BEGIN:VCALENDAR VERSION:2.0 PRODID:-//TOFS | OA/TOF Support - ECPv6.15.17.1//NONSGML v1.0//EN CALSCALE:GREGORIAN METHOD:PUBLISH X-WR-CALNAME:TOFS | OA/TOF Support X-ORIGINAL-URL:https://tofs.org.uk X-WR-CALDESC:Events for TOFS | OA/TOF Support REFRESH-INTERVAL;VALUE=DURATION:PT1H X-Robots-Tag:noindex X-PUBLISHED-TTL:PT1H BEGIN:VTIMEZONE TZID:Europe/London BEGIN:DAYLIGHT TZOFFSETFROM:+0000 TZOFFSETTO:+0100 TZNAME:BST DTSTART:20240331T010000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:+0100 TZOFFSETTO:+0000 TZNAME:GMT DTSTART:20241027T010000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:+0000 TZOFFSETTO:+0100 TZNAME:BST DTSTART:20250330T010000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:+0100 TZOFFSETTO:+0000 TZNAME:GMT DTSTART:20251026T010000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:+0000 TZOFFSETTO:+0100 TZNAME:BST DTSTART:20260329T010000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:+0100 TZOFFSETTO:+0000 TZNAME:GMT DTSTART:20261025T010000 END:STANDARD BEGIN:DAYLIGHT TZOFFSETFROM:+0000 TZOFFSETTO:+0100 TZNAME:BST DTSTART:20270328T010000 END:DAYLIGHT BEGIN:STANDARD TZOFFSETFROM:+0100 TZOFFSETTO:+0000 TZNAME:GMT DTSTART:20271031T010000 END:STANDARD END:VTIMEZONE BEGIN:VEVENT DTSTART;TZID=Europe/London:20260131T090000 DTEND;TZID=Europe/London:20260131T110000 DTSTAMP:20260511T154317 CREATED:20251204T110010Z LAST-MODIFIED:20251204T110748Z UID:10000157-1769850000-1769857200@tofs.org.uk SUMMARY:Local Meet-up: Bristol DESCRIPTION:28 February is Rare Disease DayRaising awareness and generating change for the 300 million people worldwide living with a rare disease\, their families and carers. \n \n \n \n \n \n \n \n \n \n \n \n How to get involved \n \n \n \n Light up for Rare \n \n \n \n At 7pm on the 28th Feb\, show your colours and join the global chain of lights! Play this video at full screen at home to light up your neighbourhood. URL:https://tofs.org.uk/event/local-meet-up-bristol/ LOCATION:Ronald McDonald House Bristol\, Royal Fort Rd\, Bristol\, BS2 8DH\, United Kingdom CATEGORIES:Parents & Carers ATTACH;FMTTYPE=image/jpeg:https://tofs.org.uk/wp-content/uploads/2024/04/local-meet-up.jpg END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20260124 DTEND;VALUE=DATE:20260126 DTSTAMP:20260511T154317 CREATED:20251010T132946Z LAST-MODIFIED:20260511T105653Z UID:10000133-1769212800-1769385599@tofs.org.uk SUMMARY:London Winter Walk DESCRIPTION:28 February is Rare Disease DayRaising awareness and generating change for the 300 million people worldwide living with a rare disease\, their families and carers. \n \n \n \n \n \n \n \n \n \n \n \n How to get involved \n \n \n \n Light up for Rare \n \n \n \n At 7pm on the 28th Feb\, show your colours and join the global chain of lights! Play this video at full screen at home to light up your neighbourhood. URL:https://tofs.org.uk/event/london-winter-walk/ LOCATION:London\, London\, United Kingdom CATEGORIES:Fundraising ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2025/10/Winter-Walk.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20260120T110000 DTEND;TZID=Europe/London:20260120T120000 DTSTAMP:20260511T154317 CREATED:20251113T162555Z LAST-MODIFIED:20260115T161843Z UID:10000148-1768906800-1768910400@tofs.org.uk SUMMARY:Parent & Carer virtual meet-up DESCRIPTION:28 February is Rare Disease DayRaising awareness and generating change for the 300 million people worldwide living with a rare disease\, their families and carers. \n \n \n \n \n \n \n \n \n \n \n \n How to get involved \n \n \n \n Light up for Rare \n \n \n \n At 7pm on the 28th Feb\, show your colours and join the global chain of lights! Play this video at full screen at home to light up your neighbourhood. URL:https://tofs.org.uk/event/parent-carer-virtual-meet-up-3/ LOCATION:Online CATEGORIES:Parents & Carers ATTACH;FMTTYPE=image/jpeg:https://tofs.org.uk/wp-content/uploads/2025/11/01-22-26-Parent-Cuppa-and-chat-1.