Now available to download: School Individual Healthcare Plan and Nursery Statement templates

Sat, 13th October 2018, 09:00 AM

Do you need help compiling a Healthcare Plan for your TOF/OA child? TOFS are very grateful to Paediatric Dietitian and TOF parent Julia Faulkner for compiling a Sch...

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Professor De Coppi accepts our invitation to become a TOFS Patron

Mon, 8th October 2018, 01:51 PM

We are delighted to announce that Professor De Coppi has accepted our invitation to become a TOFS Patron. Professor De Coppi is a Consultant Paediatric Surgeon at Great Ormond Street, and Head of Stem Cells and Regenerative Medicine at UCL Institute of Child ...

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Apply NOW to run in the 2019 Virgin Money London Marathon for TOFS!

Wed, 3rd October 2018, 11:22 AM

We are delighted to announce we are now accepting applications for London Marathon 2019. We give priority to TOFS members and their friends and relatives.   Click here to read more...

LAST FEW TICKETS for our TOFS Conference 2018: bookings CLOSE 3 Oct

Mon, 1st October 2018, 11:15 AM

Seven Experts from the TOF community will discuss important topics at our Conference including: post-repair ops, genetics, respiratory issues,

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Questions about benefits? Ask Dr Ahmed at our TOFS Conference

Thu, 27th September 2018, 09:42 AM

Only a week left to book for our TOFS Conference!! We are delighted to be joined at our forthcoming conference by Dr Kamran Ahmed who has been a General Practitioner in the West Midlands since 2010, and is a parent of a TOF child.  He has a longstanding interest in healthcare management, and...

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Help with compiling a Healthcare Plan available at TOFS Conference 2018

Tue, 18th September 2018, 12:08 PM

Do you need help compiling a Healthcare Plan for your TOF/OA child? At the TOFS Conference on Saturday 13th O...

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For the new TOF parents

What is TOF/OA?

How will it affect my baby?

Getting Support

Who we help and how

Join Our TOF Family

Benefits of TOFS membership

Joining the TOFS charity opens the door to additional support and make you part of the family of all those who are involved with TOF. How much does it cost? Nothing - membership is free, but we do ask those who can afford to do so to make an annual or monthly donation to held towards the cost of running the charity. What are the benefits? You will receive regular emails to keep you informed on TOF events, receive invitations to, TOF parties and meets in your locality, receive invitations to attend the annual TOF conference and learn from the leading professionals, receive a regular copy of our CHEW NEWSLETTER, have access to the members area of our website where you can post your stories and pictures and get help to contact other families near you. When you join TOFS the medical information you provide (optional) is helping us to build a bigger picture of of the TOF condition which will eventually benefit others in the UK and beyond. All our information is held securely and treated as strictly confidential. Any information used for medical research will be completely anonymous.

Get Involved

Fundraising and raising awareness

Learn How You Can Help



Resources Library

Join Our Facebook Group

Share your experience with the 2000+ members of our Facebook Group.

Watch The TOFS Video

For a quick overview of the TOF condition and to find out how the charity can help you


It's tuf to be a tof but tofs are tuf

© Tracheo-Oesophageal Fistula Support
TOFS is a Registered Charity in England and Wales (327735) and a Private Company Limited By Guarantee without Share Capital, registered in England and Wales (2202260).
Registered address: TOFS, St. George’s Centre, 91 Victoria Road, Netherfield, Nottingham NG4 2NN.
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