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UID:10000124-1757016000-1757019600@tofs.org.uk
SUMMARY:Virtual meet-up for adults born with OA/TOF
DESCRIPTION:TOFS 2026 Seminar Important Update:We’ve been made aware that there is a part closure on the Piccadilly Line on Saturday. Depending on which direction you’re coming from\, please walk from Holborn Station (we believe the central line is open) or get off the train at Kings Cross/St Pancras and walk from there. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									The TOFS seminar is being held at the Institute of Child Health (ICH)\, London on Saturday\, 21st March\, 2026. Why attendJoin us for our in-person OA/TOF Seminar in London to hear from some of the UK’s leading specialists on the work being done to improve the care of today’s OA/TOF children and to address the long-term issues affecting adults born with the condition. This is a great opportunity to meet\, make connections and share experiences with other families and adults born with OA/TOF and associated conditions. Who should attend?This seminar is aimed at adults born with OA/TOF\, parents and carers of children born with OA/TOF and medical professionals. Note: Registration on the day opens at 9.30am with presentations beginning at 10.30am. 								\n				\n				\n				\n									\n					\n						\n						\n							\n									CLICK HERE FOR TICKETS\n					\n					\n				\n								\n				\n					\n		\n				\n			\n						\n				\n									Event co-sponsored by  								\n				\n				\n				\n																														\n				\n				\n				\n																\n															\n															\n				\n				\n				\n									NIHR Great Ormond Street Hospital Biomedical Research Centre 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n				\n				\n					Presentations				\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Eating\, drinking & swallowing difficulties children born with OA/TOF								\n				\n				\n				\n									Presented by Dr Alex Stewart – Speech and Language Therapist (GOSH) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Experience of parents of children born with oesophageal atresia								\n				\n				\n				\n									Presented by Dr Vuokko Wallace – Clinical Psychologist\, University of Bath 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Gastro issues and Eosinophilic Oesophagitis (EoE) in OA/TOF patients								\n				\n				\n				\n									Presented by Dr Osvaldo Borrelli – Head of Clinical Service\, Consultant Paediatric Gastroenterologist (GOSH) and Honorary Senior Lecturer (UCL) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Role of TOF Multi Disciplinary Team (MDT) pathway in improving care in oesophageal atresia								\n				\n				\n				\n									Presented by Ms Dhanya Mullassery – Consultant Neonatal and Paediatric Surgeon (GOSH) and Honorary Senior Lecturer (UCL) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Respiratory updates from the INoEA (International Network of Esophageal Atresia) conference and ERS (European Respiratory Society) congress								\n				\n				\n				\n									Presented by Dr Caroline Love\, Chair of TOFS Medical Liaison & Research Subcommittee and Patient Advisory Committee member of the European Lung Foundation (ELF) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									Click here to see the full schedule 								\n				\n				\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									Any Questions?When is the seminar?The seminar is on March 21st\, 2026. Registration on the day opens at 9.30am with presentations beginning at 10.30am. The seminar will close at 4.30pm. How much are tickets?Tickets are free to TOFS’ Members\, Associates and Health Professionals. If you wish to join TOFS\, please sign up at – tofs.org.uk/join-tofs/ Is this a TOFS party?No\, this is an information seminar. Can I watch the seminar online?This is an in-person event only and will not be live streamed. We encourage members to attend in person to get the full benefits of the event\, listening to the speakers; interacting with the Q&A and discussion sessions; meeting TOFS volunteers and staff and chatting with other members of TOFS who will be attending. Some of the presentations may be recorded and posted online\, at a later date. Can I bring my child/children?Yes\, but you might prefer not to. Children below secondary school age are not permitted into the lecture room while presentations are being made. A separate room will be available on the day for families\, and the presentations will be relayed to a screen in that room. All children must be cared for by a responsible adult at all times. The excellent Coram’s Fields Children’s play park is just over the road from the venue. Will there be lunch?Yes\, a light lunch will be provided\, and seating will be available. Will I get a chance to speak to other families / people affected by OA/TOF?Yes\, we will have both lunch and refreshment breaks to allow you chance to chat with other attendees. Is there wheelchair access?We are very grateful to Great Ormond Street Hospital for providing our venue for the day. However\, this is an older building and while the venue is accessible to all\, the lecture theatre itself is accessible via stairs only. If you have any disability that may affect your access or participation in the event\, please let us know when ordering your tickets.Is there a cancellation deadline?Yes. If you can no longer attend\, please let us know via info@tofs.org.uk no later than 7 days before the seminar. This is to ensure that we only cater for the correct number of guests. Where is the seminar taking place?UCL Great Ormond Street Institute of Child Health\, WC1N 1EH If you have any further questions\, please contact us. 								\n				\n					\n		\n				\n			\n						\n				\n									\n					\n				\n											\n									\n\n			\n					\n								\n											\n									\n\n			\n					\n								\n											\n									\n\n			\n					\n								\n									\n															\n													\n						\n													\n																\n												\n				\n								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					How to get there				\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Where is the seminar?				\n				\n				\n				\n									The seminar is at the Institute of Child Health (ICH)\, which is a part of University College London – but situated on the GOSH site. The entrance to ICH is at 30 Guilford Street\, just north of Great Ormond Street itself. Postcode is WC1N 1 EH. 								\n				\n					\n		\n				\n			\n						\n				\n																\n															\n															\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									TOFS 2026 Seminar Important Update:We’ve been made aware that there is a part closure on the Piccadilly Line on Saturday. Depending on which direction you’re coming from\, please walk from Holborn Station (we believe the central line is open) or get off the train at Kings Cross/St Pancras and walk from there. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Public transport				\n				\n				\n				\n									The nearest tube station to ICH / GOSH is Russell Square on the Piccadilly Line. The next closest is Holborn\, on the Central and Piccadilly lines. Kings Cross and Euston stations are both only 0.8 miles away. Farringdon station (Elizabeth line and Metropolitan / Circle plus some overground commuter trains from Brighton\, Cambridge\, Huntingdon) is 0.9 miles. 								\n				\n				\n				\n					Travelling by car				\n				\n				\n				\n									Please note\, the venue is within both the London congestion charge zone and the  ULEZ (Ultra Low Emission) zone. There is some on-street metered parking around GOSH\, including in Guilford Street itself.  Much of this becomes free after 13:30 on a Saturday.  Moreover a significant amount of residents-only parking in this area becomes derestricted (i.e. free) on a Saturday afternoon. There are large underground public car parks close to GOSH at: Brunswick square (NCP) – postcode WC1N 1AF; the Imperial Hotel in Russell Square and underneath the Holiday Inn -Bloomsbury\, postcode WC1N 1HT. 								\n				\n					\n		\n				\n			\n						\n				\n					Outer London Tube stations with parking				\n				\n				\n				\n									Several tube stations near the end of the network in the North and West segments of outer London are close to the M25 and to some of the motorways into London. Unfortunately\, most of the stations listed below are within the ULEZ zone but  outside of the London congestion charge zone. Hillingdon (Metropolitan and Piccadilly lines). Has a car park which TfL says has 283 spaces. Postcode is UB10 9NR. This station is next to a junction on the A40 Western Avenue road\, only 5 miles from the M25 /M40 junction. Moreover\, the next station along the line (Ickenham) also has a large car park effectively providing an overflow car park. Stanmore (Jubilee line). Has a car park which TfL says has 450 spaces. Postcode is HA7 4PD. From the A41 Edgware way\, this is a direct drive along London Road. The A41 is accessed directly from M1 junction 4\, which is only 2 miles from the station. This is also close to the main A1 road. Cockfosters (Piccadilly line) Has a car park which TfL says has 232 spaces. Postcode is EN4 0DZ. It is a direct 3 mile drive down the A111 from the Potter’s Bar Junction (24) of the M25. Epping (Central line) Has a car park which Sabaparking says has 532 spaces. This station is outside the London ULEZ near to the junction of the M11 and M25. It is however not so convenient from the viewpoint of motorway junctions. Postcode is CM16 4HW.  Debden (Central line) Has a car park which Sabaparking says has 206 spaces. It is however only half a mile along the A 1168 from M11 junction 5 and also outside London ULEZ. Postcode is IG10 3TG. Upminster (District line) The car park here appears to be run by NCP\, which says there are 342 spaces. Postcode is RM14 2TD. It is only 3 miles from M25 junction 29\, via a route involving the A127 toward London. However it is inside the ULEZ. This might be a good option for those coming from East Anglia. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Nearby places to eat				\n				\n				\n				\n									Brunswick centre (https://maps.app.goo.gl/UwBNKmhUe9ciib1G9)  and opposite Russell Square station have a wide variety of places to eat\, including: Itsu\, Nandos\, LEON\, Pret\, Franco MancaLamb’s conduit street has a number of higher end restaurants.Redemptions roasters (Lamb’s conduit street) are great for coffee.
URL:https://tofs.org.uk/event/virtual-meet-up-for-adults-born-with-oa-tof-3/
LOCATION:Online
CATEGORIES:Adult TOF
ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2025/08/cuppa-and-chat-9-Sep25.png
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DTSTART;VALUE=DATE:20250907
DTEND;VALUE=DATE:20250908
DTSTAMP:20260423T111530
CREATED:20240906T144810Z
LAST-MODIFIED:20250904T101123Z
UID:10000083-1757203200-1757289599@tofs.org.uk
SUMMARY:Great North Run 2025
DESCRIPTION:TOFS 2026 Seminar Important Update:We’ve been made aware that there is a part closure on the Piccadilly Line on Saturday. Depending on which direction you’re coming from\, please walk from Holborn Station (we believe the central line is open) or get off the train at Kings Cross/St Pancras and walk from there. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									The TOFS seminar is being held at the Institute of Child Health (ICH)\, London on Saturday\, 21st March\, 2026. Why attendJoin us for our in-person OA/TOF Seminar in London to hear from some of the UK’s leading specialists on the work being done to improve the care of today’s OA/TOF children and to address the long-term issues affecting adults born with the condition. This is a great opportunity to meet\, make connections and share experiences with other families and adults born with OA/TOF and associated conditions. Who should attend?This seminar is aimed at adults born with OA/TOF\, parents and carers of children born with OA/TOF and medical professionals. Note: Registration on the day opens at 9.30am with presentations beginning at 10.30am. 								\n				\n				\n				\n									\n					\n						\n						\n							\n									CLICK HERE FOR TICKETS\n					\n					\n				\n								\n				\n					\n		\n				\n			\n						\n				\n									Event co-sponsored by  								\n				\n				\n				\n																														\n				\n				\n				\n																\n															\n															\n				\n				\n				\n									NIHR Great Ormond Street Hospital Biomedical Research Centre 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n				\n				\n					Presentations				\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Eating\, drinking & swallowing difficulties children born with OA/TOF								\n				\n				\n				\n									Presented by Dr Alex Stewart – Speech and Language Therapist (GOSH) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Experience of parents of children born with oesophageal atresia								\n				\n				\n				\n									Presented by Dr Vuokko Wallace – Clinical Psychologist\, University of Bath 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Gastro issues and Eosinophilic Oesophagitis (EoE) in OA/TOF patients								\n				\n				\n				\n									Presented by Dr Osvaldo Borrelli – Head of Clinical Service\, Consultant Paediatric Gastroenterologist (GOSH) and Honorary Senior Lecturer (UCL) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Role of TOF Multi Disciplinary Team (MDT) pathway in improving care in oesophageal atresia								\n				\n				\n				\n									Presented by Ms Dhanya Mullassery – Consultant Neonatal and Paediatric Surgeon (GOSH) and Honorary Senior Lecturer (UCL) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Respiratory updates from the INoEA (International Network of Esophageal Atresia) conference and ERS (European Respiratory Society) congress								\n				\n				\n				\n									Presented by Dr Caroline Love\, Chair of TOFS Medical Liaison & Research Subcommittee and Patient Advisory Committee member of the European Lung Foundation (ELF) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									Click here to see the full schedule 								\n				\n				\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									Any Questions?When is the seminar?The seminar is on March 21st\, 2026. Registration on the day opens at 9.30am with presentations beginning at 10.30am. The seminar will close at 4.30pm. How much are tickets?Tickets are free to TOFS’ Members\, Associates and Health Professionals. If you wish to join TOFS\, please sign up at – tofs.org.uk/join-tofs/ Is this a TOFS party?No\, this is an information seminar. Can I watch the seminar online?This is an in-person event only and will not be live streamed. We encourage members to attend in person to get the full benefits of the event\, listening to the speakers; interacting with the Q&A and discussion sessions; meeting TOFS volunteers and staff and chatting with other members of TOFS who will be attending. Some of the presentations may be recorded and posted online\, at a later date. Can I bring my child/children?Yes\, but you might prefer not to. Children below secondary school age are not permitted into the lecture room while presentations are being made. A separate room will be available on the day for families\, and the presentations will be relayed to a screen in that room. All children must be cared for by a responsible adult at all times. The excellent Coram’s Fields Children’s play park is just over the road from the venue. Will there be lunch?Yes\, a light lunch will be provided\, and seating will be available. Will I get a chance to speak to other families / people affected by OA/TOF?Yes\, we will have both lunch and refreshment breaks to allow you chance to chat with other attendees. Is there wheelchair access?We are very grateful to Great Ormond Street Hospital for providing our venue for the day. However\, this is an older building and while the venue is accessible to all\, the lecture theatre itself is accessible via stairs only. If you have any disability that may affect your access or participation in the event\, please let us know when ordering your tickets.Is there a cancellation deadline?Yes. If you can no longer attend\, please let us know via info@tofs.org.uk no later than 7 days before the seminar. This is to ensure that we only cater for the correct number of guests. Where is the seminar taking place?UCL Great Ormond Street Institute of Child Health\, WC1N 1EH If you have any further questions\, please contact us. 								\n				\n					\n		\n				\n			\n						\n				\n									\n					\n				\n											\n									\n\n			\n					\n								\n											\n									\n\n			\n					\n								\n											\n									\n\n			\n					\n								\n									\n															\n													\n						\n													\n																\n												\n				\n								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					How to get there				\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Where is the seminar?				\n				\n				\n				\n									The seminar is at the Institute of Child Health (ICH)\, which is a part of University College London – but situated on the GOSH site. The entrance to ICH is at 30 Guilford Street\, just north of Great Ormond Street itself. Postcode is WC1N 1 EH. 								\n				\n					\n		\n				\n			\n						\n				\n																\n															\n															\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									TOFS 2026 Seminar Important Update:We’ve been made aware that there is a part closure on the Piccadilly Line on Saturday. Depending on which direction you’re coming from\, please walk from Holborn Station (we believe the central line is open) or get off the train at Kings Cross/St Pancras and walk from there. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Public transport				\n				\n				\n				\n									The nearest tube station to ICH / GOSH is Russell Square on the Piccadilly Line. The next closest is Holborn\, on the Central and Piccadilly lines. Kings Cross and Euston stations are both only 0.8 miles away. Farringdon station (Elizabeth line and Metropolitan / Circle plus some overground commuter trains from Brighton\, Cambridge\, Huntingdon) is 0.9 miles. 								\n				\n				\n				\n					Travelling by car				\n				\n				\n				\n									Please note\, the venue is within both the London congestion charge zone and the  ULEZ (Ultra Low Emission) zone. There is some on-street metered parking around GOSH\, including in Guilford Street itself.  Much of this becomes free after 13:30 on a Saturday.  Moreover a significant amount of residents-only parking in this area becomes derestricted (i.e. free) on a Saturday afternoon. There are large underground public car parks close to GOSH at: Brunswick square (NCP) – postcode WC1N 1AF; the Imperial Hotel in Russell Square and underneath the Holiday Inn -Bloomsbury\, postcode WC1N 1HT. 								\n				\n					\n		\n				\n			\n						\n				\n					Outer London Tube stations with parking				\n				\n				\n				\n									Several tube stations near the end of the network in the North and West segments of outer London are close to the M25 and to some of the motorways into London. Unfortunately\, most of the stations listed below are within the ULEZ zone but  outside of the London congestion charge zone. Hillingdon (Metropolitan and Piccadilly lines). Has a car park which TfL says has 283 spaces. Postcode is UB10 9NR. This station is next to a junction on the A40 Western Avenue road\, only 5 miles from the M25 /M40 junction. Moreover\, the next station along the line (Ickenham) also has a large car park effectively providing an overflow car park. Stanmore (Jubilee line). Has a car park which TfL says has 450 spaces. Postcode is HA7 4PD. From the A41 Edgware way\, this is a direct drive along London Road. The A41 is accessed directly from M1 junction 4\, which is only 2 miles from the station. This is also close to the main A1 road. Cockfosters (Piccadilly line) Has a car park which TfL says has 232 spaces. Postcode is EN4 0DZ. It is a direct 3 mile drive down the A111 from the Potter’s Bar Junction (24) of the M25. Epping (Central line) Has a car park which Sabaparking says has 532 spaces. This station is outside the London ULEZ near to the junction of the M11 and M25. It is however not so convenient from the viewpoint of motorway junctions. Postcode is CM16 4HW.  Debden (Central line) Has a car park which Sabaparking says has 206 spaces. It is however only half a mile along the A 1168 from M11 junction 5 and also outside London ULEZ. Postcode is IG10 3TG. Upminster (District line) The car park here appears to be run by NCP\, which says there are 342 spaces. Postcode is RM14 2TD. It is only 3 miles from M25 junction 29\, via a route involving the A127 toward London. However it is inside the ULEZ. This might be a good option for those coming from East Anglia. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Nearby places to eat				\n				\n				\n				\n									Brunswick centre (https://maps.app.goo.gl/UwBNKmhUe9ciib1G9)  and opposite Russell Square station have a wide variety of places to eat\, including: Itsu\, Nandos\, LEON\, Pret\, Franco MancaLamb’s conduit street has a number of higher end restaurants.Redemptions roasters (Lamb’s conduit street) are great for coffee.
URL:https://tofs.org.uk/event/great-north-run-2025/
LOCATION:Newcastle\, United Kingdom
CATEGORIES:Fundraising
ATTACH;FMTTYPE=image/jpeg:https://tofs.org.uk/wp-content/uploads/2023/09/WhatsApp-Image-2022-09-11-at-20.37.51-4-e1694096386805.jpeg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20250909T200000
DTEND;TZID=Europe/London:20250909T210000
DTSTAMP:20260423T111530
CREATED:20250429T101411Z
LAST-MODIFIED:20250812T153348Z
UID:10000115-1757448000-1757451600@tofs.org.uk
SUMMARY:OA/TOF: A father's perspective
DESCRIPTION:TOFS 2026 Seminar Important Update:We’ve been made aware that there is a part closure on the Piccadilly Line on Saturday. Depending on which direction you’re coming from\, please walk from Holborn Station (we believe the central line is open) or get off the train at Kings Cross/St Pancras and walk from there. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									The TOFS seminar is being held at the Institute of Child Health (ICH)\, London on Saturday\, 21st March\, 2026. Why attendJoin us for our in-person OA/TOF Seminar in London to hear from some of the UK’s leading specialists on the work being done to improve the care of today’s OA/TOF children and to address the long-term issues affecting adults born with the condition. This is a great opportunity to meet\, make connections and share experiences with other families and adults born with OA/TOF and associated conditions. Who should attend?This seminar is aimed at adults born with OA/TOF\, parents and carers of children born with OA/TOF and medical professionals. Note: Registration on the day opens at 9.30am with presentations beginning at 10.30am. 								\n				\n				\n				\n									\n					\n						\n						\n							\n									CLICK HERE FOR TICKETS\n					\n					\n				\n								\n				\n					\n		\n				\n			\n						\n				\n									Event co-sponsored by  								\n				\n				\n				\n																														\n				\n				\n				\n																\n															\n															\n				\n				\n				\n									NIHR Great Ormond Street Hospital Biomedical Research Centre 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n				\n				\n					Presentations				\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Eating\, drinking & swallowing difficulties children born with OA/TOF								\n				\n				\n				\n									Presented by Dr Alex Stewart – Speech and Language Therapist (GOSH) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Experience of parents of children born with oesophageal atresia								\n				\n				\n				\n									Presented by Dr Vuokko Wallace – Clinical Psychologist\, University of Bath 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Gastro issues and Eosinophilic Oesophagitis (EoE) in OA/TOF patients								\n				\n				\n				\n									Presented by Dr Osvaldo Borrelli – Head of Clinical Service\, Consultant Paediatric Gastroenterologist (GOSH) and Honorary Senior Lecturer (UCL) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Role of TOF Multi Disciplinary Team (MDT) pathway in improving care in oesophageal atresia								\n				\n				\n				\n									Presented by Ms Dhanya Mullassery – Consultant Neonatal and Paediatric Surgeon (GOSH) and Honorary Senior Lecturer (UCL) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Respiratory updates from the INoEA (International Network of Esophageal Atresia) conference and ERS (European Respiratory Society) congress								\n				\n				\n				\n									Presented by Dr Caroline Love\, Chair of TOFS Medical Liaison & Research Subcommittee and Patient Advisory Committee member of the European Lung Foundation (ELF) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									Click here to see the full schedule 								\n				\n				\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									Any Questions?When is the seminar?The seminar is on March 21st\, 2026. Registration on the day opens at 9.30am with presentations beginning at 10.30am. The seminar will close at 4.30pm. How much are tickets?Tickets are free to TOFS’ Members\, Associates and Health Professionals. If you wish to join TOFS\, please sign up at – tofs.org.uk/join-tofs/ Is this a TOFS party?No\, this is an information seminar. Can I watch the seminar online?This is an in-person event only and will not be live streamed. We encourage members to attend in person to get the full benefits of the event\, listening to the speakers; interacting with the Q&A and discussion sessions; meeting TOFS volunteers and staff and chatting with other members of TOFS who will be attending. Some of the presentations may be recorded and posted online\, at a later date. Can I bring my child/children?Yes\, but you might prefer not to. Children below secondary school age are not permitted into the lecture room while presentations are being made. A separate room will be available on the day for families\, and the presentations will be relayed to a screen in that room. All children must be cared for by a responsible adult at all times. The excellent Coram’s Fields Children’s play park is just over the road from the venue. Will there be lunch?Yes\, a light lunch will be provided\, and seating will be available. Will I get a chance to speak to other families / people affected by OA/TOF?Yes\, we will have both lunch and refreshment breaks to allow you chance to chat with other attendees. Is there wheelchair access?We are very grateful to Great Ormond Street Hospital for providing our venue for the day. However\, this is an older building and while the venue is accessible to all\, the lecture theatre itself is accessible via stairs only. If you have any disability that may affect your access or participation in the event\, please let us know when ordering your tickets.Is there a cancellation deadline?Yes. If you can no longer attend\, please let us know via info@tofs.org.uk no later than 7 days before the seminar. This is to ensure that we only cater for the correct number of guests. Where is the seminar taking place?UCL Great Ormond Street Institute of Child Health\, WC1N 1EH If you have any further questions\, please contact us. 								\n				\n					\n		\n				\n			\n						\n				\n									\n					\n				\n											\n									\n\n			\n					\n								\n											\n									\n\n			\n					\n								\n											\n									\n\n			\n					\n								\n									\n															\n													\n						\n													\n																\n												\n				\n								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					How to get there				\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Where is the seminar?				\n				\n				\n				\n									The seminar is at the Institute of Child Health (ICH)\, which is a part of University College London – but situated on the GOSH site. The entrance to ICH is at 30 Guilford Street\, just north of Great Ormond Street itself. Postcode is WC1N 1 EH. 								\n				\n					\n		\n				\n			\n						\n				\n																\n															\n															\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									TOFS 2026 Seminar Important Update:We’ve been made aware that there is a part closure on the Piccadilly Line on Saturday. Depending on which direction you’re coming from\, please walk from Holborn Station (we believe the central line is open) or get off the train at Kings Cross/St Pancras and walk from there. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Public transport				\n				\n				\n				\n									The nearest tube station to ICH / GOSH is Russell Square on the Piccadilly Line. The next closest is Holborn\, on the Central and Piccadilly lines. Kings Cross and Euston stations are both only 0.8 miles away. Farringdon station (Elizabeth line and Metropolitan / Circle plus some overground commuter trains from Brighton\, Cambridge\, Huntingdon) is 0.9 miles. 								\n				\n				\n				\n					Travelling by car				\n				\n				\n				\n									Please note\, the venue is within both the London congestion charge zone and the  ULEZ (Ultra Low Emission) zone. There is some on-street metered parking around GOSH\, including in Guilford Street itself.  Much of this becomes free after 13:30 on a Saturday.  Moreover a significant amount of residents-only parking in this area becomes derestricted (i.e. free) on a Saturday afternoon. There are large underground public car parks close to GOSH at: Brunswick square (NCP) – postcode WC1N 1AF; the Imperial Hotel in Russell Square and underneath the Holiday Inn -Bloomsbury\, postcode WC1N 1HT. 								\n				\n					\n		\n				\n			\n						\n				\n					Outer London Tube stations with parking				\n				\n				\n				\n									Several tube stations near the end of the network in the North and West segments of outer London are close to the M25 and to some of the motorways into London. Unfortunately\, most of the stations listed below are within the ULEZ zone but  outside of the London congestion charge zone. Hillingdon (Metropolitan and Piccadilly lines). Has a car park which TfL says has 283 spaces. Postcode is UB10 9NR. This station is next to a junction on the A40 Western Avenue road\, only 5 miles from the M25 /M40 junction. Moreover\, the next station along the line (Ickenham) also has a large car park effectively providing an overflow car park. Stanmore (Jubilee line). Has a car park which TfL says has 450 spaces. Postcode is HA7 4PD. From the A41 Edgware way\, this is a direct drive along London Road. The A41 is accessed directly from M1 junction 4\, which is only 2 miles from the station. This is also close to the main A1 road. Cockfosters (Piccadilly line) Has a car park which TfL says has 232 spaces. Postcode is EN4 0DZ. It is a direct 3 mile drive down the A111 from the Potter’s Bar Junction (24) of the M25. Epping (Central line) Has a car park which Sabaparking says has 532 spaces. This station is outside the London ULEZ near to the junction of the M11 and M25. It is however not so convenient from the viewpoint of motorway junctions. Postcode is CM16 4HW.  Debden (Central line) Has a car park which Sabaparking says has 206 spaces. It is however only half a mile along the A 1168 from M11 junction 5 and also outside London ULEZ. Postcode is IG10 3TG. Upminster (District line) The car park here appears to be run by NCP\, which says there are 342 spaces. Postcode is RM14 2TD. It is only 3 miles from M25 junction 29\, via a route involving the A127 toward London. However it is inside the ULEZ. This might be a good option for those coming from East Anglia. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Nearby places to eat				\n				\n				\n				\n									Brunswick centre (https://maps.app.goo.gl/UwBNKmhUe9ciib1G9)  and opposite Russell Square station have a wide variety of places to eat\, including: Itsu\, Nandos\, LEON\, Pret\, Franco MancaLamb’s conduit street has a number of higher end restaurants.Redemptions roasters (Lamb’s conduit street) are great for coffee.
URL:https://tofs.org.uk/event/tofs-dads-meet-up/
LOCATION:Online
CATEGORIES:Parents & Carers
ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2025/04/TLC-events-Sep-2025.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20251002T200000
DTEND;TZID=Europe/London:20251002T210000
DTSTAMP:20260423T111530
CREATED:20250812T094622Z
LAST-MODIFIED:20250812T095638Z
UID:10000125-1759435200-1759438800@tofs.org.uk
SUMMARY:Virtual meet-up for adults born with OA/TOF
DESCRIPTION:TOFS 2026 Seminar Important Update:We’ve been made aware that there is a part closure on the Piccadilly Line on Saturday. Depending on which direction you’re coming from\, please walk from Holborn Station (we believe the central line is open) or get off the train at Kings Cross/St Pancras and walk from there. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									The TOFS seminar is being held at the Institute of Child Health (ICH)\, London on Saturday\, 21st March\, 2026. Why attendJoin us for our in-person OA/TOF Seminar in London to hear from some of the UK’s leading specialists on the work being done to improve the care of today’s OA/TOF children and to address the long-term issues affecting adults born with the condition. This is a great opportunity to meet\, make connections and share experiences with other families and adults born with OA/TOF and associated conditions. Who should attend?This seminar is aimed at adults born with OA/TOF\, parents and carers of children born with OA/TOF and medical professionals. Note: Registration on the day opens at 9.30am with presentations beginning at 10.30am. 								\n				\n				\n				\n									\n					\n						\n						\n							\n									CLICK HERE FOR TICKETS\n					\n					\n				\n								\n				\n					\n		\n				\n			\n						\n				\n									Event co-sponsored by  								\n				\n				\n				\n																														\n				\n				\n				\n																\n															\n															\n				\n				\n				\n									NIHR Great Ormond Street Hospital Biomedical Research Centre 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n				\n				\n					Presentations				\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Eating\, drinking & swallowing difficulties children born with OA/TOF								\n				\n				\n				\n									Presented by Dr Alex Stewart – Speech and Language Therapist (GOSH) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Experience of parents of children born with oesophageal atresia								\n				\n				\n				\n									Presented by Dr Vuokko Wallace – Clinical Psychologist\, University of Bath 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Gastro issues and Eosinophilic Oesophagitis (EoE) in OA/TOF patients								\n				\n				\n				\n									Presented by Dr Osvaldo Borrelli – Head of Clinical Service\, Consultant Paediatric Gastroenterologist (GOSH) and Honorary Senior Lecturer (UCL) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Role of TOF Multi Disciplinary Team (MDT) pathway in improving care in oesophageal atresia								\n				\n				\n				\n									Presented by Ms Dhanya Mullassery – Consultant Neonatal and Paediatric Surgeon (GOSH) and Honorary Senior Lecturer (UCL) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Respiratory updates from the INoEA (International Network of Esophageal Atresia) conference and ERS (European Respiratory Society) congress								\n				\n				\n				\n									Presented by Dr Caroline Love\, Chair of TOFS Medical Liaison & Research Subcommittee and Patient Advisory Committee member of the European Lung Foundation (ELF) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									Click here to see the full schedule 								\n				\n				\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									Any Questions?When is the seminar?The seminar is on March 21st\, 2026. Registration on the day opens at 9.30am with presentations beginning at 10.30am. The seminar will close at 4.30pm. How much are tickets?Tickets are free to TOFS’ Members\, Associates and Health Professionals. If you wish to join TOFS\, please sign up at – tofs.org.uk/join-tofs/ Is this a TOFS party?No\, this is an information seminar. Can I watch the seminar online?This is an in-person event only and will not be live streamed. We encourage members to attend in person to get the full benefits of the event\, listening to the speakers; interacting with the Q&A and discussion sessions; meeting TOFS volunteers and staff and chatting with other members of TOFS who will be attending. Some of the presentations may be recorded and posted online\, at a later date. Can I bring my child/children?Yes\, but you might prefer not to. Children below secondary school age are not permitted into the lecture room while presentations are being made. A separate room will be available on the day for families\, and the presentations will be relayed to a screen in that room. All children must be cared for by a responsible adult at all times. The excellent Coram’s Fields Children’s play park is just over the road from the venue. Will there be lunch?Yes\, a light lunch will be provided\, and seating will be available. Will I get a chance to speak to other families / people affected by OA/TOF?Yes\, we will have both lunch and refreshment breaks to allow you chance to chat with other attendees. Is there wheelchair access?We are very grateful to Great Ormond Street Hospital for providing our venue for the day. However\, this is an older building and while the venue is accessible to all\, the lecture theatre itself is accessible via stairs only. If you have any disability that may affect your access or participation in the event\, please let us know when ordering your tickets.Is there a cancellation deadline?Yes. If you can no longer attend\, please let us know via info@tofs.org.uk no later than 7 days before the seminar. This is to ensure that we only cater for the correct number of guests. Where is the seminar taking place?UCL Great Ormond Street Institute of Child Health\, WC1N 1EH If you have any further questions\, please contact us. 								\n				\n					\n		\n				\n			\n						\n				\n									\n					\n				\n											\n									\n\n			\n					\n								\n											\n									\n\n			\n					\n								\n											\n									\n\n			\n					\n								\n									\n															\n													\n						\n													\n																\n												\n				\n								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					How to get there				\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Where is the seminar?				\n				\n				\n				\n									The seminar is at the Institute of Child Health (ICH)\, which is a part of University College London – but situated on the GOSH site. The entrance to ICH is at 30 Guilford Street\, just north of Great Ormond Street itself. Postcode is WC1N 1 EH. 								\n				\n					\n		\n				\n			\n						\n				\n																\n															\n															\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									TOFS 2026 Seminar Important Update:We’ve been made aware that there is a part closure on the Piccadilly Line on Saturday. Depending on which direction you’re coming from\, please walk from Holborn Station (we believe the central line is open) or get off the train at Kings Cross/St Pancras and walk from there. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Public transport				\n				\n				\n				\n									The nearest tube station to ICH / GOSH is Russell Square on the Piccadilly Line. The next closest is Holborn\, on the Central and Piccadilly lines. Kings Cross and Euston stations are both only 0.8 miles away. Farringdon station (Elizabeth line and Metropolitan / Circle plus some overground commuter trains from Brighton\, Cambridge\, Huntingdon) is 0.9 miles. 								\n				\n				\n				\n					Travelling by car				\n				\n				\n				\n									Please note\, the venue is within both the London congestion charge zone and the  ULEZ (Ultra Low Emission) zone. There is some on-street metered parking around GOSH\, including in Guilford Street itself.  Much of this becomes free after 13:30 on a Saturday.  Moreover a significant amount of residents-only parking in this area becomes derestricted (i.e. free) on a Saturday afternoon. There are large underground public car parks close to GOSH at: Brunswick square (NCP) – postcode WC1N 1AF; the Imperial Hotel in Russell Square and underneath the Holiday Inn -Bloomsbury\, postcode WC1N 1HT. 								\n				\n					\n		\n				\n			\n						\n				\n					Outer London Tube stations with parking				\n				\n				\n				\n									Several tube stations near the end of the network in the North and West segments of outer London are close to the M25 and to some of the motorways into London. Unfortunately\, most of the stations listed below are within the ULEZ zone but  outside of the London congestion charge zone. Hillingdon (Metropolitan and Piccadilly lines). Has a car park which TfL says has 283 spaces. Postcode is UB10 9NR. This station is next to a junction on the A40 Western Avenue road\, only 5 miles from the M25 /M40 junction. Moreover\, the next station along the line (Ickenham) also has a large car park effectively providing an overflow car park. Stanmore (Jubilee line). Has a car park which TfL says has 450 spaces. Postcode is HA7 4PD. From the A41 Edgware way\, this is a direct drive along London Road. The A41 is accessed directly from M1 junction 4\, which is only 2 miles from the station. This is also close to the main A1 road. Cockfosters (Piccadilly line) Has a car park which TfL says has 232 spaces. Postcode is EN4 0DZ. It is a direct 3 mile drive down the A111 from the Potter’s Bar Junction (24) of the M25. Epping (Central line) Has a car park which Sabaparking says has 532 spaces. This station is outside the London ULEZ near to the junction of the M11 and M25. It is however not so convenient from the viewpoint of motorway junctions. Postcode is CM16 4HW.  Debden (Central line) Has a car park which Sabaparking says has 206 spaces. It is however only half a mile along the A 1168 from M11 junction 5 and also outside London ULEZ. Postcode is IG10 3TG. Upminster (District line) The car park here appears to be run by NCP\, which says there are 342 spaces. Postcode is RM14 2TD. It is only 3 miles from M25 junction 29\, via a route involving the A127 toward London. However it is inside the ULEZ. This might be a good option for those coming from East Anglia. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Nearby places to eat				\n				\n				\n				\n									Brunswick centre (https://maps.app.goo.gl/UwBNKmhUe9ciib1G9)  and opposite Russell Square station have a wide variety of places to eat\, including: Itsu\, Nandos\, LEON\, Pret\, Franco MancaLamb’s conduit street has a number of higher end restaurants.Redemptions roasters (Lamb’s conduit street) are great for coffee.
