TOFS' 2019 AGM and Children's Party on Saturday 23 March

Wed, 6th March 2019, 10:40 AM

Bookings are now closed. Thank you to everybody who has booked and we look forward to seeing you there! INVITATION TO OUR 2019 AGM AND CHILDREN'S PARTY We are delighted to invite all our Members and Associates to our...

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End of Year Results of Specialist Healthcare Survey for Children

Wed, 6th March 2019, 10:20 AM

Results of 'Specialist Healthcare Survey for Children' Thank you kindly to everyone who took the time to respond to our request back in April to complete a WellChild and University of Oxford survey about providing 'specialist healthcare for children'....

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Prestigious invitation to GOSH Biomedical Research Centre Showcase for TOFS Trustee Graham Slater

Mon, 4th March 2019, 10:21 AM

We are delighted that our Trustee Graham Slater has received an invitation on behalf of TOFS to attend the NIHR Great Ormond Street Hospital Biomedical Research Centre Showcase event. The NIHR is the National Institute for Health Research. Health Representatives...

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Research project investigating feeding and swallowing with TOF/OA

Sat, 2nd March 2019, 10:10 AM

Research project investigating feeding and swallowing in TOF/OA Alex Stewart, a Speech and Language Therapist at Great Ormond Street Hospital, has secured funding from the <a...

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Bigthinkers raise BIG amount for TOFS!

Fri, 1st March 2019, 03:30 PM

Bigthinkers marketing studio in Notts threw their doors open last week to fundraise for TOFS. Delicious coffee and cake was on offer - in aid of TOFS - because one of their employees is the dad to a TOF. Graphic Designer Nathan Ingle was there along with his...

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Introducing our amazing Great North Run runners

Fri, 1st March 2019, 11:11 AM

CONGRATULATIONS TO OUR GREAT NORTH RUNNERS More information about our runners will be posted soon, but we are delighted to announce that the following people will be running the Great North Run in September for TOFS: <span...

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TOFS 2019 AGM and Party

It's in Warwick on Saturday 23 March. Tickets are going fast - get yours today!

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To all at TOFS, just a really big THANK YOU for being there. All I wanted was just for someone to listen and understand and you were there for me.

Jo Wright, parent of a child born with TOF/OA

We wanted to thank you again for all the support you have given us over the phone and through your newsletter, website and online forum. We have found TOFS an invaluable resource and spread the word wherever we can about the great work you do.

Joanne and John Winspear, parents

The TOFS support group does exactly what it says on the tin! It supports. And that’s a very reassuring feeling - talking to people who have been there. You guys do a wonderful job.

Rachel Simpson, parent

During my working life as a paediatric surgeon I learned as much, if not more about TOF from parents and from TOFS meetings as I did from learned journals.

Leela Kapila, past Vice-President of the Royal College of Surgeons

When I read Chew, I’m encouraged by reading about the positive side of TOF/OA and the achievements of all the children and TOF adults. TOFS, the website, the Forum and Chew have all been a marvellous source of information and encouragement for us.

Rachel and Mark Hayes, parents

Our bumpy ride has been so much easier with TOFS; just listening to other people’s experiences and knowing someone is there.

Charlie and Lesley Cochrane, parents

Useful Links

Hospital Travel Cost

NHS scheme for help with travel costs for those who qualify

NHS 111

For when you need urgent medical advice and unable to contact your doctor

Adult TOF Facebook Group (endorsed by TOFS)

A (closed) Adult TOF Facebook Group, run by Adult TOF, Faye Baker, and endorsed by TOFS

Contact - for families with disabled children

UK charity which signposts parents to relevant support groups. CaF also provides resources on a range of issues (including benefits and rights) and offers the support of a Welfare Rights Officer. Directory for specific conditions, rare disorders and UK Family Support Groups.