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20260108T200000 DTEND;TZID=Europe/London:20260108T210000 DTSTAMP:20260511T154317 CREATED:20251113T172157Z LAST-MODIFIED:20251210T131023Z UID:10000150-1767902400-1767906000@tofs.org.uk SUMMARY:Virtual meet-up for adults born with OA/TOF DESCRIPTION:28 February is Rare Disease DayRaising awareness and generating change for the 300 million people worldwide living with a rare disease\, their families and carers. \n \n \n \n \n \n \n \n \n \n \n \n How to get involved \n \n \n \n Light up for Rare \n \n \n \n At 7pm on the 28th Feb\, show your colours and join the global chain of lights! Play this video at full screen at home to light up your neighbourhood. URL:https://tofs.org.uk/event/virtual-meet-up-for-adults-born-with-oa-tof-18/ LOCATION:Online CATEGORIES:Adult TOF ATTACH;FMTTYPE=image/jpeg:https://tofs.org.uk/wp-content/uploads/2025/11/08-01-26-Adult-cuppa-and-chat.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20251211T200000 DTEND;TZID=Europe/London:20251211T210000 DTSTAMP:20260511T154317 CREATED:20251113T171628Z LAST-MODIFIED:20251210T131131Z UID:10000149-1765483200-1765486800@tofs.org.uk SUMMARY:Virtual meet-up for adults born with OA/TOF [New Date] DESCRIPTION:28 February is Rare Disease DayRaising awareness and generating change for the 300 million people worldwide living with a rare disease\, their families and carers. \n \n \n \n \n \n \n \n \n \n \n \n How to get involved \n \n \n \n Light up for Rare \n \n \n \n At 7pm on the 28th Feb\, show your colours and join the global chain of lights! Play this video at full screen at home to light up your neighbourhood. URL:https://tofs.org.uk/event/virtual-meet-up-for-adults-born-with-oa-tof-17/ LOCATION:Online CATEGORIES:Adult TOF ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2025/11/dec-11-25.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20251122T140000 DTEND;TZID=Europe/London:20251122T160000 DTSTAMP:20260511T154317 CREATED:20251014T075354Z LAST-MODIFIED:20251014T082107Z UID:10000137-1763820000-1763827200@tofs.org.uk SUMMARY:Local Meet-up: Merseyside/Wirral DESCRIPTION:28 February is Rare Disease DayRaising awareness and generating change for the 300 million people worldwide living with a rare disease\, their families and carers. \n \n \n \n \n \n \n \n \n \n \n \n How to get involved \n \n \n \n Light up for Rare \n \n \n \n At 7pm on the 28th Feb\, show your colours and join the global chain of lights! Play this video at full screen at home to light up your neighbourhood. URL:https://tofs.org.uk/event/local-meet-up-merseyside-2/ LOCATION:Moreton Presbyterian Church\, 174a Hoylake Road\, Moreton\, Wirral\, CH46 8TQ\, United Kingdom CATEGORIES:Parents & Carers ATTACH;FMTTYPE=image/jpeg:https://tofs.org.uk/wp-content/uploads/2024/04/local-meet-up.