News
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Book now for TOFS' second online support session of 2021!
Published: Tue, 4th May 2021, 09:20 AM TOFS members are invited to join our online support session, ‘Supporting Siblings, Dads and Partners too’, taking place next week on Tuesday 11 May at 8pm. Do you sometimes worry about the impact the condition has on ... [Read more] -
Research published which explores the psychological well-being of adults born with OA
Published: Mon, 26th April 2021, 12:45 PM We are pleased to let you know that a research paper, titled 'A thematic analysis exploring the psychological well-being of adults born with *esophageal atresia' has been accepted for publication to the Journal of ... [Read more] -
Order The TOF Book from the TOFS office now!
Published: Mon, 26th April 2021, 10:29 AM You can order the highly reviewed 'The TOF Book' direct from the TOFS office by emailing info@tofs.org.uk. 'THE TOF BOOK' was published in January 2017. The book is primarily aimed at parents and carers, but also ... [Read more] -
TOFS receives its largest donation ever!
Published: Thu, 22nd April 2021, 08:20 AM I am happy to be able to make a donation of £71,000 to TOFS following the death of my mother June Martin, who died at the age of 94 last July, at home. As an only child (and an Adult&nbs ... [Read more] -
Exciting Opportunity to join TOFS as our Digital Communications Lead!
Published: Tue, 20th April 2021, 09:38 AM TOFS is recruiting for the new and exciting role of Digital Communications Lead. The successful candidate will be responsible for managing, developing and optimising digital communications with our stakeholders and will be instrum ... [Read more] -
Take part in the Captain Tom 100 and help to raise funds for TOFS!
Published: Wed, 7th April 2021, 11:02 AM Last April Captain Tom Moore set out to walk 100 laps of his garden and raised an incredible £38.9 million for the NHS Covid-19 appeal. This year, to mark what would have been his 101st birthday, the Captain Tom 100 challeng ... [Read more] -
Applications for Guts UK/BSPGHAN research development grant now open!
Published: Wed, 7th April 2021, 09:14 AM Guts UK are delighted to announce that Guts UK/BSPGHAN grants are now open. Guts UK and the British Society of Paediatric Gastroenterology, Hepatology and Nutrition (BSPGHAN) are passionate about supporting research i ... [Read more] -
APPLY NOW for your place at the 2021 London Marathon and Virtual London Marathon!
Published: Thu, 1st April 2021, 01:06 PM Our application process for the 2021 London Marathon is now open! The Marathon will take place on Saturday 3 October and this year you have the opportunity to apply to run the London Marathon route or the Virtual L ... [Read more] -
Findings so far from CARE study into genetic factors contributing to OA/TOF
Published: Mon, 29th March 2021, 10:48 AM Researchers from the CARE for Kids EA/TEF* Study being conducted by Columbia University have had their genetic sequencing results (from 45 families who enrolled in the pilot study) published in the European Journal for Human ... [Read more] -
Help needed to improve training and support for parents new to gastrostomy care
Published: Thu, 25th March 2021, 01:40 PM In 2020 TOFS helped to recruit families of children who are gastrostomy fed to work with Bethan Page (Research Fellow, Experimental Psychology, University of Oxford) in order to try and improve training and support ... [Read more]