News
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Wow, thank you for running for TOFS!
Published: Tue, 1st December 2020, 07:59 AM 2020 may not have been a ‘normal’ year but that hasn’t stopped our fantastic TOFS members from achieving their fundraising goals! This year the London Marathon and Great North Run have been virtual events, ... [Read more] -
Coronavirus
Published: Mon, 30th November 2020, 10:40 AM We understand that many people born with OA/TOF (and families of those born with the conditions) are concerned about the fast-evolving situation caused by the coronavirus. (Please note:This page is updated regularly as new inform ... [Read more] -
Help to improve understanding of feeding issues experienced by those born with OA/TOF
Published: Tue, 10th November 2020, 01:41 PM What is SaFE and who is involved? SaFE is a PhD project being carried out by Alexandra Stewart, a speech and language therapist, alongside a team of researchers at Great Ormond Street Hospital and University College Londo ... [Read more] -
Useful resources for TOFS members
Published: Mon, 2nd November 2020, 03:19 PM Much has changed over the last eight months and the need to signpost hidden disabilities is becoming increasingly important, especially when it comes to the 'TOF cough'. We've teamed up with the Hidden Disabilities Sunf ... [Read more] -
The impact of Brexit on people travelling to Europe with pre-existing health conditions
Published: Mon, 2nd November 2020, 02:00 PM Despite COVID-19, it is quite possible that some of you will be thinking about holidays next year. It’s also possible that some you travel to Europe for work or family reasons. As you are doubtless aware, on December 31st t ... [Read more] -
Join us for the first ever (virtual) Teddy Toddle
Published: Mon, 19th October 2020, 11:05 AM Teddies aren't mandatory, and neither is toddling - just complete 5k over 5 days to get a fantastic challenger medal (for the first fifty challengers who sign up on our event page)! No matter where you are in the world, you can r ... [Read more] -
TOFS is recruiting! Volunteer and events co-ordinator
Published: Tue, 13th October 2020, 08:53 AM Applications for this position are now closed! Thank you to all who applied, we will be in touch soon. Who we are: Tracheo-Oesophageal Fistula Support (TOFS) is the UK’s only registered charity for people bor ... [Read more] -
Opportunity to take part in research into transition from paediatric to adult care. Please take part!
Published: Wed, 23rd September 2020, 09:58 AM We’re delighted to announce this research study into transitioning from paediatric to adult care in the UK. You can watch a short video about the importance of engagement with the study here. Trainee Clinical ... [Read more] -
Introducing our 2020 Virtual London Marathon runners
Published: Thu, 10th September 2020, 12:49 PM A huge thank you from TOFS to those who took part in the Virtual London Marathon, we hope you feel very proud of yourselves. We look forward to announcing how much has been raised in due course. We are delighted to announce that ... [Read more] -
Introducing our amazing 2020 Virtual Great North Run runners
Published: Mon, 7th September 2020, 11:54 AM A massive thank you to all who took part in the virtual Great North Run on Sunday 13 September. With the help of the official GNR our runners were able to recreate the experience and excitement of the real thing, from an up-beat ... [Read more]