Questions about coronavirus and OA/TOF? Click here to read our regularly updated advice.

Volunteers' Week

Fri, 5th June 2020, 10:50 AM

It’s volunteers’ week on 01 – 07 June so we’ll be taking the opportunity to shine the spotlight on a few of our wonderful volunteers! Our volunteers play a huge part in helping TOFS to deliver support and information to our members, we...

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Please help us with our bid for funding

Thu, 4th June 2020, 09:52 AM

It will come as no surprise that TOFS' income has roughly halved during lockdown. No doubt we will be just one of many charities placing a bid for some of the emergency funding that the government has made available....

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Coronavirus

Mon, 1st June 2020, 10:00 AM

We understand that many people born with OA/TOF (and families of those born with the conditions) are concerned about the fast-evolving situation caused by the coronavirus. (Please note:This page is updated regularly as new information becomes available. Please...

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OA/TOF Quality of Life Questionnaire

Tue, 19th May 2020, 02:27 PM

Thank you for a fabulous response! UCL GOSH received a fantastic response, following an email sent to our members, and now have 35 volunteers for the study. The initial recruitment is now closed! We will update you when they are ready to run the second, much...

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Talk with TLCs

Mon, 18th May 2020, 03:57 PM

We may not be able to meet in person right now, but we're pleased to announce our support for the OA community with the first of a series of 'Talk with TLC' events! Have a look at a short video about Talk with TLCs <a...

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TOFS Annual General Meeting

Thu, 14th May 2020, 09:51 AM

We would be delighted to have our Members and Associates join us for the 2020 Annual General Meeting of T.O.F.S. The AGM will be held at 1pm on Saturday 20 June...

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Coronavirus (COVID-19)

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Member Feedback

To all at TOFS, just a really big THANK YOU for being there. All I wanted was just for someone to listen and understand and you were there for me.

Jo Wright, parent of a child born with OA/TOF

We wanted to thank you again for all the support you have given us over the phone and through your newsletter, website and online forum. We have found TOFS an invaluable resource and spread the word wherever we can about the great work you do.

Joanne and John Winspear, parents

The TOFS support group does exactly what it says on the tin! It supports. And that’s a very reassuring feeling - talking to people who have been there. You guys do a wonderful job.

Rachel Simpson, parent

During my working life as a paediatric surgeon I learned as much, if not more about TOF from parents and from TOFS meetings as I did from learned journals.

Leela Kapila, past Vice-President of the Royal College of Surgeons

When I read Chew, I’m encouraged by reading about the positive side of OA/TOF and the achievements of all the children and TOF adults. TOFS, the website, the Forum and Chew have all been a marvellous source of information and encouragement for us.

Rachel and Mark Hayes, parents

Our bumpy ride has been so much easier with TOFS; just listening to other people’s experiences and knowing someone is there.

Charlie and Lesley Cochrane, parents

Useful Links

Hospital Travel Cost

NHS scheme for help with travel costs for those who qualify

NHS 111

For when you need urgent medical advice and unable to contact your doctor

Adult TOF Facebook Group (endorsed by TOFS)

A (closed) Adult TOF Facebook Group, run by Adult TOF, Faye Baker, and endorsed by TOFS

Contact - for families with disabled children

UK charity which signposts parents to relevant support groups. CaF also provides resources on a range of issues (including benefits and rights) and offers the support of a Welfare Rights Officer. Directory for specific conditions, rare disorders and UK Family Support Groups.