URL:https://tofs.org.uk/event/virtual-meet-up-for-adults-born-with-oa-tof-4/
LOCATION:Online
CATEGORIES:Adult TOF
ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2025/08/cuppa-and-chat-10-Oct25.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20251008T190000
DTEND;TZID=Europe/London:20251008T200000
DTSTAMP:20260423T111530
CREATED:20250514T143508Z
LAST-MODIFIED:20250926T131336Z
UID:10000117-1759950000-1759953600@tofs.org.uk
SUMMARY:Live Q&A: OA/TOF related respiratory issues for adults
DESCRIPTION:TOFS 2026 Seminar Important Update:We’ve been made aware that there is a part closure on the Piccadilly Line on Saturday. Depending on which direction you’re coming from\, please walk from Holborn Station (we believe the central line is open) or get off the train at Kings Cross/St Pancras and walk from there. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									The TOFS seminar is being held at the Institute of Child Health (ICH)\, London on Saturday\, 21st March\, 2026. Why attendJoin us for our in-person OA/TOF Seminar in London to hear from some of the UK’s leading specialists on the work being done to improve the care of today’s OA/TOF children and to address the long-term issues affecting adults born with the condition. This is a great opportunity to meet\, make connections and share experiences with other families and adults born with OA/TOF and associated conditions. Who should attend?This seminar is aimed at adults born with OA/TOF\, parents and carers of children born with OA/TOF and medical professionals. Note: Registration on the day opens at 9.30am with presentations beginning at 10.30am. 								\n				\n				\n				\n									\n					\n						\n						\n							\n									CLICK HERE FOR TICKETS\n					\n					\n				\n								\n				\n					\n		\n				\n			\n						\n				\n									Event co-sponsored by  								\n				\n				\n				\n																														\n				\n				\n				\n																\n															\n															\n				\n				\n				\n									NIHR Great Ormond Street Hospital Biomedical Research Centre 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n				\n				\n					Presentations				\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Eating\, drinking & swallowing difficulties children born with OA/TOF								\n				\n				\n				\n									Presented by Dr Alex Stewart – Speech and Language Therapist (GOSH) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Experience of parents of children born with oesophageal atresia								\n				\n				\n				\n									Presented by Dr Vuokko Wallace – Clinical Psychologist\, University of Bath 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Gastro issues and Eosinophilic Oesophagitis (EoE) in OA/TOF patients								\n				\n				\n				\n									Presented by Dr Osvaldo Borrelli – Head of Clinical Service\, Consultant Paediatric Gastroenterologist (GOSH) and Honorary Senior Lecturer (UCL) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Role of TOF Multi Disciplinary Team (MDT) pathway in improving care in oesophageal atresia								\n				\n				\n				\n									Presented by Ms Dhanya Mullassery – Consultant Neonatal and Paediatric Surgeon (GOSH) and Honorary Senior Lecturer (UCL) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Respiratory updates from the INoEA (International Network of Esophageal Atresia) conference and ERS (European Respiratory Society) congress								\n				\n				\n				\n									Presented by Dr Caroline Love\, Chair of TOFS Medical Liaison & Research Subcommittee and Patient Advisory Committee member of the European Lung Foundation (ELF) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									Click here to see the full schedule 								\n				\n				\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									Any Questions?When is the seminar?The seminar is on March 21st\, 2026. Registration on the day opens at 9.30am with presentations beginning at 10.30am. The seminar will close at 4.30pm. How much are tickets?Tickets are free to TOFS’ Members\, Associates and Health Professionals. If you wish to join TOFS\, please sign up at – tofs.org.uk/join-tofs/ Is this a TOFS party?No\, this is an information seminar. Can I watch the seminar online?This is an in-person event only and will not be live streamed. We encourage members to attend in person to get the full benefits of the event\, listening to the speakers; interacting with the Q&A and discussion sessions; meeting TOFS volunteers and staff and chatting with other members of TOFS who will be attending. Some of the presentations may be recorded and posted online\, at a later date. Can I bring my child/children?Yes\, but you might prefer not to. Children below secondary school age are not permitted into the lecture room while presentations are being made. A separate room will be available on the day for families\, and the presentations will be relayed to a screen in that room. All children must be cared for by a responsible adult at all times. The excellent Coram’s Fields Children’s play park is just over the road from the venue. Will there be lunch?Yes\, a light lunch will be provided\, and seating will be available. Will I get a chance to speak to other families / people affected by OA/TOF?Yes\, we will have both lunch and refreshment breaks to allow you chance to chat with other attendees. Is there wheelchair access?We are very grateful to Great Ormond Street Hospital for providing our venue for the day. However\, this is an older building and while the venue is accessible to all\, the lecture theatre itself is accessible via stairs only. If you have any disability that may affect your access or participation in the event\, please let us know when ordering your tickets.Is there a cancellation deadline?Yes. If you can no longer attend\, please let us know via info@tofs.org.uk no later than 7 days before the seminar. This is to ensure that we only cater for the correct number of guests. Where is the seminar taking place?UCL Great Ormond Street Institute of Child Health\, WC1N 1EH If you have any further questions\, please contact us. 								\n				\n					\n		\n				\n			\n						\n				\n									\n					\n				\n											\n									\n\n			\n					\n								\n											\n									\n\n			\n					\n								\n											\n									\n\n			\n					\n								\n									\n															\n													\n						\n													\n																\n												\n				\n								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					How to get there				\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Where is the seminar?				\n				\n				\n				\n									The seminar is at the Institute of Child Health (ICH)\, which is a part of University College London – but situated on the GOSH site. The entrance to ICH is at 30 Guilford Street\, just north of Great Ormond Street itself. Postcode is WC1N 1 EH. 								\n				\n					\n		\n				\n			\n						\n				\n																\n															\n															\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									TOFS 2026 Seminar Important Update:We’ve been made aware that there is a part closure on the Piccadilly Line on Saturday. Depending on which direction you’re coming from\, please walk from Holborn Station (we believe the central line is open) or get off the train at Kings Cross/St Pancras and walk from there. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Public transport				\n				\n				\n				\n									The nearest tube station to ICH / GOSH is Russell Square on the Piccadilly Line. The next closest is Holborn\, on the Central and Piccadilly lines. Kings Cross and Euston stations are both only 0.8 miles away. Farringdon station (Elizabeth line and Metropolitan / Circle plus some overground commuter trains from Brighton\, Cambridge\, Huntingdon) is 0.9 miles. 								\n				\n				\n				\n					Travelling by car				\n				\n				\n				\n									Please note\, the venue is within both the London congestion charge zone and the  ULEZ (Ultra Low Emission) zone. There is some on-street metered parking around GOSH\, including in Guilford Street itself.  Much of this becomes free after 13:30 on a Saturday.  Moreover a significant amount of residents-only parking in this area becomes derestricted (i.e. free) on a Saturday afternoon. There are large underground public car parks close to GOSH at: Brunswick square (NCP) – postcode WC1N 1AF; the Imperial Hotel in Russell Square and underneath the Holiday Inn -Bloomsbury\, postcode WC1N 1HT. 								\n				\n					\n		\n				\n			\n						\n				\n					Outer London Tube stations with parking				\n				\n				\n				\n									Several tube stations near the end of the network in the North and West segments of outer London are close to the M25 and to some of the motorways into London. Unfortunately\, most of the stations listed below are within the ULEZ zone but  outside of the London congestion charge zone. Hillingdon (Metropolitan and Piccadilly lines). Has a car park which TfL says has 283 spaces. Postcode is UB10 9NR. This station is next to a junction on the A40 Western Avenue road\, only 5 miles from the M25 /M40 junction. Moreover\, the next station along the line (Ickenham) also has a large car park effectively providing an overflow car park. Stanmore (Jubilee line). Has a car park which TfL says has 450 spaces. Postcode is HA7 4PD. From the A41 Edgware way\, this is a direct drive along London Road. The A41 is accessed directly from M1 junction 4\, which is only 2 miles from the station. This is also close to the main A1 road. Cockfosters (Piccadilly line) Has a car park which TfL says has 232 spaces. Postcode is EN4 0DZ. It is a direct 3 mile drive down the A111 from the Potter’s Bar Junction (24) of the M25. Epping (Central line) Has a car park which Sabaparking says has 532 spaces. This station is outside the London ULEZ near to the junction of the M11 and M25. It is however not so convenient from the viewpoint of motorway junctions. Postcode is CM16 4HW.  Debden (Central line) Has a car park which Sabaparking says has 206 spaces. It is however only half a mile along the A 1168 from M11 junction 5 and also outside London ULEZ. Postcode is IG10 3TG. Upminster (District line) The car park here appears to be run by NCP\, which says there are 342 spaces. Postcode is RM14 2TD. It is only 3 miles from M25 junction 29\, via a route involving the A127 toward London. However it is inside the ULEZ. This might be a good option for those coming from East Anglia. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Nearby places to eat				\n				\n				\n				\n									Brunswick centre (https://maps.app.goo.gl/UwBNKmhUe9ciib1G9)  and opposite Russell Square station have a wide variety of places to eat\, including: Itsu\, Nandos\, LEON\, Pret\, Franco MancaLamb’s conduit street has a number of higher end restaurants.Redemptions roasters (Lamb’s conduit street) are great for coffee.
URL:https://tofs.org.uk/event/live-qa-oa-tof-related-respiratory-issues-for-adults/
LOCATION:Online
CATEGORIES:Adult TOF
ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2025/05/Oct25-NEW.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20251012
DTEND;VALUE=DATE:20251013
DTSTAMP:20260423T111530
CREATED:20241220T102338Z
LAST-MODIFIED:20250820T111602Z
UID:10000101-1760227200-1760313599@tofs.org.uk
SUMMARY:Royal Parks Half Marathon
DESCRIPTION:TOFS 2026 Seminar Important Update:We’ve been made aware that there is a part closure on the Piccadilly Line on Saturday. Depending on which direction you’re coming from\, please walk from Holborn Station (we believe the central line is open) or get off the train at Kings Cross/St Pancras and walk from there. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									The TOFS seminar is being held at the Institute of Child Health (ICH)\, London on Saturday\, 21st March\, 2026. Why attendJoin us for our in-person OA/TOF Seminar in London to hear from some of the UK’s leading specialists on the work being done to improve the care of today’s OA/TOF children and to address the long-term issues affecting adults born with the condition. This is a great opportunity to meet\, make connections and share experiences with other families and adults born with OA/TOF and associated conditions. Who should attend?This seminar is aimed at adults born with OA/TOF\, parents and carers of children born with OA/TOF and medical professionals. Note: Registration on the day opens at 9.30am with presentations beginning at 10.30am. 								\n				\n				\n				\n									\n					\n						\n						\n							\n									CLICK HERE FOR TICKETS\n					\n					\n				\n								\n				\n					\n		\n				\n			\n						\n				\n									Event co-sponsored by  								\n				\n				\n				\n																														\n				\n				\n				\n																\n															\n															\n				\n				\n				\n									NIHR Great Ormond Street Hospital Biomedical Research Centre 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n				\n				\n					Presentations				\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Eating\, drinking & swallowing difficulties children born with OA/TOF								\n				\n				\n				\n									Presented by Dr Alex Stewart – Speech and Language Therapist (GOSH) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Experience of parents of children born with oesophageal atresia								\n				\n				\n				\n									Presented by Dr Vuokko Wallace – Clinical Psychologist\, University of Bath 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Gastro issues and Eosinophilic Oesophagitis (EoE) in OA/TOF patients								\n				\n				\n				\n									Presented by Dr Osvaldo Borrelli – Head of Clinical Service\, Consultant Paediatric Gastroenterologist (GOSH) and Honorary Senior Lecturer (UCL) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Role of TOF Multi Disciplinary Team (MDT) pathway in improving care in oesophageal atresia								\n				\n				\n				\n									Presented by Ms Dhanya Mullassery – Consultant Neonatal and Paediatric Surgeon (GOSH) and Honorary Senior Lecturer (UCL) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Respiratory updates from the INoEA (International Network of Esophageal Atresia) conference and ERS (European Respiratory Society) congress								\n				\n				\n				\n									Presented by Dr Caroline Love\, Chair of TOFS Medical Liaison & Research Subcommittee and Patient Advisory Committee member of the European Lung Foundation (ELF) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									Click here to see the full schedule 								\n				\n				\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									Any Questions?When is the seminar?The seminar is on March 21st\, 2026. Registration on the day opens at 9.30am with presentations beginning at 10.30am. The seminar will close at 4.30pm. How much are tickets?Tickets are free to TOFS’ Members\, Associates and Health Professionals. If you wish to join TOFS\, please sign up at – tofs.org.uk/join-tofs/ Is this a TOFS party?No\, this is an information seminar. Can I watch the seminar online?This is an in-person event only and will not be live streamed. We encourage members to attend in person to get the full benefits of the event\, listening to the speakers; interacting with the Q&A and discussion sessions; meeting TOFS volunteers and staff and chatting with other members of TOFS who will be attending. Some of the presentations may be recorded and posted online\, at a later date. Can I bring my child/children?Yes\, but you might prefer not to. Children below secondary school age are not permitted into the lecture room while presentations are being made. A separate room will be available on the day for families\, and the presentations will be relayed to a screen in that room. All children must be cared for by a responsible adult at all times. The excellent Coram’s Fields Children’s play park is just over the road from the venue. Will there be lunch?Yes\, a light lunch will be provided\, and seating will be available. Will I get a chance to speak to other families / people affected by OA/TOF?Yes\, we will have both lunch and refreshment breaks to allow you chance to chat with other attendees. Is there wheelchair access?We are very grateful to Great Ormond Street Hospital for providing our venue for the day. However\, this is an older building and while the venue is accessible to all\, the lecture theatre itself is accessible via stairs only. If you have any disability that may affect your access or participation in the event\, please let us know when ordering your tickets.Is there a cancellation deadline?Yes. If you can no longer attend\, please let us know via info@tofs.org.uk no later than 7 days before the seminar. This is to ensure that we only cater for the correct number of guests. Where is the seminar taking place?UCL Great Ormond Street Institute of Child Health\, WC1N 1EH If you have any further questions\, please contact us. 								\n				\n					\n		\n				\n			\n						\n				\n									\n					\n				\n											\n									\n\n			\n					\n								\n											\n									\n\n			\n					\n								\n											\n									\n\n			\n					\n								\n									\n															\n													\n						\n													\n																\n												\n				\n								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					How to get there				\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Where is the seminar?				\n				\n				\n				\n									The seminar is at the Institute of Child Health (ICH)\, which is a part of University College London – but situated on the GOSH site. The entrance to ICH is at 30 Guilford Street\, just north of Great Ormond Street itself. Postcode is WC1N 1 EH. 								\n				\n					\n		\n				\n			\n						\n				\n																\n															\n															\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									TOFS 2026 Seminar Important Update:We’ve been made aware that there is a part closure on the Piccadilly Line on Saturday. Depending on which direction you’re coming from\, please walk from Holborn Station (we believe the central line is open) or get off the train at Kings Cross/St Pancras and walk from there. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Public transport				\n				\n				\n				\n									The nearest tube station to ICH / GOSH is Russell Square on the Piccadilly Line. The next closest is Holborn\, on the Central and Piccadilly lines. Kings Cross and Euston stations are both only 0.8 miles away. Farringdon station (Elizabeth line and Metropolitan / Circle plus some overground commuter trains from Brighton\, Cambridge\, Huntingdon) is 0.9 miles. 								\n				\n				\n				\n					Travelling by car				\n				\n				\n				\n									Please note\, the venue is within both the London congestion charge zone and the  ULEZ (Ultra Low Emission) zone. There is some on-street metered parking around GOSH\, including in Guilford Street itself.  Much of this becomes free after 13:30 on a Saturday.  Moreover a significant amount of residents-only parking in this area becomes derestricted (i.e. free) on a Saturday afternoon. There are large underground public car parks close to GOSH at: Brunswick square (NCP) – postcode WC1N 1AF; the Imperial Hotel in Russell Square and underneath the Holiday Inn -Bloomsbury\, postcode WC1N 1HT. 								\n				\n					\n		\n				\n			\n						\n				\n					Outer London Tube stations with parking				\n				\n				\n				\n									Several tube stations near the end of the network in the North and West segments of outer London are close to the M25 and to some of the motorways into London. Unfortunately\, most of the stations listed below are within the ULEZ zone but  outside of the London congestion charge zone. Hillingdon (Metropolitan and Piccadilly lines). Has a car park which TfL says has 283 spaces. Postcode is UB10 9NR. This station is next to a junction on the A40 Western Avenue road\, only 5 miles from the M25 /M40 junction. Moreover\, the next station along the line (Ickenham) also has a large car park effectively providing an overflow car park. Stanmore (Jubilee line). Has a car park which TfL says has 450 spaces. Postcode is HA7 4PD. From the A41 Edgware way\, this is a direct drive along London Road. The A41 is accessed directly from M1 junction 4\, which is only 2 miles from the station. This is also close to the main A1 road. Cockfosters (Piccadilly line) Has a car park which TfL says has 232 spaces. Postcode is EN4 0DZ. It is a direct 3 mile drive down the A111 from the Potter’s Bar Junction (24) of the M25. Epping (Central line) Has a car park which Sabaparking says has 532 spaces. This station is outside the London ULEZ near to the junction of the M11 and M25. It is however not so convenient from the viewpoint of motorway junctions. Postcode is CM16 4HW.  Debden (Central line) Has a car park which Sabaparking says has 206 spaces. It is however only half a mile along the A 1168 from M11 junction 5 and also outside London ULEZ. Postcode is IG10 3TG. Upminster (District line) The car park here appears to be run by NCP\, which says there are 342 spaces. Postcode is RM14 2TD. It is only 3 miles from M25 junction 29\, via a route involving the A127 toward London. However it is inside the ULEZ. This might be a good option for those coming from East Anglia. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Nearby places to eat				\n				\n				\n				\n									Brunswick centre (https://maps.app.goo.gl/UwBNKmhUe9ciib1G9)  and opposite Russell Square station have a wide variety of places to eat\, including: Itsu\, Nandos\, LEON\, Pret\, Franco MancaLamb’s conduit street has a number of higher end restaurants.Redemptions roasters (Lamb’s conduit street) are great for coffee.
URL:https://tofs.org.uk/event/royal-parks-half-marathon/
LOCATION:Hyde Park\, London\, W2 5DS\, United Kingdom
CATEGORIES:Fundraising
ATTACH;FMTTYPE=image/jpeg:https://tofs.org.uk/wp-content/uploads/2024/04/royal-parks-half.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20251012
DTEND;VALUE=DATE:20251013
DTSTAMP:20260423T111530
CREATED:20250918T113605Z
LAST-MODIFIED:20250918T115239Z
UID:10000129-1760227200-1760313599@tofs.org.uk
SUMMARY:Myles Clabby Memorial Cup
DESCRIPTION:TOFS 2026 Seminar Important Update:We’ve been made aware that there is a part closure on the Piccadilly Line on Saturday. Depending on which direction you’re coming from\, please walk from Holborn Station (we believe the central line is open) or get off the train at Kings Cross/St Pancras and walk from there. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									The TOFS seminar is being held at the Institute of Child Health (ICH)\, London on Saturday\, 21st March\, 2026. Why attendJoin us for our in-person OA/TOF Seminar in London to hear from some of the UK’s leading specialists on the work being done to improve the care of today’s OA/TOF children and to address the long-term issues affecting adults born with the condition. This is a great opportunity to meet\, make connections and share experiences with other families and adults born with OA/TOF and associated conditions. Who should attend?This seminar is aimed at adults born with OA/TOF\, parents and carers of children born with OA/TOF and medical professionals. Note: Registration on the day opens at 9.30am with presentations beginning at 10.30am. 								\n				\n				\n				\n									\n					\n						\n						\n							\n									CLICK HERE FOR TICKETS\n					\n					\n				\n								\n				\n					\n		\n				\n			\n						\n				\n									Event co-sponsored by  								\n				\n				\n				\n																														\n				\n				\n				\n																\n															\n															\n				\n				\n				\n									NIHR Great Ormond Street Hospital Biomedical Research Centre 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n				\n				\n					Presentations				\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Eating\, drinking & swallowing difficulties children born with OA/TOF								\n				\n				\n				\n									Presented by Dr Alex Stewart – Speech and Language Therapist (GOSH) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Experience of parents of children born with oesophageal atresia								\n				\n				\n				\n									Presented by Dr Vuokko Wallace – Clinical Psychologist\, University of Bath 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Gastro issues and Eosinophilic Oesophagitis (EoE) in OA/TOF patients								\n				\n				\n				\n									Presented by Dr Osvaldo Borrelli – Head of Clinical Service\, Consultant Paediatric Gastroenterologist (GOSH) and Honorary Senior Lecturer (UCL) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Role of TOF Multi Disciplinary Team (MDT) pathway in improving care in oesophageal atresia								\n				\n				\n				\n									Presented by Ms Dhanya Mullassery – Consultant Neonatal and Paediatric Surgeon (GOSH) and Honorary Senior Lecturer (UCL) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Respiratory updates from the INoEA (International Network of Esophageal Atresia) conference and ERS (European Respiratory Society) congress								\n				\n				\n				\n									Presented by Dr Caroline Love\, Chair of TOFS Medical Liaison & Research Subcommittee and Patient Advisory Committee member of the European Lung Foundation (ELF) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									Click here to see the full schedule 								\n				\n				\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									Any Questions?When is the seminar?The seminar is on March 21st\, 2026. Registration on the day opens at 9.30am with presentations beginning at 10.30am. The seminar will close at 4.30pm. How much are tickets?Tickets are free to TOFS’ Members\, Associates and Health Professionals. If you wish to join TOFS\, please sign up at – tofs.org.uk/join-tofs/ Is this a TOFS party?No\, this is an information seminar. Can I watch the seminar online?This is an in-person event only and will not be live streamed. We encourage members to attend in person to get the full benefits of the event\, listening to the speakers; interacting with the Q&A and discussion sessions; meeting TOFS volunteers and staff and chatting with other members of TOFS who will be attending. Some of the presentations may be recorded and posted online\, at a later date. Can I bring my child/children?Yes\, but you might prefer not to. Children below secondary school age are not permitted into the lecture room while presentations are being made. A separate room will be available on the day for families\, and the presentations will be relayed to a screen in that room. All children must be cared for by a responsible adult at all times. The excellent Coram’s Fields Children’s play park is just over the road from the venue. Will there be lunch?Yes\, a light lunch will be provided\, and seating will be available. Will I get a chance to speak to other families / people affected by OA/TOF?Yes\, we will have both lunch and refreshment breaks to allow you chance to chat with other attendees. Is there wheelchair access?We are very grateful to Great Ormond Street Hospital for providing our venue for the day. However\, this is an older building and while the venue is accessible to all\, the lecture theatre itself is accessible via stairs only. If you have any disability that may affect your access or participation in the event\, please let us know when ordering your tickets.Is there a cancellation deadline?Yes. If you can no longer attend\, please let us know via info@tofs.org.uk no later than 7 days before the seminar. This is to ensure that we only cater for the correct number of guests. Where is the seminar taking place?UCL Great Ormond Street Institute of Child Health\, WC1N 1EH If you have any further questions\, please contact us. 								\n				\n					\n		\n				\n			\n						\n				\n									\n					\n				\n											\n									\n\n			\n					\n								\n											\n									\n\n			\n					\n								\n											\n									\n\n			\n					\n								\n									\n															\n													\n						\n													\n																\n												\n				\n								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					How to get there				\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Where is the seminar?				\n				\n				\n				\n									The seminar is at the Institute of Child Health (ICH)\, which is a part of University College London – but situated on the GOSH site. The entrance to ICH is at 30 Guilford Street\, just north of Great Ormond Street itself. Postcode is WC1N 1 EH. 								\n				\n					\n		\n				\n			\n						\n				\n																\n															\n															\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									TOFS 2026 Seminar Important Update:We’ve been made aware that there is a part closure on the Piccadilly Line on Saturday. Depending on which direction you’re coming from\, please walk from Holborn Station (we believe the central line is open) or get off the train at Kings Cross/St Pancras and walk from there. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Public transport				\n				\n				\n				\n									The nearest tube station to ICH / GOSH is Russell Square on the Piccadilly Line. The next closest is Holborn\, on the Central and Piccadilly lines. Kings Cross and Euston stations are both only 0.8 miles away. Farringdon station (Elizabeth line and Metropolitan / Circle plus some overground commuter trains from Brighton\, Cambridge\, Huntingdon) is 0.9 miles. 								\n				\n				\n				\n					Travelling by car				\n				\n				\n				\n									Please note\, the venue is within both the London congestion charge zone and the  ULEZ (Ultra Low Emission) zone. There is some on-street metered parking around GOSH\, including in Guilford Street itself.  Much of this becomes free after 13:30 on a Saturday.  Moreover a significant amount of residents-only parking in this area becomes derestricted (i.e. free) on a Saturday afternoon. There are large underground public car parks close to GOSH at: Brunswick square (NCP) – postcode WC1N 1AF; the Imperial Hotel in Russell Square and underneath the Holiday Inn -Bloomsbury\, postcode WC1N 1HT. 								\n				\n					\n		\n				\n			\n						\n				\n					Outer London Tube stations with parking				\n				\n				\n				\n									Several tube stations near the end of the network in the North and West segments of outer London are close to the M25 and to some of the motorways into London. Unfortunately\, most of the stations listed below are within the ULEZ zone but  outside of the London congestion charge zone. Hillingdon (Metropolitan and Piccadilly lines). Has a car park which TfL says has 283 spaces. Postcode is UB10 9NR. This station is next to a junction on the A40 Western Avenue road\, only 5 miles from the M25 /M40 junction. Moreover\, the next station along the line (Ickenham) also has a large car park effectively providing an overflow car park. Stanmore (Jubilee line). Has a car park which TfL says has 450 spaces. Postcode is HA7 4PD. From the A41 Edgware way\, this is a direct drive along London Road. The A41 is accessed directly from M1 junction 4\, which is only 2 miles from the station. This is also close to the main A1 road. Cockfosters (Piccadilly line) Has a car park which TfL says has 232 spaces. Postcode is EN4 0DZ. It is a direct 3 mile drive down the A111 from the Potter’s Bar Junction (24) of the M25. Epping (Central line) Has a car park which Sabaparking says has 532 spaces. This station is outside the London ULEZ near to the junction of the M11 and M25. It is however not so convenient from the viewpoint of motorway junctions. Postcode is CM16 4HW.  Debden (Central line) Has a car park which Sabaparking says has 206 spaces. It is however only half a mile along the A 1168 from M11 junction 5 and also outside London ULEZ. Postcode is IG10 3TG. Upminster (District line) The car park here appears to be run by NCP\, which says there are 342 spaces. Postcode is RM14 2TD. It is only 3 miles from M25 junction 29\, via a route involving the A127 toward London. However it is inside the ULEZ. This might be a good option for those coming from East Anglia. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Nearby places to eat				\n				\n				\n				\n									Brunswick centre (https://maps.app.goo.gl/UwBNKmhUe9ciib1G9)  and opposite Russell Square station have a wide variety of places to eat\, including: Itsu\, Nandos\, LEON\, Pret\, Franco MancaLamb’s conduit street has a number of higher end restaurants.Redemptions roasters (Lamb’s conduit street) are great for coffee.
URL:https://tofs.org.uk/event/myles-clabby-memorial-cup/
LOCATION:St. Roch’s F.C\, 713 Royston Rd\, Glasgow\, G21 2DT\, United Kingdom
CATEGORIES:Fundraising
ATTACH;FMTTYPE=image/jpeg:https://tofs.org.uk/wp-content/uploads/2025/09/myles-clabby-memorial-cup-2025.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20251014T200000
DTEND;TZID=Europe/London:20251014T210000
DTSTAMP:20260423T111530
CREATED:20250926T131855Z
LAST-MODIFIED:20251001T112157Z
UID:10000130-1760472000-1760475600@tofs.org.uk
SUMMARY:Parent & Carer virtual meet-up
DESCRIPTION:TOFS 2026 Seminar Important Update:We’ve been made aware that there is a part closure on the Piccadilly Line on Saturday. Depending on which direction you’re coming from\, please walk from Holborn Station (we believe the central line is open) or get off the train at Kings Cross/St Pancras and walk from there. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									The TOFS seminar is being held at the Institute of Child Health (ICH)\, London on Saturday\, 21st March\, 2026. Why attendJoin us for our in-person OA/TOF Seminar in London to hear from some of the UK’s leading specialists on the work being done to improve the care of today’s OA/TOF children and to address the long-term issues affecting adults born with the condition. This is a great opportunity to meet\, make connections and share experiences with other families and adults born with OA/TOF and associated conditions. Who should attend?This seminar is aimed at adults born with OA/TOF\, parents and carers of children born with OA/TOF and medical professionals. Note: Registration on the day opens at 9.30am with presentations beginning at 10.30am. 								\n				\n				\n				\n									\n					\n						\n						\n							\n									CLICK HERE FOR TICKETS\n					\n					\n				\n								\n				\n					\n		\n				\n			\n						\n				\n									Event co-sponsored by  								\n				\n				\n				\n																														\n				\n				\n				\n																\n															\n															\n				\n				\n				\n									NIHR Great Ormond Street Hospital Biomedical Research Centre 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n				\n				\n					Presentations				\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Eating\, drinking & swallowing difficulties children born with OA/TOF								\n				\n				\n				\n									Presented by Dr Alex Stewart – Speech and Language Therapist (GOSH) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Experience of parents of children born with oesophageal atresia								\n				\n				\n				\n									Presented by Dr Vuokko Wallace – Clinical Psychologist\, University of Bath 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Gastro issues and Eosinophilic Oesophagitis (EoE) in OA/TOF patients								\n				\n				\n				\n									Presented by Dr Osvaldo Borrelli – Head of Clinical Service\, Consultant Paediatric Gastroenterologist (GOSH) and Honorary Senior Lecturer (UCL) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Role of TOF Multi Disciplinary Team (MDT) pathway in improving care in oesophageal atresia								\n				\n				\n				\n									Presented by Ms Dhanya Mullassery – Consultant Neonatal and Paediatric Surgeon (GOSH) and Honorary Senior Lecturer (UCL) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Respiratory updates from the INoEA (International Network of Esophageal Atresia) conference and ERS (European Respiratory Society) congress								\n				\n				\n				\n									Presented by Dr Caroline Love\, Chair of TOFS Medical Liaison & Research Subcommittee and Patient Advisory Committee member of the European Lung Foundation (ELF) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									Click here to see the full schedule 								\n				\n				\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									Any Questions?When is the seminar?The seminar is on March 21st\, 2026. Registration on the day opens at 9.30am with presentations beginning at 10.30am. The seminar will close at 4.30pm. How much are tickets?Tickets are free to TOFS’ Members\, Associates and Health Professionals. If you wish to join TOFS\, please sign up at – tofs.org.uk/join-tofs/ Is this a TOFS party?No\, this is an information seminar. Can I watch the seminar online?This is an in-person event only and will not be live streamed. We encourage members to attend in person to get the full benefits of the event\, listening to the speakers; interacting with the Q&A and discussion sessions; meeting TOFS volunteers and staff and chatting with other members of TOFS who will be attending. Some of the presentations may be recorded and posted online\, at a later date. Can I bring my child/children?Yes\, but you might prefer not to. Children below secondary school age are not permitted into the lecture room while presentations are being made. A separate room will be available on the day for families\, and the presentations will be relayed to a screen in that room. All children must be cared for by a responsible adult at all times. The excellent Coram’s Fields Children’s play park is just over the road from the venue. Will there be lunch?Yes\, a light lunch will be provided\, and seating will be available. Will I get a chance to speak to other families / people affected by OA/TOF?Yes\, we will have both lunch and refreshment breaks to allow you chance to chat with other attendees. Is there wheelchair access?We are very grateful to Great Ormond Street Hospital for providing our venue for the day. However\, this is an older building and while the venue is accessible to all\, the lecture theatre itself is accessible via stairs only. If you have any disability that may affect your access or participation in the event\, please let us know when ordering your tickets.Is there a cancellation deadline?Yes. If you can no longer attend\, please let us know via info@tofs.org.uk no later than 7 days before the seminar. This is to ensure that we only cater for the correct number of guests. Where is the seminar taking place?UCL Great Ormond Street Institute of Child Health\, WC1N 1EH If you have any further questions\, please contact us. 								\n				\n					\n		\n				\n			\n						\n				\n									\n					\n				\n											\n									\n\n			\n					\n								\n											\n									\n\n			\n					\n								\n											\n									\n\n			\n					\n								\n									\n															\n													\n						\n													\n																\n												\n				\n								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					How to get there				\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Where is the seminar?				\n				\n				\n				\n									The seminar is at the Institute of Child Health (ICH)\, which is a part of University College London – but situated on the GOSH site. The entrance to ICH is at 30 Guilford Street\, just north of Great Ormond Street itself. Postcode is WC1N 1 EH. 								\n				\n					\n		\n				\n			\n						\n				\n																\n															\n															\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									TOFS 2026 Seminar Important Update:We’ve been made aware that there is a part closure on the Piccadilly Line on Saturday. Depending on which direction you’re coming from\, please walk from Holborn Station (we believe the central line is open) or get off the train at Kings Cross/St Pancras and walk from there. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Public transport				\n				\n				\n				\n									The nearest tube station to ICH / GOSH is Russell Square on the Piccadilly Line. The next closest is Holborn\, on the Central and Piccadilly lines. Kings Cross and Euston stations are both only 0.8 miles away. Farringdon station (Elizabeth line and Metropolitan / Circle plus some overground commuter trains from Brighton\, Cambridge\, Huntingdon) is 0.9 miles. 								\n				\n				\n				\n					Travelling by car				\n				\n				\n				\n									Please note\, the venue is within both the London congestion charge zone and the  ULEZ (Ultra Low Emission) zone. There is some on-street metered parking around GOSH\, including in Guilford Street itself.  Much of this becomes free after 13:30 on a Saturday.  Moreover a significant amount of residents-only parking in this area becomes derestricted (i.e. free) on a Saturday afternoon. There are large underground public car parks close to GOSH at: Brunswick square (NCP) – postcode WC1N 1AF; the Imperial Hotel in Russell Square and underneath the Holiday Inn -Bloomsbury\, postcode WC1N 1HT. 								\n				\n					\n		\n				\n			\n						\n				\n					Outer London Tube stations with parking				\n				\n				\n				\n									Several tube stations near the end of the network in the North and West segments of outer London are close to the M25 and to some of the motorways into London. Unfortunately\, most of the stations listed below are within the ULEZ zone but  outside of the London congestion charge zone. Hillingdon (Metropolitan and Piccadilly lines). Has a car park which TfL says has 283 spaces. Postcode is UB10 9NR. This station is next to a junction on the A40 Western Avenue road\, only 5 miles from the M25 /M40 junction. Moreover\, the next station along the line (Ickenham) also has a large car park effectively providing an overflow car park. Stanmore (Jubilee line). Has a car park which TfL says has 450 spaces. Postcode is HA7 4PD. From the A41 Edgware way\, this is a direct drive along London Road. The A41 is accessed directly from M1 junction 4\, which is only 2 miles from the station. This is also close to the main A1 road. Cockfosters (Piccadilly line) Has a car park which TfL says has 232 spaces. Postcode is EN4 0DZ. It is a direct 3 mile drive down the A111 from the Potter’s Bar Junction (24) of the M25. Epping (Central line) Has a car park which Sabaparking says has 532 spaces. This station is outside the London ULEZ near to the junction of the M11 and M25. It is however not so convenient from the viewpoint of motorway junctions. Postcode is CM16 4HW.  Debden (Central line) Has a car park which Sabaparking says has 206 spaces. It is however only half a mile along the A 1168 from M11 junction 5 and also outside London ULEZ. Postcode is IG10 3TG. Upminster (District line) The car park here appears to be run by NCP\, which says there are 342 spaces. Postcode is RM14 2TD. It is only 3 miles from M25 junction 29\, via a route involving the A127 toward London. However it is inside the ULEZ. This might be a good option for those coming from East Anglia. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Nearby places to eat				\n				\n				\n				\n									Brunswick centre (https://maps.app.goo.gl/UwBNKmhUe9ciib1G9)  and opposite Russell Square station have a wide variety of places to eat\, including: Itsu\, Nandos\, LEON\, Pret\, Franco MancaLamb’s conduit street has a number of higher end restaurants.Redemptions roasters (Lamb’s conduit street) are great for coffee.