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20251122T100000 DTEND;TZID=Europe/London:20251122T123000 DTSTAMP:20260511T154317 CREATED:20251106T094317Z LAST-MODIFIED:20251106T101307Z UID:10000145-1763805600-1763814600@tofs.org.uk SUMMARY:Local Meet-up: Birmingham DESCRIPTION:28 February is Rare Disease DayRaising awareness and generating change for the 300 million people worldwide living with a rare disease\, their families and carers. \n \n \n \n \n \n \n \n \n \n \n \n How to get involved \n \n \n \n Light up for Rare \n \n \n \n At 7pm on the 28th Feb\, show your colours and join the global chain of lights! Play this video at full screen at home to light up your neighbourhood. URL:https://tofs.org.uk/event/local-meet-up-birmingham-2/ LOCATION:Ronald McDonald House Birmingham\, St Mary’s Row\, Birmingham\, B4 6NY\, United Kingdom CATEGORIES:Parents & Carers ATTACH;FMTTYPE=image/jpeg:https://tofs.org.uk/wp-content/uploads/2024/04/local-meet-up.jpg END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20251115 DTEND;VALUE=DATE:20251117 DTSTAMP:20260511T154317 CREATED:20250411T150643Z LAST-MODIFIED:20251031T105059Z UID:10000113-1763164800-1763337599@tofs.org.uk SUMMARY:Run Alton Towers 5k/10k/Half Marathon DESCRIPTION:28 February is Rare Disease DayRaising awareness and generating change for the 300 million people worldwide living with a rare disease\, their families and carers. \n \n \n \n \n \n \n \n \n \n \n \n How to get involved \n \n \n \n Light up for Rare \n \n \n \n At 7pm on the 28th Feb\, show your colours and join the global chain of lights! Play this video at full screen at home to light up your neighbourhood. URL:https://tofs.org.uk/event/run-alton-towers-5k/ LOCATION:Alton Towers\, Farley Lane\, Alton\, Staffordshire\, ST10 4DB\, United Kingdom CATEGORIES:Fundraising ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2025/04/challenge-event-logos.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20251112T110000 DTEND;TZID=Europe/London:20251112T120000 DTSTAMP:20260511T154317 CREATED:20251003T112504Z LAST-MODIFIED:20251015T114914Z UID:10000132-1762945200-1762948800@tofs.org.uk SUMMARY:Parent & Carer virtual meet-up DESCRIPTION:28 February is Rare Disease DayRaising awareness and generating change for the 300 million people worldwide living with a rare disease\, their families and carers. \n \n \n \n \n \n \n \n \n \n \n \n How to get involved \n \n \n \n Light up for Rare \n \n \n \n At 7pm on the 28th Feb\, show your colours and join the global chain of lights! Play this video at full screen at home to light up your neighbourhood. URL:https://tofs.org.uk/event/parent-carer-virtual-meet-up-2/ LOCATION:Online CATEGORIES:Parents & Carers ATTACH;FMTTYPE=image/jpeg:https://tofs.org.uk/wp-content/uploads/2025/10/11-25-Parent-Cuppa-and-chat.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20251106T200000 DTEND;TZID=Europe/London:20251106T210000 DTSTAMP:20260511T154317 CREATED:20250812T102630Z LAST-MODIFIED:20250812T102641Z UID:10000126-1762459200-1762462800@tofs.org.uk SUMMARY:Virtual meet-up for adults born with OA/TOF DESCRIPTION:28 February is Rare Disease DayRaising awareness and generating change for the 300 million people worldwide living with a rare disease\, their families and carers. \n \n \n \n \n \n \n \n \n \n \n \n How to get involved \n \n \n \n Light up for Rare \n \n \n \n At 7pm on the 28th Feb\, show your colours and join the global chain of lights! Play this video at full screen at home to light up your neighbourhood. URL:https://tofs.org.uk/event/virtual-meet-up-for-adults-born-with-oa-tof-5/ LOCATION:Online CATEGORIES:Adult TOF ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2025/08/cuppa-and-chat-11-Nov25.