Wow, thank you for running for TOFS!
Tue, 1st December 2020, 07:59 AM
2020 may not have been a ‘normal’ year but that hasn’t stopped our fantastic TOFS members from achieving their fundraising goals! This year the London Marathon and Great North Run have been virtual events, allowing our runners to represent TOFS by...
Coronavirus
Mon, 30th November 2020, 10:40 AM
We understand that many people born with OA/TOF (and families of those born with the conditions) are concerned about the fast-evolving situation caused by the coronavirus. (Please note:This page is updated regularly as new information becomes available. Please...
Help to improve understanding of feeding issues experienced by those born with OA/TOF
Tue, 10th November 2020, 01:41 PM
What is SaFE and who is involved? SaFE is a PhD project being carried out by Alexandra Stewart, a speech and language therapist, alongside a team of researchers at Great Ormond Street Hospital and University College London. The aim is to better...
Useful resources for TOFS members
Mon, 2nd November 2020, 03:19 PM
Much has changed over the last eight months and the need to signpost hidden disabilities is becoming increasingly important, especially when it comes to the 'TOF cough'. We've teamed up with the Hidden Disabilities Sunflower Lanyard scheme to bring you...
The impact of Brexit on people travelling to Europe with pre-existing health conditions
Mon, 2nd November 2020, 02:00 PM
Despite COVID-19, it is quite possible that some of you will be thinking about holidays next year. It’s also possible that some you travel to Europe for work or family reasons. As you are doubtless aware, on December 31st the ‘transition period’...
Join us for the first ever (virtual) Teddy Toddle
Mon, 19th October 2020, 11:05 AM
Teddies aren't mandatory, and neither is toddling - just complete 5k over 5 days to get a fantastic challenger medal (for the first fifty challengers who sign up on our event page )! No matter where you are in the world, you can run, walk, ride or even skip your...
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