URL:https://tofs.org.uk/event/parent-carer-virtual-meet-up/
LOCATION:Online
CATEGORIES:Parents & Carers
ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2025/09/Parent-Cuppa-and-chat-14OCT25.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20251025
DTEND;VALUE=DATE:20251103
DTSTAMP:20260423T111530
CREATED:20250411T145009Z
LAST-MODIFIED:20251031T104618Z
UID:10000112-1761350400-1762127999@tofs.org.uk
SUMMARY:Big Splash Swimathon 2025
DESCRIPTION:TOFS 2026 Seminar Important Update:We’ve been made aware that there is a part closure on the Piccadilly Line on Saturday. Depending on which direction you’re coming from\, please walk from Holborn Station (we believe the central line is open) or get off the train at Kings Cross/St Pancras and walk from there. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									The TOFS seminar is being held at the Institute of Child Health (ICH)\, London on Saturday\, 21st March\, 2026. Why attendJoin us for our in-person OA/TOF Seminar in London to hear from some of the UK’s leading specialists on the work being done to improve the care of today’s OA/TOF children and to address the long-term issues affecting adults born with the condition. This is a great opportunity to meet\, make connections and share experiences with other families and adults born with OA/TOF and associated conditions. Who should attend?This seminar is aimed at adults born with OA/TOF\, parents and carers of children born with OA/TOF and medical professionals. Note: Registration on the day opens at 9.30am with presentations beginning at 10.30am. 								\n				\n				\n				\n									\n					\n						\n						\n							\n									CLICK HERE FOR TICKETS\n					\n					\n				\n								\n				\n					\n		\n				\n			\n						\n				\n									Event co-sponsored by  								\n				\n				\n				\n																														\n				\n				\n				\n																\n															\n															\n				\n				\n				\n									NIHR Great Ormond Street Hospital Biomedical Research Centre 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n				\n				\n					Presentations				\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Eating\, drinking & swallowing difficulties children born with OA/TOF								\n				\n				\n				\n									Presented by Dr Alex Stewart – Speech and Language Therapist (GOSH) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Experience of parents of children born with oesophageal atresia								\n				\n				\n				\n									Presented by Dr Vuokko Wallace – Clinical Psychologist\, University of Bath 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Gastro issues and Eosinophilic Oesophagitis (EoE) in OA/TOF patients								\n				\n				\n				\n									Presented by Dr Osvaldo Borrelli – Head of Clinical Service\, Consultant Paediatric Gastroenterologist (GOSH) and Honorary Senior Lecturer (UCL) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Role of TOF Multi Disciplinary Team (MDT) pathway in improving care in oesophageal atresia								\n				\n				\n				\n									Presented by Ms Dhanya Mullassery – Consultant Neonatal and Paediatric Surgeon (GOSH) and Honorary Senior Lecturer (UCL) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Respiratory updates from the INoEA (International Network of Esophageal Atresia) conference and ERS (European Respiratory Society) congress								\n				\n				\n				\n									Presented by Dr Caroline Love\, Chair of TOFS Medical Liaison & Research Subcommittee and Patient Advisory Committee member of the European Lung Foundation (ELF) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									Click here to see the full schedule 								\n				\n				\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									Any Questions?When is the seminar?The seminar is on March 21st\, 2026. Registration on the day opens at 9.30am with presentations beginning at 10.30am. The seminar will close at 4.30pm. How much are tickets?Tickets are free to TOFS’ Members\, Associates and Health Professionals. If you wish to join TOFS\, please sign up at – tofs.org.uk/join-tofs/ Is this a TOFS party?No\, this is an information seminar. Can I watch the seminar online?This is an in-person event only and will not be live streamed. We encourage members to attend in person to get the full benefits of the event\, listening to the speakers; interacting with the Q&A and discussion sessions; meeting TOFS volunteers and staff and chatting with other members of TOFS who will be attending. Some of the presentations may be recorded and posted online\, at a later date. Can I bring my child/children?Yes\, but you might prefer not to. Children below secondary school age are not permitted into the lecture room while presentations are being made. A separate room will be available on the day for families\, and the presentations will be relayed to a screen in that room. All children must be cared for by a responsible adult at all times. The excellent Coram’s Fields Children’s play park is just over the road from the venue. Will there be lunch?Yes\, a light lunch will be provided\, and seating will be available. Will I get a chance to speak to other families / people affected by OA/TOF?Yes\, we will have both lunch and refreshment breaks to allow you chance to chat with other attendees. Is there wheelchair access?We are very grateful to Great Ormond Street Hospital for providing our venue for the day. However\, this is an older building and while the venue is accessible to all\, the lecture theatre itself is accessible via stairs only. If you have any disability that may affect your access or participation in the event\, please let us know when ordering your tickets.Is there a cancellation deadline?Yes. If you can no longer attend\, please let us know via info@tofs.org.uk no later than 7 days before the seminar. This is to ensure that we only cater for the correct number of guests. Where is the seminar taking place?UCL Great Ormond Street Institute of Child Health\, WC1N 1EH If you have any further questions\, please contact us. 								\n				\n					\n		\n				\n			\n						\n				\n									\n					\n				\n											\n									\n\n			\n					\n								\n											\n									\n\n			\n					\n								\n											\n									\n\n			\n					\n								\n									\n															\n													\n						\n													\n																\n												\n				\n								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					How to get there				\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Where is the seminar?				\n				\n				\n				\n									The seminar is at the Institute of Child Health (ICH)\, which is a part of University College London – but situated on the GOSH site. The entrance to ICH is at 30 Guilford Street\, just north of Great Ormond Street itself. Postcode is WC1N 1 EH. 								\n				\n					\n		\n				\n			\n						\n				\n																\n															\n															\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									TOFS 2026 Seminar Important Update:We’ve been made aware that there is a part closure on the Piccadilly Line on Saturday. Depending on which direction you’re coming from\, please walk from Holborn Station (we believe the central line is open) or get off the train at Kings Cross/St Pancras and walk from there. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Public transport				\n				\n				\n				\n									The nearest tube station to ICH / GOSH is Russell Square on the Piccadilly Line. The next closest is Holborn\, on the Central and Piccadilly lines. Kings Cross and Euston stations are both only 0.8 miles away. Farringdon station (Elizabeth line and Metropolitan / Circle plus some overground commuter trains from Brighton\, Cambridge\, Huntingdon) is 0.9 miles. 								\n				\n				\n				\n					Travelling by car				\n				\n				\n				\n									Please note\, the venue is within both the London congestion charge zone and the  ULEZ (Ultra Low Emission) zone. There is some on-street metered parking around GOSH\, including in Guilford Street itself.  Much of this becomes free after 13:30 on a Saturday.  Moreover a significant amount of residents-only parking in this area becomes derestricted (i.e. free) on a Saturday afternoon. There are large underground public car parks close to GOSH at: Brunswick square (NCP) – postcode WC1N 1AF; the Imperial Hotel in Russell Square and underneath the Holiday Inn -Bloomsbury\, postcode WC1N 1HT. 								\n				\n					\n		\n				\n			\n						\n				\n					Outer London Tube stations with parking				\n				\n				\n				\n									Several tube stations near the end of the network in the North and West segments of outer London are close to the M25 and to some of the motorways into London. Unfortunately\, most of the stations listed below are within the ULEZ zone but  outside of the London congestion charge zone. Hillingdon (Metropolitan and Piccadilly lines). Has a car park which TfL says has 283 spaces. Postcode is UB10 9NR. This station is next to a junction on the A40 Western Avenue road\, only 5 miles from the M25 /M40 junction. Moreover\, the next station along the line (Ickenham) also has a large car park effectively providing an overflow car park. Stanmore (Jubilee line). Has a car park which TfL says has 450 spaces. Postcode is HA7 4PD. From the A41 Edgware way\, this is a direct drive along London Road. The A41 is accessed directly from M1 junction 4\, which is only 2 miles from the station. This is also close to the main A1 road. Cockfosters (Piccadilly line) Has a car park which TfL says has 232 spaces. Postcode is EN4 0DZ. It is a direct 3 mile drive down the A111 from the Potter’s Bar Junction (24) of the M25. Epping (Central line) Has a car park which Sabaparking says has 532 spaces. This station is outside the London ULEZ near to the junction of the M11 and M25. It is however not so convenient from the viewpoint of motorway junctions. Postcode is CM16 4HW.  Debden (Central line) Has a car park which Sabaparking says has 206 spaces. It is however only half a mile along the A 1168 from M11 junction 5 and also outside London ULEZ. Postcode is IG10 3TG. Upminster (District line) The car park here appears to be run by NCP\, which says there are 342 spaces. Postcode is RM14 2TD. It is only 3 miles from M25 junction 29\, via a route involving the A127 toward London. However it is inside the ULEZ. This might be a good option for those coming from East Anglia. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Nearby places to eat				\n				\n				\n				\n									Brunswick centre (https://maps.app.goo.gl/UwBNKmhUe9ciib1G9)  and opposite Russell Square station have a wide variety of places to eat\, including: Itsu\, Nandos\, LEON\, Pret\, Franco MancaLamb’s conduit street has a number of higher end restaurants.Redemptions roasters (Lamb’s conduit street) are great for coffee.
URL:https://tofs.org.uk/event/big-splash-swimathon-2025/
LOCATION:Various locations
CATEGORIES:Fundraising
ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2025/04/big-splash-icon.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20251029T160000
DTEND;TZID=Europe/London:20251029T170000
DTSTAMP:20260423T111530
CREATED:20251001T150809Z
LAST-MODIFIED:20251023T140247Z
UID:10000131-1761753600-1761757200@tofs.org.uk
SUMMARY:ERS: Panel discussion on lifelong respiratory care in OA/TOF & CDH
DESCRIPTION:TOFS 2026 Seminar Important Update:We’ve been made aware that there is a part closure on the Piccadilly Line on Saturday. Depending on which direction you’re coming from\, please walk from Holborn Station (we believe the central line is open) or get off the train at Kings Cross/St Pancras and walk from there. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									The TOFS seminar is being held at the Institute of Child Health (ICH)\, London on Saturday\, 21st March\, 2026. Why attendJoin us for our in-person OA/TOF Seminar in London to hear from some of the UK’s leading specialists on the work being done to improve the care of today’s OA/TOF children and to address the long-term issues affecting adults born with the condition. This is a great opportunity to meet\, make connections and share experiences with other families and adults born with OA/TOF and associated conditions. Who should attend?This seminar is aimed at adults born with OA/TOF\, parents and carers of children born with OA/TOF and medical professionals. Note: Registration on the day opens at 9.30am with presentations beginning at 10.30am. 								\n				\n				\n				\n									\n					\n						\n						\n							\n									CLICK HERE FOR TICKETS\n					\n					\n				\n								\n				\n					\n		\n				\n			\n						\n				\n									Event co-sponsored by  								\n				\n				\n				\n																														\n				\n				\n				\n																\n															\n															\n				\n				\n				\n									NIHR Great Ormond Street Hospital Biomedical Research Centre 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n				\n				\n					Presentations				\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Eating\, drinking & swallowing difficulties children born with OA/TOF								\n				\n				\n				\n									Presented by Dr Alex Stewart – Speech and Language Therapist (GOSH) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Experience of parents of children born with oesophageal atresia								\n				\n				\n				\n									Presented by Dr Vuokko Wallace – Clinical Psychologist\, University of Bath 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Gastro issues and Eosinophilic Oesophagitis (EoE) in OA/TOF patients								\n				\n				\n				\n									Presented by Dr Osvaldo Borrelli – Head of Clinical Service\, Consultant Paediatric Gastroenterologist (GOSH) and Honorary Senior Lecturer (UCL) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Role of TOF Multi Disciplinary Team (MDT) pathway in improving care in oesophageal atresia								\n				\n				\n				\n									Presented by Ms Dhanya Mullassery – Consultant Neonatal and Paediatric Surgeon (GOSH) and Honorary Senior Lecturer (UCL) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Respiratory updates from the INoEA (International Network of Esophageal Atresia) conference and ERS (European Respiratory Society) congress								\n				\n				\n				\n									Presented by Dr Caroline Love\, Chair of TOFS Medical Liaison & Research Subcommittee and Patient Advisory Committee member of the European Lung Foundation (ELF) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									Click here to see the full schedule 								\n				\n				\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									Any Questions?When is the seminar?The seminar is on March 21st\, 2026. Registration on the day opens at 9.30am with presentations beginning at 10.30am. The seminar will close at 4.30pm. How much are tickets?Tickets are free to TOFS’ Members\, Associates and Health Professionals. If you wish to join TOFS\, please sign up at – tofs.org.uk/join-tofs/ Is this a TOFS party?No\, this is an information seminar. Can I watch the seminar online?This is an in-person event only and will not be live streamed. We encourage members to attend in person to get the full benefits of the event\, listening to the speakers; interacting with the Q&A and discussion sessions; meeting TOFS volunteers and staff and chatting with other members of TOFS who will be attending. Some of the presentations may be recorded and posted online\, at a later date. Can I bring my child/children?Yes\, but you might prefer not to. Children below secondary school age are not permitted into the lecture room while presentations are being made. A separate room will be available on the day for families\, and the presentations will be relayed to a screen in that room. All children must be cared for by a responsible adult at all times. The excellent Coram’s Fields Children’s play park is just over the road from the venue. Will there be lunch?Yes\, a light lunch will be provided\, and seating will be available. Will I get a chance to speak to other families / people affected by OA/TOF?Yes\, we will have both lunch and refreshment breaks to allow you chance to chat with other attendees. Is there wheelchair access?We are very grateful to Great Ormond Street Hospital for providing our venue for the day. However\, this is an older building and while the venue is accessible to all\, the lecture theatre itself is accessible via stairs only. If you have any disability that may affect your access or participation in the event\, please let us know when ordering your tickets.Is there a cancellation deadline?Yes. If you can no longer attend\, please let us know via info@tofs.org.uk no later than 7 days before the seminar. This is to ensure that we only cater for the correct number of guests. Where is the seminar taking place?UCL Great Ormond Street Institute of Child Health\, WC1N 1EH If you have any further questions\, please contact us. 								\n				\n					\n		\n				\n			\n						\n				\n									\n					\n				\n											\n									\n\n			\n					\n								\n											\n									\n\n			\n					\n								\n											\n									\n\n			\n					\n								\n									\n															\n													\n						\n													\n																\n												\n				\n								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					How to get there				\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Where is the seminar?				\n				\n				\n				\n									The seminar is at the Institute of Child Health (ICH)\, which is a part of University College London – but situated on the GOSH site. The entrance to ICH is at 30 Guilford Street\, just north of Great Ormond Street itself. Postcode is WC1N 1 EH. 								\n				\n					\n		\n				\n			\n						\n				\n																\n															\n															\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									TOFS 2026 Seminar Important Update:We’ve been made aware that there is a part closure on the Piccadilly Line on Saturday. Depending on which direction you’re coming from\, please walk from Holborn Station (we believe the central line is open) or get off the train at Kings Cross/St Pancras and walk from there. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Public transport				\n				\n				\n				\n									The nearest tube station to ICH / GOSH is Russell Square on the Piccadilly Line. The next closest is Holborn\, on the Central and Piccadilly lines. Kings Cross and Euston stations are both only 0.8 miles away. Farringdon station (Elizabeth line and Metropolitan / Circle plus some overground commuter trains from Brighton\, Cambridge\, Huntingdon) is 0.9 miles. 								\n				\n				\n				\n					Travelling by car				\n				\n				\n				\n									Please note\, the venue is within both the London congestion charge zone and the  ULEZ (Ultra Low Emission) zone. There is some on-street metered parking around GOSH\, including in Guilford Street itself.  Much of this becomes free after 13:30 on a Saturday.  Moreover a significant amount of residents-only parking in this area becomes derestricted (i.e. free) on a Saturday afternoon. There are large underground public car parks close to GOSH at: Brunswick square (NCP) – postcode WC1N 1AF; the Imperial Hotel in Russell Square and underneath the Holiday Inn -Bloomsbury\, postcode WC1N 1HT. 								\n				\n					\n		\n				\n			\n						\n				\n					Outer London Tube stations with parking				\n				\n				\n				\n									Several tube stations near the end of the network in the North and West segments of outer London are close to the M25 and to some of the motorways into London. Unfortunately\, most of the stations listed below are within the ULEZ zone but  outside of the London congestion charge zone. Hillingdon (Metropolitan and Piccadilly lines). Has a car park which TfL says has 283 spaces. Postcode is UB10 9NR. This station is next to a junction on the A40 Western Avenue road\, only 5 miles from the M25 /M40 junction. Moreover\, the next station along the line (Ickenham) also has a large car park effectively providing an overflow car park. Stanmore (Jubilee line). Has a car park which TfL says has 450 spaces. Postcode is HA7 4PD. From the A41 Edgware way\, this is a direct drive along London Road. The A41 is accessed directly from M1 junction 4\, which is only 2 miles from the station. This is also close to the main A1 road. Cockfosters (Piccadilly line) Has a car park which TfL says has 232 spaces. Postcode is EN4 0DZ. It is a direct 3 mile drive down the A111 from the Potter’s Bar Junction (24) of the M25. Epping (Central line) Has a car park which Sabaparking says has 532 spaces. This station is outside the London ULEZ near to the junction of the M11 and M25. It is however not so convenient from the viewpoint of motorway junctions. Postcode is CM16 4HW.  Debden (Central line) Has a car park which Sabaparking says has 206 spaces. It is however only half a mile along the A 1168 from M11 junction 5 and also outside London ULEZ. Postcode is IG10 3TG. Upminster (District line) The car park here appears to be run by NCP\, which says there are 342 spaces. Postcode is RM14 2TD. It is only 3 miles from M25 junction 29\, via a route involving the A127 toward London. However it is inside the ULEZ. This might be a good option for those coming from East Anglia. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Nearby places to eat				\n				\n				\n				\n									Brunswick centre (https://maps.app.goo.gl/UwBNKmhUe9ciib1G9)  and opposite Russell Square station have a wide variety of places to eat\, including: Itsu\, Nandos\, LEON\, Pret\, Franco MancaLamb’s conduit street has a number of higher end restaurants.Redemptions roasters (Lamb’s conduit street) are great for coffee.
URL:https://tofs.org.uk/event/ers-panel-discussion-on-lifelong-respiratory-care-in-oa-tof-cdh/
LOCATION:Online
CATEGORIES:Professional
ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2025/10/ERS-European-Respiratory-Society-logo.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20251106T200000
DTEND;TZID=Europe/London:20251106T210000
DTSTAMP:20260423T111530
CREATED:20250812T102630Z
LAST-MODIFIED:20250812T102641Z
UID:10000126-1762459200-1762462800@tofs.org.uk
SUMMARY:Virtual meet-up for adults born with OA/TOF
DESCRIPTION:TOFS 2026 Seminar Important Update:We’ve been made aware that there is a part closure on the Piccadilly Line on Saturday. Depending on which direction you’re coming from\, please walk from Holborn Station (we believe the central line is open) or get off the train at Kings Cross/St Pancras and walk from there. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									The TOFS seminar is being held at the Institute of Child Health (ICH)\, London on Saturday\, 21st March\, 2026. Why attendJoin us for our in-person OA/TOF Seminar in London to hear from some of the UK’s leading specialists on the work being done to improve the care of today’s OA/TOF children and to address the long-term issues affecting adults born with the condition. This is a great opportunity to meet\, make connections and share experiences with other families and adults born with OA/TOF and associated conditions. Who should attend?This seminar is aimed at adults born with OA/TOF\, parents and carers of children born with OA/TOF and medical professionals. Note: Registration on the day opens at 9.30am with presentations beginning at 10.30am. 								\n				\n				\n				\n									\n					\n						\n						\n							\n									CLICK HERE FOR TICKETS\n					\n					\n				\n								\n				\n					\n		\n				\n			\n						\n				\n									Event co-sponsored by  								\n				\n				\n				\n																														\n				\n				\n				\n																\n															\n															\n				\n				\n				\n									NIHR Great Ormond Street Hospital Biomedical Research Centre 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n				\n				\n					Presentations				\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Eating\, drinking & swallowing difficulties children born with OA/TOF								\n				\n				\n				\n									Presented by Dr Alex Stewart – Speech and Language Therapist (GOSH) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Experience of parents of children born with oesophageal atresia								\n				\n				\n				\n									Presented by Dr Vuokko Wallace – Clinical Psychologist\, University of Bath 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Gastro issues and Eosinophilic Oesophagitis (EoE) in OA/TOF patients								\n				\n				\n				\n									Presented by Dr Osvaldo Borrelli – Head of Clinical Service\, Consultant Paediatric Gastroenterologist (GOSH) and Honorary Senior Lecturer (UCL) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Role of TOF Multi Disciplinary Team (MDT) pathway in improving care in oesophageal atresia								\n				\n				\n				\n									Presented by Ms Dhanya Mullassery – Consultant Neonatal and Paediatric Surgeon (GOSH) and Honorary Senior Lecturer (UCL) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Respiratory updates from the INoEA (International Network of Esophageal Atresia) conference and ERS (European Respiratory Society) congress								\n				\n				\n				\n									Presented by Dr Caroline Love\, Chair of TOFS Medical Liaison & Research Subcommittee and Patient Advisory Committee member of the European Lung Foundation (ELF) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									Click here to see the full schedule 								\n				\n				\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									Any Questions?When is the seminar?The seminar is on March 21st\, 2026. Registration on the day opens at 9.30am with presentations beginning at 10.30am. The seminar will close at 4.30pm. How much are tickets?Tickets are free to TOFS’ Members\, Associates and Health Professionals. If you wish to join TOFS\, please sign up at – tofs.org.uk/join-tofs/ Is this a TOFS party?No\, this is an information seminar. Can I watch the seminar online?This is an in-person event only and will not be live streamed. We encourage members to attend in person to get the full benefits of the event\, listening to the speakers; interacting with the Q&A and discussion sessions; meeting TOFS volunteers and staff and chatting with other members of TOFS who will be attending. Some of the presentations may be recorded and posted online\, at a later date. Can I bring my child/children?Yes\, but you might prefer not to. Children below secondary school age are not permitted into the lecture room while presentations are being made. A separate room will be available on the day for families\, and the presentations will be relayed to a screen in that room. All children must be cared for by a responsible adult at all times. The excellent Coram’s Fields Children’s play park is just over the road from the venue. Will there be lunch?Yes\, a light lunch will be provided\, and seating will be available. Will I get a chance to speak to other families / people affected by OA/TOF?Yes\, we will have both lunch and refreshment breaks to allow you chance to chat with other attendees. Is there wheelchair access?We are very grateful to Great Ormond Street Hospital for providing our venue for the day. However\, this is an older building and while the venue is accessible to all\, the lecture theatre itself is accessible via stairs only. If you have any disability that may affect your access or participation in the event\, please let us know when ordering your tickets.Is there a cancellation deadline?Yes. If you can no longer attend\, please let us know via info@tofs.org.uk no later than 7 days before the seminar. This is to ensure that we only cater for the correct number of guests. Where is the seminar taking place?UCL Great Ormond Street Institute of Child Health\, WC1N 1EH If you have any further questions\, please contact us. 								\n				\n					\n		\n				\n			\n						\n				\n									\n					\n				\n											\n									\n\n			\n					\n								\n											\n									\n\n			\n					\n								\n											\n									\n\n			\n					\n								\n									\n															\n													\n						\n													\n																\n												\n				\n								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					How to get there				\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Where is the seminar?				\n				\n				\n				\n									The seminar is at the Institute of Child Health (ICH)\, which is a part of University College London – but situated on the GOSH site. The entrance to ICH is at 30 Guilford Street\, just north of Great Ormond Street itself. Postcode is WC1N 1 EH. 								\n				\n					\n		\n				\n			\n						\n				\n																\n															\n															\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									TOFS 2026 Seminar Important Update:We’ve been made aware that there is a part closure on the Piccadilly Line on Saturday. Depending on which direction you’re coming from\, please walk from Holborn Station (we believe the central line is open) or get off the train at Kings Cross/St Pancras and walk from there. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Public transport				\n				\n				\n				\n									The nearest tube station to ICH / GOSH is Russell Square on the Piccadilly Line. The next closest is Holborn\, on the Central and Piccadilly lines. Kings Cross and Euston stations are both only 0.8 miles away. Farringdon station (Elizabeth line and Metropolitan / Circle plus some overground commuter trains from Brighton\, Cambridge\, Huntingdon) is 0.9 miles. 								\n				\n				\n				\n					Travelling by car				\n				\n				\n				\n									Please note\, the venue is within both the London congestion charge zone and the  ULEZ (Ultra Low Emission) zone. There is some on-street metered parking around GOSH\, including in Guilford Street itself.  Much of this becomes free after 13:30 on a Saturday.  Moreover a significant amount of residents-only parking in this area becomes derestricted (i.e. free) on a Saturday afternoon. There are large underground public car parks close to GOSH at: Brunswick square (NCP) – postcode WC1N 1AF; the Imperial Hotel in Russell Square and underneath the Holiday Inn -Bloomsbury\, postcode WC1N 1HT. 								\n				\n					\n		\n				\n			\n						\n				\n					Outer London Tube stations with parking				\n				\n				\n				\n									Several tube stations near the end of the network in the North and West segments of outer London are close to the M25 and to some of the motorways into London. Unfortunately\, most of the stations listed below are within the ULEZ zone but  outside of the London congestion charge zone. Hillingdon (Metropolitan and Piccadilly lines). Has a car park which TfL says has 283 spaces. Postcode is UB10 9NR. This station is next to a junction on the A40 Western Avenue road\, only 5 miles from the M25 /M40 junction. Moreover\, the next station along the line (Ickenham) also has a large car park effectively providing an overflow car park. Stanmore (Jubilee line). Has a car park which TfL says has 450 spaces. Postcode is HA7 4PD. From the A41 Edgware way\, this is a direct drive along London Road. The A41 is accessed directly from M1 junction 4\, which is only 2 miles from the station. This is also close to the main A1 road. Cockfosters (Piccadilly line) Has a car park which TfL says has 232 spaces. Postcode is EN4 0DZ. It is a direct 3 mile drive down the A111 from the Potter’s Bar Junction (24) of the M25. Epping (Central line) Has a car park which Sabaparking says has 532 spaces. This station is outside the London ULEZ near to the junction of the M11 and M25. It is however not so convenient from the viewpoint of motorway junctions. Postcode is CM16 4HW.  Debden (Central line) Has a car park which Sabaparking says has 206 spaces. It is however only half a mile along the A 1168 from M11 junction 5 and also outside London ULEZ. Postcode is IG10 3TG. Upminster (District line) The car park here appears to be run by NCP\, which says there are 342 spaces. Postcode is RM14 2TD. It is only 3 miles from M25 junction 29\, via a route involving the A127 toward London. However it is inside the ULEZ. This might be a good option for those coming from East Anglia. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Nearby places to eat				\n				\n				\n				\n									Brunswick centre (https://maps.app.goo.gl/UwBNKmhUe9ciib1G9)  and opposite Russell Square station have a wide variety of places to eat\, including: Itsu\, Nandos\, LEON\, Pret\, Franco MancaLamb’s conduit street has a number of higher end restaurants.Redemptions roasters (Lamb’s conduit street) are great for coffee.