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20251029T160000 DTEND;TZID=Europe/London:20251029T170000 DTSTAMP:20260511T154317 CREATED:20251001T150809Z LAST-MODIFIED:20251023T140247Z UID:10000131-1761753600-1761757200@tofs.org.uk SUMMARY:ERS: Panel discussion on lifelong respiratory care in OA/TOF & CDH DESCRIPTION:28 February is Rare Disease DayRaising awareness and generating change for the 300 million people worldwide living with a rare disease\, their families and carers. \n \n \n \n \n \n \n \n \n \n \n \n How to get involved \n \n \n \n Light up for Rare \n \n \n \n At 7pm on the 28th Feb\, show your colours and join the global chain of lights! Play this video at full screen at home to light up your neighbourhood. URL:https://tofs.org.uk/event/ers-panel-discussion-on-lifelong-respiratory-care-in-oa-tof-cdh/ LOCATION:Online CATEGORIES:Professional ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2025/10/ERS-European-Respiratory-Society-logo.png END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20251025 DTEND;VALUE=DATE:20251103 DTSTAMP:20260511T154317 CREATED:20250411T145009Z LAST-MODIFIED:20251031T104618Z UID:10000112-1761350400-1762127999@tofs.org.uk SUMMARY:Big Splash Swimathon 2025 DESCRIPTION:28 February is Rare Disease DayRaising awareness and generating change for the 300 million people worldwide living with a rare disease\, their families and carers. \n \n \n \n \n \n \n \n \n \n \n \n How to get involved \n \n \n \n Light up for Rare \n \n \n \n At 7pm on the 28th Feb\, show your colours and join the global chain of lights! Play this video at full screen at home to light up your neighbourhood. URL:https://tofs.org.uk/event/big-splash-swimathon-2025/ LOCATION:Various locations CATEGORIES:Fundraising ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2025/04/big-splash-icon.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20251014T200000 DTEND;TZID=Europe/London:20251014T210000 DTSTAMP:20260511T154317 CREATED:20250926T131855Z LAST-MODIFIED:20251001T112157Z UID:10000130-1760472000-1760475600@tofs.org.uk SUMMARY:Parent & Carer virtual meet-up DESCRIPTION:28 February is Rare Disease DayRaising awareness and generating change for the 300 million people worldwide living with a rare disease\, their families and carers. \n \n \n \n \n \n \n \n \n \n \n \n How to get involved \n \n \n \n Light up for Rare \n \n \n \n At 7pm on the 28th Feb\, show your colours and join the global chain of lights! Play this video at full screen at home to light up your neighbourhood. URL:https://tofs.org.uk/event/parent-carer-virtual-meet-up/ LOCATION:Online CATEGORIES:Parents & Carers ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2025/09/Parent-Cuppa-and-chat-14OCT25.png END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20251012 DTEND;VALUE=DATE:20251013 DTSTAMP:20260511T154317 CREATED:20250918T113605Z LAST-MODIFIED:20250918T115239Z UID:10000129-1760227200-1760313599@tofs.org.uk SUMMARY:Myles Clabby Memorial Cup DESCRIPTION:28 February is Rare Disease DayRaising awareness and generating change for the 300 million people worldwide living with a rare disease\, their families and carers. \n \n \n \n \n \n \n \n \n \n \n \n How to get involved \n \n \n \n Light up for Rare \n \n \n \n At 7pm on the 28th Feb\, show your colours and join the global chain of lights! Play this video at full screen at home to light up your neighbourhood. URL:https://tofs.org.uk/event/myles-clabby-memorial-cup/ LOCATION:St. Roch’s F.C\, 713 Royston Rd\, Glasgow\, G21 2DT\, United Kingdom CATEGORIES:Fundraising ATTACH;FMTTYPE=image/jpeg:https://tofs.org.uk/wp-content/uploads/2025/09/myles-clabby-memorial-cup-2025.jpg END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20251012 DTEND;VALUE=DATE:20251013 DTSTAMP:20260511T154317 CREATED:20241220T102338Z LAST-MODIFIED:20250820T111602Z UID:10000101-1760227200-1760313599@tofs.org.uk