGM\, please contact us. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n				\n				\n					Using Zoom				\n				\n				\n				\n									In order to join this meeting\, you will need to pre-register and follow the unique link you will receive in your email. Please don’t share the link with another user as this could block access for you. Instead\, ask them to register for their own link. \nFor the best experience\, we recommend downloading Zoom to your computer or mobile device before joining the meeting [click for more info]. \nIt is also possible to access the meeting using your web browser (e.g. Chrome\, Safari\, Edge) without downloading any plugins or software [click for info].
URL:https://tofs.org.uk/event/live-qa-managing-medications-effectively/
LOCATION:Online
CATEGORIES:Parents & Carers
ATTACH;FMTTYPE=image/jpeg:https://tofs.org.uk/wp-content/uploads/2024/12/Chew-Adverts-6.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20250306T200000
DTEND;TZID=Europe/London:20250306T210000
DTSTAMP:20260420T232720
CREATED:20241216T112514Z
LAST-MODIFIED:20250115T110032Z
UID:10000098-1741291200-1741294800@tofs.org.uk
SUMMARY:Virtual meet-up for adults born with OA/TOF
DESCRIPTION:Members and Associates are invited to join us for the Annual General Meeting of T.O.F.S. The T.O.F.S. Annual General Meeting will take place on the 7th May\, 2026 by Zoom at 7:00 pm. Invited to attend: Council of Management\, TOFS office staff\, all Members and Associates. 								\n				\n				\n				\n									\n					\n						\n						\n							\n									CLICK HERE TO REGISTER\n					\n					\n				\n								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									AGENDA1. Welcome and confirmation of quorum 2. Introduction 3. Apologies for absence 4. Approval of the minutes of the 2025 AGM held 24th of April 2025 5. Annual Directors’ Report  6. Presentation of Accounts and Treasurer’s Report (Y/E Dec 31st\, 2025)  7. Re-appointment of accountants 8. Election of Trustees retiring by rotation and offering themselves for re-election a. Clare Johnsb. Darrell Hill 9. Election of Trustee a. Kate Tyler 10. Any other business 11. Close of Meeting  To’neill BalaTrustee & Hon. Secretary   								\n				\n					\n		\n				\n			\n						\n				\n									Who can attend?Please note\, all Members and Associates are welcome\, although only those with a membership status of “Member” can vote. To check or amend your status\, please login to the “Update My Details” page in the Members’ Area of the TOFS website. Please also note that\, per the Companies Act 2016\, those with a membership status of Member are entitled to appoint a proxy to attend and vote on their behalf at this meeting\, (Please contact the TOFS office for further details should you intend to do this). If you have any questions about the AGM\, please contact us. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n				\n				\n					Using Zoom				\n				\n				\n				\n									In order to join this meeting\, you will need to pre-register and follow the unique link you will receive in your email. Please don’t share the link with another user as this could block access for you. Instead\, ask them to register for their own link. \nFor the best experience\, we recommend downloading Zoom to your computer or mobile device before joining the meeting [click for more info]. \nIt is also possible to access the meeting using your web browser (e.g. Chrome\, Safari\, Edge) without downloading any plugins or software [click for info].
URL:https://tofs.org.uk/event/virtual-meet-up-for-adults-born-with-oa-tof-12/
LOCATION:Online
CATEGORIES:Adult TOF
ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2024/12/cuppa-and-chat-march-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20250305T150000
DTEND;TZID=Europe/London:20250305T160000
DTSTAMP:20260420T232720
CREATED:20250303T122830Z
LAST-MODIFIED:20250303T122915Z
UID:10000105-1741186800-1741190400@tofs.org.uk
SUMMARY:ERNICA: A traumatic Diagnosis - the (early) parent-child interaction in (rare) chronic paediatric diseases
DESCRIPTION:Members and Associates are invited to join us for the Annual General Meeting of T.O.F.S. The T.O.F.S. Annual General Meeting will take place on the 7th May\, 2026 by Zoom at 7:00 pm. Invited to attend: Council of Management\, TOFS office staff\, all Members and Associates. 								\n				\n				\n				\n									\n					\n						\n						\n							\n									CLICK HERE TO REGISTER\n					\n					\n				\n								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									AGENDA1. Welcome and confirmation of quorum 2. Introduction 3. Apologies for absence 4. Approval of the minutes of the 2025 AGM held 24th of April 2025 5. Annual Directors’ Report  6. Presentation of Accounts and Treasurer’s Report (Y/E Dec 31st\, 2025)  7. Re-appointment of accountants 8. Election of Trustees retiring by rotation and offering themselves for re-election a. Clare Johnsb. Darrell Hill 9. Election of Trustee a. Kate Tyler 10. Any other business 11. Close of Meeting  To’neill BalaTrustee & Hon. Secretary   								\n				\n					\n		\n				\n			\n						\n				\n									Who can attend?Please note\, all Members and Associates are welcome\, although only those with a membership status of “Member” can vote. To check or amend your status\, please login to the “Update My Details” page in the Members’ Area of the TOFS website. Please also note that\, per the Companies Act 2016\, those with a membership status of Member are entitled to appoint a proxy to attend and vote on their behalf at this meeting\, (Please contact the TOFS office for further details should you intend to do this). If you have any questions about the AGM\, please contact us. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n				\n				\n					Using Zoom				\n				\n				\n				\n									In order to join this meeting\, you will need to pre-register and follow the unique link you will receive in your email. Please don’t share the link with another user as this could block access for you. Instead\, ask them to register for their own link. \nFor the best experience\, we recommend downloading Zoom to your computer or mobile device before joining the meeting [click for more info]. \nIt is also possible to access the meeting using your web browser (e.g. Chrome\, Safari\, Edge) without downloading any plugins or software [click for info].