URL:https://tofs.org.uk/event/virtual-meet-up-for-adults-born-with-oa-tof-5/
LOCATION:Online
CATEGORIES:Adult TOF
ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2025/08/cuppa-and-chat-11-Nov25.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20251112T110000
DTEND;TZID=Europe/London:20251112T120000
DTSTAMP:20260423T111530
CREATED:20251003T112504Z
LAST-MODIFIED:20251015T114914Z
UID:10000132-1762945200-1762948800@tofs.org.uk
SUMMARY:Parent & Carer virtual meet-up
DESCRIPTION:TOFS 2026 Seminar Important Update:We’ve been made aware that there is a part closure on the Piccadilly Line on Saturday. Depending on which direction you’re coming from\, please walk from Holborn Station (we believe the central line is open) or get off the train at Kings Cross/St Pancras and walk from there. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									The TOFS seminar is being held at the Institute of Child Health (ICH)\, London on Saturday\, 21st March\, 2026. Why attendJoin us for our in-person OA/TOF Seminar in London to hear from some of the UK’s leading specialists on the work being done to improve the care of today’s OA/TOF children and to address the long-term issues affecting adults born with the condition. This is a great opportunity to meet\, make connections and share experiences with other families and adults born with OA/TOF and associated conditions. Who should attend?This seminar is aimed at adults born with OA/TOF\, parents and carers of children born with OA/TOF and medical professionals. Note: Registration on the day opens at 9.30am with presentations beginning at 10.30am. 								\n				\n				\n				\n									\n					\n						\n						\n							\n									CLICK HERE FOR TICKETS\n					\n					\n				\n								\n				\n					\n		\n				\n			\n						\n				\n									Event co-sponsored by  								\n				\n				\n				\n																														\n				\n				\n				\n																\n															\n															\n				\n				\n				\n									NIHR Great Ormond Street Hospital Biomedical Research Centre 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n				\n				\n					Presentations				\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Eating\, drinking & swallowing difficulties children born with OA/TOF								\n				\n				\n				\n									Presented by Dr Alex Stewart – Speech and Language Therapist (GOSH) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Experience of parents of children born with oesophageal atresia								\n				\n				\n				\n									Presented by Dr Vuokko Wallace – Clinical Psychologist\, University of Bath 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Gastro issues and Eosinophilic Oesophagitis (EoE) in OA/TOF patients								\n				\n				\n				\n									Presented by Dr Osvaldo Borrelli – Head of Clinical Service\, Consultant Paediatric Gastroenterologist (GOSH) and Honorary Senior Lecturer (UCL) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Role of TOF Multi Disciplinary Team (MDT) pathway in improving care in oesophageal atresia								\n				\n				\n				\n									Presented by Ms Dhanya Mullassery – Consultant Neonatal and Paediatric Surgeon (GOSH) and Honorary Senior Lecturer (UCL) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Respiratory updates from the INoEA (International Network of Esophageal Atresia) conference and ERS (European Respiratory Society) congress								\n				\n				\n				\n									Presented by Dr Caroline Love\, Chair of TOFS Medical Liaison & Research Subcommittee and Patient Advisory Committee member of the European Lung Foundation (ELF) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									Click here to see the full schedule 								\n				\n				\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									Any Questions?When is the seminar?The seminar is on March 21st\, 2026. Registration on the day opens at 9.30am with presentations beginning at 10.30am. The seminar will close at 4.30pm. How much are tickets?Tickets are free to TOFS’ Members\, Associates and Health Professionals. If you wish to join TOFS\, please sign up at – tofs.org.uk/join-tofs/ Is this a TOFS party?No\, this is an information seminar. Can I watch the seminar online?This is an in-person event only and will not be live streamed. We encourage members to attend in person to get the full benefits of the event\, listening to the speakers; interacting with the Q&A and discussion sessions; meeting TOFS volunteers and staff and chatting with other members of TOFS who will be attending. Some of the presentations may be recorded and posted online\, at a later date. Can I bring my child/children?Yes\, but you might prefer not to. Children below secondary school age are not permitted into the lecture room while presentations are being made. A separate room will be available on the day for families\, and the presentations will be relayed to a screen in that room. All children must be cared for by a responsible adult at all times. The excellent Coram’s Fields Children’s play park is just over the road from the venue. Will there be lunch?Yes\, a light lunch will be provided\, and seating will be available. Will I get a chance to speak to other families / people affected by OA/TOF?Yes\, we will have both lunch and refreshment breaks to allow you chance to chat with other attendees. Is there wheelchair access?We are very grateful to Great Ormond Street Hospital for providing our venue for the day. However\, this is an older building and while the venue is accessible to all\, the lecture theatre itself is accessible via stairs only. If you have any disability that may affect your access or participation in the event\, please let us know when ordering your tickets.Is there a cancellation deadline?Yes. If you can no longer attend\, please let us know via info@tofs.org.uk no later than 7 days before the seminar. This is to ensure that we only cater for the correct number of guests. Where is the seminar taking place?UCL Great Ormond Street Institute of Child Health\, WC1N 1EH If you have any further questions\, please contact us. 								\n				\n					\n		\n				\n			\n						\n				\n									\n					\n				\n											\n									\n\n			\n					\n								\n											\n									\n\n			\n					\n								\n											\n									\n\n			\n					\n								\n									\n															\n													\n						\n													\n																\n												\n				\n								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					How to get there				\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Where is the seminar?				\n				\n				\n				\n									The seminar is at the Institute of Child Health (ICH)\, which is a part of University College London – but situated on the GOSH site. The entrance to ICH is at 30 Guilford Street\, just north of Great Ormond Street itself. Postcode is WC1N 1 EH. 								\n				\n					\n		\n				\n			\n						\n				\n																\n															\n															\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									TOFS 2026 Seminar Important Update:We’ve been made aware that there is a part closure on the Piccadilly Line on Saturday. Depending on which direction you’re coming from\, please walk from Holborn Station (we believe the central line is open) or get off the train at Kings Cross/St Pancras and walk from there. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Public transport				\n				\n				\n				\n									The nearest tube station to ICH / GOSH is Russell Square on the Piccadilly Line. The next closest is Holborn\, on the Central and Piccadilly lines. Kings Cross and Euston stations are both only 0.8 miles away. Farringdon station (Elizabeth line and Metropolitan / Circle plus some overground commuter trains from Brighton\, Cambridge\, Huntingdon) is 0.9 miles. 								\n				\n				\n				\n					Travelling by car				\n				\n				\n				\n									Please note\, the venue is within both the London congestion charge zone and the  ULEZ (Ultra Low Emission) zone. There is some on-street metered parking around GOSH\, including in Guilford Street itself.  Much of this becomes free after 13:30 on a Saturday.  Moreover a significant amount of residents-only parking in this area becomes derestricted (i.e. free) on a Saturday afternoon. There are large underground public car parks close to GOSH at: Brunswick square (NCP) – postcode WC1N 1AF; the Imperial Hotel in Russell Square and underneath the Holiday Inn -Bloomsbury\, postcode WC1N 1HT. 								\n				\n					\n		\n				\n			\n						\n				\n					Outer London Tube stations with parking				\n				\n				\n				\n									Several tube stations near the end of the network in the North and West segments of outer London are close to the M25 and to some of the motorways into London. Unfortunately\, most of the stations listed below are within the ULEZ zone but  outside of the London congestion charge zone. Hillingdon (Metropolitan and Piccadilly lines). Has a car park which TfL says has 283 spaces. Postcode is UB10 9NR. This station is next to a junction on the A40 Western Avenue road\, only 5 miles from the M25 /M40 junction. Moreover\, the next station along the line (Ickenham) also has a large car park effectively providing an overflow car park. Stanmore (Jubilee line). Has a car park which TfL says has 450 spaces. Postcode is HA7 4PD. From the A41 Edgware way\, this is a direct drive along London Road. The A41 is accessed directly from M1 junction 4\, which is only 2 miles from the station. This is also close to the main A1 road. Cockfosters (Piccadilly line) Has a car park which TfL says has 232 spaces. Postcode is EN4 0DZ. It is a direct 3 mile drive down the A111 from the Potter’s Bar Junction (24) of the M25. Epping (Central line) Has a car park which Sabaparking says has 532 spaces. This station is outside the London ULEZ near to the junction of the M11 and M25. It is however not so convenient from the viewpoint of motorway junctions. Postcode is CM16 4HW.  Debden (Central line) Has a car park which Sabaparking says has 206 spaces. It is however only half a mile along the A 1168 from M11 junction 5 and also outside London ULEZ. Postcode is IG10 3TG. Upminster (District line) The car park here appears to be run by NCP\, which says there are 342 spaces. Postcode is RM14 2TD. It is only 3 miles from M25 junction 29\, via a route involving the A127 toward London. However it is inside the ULEZ. This might be a good option for those coming from East Anglia. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Nearby places to eat				\n				\n				\n				\n									Brunswick centre (https://maps.app.goo.gl/UwBNKmhUe9ciib1G9)  and opposite Russell Square station have a wide variety of places to eat\, including: Itsu\, Nandos\, LEON\, Pret\, Franco MancaLamb’s conduit street has a number of higher end restaurants.Redemptions roasters (Lamb’s conduit street) are great for coffee.
URL:https://tofs.org.uk/event/parent-carer-virtual-meet-up-2/
LOCATION:Online
CATEGORIES:Parents & Carers
ATTACH;FMTTYPE=image/jpeg:https://tofs.org.uk/wp-content/uploads/2025/10/11-25-Parent-Cuppa-and-chat.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20251115
DTEND;VALUE=DATE:20251117
DTSTAMP:20260423T111530
CREATED:20250411T150643Z
LAST-MODIFIED:20251031T105059Z
UID:10000113-1763164800-1763337599@tofs.org.uk
SUMMARY:Run Alton Towers 5k/10k/Half Marathon
DESCRIPTION:TOFS 2026 Seminar Important Update:We’ve been made aware that there is a part closure on the Piccadilly Line on Saturday. Depending on which direction you’re coming from\, please walk from Holborn Station (we believe the central line is open) or get off the train at Kings Cross/St Pancras and walk from there. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									The TOFS seminar is being held at the Institute of Child Health (ICH)\, London on Saturday\, 21st March\, 2026. Why attendJoin us for our in-person OA/TOF Seminar in London to hear from some of the UK’s leading specialists on the work being done to improve the care of today’s OA/TOF children and to address the long-term issues affecting adults born with the condition. This is a great opportunity to meet\, make connections and share experiences with other families and adults born with OA/TOF and associated conditions. Who should attend?This seminar is aimed at adults born with OA/TOF\, parents and carers of children born with OA/TOF and medical professionals. Note: Registration on the day opens at 9.30am with presentations beginning at 10.30am. 								\n				\n				\n				\n									\n					\n						\n						\n							\n									CLICK HERE FOR TICKETS\n					\n					\n				\n								\n				\n					\n		\n				\n			\n						\n				\n									Event co-sponsored by  								\n				\n				\n				\n																														\n				\n				\n				\n																\n															\n															\n				\n				\n				\n									NIHR Great Ormond Street Hospital Biomedical Research Centre 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n				\n				\n					Presentations				\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Eating\, drinking & swallowing difficulties children born with OA/TOF								\n				\n				\n				\n									Presented by Dr Alex Stewart – Speech and Language Therapist (GOSH) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Experience of parents of children born with oesophageal atresia								\n				\n				\n				\n									Presented by Dr Vuokko Wallace – Clinical Psychologist\, University of Bath 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Gastro issues and Eosinophilic Oesophagitis (EoE) in OA/TOF patients								\n				\n				\n				\n									Presented by Dr Osvaldo Borrelli – Head of Clinical Service\, Consultant Paediatric Gastroenterologist (GOSH) and Honorary Senior Lecturer (UCL) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Role of TOF Multi Disciplinary Team (MDT) pathway in improving care in oesophageal atresia								\n				\n				\n				\n									Presented by Ms Dhanya Mullassery – Consultant Neonatal and Paediatric Surgeon (GOSH) and Honorary Senior Lecturer (UCL) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Respiratory updates from the INoEA (International Network of Esophageal Atresia) conference and ERS (European Respiratory Society) congress								\n				\n				\n				\n									Presented by Dr Caroline Love\, Chair of TOFS Medical Liaison & Research Subcommittee and Patient Advisory Committee member of the European Lung Foundation (ELF) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									Click here to see the full schedule 								\n				\n				\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									Any Questions?When is the seminar?The seminar is on March 21st\, 2026. Registration on the day opens at 9.30am with presentations beginning at 10.30am. The seminar will close at 4.30pm. How much are tickets?Tickets are free to TOFS’ Members\, Associates and Health Professionals. If you wish to join TOFS\, please sign up at – tofs.org.uk/join-tofs/ Is this a TOFS party?No\, this is an information seminar. Can I watch the seminar online?This is an in-person event only and will not be live streamed. We encourage members to attend in person to get the full benefits of the event\, listening to the speakers; interacting with the Q&A and discussion sessions; meeting TOFS volunteers and staff and chatting with other members of TOFS who will be attending. Some of the presentations may be recorded and posted online\, at a later date. Can I bring my child/children?Yes\, but you might prefer not to. Children below secondary school age are not permitted into the lecture room while presentations are being made. A separate room will be available on the day for families\, and the presentations will be relayed to a screen in that room. All children must be cared for by a responsible adult at all times. The excellent Coram’s Fields Children’s play park is just over the road from the venue. Will there be lunch?Yes\, a light lunch will be provided\, and seating will be available. Will I get a chance to speak to other families / people affected by OA/TOF?Yes\, we will have both lunch and refreshment breaks to allow you chance to chat with other attendees. Is there wheelchair access?We are very grateful to Great Ormond Street Hospital for providing our venue for the day. However\, this is an older building and while the venue is accessible to all\, the lecture theatre itself is accessible via stairs only. If you have any disability that may affect your access or participation in the event\, please let us know when ordering your tickets.Is there a cancellation deadline?Yes. If you can no longer attend\, please let us know via info@tofs.org.uk no later than 7 days before the seminar. This is to ensure that we only cater for the correct number of guests. Where is the seminar taking place?UCL Great Ormond Street Institute of Child Health\, WC1N 1EH If you have any further questions\, please contact us. 								\n				\n					\n		\n				\n			\n						\n				\n									\n					\n				\n											\n									\n\n			\n					\n								\n											\n									\n\n			\n					\n								\n											\n									\n\n			\n					\n								\n									\n															\n													\n						\n													\n																\n												\n				\n								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					How to get there				\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Where is the seminar?				\n				\n				\n				\n									The seminar is at the Institute of Child Health (ICH)\, which is a part of University College London – but situated on the GOSH site. The entrance to ICH is at 30 Guilford Street\, just north of Great Ormond Street itself. Postcode is WC1N 1 EH. 								\n				\n					\n		\n				\n			\n						\n				\n																\n															\n															\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									TOFS 2026 Seminar Important Update:We’ve been made aware that there is a part closure on the Piccadilly Line on Saturday. Depending on which direction you’re coming from\, please walk from Holborn Station (we believe the central line is open) or get off the train at Kings Cross/St Pancras and walk from there. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Public transport				\n				\n				\n				\n									The nearest tube station to ICH / GOSH is Russell Square on the Piccadilly Line. The next closest is Holborn\, on the Central and Piccadilly lines. Kings Cross and Euston stations are both only 0.8 miles away. Farringdon station (Elizabeth line and Metropolitan / Circle plus some overground commuter trains from Brighton\, Cambridge\, Huntingdon) is 0.9 miles. 								\n				\n				\n				\n					Travelling by car				\n				\n				\n				\n									Please note\, the venue is within both the London congestion charge zone and the  ULEZ (Ultra Low Emission) zone. There is some on-street metered parking around GOSH\, including in Guilford Street itself.  Much of this becomes free after 13:30 on a Saturday.  Moreover a significant amount of residents-only parking in this area becomes derestricted (i.e. free) on a Saturday afternoon. There are large underground public car parks close to GOSH at: Brunswick square (NCP) – postcode WC1N 1AF; the Imperial Hotel in Russell Square and underneath the Holiday Inn -Bloomsbury\, postcode WC1N 1HT. 								\n				\n					\n		\n				\n			\n						\n				\n					Outer London Tube stations with parking				\n				\n				\n				\n									Several tube stations near the end of the network in the North and West segments of outer London are close to the M25 and to some of the motorways into London. Unfortunately\, most of the stations listed below are within the ULEZ zone but  outside of the London congestion charge zone. Hillingdon (Metropolitan and Piccadilly lines). Has a car park which TfL says has 283 spaces. Postcode is UB10 9NR. This station is next to a junction on the A40 Western Avenue road\, only 5 miles from the M25 /M40 junction. Moreover\, the next station along the line (Ickenham) also has a large car park effectively providing an overflow car park. Stanmore (Jubilee line). Has a car park which TfL says has 450 spaces. Postcode is HA7 4PD. From the A41 Edgware way\, this is a direct drive along London Road. The A41 is accessed directly from M1 junction 4\, which is only 2 miles from the station. This is also close to the main A1 road. Cockfosters (Piccadilly line) Has a car park which TfL says has 232 spaces. Postcode is EN4 0DZ. It is a direct 3 mile drive down the A111 from the Potter’s Bar Junction (24) of the M25. Epping (Central line) Has a car park which Sabaparking says has 532 spaces. This station is outside the London ULEZ near to the junction of the M11 and M25. It is however not so convenient from the viewpoint of motorway junctions. Postcode is CM16 4HW.  Debden (Central line) Has a car park which Sabaparking says has 206 spaces. It is however only half a mile along the A 1168 from M11 junction 5 and also outside London ULEZ. Postcode is IG10 3TG. Upminster (District line) The car park here appears to be run by NCP\, which says there are 342 spaces. Postcode is RM14 2TD. It is only 3 miles from M25 junction 29\, via a route involving the A127 toward London. However it is inside the ULEZ. This might be a good option for those coming from East Anglia. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Nearby places to eat				\n				\n				\n				\n									Brunswick centre (https://maps.app.goo.gl/UwBNKmhUe9ciib1G9)  and opposite Russell Square station have a wide variety of places to eat\, including: Itsu\, Nandos\, LEON\, Pret\, Franco MancaLamb’s conduit street has a number of higher end restaurants.Redemptions roasters (Lamb’s conduit street) are great for coffee.
URL:https://tofs.org.uk/event/run-alton-towers-5k/
LOCATION:Alton Towers\, Farley Lane\, Alton\, Staffordshire\, ST10 4DB\, United Kingdom
CATEGORIES:Fundraising
ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2025/04/challenge-event-logos.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20251122T100000
DTEND;TZID=Europe/London:20251122T123000
DTSTAMP:20260423T111530
CREATED:20251106T094317Z
LAST-MODIFIED:20251106T101307Z
UID:10000145-1763805600-1763814600@tofs.org.uk
SUMMARY:Local Meet-up: Birmingham
DESCRIPTION:TOFS 2026 Seminar Important Update:We’ve been made aware that there is a part closure on the Piccadilly Line on Saturday. Depending on which direction you’re coming from\, please walk from Holborn Station (we believe the central line is open) or get off the train at Kings Cross/St Pancras and walk from there. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									The TOFS seminar is being held at the Institute of Child Health (ICH)\, London on Saturday\, 21st March\, 2026. Why attendJoin us for our in-person OA/TOF Seminar in London to hear from some of the UK’s leading specialists on the work being done to improve the care of today’s OA/TOF children and to address the long-term issues affecting adults born with the condition. This is a great opportunity to meet\, make connections and share experiences with other families and adults born with OA/TOF and associated conditions. Who should attend?This seminar is aimed at adults born with OA/TOF\, parents and carers of children born with OA/TOF and medical professionals. Note: Registration on the day opens at 9.30am with presentations beginning at 10.30am. 								\n				\n				\n				\n									\n					\n						\n						\n							\n									CLICK HERE FOR TICKETS\n					\n					\n				\n								\n				\n					\n		\n				\n			\n						\n				\n									Event co-sponsored by  								\n				\n				\n				\n																														\n				\n				\n				\n																\n															\n															\n				\n				\n				\n									NIHR Great Ormond Street Hospital Biomedical Research Centre 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n				\n				\n					Presentations				\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Eating\, drinking & swallowing difficulties children born with OA/TOF								\n				\n				\n				\n									Presented by Dr Alex Stewart – Speech and Language Therapist (GOSH) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Experience of parents of children born with oesophageal atresia								\n				\n				\n				\n									Presented by Dr Vuokko Wallace – Clinical Psychologist\, University of Bath 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Gastro issues and Eosinophilic Oesophagitis (EoE) in OA/TOF patients								\n				\n				\n				\n									Presented by Dr Osvaldo Borrelli – Head of Clinical Service\, Consultant Paediatric Gastroenterologist (GOSH) and Honorary Senior Lecturer (UCL) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Role of TOF Multi Disciplinary Team (MDT) pathway in improving care in oesophageal atresia								\n				\n				\n				\n									Presented by Ms Dhanya Mullassery – Consultant Neonatal and Paediatric Surgeon (GOSH) and Honorary Senior Lecturer (UCL) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Respiratory updates from the INoEA (International Network of Esophageal Atresia) conference and ERS (European Respiratory Society) congress								\n				\n				\n				\n									Presented by Dr Caroline Love\, Chair of TOFS Medical Liaison & Research Subcommittee and Patient Advisory Committee member of the European Lung Foundation (ELF) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									Click here to see the full schedule 								\n				\n				\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									Any Questions?When is the seminar?The seminar is on March 21st\, 2026. Registration on the day opens at 9.30am with presentations beginning at 10.30am. The seminar will close at 4.30pm. How much are tickets?Tickets are free to TOFS’ Members\, Associates and Health Professionals. If you wish to join TOFS\, please sign up at – tofs.org.uk/join-tofs/ Is this a TOFS party?No\, this is an information seminar. Can I watch the seminar online?This is an in-person event only and will not be live streamed. We encourage members to attend in person to get the full benefits of the event\, listening to the speakers; interacting with the Q&A and discussion sessions; meeting TOFS volunteers and staff and chatting with other members of TOFS who will be attending. Some of the presentations may be recorded and posted online\, at a later date. Can I bring my child/children?Yes\, but you might prefer not to. Children below secondary school age are not permitted into the lecture room while presentations are being made. A separate room will be available on the day for families\, and the presentations will be relayed to a screen in that room. All children must be cared for by a responsible adult at all times. The excellent Coram’s Fields Children’s play park is just over the road from the venue. Will there be lunch?Yes\, a light lunch will be provided\, and seating will be available. Will I get a chance to speak to other families / people affected by OA/TOF?Yes\, we will have both lunch and refreshment breaks to allow you chance to chat with other attendees. Is there wheelchair access?We are very grateful to Great Ormond Street Hospital for providing our venue for the day. However\, this is an older building and while the venue is accessible to all\, the lecture theatre itself is accessible via stairs only. If you have any disability that may affect your access or participation in the event\, please let us know when ordering your tickets.Is there a cancellation deadline?Yes. If you can no longer attend\, please let us know via info@tofs.org.uk no later than 7 days before the seminar. This is to ensure that we only cater for the correct number of guests. Where is the seminar taking place?UCL Great Ormond Street Institute of Child Health\, WC1N 1EH If you have any further questions\, please contact us. 								\n				\n					\n		\n				\n			\n						\n				\n									\n					\n				\n											\n									\n\n			\n					\n								\n											\n									\n\n			\n					\n								\n											\n									\n\n			\n					\n								\n									\n															\n													\n						\n													\n																\n												\n				\n								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					How to get there				\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Where is the seminar?				\n				\n				\n				\n									The seminar is at the Institute of Child Health (ICH)\, which is a part of University College London – but situated on the GOSH site. The entrance to ICH is at 30 Guilford Street\, just north of Great Ormond Street itself. Postcode is WC1N 1 EH. 								\n				\n					\n		\n				\n			\n						\n				\n																\n															\n															\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									TOFS 2026 Seminar Important Update:We’ve been made aware that there is a part closure on the Piccadilly Line on Saturday. Depending on which direction you’re coming from\, please walk from Holborn Station (we believe the central line is open) or get off the train at Kings Cross/St Pancras and walk from there. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Public transport				\n				\n				\n				\n									The nearest tube station to ICH / GOSH is Russell Square on the Piccadilly Line. The next closest is Holborn\, on the Central and Piccadilly lines. Kings Cross and Euston stations are both only 0.8 miles away. Farringdon station (Elizabeth line and Metropolitan / Circle plus some overground commuter trains from Brighton\, Cambridge\, Huntingdon) is 0.9 miles. 								\n				\n				\n				\n					Travelling by car				\n				\n				\n				\n									Please note\, the venue is within both the London congestion charge zone and the  ULEZ (Ultra Low Emission) zone. There is some on-street metered parking around GOSH\, including in Guilford Street itself.  Much of this becomes free after 13:30 on a Saturday.  Moreover a significant amount of residents-only parking in this area becomes derestricted (i.e. free) on a Saturday afternoon. There are large underground public car parks close to GOSH at: Brunswick square (NCP) – postcode WC1N 1AF; the Imperial Hotel in Russell Square and underneath the Holiday Inn -Bloomsbury\, postcode WC1N 1HT. 								\n				\n					\n		\n				\n			\n						\n				\n					Outer London Tube stations with parking				\n				\n				\n				\n									Several tube stations near the end of the network in the North and West segments of outer London are close to the M25 and to some of the motorways into London. Unfortunately\, most of the stations listed below are within the ULEZ zone but  outside of the London congestion charge zone. Hillingdon (Metropolitan and Piccadilly lines). Has a car park which TfL says has 283 spaces. Postcode is UB10 9NR. This station is next to a junction on the A40 Western Avenue road\, only 5 miles from the M25 /M40 junction. Moreover\, the next station along the line (Ickenham) also has a large car park effectively providing an overflow car park. Stanmore (Jubilee line). Has a car park which TfL says has 450 spaces. Postcode is HA7 4PD. From the A41 Edgware way\, this is a direct drive along London Road. The A41 is accessed directly from M1 junction 4\, which is only 2 miles from the station. This is also close to the main A1 road. Cockfosters (Piccadilly line) Has a car park which TfL says has 232 spaces. Postcode is EN4 0DZ. It is a direct 3 mile drive down the A111 from the Potter’s Bar Junction (24) of the M25. Epping (Central line) Has a car park which Sabaparking says has 532 spaces. This station is outside the London ULEZ near to the junction of the M11 and M25. It is however not so convenient from the viewpoint of motorway junctions. Postcode is CM16 4HW.  Debden (Central line) Has a car park which Sabaparking says has 206 spaces. It is however only half a mile along the A 1168 from M11 junction 5 and also outside London ULEZ. Postcode is IG10 3TG. Upminster (District line) The car park here appears to be run by NCP\, which says there are 342 spaces. Postcode is RM14 2TD. It is only 3 miles from M25 junction 29\, via a route involving the A127 toward London. However it is inside the ULEZ. This might be a good option for those coming from East Anglia. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Nearby places to eat				\n				\n				\n				\n									Brunswick centre (https://maps.app.goo.gl/UwBNKmhUe9ciib1G9)  and opposite Russell Square station have a wide variety of places to eat\, including: Itsu\, Nandos\, LEON\, Pret\, Franco MancaLamb’s conduit street has a number of higher end restaurants.Redemptions roasters (Lamb’s conduit street) are great for coffee.
URL:https://tofs.org.uk/event/local-meet-up-birmingham-2/
LOCATION:Ronald McDonald House Birmingham\, St Mary’s Row\, Birmingham\, B4 6NY\, United Kingdom
CATEGORIES:Parents & Carers
ATTACH;FMTTYPE=image/jpeg:https://tofs.org.uk/wp-content/uploads/2024/04/local-meet-up.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20251122T140000
DTEND;TZID=Europe/London:20251122T160000
DTSTAMP:20260423T111530
CREATED:20251014T075354Z
LAST-MODIFIED:20251014T082107Z
UID:10000137-1763820000-1763827200@tofs.org.uk
SUMMARY:Local Meet-up: Merseyside/Wirral
DESCRIPTION:TOFS 2026 Seminar Important Update:We’ve been made aware that there is a part closure on the Piccadilly Line on Saturday. Depending on which direction you’re coming from\, please walk from Holborn Station (we believe the central line is open) or get off the train at Kings Cross/St Pancras and walk from there. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									The TOFS seminar is being held at the Institute of Child Health (ICH)\, London on Saturday\, 21st March\, 2026. Why attendJoin us for our in-person OA/TOF Seminar in London to hear from some of the UK’s leading specialists on the work being done to improve the care of today’s OA/TOF children and to address the long-term issues affecting adults born with the condition. This is a great opportunity to meet\, make connections and share experiences with other families and adults born with OA/TOF and associated conditions. Who should attend?This seminar is aimed at adults born with OA/TOF\, parents and carers of children born with OA/TOF and medical professionals. Note: Registration on the day opens at 9.30am with presentations beginning at 10.30am. 								\n				\n				\n				\n									\n					\n						\n						\n							\n									CLICK HERE FOR TICKETS\n					\n					\n				\n								\n				\n					\n		\n				\n			\n						\n				\n									Event co-sponsored by  								\n				\n				\n				\n																														\n				\n				\n				\n																\n															\n															\n				\n				\n				\n									NIHR Great Ormond Street Hospital Biomedical Research Centre 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n				\n				\n					Presentations				\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Eating\, drinking & swallowing difficulties children born with OA/TOF								\n				\n				\n				\n									Presented by Dr Alex Stewart – Speech and Language Therapist (GOSH) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Experience of parents of children born with oesophageal atresia								\n				\n				\n				\n									Presented by Dr Vuokko Wallace – Clinical Psychologist\, University of Bath 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Gastro issues and Eosinophilic Oesophagitis (EoE) in OA/TOF patients								\n				\n				\n				\n									Presented by Dr Osvaldo Borrelli – Head of Clinical Service\, Consultant Paediatric Gastroenterologist (GOSH) and Honorary Senior Lecturer (UCL) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Role of TOF Multi Disciplinary Team (MDT) pathway in improving care in oesophageal atresia								\n				\n				\n				\n									Presented by Ms Dhanya Mullassery – Consultant Neonatal and Paediatric Surgeon (GOSH) and Honorary Senior Lecturer (UCL) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Respiratory updates from the INoEA (International Network of Esophageal Atresia) conference and ERS (European Respiratory Society) congress								\n				\n				\n				\n									Presented by Dr Caroline Love\, Chair of TOFS Medical Liaison & Research Subcommittee and Patient Advisory Committee member of the European Lung Foundation (ELF) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									Click here to see the full schedule 								\n				\n				\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									Any Questions?When is the seminar?The seminar is on March 21st\, 2026. Registration on the day opens at 9.30am with presentations beginning at 10.30am. The seminar will close at 4.30pm. How much are tickets?Tickets are free to TOFS’ Members\, Associates and Health Professionals. If you wish to join TOFS\, please sign up at – tofs.org.uk/join-tofs/ Is this a TOFS party?No\, this is an information seminar. Can I watch the seminar online?This is an in-person event only and will not be live streamed. We encourage members to attend in person to get the full benefits of the event\, listening to the speakers; interacting with the Q&A and discussion sessions; meeting TOFS volunteers and staff and chatting with other members of TOFS who will be attending. Some of the presentations may be recorded and posted online\, at a later date. Can I bring my child/children?Yes\, but you might prefer not to. Children below secondary school age are not permitted into the lecture room while presentations are being made. A separate room will be available on the day for families\, and the presentations will be relayed to a screen in that room. All children must be cared for by a responsible adult at all times. The excellent Coram’s Fields Children’s play park is just over the road from the venue. Will there be lunch?Yes\, a light lunch will be provided\, and seating will be available. Will I get a chance to speak to other families / people affected by OA/TOF?Yes\, we will have both lunch and refreshment breaks to allow you chance to chat with other attendees. Is there wheelchair access?We are very grateful to Great Ormond Street Hospital for providing our venue for the day. However\, this is an older building and while the venue is accessible to all\, the lecture theatre itself is accessible via stairs only. If you have any disability that may affect your access or participation in the event\, please let us know when ordering your tickets.Is there a cancellation deadline?Yes. If you can no longer attend\, please let us know via info@tofs.org.uk no later than 7 days before the seminar. This is to ensure that we only cater for the correct number of guests. Where is the seminar taking place?UCL Great Ormond Street Institute of Child Health\, WC1N 1EH If you have any further questions\, please contact us. 								\n				\n					\n		\n				\n			\n						\n				\n									\n					\n				\n											\n									\n\n			\n					\n								\n											\n									\n\n			\n					\n								\n											\n									\n\n			\n					\n								\n									\n															\n													\n						\n													\n																\n												\n				\n								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					How to get there				\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Where is the seminar?				\n				\n				\n				\n									The seminar is at the Institute of Child Health (ICH)\, which is a part of University College London – but situated on the GOSH site. The entrance to ICH is at 30 Guilford Street\, just north of Great Ormond Street itself. Postcode is WC1N 1 EH. 								\n				\n					\n		\n				\n			\n						\n				\n																\n															\n															\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									TOFS 2026 Seminar Important Update:We’ve been made aware that there is a part closure on the Piccadilly Line on Saturday. Depending on which direction you’re coming from\, please walk from Holborn Station (we believe the central line is open) or get off the train at Kings Cross/St Pancras and walk from there. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Public transport				\n				\n				\n				\n									The nearest tube station to ICH / GOSH is Russell Square on the Piccadilly Line. The next closest is Holborn\, on the Central and Piccadilly lines. Kings Cross and Euston stations are both only 0.8 miles away. Farringdon station (Elizabeth line and Metropolitan / Circle plus some overground commuter trains from Brighton\, Cambridge\, Huntingdon) is 0.9 miles. 								\n				\n				\n				\n					Travelling by car				\n				\n				\n				\n									Please note\, the venue is within both the London congestion charge zone and the  ULEZ (Ultra Low Emission) zone. There is some on-street metered parking around GOSH\, including in Guilford Street itself.  Much of this becomes free after 13:30 on a Saturday.  Moreover a significant amount of residents-only parking in this area becomes derestricted (i.e. free) on a Saturday afternoon. There are large underground public car parks close to GOSH at: Brunswick square (NCP) – postcode WC1N 1AF; the Imperial Hotel in Russell Square and underneath the Holiday Inn -Bloomsbury\, postcode WC1N 1HT. 								\n				\n					\n		\n				\n			\n						\n				\n					Outer London Tube stations with parking				\n				\n				\n				\n									Several tube stations near the end of the network in the North and West segments of outer London are close to the M25 and to some of the motorways into London. Unfortunately\, most of the stations listed below are within the ULEZ zone but  outside of the London congestion charge zone. Hillingdon (Metropolitan and Piccadilly lines). Has a car park which TfL says has 283 spaces. Postcode is UB10 9NR. This station is next to a junction on the A40 Western Avenue road\, only 5 miles from the M25 /M40 junction. Moreover\, the next station along the line (Ickenham) also has a large car park effectively providing an overflow car park. Stanmore (Jubilee line). Has a car park which TfL says has 450 spaces. Postcode is HA7 4PD. From the A41 Edgware way\, this is a direct drive along London Road. The A41 is accessed directly from M1 junction 4\, which is only 2 miles from the station. This is also close to the main A1 road. Cockfosters (Piccadilly line) Has a car park which TfL says has 232 spaces. Postcode is EN4 0DZ. It is a direct 3 mile drive down the A111 from the Potter’s Bar Junction (24) of the M25. Epping (Central line) Has a car park which Sabaparking says has 532 spaces. This station is outside the London ULEZ near to the junction of the M11 and M25. It is however not so convenient from the viewpoint of motorway junctions. Postcode is CM16 4HW.  Debden (Central line) Has a car park which Sabaparking says has 206 spaces. It is however only half a mile along the A 1168 from M11 junction 5 and also outside London ULEZ. Postcode is IG10 3TG. Upminster (District line) The car park here appears to be run by NCP\, which says there are 342 spaces. Postcode is RM14 2TD. It is only 3 miles from M25 junction 29\, via a route involving the A127 toward London. However it is inside the ULEZ. This might be a good option for those coming from East Anglia. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Nearby places to eat				\n				\n				\n				\n									Brunswick centre (https://maps.app.goo.gl/UwBNKmhUe9ciib1G9)  and opposite Russell Square station have a wide variety of places to eat\, including: Itsu\, Nandos\, LEON\, Pret\, Franco MancaLamb’s conduit street has a number of higher end restaurants.Redemptions roasters (Lamb’s conduit street) are great for coffee.