SUMMARY:Royal Parks Half Marathon DESCRIPTION:28 February is Rare Disease DayRaising awareness and generating change for the 300 million people worldwide living with a rare disease\, their families and carers. \n \n \n \n \n \n \n \n \n \n \n \n How to get involved \n \n \n \n Light up for Rare \n \n \n \n At 7pm on the 28th Feb\, show your colours and join the global chain of lights! Play this video at full screen at home to light up your neighbourhood. URL:https://tofs.org.uk/event/royal-parks-half-marathon/ LOCATION:Hyde Park\, London\, W2 5DS\, United Kingdom CATEGORIES:Fundraising ATTACH;FMTTYPE=image/jpeg:https://tofs.org.uk/wp-content/uploads/2024/04/royal-parks-half.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20251008T190000 DTEND;TZID=Europe/London:20251008T200000 DTSTAMP:20260511T154317 CREATED:20250514T143508Z LAST-MODIFIED:20250926T131336Z UID:10000117-1759950000-1759953600@tofs.org.uk SUMMARY:Live Q&A: OA/TOF related respiratory issues for adults DESCRIPTION:28 February is Rare Disease DayRaising awareness and generating change for the 300 million people worldwide living with a rare disease\, their families and carers. \n \n \n \n \n \n \n \n \n \n \n \n How to get involved \n \n \n \n Light up for Rare \n \n \n \n At 7pm on the 28th Feb\, show your colours and join the global chain of lights! Play this video at full screen at home to light up your neighbourhood. URL:https://tofs.org.uk/event/live-qa-oa-tof-related-respiratory-issues-for-adults/ LOCATION:Online CATEGORIES:Adult TOF ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2025/05/Oct25-NEW.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20251002T200000 DTEND;TZID=Europe/London:20251002T210000 DTSTAMP:20260511T154317 CREATED:20250812T094622Z LAST-MODIFIED:20250812T095638Z UID:10000125-1759435200-1759438800@tofs.org.uk SUMMARY:Virtual meet-up for adults born with OA/TOF DESCRIPTION:28 February is Rare Disease DayRaising awareness and generating change for the 300 million people worldwide living with a rare disease\, their families and carers. \n \n \n \n \n \n \n \n \n \n \n \n How to get involved \n \n \n \n Light up for Rare \n \n \n \n At 7pm on the 28th Feb\, show your colours and join the global chain of lights! Play this video at full screen at home to light up your neighbourhood. URL:https://tofs.org.uk/event/virtual-meet-up-for-adults-born-with-oa-tof-4/ LOCATION:Online CATEGORIES:Adult TOF ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2025/08/cuppa-and-chat-10-Oct25.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20250909T200000 DTEND;TZID=Europe/London:20250909T210000 DTSTAMP:20260511T154317 CREATED:20250429T101411Z LAST-MODIFIED:20250812T153348Z UID:10000115-1757448000-1757451600@tofs.org.uk SUMMARY:OA/TOF: A father's perspective DESCRIPTION:28 February is Rare Disease DayRaising awareness and generating change for the 300 million people worldwide living with a rare disease\, their families and carers. \n \n \n \n \n \n \n \n \n \n \n \n How to get involved \n \n \n \n Light up for Rare \n \n \n \n At 7pm on the 28th Feb\, show your colours and join the global chain of lights! Play this video at full screen at home to light up your neighbourhood. URL:https://tofs.org.uk/event/tofs-dads-meet-up/ LOCATION:Online CATEGORIES:Parents & Carers ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2025/04/TLC-events-Sep-2025.png END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20250907 DTEND;VALUE=DATE:20250908 DTSTAMP:20260511T154317 CREATED:20240906T144810Z LAST-MODIFIED:20250904T101123Z