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Join TOFS

Join TOFS for free and get access to the world’s largest support network for OA/TOF (oesophageal atresia with or without tracheo-oesophageal fistula). 

Who can join?

Membership of TOFS is open to:

  • parents, carers and relatives of children born with OA/TOF/VACTERL or any oesophageal condition;
  • adults born with these conditions; and
  • interested medical professionals.

Membership types

We offer 2 types of membership levels (Member and Associate).  

Please choose which membership you would like to have when signing up. Please note, you may request a change in the type of membership at any time. 

Regardless which type of membership you choose, you will be entitled to: 

  • Emotional support, friendship and practical advice from people who are in a similar situation
  • Direct support from TOFS’ Local Contacts (TLCs)
  • 3 copies of Chew magazine a year by post (UK only) or email – PLUS access to the Chew magazine archive!
  • Access to member only events and resources
  • Invitation to our annual conference
  • Advice booklets and publications
  • An opportunity to influence and inform research into OA/TOF

If you require further information on the different types of membership, please get in touch.

When you join TOFS, the medical information you provide helps build a bigger picture of the impact of OA/TOF and associated morbidities. TOFS lobbies for long term improvements in care and for periodic surveillance of all patients into adulthood, irrespective of whether they routinely suffer from morbidities.

In time, with the collection of this data TOFS hopes to build an evidence-based profile of the impact of OA.TOF. All information is held securely and treated as strictly confidential.

ASSOCIATE (non-voting membership)

An Associate is:

  • entitled to all the benefits and services offered by TOFS (as shown above)

An Associate: 

  • does not have voting rights
  • cannot become a Trustee
  • has no financial liabilities in respect of their membership

MEMBER (voting membership)

A Member of TOFS is:

  • entitled to all the benefits and services offered by TOFS (as shown above)
  • entitled to stand for election as a Trustee (subject to statutory conditions);
  • entitled to vote at all General Meetings of the Association; and
  • is liable for a maximum of £1 in the event of TOFS being declared bankrupt