Take part in this survey - highlight failings in how care is coordinated for TOF/OA patients

Thu, 24th October 2019, 10:40 AM

Here's another survey we'd love you to complete to highlight failings in how care is coordinated for TOF/OA patients, especially at time of transition. <span style="font-size: 12.0pt; font-family:...

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Opportunity to take part in a Department of Health Survey

Fri, 18th October 2019, 10:10 AM

The Department of Health has launched a Survey which aims to identify the major challenges faced by rare disease patients. Please do follow the link to complete the survey  bit.ly/2oOOiPe It's your opportunity to tell the...

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Update on research into training and support for children with feeding tubes

Thu, 17th October 2019, 10:30 AM

University of Oxford PhD student Bethan Page, recently submitted a poster updating us on her research exploring how to better prepare and support parents to provide complex medical care for children, both practically and emotionally. This care may for example include tube...

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Don't forget your flu vaccine, recommended for all TOFs - regardless of age!

Fri, 11th October 2019, 11:10 AM

That's just one of the key messages from the healthcare professionals at the TOFS 2019 Conference which took place on Saturday 5 October.   Public Health England routinely measure the vaccine effectiveness (VE) of the flu vaccination and provisional results...

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Apply NOW to run for TOFS in the 2020 London Marathon!

Mon, 7th October 2019, 01:33 PM

The application process to run the 2020 London Marathon for TOFS is now open and we'd love to hear from you!  Just complete the application form and...

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TOFS appoints CEO

Mon, 5th August 2019, 02:52 PM

Following an extensive strategy review in 2018, TOFS have appointed office manager Diane Stephens to the role of Chief Executive.  Diane will work alongside the trustees to drive TOFS forward into a period of development and growth.   Duncan...

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