UID:10000083-1757203200-1757289599@tofs.org.uk SUMMARY:Great North Run 2025 DESCRIPTION:28 February is Rare Disease DayRaising awareness and generating change for the 300 million people worldwide living with a rare disease\, their families and carers. \n \n \n \n \n \n \n \n \n \n \n \n How to get involved \n \n \n \n Light up for Rare \n \n \n \n At 7pm on the 28th Feb\, show your colours and join the global chain of lights! Play this video at full screen at home to light up your neighbourhood. URL:https://tofs.org.uk/event/great-north-run-2025/ LOCATION:Newcastle\, United Kingdom CATEGORIES:Fundraising ATTACH;FMTTYPE=image/jpeg:https://tofs.org.uk/wp-content/uploads/2023/09/WhatsApp-Image-2022-09-11-at-20.37.51-4-e1694096386805.jpeg END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20250904T200000 DTEND;TZID=Europe/London:20250904T210000 DTSTAMP:20260511T154317 CREATED:20250812T085858Z LAST-MODIFIED:20250812T091402Z UID:10000124-1757016000-1757019600@tofs.org.uk SUMMARY:Virtual meet-up for adults born with OA/TOF DESCRIPTION:28 February is Rare Disease DayRaising awareness and generating change for the 300 million people worldwide living with a rare disease\, their families and carers. \n \n \n \n \n \n \n \n \n \n \n \n How to get involved \n \n \n \n Light up for Rare \n \n \n \n At 7pm on the 28th Feb\, show your colours and join the global chain of lights! Play this video at full screen at home to light up your neighbourhood. URL:https://tofs.org.uk/event/virtual-meet-up-for-adults-born-with-oa-tof-3/ LOCATION:Online CATEGORIES:Adult TOF ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2025/08/cuppa-and-chat-9-Sep25.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20250830T103000 DTEND;TZID=Europe/London:20250830T123000 DTSTAMP:20260511T154317 CREATED:20250813T114404Z LAST-MODIFIED:20250813T133955Z UID:10000127-1756549800-1756557000@tofs.org.uk SUMMARY:Local Meet-up: Birmingham DESCRIPTION:28 February is Rare Disease DayRaising awareness and generating change for the 300 million people worldwide living with a rare disease\, their families and carers. \n \n \n \n \n \n \n \n \n \n \n \n How to get involved \n \n \n \n Light up for Rare \n \n \n \n At 7pm on the 28th Feb\, show your colours and join the global chain of lights! Play this video at full screen at home to light up your neighbourhood. URL:https://tofs.org.uk/event/local-meet-up-birmingham/ LOCATION:Ronald McDonald House Birmingham\, St Mary’s Row\, Birmingham\, B4 6NY\, United Kingdom CATEGORIES:Parents & Carers ATTACH;FMTTYPE=image/jpeg:https://tofs.org.uk/wp-content/uploads/2024/04/local-meet-up.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20250807T200000 DTEND;TZID=Europe/London:20250807T210000 DTSTAMP:20260511T154317 CREATED:20250711T140446Z LAST-MODIFIED:20250714T105943Z UID:10000123-1754596800-1754600400@tofs.org.uk SUMMARY:Virtual meet-up for adults born with OA/TOF DESCRIPTION:28 February is Rare Disease DayRaising awareness and generating change for the 300 million people worldwide living with a rare disease\, their families and carers. \n \n \n \n \n \n \n \n \n \n \n \n How to get involved \n \n \n \n Light up for Rare \n \n \n \n At 7pm on the 28th Feb\, show your colours and join the global chain of lights! Play this video at full screen at home to light up your neighbourhood. URL:https://tofs.org.uk/event/virtual-meet-up-for-adults-born-with-oa-tof-2/ LOCATION:Online ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2025/07/cuppa-and-chat-august25.