Meet our London Marathon 2019 Runners
Wed, 14th November 2018, 12:36 PM
LEE BARNARD Coming soon. See Lee's MyDonate page here: https://mydonate.bt.com/fundraisers/leebarnard1 ANGELA...
Patients and healthcare professionals wanted for CONCORD Focus Groups
Wed, 7th November 2018, 12:12 PM
CONCORD (CoOrdiNated Care Of Rare Disease) is a research study which aims to investigate how care of people with rare diseases is coordinated in the UK and how...
Three useful cards - available NOW!
Thu, 1st November 2018, 10:00 AM
These useful little cards are just the thing for certain situations that many TOF/OA families and TOF Adults understand well! Request your copies from the TOFS office now, by emailing info@tofs.org.uk. Please include which cards...
TOFS - collaborating with the PROFS - in Berlin!
Wed, 31st October 2018, 09:00 AM
The ERNICA Surgery and Follow-up Consensus Guidelines workshop - in consultation with TOFS and other European patient support groups - was held in Berlin last week. The workshop was attended by a number of eminent paediatric surgeons, a paediatric...
TOFS engage with Medics at Conference 2018
Mon, 29th October 2018, 09:58 AM
Excellent meeting with Medics at TOFS Conference 2018, Coventry The recent TOFS Conference at Coventry was well attended by various healthcare professionals. Some of them took part in a lunchtime meeting of the TOFS Medical Advisory Group...
Photo request by the Oxford Patient Safety Collaborative
Wed, 24th October 2018, 01:02 PM
Regular readers of Chew and those of you who attended our TOFS Conference 2018 in Coventry will know all about our mission to actively engage with medics. Some of you may have seen a poster display about current research going on at Oxford. <span...
For the new TOF parents
What is TOF/OA?
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Who we help and how
Join Our TOF Family
Benefits of TOFS membership
Joining the TOFS charity opens the door to additional support and make you part of the family of all those who are involved with TOF. How much does it cost? Nothing - membership is free, but we do ask those who can afford to do so to make an annual or monthly donation to held towards the cost of running the charity. What are the benefits? You will receive regular emails to keep you informed on TOF events, receive invitations to, TOF parties and meets in your locality, receive invitations to attend the annual TOF conference and learn from the leading professionals, receive a regular copy of our CHEW NEWSLETTER, have access to the members area of our website where you can post your stories and pictures and get help to contact other families near you. When you join TOFS the medical information you provide (optional) is helping us to build a bigger picture of of the TOF condition which will eventually benefit others in the UK and beyond. All our information is held securely and treated as strictly confidential. Any information used for medical research will be completely anonymous.
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It's tuf to be a tof but tofs are tuf