News
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The TOF Book - IS NOW BACK ON SALE!
Published: Thu, 2nd July 2020, 04:00 PM Great news - You can now purchase your copy of our highly reviewed TOF book direct from the TOFS office. Our book "THE TOF BOOK" was published in January 2017. The book is primarily aimed at parents and carers, but also recognise ... [Read more] -
Join our Q&A session about feeding and nutrition!
Published: Thu, 2nd July 2020, 09:25 AM In the latest of our series of online Q&A sessions we're delighted to be talking to TOF mum and Paediatric Dietitian Julia Faulkner, along with Helen Marks, Speech and Language Therapist, on Monday ... [Read more] -
Coronavirus
Published: Tue, 23rd June 2020, 04:20 PM We understand that many people born with OA/TOF (and families of those born with the conditions) are concerned about the fast-evolving situation caused by the coronavirus. (Please note:This page is updated regularly as new inform ... [Read more] -
TOFS 2020 AGM
Published: Tue, 23rd June 2020, 11:07 AM Due to Covid-19, this year’s Annual General Meeting took place over Zoom. Our Chairman Duncan Jackson welcomed everyone and introduced the TOFS trustees and office staff. It was explained that, although the AGM was to discus ... [Read more] -
Book NOW for online support session
Published: Mon, 22nd June 2020, 08:45 AM We're delighted to announce that, to support the OA/TOF community, we will shortly host the second of our Q&A sessions, via Zoom. The session will be free and we hope you can join us. Early booking is essential. ... [Read more] -
Volunteers' Week
Published: Fri, 5th June 2020, 10:50 AM It’s volunteers’ week on 01 – 07 June so we’ll be taking the opportunity to shine the spotlight on a few of our wonderful volunteers! Our volunteers play a huge part in helping TOFS to deliver support and i ... [Read more] -
Please help us with our bid for funding
Published: Thu, 4th June 2020, 09:52 AM It will come as no surprise that TOFS' income has roughly halved during lockdown. No doubt we will be just one of many charities placing a bid for some of the emergency funding that the government has made available. Please help ... [Read more] -
OA/TOF Quality of Life Questionnaire
Published: Tue, 19th May 2020, 02:27 PM Thank you for a fabulous response! UCL GOSH received a fantastic response, following an email sent to our members, and now have 35 volunteers for the study. The initial recruitment is now closed! We will update you whe ... [Read more] -
Talk with TLCs
Published: Mon, 18th May 2020, 03:57 PM We may not be able to meet in person right now, but we're pleased to announce our support for the OA community with the first of a series of 'Talk with TLC' events! Have a look at a short video about Talk with TLCs here. Some of ... [Read more] -
TOFS Annual General Meeting
Published: Thu, 14th May 2020, 09:51 AM We would be delighted to have our Members and Associates join us for the 2020 Annual General Meeting of T.O.F.S. The AGM will be held at 1pm on Saturday 20 June 2020. Due to the current health crisis, the meeting will be held u ... [Read more]