Thank you for a hugely successful TOF Awareness Week 2018

Thu, 19th July 2018, 12:10 PM

Many thanks for all your help in making TOFS Awareness Week a huge success. We are so grateful to have been able to harness the collective force of our members. Between you, you have requested an incredible 600+ Early Years Postcards and delivered over 200 posters to hospitals, d...

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Great North Run 2018

Tue, 17th July 2018, 12:40 PM

We are delighted to introduce to you Danielle, one of our runners in this year's iconic Great North Run in Newcastle upon Tyne this September. We will introduce our other runners soon - watch this space!DANIELLE CRONE Click here to read more...

TOF/OA Awareness Week, 9 -15 July, 2018

Thu, 5th July 2018, 10:47 AM

TOF/OA Awareness Week, 9 -15 July, 2018  We’re delighted with the enthusiasm with which our community have embraced this year's Awareness Week which started on Monday this week! Thank you very much...

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TOFS' Trustee Graham meets Key Influencers at ERNICA Meeting

Tue, 26th June 2018, 11:23 AM

TOFS' Trustee and Adult TOF Graham Slater attended an ERNICA Patient Groups' Meeting in Paris last week, continuing to raise the profile of TOF and OA on the European medical stage. Click here to read more...

Three Adult TOFs speak at TOFS' 2018 Adult TOF Seminar

Thu, 21st June 2018, 12:11 PM

We were delighted to invite three TOF Adults who are doctors to speak at our Seminar held at Friends House, London on June 16th 2018. With their medical training and first hand knowledge of TOF/OA they offered a well-informed and fresh insight into various TOF/OA topics. Dr Caroline Lo...

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Record number of Adult TOFS attend 2018 Adult TOF Seminar

Thu, 21st June 2018, 11:58 AM

Record number of Adult TOFS attend 2018 Adult TOF Seminar A record number of adults born with Tracheo-Oesophageal Fistula and/or Oesophageal Atresia (‘Adult TOFs’) attended our h...

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For the new TOF parents

What is TOF/OA?

How will it affect my baby?

Getting Support

Who we help and how

Join Our TOF Family

Benefits of TOFS membership

Joining the TOFS charity opens the door to additional support and make you part of the family of all those who are involved with TOF. How much does it cost? Nothing - membership is free, but we do ask those who can afford to do so to make an annual or monthly donation to held towards the cost of running the charity. What are the benefits? You will receive regular emails to keep you informed on TOF events, receive invitations to, TOF parties and meets in your locality, receive invitations to attend the annual TOF conference and learn from the leading professionals, receive a regular copy of our CHEW NEWSLETTER, have access to the members area of our website where you can post your stories and pictures and get help to contact other families near you. When you join TOFS the medical information you provide (optional) is helping us to build a bigger picture of of the TOF condition which will eventually benefit others in the UK and beyond. All our information is held securely and treated as strictly confidential. Any information used for medical research will be completely anonymous.

In the Papers

TOFS Press releases & Press Cuttings

Raising awareness - TOFS Press Cuttings Every mention we get in the media helps to raise awareness

Get Involved

Fundraising and raising awareness

Learn How You Can Help

Resources Library

Join Our Facebook Group

Share your experience with the 2000+ members of our Facebook Group.

Watch The TOFS Video

For a quick overview of the TOF condition and to find out how the charity can help you


It's tuf to be a tof but tofs are tuf

The 2018 Conference

Come to Coventry and hear some of our leading consultants and specialists speak about TOF. Meet other TOF families and TOF adults

© Tracheo-Oesophageal Fistula Support
TOFS is a Registered Charity in England and Wales (327735) and a Private Company Limited By Guarantee without Share Capital, registered in England and Wales (2202260).
Registered address: TOFS, St. George’s Centre, 91 Victoria Road, Netherfield, Nottingham NG4 2NN.
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