News
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Coronavirus
Published: Thu, 2nd April 2020, 12:40 PM We understand that many people born with OA/TOF (and families of those born with the conditions) are concerned about the fast-evolving situation caused by the coronavirus. (Please note:This page is updated regularly as new inform ... [Read more] -
Welcome to our new TLC’s!
Published: Tue, 24th March 2020, 04:43 PM Fantastic news, more TOFS’ local contacts (TLCs) to support you in your area! Our TLCs are a small group of volunteer members, all parents, with experience of caring for a TOF child on a day-to-day basis. Spread acr ... [Read more] -
Meeting the Gastroenterologists
Published: Mon, 16th March 2020, 11:57 AM As part of our efforts to raise awareness of OA/TOF where it counts most – amongst healthcare professionals who have TOFs amongst their patients – we recently went along to the BSPGHAN (British Society of Paediatric Ga ... [Read more] -
Swallowing Awareness Day!
Published: Mon, 9th March 2020, 01:06 PM It's Swallowing Awareness Day on18 March 2020, and this is a hugely significant day for those born with OA/ TOF. Due to surgery and resulting strictures, dysphagia is an ongoing problem for many and can range from issues wit ... [Read more] -
Thank you for helping us make Awareness Week 2020 great!
Published: Mon, 2nd March 2020, 09:00 AM As you will be aware, the TOFS 2020 Awareness Week ran from 24th February - 1st March, and what a week it was! We are truly amazed by all of your efforts in spreading the word about OA and TOF to the community and medical pr ... [Read more] -
Online survey shows prevalence of anxiety higher amongst Adult TOFs than the general population
Published: Thu, 27th February 2020, 10:10 AM Last year, two MSc students in the Department of Psychology at the University of Bath, Lia Clarke and Caitlin Rabone, conducted research into the psychological wellbeing of adults born with OA/TOF. They were supervised ... [Read more] -
Thank you for applying for a TOFS place in the 2020 Great North Run!
Published: Mon, 24th February 2020, 10:05 AM The application process for a TOFS place in the 2020 Great North Run, (a half-marathon) as now closed! Thank you for your applications. We will notify the successful runners soon. The event takes place on Sunday 13 Se ... [Read more] -
Crystal joins the team at TOFS!
Published: Wed, 12th February 2020, 02:55 PM The latest recruit to the TOFS team is no stranger to some members, because once again, we have recruited our new membership communications and support worker from amongst our membership! Interviews for the position we ... [Read more] -
OA/TOF information afternoon for TOFS 2020 Awareness week at GOSH!
Published: Mon, 27th January 2020, 11:59 AM Friday 28 February 1pm-5pm For all GOSH OA/TOF patients and families and carers In celebration of TOFS 2020 Awareness week please come along to an informal OA/TOF information afternoon at GOSH. Meet other OA/TOF families. ... [Read more] -
Celebrate Rare Disease Day with TOFS' Family Information and Support session in Sheffield!
Published: Wed, 22nd January 2020, 01:00 PM Saturday 29 February, 11am - 1pm in Church of St Columba, 503 Manchester Road, Crosspool, Sheffield, S10 5PL. Bookings now open! (Please note change of location from that previously advertised.) This year, the TOFS 2020 A ... [Read more]