Successful collaboration between TOFS and EAT benefits TOF/OA patients worldwide
Wed, 5th December 2018, 12:58 PM
TOFS is a founder member of EAT, the European Federation of Esophageal Atresia and Tracheo-Esophageal Fistula Support Groups which welcomes associate member groups from all parts of the world. Secretary of TOFS, Graham Slater, an Adult TOF himself, is Chair of EAT. ...
ESPGHAN recommends regular monitoring to check for reflux in patients with TOF/OA
Tue, 27th November 2018, 09:00 AM
In the Spring 2017 edition of our newsletter, Chew , we published a summary of the guidelines that had been issued by ESPGHAN in late 2016,...
Does your 5-12 year old child have Oesophageal Atresia? Please complete our Survey
Mon, 19th November 2018, 10:05 AM
The TaPSOn study is now recruiting parents of 5-12 year-old children with OA/TOF. Dr Wallace at the University of Bath is particularly welcoming responses from fathers! There have been nearly 40 responses already. Thank you very much to everyone who has...
Charity Christmas Cards now for sale
Fri, 16th November 2018, 09:00 AM
Charity Christmas Cards in aid of TOFS now for sale £8 for 20 cards and envelopes with FREE 2nd class postage in UK You can now purchase these fabulous Christmas Cards in aid of TOFS, and with delightful photos of some of our TOF children, they will go a...
Meet our London Marathon 2019 Runners
Wed, 14th November 2018, 12:36 PM
LEE BARNARD 'I was born with TOF in 1979 at St Mary's Hospital in Greater Manchester and was operated on the day after. Since then, I've had a few health issues. I had half of my left lung removed in 1983 after choking and flooding my lung. In April...
Patients and healthcare professionals wanted for CONCORD Focus Groups
Wed, 7th November 2018, 12:12 PM
CONCORD (CoOrdiNated Care Of Rare Disease) is a research study which aims to investigate how care of people with rare diseases is coordinated in the UK and how...
For the new TOF parents
What is TOF/OA?
How will it affect my baby?
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Benefits of TOFS membership
Joining the TOFS charity opens the door to additional support and make you part of the family of all those who are involved with TOF. How much does it cost? Nothing - membership is free, but we do ask those who can afford to do so to make an annual or monthly donation to held towards the cost of running the charity. What are the benefits? You will receive regular emails to keep you informed on TOF events, receive invitations to, TOF parties and meets in your locality, receive invitations to attend the annual TOF conference and learn from the leading professionals, receive a regular copy of our CHEW NEWSLETTER, have access to the members area of our website where you can post your stories and pictures and get help to contact other families near you. When you join TOFS the medical information you provide (optional) is helping us to build a bigger picture of of the TOF condition which will eventually benefit others in the UK and beyond. All our information is held securely and treated as strictly confidential. Any information used for medical research will be completely anonymous.
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