News
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Face-to-face in Essex (via TOFS Facebook group)!
Published: Mon, 8th July 2019, 11:58 AM Six TOF families had a lovely time recently at an ‘unofficial’ get-together organised by Anna Hallett, mum to Archie, born with TOF. Anna says: “We had a lovely meet-up on Sunday 30th June at Woody&r ... [Read more] -
Introducing our amazing Great North Run runners
Published: Thu, 30th May 2019, 11:11 AM We are delighted to announce that the following people will be running the Great North Run in September for TOFS. Natasha Birkett, TOF relative; James Durrant, TOF grandparent; (story and photo to follow) Bre ... [Read more] -
Book now for the 2019 TOFS Conference!
Published: Wed, 29th May 2019, 04:43 PM Bookings are now open for the 2019 TOFS Conference. Only £22 per person (incl refreshments and lunch). Full information and booking available here NOW! When: Saturday 5th October 2019 Where: The EngineRooms a ... [Read more] -
Adult TOFs - Take part in this important survey into the psychological impact of TOF/OA in adulthood
Published: Thu, 16th May 2019, 01:53 PM Are you an Adult TOF - or the parent of an Adult TOF? Postgraduate psychology students, Lia Clarke and Cailin Rabone, from the University of Bath would like to invite you to take part in an online survey exploring the wellbeing o ... [Read more] -
Wow! All eight runners successfully complete the Marathon for Team TOFS!
Published: Mon, 29th April 2019, 09:30 AM A HUGE thank you! We are very proud to report that all eight of our runners safely completed the London Marathon yesterday. Some photos here and details of their fundraising to follow. In the meantime, a huge thank yo ... [Read more] -
Calling Adult TOFS - which subjects shall we discuss at 2019 Conference?
Published: Thu, 11th April 2019, 02:10 PM Plans are afoot for the TOFS 2019 Conference on Saturday 5 October. We hope to open for bookings soon. We'd like to make it an event that's really useful for Adult TOFs, families and carers. Can you help? In add ... [Read more] -
AGM 2019 AND CHILDREN'S PARTY, WARWICK, 23 MARCH 2019
Published: Tue, 9th April 2019, 11:34 AM Our Chairman, Duncan Jackson, welcomed everyone and thanked everyone for coming. After summarising what TOFS has been up to over the last year, our Treasurer John Pearce summarised the key points of the Annual Accounts from 2 ... [Read more] -
Research developments on the psychological impact of OA/TOF across the lifespan
Published: Tue, 26th March 2019, 08:55 AM My name is Dr Vuokko Wallace, I’m an Adult OA/TOF and a clinical psychologist working with children and families. I’m conducting research on the psychological impact of OA/TOF on families. Many thanks to those of ... [Read more] -
Would you like to contribute to a research project into the cause of TOF/OA?
Published: Mon, 25th March 2019, 10:26 AM The CARE Study (Congenital Anomalies Research Exploration) Columbia University Medical Centre in New York are looking for more participants for a new research study that will examine the genetic causes of TOF/OA. The r ... [Read more] -
End of Year Results of Specialist Healthcare Survey for Children
Published: Wed, 6th March 2019, 10:20 AM Results of 'Specialist Healthcare Survey for Children' Thank you kindly to everyone who took the time to respond to our request back in April to complete a WellChild and University of Oxford survey about providing 'specialis ... [Read more]