URL:https://tofs.org.uk/event/ernica-a-traumatic-diagnosis-the-early-parent-child-interaction-in-rare-chronic-paediatric-diseases/
LOCATION:Online
CATEGORIES:Parents & Carers,Professional,Support
ATTACH;FMTTYPE=image/jpeg:https://tofs.org.uk/wp-content/uploads/2022/11/EARNICA_400x400.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20250301T121500
DTEND;TZID=Europe/London:20250301T163000
DTSTAMP:20260420T232720
CREATED:20241116T120046Z
LAST-MODIFIED:20250225T164055Z
UID:10000090-1740831300-1740846600@tofs.org.uk
SUMMARY:TOFS Seminar 2025
DESCRIPTION:Members and Associates are invited to join us for the Annual General Meeting of T.O.F.S. The T.O.F.S. Annual General Meeting will take place on the 7th May\, 2026 by Zoom at 7:00 pm. Invited to attend: Council of Management\, TOFS office staff\, all Members and Associates. 								\n				\n				\n				\n									\n					\n						\n						\n							\n									CLICK HERE TO REGISTER\n					\n					\n				\n								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									AGENDA1. Welcome and confirmation of quorum 2. Introduction 3. Apologies for absence 4. Approval of the minutes of the 2025 AGM held 24th of April 2025 5. Annual Directors’ Report  6. Presentation of Accounts and Treasurer’s Report (Y/E Dec 31st\, 2025)  7. Re-appointment of accountants 8. Election of Trustees retiring by rotation and offering themselves for re-election a. Clare Johnsb. Darrell Hill 9. Election of Trustee a. Kate Tyler 10. Any other business 11. Close of Meeting  To’neill BalaTrustee & Hon. Secretary   								\n				\n					\n		\n				\n			\n						\n				\n									Who can attend?Please note\, all Members and Associates are welcome\, although only those with a membership status of “Member” can vote. To check or amend your status\, please login to the “Update My Details” page in the Members’ Area of the TOFS website. Please also note that\, per the Companies Act 2016\, those with a membership status of Member are entitled to appoint a proxy to attend and vote on their behalf at this meeting\, (Please contact the TOFS office for further details should you intend to do this). If you have any questions about the AGM\, please contact us. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n				\n				\n					Using Zoom				\n				\n				\n				\n									In order to join this meeting\, you will need to pre-register and follow the unique link you will receive in your email. Please don’t share the link with another user as this could block access for you. Instead\, ask them to register for their own link. \nFor the best experience\, we recommend downloading Zoom to your computer or mobile device before joining the meeting [click for more info]. \nIt is also possible to access the meeting using your web browser (e.g. Chrome\, Safari\, Edge) without downloading any plugins or software [click for info].