URL:https://tofs.org.uk/event/local-meet-up-merseyside-2/
LOCATION:Moreton Presbyterian Church\, 174a Hoylake Road\, Moreton\, Wirral\, CH46 8TQ\, United Kingdom
CATEGORIES:Parents & Carers
ATTACH;FMTTYPE=image/jpeg:https://tofs.org.uk/wp-content/uploads/2024/04/local-meet-up.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20251211T200000
DTEND;TZID=Europe/London:20251211T210000
DTSTAMP:20260423T111530
CREATED:20251113T171628Z
LAST-MODIFIED:20251210T131131Z
UID:10000149-1765483200-1765486800@tofs.org.uk
SUMMARY:Virtual meet-up for adults born with OA/TOF [New Date]
DESCRIPTION:TOFS 2026 Seminar Important Update:We’ve been made aware that there is a part closure on the Piccadilly Line on Saturday. Depending on which direction you’re coming from\, please walk from Holborn Station (we believe the central line is open) or get off the train at Kings Cross/St Pancras and walk from there. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									The TOFS seminar is being held at the Institute of Child Health (ICH)\, London on Saturday\, 21st March\, 2026. Why attendJoin us for our in-person OA/TOF Seminar in London to hear from some of the UK’s leading specialists on the work being done to improve the care of today’s OA/TOF children and to address the long-term issues affecting adults born with the condition. This is a great opportunity to meet\, make connections and share experiences with other families and adults born with OA/TOF and associated conditions. Who should attend?This seminar is aimed at adults born with OA/TOF\, parents and carers of children born with OA/TOF and medical professionals. Note: Registration on the day opens at 9.30am with presentations beginning at 10.30am. 								\n				\n				\n				\n									\n					\n						\n						\n							\n									CLICK HERE FOR TICKETS\n					\n					\n				\n								\n				\n					\n		\n				\n			\n						\n				\n									Event co-sponsored by  								\n				\n				\n				\n																														\n				\n				\n				\n																\n															\n															\n				\n				\n				\n									NIHR Great Ormond Street Hospital Biomedical Research Centre 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n				\n				\n					Presentations				\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Eating\, drinking & swallowing difficulties children born with OA/TOF								\n				\n				\n				\n									Presented by Dr Alex Stewart – Speech and Language Therapist (GOSH) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Experience of parents of children born with oesophageal atresia								\n				\n				\n				\n									Presented by Dr Vuokko Wallace – Clinical Psychologist\, University of Bath 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Gastro issues and Eosinophilic Oesophagitis (EoE) in OA/TOF patients								\n				\n				\n				\n									Presented by Dr Osvaldo Borrelli – Head of Clinical Service\, Consultant Paediatric Gastroenterologist (GOSH) and Honorary Senior Lecturer (UCL) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Role of TOF Multi Disciplinary Team (MDT) pathway in improving care in oesophageal atresia								\n				\n				\n				\n									Presented by Ms Dhanya Mullassery – Consultant Neonatal and Paediatric Surgeon (GOSH) and Honorary Senior Lecturer (UCL) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Respiratory updates from the INoEA (International Network of Esophageal Atresia) conference and ERS (European Respiratory Society) congress								\n				\n				\n				\n									Presented by Dr Caroline Love\, Chair of TOFS Medical Liaison & Research Subcommittee and Patient Advisory Committee member of the European Lung Foundation (ELF) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									Click here to see the full schedule 								\n				\n				\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									Any Questions?When is the seminar?The seminar is on March 21st\, 2026. Registration on the day opens at 9.30am with presentations beginning at 10.30am. The seminar will close at 4.30pm. How much are tickets?Tickets are free to TOFS’ Members\, Associates and Health Professionals. If you wish to join TOFS\, please sign up at – tofs.org.uk/join-tofs/ Is this a TOFS party?No\, this is an information seminar. Can I watch the seminar online?This is an in-person event only and will not be live streamed. We encourage members to attend in person to get the full benefits of the event\, listening to the speakers; interacting with the Q&A and discussion sessions; meeting TOFS volunteers and staff and chatting with other members of TOFS who will be attending. Some of the presentations may be recorded and posted online\, at a later date. Can I bring my child/children?Yes\, but you might prefer not to. Children below secondary school age are not permitted into the lecture room while presentations are being made. A separate room will be available on the day for families\, and the presentations will be relayed to a screen in that room. All children must be cared for by a responsible adult at all times. The excellent Coram’s Fields Children’s play park is just over the road from the venue. Will there be lunch?Yes\, a light lunch will be provided\, and seating will be available. Will I get a chance to speak to other families / people affected by OA/TOF?Yes\, we will have both lunch and refreshment breaks to allow you chance to chat with other attendees. Is there wheelchair access?We are very grateful to Great Ormond Street Hospital for providing our venue for the day. However\, this is an older building and while the venue is accessible to all\, the lecture theatre itself is accessible via stairs only. If you have any disability that may affect your access or participation in the event\, please let us know when ordering your tickets.Is there a cancellation deadline?Yes. If you can no longer attend\, please let us know via info@tofs.org.uk no later than 7 days before the seminar. This is to ensure that we only cater for the correct number of guests. Where is the seminar taking place?UCL Great Ormond Street Institute of Child Health\, WC1N 1EH If you have any further questions\, please contact us. 								\n				\n					\n		\n				\n			\n						\n				\n									\n					\n				\n											\n									\n\n			\n					\n								\n											\n									\n\n			\n					\n								\n											\n									\n\n			\n					\n								\n									\n															\n													\n						\n													\n																\n												\n				\n								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					How to get there				\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Where is the seminar?				\n				\n				\n				\n									The seminar is at the Institute of Child Health (ICH)\, which is a part of University College London – but situated on the GOSH site. The entrance to ICH is at 30 Guilford Street\, just north of Great Ormond Street itself. Postcode is WC1N 1 EH. 								\n				\n					\n		\n				\n			\n						\n				\n																\n															\n															\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									TOFS 2026 Seminar Important Update:We’ve been made aware that there is a part closure on the Piccadilly Line on Saturday. Depending on which direction you’re coming from\, please walk from Holborn Station (we believe the central line is open) or get off the train at Kings Cross/St Pancras and walk from there. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Public transport				\n				\n				\n				\n									The nearest tube station to ICH / GOSH is Russell Square on the Piccadilly Line. The next closest is Holborn\, on the Central and Piccadilly lines. Kings Cross and Euston stations are both only 0.8 miles away. Farringdon station (Elizabeth line and Metropolitan / Circle plus some overground commuter trains from Brighton\, Cambridge\, Huntingdon) is 0.9 miles. 								\n				\n				\n				\n					Travelling by car				\n				\n				\n				\n									Please note\, the venue is within both the London congestion charge zone and the  ULEZ (Ultra Low Emission) zone. There is some on-street metered parking around GOSH\, including in Guilford Street itself.  Much of this becomes free after 13:30 on a Saturday.  Moreover a significant amount of residents-only parking in this area becomes derestricted (i.e. free) on a Saturday afternoon. There are large underground public car parks close to GOSH at: Brunswick square (NCP) – postcode WC1N 1AF; the Imperial Hotel in Russell Square and underneath the Holiday Inn -Bloomsbury\, postcode WC1N 1HT. 								\n				\n					\n		\n				\n			\n						\n				\n					Outer London Tube stations with parking				\n				\n				\n				\n									Several tube stations near the end of the network in the North and West segments of outer London are close to the M25 and to some of the motorways into London. Unfortunately\, most of the stations listed below are within the ULEZ zone but  outside of the London congestion charge zone. Hillingdon (Metropolitan and Piccadilly lines). Has a car park which TfL says has 283 spaces. Postcode is UB10 9NR. This station is next to a junction on the A40 Western Avenue road\, only 5 miles from the M25 /M40 junction. Moreover\, the next station along the line (Ickenham) also has a large car park effectively providing an overflow car park. Stanmore (Jubilee line). Has a car park which TfL says has 450 spaces. Postcode is HA7 4PD. From the A41 Edgware way\, this is a direct drive along London Road. The A41 is accessed directly from M1 junction 4\, which is only 2 miles from the station. This is also close to the main A1 road. Cockfosters (Piccadilly line) Has a car park which TfL says has 232 spaces. Postcode is EN4 0DZ. It is a direct 3 mile drive down the A111 from the Potter’s Bar Junction (24) of the M25. Epping (Central line) Has a car park which Sabaparking says has 532 spaces. This station is outside the London ULEZ near to the junction of the M11 and M25. It is however not so convenient from the viewpoint of motorway junctions. Postcode is CM16 4HW.  Debden (Central line) Has a car park which Sabaparking says has 206 spaces. It is however only half a mile along the A 1168 from M11 junction 5 and also outside London ULEZ. Postcode is IG10 3TG. Upminster (District line) The car park here appears to be run by NCP\, which says there are 342 spaces. Postcode is RM14 2TD. It is only 3 miles from M25 junction 29\, via a route involving the A127 toward London. However it is inside the ULEZ. This might be a good option for those coming from East Anglia. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Nearby places to eat				\n				\n				\n				\n									Brunswick centre (https://maps.app.goo.gl/UwBNKmhUe9ciib1G9)  and opposite Russell Square station have a wide variety of places to eat\, including: Itsu\, Nandos\, LEON\, Pret\, Franco MancaLamb’s conduit street has a number of higher end restaurants.Redemptions roasters (Lamb’s conduit street) are great for coffee.
URL:https://tofs.org.uk/event/virtual-meet-up-for-adults-born-with-oa-tof-17/
LOCATION:Online
CATEGORIES:Adult TOF
ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2025/11/dec-11-25.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20260108T200000
DTEND;TZID=Europe/London:20260108T210000
DTSTAMP:20260423T111530
CREATED:20251113T172157Z
LAST-MODIFIED:20251210T131023Z
UID:10000150-1767902400-1767906000@tofs.org.uk
SUMMARY:Virtual meet-up for adults born with OA/TOF
DESCRIPTION:TOFS 2026 Seminar Important Update:We’ve been made aware that there is a part closure on the Piccadilly Line on Saturday. Depending on which direction you’re coming from\, please walk from Holborn Station (we believe the central line is open) or get off the train at Kings Cross/St Pancras and walk from there. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									The TOFS seminar is being held at the Institute of Child Health (ICH)\, London on Saturday\, 21st March\, 2026. Why attendJoin us for our in-person OA/TOF Seminar in London to hear from some of the UK’s leading specialists on the work being done to improve the care of today’s OA/TOF children and to address the long-term issues affecting adults born with the condition. This is a great opportunity to meet\, make connections and share experiences with other families and adults born with OA/TOF and associated conditions. Who should attend?This seminar is aimed at adults born with OA/TOF\, parents and carers of children born with OA/TOF and medical professionals. Note: Registration on the day opens at 9.30am with presentations beginning at 10.30am. 								\n				\n				\n				\n									\n					\n						\n						\n							\n									CLICK HERE FOR TICKETS\n					\n					\n				\n								\n				\n					\n		\n				\n			\n						\n				\n									Event co-sponsored by  								\n				\n				\n				\n																														\n				\n				\n				\n																\n															\n															\n				\n				\n				\n									NIHR Great Ormond Street Hospital Biomedical Research Centre 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n				\n				\n					Presentations				\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Eating\, drinking & swallowing difficulties children born with OA/TOF								\n				\n				\n				\n									Presented by Dr Alex Stewart – Speech and Language Therapist (GOSH) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Experience of parents of children born with oesophageal atresia								\n				\n				\n				\n									Presented by Dr Vuokko Wallace – Clinical Psychologist\, University of Bath 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Gastro issues and Eosinophilic Oesophagitis (EoE) in OA/TOF patients								\n				\n				\n				\n									Presented by Dr Osvaldo Borrelli – Head of Clinical Service\, Consultant Paediatric Gastroenterologist (GOSH) and Honorary Senior Lecturer (UCL) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Role of TOF Multi Disciplinary Team (MDT) pathway in improving care in oesophageal atresia								\n				\n				\n				\n									Presented by Ms Dhanya Mullassery – Consultant Neonatal and Paediatric Surgeon (GOSH) and Honorary Senior Lecturer (UCL) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Respiratory updates from the INoEA (International Network of Esophageal Atresia) conference and ERS (European Respiratory Society) congress								\n				\n				\n				\n									Presented by Dr Caroline Love\, Chair of TOFS Medical Liaison & Research Subcommittee and Patient Advisory Committee member of the European Lung Foundation (ELF) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									Click here to see the full schedule 								\n				\n				\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									Any Questions?When is the seminar?The seminar is on March 21st\, 2026. Registration on the day opens at 9.30am with presentations beginning at 10.30am. The seminar will close at 4.30pm. How much are tickets?Tickets are free to TOFS’ Members\, Associates and Health Professionals. If you wish to join TOFS\, please sign up at – tofs.org.uk/join-tofs/ Is this a TOFS party?No\, this is an information seminar. Can I watch the seminar online?This is an in-person event only and will not be live streamed. We encourage members to attend in person to get the full benefits of the event\, listening to the speakers; interacting with the Q&A and discussion sessions; meeting TOFS volunteers and staff and chatting with other members of TOFS who will be attending. Some of the presentations may be recorded and posted online\, at a later date. Can I bring my child/children?Yes\, but you might prefer not to. Children below secondary school age are not permitted into the lecture room while presentations are being made. A separate room will be available on the day for families\, and the presentations will be relayed to a screen in that room. All children must be cared for by a responsible adult at all times. The excellent Coram’s Fields Children’s play park is just over the road from the venue. Will there be lunch?Yes\, a light lunch will be provided\, and seating will be available. Will I get a chance to speak to other families / people affected by OA/TOF?Yes\, we will have both lunch and refreshment breaks to allow you chance to chat with other attendees. Is there wheelchair access?We are very grateful to Great Ormond Street Hospital for providing our venue for the day. However\, this is an older building and while the venue is accessible to all\, the lecture theatre itself is accessible via stairs only. If you have any disability that may affect your access or participation in the event\, please let us know when ordering your tickets.Is there a cancellation deadline?Yes. If you can no longer attend\, please let us know via info@tofs.org.uk no later than 7 days before the seminar. This is to ensure that we only cater for the correct number of guests. Where is the seminar taking place?UCL Great Ormond Street Institute of Child Health\, WC1N 1EH If you have any further questions\, please contact us. 								\n				\n					\n		\n				\n			\n						\n				\n									\n					\n				\n											\n									\n\n			\n					\n								\n											\n									\n\n			\n					\n								\n											\n									\n\n			\n					\n								\n									\n															\n													\n						\n													\n																\n												\n				\n								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					How to get there				\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Where is the seminar?				\n				\n				\n				\n									The seminar is at the Institute of Child Health (ICH)\, which is a part of University College London – but situated on the GOSH site. The entrance to ICH is at 30 Guilford Street\, just north of Great Ormond Street itself. Postcode is WC1N 1 EH. 								\n				\n					\n		\n				\n			\n						\n				\n																\n															\n															\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									TOFS 2026 Seminar Important Update:We’ve been made aware that there is a part closure on the Piccadilly Line on Saturday. Depending on which direction you’re coming from\, please walk from Holborn Station (we believe the central line is open) or get off the train at Kings Cross/St Pancras and walk from there. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Public transport				\n				\n				\n				\n									The nearest tube station to ICH / GOSH is Russell Square on the Piccadilly Line. The next closest is Holborn\, on the Central and Piccadilly lines. Kings Cross and Euston stations are both only 0.8 miles away. Farringdon station (Elizabeth line and Metropolitan / Circle plus some overground commuter trains from Brighton\, Cambridge\, Huntingdon) is 0.9 miles. 								\n				\n				\n				\n					Travelling by car				\n				\n				\n				\n									Please note\, the venue is within both the London congestion charge zone and the  ULEZ (Ultra Low Emission) zone. There is some on-street metered parking around GOSH\, including in Guilford Street itself.  Much of this becomes free after 13:30 on a Saturday.  Moreover a significant amount of residents-only parking in this area becomes derestricted (i.e. free) on a Saturday afternoon. There are large underground public car parks close to GOSH at: Brunswick square (NCP) – postcode WC1N 1AF; the Imperial Hotel in Russell Square and underneath the Holiday Inn -Bloomsbury\, postcode WC1N 1HT. 								\n				\n					\n		\n				\n			\n						\n				\n					Outer London Tube stations with parking				\n				\n				\n				\n									Several tube stations near the end of the network in the North and West segments of outer London are close to the M25 and to some of the motorways into London. Unfortunately\, most of the stations listed below are within the ULEZ zone but  outside of the London congestion charge zone. Hillingdon (Metropolitan and Piccadilly lines). Has a car park which TfL says has 283 spaces. Postcode is UB10 9NR. This station is next to a junction on the A40 Western Avenue road\, only 5 miles from the M25 /M40 junction. Moreover\, the next station along the line (Ickenham) also has a large car park effectively providing an overflow car park. Stanmore (Jubilee line). Has a car park which TfL says has 450 spaces. Postcode is HA7 4PD. From the A41 Edgware way\, this is a direct drive along London Road. The A41 is accessed directly from M1 junction 4\, which is only 2 miles from the station. This is also close to the main A1 road. Cockfosters (Piccadilly line) Has a car park which TfL says has 232 spaces. Postcode is EN4 0DZ. It is a direct 3 mile drive down the A111 from the Potter’s Bar Junction (24) of the M25. Epping (Central line) Has a car park which Sabaparking says has 532 spaces. This station is outside the London ULEZ near to the junction of the M11 and M25. It is however not so convenient from the viewpoint of motorway junctions. Postcode is CM16 4HW.  Debden (Central line) Has a car park which Sabaparking says has 206 spaces. It is however only half a mile along the A 1168 from M11 junction 5 and also outside London ULEZ. Postcode is IG10 3TG. Upminster (District line) The car park here appears to be run by NCP\, which says there are 342 spaces. Postcode is RM14 2TD. It is only 3 miles from M25 junction 29\, via a route involving the A127 toward London. However it is inside the ULEZ. This might be a good option for those coming from East Anglia. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Nearby places to eat				\n				\n				\n				\n									Brunswick centre (https://maps.app.goo.gl/UwBNKmhUe9ciib1G9)  and opposite Russell Square station have a wide variety of places to eat\, including: Itsu\, Nandos\, LEON\, Pret\, Franco MancaLamb’s conduit street has a number of higher end restaurants.Redemptions roasters (Lamb’s conduit street) are great for coffee.
URL:https://tofs.org.uk/event/virtual-meet-up-for-adults-born-with-oa-tof-18/
LOCATION:Online
CATEGORIES:Adult TOF
ATTACH;FMTTYPE=image/jpeg:https://tofs.org.uk/wp-content/uploads/2025/11/08-01-26-Adult-cuppa-and-chat.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20260120T110000
DTEND;TZID=Europe/London:20260120T120000
DTSTAMP:20260423T111530
CREATED:20251113T162555Z
LAST-MODIFIED:20260115T161843Z
UID:10000148-1768906800-1768910400@tofs.org.uk
SUMMARY:Parent & Carer virtual meet-up
DESCRIPTION:TOFS 2026 Seminar Important Update:We’ve been made aware that there is a part closure on the Piccadilly Line on Saturday. Depending on which direction you’re coming from\, please walk from Holborn Station (we believe the central line is open) or get off the train at Kings Cross/St Pancras and walk from there. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									The TOFS seminar is being held at the Institute of Child Health (ICH)\, London on Saturday\, 21st March\, 2026. Why attendJoin us for our in-person OA/TOF Seminar in London to hear from some of the UK’s leading specialists on the work being done to improve the care of today’s OA/TOF children and to address the long-term issues affecting adults born with the condition. This is a great opportunity to meet\, make connections and share experiences with other families and adults born with OA/TOF and associated conditions. Who should attend?This seminar is aimed at adults born with OA/TOF\, parents and carers of children born with OA/TOF and medical professionals. Note: Registration on the day opens at 9.30am with presentations beginning at 10.30am. 								\n				\n				\n				\n									\n					\n						\n						\n							\n									CLICK HERE FOR TICKETS\n					\n					\n				\n								\n				\n					\n		\n				\n			\n						\n				\n									Event co-sponsored by  								\n				\n				\n				\n																														\n				\n				\n				\n																\n															\n															\n				\n				\n				\n									NIHR Great Ormond Street Hospital Biomedical Research Centre 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n				\n				\n					Presentations				\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Eating\, drinking & swallowing difficulties children born with OA/TOF								\n				\n				\n				\n									Presented by Dr Alex Stewart – Speech and Language Therapist (GOSH) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Experience of parents of children born with oesophageal atresia								\n				\n				\n				\n									Presented by Dr Vuokko Wallace – Clinical Psychologist\, University of Bath 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Gastro issues and Eosinophilic Oesophagitis (EoE) in OA/TOF patients								\n				\n				\n				\n									Presented by Dr Osvaldo Borrelli – Head of Clinical Service\, Consultant Paediatric Gastroenterologist (GOSH) and Honorary Senior Lecturer (UCL) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Role of TOF Multi Disciplinary Team (MDT) pathway in improving care in oesophageal atresia								\n				\n				\n				\n									Presented by Ms Dhanya Mullassery – Consultant Neonatal and Paediatric Surgeon (GOSH) and Honorary Senior Lecturer (UCL) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Respiratory updates from the INoEA (International Network of Esophageal Atresia) conference and ERS (European Respiratory Society) congress								\n				\n				\n				\n									Presented by Dr Caroline Love\, Chair of TOFS Medical Liaison & Research Subcommittee and Patient Advisory Committee member of the European Lung Foundation (ELF) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									Click here to see the full schedule 								\n				\n				\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									Any Questions?When is the seminar?The seminar is on March 21st\, 2026. Registration on the day opens at 9.30am with presentations beginning at 10.30am. The seminar will close at 4.30pm. How much are tickets?Tickets are free to TOFS’ Members\, Associates and Health Professionals. If you wish to join TOFS\, please sign up at – tofs.org.uk/join-tofs/ Is this a TOFS party?No\, this is an information seminar. Can I watch the seminar online?This is an in-person event only and will not be live streamed. We encourage members to attend in person to get the full benefits of the event\, listening to the speakers; interacting with the Q&A and discussion sessions; meeting TOFS volunteers and staff and chatting with other members of TOFS who will be attending. Some of the presentations may be recorded and posted online\, at a later date. Can I bring my child/children?Yes\, but you might prefer not to. Children below secondary school age are not permitted into the lecture room while presentations are being made. A separate room will be available on the day for families\, and the presentations will be relayed to a screen in that room. All children must be cared for by a responsible adult at all times. The excellent Coram’s Fields Children’s play park is just over the road from the venue. Will there be lunch?Yes\, a light lunch will be provided\, and seating will be available. Will I get a chance to speak to other families / people affected by OA/TOF?Yes\, we will have both lunch and refreshment breaks to allow you chance to chat with other attendees. Is there wheelchair access?We are very grateful to Great Ormond Street Hospital for providing our venue for the day. However\, this is an older building and while the venue is accessible to all\, the lecture theatre itself is accessible via stairs only. If you have any disability that may affect your access or participation in the event\, please let us know when ordering your tickets.Is there a cancellation deadline?Yes. If you can no longer attend\, please let us know via info@tofs.org.uk no later than 7 days before the seminar. This is to ensure that we only cater for the correct number of guests. Where is the seminar taking place?UCL Great Ormond Street Institute of Child Health\, WC1N 1EH If you have any further questions\, please contact us. 								\n				\n					\n		\n				\n			\n						\n				\n									\n					\n				\n											\n									\n\n			\n					\n								\n											\n									\n\n			\n					\n								\n											\n									\n\n			\n					\n								\n									\n															\n													\n						\n													\n																\n												\n				\n								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					How to get there				\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Where is the seminar?				\n				\n				\n				\n									The seminar is at the Institute of Child Health (ICH)\, which is a part of University College London – but situated on the GOSH site. The entrance to ICH is at 30 Guilford Street\, just north of Great Ormond Street itself. Postcode is WC1N 1 EH. 								\n				\n					\n		\n				\n			\n						\n				\n																\n															\n															\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									TOFS 2026 Seminar Important Update:We’ve been made aware that there is a part closure on the Piccadilly Line on Saturday. Depending on which direction you’re coming from\, please walk from Holborn Station (we believe the central line is open) or get off the train at Kings Cross/St Pancras and walk from there. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Public transport				\n				\n				\n				\n									The nearest tube station to ICH / GOSH is Russell Square on the Piccadilly Line. The next closest is Holborn\, on the Central and Piccadilly lines. Kings Cross and Euston stations are both only 0.8 miles away. Farringdon station (Elizabeth line and Metropolitan / Circle plus some overground commuter trains from Brighton\, Cambridge\, Huntingdon) is 0.9 miles. 								\n				\n				\n				\n					Travelling by car				\n				\n				\n				\n									Please note\, the venue is within both the London congestion charge zone and the  ULEZ (Ultra Low Emission) zone. There is some on-street metered parking around GOSH\, including in Guilford Street itself.  Much of this becomes free after 13:30 on a Saturday.  Moreover a significant amount of residents-only parking in this area becomes derestricted (i.e. free) on a Saturday afternoon. There are large underground public car parks close to GOSH at: Brunswick square (NCP) – postcode WC1N 1AF; the Imperial Hotel in Russell Square and underneath the Holiday Inn -Bloomsbury\, postcode WC1N 1HT. 								\n				\n					\n		\n				\n			\n						\n				\n					Outer London Tube stations with parking				\n				\n				\n				\n									Several tube stations near the end of the network in the North and West segments of outer London are close to the M25 and to some of the motorways into London. Unfortunately\, most of the stations listed below are within the ULEZ zone but  outside of the London congestion charge zone. Hillingdon (Metropolitan and Piccadilly lines). Has a car park which TfL says has 283 spaces. Postcode is UB10 9NR. This station is next to a junction on the A40 Western Avenue road\, only 5 miles from the M25 /M40 junction. Moreover\, the next station along the line (Ickenham) also has a large car park effectively providing an overflow car park. Stanmore (Jubilee line). Has a car park which TfL says has 450 spaces. Postcode is HA7 4PD. From the A41 Edgware way\, this is a direct drive along London Road. The A41 is accessed directly from M1 junction 4\, which is only 2 miles from the station. This is also close to the main A1 road. Cockfosters (Piccadilly line) Has a car park which TfL says has 232 spaces. Postcode is EN4 0DZ. It is a direct 3 mile drive down the A111 from the Potter’s Bar Junction (24) of the M25. Epping (Central line) Has a car park which Sabaparking says has 532 spaces. This station is outside the London ULEZ near to the junction of the M11 and M25. It is however not so convenient from the viewpoint of motorway junctions. Postcode is CM16 4HW.  Debden (Central line) Has a car park which Sabaparking says has 206 spaces. It is however only half a mile along the A 1168 from M11 junction 5 and also outside London ULEZ. Postcode is IG10 3TG. Upminster (District line) The car park here appears to be run by NCP\, which says there are 342 spaces. Postcode is RM14 2TD. It is only 3 miles from M25 junction 29\, via a route involving the A127 toward London. However it is inside the ULEZ. This might be a good option for those coming from East Anglia. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Nearby places to eat				\n				\n				\n				\n									Brunswick centre (https://maps.app.goo.gl/UwBNKmhUe9ciib1G9)  and opposite Russell Square station have a wide variety of places to eat\, including: Itsu\, Nandos\, LEON\, Pret\, Franco MancaLamb’s conduit street has a number of higher end restaurants.Redemptions roasters (Lamb’s conduit street) are great for coffee.
URL:https://tofs.org.uk/event/parent-carer-virtual-meet-up-3/
LOCATION:Online
CATEGORIES:Parents & Carers
ATTACH;FMTTYPE=image/jpeg:https://tofs.org.uk/wp-content/uploads/2025/11/01-22-26-Parent-Cuppa-and-chat-1.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260124
DTEND;VALUE=DATE:20260126
DTSTAMP:20260423T111530
CREATED:20251010T132946Z
LAST-MODIFIED:20251103T154602Z
UID:10000133-1769212800-1769385599@tofs.org.uk
SUMMARY:London Winter Walk
DESCRIPTION:TOFS 2026 Seminar Important Update:We’ve been made aware that there is a part closure on the Piccadilly Line on Saturday. Depending on which direction you’re coming from\, please walk from Holborn Station (we believe the central line is open) or get off the train at Kings Cross/St Pancras and walk from there. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									The TOFS seminar is being held at the Institute of Child Health (ICH)\, London on Saturday\, 21st March\, 2026. Why attendJoin us for our in-person OA/TOF Seminar in London to hear from some of the UK’s leading specialists on the work being done to improve the care of today’s OA/TOF children and to address the long-term issues affecting adults born with the condition. This is a great opportunity to meet\, make connections and share experiences with other families and adults born with OA/TOF and associated conditions. Who should attend?This seminar is aimed at adults born with OA/TOF\, parents and carers of children born with OA/TOF and medical professionals. Note: Registration on the day opens at 9.30am with presentations beginning at 10.30am. 								\n				\n				\n				\n									\n					\n						\n						\n							\n									CLICK HERE FOR TICKETS\n					\n					\n				\n								\n				\n					\n		\n				\n			\n						\n				\n									Event co-sponsored by  								\n				\n				\n				\n																														\n				\n				\n				\n																\n															\n															\n				\n				\n				\n									NIHR Great Ormond Street Hospital Biomedical Research Centre 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n				\n				\n					Presentations				\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Eating\, drinking & swallowing difficulties children born with OA/TOF								\n				\n				\n				\n									Presented by Dr Alex Stewart – Speech and Language Therapist (GOSH) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Experience of parents of children born with oesophageal atresia								\n				\n				\n				\n									Presented by Dr Vuokko Wallace – Clinical Psychologist\, University of Bath 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Gastro issues and Eosinophilic Oesophagitis (EoE) in OA/TOF patients								\n				\n				\n				\n									Presented by Dr Osvaldo Borrelli – Head of Clinical Service\, Consultant Paediatric Gastroenterologist (GOSH) and Honorary Senior Lecturer (UCL) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Role of TOF Multi Disciplinary Team (MDT) pathway in improving care in oesophageal atresia								\n				\n				\n				\n									Presented by Ms Dhanya Mullassery – Consultant Neonatal and Paediatric Surgeon (GOSH) and Honorary Senior Lecturer (UCL) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Respiratory updates from the INoEA (International Network of Esophageal Atresia) conference and ERS (European Respiratory Society) congress								\n				\n				\n				\n									Presented by Dr Caroline Love\, Chair of TOFS Medical Liaison & Research Subcommittee and Patient Advisory Committee member of the European Lung Foundation (ELF) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									Click here to see the full schedule 								\n				\n				\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									Any Questions?When is the seminar?The seminar is on March 21st\, 2026. Registration on the day opens at 9.30am with presentations beginning at 10.30am. The seminar will close at 4.30pm. How much are tickets?Tickets are free to TOFS’ Members\, Associates and Health Professionals. If you wish to join TOFS\, please sign up at – tofs.org.uk/join-tofs/ Is this a TOFS party?No\, this is an information seminar. Can I watch the seminar online?This is an in-person event only and will not be live streamed. We encourage members to attend in person to get the full benefits of the event\, listening to the speakers; interacting with the Q&A and discussion sessions; meeting TOFS volunteers and staff and chatting with other members of TOFS who will be attending. Some of the presentations may be recorded and posted online\, at a later date. Can I bring my child/children?Yes\, but you might prefer not to. Children below secondary school age are not permitted into the lecture room while presentations are being made. A separate room will be available on the day for families\, and the presentations will be relayed to a screen in that room. All children must be cared for by a responsible adult at all times. The excellent Coram’s Fields Children’s play park is just over the road from the venue. Will there be lunch?Yes\, a light lunch will be provided\, and seating will be available. Will I get a chance to speak to other families / people affected by OA/TOF?Yes\, we will have both lunch and refreshment breaks to allow you chance to chat with other attendees. Is there wheelchair access?We are very grateful to Great Ormond Street Hospital for providing our venue for the day. However\, this is an older building and while the venue is accessible to all\, the lecture theatre itself is accessible via stairs only. If you have any disability that may affect your access or participation in the event\, please let us know when ordering your tickets.Is there a cancellation deadline?Yes. If you can no longer attend\, please let us know via info@tofs.org.uk no later than 7 days before the seminar. This is to ensure that we only cater for the correct number of guests. Where is the seminar taking place?UCL Great Ormond Street Institute of Child Health\, WC1N 1EH If you have any further questions\, please contact us. 								\n				\n					\n		\n				\n			\n						\n				\n									\n					\n				\n											\n									\n\n			\n					\n								\n											\n									\n\n			\n					\n								\n											\n									\n\n			\n					\n								\n									\n															\n													\n						\n													\n																\n												\n				\n								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					How to get there				\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Where is the seminar?				\n				\n				\n				\n									The seminar is at the Institute of Child Health (ICH)\, which is a part of University College London – but situated on the GOSH site. The entrance to ICH is at 30 Guilford Street\, just north of Great Ormond Street itself. Postcode is WC1N 1 EH. 								\n				\n					\n		\n				\n			\n						\n				\n																\n															\n															\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									TOFS 2026 Seminar Important Update:We’ve been made aware that there is a part closure on the Piccadilly Line on Saturday. Depending on which direction you’re coming from\, please walk from Holborn Station (we believe the central line is open) or get off the train at Kings Cross/St Pancras and walk from there. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Public transport				\n				\n				\n				\n									The nearest tube station to ICH / GOSH is Russell Square on the Piccadilly Line. The next closest is Holborn\, on the Central and Piccadilly lines. Kings Cross and Euston stations are both only 0.8 miles away. Farringdon station (Elizabeth line and Metropolitan / Circle plus some overground commuter trains from Brighton\, Cambridge\, Huntingdon) is 0.9 miles. 								\n				\n				\n				\n					Travelling by car				\n				\n				\n				\n									Please note\, the venue is within both the London congestion charge zone and the  ULEZ (Ultra Low Emission) zone. There is some on-street metered parking around GOSH\, including in Guilford Street itself.  Much of this becomes free after 13:30 on a Saturday.  Moreover a significant amount of residents-only parking in this area becomes derestricted (i.e. free) on a Saturday afternoon. There are large underground public car parks close to GOSH at: Brunswick square (NCP) – postcode WC1N 1AF; the Imperial Hotel in Russell Square and underneath the Holiday Inn -Bloomsbury\, postcode WC1N 1HT. 								\n				\n					\n		\n				\n			\n						\n				\n					Outer London Tube stations with parking				\n				\n				\n				\n									Several tube stations near the end of the network in the North and West segments of outer London are close to the M25 and to some of the motorways into London. Unfortunately\, most of the stations listed below are within the ULEZ zone but  outside of the London congestion charge zone. Hillingdon (Metropolitan and Piccadilly lines). Has a car park which TfL says has 283 spaces. Postcode is UB10 9NR. This station is next to a junction on the A40 Western Avenue road\, only 5 miles from the M25 /M40 junction. Moreover\, the next station along the line (Ickenham) also has a large car park effectively providing an overflow car park. Stanmore (Jubilee line). Has a car park which TfL says has 450 spaces. Postcode is HA7 4PD. From the A41 Edgware way\, this is a direct drive along London Road. The A41 is accessed directly from M1 junction 4\, which is only 2 miles from the station. This is also close to the main A1 road. Cockfosters (Piccadilly line) Has a car park which TfL says has 232 spaces. Postcode is EN4 0DZ. It is a direct 3 mile drive down the A111 from the Potter’s Bar Junction (24) of the M25. Epping (Central line) Has a car park which Sabaparking says has 532 spaces. This station is outside the London ULEZ near to the junction of the M11 and M25. It is however not so convenient from the viewpoint of motorway junctions. Postcode is CM16 4HW.  Debden (Central line) Has a car park which Sabaparking says has 206 spaces. It is however only half a mile along the A 1168 from M11 junction 5 and also outside London ULEZ. Postcode is IG10 3TG. Upminster (District line) The car park here appears to be run by NCP\, which says there are 342 spaces. Postcode is RM14 2TD. It is only 3 miles from M25 junction 29\, via a route involving the A127 toward London. However it is inside the ULEZ. This might be a good option for those coming from East Anglia. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Nearby places to eat				\n				\n				\n				\n									Brunswick centre (https://maps.app.goo.gl/UwBNKmhUe9ciib1G9)  and opposite Russell Square station have a wide variety of places to eat\, including: Itsu\, Nandos\, LEON\, Pret\, Franco MancaLamb’s conduit street has a number of higher end restaurants.Redemptions roasters (Lamb’s conduit street) are great for coffee.
