Questions about coronavirus and OA/TOF? Click here to read our regularly updated advice.

Join us for the first ever (virtual) Teddy Toddle

Mon, 19th October 2020, 11:05 AM

Teddies aren't mandatory, and neither is toddling - just complete 5k over 5 days to get a fantastic challenger medal (for the first fifty challengers who sign up on our event page )! No matter where you are in the world, you can run, walk, ride or even skip your...

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TOFS is recruiting! Volunteer and events co-ordinator

Tue, 13th October 2020, 08:53 AM

Applications for this position are now closed! Thank you to all who applied, we will be in touch soon. Who we are: Tracheo-Oesophageal Fistula Support (TOFS) is the UK’s only registered charity for people born with conditions that affect the...

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Coronavirus

Mon, 28th September 2020, 11:50 AM

We understand that many people born with OA/TOF (and families of those born with the conditions) are concerned about the fast-evolving situation caused by the coronavirus. (Please note:This page is updated regularly as new information becomes available. Please...

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Opportunity to take part in research into transition from paediatric to adult care. Please take part!

Wed, 23rd September 2020, 09:58 AM

We’re delighted to announce this research study into transitioning from paediatric to adult care in the UK. Trainee Clinical Psychologist, Andy Haig-Ferguson, from the University of Bath is interested in hearing about your...

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Introducing our 2020 Virtual London Marathon runners

Thu, 10th September 2020, 12:49 PM

A huge thank you from TOFS to those who took part in the Virtual London Marathon, we hope you feel very proud of yourselves. We look forward to announcing how much has been raised in due course. We are delighted to announce that the following people will be running the...

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Introducing our amazing 2020 Virtual Great North Run runners

Mon, 7th September 2020, 11:54 AM

A massive thank you to all who took part in the virtual Great North Run on Sunday 13 September. With the help of the official GNR our runners were able to recreate the experience and excitement of the real thing, from an up-beat warm up to chants from the crowd! The...

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To all at TOFS, just a really big THANK YOU for being there. All I wanted was just for someone to listen and understand and you were there for me.

Jo Wright, parent of a child born with OA/TOF

We wanted to thank you again for all the support you have given us over the phone and through your newsletter, website and online forum. We have found TOFS an invaluable resource and spread the word wherever we can about the great work you do.

Joanne and John Winspear, parents

The TOFS support group does exactly what it says on the tin! It supports. And that’s a very reassuring feeling - talking to people who have been there. You guys do a wonderful job.

Rachel Simpson, parent

During my working life as a paediatric surgeon I learned as much, if not more about TOF from parents and from TOFS meetings as I did from learned journals.

Leela Kapila, past Vice-President of the Royal College of Surgeons

When I read Chew, I’m encouraged by reading about the positive side of OA/TOF and the achievements of all the children and TOF adults. TOFS, the website, the Forum and Chew have all been a marvellous source of information and encouragement for us.

Rachel and Mark Hayes, parents

Our bumpy ride has been so much easier with TOFS; just listening to other people’s experiences and knowing someone is there.

Charlie and Lesley Cochrane, parents

Useful Links

Hospital Travel Cost

NHS scheme for help with travel costs for those who qualify

NHS 111

For when you need urgent medical advice and unable to contact your doctor

Adult TOF Facebook Group (endorsed by TOFS)

A (closed) Adult TOF Facebook Group, run by Adult TOF, Faye Baker, and endorsed by TOFS

Contact - for families with disabled children

UK charity which signposts parents to relevant support groups. CaF also provides resources on a range of issues (including benefits and rights) and offers the support of a Welfare Rights Officer. Directory for specific conditions, rare disorders and UK Family Support Groups.