TOFS' 2019 AGM on Saturday 23 March
Thu, 10th January 2019, 01:30 PM
We are delighted to invite all our Members and Associates to our forthcoming Annual General Meeting. It will be held in central England in the Midlands, at Chase Meadow...
TOFS 2019 Conference venue announced!
Thu, 20th December 2018, 11:57 AM
Save the date for the 2019 TOFS Conference It will be held on Saturday, 5 October, 2019. The venue is The Centre, Birchwood Park near Warrington in the north west of England. It's within a mile of the M6-M62 junction. This venue is beautiful, and...
Successful collaboration between TOFS and EAT benefits TOF/OA patients worldwide
Wed, 5th December 2018, 12:58 PM
TOFS is a founder member of EAT, the European Federation of Esophageal Atresia and Tracheo-Esophageal Fistula Support Groups which welcomes associate member groups from all parts of the world. Secretary of TOFS, Graham Slater, an Adult TOF himself, is Chair of EAT. ...
ESPGHAN recommends regular monitoring to check for reflux in patients with TOF/OA
Tue, 27th November 2018, 09:00 AM
In the Spring 2017 edition of our newsletter, Chew , we published a summary of the guidelines that had been issued by ESPGHAN in late 2016,...
Does your 5-12 year old child have Oesophageal Atresia? Please complete our Survey
Mon, 19th November 2018, 10:05 AM
The TaPSOn study is now recruiting parents of 5-12 year-old children with OA/TOF. Dr Wallace at the University of Bath is particularly welcoming responses from fathers! There have been nearly 40 responses already. Thank you very much to everyone who has...
Meet our London Marathon 2019 Runners
Wed, 14th November 2018, 12:36 PM
LEE BARNARD 'I was born with TOF in 1979 at St Mary's Hospital in Greater Manchester and was operated on the day after. Since then, I've had a few health issues. I had half of my left lung removed in 1983 after choking and flooding my lung. In April...
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Joining the TOFS charity opens the door to additional support and make you part of the family of all those who are involved with TOF. How much does it cost? Nothing - membership is free, but we do ask those who can afford to do so to make an annual or monthly donation to held towards the cost of running the charity. What are the benefits? You will receive regular emails to keep you informed on TOF events, receive invitations to, TOF parties and meets in your locality, receive invitations to attend the annual TOF conference and learn from the leading professionals, receive a regular copy of our CHEW NEWSLETTER, have access to the members area of our website where you can post your stories and pictures and get help to contact other families near you. When you join TOFS the medical information you provide (optional) is helping us to build a bigger picture of of the TOF condition which will eventually benefit others in the UK and beyond. All our information is held securely and treated as strictly confidential. Any information used for medical research will be completely anonymous.
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