News
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Volunteers' Week
Published: Fri, 5th June 2020, 10:50 AM It’s volunteers’ week on 01 – 07 June so we’ll be taking the opportunity to shine the spotlight on a few of our wonderful volunteers! Our volunteers play a huge part in helping TOFS to deliver support and i ... [Read more] -
Please help us with our bid for funding
Published: Thu, 4th June 2020, 09:52 AM It will come as no surprise that TOFS' income has roughly halved during lockdown. No doubt we will be just one of many charities placing a bid for some of the emergency funding that the government has made available. Please help ... [Read more] -
Coronavirus
Published: Mon, 1st June 2020, 10:00 AM We understand that many people born with OA/TOF (and families of those born with the conditions) are concerned about the fast-evolving situation caused by the coronavirus. (Please note:This page is updated regularly as new inform ... [Read more] -
OA/TOF Quality of Life Questionnaire
Published: Tue, 19th May 2020, 02:27 PM Thank you for a fabulous response! UCL GOSH received a fantastic response, following an email sent to our members, and now have 35 volunteers for the study. The initial recruitment is now closed! We will update you whe ... [Read more] -
Talk with TLCs
Published: Mon, 18th May 2020, 03:57 PM We may not be able to meet in person right now, but we're pleased to announce our support for the OA community with the first of a series of 'Talk with TLC' events! Have a look at a short video about Talk with TLCs here. Some of ... [Read more] -
TOFS Annual General Meeting
Published: Thu, 14th May 2020, 09:51 AM We would be delighted to have our Members and Associates join us for the 2020 Annual General Meeting of T.O.F.S. The AGM will be held at 1pm on Saturday 20 June 2020. Due to the current health crisis, the meeting will be held u ... [Read more] -
TOF and Trauma by Vicki Martin
Published: Tue, 5th May 2020, 01:17 PM In the Summer/Autumn 2019 edition of Chew, we published the first part of a report written by Vicki Martin sharing her experiences and research in to the psychological effects of OA/TOF on patients and their families. Here w ... [Read more] -
Introducing our amazing 2020 Great North Run runners
Published: Mon, 4th May 2020, 11:54 AM We are delighted to announce that the following people will be running the Great North Run in September for TOFS. Peter Lowe, TOF parent Marc Charnley, TOF parent. You can support Marc here Chris Prickett, TOF parent Gerald ... [Read more] -
Giving Tuesday
Published: Tue, 21st April 2020, 01:14 PM During the Covid-19 outbreak TOFS will continue to be here to support you all. We are regularly updating the Coronavirus news page on www.tofs.org.uk, where you’ll find information and advice from some of our patrons a ... [Read more] -
EAT Covid-19 survey
Published: Mon, 20th April 2020, 01:31 PM This phase of the study has now closed. We will provide further updates when it reopens. Are you an adult TOF/parent of a TOF who has either a confirmed diagnosis or suspects they have contracted Covid-19? EAT has developed a sur ... [Read more]