URL:https://tofs.org.uk/event/london-winter-walk/
LOCATION:London\, London\, United Kingdom
CATEGORIES:Fundraising
ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2025/10/Winter-Walk.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20260131T090000
DTEND;TZID=Europe/London:20260131T110000
DTSTAMP:20260423T111530
CREATED:20251204T110010Z
LAST-MODIFIED:20251204T110748Z
UID:10000157-1769850000-1769857200@tofs.org.uk
SUMMARY:Local Meet-up: Bristol
DESCRIPTION:TOFS 2026 Seminar Important Update:We’ve been made aware that there is a part closure on the Piccadilly Line on Saturday. Depending on which direction you’re coming from\, please walk from Holborn Station (we believe the central line is open) or get off the train at Kings Cross/St Pancras and walk from there. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									The TOFS seminar is being held at the Institute of Child Health (ICH)\, London on Saturday\, 21st March\, 2026. Why attendJoin us for our in-person OA/TOF Seminar in London to hear from some of the UK’s leading specialists on the work being done to improve the care of today’s OA/TOF children and to address the long-term issues affecting adults born with the condition. This is a great opportunity to meet\, make connections and share experiences with other families and adults born with OA/TOF and associated conditions. Who should attend?This seminar is aimed at adults born with OA/TOF\, parents and carers of children born with OA/TOF and medical professionals. Note: Registration on the day opens at 9.30am with presentations beginning at 10.30am. 								\n				\n				\n				\n									\n					\n						\n						\n							\n									CLICK HERE FOR TICKETS\n					\n					\n				\n								\n				\n					\n		\n				\n			\n						\n				\n									Event co-sponsored by  								\n				\n				\n				\n																														\n				\n				\n				\n																\n															\n															\n				\n				\n				\n									NIHR Great Ormond Street Hospital Biomedical Research Centre 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n				\n				\n					Presentations				\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Eating\, drinking & swallowing difficulties children born with OA/TOF								\n				\n				\n				\n									Presented by Dr Alex Stewart – Speech and Language Therapist (GOSH) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Experience of parents of children born with oesophageal atresia								\n				\n				\n				\n									Presented by Dr Vuokko Wallace – Clinical Psychologist\, University of Bath 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Gastro issues and Eosinophilic Oesophagitis (EoE) in OA/TOF patients								\n				\n				\n				\n									Presented by Dr Osvaldo Borrelli – Head of Clinical Service\, Consultant Paediatric Gastroenterologist (GOSH) and Honorary Senior Lecturer (UCL) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Role of TOF Multi Disciplinary Team (MDT) pathway in improving care in oesophageal atresia								\n				\n				\n				\n									Presented by Ms Dhanya Mullassery – Consultant Neonatal and Paediatric Surgeon (GOSH) and Honorary Senior Lecturer (UCL) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Respiratory updates from the INoEA (International Network of Esophageal Atresia) conference and ERS (European Respiratory Society) congress								\n				\n				\n				\n									Presented by Dr Caroline Love\, Chair of TOFS Medical Liaison & Research Subcommittee and Patient Advisory Committee member of the European Lung Foundation (ELF) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									Click here to see the full schedule 								\n				\n				\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									Any Questions?When is the seminar?The seminar is on March 21st\, 2026. Registration on the day opens at 9.30am with presentations beginning at 10.30am. The seminar will close at 4.30pm. How much are tickets?Tickets are free to TOFS’ Members\, Associates and Health Professionals. If you wish to join TOFS\, please sign up at – tofs.org.uk/join-tofs/ Is this a TOFS party?No\, this is an information seminar. Can I watch the seminar online?This is an in-person event only and will not be live streamed. We encourage members to attend in person to get the full benefits of the event\, listening to the speakers; interacting with the Q&A and discussion sessions; meeting TOFS volunteers and staff and chatting with other members of TOFS who will be attending. Some of the presentations may be recorded and posted online\, at a later date. Can I bring my child/children?Yes\, but you might prefer not to. Children below secondary school age are not permitted into the lecture room while presentations are being made. A separate room will be available on the day for families\, and the presentations will be relayed to a screen in that room. All children must be cared for by a responsible adult at all times. The excellent Coram’s Fields Children’s play park is just over the road from the venue. Will there be lunch?Yes\, a light lunch will be provided\, and seating will be available. Will I get a chance to speak to other families / people affected by OA/TOF?Yes\, we will have both lunch and refreshment breaks to allow you chance to chat with other attendees. Is there wheelchair access?We are very grateful to Great Ormond Street Hospital for providing our venue for the day. However\, this is an older building and while the venue is accessible to all\, the lecture theatre itself is accessible via stairs only. If you have any disability that may affect your access or participation in the event\, please let us know when ordering your tickets.Is there a cancellation deadline?Yes. If you can no longer attend\, please let us know via info@tofs.org.uk no later than 7 days before the seminar. This is to ensure that we only cater for the correct number of guests. Where is the seminar taking place?UCL Great Ormond Street Institute of Child Health\, WC1N 1EH If you have any further questions\, please contact us. 								\n				\n					\n		\n				\n			\n						\n				\n									\n					\n				\n											\n									\n\n			\n					\n								\n											\n									\n\n			\n					\n								\n											\n									\n\n			\n					\n								\n									\n															\n													\n						\n													\n																\n												\n				\n								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					How to get there				\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Where is the seminar?				\n				\n				\n				\n									The seminar is at the Institute of Child Health (ICH)\, which is a part of University College London – but situated on the GOSH site. The entrance to ICH is at 30 Guilford Street\, just north of Great Ormond Street itself. Postcode is WC1N 1 EH. 								\n				\n					\n		\n				\n			\n						\n				\n																\n															\n															\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									TOFS 2026 Seminar Important Update:We’ve been made aware that there is a part closure on the Piccadilly Line on Saturday. Depending on which direction you’re coming from\, please walk from Holborn Station (we believe the central line is open) or get off the train at Kings Cross/St Pancras and walk from there. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Public transport				\n				\n				\n				\n									The nearest tube station to ICH / GOSH is Russell Square on the Piccadilly Line. The next closest is Holborn\, on the Central and Piccadilly lines. Kings Cross and Euston stations are both only 0.8 miles away. Farringdon station (Elizabeth line and Metropolitan / Circle plus some overground commuter trains from Brighton\, Cambridge\, Huntingdon) is 0.9 miles. 								\n				\n				\n				\n					Travelling by car				\n				\n				\n				\n									Please note\, the venue is within both the London congestion charge zone and the  ULEZ (Ultra Low Emission) zone. There is some on-street metered parking around GOSH\, including in Guilford Street itself.  Much of this becomes free after 13:30 on a Saturday.  Moreover a significant amount of residents-only parking in this area becomes derestricted (i.e. free) on a Saturday afternoon. There are large underground public car parks close to GOSH at: Brunswick square (NCP) – postcode WC1N 1AF; the Imperial Hotel in Russell Square and underneath the Holiday Inn -Bloomsbury\, postcode WC1N 1HT. 								\n				\n					\n		\n				\n			\n						\n				\n					Outer London Tube stations with parking				\n				\n				\n				\n									Several tube stations near the end of the network in the North and West segments of outer London are close to the M25 and to some of the motorways into London. Unfortunately\, most of the stations listed below are within the ULEZ zone but  outside of the London congestion charge zone. Hillingdon (Metropolitan and Piccadilly lines). Has a car park which TfL says has 283 spaces. Postcode is UB10 9NR. This station is next to a junction on the A40 Western Avenue road\, only 5 miles from the M25 /M40 junction. Moreover\, the next station along the line (Ickenham) also has a large car park effectively providing an overflow car park. Stanmore (Jubilee line). Has a car park which TfL says has 450 spaces. Postcode is HA7 4PD. From the A41 Edgware way\, this is a direct drive along London Road. The A41 is accessed directly from M1 junction 4\, which is only 2 miles from the station. This is also close to the main A1 road. Cockfosters (Piccadilly line) Has a car park which TfL says has 232 spaces. Postcode is EN4 0DZ. It is a direct 3 mile drive down the A111 from the Potter’s Bar Junction (24) of the M25. Epping (Central line) Has a car park which Sabaparking says has 532 spaces. This station is outside the London ULEZ near to the junction of the M11 and M25. It is however not so convenient from the viewpoint of motorway junctions. Postcode is CM16 4HW.  Debden (Central line) Has a car park which Sabaparking says has 206 spaces. It is however only half a mile along the A 1168 from M11 junction 5 and also outside London ULEZ. Postcode is IG10 3TG. Upminster (District line) The car park here appears to be run by NCP\, which says there are 342 spaces. Postcode is RM14 2TD. It is only 3 miles from M25 junction 29\, via a route involving the A127 toward London. However it is inside the ULEZ. This might be a good option for those coming from East Anglia. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Nearby places to eat				\n				\n				\n				\n									Brunswick centre (https://maps.app.goo.gl/UwBNKmhUe9ciib1G9)  and opposite Russell Square station have a wide variety of places to eat\, including: Itsu\, Nandos\, LEON\, Pret\, Franco MancaLamb’s conduit street has a number of higher end restaurants.Redemptions roasters (Lamb’s conduit street) are great for coffee.
URL:https://tofs.org.uk/event/local-meet-up-bristol/
LOCATION:Ronald McDonald House Bristol\, Royal Fort Rd\, Bristol\, BS2 8DH\, United Kingdom
CATEGORIES:Parents & Carers
ATTACH;FMTTYPE=image/jpeg:https://tofs.org.uk/wp-content/uploads/2024/04/local-meet-up.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20260131T100000
DTEND;TZID=Europe/London:20260131T120000
DTSTAMP:20260423T111530
CREATED:20251112T163652Z
LAST-MODIFIED:20260108T130103Z
UID:10000147-1769853600-1769860800@tofs.org.uk
SUMMARY:Local Meet up: Essex
DESCRIPTION:TOFS 2026 Seminar Important Update:We’ve been made aware that there is a part closure on the Piccadilly Line on Saturday. Depending on which direction you’re coming from\, please walk from Holborn Station (we believe the central line is open) or get off the train at Kings Cross/St Pancras and walk from there. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									The TOFS seminar is being held at the Institute of Child Health (ICH)\, London on Saturday\, 21st March\, 2026. Why attendJoin us for our in-person OA/TOF Seminar in London to hear from some of the UK’s leading specialists on the work being done to improve the care of today’s OA/TOF children and to address the long-term issues affecting adults born with the condition. This is a great opportunity to meet\, make connections and share experiences with other families and adults born with OA/TOF and associated conditions. Who should attend?This seminar is aimed at adults born with OA/TOF\, parents and carers of children born with OA/TOF and medical professionals. Note: Registration on the day opens at 9.30am with presentations beginning at 10.30am. 								\n				\n				\n				\n									\n					\n						\n						\n							\n									CLICK HERE FOR TICKETS\n					\n					\n				\n								\n				\n					\n		\n				\n			\n						\n				\n									Event co-sponsored by  								\n				\n				\n				\n																														\n				\n				\n				\n																\n															\n															\n				\n				\n				\n									NIHR Great Ormond Street Hospital Biomedical Research Centre 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n				\n				\n					Presentations				\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Eating\, drinking & swallowing difficulties children born with OA/TOF								\n				\n				\n				\n									Presented by Dr Alex Stewart – Speech and Language Therapist (GOSH) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Experience of parents of children born with oesophageal atresia								\n				\n				\n				\n									Presented by Dr Vuokko Wallace – Clinical Psychologist\, University of Bath 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Gastro issues and Eosinophilic Oesophagitis (EoE) in OA/TOF patients								\n				\n				\n				\n									Presented by Dr Osvaldo Borrelli – Head of Clinical Service\, Consultant Paediatric Gastroenterologist (GOSH) and Honorary Senior Lecturer (UCL) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Role of TOF Multi Disciplinary Team (MDT) pathway in improving care in oesophageal atresia								\n				\n				\n				\n									Presented by Ms Dhanya Mullassery – Consultant Neonatal and Paediatric Surgeon (GOSH) and Honorary Senior Lecturer (UCL) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Respiratory updates from the INoEA (International Network of Esophageal Atresia) conference and ERS (European Respiratory Society) congress								\n				\n				\n				\n									Presented by Dr Caroline Love\, Chair of TOFS Medical Liaison & Research Subcommittee and Patient Advisory Committee member of the European Lung Foundation (ELF) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									Click here to see the full schedule 								\n				\n				\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									Any Questions?When is the seminar?The seminar is on March 21st\, 2026. Registration on the day opens at 9.30am with presentations beginning at 10.30am. The seminar will close at 4.30pm. How much are tickets?Tickets are free to TOFS’ Members\, Associates and Health Professionals. If you wish to join TOFS\, please sign up at – tofs.org.uk/join-tofs/ Is this a TOFS party?No\, this is an information seminar. Can I watch the seminar online?This is an in-person event only and will not be live streamed. We encourage members to attend in person to get the full benefits of the event\, listening to the speakers; interacting with the Q&A and discussion sessions; meeting TOFS volunteers and staff and chatting with other members of TOFS who will be attending. Some of the presentations may be recorded and posted online\, at a later date. Can I bring my child/children?Yes\, but you might prefer not to. Children below secondary school age are not permitted into the lecture room while presentations are being made. A separate room will be available on the day for families\, and the presentations will be relayed to a screen in that room. All children must be cared for by a responsible adult at all times. The excellent Coram’s Fields Children’s play park is just over the road from the venue. Will there be lunch?Yes\, a light lunch will be provided\, and seating will be available. Will I get a chance to speak to other families / people affected by OA/TOF?Yes\, we will have both lunch and refreshment breaks to allow you chance to chat with other attendees. Is there wheelchair access?We are very grateful to Great Ormond Street Hospital for providing our venue for the day. However\, this is an older building and while the venue is accessible to all\, the lecture theatre itself is accessible via stairs only. If you have any disability that may affect your access or participation in the event\, please let us know when ordering your tickets.Is there a cancellation deadline?Yes. If you can no longer attend\, please let us know via info@tofs.org.uk no later than 7 days before the seminar. This is to ensure that we only cater for the correct number of guests. Where is the seminar taking place?UCL Great Ormond Street Institute of Child Health\, WC1N 1EH If you have any further questions\, please contact us. 								\n				\n					\n		\n				\n			\n						\n				\n									\n					\n				\n											\n									\n\n			\n					\n								\n											\n									\n\n			\n					\n								\n											\n									\n\n			\n					\n								\n									\n															\n													\n						\n													\n																\n												\n				\n								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					How to get there				\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Where is the seminar?				\n				\n				\n				\n									The seminar is at the Institute of Child Health (ICH)\, which is a part of University College London – but situated on the GOSH site. The entrance to ICH is at 30 Guilford Street\, just north of Great Ormond Street itself. Postcode is WC1N 1 EH. 								\n				\n					\n		\n				\n			\n						\n				\n																\n															\n															\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									TOFS 2026 Seminar Important Update:We’ve been made aware that there is a part closure on the Piccadilly Line on Saturday. Depending on which direction you’re coming from\, please walk from Holborn Station (we believe the central line is open) or get off the train at Kings Cross/St Pancras and walk from there. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Public transport				\n				\n				\n				\n									The nearest tube station to ICH / GOSH is Russell Square on the Piccadilly Line. The next closest is Holborn\, on the Central and Piccadilly lines. Kings Cross and Euston stations are both only 0.8 miles away. Farringdon station (Elizabeth line and Metropolitan / Circle plus some overground commuter trains from Brighton\, Cambridge\, Huntingdon) is 0.9 miles. 								\n				\n				\n				\n					Travelling by car				\n				\n				\n				\n									Please note\, the venue is within both the London congestion charge zone and the  ULEZ (Ultra Low Emission) zone. There is some on-street metered parking around GOSH\, including in Guilford Street itself.  Much of this becomes free after 13:30 on a Saturday.  Moreover a significant amount of residents-only parking in this area becomes derestricted (i.e. free) on a Saturday afternoon. There are large underground public car parks close to GOSH at: Brunswick square (NCP) – postcode WC1N 1AF; the Imperial Hotel in Russell Square and underneath the Holiday Inn -Bloomsbury\, postcode WC1N 1HT. 								\n				\n					\n		\n				\n			\n						\n				\n					Outer London Tube stations with parking				\n				\n				\n				\n									Several tube stations near the end of the network in the North and West segments of outer London are close to the M25 and to some of the motorways into London. Unfortunately\, most of the stations listed below are within the ULEZ zone but  outside of the London congestion charge zone. Hillingdon (Metropolitan and Piccadilly lines). Has a car park which TfL says has 283 spaces. Postcode is UB10 9NR. This station is next to a junction on the A40 Western Avenue road\, only 5 miles from the M25 /M40 junction. Moreover\, the next station along the line (Ickenham) also has a large car park effectively providing an overflow car park. Stanmore (Jubilee line). Has a car park which TfL says has 450 spaces. Postcode is HA7 4PD. From the A41 Edgware way\, this is a direct drive along London Road. The A41 is accessed directly from M1 junction 4\, which is only 2 miles from the station. This is also close to the main A1 road. Cockfosters (Piccadilly line) Has a car park which TfL says has 232 spaces. Postcode is EN4 0DZ. It is a direct 3 mile drive down the A111 from the Potter’s Bar Junction (24) of the M25. Epping (Central line) Has a car park which Sabaparking says has 532 spaces. This station is outside the London ULEZ near to the junction of the M11 and M25. It is however not so convenient from the viewpoint of motorway junctions. Postcode is CM16 4HW.  Debden (Central line) Has a car park which Sabaparking says has 206 spaces. It is however only half a mile along the A 1168 from M11 junction 5 and also outside London ULEZ. Postcode is IG10 3TG. Upminster (District line) The car park here appears to be run by NCP\, which says there are 342 spaces. Postcode is RM14 2TD. It is only 3 miles from M25 junction 29\, via a route involving the A127 toward London. However it is inside the ULEZ. This might be a good option for those coming from East Anglia. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Nearby places to eat				\n				\n				\n				\n									Brunswick centre (https://maps.app.goo.gl/UwBNKmhUe9ciib1G9)  and opposite Russell Square station have a wide variety of places to eat\, including: Itsu\, Nandos\, LEON\, Pret\, Franco MancaLamb’s conduit street has a number of higher end restaurants.Redemptions roasters (Lamb’s conduit street) are great for coffee.
URL:https://tofs.org.uk/event/local-meet-up-essex-2/
LOCATION:Mace Playce – Soft Play Centre\, Unit 3\, Cuton Hall Lane\, Chelmsford\, CM2 6PB\, United Kingdom
CATEGORIES:Parents & Carers
ATTACH;FMTTYPE=image/jpeg:https://tofs.org.uk/wp-content/uploads/2024/04/local-meet-up.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20260205T200000
DTEND;TZID=Europe/London:20260205T210000
DTSTAMP:20260423T111530
CREATED:20251113T172609Z
LAST-MODIFIED:20260115T161820Z
UID:10000151-1770321600-1770325200@tofs.org.uk
SUMMARY:Virtual meet-up for adults born with OA/TOF
DESCRIPTION:TOFS 2026 Seminar Important Update:We’ve been made aware that there is a part closure on the Piccadilly Line on Saturday. Depending on which direction you’re coming from\, please walk from Holborn Station (we believe the central line is open) or get off the train at Kings Cross/St Pancras and walk from there. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									The TOFS seminar is being held at the Institute of Child Health (ICH)\, London on Saturday\, 21st March\, 2026. Why attendJoin us for our in-person OA/TOF Seminar in London to hear from some of the UK’s leading specialists on the work being done to improve the care of today’s OA/TOF children and to address the long-term issues affecting adults born with the condition. This is a great opportunity to meet\, make connections and share experiences with other families and adults born with OA/TOF and associated conditions. Who should attend?This seminar is aimed at adults born with OA/TOF\, parents and carers of children born with OA/TOF and medical professionals. Note: Registration on the day opens at 9.30am with presentations beginning at 10.30am. 								\n				\n				\n				\n									\n					\n						\n						\n							\n									CLICK HERE FOR TICKETS\n					\n					\n				\n								\n				\n					\n		\n				\n			\n						\n				\n									Event co-sponsored by  								\n				\n				\n				\n																														\n				\n				\n				\n																\n															\n															\n				\n				\n				\n									NIHR Great Ormond Street Hospital Biomedical Research Centre 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n				\n				\n					Presentations				\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Eating\, drinking & swallowing difficulties children born with OA/TOF								\n				\n				\n				\n									Presented by Dr Alex Stewart – Speech and Language Therapist (GOSH) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Experience of parents of children born with oesophageal atresia								\n				\n				\n				\n									Presented by Dr Vuokko Wallace – Clinical Psychologist\, University of Bath 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Gastro issues and Eosinophilic Oesophagitis (EoE) in OA/TOF patients								\n				\n				\n				\n									Presented by Dr Osvaldo Borrelli – Head of Clinical Service\, Consultant Paediatric Gastroenterologist (GOSH) and Honorary Senior Lecturer (UCL) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Role of TOF Multi Disciplinary Team (MDT) pathway in improving care in oesophageal atresia								\n				\n				\n				\n									Presented by Ms Dhanya Mullassery – Consultant Neonatal and Paediatric Surgeon (GOSH) and Honorary Senior Lecturer (UCL) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Respiratory updates from the INoEA (International Network of Esophageal Atresia) conference and ERS (European Respiratory Society) congress								\n				\n				\n				\n									Presented by Dr Caroline Love\, Chair of TOFS Medical Liaison & Research Subcommittee and Patient Advisory Committee member of the European Lung Foundation (ELF) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									Click here to see the full schedule 								\n				\n				\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									Any Questions?When is the seminar?The seminar is on March 21st\, 2026. Registration on the day opens at 9.30am with presentations beginning at 10.30am. The seminar will close at 4.30pm. How much are tickets?Tickets are free to TOFS’ Members\, Associates and Health Professionals. If you wish to join TOFS\, please sign up at – tofs.org.uk/join-tofs/ Is this a TOFS party?No\, this is an information seminar. Can I watch the seminar online?This is an in-person event only and will not be live streamed. We encourage members to attend in person to get the full benefits of the event\, listening to the speakers; interacting with the Q&A and discussion sessions; meeting TOFS volunteers and staff and chatting with other members of TOFS who will be attending. Some of the presentations may be recorded and posted online\, at a later date. Can I bring my child/children?Yes\, but you might prefer not to. Children below secondary school age are not permitted into the lecture room while presentations are being made. A separate room will be available on the day for families\, and the presentations will be relayed to a screen in that room. All children must be cared for by a responsible adult at all times. The excellent Coram’s Fields Children’s play park is just over the road from the venue. Will there be lunch?Yes\, a light lunch will be provided\, and seating will be available. Will I get a chance to speak to other families / people affected by OA/TOF?Yes\, we will have both lunch and refreshment breaks to allow you chance to chat with other attendees. Is there wheelchair access?We are very grateful to Great Ormond Street Hospital for providing our venue for the day. However\, this is an older building and while the venue is accessible to all\, the lecture theatre itself is accessible via stairs only. If you have any disability that may affect your access or participation in the event\, please let us know when ordering your tickets.Is there a cancellation deadline?Yes. If you can no longer attend\, please let us know via info@tofs.org.uk no later than 7 days before the seminar. This is to ensure that we only cater for the correct number of guests. Where is the seminar taking place?UCL Great Ormond Street Institute of Child Health\, WC1N 1EH If you have any further questions\, please contact us. 								\n				\n					\n		\n				\n			\n						\n				\n									\n					\n				\n											\n									\n\n			\n					\n								\n											\n									\n\n			\n					\n								\n											\n									\n\n			\n					\n								\n									\n															\n													\n						\n													\n																\n												\n				\n								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					How to get there				\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Where is the seminar?				\n				\n				\n				\n									The seminar is at the Institute of Child Health (ICH)\, which is a part of University College London – but situated on the GOSH site. The entrance to ICH is at 30 Guilford Street\, just north of Great Ormond Street itself. Postcode is WC1N 1 EH. 								\n				\n					\n		\n				\n			\n						\n				\n																\n															\n															\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									TOFS 2026 Seminar Important Update:We’ve been made aware that there is a part closure on the Piccadilly Line on Saturday. Depending on which direction you’re coming from\, please walk from Holborn Station (we believe the central line is open) or get off the train at Kings Cross/St Pancras and walk from there. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Public transport				\n				\n				\n				\n									The nearest tube station to ICH / GOSH is Russell Square on the Piccadilly Line. The next closest is Holborn\, on the Central and Piccadilly lines. Kings Cross and Euston stations are both only 0.8 miles away. Farringdon station (Elizabeth line and Metropolitan / Circle plus some overground commuter trains from Brighton\, Cambridge\, Huntingdon) is 0.9 miles. 								\n				\n				\n				\n					Travelling by car				\n				\n				\n				\n									Please note\, the venue is within both the London congestion charge zone and the  ULEZ (Ultra Low Emission) zone. There is some on-street metered parking around GOSH\, including in Guilford Street itself.  Much of this becomes free after 13:30 on a Saturday.  Moreover a significant amount of residents-only parking in this area becomes derestricted (i.e. free) on a Saturday afternoon. There are large underground public car parks close to GOSH at: Brunswick square (NCP) – postcode WC1N 1AF; the Imperial Hotel in Russell Square and underneath the Holiday Inn -Bloomsbury\, postcode WC1N 1HT. 								\n				\n					\n		\n				\n			\n						\n				\n					Outer London Tube stations with parking				\n				\n				\n				\n									Several tube stations near the end of the network in the North and West segments of outer London are close to the M25 and to some of the motorways into London. Unfortunately\, most of the stations listed below are within the ULEZ zone but  outside of the London congestion charge zone. Hillingdon (Metropolitan and Piccadilly lines). Has a car park which TfL says has 283 spaces. Postcode is UB10 9NR. This station is next to a junction on the A40 Western Avenue road\, only 5 miles from the M25 /M40 junction. Moreover\, the next station along the line (Ickenham) also has a large car park effectively providing an overflow car park. Stanmore (Jubilee line). Has a car park which TfL says has 450 spaces. Postcode is HA7 4PD. From the A41 Edgware way\, this is a direct drive along London Road. The A41 is accessed directly from M1 junction 4\, which is only 2 miles from the station. This is also close to the main A1 road. Cockfosters (Piccadilly line) Has a car park which TfL says has 232 spaces. Postcode is EN4 0DZ. It is a direct 3 mile drive down the A111 from the Potter’s Bar Junction (24) of the M25. Epping (Central line) Has a car park which Sabaparking says has 532 spaces. This station is outside the London ULEZ near to the junction of the M11 and M25. It is however not so convenient from the viewpoint of motorway junctions. Postcode is CM16 4HW.  Debden (Central line) Has a car park which Sabaparking says has 206 spaces. It is however only half a mile along the A 1168 from M11 junction 5 and also outside London ULEZ. Postcode is IG10 3TG. Upminster (District line) The car park here appears to be run by NCP\, which says there are 342 spaces. Postcode is RM14 2TD. It is only 3 miles from M25 junction 29\, via a route involving the A127 toward London. However it is inside the ULEZ. This might be a good option for those coming from East Anglia. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Nearby places to eat				\n				\n				\n				\n									Brunswick centre (https://maps.app.goo.gl/UwBNKmhUe9ciib1G9)  and opposite Russell Square station have a wide variety of places to eat\, including: Itsu\, Nandos\, LEON\, Pret\, Franco MancaLamb’s conduit street has a number of higher end restaurants.Redemptions roasters (Lamb’s conduit street) are great for coffee.
URL:https://tofs.org.uk/event/virtual-meet-up-for-adults-born-with-oa-tof-19/
LOCATION:Online
CATEGORIES:Adult TOF
ATTACH;FMTTYPE=image/jpeg:https://tofs.org.uk/wp-content/uploads/2025/11/05-02-26-Adult-cuppa-and-chat.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260223
DTEND;VALUE=DATE:20260302
DTSTAMP:20260423T111530
CREATED:20251127T150925Z
LAST-MODIFIED:20260213T115334Z
UID:10000155-1771804800-1772409599@tofs.org.uk
SUMMARY:OA/TOF Awareness Week 2026
DESCRIPTION:TOFS 2026 Seminar Important Update:We’ve been made aware that there is a part closure on the Piccadilly Line on Saturday. Depending on which direction you’re coming from\, please walk from Holborn Station (we believe the central line is open) or get off the train at Kings Cross/St Pancras and walk from there. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									The TOFS seminar is being held at the Institute of Child Health (ICH)\, London on Saturday\, 21st March\, 2026. Why attendJoin us for our in-person OA/TOF Seminar in London to hear from some of the UK’s leading specialists on the work being done to improve the care of today’s OA/TOF children and to address the long-term issues affecting adults born with the condition. This is a great opportunity to meet\, make connections and share experiences with other families and adults born with OA/TOF and associated conditions. Who should attend?This seminar is aimed at adults born with OA/TOF\, parents and carers of children born with OA/TOF and medical professionals. Note: Registration on the day opens at 9.30am with presentations beginning at 10.30am. 								\n				\n				\n				\n									\n					\n						\n						\n							\n									CLICK HERE FOR TICKETS\n					\n					\n				\n								\n				\n					\n		\n				\n			\n						\n				\n									Event co-sponsored by  								\n				\n				\n				\n																														\n				\n				\n				\n																\n															\n															\n				\n				\n				\n									NIHR Great Ormond Street Hospital Biomedical Research Centre 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n				\n				\n					Presentations				\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Eating\, drinking & swallowing difficulties children born with OA/TOF								\n				\n				\n				\n									Presented by Dr Alex Stewart – Speech and Language Therapist (GOSH) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Experience of parents of children born with oesophageal atresia								\n				\n				\n				\n									Presented by Dr Vuokko Wallace – Clinical Psychologist\, University of Bath 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Gastro issues and Eosinophilic Oesophagitis (EoE) in OA/TOF patients								\n				\n				\n				\n									Presented by Dr Osvaldo Borrelli – Head of Clinical Service\, Consultant Paediatric Gastroenterologist (GOSH) and Honorary Senior Lecturer (UCL) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Role of TOF Multi Disciplinary Team (MDT) pathway in improving care in oesophageal atresia								\n				\n				\n				\n									Presented by Ms Dhanya Mullassery – Consultant Neonatal and Paediatric Surgeon (GOSH) and Honorary Senior Lecturer (UCL) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Respiratory updates from the INoEA (International Network of Esophageal Atresia) conference and ERS (European Respiratory Society) congress								\n				\n				\n				\n									Presented by Dr Caroline Love\, Chair of TOFS Medical Liaison & Research Subcommittee and Patient Advisory Committee member of the European Lung Foundation (ELF) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									Click here to see the full schedule 								\n				\n				\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									Any Questions?When is the seminar?The seminar is on March 21st\, 2026. Registration on the day opens at 9.30am with presentations beginning at 10.30am. The seminar will close at 4.30pm. How much are tickets?Tickets are free to TOFS’ Members\, Associates and Health Professionals. If you wish to join TOFS\, please sign up at – tofs.org.uk/join-tofs/ Is this a TOFS party?No\, this is an information seminar. Can I watch the seminar online?This is an in-person event only and will not be live streamed. We encourage members to attend in person to get the full benefits of the event\, listening to the speakers; interacting with the Q&A and discussion sessions; meeting TOFS volunteers and staff and chatting with other members of TOFS who will be attending. Some of the presentations may be recorded and posted online\, at a later date. Can I bring my child/children?Yes\, but you might prefer not to. Children below secondary school age are not permitted into the lecture room while presentations are being made. A separate room will be available on the day for families\, and the presentations will be relayed to a screen in that room. All children must be cared for by a responsible adult at all times. The excellent Coram’s Fields Children’s play park is just over the road from the venue. Will there be lunch?Yes\, a light lunch will be provided\, and seating will be available. Will I get a chance to speak to other families / people affected by OA/TOF?Yes\, we will have both lunch and refreshment breaks to allow you chance to chat with other attendees. Is there wheelchair access?We are very grateful to Great Ormond Street Hospital for providing our venue for the day. However\, this is an older building and while the venue is accessible to all\, the lecture theatre itself is accessible via stairs only. If you have any disability that may affect your access or participation in the event\, please let us know when ordering your tickets.Is there a cancellation deadline?Yes. If you can no longer attend\, please let us know via info@tofs.org.uk no later than 7 days before the seminar. This is to ensure that we only cater for the correct number of guests. Where is the seminar taking place?UCL Great Ormond Street Institute of Child Health\, WC1N 1EH If you have any further questions\, please contact us. 								\n				\n					\n		\n				\n			\n						\n				\n									\n					\n				\n											\n									\n\n			\n					\n								\n											\n									\n\n			\n					\n								\n											\n									\n\n			\n					\n								\n									\n															\n													\n						\n													\n																\n												\n				\n								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					How to get there				\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Where is the seminar?				\n				\n				\n				\n									The seminar is at the Institute of Child Health (ICH)\, which is a part of University College London – but situated on the GOSH site. The entrance to ICH is at 30 Guilford Street\, just north of Great Ormond Street itself. Postcode is WC1N 1 EH. 								\n				\n					\n		\n				\n			\n						\n				\n																\n															\n															\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									TOFS 2026 Seminar Important Update:We’ve been made aware that there is a part closure on the Piccadilly Line on Saturday. Depending on which direction you’re coming from\, please walk from Holborn Station (we believe the central line is open) or get off the train at Kings Cross/St Pancras and walk from there. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Public transport				\n				\n				\n				\n									The nearest tube station to ICH / GOSH is Russell Square on the Piccadilly Line. The next closest is Holborn\, on the Central and Piccadilly lines. Kings Cross and Euston stations are both only 0.8 miles away. Farringdon station (Elizabeth line and Metropolitan / Circle plus some overground commuter trains from Brighton\, Cambridge\, Huntingdon) is 0.9 miles. 								\n				\n				\n				\n					Travelling by car				\n				\n				\n				\n									Please note\, the venue is within both the London congestion charge zone and the  ULEZ (Ultra Low Emission) zone. There is some on-street metered parking around GOSH\, including in Guilford Street itself.  Much of this becomes free after 13:30 on a Saturday.  Moreover a significant amount of residents-only parking in this area becomes derestricted (i.e. free) on a Saturday afternoon. There are large underground public car parks close to GOSH at: Brunswick square (NCP) – postcode WC1N 1AF; the Imperial Hotel in Russell Square and underneath the Holiday Inn -Bloomsbury\, postcode WC1N 1HT. 								\n				\n					\n		\n				\n			\n						\n				\n					Outer London Tube stations with parking				\n				\n				\n				\n									Several tube stations near the end of the network in the North and West segments of outer London are close to the M25 and to some of the motorways into London. Unfortunately\, most of the stations listed below are within the ULEZ zone but  outside of the London congestion charge zone. Hillingdon (Metropolitan and Piccadilly lines). Has a car park which TfL says has 283 spaces. Postcode is UB10 9NR. This station is next to a junction on the A40 Western Avenue road\, only 5 miles from the M25 /M40 junction. Moreover\, the next station along the line (Ickenham) also has a large car park effectively providing an overflow car park. Stanmore (Jubilee line). Has a car park which TfL says has 450 spaces. Postcode is HA7 4PD. From the A41 Edgware way\, this is a direct drive along London Road. The A41 is accessed directly from M1 junction 4\, which is only 2 miles from the station. This is also close to the main A1 road. Cockfosters (Piccadilly line) Has a car park which TfL says has 232 spaces. Postcode is EN4 0DZ. It is a direct 3 mile drive down the A111 from the Potter’s Bar Junction (24) of the M25. Epping (Central line) Has a car park which Sabaparking says has 532 spaces. This station is outside the London ULEZ near to the junction of the M11 and M25. It is however not so convenient from the viewpoint of motorway junctions. Postcode is CM16 4HW.  Debden (Central line) Has a car park which Sabaparking says has 206 spaces. It is however only half a mile along the A 1168 from M11 junction 5 and also outside London ULEZ. Postcode is IG10 3TG. Upminster (District line) The car park here appears to be run by NCP\, which says there are 342 spaces. Postcode is RM14 2TD. It is only 3 miles from M25 junction 29\, via a route involving the A127 toward London. However it is inside the ULEZ. This might be a good option for those coming from East Anglia. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Nearby places to eat				\n				\n				\n				\n									Brunswick centre (https://maps.app.goo.gl/UwBNKmhUe9ciib1G9)  and opposite Russell Square station have a wide variety of places to eat\, including: Itsu\, Nandos\, LEON\, Pret\, Franco MancaLamb’s conduit street has a number of higher end restaurants.Redemptions roasters (Lamb’s conduit street) are great for coffee.