URL:https://tofs.org.uk/event/tofs-seminar-2025/
LOCATION:St Michaels Centre\,\, The Green\, Stoke Gifford\, Bristol\, BS34 8PD\, United Kingdom
CATEGORIES:Adult TOF,Parents & Carers,Professional,Support
ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2024/08/tofs-logo-tiny-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20250228
DTEND;VALUE=DATE:20250301
DTSTAMP:20260420T232720
CREATED:20250210T110913Z
LAST-MODIFIED:20250227T110305Z
UID:10000103-1740700800-1740787199@tofs.org.uk
SUMMARY:Rare Disease Day 2025
DESCRIPTION:Members and Associates are invited to join us for the Annual General Meeting of T.O.F.S. The T.O.F.S. Annual General Meeting will take place on the 7th May\, 2026 by Zoom at 7:00 pm. Invited to attend: Council of Management\, TOFS office staff\, all Members and Associates. 								\n				\n				\n				\n									\n					\n						\n						\n							\n									CLICK HERE TO REGISTER\n					\n					\n				\n								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									AGENDA1. Welcome and confirmation of quorum 2. Introduction 3. Apologies for absence 4. Approval of the minutes of the 2025 AGM held 24th of April 2025 5. Annual Directors’ Report  6. Presentation of Accounts and Treasurer’s Report (Y/E Dec 31st\, 2025)  7. Re-appointment of accountants 8. Election of Trustees retiring by rotation and offering themselves for re-election a. Clare Johnsb. Darrell Hill 9. Election of Trustee a. Kate Tyler 10. Any other business 11. Close of Meeting  To’neill BalaTrustee & Hon. Secretary   								\n				\n					\n		\n				\n			\n						\n				\n									Who can attend?Please note\, all Members and Associates are welcome\, although only those with a membership status of “Member” can vote. To check or amend your status\, please login to the “Update My Details” page in the Members’ Area of the TOFS website. Please also note that\, per the Companies Act 2016\, those with a membership status of Member are entitled to appoint a proxy to attend and vote on their behalf at this meeting\, (Please contact the TOFS office for further details should you intend to do this). If you have any questions about the AGM\, please contact us. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n				\n				\n					Using Zoom				\n				\n				\n				\n									In order to join this meeting\, you will need to pre-register and follow the unique link you will receive in your email. Please don’t share the link with another user as this could block access for you. Instead\, ask them to register for their own link. \nFor the best experience\, we recommend downloading Zoom to your computer or mobile device before joining the meeting [click for more info]. \nIt is also possible to access the meeting using your web browser (e.g. Chrome\, Safari\, Edge) without downloading any plugins or software [click for info].
URL:https://tofs.org.uk/event/rare-disease-day-2025/
LOCATION:Various locations
ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2022/12/rare-disease-day.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20250224
DTEND;VALUE=DATE:20250303
DTSTAMP:20260420T232720
CREATED:20250117T102455Z
LAST-MODIFIED:20250224T093510Z
UID:10000102-1740355200-1740959999@tofs.org.uk
SUMMARY:OA/TOF Awareness Week 2025
DESCRIPTION:Members and Associates are invited to join us for the Annual General Meeting of T.O.F.S. The T.O.F.S. Annual General Meeting will take place on the 7th May\, 2026 by Zoom at 7:00 pm. Invited to attend: Council of Management\, TOFS office staff\, all Members and Associates. 								\n				\n				\n				\n									\n					\n						\n						\n							\n									CLICK HERE TO REGISTER\n					\n					\n				\n								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									AGENDA1. Welcome and confirmation of quorum 2. Introduction 3. Apologies for absence 4. Approval of the minutes of the 2025 AGM held 24th of April 2025 5. Annual Directors’ Report  6. Presentation of Accounts and Treasurer’s Report (Y/E Dec 31st\, 2025)  7. Re-appointment of accountants 8. Election of Trustees retiring by rotation and offering themselves for re-election a. Clare Johnsb. Darrell Hill 9. Election of Trustee a. Kate Tyler 10. Any other business 11. Close of Meeting  To’neill BalaTrustee & Hon. Secretary   								\n				\n					\n		\n				\n			\n						\n				\n									Who can attend?Please note\, all Members and Associates are welcome\, although only those with a membership status of “Member” can vote. To check or amend your status\, please login to the “Update My Details” page in the Members’ Area of the TOFS website. Please also note that\, per the Companies Act 2016\, those with a membership status of Member are entitled to appoint a proxy to attend and vote on their behalf at this meeting\, (Please contact the TOFS office for further details should you intend to do this). If you have any questions about the AGM\, please contact us. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n				\n				\n					Using Zoom				\n				\n				\n				\n									In order to join this meeting\, you will need to pre-register and follow the unique link you will receive in your email. Please don’t share the link with another user as this could block access for you. Instead\, ask them to register for their own link. \nFor the best experience\, we recommend downloading Zoom to your computer or mobile device before joining the meeting [click for more info]. \nIt is also possible to access the meeting using your web browser (e.g. Chrome\, Safari\, Edge) without downloading any plugins or software [click for info].
URL:https://tofs.org.uk/event/tofs-awareness-week-2025/
LOCATION:Various locations
ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2025/01/Awareness-Week-2025-get-ready-1.png
END:VEVENT
END:VCALENDAR