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20250713T140000 DTEND;TZID=Europe/London:20250713T160000 DTSTAMP:20260511T154317 CREATED:20250623T135846Z LAST-MODIFIED:20250623T135927Z UID:10000120-1752415200-1752422400@tofs.org.uk SUMMARY:Local Meet-up: Cardiff DESCRIPTION:28 February is Rare Disease DayRaising awareness and generating change for the 300 million people worldwide living with a rare disease\, their families and carers. \n \n \n \n \n \n \n \n \n \n \n \n How to get involved \n \n \n \n Light up for Rare \n \n \n \n At 7pm on the 28th Feb\, show your colours and join the global chain of lights! Play this video at full screen at home to light up your neighbourhood. URL:https://tofs.org.uk/event/local-meet-up-cardiff/ LOCATION:Ronald McDonald House Cardiff\, Heath Park Way\, Cardiff\, CF14 4AY\, United Kingdom ATTACH;FMTTYPE=image/jpeg:https://tofs.org.uk/wp-content/uploads/2024/04/local-meet-up.jpg END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20250703T200000 DTEND;TZID=Europe/London:20250703T210000 DTSTAMP:20260511T154317 CREATED:20250403T104335Z LAST-MODIFIED:20250414T103644Z UID:10000109-1751572800-1751576400@tofs.org.uk SUMMARY:Virtual meet-up for adults born with OA/TOF DESCRIPTION:28 February is Rare Disease DayRaising awareness and generating change for the 300 million people worldwide living with a rare disease\, their families and carers. \n \n \n \n \n \n \n \n \n \n \n \n How to get involved \n \n \n \n Light up for Rare \n \n \n \n At 7pm on the 28th Feb\, show your colours and join the global chain of lights! Play this video at full screen at home to light up your neighbourhood. URL:https://tofs.org.uk/event/virtual-meet-up-for-adults-born-with-oa-tof-16/ LOCATION:Online CATEGORIES:Adult TOF ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2025/04/july.png END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20250628 DTEND;VALUE=DATE:20250629 DTSTAMP:20260511T154317 CREATED:20250529T090523Z LAST-MODIFIED:20250529T091045Z UID:10000119-1751068800-1751155199@tofs.org.uk SUMMARY:VACTERL Association Support Group Get-Together 2025 DESCRIPTION:28 February is Rare Disease DayRaising awareness and generating change for the 300 million people worldwide living with a rare disease\, their families and carers. \n \n \n \n \n \n \n \n \n \n \n \n How to get involved \n \n \n \n Light up for Rare \n \n \n \n At 7pm on the 28th Feb\, show your colours and join the global chain of lights! Play this video at full screen at home to light up your neighbourhood. URL:https://tofs.org.uk/event/vacterl-association-support-group-get-together-2025/ LOCATION:The Great Barr Hotel\, Newton Road Great Barr\, Birmingham\, B43 6HS CATEGORIES:Adult TOF,Parents & Carers ATTACH;FMTTYPE=image/jpeg:https://tofs.org.uk/wp-content/uploads/2025/05/vacterl_logo_medium.jpg END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20250628 DTEND;VALUE=DATE:20250629 DTSTAMP:20260511T154317 CREATED:20250410T094626Z LAST-MODIFIED:20250626T145624Z UID:10000110-1751068800-1751155199@tofs.org.uk SUMMARY:Peak District Ultra Challenge DESCRIPTION:28 February is Rare Disease DayRaising awareness and generating change for the 300 million people worldwide living with a rare disease\, their families and carers. \n \n \n \n \n \n \n \n \n \n \n \n How to get involved \n \n \n \n Light up for Rare \n \n \n \n At 7pm on the 28th Feb\, show your colours and join the global chain of lights! Play this video at full screen at home to light up your neighbourhood. URL:https://tofs.org.uk/event/peak-district-ultra-challenge/ LOCATION:Bakewell\, Bakewell Showground\, DE45 1AH\, United Kingdom CATEGORIES:Fundraising ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2025/04/peak-district.png END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20250621 DTEND;VALUE=DATE:20250701 DTSTAMP:20260511T154317 CREATED:20250411T105341Z LAST-MODIFIED:20260501T172637Z UID:10000111-1750464000-1751327999@tofs.org.uk SUMMARY:Teddy Toddle 2025 DESCRIPTION:28 February is Rare Disease DayRaising awareness and generating change for the 300 million people worldwide living with a rare disease\, their families and carers. \n \n \n \n \n \n \n \n \n \n \n \n How to get involved \n \n \n \n Light up for Rare \n \n \n \n At 7pm on the 28th Feb\, show your colours and join the global chain of lights! Play this video at full screen at home to light up your neighbourhood. URL:https://tofs.org.uk/event/teddy-toddle-2025/ LOCATION:Various locations CATEGORIES:Fundraising ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2025/04/teddy-toddle-icon.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20250605T200000 DTEND;TZID=Europe/London:20250605T210000 DTSTAMP:20260511T154317 CREATED:20250403T104119Z LAST-MODIFIED:20250414T103542Z UID:10000108-1749153600-1749157200@tofs.org.uk SUMMARY:Virtual meet-up for adults born with OA/TOF DESCRIPTION:28 February is Rare Disease DayRaising awareness and generating change for the 300 million people worldwide living with a rare disease\, their families and carers. \n \n \n \n \n \n \n \n \n \n \n \n How to get involved \n \n \n \n Light up for Rare \n \n \n \n At 7pm on the 28th Feb\, show your colours and join the global chain of lights! Play this video at full screen at home to light up your neighbourhood. URL:https://tofs.org.uk/event/virtual-meet-up-for-adults-born-with-oa-tof-15/ LOCATION:Online CATEGORIES:Adult TOF ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2025/04/June.png END:VEVENT BEGIN:VEVENT DTSTART;TZID=Europe/London:20250501T200000 DTEND;TZID=Europe/London:20250501T210000 DTSTAMP:20260511T154317 CREATED:20250402T112938Z LAST-MODIFIED:20250402T112938Z UID:10000107-1746129600-1746133200@tofs.org.uk SUMMARY:Virtual meet-up for adults born with OA/TOF DESCRIPTION:28 February is Rare Disease DayRaising awareness and generating change for the 300 million people worldwide living with a rare disease\, their families and carers. \n \n \n \n \n \n \n \n \n \n \n \n How to get involved \n \n \n \n Light up for Rare \n \n \n \n At 7pm on the 28th Feb\, show your colours and join the global chain of lights! Play this video at full screen at home to light up your neighbourhood. URL:https://tofs.org.uk/event/virtual-meet-up-for-adults-born-with-oa-tof-14/ LOCATION:Online CATEGORIES:Adult TOF ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2025/04/may25.png END:VEVENT BEGIN:VEVENT DTSTART;VALUE=DATE:20250430 DTEND;VALUE=DATE:20250504 DTSTAMP:20260511T154317 CREATED:20240212T151545Z LAST-MODIFIED:20240708T153710Z UID:10000057-1745971200-1746316799@tofs.org.uk SUMMARY:InoEA 25 DESCRIPTION:28 February is Rare Disease DayRaising awareness and generating change for the 300 million people worldwide living with a rare disease\, their families and carers. \n \n \n \n \n \n \n \n \n \n \n \n How to get involved \n \n \n \n Light up for Rare \n \n \n \n At 7pm on the 28th Feb\, show your colours and join the global chain of lights! Play this video at full screen at home to light up your neighbourhood. URL:https://tofs.org.uk/event/inoea-25/ LOCATION:Renaissance Polat İstanbul Hotel\, Sahilyolu Cad.No:2 Yesilyurt\, Istanbul\, 34149\, Turkey ATTACH;FMTTYPE=image/jpeg:https://tofs.org.uk/wp-content/uploads/2024/02/inoea25.jpg END:VEVENT END:VCALENDAR