URL:https://tofs.org.uk/event/oa-tof-awareness-week-2026/
LOCATION:Various locations
CATEGORIES:TOFS
ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2025/11/TOFS-OA-TOF-Awareness-Week-Get-Ready.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20260224T200000
DTEND;TZID=Europe/London:20260224T210000
DTSTAMP:20260423T111530
CREATED:20251210T130911Z
LAST-MODIFIED:20251210T130938Z
UID:10000158-1771963200-1771966800@tofs.org.uk
SUMMARY:OA/TOF: A father’s perspective
DESCRIPTION:TOFS 2026 Seminar Important Update:We’ve been made aware that there is a part closure on the Piccadilly Line on Saturday. Depending on which direction you’re coming from\, please walk from Holborn Station (we believe the central line is open) or get off the train at Kings Cross/St Pancras and walk from there. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									The TOFS seminar is being held at the Institute of Child Health (ICH)\, London on Saturday\, 21st March\, 2026. Why attendJoin us for our in-person OA/TOF Seminar in London to hear from some of the UK’s leading specialists on the work being done to improve the care of today’s OA/TOF children and to address the long-term issues affecting adults born with the condition. This is a great opportunity to meet\, make connections and share experiences with other families and adults born with OA/TOF and associated conditions. Who should attend?This seminar is aimed at adults born with OA/TOF\, parents and carers of children born with OA/TOF and medical professionals. Note: Registration on the day opens at 9.30am with presentations beginning at 10.30am. 								\n				\n				\n				\n									\n					\n						\n						\n							\n									CLICK HERE FOR TICKETS\n					\n					\n				\n								\n				\n					\n		\n				\n			\n						\n				\n									Event co-sponsored by  								\n				\n				\n				\n																														\n				\n				\n				\n																\n															\n															\n				\n				\n				\n									NIHR Great Ormond Street Hospital Biomedical Research Centre 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n				\n				\n					Presentations				\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Eating\, drinking & swallowing difficulties children born with OA/TOF								\n				\n				\n				\n									Presented by Dr Alex Stewart – Speech and Language Therapist (GOSH) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Experience of parents of children born with oesophageal atresia								\n				\n				\n				\n									Presented by Dr Vuokko Wallace – Clinical Psychologist\, University of Bath 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Gastro issues and Eosinophilic Oesophagitis (EoE) in OA/TOF patients								\n				\n				\n				\n									Presented by Dr Osvaldo Borrelli – Head of Clinical Service\, Consultant Paediatric Gastroenterologist (GOSH) and Honorary Senior Lecturer (UCL) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Role of TOF Multi Disciplinary Team (MDT) pathway in improving care in oesophageal atresia								\n				\n				\n				\n									Presented by Ms Dhanya Mullassery – Consultant Neonatal and Paediatric Surgeon (GOSH) and Honorary Senior Lecturer (UCL) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Respiratory updates from the INoEA (International Network of Esophageal Atresia) conference and ERS (European Respiratory Society) congress								\n				\n				\n				\n									Presented by Dr Caroline Love\, Chair of TOFS Medical Liaison & Research Subcommittee and Patient Advisory Committee member of the European Lung Foundation (ELF) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									Click here to see the full schedule 								\n				\n				\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									Any Questions?When is the seminar?The seminar is on March 21st\, 2026. Registration on the day opens at 9.30am with presentations beginning at 10.30am. The seminar will close at 4.30pm. How much are tickets?Tickets are free to TOFS’ Members\, Associates and Health Professionals. If you wish to join TOFS\, please sign up at – tofs.org.uk/join-tofs/ Is this a TOFS party?No\, this is an information seminar. Can I watch the seminar online?This is an in-person event only and will not be live streamed. We encourage members to attend in person to get the full benefits of the event\, listening to the speakers; interacting with the Q&A and discussion sessions; meeting TOFS volunteers and staff and chatting with other members of TOFS who will be attending. Some of the presentations may be recorded and posted online\, at a later date. Can I bring my child/children?Yes\, but you might prefer not to. Children below secondary school age are not permitted into the lecture room while presentations are being made. A separate room will be available on the day for families\, and the presentations will be relayed to a screen in that room. All children must be cared for by a responsible adult at all times. The excellent Coram’s Fields Children’s play park is just over the road from the venue. Will there be lunch?Yes\, a light lunch will be provided\, and seating will be available. Will I get a chance to speak to other families / people affected by OA/TOF?Yes\, we will have both lunch and refreshment breaks to allow you chance to chat with other attendees. Is there wheelchair access?We are very grateful to Great Ormond Street Hospital for providing our venue for the day. However\, this is an older building and while the venue is accessible to all\, the lecture theatre itself is accessible via stairs only. If you have any disability that may affect your access or participation in the event\, please let us know when ordering your tickets.Is there a cancellation deadline?Yes. If you can no longer attend\, please let us know via info@tofs.org.uk no later than 7 days before the seminar. This is to ensure that we only cater for the correct number of guests. Where is the seminar taking place?UCL Great Ormond Street Institute of Child Health\, WC1N 1EH If you have any further questions\, please contact us. 								\n				\n					\n		\n				\n			\n						\n				\n									\n					\n				\n											\n									\n\n			\n					\n								\n											\n									\n\n			\n					\n								\n											\n									\n\n			\n					\n								\n									\n															\n													\n						\n													\n																\n												\n				\n								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					How to get there				\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Where is the seminar?				\n				\n				\n				\n									The seminar is at the Institute of Child Health (ICH)\, which is a part of University College London – but situated on the GOSH site. The entrance to ICH is at 30 Guilford Street\, just north of Great Ormond Street itself. Postcode is WC1N 1 EH. 								\n				\n					\n		\n				\n			\n						\n				\n																\n															\n															\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									TOFS 2026 Seminar Important Update:We’ve been made aware that there is a part closure on the Piccadilly Line on Saturday. Depending on which direction you’re coming from\, please walk from Holborn Station (we believe the central line is open) or get off the train at Kings Cross/St Pancras and walk from there. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Public transport				\n				\n				\n				\n									The nearest tube station to ICH / GOSH is Russell Square on the Piccadilly Line. The next closest is Holborn\, on the Central and Piccadilly lines. Kings Cross and Euston stations are both only 0.8 miles away. Farringdon station (Elizabeth line and Metropolitan / Circle plus some overground commuter trains from Brighton\, Cambridge\, Huntingdon) is 0.9 miles. 								\n				\n				\n				\n					Travelling by car				\n				\n				\n				\n									Please note\, the venue is within both the London congestion charge zone and the  ULEZ (Ultra Low Emission) zone. There is some on-street metered parking around GOSH\, including in Guilford Street itself.  Much of this becomes free after 13:30 on a Saturday.  Moreover a significant amount of residents-only parking in this area becomes derestricted (i.e. free) on a Saturday afternoon. There are large underground public car parks close to GOSH at: Brunswick square (NCP) – postcode WC1N 1AF; the Imperial Hotel in Russell Square and underneath the Holiday Inn -Bloomsbury\, postcode WC1N 1HT. 								\n				\n					\n		\n				\n			\n						\n				\n					Outer London Tube stations with parking				\n				\n				\n				\n									Several tube stations near the end of the network in the North and West segments of outer London are close to the M25 and to some of the motorways into London. Unfortunately\, most of the stations listed below are within the ULEZ zone but  outside of the London congestion charge zone. Hillingdon (Metropolitan and Piccadilly lines). Has a car park which TfL says has 283 spaces. Postcode is UB10 9NR. This station is next to a junction on the A40 Western Avenue road\, only 5 miles from the M25 /M40 junction. Moreover\, the next station along the line (Ickenham) also has a large car park effectively providing an overflow car park. Stanmore (Jubilee line). Has a car park which TfL says has 450 spaces. Postcode is HA7 4PD. From the A41 Edgware way\, this is a direct drive along London Road. The A41 is accessed directly from M1 junction 4\, which is only 2 miles from the station. This is also close to the main A1 road. Cockfosters (Piccadilly line) Has a car park which TfL says has 232 spaces. Postcode is EN4 0DZ. It is a direct 3 mile drive down the A111 from the Potter’s Bar Junction (24) of the M25. Epping (Central line) Has a car park which Sabaparking says has 532 spaces. This station is outside the London ULEZ near to the junction of the M11 and M25. It is however not so convenient from the viewpoint of motorway junctions. Postcode is CM16 4HW.  Debden (Central line) Has a car park which Sabaparking says has 206 spaces. It is however only half a mile along the A 1168 from M11 junction 5 and also outside London ULEZ. Postcode is IG10 3TG. Upminster (District line) The car park here appears to be run by NCP\, which says there are 342 spaces. Postcode is RM14 2TD. It is only 3 miles from M25 junction 29\, via a route involving the A127 toward London. However it is inside the ULEZ. This might be a good option for those coming from East Anglia. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Nearby places to eat				\n				\n				\n				\n									Brunswick centre (https://maps.app.goo.gl/UwBNKmhUe9ciib1G9)  and opposite Russell Square station have a wide variety of places to eat\, including: Itsu\, Nandos\, LEON\, Pret\, Franco MancaLamb’s conduit street has a number of higher end restaurants.Redemptions roasters (Lamb’s conduit street) are great for coffee.
URL:https://tofs.org.uk/event/oa-tof-a-fathers-perspective/
LOCATION:Online
CATEGORIES:Parents & Carers
ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2025/12/02-24-Fathers-perspective-Cuppa-and-chat.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260228
DTEND;VALUE=DATE:20260301
DTSTAMP:20260423T111530
CREATED:20251216T120951Z
LAST-MODIFIED:20260227T152403Z
UID:10000159-1772236800-1772323199@tofs.org.uk
SUMMARY:Rare Disease Day 2026
DESCRIPTION:TOFS 2026 Seminar Important Update:We’ve been made aware that there is a part closure on the Piccadilly Line on Saturday. Depending on which direction you’re coming from\, please walk from Holborn Station (we believe the central line is open) or get off the train at Kings Cross/St Pancras and walk from there. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									The TOFS seminar is being held at the Institute of Child Health (ICH)\, London on Saturday\, 21st March\, 2026. Why attendJoin us for our in-person OA/TOF Seminar in London to hear from some of the UK’s leading specialists on the work being done to improve the care of today’s OA/TOF children and to address the long-term issues affecting adults born with the condition. This is a great opportunity to meet\, make connections and share experiences with other families and adults born with OA/TOF and associated conditions. Who should attend?This seminar is aimed at adults born with OA/TOF\, parents and carers of children born with OA/TOF and medical professionals. Note: Registration on the day opens at 9.30am with presentations beginning at 10.30am. 								\n				\n				\n				\n									\n					\n						\n						\n							\n									CLICK HERE FOR TICKETS\n					\n					\n				\n								\n				\n					\n		\n				\n			\n						\n				\n									Event co-sponsored by  								\n				\n				\n				\n																														\n				\n				\n				\n																\n															\n															\n				\n				\n				\n									NIHR Great Ormond Street Hospital Biomedical Research Centre 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n				\n				\n					Presentations				\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Eating\, drinking & swallowing difficulties children born with OA/TOF								\n				\n				\n				\n									Presented by Dr Alex Stewart – Speech and Language Therapist (GOSH) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Experience of parents of children born with oesophageal atresia								\n				\n				\n				\n									Presented by Dr Vuokko Wallace – Clinical Psychologist\, University of Bath 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Gastro issues and Eosinophilic Oesophagitis (EoE) in OA/TOF patients								\n				\n				\n				\n									Presented by Dr Osvaldo Borrelli – Head of Clinical Service\, Consultant Paediatric Gastroenterologist (GOSH) and Honorary Senior Lecturer (UCL) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Role of TOF Multi Disciplinary Team (MDT) pathway in improving care in oesophageal atresia								\n				\n				\n				\n									Presented by Ms Dhanya Mullassery – Consultant Neonatal and Paediatric Surgeon (GOSH) and Honorary Senior Lecturer (UCL) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Respiratory updates from the INoEA (International Network of Esophageal Atresia) conference and ERS (European Respiratory Society) congress								\n				\n				\n				\n									Presented by Dr Caroline Love\, Chair of TOFS Medical Liaison & Research Subcommittee and Patient Advisory Committee member of the European Lung Foundation (ELF) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									Click here to see the full schedule 								\n				\n				\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									Any Questions?When is the seminar?The seminar is on March 21st\, 2026. Registration on the day opens at 9.30am with presentations beginning at 10.30am. The seminar will close at 4.30pm. How much are tickets?Tickets are free to TOFS’ Members\, Associates and Health Professionals. If you wish to join TOFS\, please sign up at – tofs.org.uk/join-tofs/ Is this a TOFS party?No\, this is an information seminar. Can I watch the seminar online?This is an in-person event only and will not be live streamed. We encourage members to attend in person to get the full benefits of the event\, listening to the speakers; interacting with the Q&A and discussion sessions; meeting TOFS volunteers and staff and chatting with other members of TOFS who will be attending. Some of the presentations may be recorded and posted online\, at a later date. Can I bring my child/children?Yes\, but you might prefer not to. Children below secondary school age are not permitted into the lecture room while presentations are being made. A separate room will be available on the day for families\, and the presentations will be relayed to a screen in that room. All children must be cared for by a responsible adult at all times. The excellent Coram’s Fields Children’s play park is just over the road from the venue. Will there be lunch?Yes\, a light lunch will be provided\, and seating will be available. Will I get a chance to speak to other families / people affected by OA/TOF?Yes\, we will have both lunch and refreshment breaks to allow you chance to chat with other attendees. Is there wheelchair access?We are very grateful to Great Ormond Street Hospital for providing our venue for the day. However\, this is an older building and while the venue is accessible to all\, the lecture theatre itself is accessible via stairs only. If you have any disability that may affect your access or participation in the event\, please let us know when ordering your tickets.Is there a cancellation deadline?Yes. If you can no longer attend\, please let us know via info@tofs.org.uk no later than 7 days before the seminar. This is to ensure that we only cater for the correct number of guests. Where is the seminar taking place?UCL Great Ormond Street Institute of Child Health\, WC1N 1EH If you have any further questions\, please contact us. 								\n				\n					\n		\n				\n			\n						\n				\n									\n					\n				\n											\n									\n\n			\n					\n								\n											\n									\n\n			\n					\n								\n											\n									\n\n			\n					\n								\n									\n															\n													\n						\n													\n																\n												\n				\n								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					How to get there				\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Where is the seminar?				\n				\n				\n				\n									The seminar is at the Institute of Child Health (ICH)\, which is a part of University College London – but situated on the GOSH site. The entrance to ICH is at 30 Guilford Street\, just north of Great Ormond Street itself. Postcode is WC1N 1 EH. 								\n				\n					\n		\n				\n			\n						\n				\n																\n															\n															\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									TOFS 2026 Seminar Important Update:We’ve been made aware that there is a part closure on the Piccadilly Line on Saturday. Depending on which direction you’re coming from\, please walk from Holborn Station (we believe the central line is open) or get off the train at Kings Cross/St Pancras and walk from there. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Public transport				\n				\n				\n				\n									The nearest tube station to ICH / GOSH is Russell Square on the Piccadilly Line. The next closest is Holborn\, on the Central and Piccadilly lines. Kings Cross and Euston stations are both only 0.8 miles away. Farringdon station (Elizabeth line and Metropolitan / Circle plus some overground commuter trains from Brighton\, Cambridge\, Huntingdon) is 0.9 miles. 								\n				\n				\n				\n					Travelling by car				\n				\n				\n				\n									Please note\, the venue is within both the London congestion charge zone and the  ULEZ (Ultra Low Emission) zone. There is some on-street metered parking around GOSH\, including in Guilford Street itself.  Much of this becomes free after 13:30 on a Saturday.  Moreover a significant amount of residents-only parking in this area becomes derestricted (i.e. free) on a Saturday afternoon. There are large underground public car parks close to GOSH at: Brunswick square (NCP) – postcode WC1N 1AF; the Imperial Hotel in Russell Square and underneath the Holiday Inn -Bloomsbury\, postcode WC1N 1HT. 								\n				\n					\n		\n				\n			\n						\n				\n					Outer London Tube stations with parking				\n				\n				\n				\n									Several tube stations near the end of the network in the North and West segments of outer London are close to the M25 and to some of the motorways into London. Unfortunately\, most of the stations listed below are within the ULEZ zone but  outside of the London congestion charge zone. Hillingdon (Metropolitan and Piccadilly lines). Has a car park which TfL says has 283 spaces. Postcode is UB10 9NR. This station is next to a junction on the A40 Western Avenue road\, only 5 miles from the M25 /M40 junction. Moreover\, the next station along the line (Ickenham) also has a large car park effectively providing an overflow car park. Stanmore (Jubilee line). Has a car park which TfL says has 450 spaces. Postcode is HA7 4PD. From the A41 Edgware way\, this is a direct drive along London Road. The A41 is accessed directly from M1 junction 4\, which is only 2 miles from the station. This is also close to the main A1 road. Cockfosters (Piccadilly line) Has a car park which TfL says has 232 spaces. Postcode is EN4 0DZ. It is a direct 3 mile drive down the A111 from the Potter’s Bar Junction (24) of the M25. Epping (Central line) Has a car park which Sabaparking says has 532 spaces. This station is outside the London ULEZ near to the junction of the M11 and M25. It is however not so convenient from the viewpoint of motorway junctions. Postcode is CM16 4HW.  Debden (Central line) Has a car park which Sabaparking says has 206 spaces. It is however only half a mile along the A 1168 from M11 junction 5 and also outside London ULEZ. Postcode is IG10 3TG. Upminster (District line) The car park here appears to be run by NCP\, which says there are 342 spaces. Postcode is RM14 2TD. It is only 3 miles from M25 junction 29\, via a route involving the A127 toward London. However it is inside the ULEZ. This might be a good option for those coming from East Anglia. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Nearby places to eat				\n				\n				\n				\n									Brunswick centre (https://maps.app.goo.gl/UwBNKmhUe9ciib1G9)  and opposite Russell Square station have a wide variety of places to eat\, including: Itsu\, Nandos\, LEON\, Pret\, Franco MancaLamb’s conduit street has a number of higher end restaurants.Redemptions roasters (Lamb’s conduit street) are great for coffee.
URL:https://tofs.org.uk/event/rare-disease-day-2026/
LOCATION:Various locations
CATEGORIES:Support
ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2022/12/rare-disease-day.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20260307T223000
DTEND;TZID=Europe/London:20260307T233000
DTSTAMP:20260423T111530
CREATED:20260129T101953Z
LAST-MODIFIED:20260202T090241Z
UID:10000160-1772922600-1772926200@tofs.org.uk
SUMMARY:Virtual meet-up for adults born with OA/TOF
DESCRIPTION:TOFS 2026 Seminar Important Update:We’ve been made aware that there is a part closure on the Piccadilly Line on Saturday. Depending on which direction you’re coming from\, please walk from Holborn Station (we believe the central line is open) or get off the train at Kings Cross/St Pancras and walk from there. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									The TOFS seminar is being held at the Institute of Child Health (ICH)\, London on Saturday\, 21st March\, 2026. Why attendJoin us for our in-person OA/TOF Seminar in London to hear from some of the UK’s leading specialists on the work being done to improve the care of today’s OA/TOF children and to address the long-term issues affecting adults born with the condition. This is a great opportunity to meet\, make connections and share experiences with other families and adults born with OA/TOF and associated conditions. Who should attend?This seminar is aimed at adults born with OA/TOF\, parents and carers of children born with OA/TOF and medical professionals. Note: Registration on the day opens at 9.30am with presentations beginning at 10.30am. 								\n				\n				\n				\n									\n					\n						\n						\n							\n									CLICK HERE FOR TICKETS\n					\n					\n				\n								\n				\n					\n		\n				\n			\n						\n				\n									Event co-sponsored by  								\n				\n				\n				\n																														\n				\n				\n				\n																\n															\n															\n				\n				\n				\n									NIHR Great Ormond Street Hospital Biomedical Research Centre 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n				\n				\n					Presentations				\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Eating\, drinking & swallowing difficulties children born with OA/TOF								\n				\n				\n				\n									Presented by Dr Alex Stewart – Speech and Language Therapist (GOSH) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Experience of parents of children born with oesophageal atresia								\n				\n				\n				\n									Presented by Dr Vuokko Wallace – Clinical Psychologist\, University of Bath 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Gastro issues and Eosinophilic Oesophagitis (EoE) in OA/TOF patients								\n				\n				\n				\n									Presented by Dr Osvaldo Borrelli – Head of Clinical Service\, Consultant Paediatric Gastroenterologist (GOSH) and Honorary Senior Lecturer (UCL) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Role of TOF Multi Disciplinary Team (MDT) pathway in improving care in oesophageal atresia								\n				\n				\n				\n									Presented by Ms Dhanya Mullassery – Consultant Neonatal and Paediatric Surgeon (GOSH) and Honorary Senior Lecturer (UCL) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Respiratory updates from the INoEA (International Network of Esophageal Atresia) conference and ERS (European Respiratory Society) congress								\n				\n				\n				\n									Presented by Dr Caroline Love\, Chair of TOFS Medical Liaison & Research Subcommittee and Patient Advisory Committee member of the European Lung Foundation (ELF) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									Click here to see the full schedule 								\n				\n				\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									Any Questions?When is the seminar?The seminar is on March 21st\, 2026. Registration on the day opens at 9.30am with presentations beginning at 10.30am. The seminar will close at 4.30pm. How much are tickets?Tickets are free to TOFS’ Members\, Associates and Health Professionals. If you wish to join TOFS\, please sign up at – tofs.org.uk/join-tofs/ Is this a TOFS party?No\, this is an information seminar. Can I watch the seminar online?This is an in-person event only and will not be live streamed. We encourage members to attend in person to get the full benefits of the event\, listening to the speakers; interacting with the Q&A and discussion sessions; meeting TOFS volunteers and staff and chatting with other members of TOFS who will be attending. Some of the presentations may be recorded and posted online\, at a later date. Can I bring my child/children?Yes\, but you might prefer not to. Children below secondary school age are not permitted into the lecture room while presentations are being made. A separate room will be available on the day for families\, and the presentations will be relayed to a screen in that room. All children must be cared for by a responsible adult at all times. The excellent Coram’s Fields Children’s play park is just over the road from the venue. Will there be lunch?Yes\, a light lunch will be provided\, and seating will be available. Will I get a chance to speak to other families / people affected by OA/TOF?Yes\, we will have both lunch and refreshment breaks to allow you chance to chat with other attendees. Is there wheelchair access?We are very grateful to Great Ormond Street Hospital for providing our venue for the day. However\, this is an older building and while the venue is accessible to all\, the lecture theatre itself is accessible via stairs only. If you have any disability that may affect your access or participation in the event\, please let us know when ordering your tickets.Is there a cancellation deadline?Yes. If you can no longer attend\, please let us know via info@tofs.org.uk no later than 7 days before the seminar. This is to ensure that we only cater for the correct number of guests. Where is the seminar taking place?UCL Great Ormond Street Institute of Child Health\, WC1N 1EH If you have any further questions\, please contact us. 								\n				\n					\n		\n				\n			\n						\n				\n									\n					\n				\n											\n									\n\n			\n					\n								\n											\n									\n\n			\n					\n								\n											\n									\n\n			\n					\n								\n									\n															\n													\n						\n													\n																\n												\n				\n								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					How to get there				\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Where is the seminar?				\n				\n				\n				\n									The seminar is at the Institute of Child Health (ICH)\, which is a part of University College London – but situated on the GOSH site. The entrance to ICH is at 30 Guilford Street\, just north of Great Ormond Street itself. Postcode is WC1N 1 EH. 								\n				\n					\n		\n				\n			\n						\n				\n																\n															\n															\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									TOFS 2026 Seminar Important Update:We’ve been made aware that there is a part closure on the Piccadilly Line on Saturday. Depending on which direction you’re coming from\, please walk from Holborn Station (we believe the central line is open) or get off the train at Kings Cross/St Pancras and walk from there. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Public transport				\n				\n				\n				\n									The nearest tube station to ICH / GOSH is Russell Square on the Piccadilly Line. The next closest is Holborn\, on the Central and Piccadilly lines. Kings Cross and Euston stations are both only 0.8 miles away. Farringdon station (Elizabeth line and Metropolitan / Circle plus some overground commuter trains from Brighton\, Cambridge\, Huntingdon) is 0.9 miles. 								\n				\n				\n				\n					Travelling by car				\n				\n				\n				\n									Please note\, the venue is within both the London congestion charge zone and the  ULEZ (Ultra Low Emission) zone. There is some on-street metered parking around GOSH\, including in Guilford Street itself.  Much of this becomes free after 13:30 on a Saturday.  Moreover a significant amount of residents-only parking in this area becomes derestricted (i.e. free) on a Saturday afternoon. There are large underground public car parks close to GOSH at: Brunswick square (NCP) – postcode WC1N 1AF; the Imperial Hotel in Russell Square and underneath the Holiday Inn -Bloomsbury\, postcode WC1N 1HT. 								\n				\n					\n		\n				\n			\n						\n				\n					Outer London Tube stations with parking				\n				\n				\n				\n									Several tube stations near the end of the network in the North and West segments of outer London are close to the M25 and to some of the motorways into London. Unfortunately\, most of the stations listed below are within the ULEZ zone but  outside of the London congestion charge zone. Hillingdon (Metropolitan and Piccadilly lines). Has a car park which TfL says has 283 spaces. Postcode is UB10 9NR. This station is next to a junction on the A40 Western Avenue road\, only 5 miles from the M25 /M40 junction. Moreover\, the next station along the line (Ickenham) also has a large car park effectively providing an overflow car park. Stanmore (Jubilee line). Has a car park which TfL says has 450 spaces. Postcode is HA7 4PD. From the A41 Edgware way\, this is a direct drive along London Road. The A41 is accessed directly from M1 junction 4\, which is only 2 miles from the station. This is also close to the main A1 road. Cockfosters (Piccadilly line) Has a car park which TfL says has 232 spaces. Postcode is EN4 0DZ. It is a direct 3 mile drive down the A111 from the Potter’s Bar Junction (24) of the M25. Epping (Central line) Has a car park which Sabaparking says has 532 spaces. This station is outside the London ULEZ near to the junction of the M11 and M25. It is however not so convenient from the viewpoint of motorway junctions. Postcode is CM16 4HW.  Debden (Central line) Has a car park which Sabaparking says has 206 spaces. It is however only half a mile along the A 1168 from M11 junction 5 and also outside London ULEZ. Postcode is IG10 3TG. Upminster (District line) The car park here appears to be run by NCP\, which says there are 342 spaces. Postcode is RM14 2TD. It is only 3 miles from M25 junction 29\, via a route involving the A127 toward London. However it is inside the ULEZ. This might be a good option for those coming from East Anglia. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Nearby places to eat				\n				\n				\n				\n									Brunswick centre (https://maps.app.goo.gl/UwBNKmhUe9ciib1G9)  and opposite Russell Square station have a wide variety of places to eat\, including: Itsu\, Nandos\, LEON\, Pret\, Franco MancaLamb’s conduit street has a number of higher end restaurants.Redemptions roasters (Lamb’s conduit street) are great for coffee.
URL:https://tofs.org.uk/event/virtual-meet-up-for-adults-born-with-oa-tof-20/
LOCATION:Online
CATEGORIES:Adult TOF
ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2026/01/3-March-Adult-cuppa-and-chat.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20260317T200000
DTEND;TZID=Europe/London:20260317T210000
DTSTAMP:20260423T111530
CREATED:20260129T102855Z
LAST-MODIFIED:20260129T114447Z
UID:10000161-1773777600-1773781200@tofs.org.uk
SUMMARY:Virtual meet-up for adults born with OA/TOF
DESCRIPTION:TOFS 2026 Seminar Important Update:We’ve been made aware that there is a part closure on the Piccadilly Line on Saturday. Depending on which direction you’re coming from\, please walk from Holborn Station (we believe the central line is open) or get off the train at Kings Cross/St Pancras and walk from there. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									The TOFS seminar is being held at the Institute of Child Health (ICH)\, London on Saturday\, 21st March\, 2026. Why attendJoin us for our in-person OA/TOF Seminar in London to hear from some of the UK’s leading specialists on the work being done to improve the care of today’s OA/TOF children and to address the long-term issues affecting adults born with the condition. This is a great opportunity to meet\, make connections and share experiences with other families and adults born with OA/TOF and associated conditions. Who should attend?This seminar is aimed at adults born with OA/TOF\, parents and carers of children born with OA/TOF and medical professionals. Note: Registration on the day opens at 9.30am with presentations beginning at 10.30am. 								\n				\n				\n				\n									\n					\n						\n						\n							\n									CLICK HERE FOR TICKETS\n					\n					\n				\n								\n				\n					\n		\n				\n			\n						\n				\n									Event co-sponsored by  								\n				\n				\n				\n																														\n				\n				\n				\n																\n															\n															\n				\n				\n				\n									NIHR Great Ormond Street Hospital Biomedical Research Centre 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n				\n				\n					Presentations				\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Eating\, drinking & swallowing difficulties children born with OA/TOF								\n				\n				\n				\n									Presented by Dr Alex Stewart – Speech and Language Therapist (GOSH) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Experience of parents of children born with oesophageal atresia								\n				\n				\n				\n									Presented by Dr Vuokko Wallace – Clinical Psychologist\, University of Bath 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Gastro issues and Eosinophilic Oesophagitis (EoE) in OA/TOF patients								\n				\n				\n				\n									Presented by Dr Osvaldo Borrelli – Head of Clinical Service\, Consultant Paediatric Gastroenterologist (GOSH) and Honorary Senior Lecturer (UCL) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Role of TOF Multi Disciplinary Team (MDT) pathway in improving care in oesophageal atresia								\n				\n				\n				\n									Presented by Ms Dhanya Mullassery – Consultant Neonatal and Paediatric Surgeon (GOSH) and Honorary Senior Lecturer (UCL) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Respiratory updates from the INoEA (International Network of Esophageal Atresia) conference and ERS (European Respiratory Society) congress								\n				\n				\n				\n									Presented by Dr Caroline Love\, Chair of TOFS Medical Liaison & Research Subcommittee and Patient Advisory Committee member of the European Lung Foundation (ELF) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									Click here to see the full schedule 								\n				\n				\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									Any Questions?When is the seminar?The seminar is on March 21st\, 2026. Registration on the day opens at 9.30am with presentations beginning at 10.30am. The seminar will close at 4.30pm. How much are tickets?Tickets are free to TOFS’ Members\, Associates and Health Professionals. If you wish to join TOFS\, please sign up at – tofs.org.uk/join-tofs/ Is this a TOFS party?No\, this is an information seminar. Can I watch the seminar online?This is an in-person event only and will not be live streamed. We encourage members to attend in person to get the full benefits of the event\, listening to the speakers; interacting with the Q&A and discussion sessions; meeting TOFS volunteers and staff and chatting with other members of TOFS who will be attending. Some of the presentations may be recorded and posted online\, at a later date. Can I bring my child/children?Yes\, but you might prefer not to. Children below secondary school age are not permitted into the lecture room while presentations are being made. A separate room will be available on the day for families\, and the presentations will be relayed to a screen in that room. All children must be cared for by a responsible adult at all times. The excellent Coram’s Fields Children’s play park is just over the road from the venue. Will there be lunch?Yes\, a light lunch will be provided\, and seating will be available. Will I get a chance to speak to other families / people affected by OA/TOF?Yes\, we will have both lunch and refreshment breaks to allow you chance to chat with other attendees. Is there wheelchair access?We are very grateful to Great Ormond Street Hospital for providing our venue for the day. However\, this is an older building and while the venue is accessible to all\, the lecture theatre itself is accessible via stairs only. If you have any disability that may affect your access or participation in the event\, please let us know when ordering your tickets.Is there a cancellation deadline?Yes. If you can no longer attend\, please let us know via info@tofs.org.uk no later than 7 days before the seminar. This is to ensure that we only cater for the correct number of guests. Where is the seminar taking place?UCL Great Ormond Street Institute of Child Health\, WC1N 1EH If you have any further questions\, please contact us. 								\n				\n					\n		\n				\n			\n						\n				\n									\n					\n				\n											\n									\n\n			\n					\n								\n											\n									\n\n			\n					\n								\n											\n									\n\n			\n					\n								\n									\n															\n													\n						\n													\n																\n												\n				\n								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					How to get there				\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Where is the seminar?				\n				\n				\n				\n									The seminar is at the Institute of Child Health (ICH)\, which is a part of University College London – but situated on the GOSH site. The entrance to ICH is at 30 Guilford Street\, just north of Great Ormond Street itself. Postcode is WC1N 1 EH. 								\n				\n					\n		\n				\n			\n						\n				\n																\n															\n															\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									TOFS 2026 Seminar Important Update:We’ve been made aware that there is a part closure on the Piccadilly Line on Saturday. Depending on which direction you’re coming from\, please walk from Holborn Station (we believe the central line is open) or get off the train at Kings Cross/St Pancras and walk from there. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Public transport				\n				\n				\n				\n									The nearest tube station to ICH / GOSH is Russell Square on the Piccadilly Line. The next closest is Holborn\, on the Central and Piccadilly lines. Kings Cross and Euston stations are both only 0.8 miles away. Farringdon station (Elizabeth line and Metropolitan / Circle plus some overground commuter trains from Brighton\, Cambridge\, Huntingdon) is 0.9 miles. 								\n				\n				\n				\n					Travelling by car				\n				\n				\n				\n									Please note\, the venue is within both the London congestion charge zone and the  ULEZ (Ultra Low Emission) zone. There is some on-street metered parking around GOSH\, including in Guilford Street itself.  Much of this becomes free after 13:30 on a Saturday.  Moreover a significant amount of residents-only parking in this area becomes derestricted (i.e. free) on a Saturday afternoon. There are large underground public car parks close to GOSH at: Brunswick square (NCP) – postcode WC1N 1AF; the Imperial Hotel in Russell Square and underneath the Holiday Inn -Bloomsbury\, postcode WC1N 1HT. 								\n				\n					\n		\n				\n			\n						\n				\n					Outer London Tube stations with parking				\n				\n				\n				\n									Several tube stations near the end of the network in the North and West segments of outer London are close to the M25 and to some of the motorways into London. Unfortunately\, most of the stations listed below are within the ULEZ zone but  outside of the London congestion charge zone. Hillingdon (Metropolitan and Piccadilly lines). Has a car park which TfL says has 283 spaces. Postcode is UB10 9NR. This station is next to a junction on the A40 Western Avenue road\, only 5 miles from the M25 /M40 junction. Moreover\, the next station along the line (Ickenham) also has a large car park effectively providing an overflow car park. Stanmore (Jubilee line). Has a car park which TfL says has 450 spaces. Postcode is HA7 4PD. From the A41 Edgware way\, this is a direct drive along London Road. The A41 is accessed directly from M1 junction 4\, which is only 2 miles from the station. This is also close to the main A1 road. Cockfosters (Piccadilly line) Has a car park which TfL says has 232 spaces. Postcode is EN4 0DZ. It is a direct 3 mile drive down the A111 from the Potter’s Bar Junction (24) of the M25. Epping (Central line) Has a car park which Sabaparking says has 532 spaces. This station is outside the London ULEZ near to the junction of the M11 and M25. It is however not so convenient from the viewpoint of motorway junctions. Postcode is CM16 4HW.  Debden (Central line) Has a car park which Sabaparking says has 206 spaces. It is however only half a mile along the A 1168 from M11 junction 5 and also outside London ULEZ. Postcode is IG10 3TG. Upminster (District line) The car park here appears to be run by NCP\, which says there are 342 spaces. Postcode is RM14 2TD. It is only 3 miles from M25 junction 29\, via a route involving the A127 toward London. However it is inside the ULEZ. This might be a good option for those coming from East Anglia. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Nearby places to eat				\n				\n				\n				\n									Brunswick centre (https://maps.app.goo.gl/UwBNKmhUe9ciib1G9)  and opposite Russell Square station have a wide variety of places to eat\, including: Itsu\, Nandos\, LEON\, Pret\, Franco MancaLamb’s conduit street has a number of higher end restaurants.Redemptions roasters (Lamb’s conduit street) are great for coffee.
URL:https://tofs.org.uk/event/virtual-meet-up-for-adults-born-with-oa-tof-21/
LOCATION:Online
CATEGORIES:Adult TOF
ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2026/01/3B-March2-Adult-cuppa-and-chat.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20260321T103000
DTEND;TZID=Europe/London:20260321T163000
DTSTAMP:20260423T111530
CREATED:20251127T143646Z
LAST-MODIFIED:20260320T212432Z
UID:10000154-1774089000-1774110600@tofs.org.uk
SUMMARY:TOFS 2026 Seminar
DESCRIPTION:TOFS 2026 Seminar Important Update:We’ve been made aware that there is a part closure on the Piccadilly Line on Saturday. Depending on which direction you’re coming from\, please walk from Holborn Station (we believe the central line is open) or get off the train at Kings Cross/St Pancras and walk from there. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									The TOFS seminar is being held at the Institute of Child Health (ICH)\, London on Saturday\, 21st March\, 2026. Why attendJoin us for our in-person OA/TOF Seminar in London to hear from some of the UK’s leading specialists on the work being done to improve the care of today’s OA/TOF children and to address the long-term issues affecting adults born with the condition. This is a great opportunity to meet\, make connections and share experiences with other families and adults born with OA/TOF and associated conditions. Who should attend?This seminar is aimed at adults born with OA/TOF\, parents and carers of children born with OA/TOF and medical professionals. Note: Registration on the day opens at 9.30am with presentations beginning at 10.30am. 								\n				\n				\n				\n									\n					\n						\n						\n							\n									CLICK HERE FOR TICKETS\n					\n					\n				\n								\n				\n					\n		\n				\n			\n						\n				\n									Event co-sponsored by  								\n				\n				\n				\n																														\n				\n				\n				\n																\n															\n															\n				\n				\n				\n									NIHR Great Ormond Street Hospital Biomedical Research Centre 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n				\n				\n					Presentations				\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Eating\, drinking & swallowing difficulties children born with OA/TOF								\n				\n				\n				\n									Presented by Dr Alex Stewart – Speech and Language Therapist (GOSH) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Experience of parents of children born with oesophageal atresia								\n				\n				\n				\n									Presented by Dr Vuokko Wallace – Clinical Psychologist\, University of Bath 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Gastro issues and Eosinophilic Oesophagitis (EoE) in OA/TOF patients								\n				\n				\n				\n									Presented by Dr Osvaldo Borrelli – Head of Clinical Service\, Consultant Paediatric Gastroenterologist (GOSH) and Honorary Senior Lecturer (UCL) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Role of TOF Multi Disciplinary Team (MDT) pathway in improving care in oesophageal atresia								\n				\n				\n				\n									Presented by Ms Dhanya Mullassery – Consultant Neonatal and Paediatric Surgeon (GOSH) and Honorary Senior Lecturer (UCL) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Respiratory updates from the INoEA (International Network of Esophageal Atresia) conference and ERS (European Respiratory Society) congress								\n				\n				\n				\n									Presented by Dr Caroline Love\, Chair of TOFS Medical Liaison & Research Subcommittee and Patient Advisory Committee member of the European Lung Foundation (ELF) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									Click here to see the full schedule 								\n				\n				\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									Any Questions?When is the seminar?The seminar is on March 21st\, 2026. Registration on the day opens at 9.30am with presentations beginning at 10.30am. The seminar will close at 4.30pm. How much are tickets?Tickets are free to TOFS’ Members\, Associates and Health Professionals. If you wish to join TOFS\, please sign up at – tofs.org.uk/join-tofs/ Is this a TOFS party?No\, this is an information seminar. Can I watch the seminar online?This is an in-person event only and will not be live streamed. We encourage members to attend in person to get the full benefits of the event\, listening to the speakers; interacting with the Q&A and discussion sessions; meeting TOFS volunteers and staff and chatting with other members of TOFS who will be attending. Some of the presentations may be recorded and posted online\, at a later date. Can I bring my child/children?Yes\, but you might prefer not to. Children below secondary school age are not permitted into the lecture room while presentations are being made. A separate room will be available on the day for families\, and the presentations will be relayed to a screen in that room. All children must be cared for by a responsible adult at all times. The excellent Coram’s Fields Children’s play park is just over the road from the venue. Will there be lunch?Yes\, a light lunch will be provided\, and seating will be available. Will I get a chance to speak to other families / people affected by OA/TOF?Yes\, we will have both lunch and refreshment breaks to allow you chance to chat with other attendees. Is there wheelchair access?We are very grateful to Great Ormond Street Hospital for providing our venue for the day. However\, this is an older building and while the venue is accessible to all\, the lecture theatre itself is accessible via stairs only. If you have any disability that may affect your access or participation in the event\, please let us know when ordering your tickets.Is there a cancellation deadline?Yes. If you can no longer attend\, please let us know via info@tofs.org.uk no later than 7 days before the seminar. This is to ensure that we only cater for the correct number of guests. Where is the seminar taking place?UCL Great Ormond Street Institute of Child Health\, WC1N 1EH If you have any further questions\, please contact us. 								\n				\n					\n		\n				\n			\n						\n				\n									\n					\n				\n											\n									\n\n			\n					\n								\n											\n									\n\n			\n					\n								\n											\n									\n\n			\n					\n								\n									\n															\n													\n						\n													\n																\n												\n				\n								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					How to get there				\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Where is the seminar?				\n				\n				\n				\n									The seminar is at the Institute of Child Health (ICH)\, which is a part of University College London – but situated on the GOSH site. The entrance to ICH is at 30 Guilford Street\, just north of Great Ormond Street itself. Postcode is WC1N 1 EH. 								\n				\n					\n		\n				\n			\n						\n				\n																\n															\n															\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									TOFS 2026 Seminar Important Update:We’ve been made aware that there is a part closure on the Piccadilly Line on Saturday. Depending on which direction you’re coming from\, please walk from Holborn Station (we believe the central line is open) or get off the train at Kings Cross/St Pancras and walk from there. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Public transport				\n				\n				\n				\n									The nearest tube station to ICH / GOSH is Russell Square on the Piccadilly Line. The next closest is Holborn\, on the Central and Piccadilly lines. Kings Cross and Euston stations are both only 0.8 miles away. Farringdon station (Elizabeth line and Metropolitan / Circle plus some overground commuter trains from Brighton\, Cambridge\, Huntingdon) is 0.9 miles. 								\n				\n				\n				\n					Travelling by car				\n				\n				\n				\n									Please note\, the venue is within both the London congestion charge zone and the  ULEZ (Ultra Low Emission) zone. There is some on-street metered parking around GOSH\, including in Guilford Street itself.  Much of this becomes free after 13:30 on a Saturday.  Moreover a significant amount of residents-only parking in this area becomes derestricted (i.e. free) on a Saturday afternoon. There are large underground public car parks close to GOSH at: Brunswick square (NCP) – postcode WC1N 1AF; the Imperial Hotel in Russell Square and underneath the Holiday Inn -Bloomsbury\, postcode WC1N 1HT. 								\n				\n					\n		\n				\n			\n						\n				\n					Outer London Tube stations with parking				\n				\n				\n				\n									Several tube stations near the end of the network in the North and West segments of outer London are close to the M25 and to some of the motorways into London. Unfortunately\, most of the stations listed below are within the ULEZ zone but  outside of the London congestion charge zone. Hillingdon (Metropolitan and Piccadilly lines). Has a car park which TfL says has 283 spaces. Postcode is UB10 9NR. This station is next to a junction on the A40 Western Avenue road\, only 5 miles from the M25 /M40 junction. Moreover\, the next station along the line (Ickenham) also has a large car park effectively providing an overflow car park. Stanmore (Jubilee line). Has a car park which TfL says has 450 spaces. Postcode is HA7 4PD. From the A41 Edgware way\, this is a direct drive along London Road. The A41 is accessed directly from M1 junction 4\, which is only 2 miles from the station. This is also close to the main A1 road. Cockfosters (Piccadilly line) Has a car park which TfL says has 232 spaces. Postcode is EN4 0DZ. It is a direct 3 mile drive down the A111 from the Potter’s Bar Junction (24) of the M25. Epping (Central line) Has a car park which Sabaparking says has 532 spaces. This station is outside the London ULEZ near to the junction of the M11 and M25. It is however not so convenient from the viewpoint of motorway junctions. Postcode is CM16 4HW.  Debden (Central line) Has a car park which Sabaparking says has 206 spaces. It is however only half a mile along the A 1168 from M11 junction 5 and also outside London ULEZ. Postcode is IG10 3TG. Upminster (District line) The car park here appears to be run by NCP\, which says there are 342 spaces. Postcode is RM14 2TD. It is only 3 miles from M25 junction 29\, via a route involving the A127 toward London. However it is inside the ULEZ. This might be a good option for those coming from East Anglia. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Nearby places to eat				\n				\n				\n				\n									Brunswick centre (https://maps.app.goo.gl/UwBNKmhUe9ciib1G9)  and opposite Russell Square station have a wide variety of places to eat\, including: Itsu\, Nandos\, LEON\, Pret\, Franco MancaLamb’s conduit street has a number of higher end restaurants.Redemptions roasters (Lamb’s conduit street) are great for coffee.
URL:https://tofs.org.uk/event/tofs-seminar-2026/
LOCATION:UCL Great Ormond Street Institute of Child Health\, 30 Guilford Street\, London\, WC1N 1EH\, United Kingdom
CATEGORIES:Adult TOF,Parents & Carers,Professional
ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2020/05/tofs-logo-no-text-500x500-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20260326T200000
DTEND;TZID=Europe/London:20260326T210000
DTSTAMP:20260423T111530
CREATED:20260224T163655Z
LAST-MODIFIED:20260224T163732Z
UID:10000166-1774555200-1774558800@tofs.org.uk
SUMMARY:Parent & Carer virtual meet-up
DESCRIPTION:TOFS 2026 Seminar Important Update:We’ve been made aware that there is a part closure on the Piccadilly Line on Saturday. Depending on which direction you’re coming from\, please walk from Holborn Station (we believe the central line is open) or get off the train at Kings Cross/St Pancras and walk from there. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									The TOFS seminar is being held at the Institute of Child Health (ICH)\, London on Saturday\, 21st March\, 2026. Why attendJoin us for our in-person OA/TOF Seminar in London to hear from some of the UK’s leading specialists on the work being done to improve the care of today’s OA/TOF children and to address the long-term issues affecting adults born with the condition. This is a great opportunity to meet\, make connections and share experiences with other families and adults born with OA/TOF and associated conditions. Who should attend?This seminar is aimed at adults born with OA/TOF\, parents and carers of children born with OA/TOF and medical professionals. Note: Registration on the day opens at 9.30am with presentations beginning at 10.30am. 								\n				\n				\n				\n									\n					\n						\n						\n							\n									CLICK HERE FOR TICKETS\n					\n					\n				\n								\n				\n					\n		\n				\n			\n						\n				\n									Event co-sponsored by  								\n				\n				\n				\n																														\n				\n				\n				\n																\n															\n															\n				\n				\n				\n									NIHR Great Ormond Street Hospital Biomedical Research Centre 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n				\n				\n					Presentations				\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Eating\, drinking & swallowing difficulties children born with OA/TOF								\n				\n				\n				\n									Presented by Dr Alex Stewart – Speech and Language Therapist (GOSH) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Experience of parents of children born with oesophageal atresia								\n				\n				\n				\n									Presented by Dr Vuokko Wallace – Clinical Psychologist\, University of Bath 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Gastro issues and Eosinophilic Oesophagitis (EoE) in OA/TOF patients								\n				\n				\n				\n									Presented by Dr Osvaldo Borrelli – Head of Clinical Service\, Consultant Paediatric Gastroenterologist (GOSH) and Honorary Senior Lecturer (UCL) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Role of TOF Multi Disciplinary Team (MDT) pathway in improving care in oesophageal atresia								\n				\n				\n				\n									Presented by Ms Dhanya Mullassery – Consultant Neonatal and Paediatric Surgeon (GOSH) and Honorary Senior Lecturer (UCL) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Respiratory updates from the INoEA (International Network of Esophageal Atresia) conference and ERS (European Respiratory Society) congress								\n				\n				\n				\n									Presented by Dr Caroline Love\, Chair of TOFS Medical Liaison & Research Subcommittee and Patient Advisory Committee member of the European Lung Foundation (ELF) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									Click here to see the full schedule 								\n				\n				\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									Any Questions?When is the seminar?The seminar is on March 21st\, 2026. Registration on the day opens at 9.30am with presentations beginning at 10.30am. The seminar will close at 4.30pm. How much are tickets?Tickets are free to TOFS’ Members\, Associates and Health Professionals. If you wish to join TOFS\, please sign up at – tofs.org.uk/join-tofs/ Is this a TOFS party?No\, this is an information seminar. Can I watch the seminar online?This is an in-person event only and will not be live streamed. We encourage members to attend in person to get the full benefits of the event\, listening to the speakers; interacting with the Q&A and discussion sessions; meeting TOFS volunteers and staff and chatting with other members of TOFS who will be attending. Some of the presentations may be recorded and posted online\, at a later date. Can I bring my child/children?Yes\, but you might prefer not to. Children below secondary school age are not permitted into the lecture room while presentations are being made. A separate room will be available on the day for families\, and the presentations will be relayed to a screen in that room. All children must be cared for by a responsible adult at all times. The excellent Coram’s Fields Children’s play park is just over the road from the venue. Will there be lunch?Yes\, a light lunch will be provided\, and seating will be available. Will I get a chance to speak to other families / people affected by OA/TOF?Yes\, we will have both lunch and refreshment breaks to allow you chance to chat with other attendees. Is there wheelchair access?We are very grateful to Great Ormond Street Hospital for providing our venue for the day. However\, this is an older building and while the venue is accessible to all\, the lecture theatre itself is accessible via stairs only. If you have any disability that may affect your access or participation in the event\, please let us know when ordering your tickets.Is there a cancellation deadline?Yes. If you can no longer attend\, please let us know via info@tofs.org.uk no later than 7 days before the seminar. This is to ensure that we only cater for the correct number of guests. Where is the seminar taking place?UCL Great Ormond Street Institute of Child Health\, WC1N 1EH If you have any further questions\, please contact us. 								\n				\n					\n		\n				\n			\n						\n				\n									\n					\n				\n											\n									\n\n			\n					\n								\n											\n									\n\n			\n					\n								\n											\n									\n\n			\n					\n								\n									\n															\n													\n						\n													\n																\n												\n				\n								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					How to get there				\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Where is the seminar?				\n				\n				\n				\n									The seminar is at the Institute of Child Health (ICH)\, which is a part of University College London – but situated on the GOSH site. The entrance to ICH is at 30 Guilford Street\, just north of Great Ormond Street itself. Postcode is WC1N 1 EH. 								\n				\n					\n		\n				\n			\n						\n				\n																\n															\n															\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									TOFS 2026 Seminar Important Update:We’ve been made aware that there is a part closure on the Piccadilly Line on Saturday. Depending on which direction you’re coming from\, please walk from Holborn Station (we believe the central line is open) or get off the train at Kings Cross/St Pancras and walk from there. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Public transport				\n				\n				\n				\n									The nearest tube station to ICH / GOSH is Russell Square on the Piccadilly Line. The next closest is Holborn\, on the Central and Piccadilly lines. Kings Cross and Euston stations are both only 0.8 miles away. Farringdon station (Elizabeth line and Metropolitan / Circle plus some overground commuter trains from Brighton\, Cambridge\, Huntingdon) is 0.9 miles. 								\n				\n				\n				\n					Travelling by car				\n				\n				\n				\n									Please note\, the venue is within both the London congestion charge zone and the  ULEZ (Ultra Low Emission) zone. There is some on-street metered parking around GOSH\, including in Guilford Street itself.  Much of this becomes free after 13:30 on a Saturday.  Moreover a significant amount of residents-only parking in this area becomes derestricted (i.e. free) on a Saturday afternoon. There are large underground public car parks close to GOSH at: Brunswick square (NCP) – postcode WC1N 1AF; the Imperial Hotel in Russell Square and underneath the Holiday Inn -Bloomsbury\, postcode WC1N 1HT. 								\n				\n					\n		\n				\n			\n						\n				\n					Outer London Tube stations with parking				\n				\n				\n				\n									Several tube stations near the end of the network in the North and West segments of outer London are close to the M25 and to some of the motorways into London. Unfortunately\, most of the stations listed below are within the ULEZ zone but  outside of the London congestion charge zone. Hillingdon (Metropolitan and Piccadilly lines). Has a car park which TfL says has 283 spaces. Postcode is UB10 9NR. This station is next to a junction on the A40 Western Avenue road\, only 5 miles from the M25 /M40 junction. Moreover\, the next station along the line (Ickenham) also has a large car park effectively providing an overflow car park. Stanmore (Jubilee line). Has a car park which TfL says has 450 spaces. Postcode is HA7 4PD. From the A41 Edgware way\, this is a direct drive along London Road. The A41 is accessed directly from M1 junction 4\, which is only 2 miles from the station. This is also close to the main A1 road. Cockfosters (Piccadilly line) Has a car park which TfL says has 232 spaces. Postcode is EN4 0DZ. It is a direct 3 mile drive down the A111 from the Potter’s Bar Junction (24) of the M25. Epping (Central line) Has a car park which Sabaparking says has 532 spaces. This station is outside the London ULEZ near to the junction of the M11 and M25. It is however not so convenient from the viewpoint of motorway junctions. Postcode is CM16 4HW.  Debden (Central line) Has a car park which Sabaparking says has 206 spaces. It is however only half a mile along the A 1168 from M11 junction 5 and also outside London ULEZ. Postcode is IG10 3TG. Upminster (District line) The car park here appears to be run by NCP\, which says there are 342 spaces. Postcode is RM14 2TD. It is only 3 miles from M25 junction 29\, via a route involving the A127 toward London. However it is inside the ULEZ. This might be a good option for those coming from East Anglia. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Nearby places to eat				\n				\n				\n				\n									Brunswick centre (https://maps.app.goo.gl/UwBNKmhUe9ciib1G9)  and opposite Russell Square station have a wide variety of places to eat\, including: Itsu\, Nandos\, LEON\, Pret\, Franco MancaLamb’s conduit street has a number of higher end restaurants.Redemptions roasters (Lamb’s conduit street) are great for coffee.
URL:https://tofs.org.uk/event/parent-carer-virtual-meet-up-4/
LOCATION:Online
CATEGORIES:Parents & Carers
ATTACH;FMTTYPE=image/png:https://tofs.org.uk/wp-content/uploads/2026/02/3-26-Parent-Cuppa-and-chat.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=Europe/London:20260328T100000
DTEND;TZID=Europe/London:20260328T130000
DTSTAMP:20260423T111530
CREATED:20260213T164108Z
LAST-MODIFIED:20260311T170030Z
UID:10000165-1774692000-1774702800@tofs.org.uk
SUMMARY:Local Meet-up: Birmingham
DESCRIPTION:TOFS 2026 Seminar Important Update:We’ve been made aware that there is a part closure on the Piccadilly Line on Saturday. Depending on which direction you’re coming from\, please walk from Holborn Station (we believe the central line is open) or get off the train at Kings Cross/St Pancras and walk from there. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									The TOFS seminar is being held at the Institute of Child Health (ICH)\, London on Saturday\, 21st March\, 2026. Why attendJoin us for our in-person OA/TOF Seminar in London to hear from some of the UK’s leading specialists on the work being done to improve the care of today’s OA/TOF children and to address the long-term issues affecting adults born with the condition. This is a great opportunity to meet\, make connections and share experiences with other families and adults born with OA/TOF and associated conditions. Who should attend?This seminar is aimed at adults born with OA/TOF\, parents and carers of children born with OA/TOF and medical professionals. Note: Registration on the day opens at 9.30am with presentations beginning at 10.30am. 								\n				\n				\n				\n									\n					\n						\n						\n							\n									CLICK HERE FOR TICKETS\n					\n					\n				\n								\n				\n					\n		\n				\n			\n						\n				\n									Event co-sponsored by  								\n				\n				\n				\n																														\n				\n				\n				\n																\n															\n															\n				\n				\n				\n									NIHR Great Ormond Street Hospital Biomedical Research Centre 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n				\n				\n					Presentations				\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Eating\, drinking & swallowing difficulties children born with OA/TOF								\n				\n				\n				\n									Presented by Dr Alex Stewart – Speech and Language Therapist (GOSH) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Experience of parents of children born with oesophageal atresia								\n				\n				\n				\n									Presented by Dr Vuokko Wallace – Clinical Psychologist\, University of Bath 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Gastro issues and Eosinophilic Oesophagitis (EoE) in OA/TOF patients								\n				\n				\n				\n									Presented by Dr Osvaldo Borrelli – Head of Clinical Service\, Consultant Paediatric Gastroenterologist (GOSH) and Honorary Senior Lecturer (UCL) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Role of TOF Multi Disciplinary Team (MDT) pathway in improving care in oesophageal atresia								\n				\n				\n				\n									Presented by Ms Dhanya Mullassery – Consultant Neonatal and Paediatric Surgeon (GOSH) and Honorary Senior Lecturer (UCL) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n																														\n				\n					\n		\n				\n			\n						\n				\n									Respiratory updates from the INoEA (International Network of Esophageal Atresia) conference and ERS (European Respiratory Society) congress								\n				\n				\n				\n									Presented by Dr Caroline Love\, Chair of TOFS Medical Liaison & Research Subcommittee and Patient Advisory Committee member of the European Lung Foundation (ELF) 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									Click here to see the full schedule 								\n				\n				\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									Any Questions?When is the seminar?The seminar is on March 21st\, 2026. Registration on the day opens at 9.30am with presentations beginning at 10.30am. The seminar will close at 4.30pm. How much are tickets?Tickets are free to TOFS’ Members\, Associates and Health Professionals. If you wish to join TOFS\, please sign up at – tofs.org.uk/join-tofs/ Is this a TOFS party?No\, this is an information seminar. Can I watch the seminar online?This is an in-person event only and will not be live streamed. We encourage members to attend in person to get the full benefits of the event\, listening to the speakers; interacting with the Q&A and discussion sessions; meeting TOFS volunteers and staff and chatting with other members of TOFS who will be attending. Some of the presentations may be recorded and posted online\, at a later date. Can I bring my child/children?Yes\, but you might prefer not to. Children below secondary school age are not permitted into the lecture room while presentations are being made. A separate room will be available on the day for families\, and the presentations will be relayed to a screen in that room. All children must be cared for by a responsible adult at all times. The excellent Coram’s Fields Children’s play park is just over the road from the venue. Will there be lunch?Yes\, a light lunch will be provided\, and seating will be available. Will I get a chance to speak to other families / people affected by OA/TOF?Yes\, we will have both lunch and refreshment breaks to allow you chance to chat with other attendees. Is there wheelchair access?We are very grateful to Great Ormond Street Hospital for providing our venue for the day. However\, this is an older building and while the venue is accessible to all\, the lecture theatre itself is accessible via stairs only. If you have any disability that may affect your access or participation in the event\, please let us know when ordering your tickets.Is there a cancellation deadline?Yes. If you can no longer attend\, please let us know via info@tofs.org.uk no later than 7 days before the seminar. This is to ensure that we only cater for the correct number of guests. Where is the seminar taking place?UCL Great Ormond Street Institute of Child Health\, WC1N 1EH If you have any further questions\, please contact us. 								\n				\n					\n		\n				\n			\n						\n				\n									\n					\n				\n											\n									\n\n			\n					\n								\n											\n									\n\n			\n					\n								\n											\n									\n\n			\n					\n								\n									\n															\n													\n						\n													\n																\n												\n				\n								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n						\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					How to get there				\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Where is the seminar?				\n				\n				\n				\n									The seminar is at the Institute of Child Health (ICH)\, which is a part of University College London – but situated on the GOSH site. The entrance to ICH is at 30 Guilford Street\, just north of Great Ormond Street itself. Postcode is WC1N 1 EH. 								\n				\n					\n		\n				\n			\n						\n				\n																\n															\n															\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n							\n			\n		\n						\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n									TOFS 2026 Seminar Important Update:We’ve been made aware that there is a part closure on the Piccadilly Line on Saturday. Depending on which direction you’re coming from\, please walk from Holborn Station (we believe the central line is open) or get off the train at Kings Cross/St Pancras and walk from there. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Public transport				\n				\n				\n				\n									The nearest tube station to ICH / GOSH is Russell Square on the Piccadilly Line. The next closest is Holborn\, on the Central and Piccadilly lines. Kings Cross and Euston stations are both only 0.8 miles away. Farringdon station (Elizabeth line and Metropolitan / Circle plus some overground commuter trains from Brighton\, Cambridge\, Huntingdon) is 0.9 miles. 								\n				\n				\n				\n					Travelling by car				\n				\n				\n				\n									Please note\, the venue is within both the London congestion charge zone and the  ULEZ (Ultra Low Emission) zone. There is some on-street metered parking around GOSH\, including in Guilford Street itself.  Much of this becomes free after 13:30 on a Saturday.  Moreover a significant amount of residents-only parking in this area becomes derestricted (i.e. free) on a Saturday afternoon. There are large underground public car parks close to GOSH at: Brunswick square (NCP) – postcode WC1N 1AF; the Imperial Hotel in Russell Square and underneath the Holiday Inn -Bloomsbury\, postcode WC1N 1HT. 								\n				\n					\n		\n				\n			\n						\n				\n					Outer London Tube stations with parking				\n				\n				\n				\n									Several tube stations near the end of the network in the North and West segments of outer London are close to the M25 and to some of the motorways into London. Unfortunately\, most of the stations listed below are within the ULEZ zone but  outside of the London congestion charge zone. Hillingdon (Metropolitan and Piccadilly lines). Has a car park which TfL says has 283 spaces. Postcode is UB10 9NR. This station is next to a junction on the A40 Western Avenue road\, only 5 miles from the M25 /M40 junction. Moreover\, the next station along the line (Ickenham) also has a large car park effectively providing an overflow car park. Stanmore (Jubilee line). Has a car park which TfL says has 450 spaces. Postcode is HA7 4PD. From the A41 Edgware way\, this is a direct drive along London Road. The A41 is accessed directly from M1 junction 4\, which is only 2 miles from the station. This is also close to the main A1 road. Cockfosters (Piccadilly line) Has a car park which TfL says has 232 spaces. Postcode is EN4 0DZ. It is a direct 3 mile drive down the A111 from the Potter’s Bar Junction (24) of the M25. Epping (Central line) Has a car park which Sabaparking says has 532 spaces. This station is outside the London ULEZ near to the junction of the M11 and M25. It is however not so convenient from the viewpoint of motorway junctions. Postcode is CM16 4HW.  Debden (Central line) Has a car park which Sabaparking says has 206 spaces. It is however only half a mile along the A 1168 from M11 junction 5 and also outside London ULEZ. Postcode is IG10 3TG. Upminster (District line) The car park here appears to be run by NCP\, which says there are 342 spaces. Postcode is RM14 2TD. It is only 3 miles from M25 junction 29\, via a route involving the A127 toward London. However it is inside the ULEZ. This might be a good option for those coming from East Anglia. 								\n				\n					\n		\n					\n		\n				\n						\n					\n			\n						\n				\n					Nearby places to eat				\n				\n				\n				\n									Brunswick centre (https://maps.app.goo.gl/UwBNKmhUe9ciib1G9)  and opposite Russell Square station have a wide variety of places to eat\, including: Itsu\, Nandos\, LEON\, Pret\, Franco MancaLamb’s conduit street has a number of higher end restaurants.Redemptions roasters (Lamb’s conduit street) are great for coffee.
URL:https://tofs.org.uk/event/local-meet-up-birmingham-3/
LOCATION:Ronald McDonald House Birmingham\, St Mary’s Row\, Birmingham\, B4 6NY\, United Kingdom
CATEGORIES:Parents & Carers
ATTACH;FMTTYPE=image/jpeg:https://tofs.org.uk/wp-content/uploads/2024/04/local-meet-up.jpg
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