News
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TOFS' 2019 AGM and Children's Party on Saturday 23 March
Published: Wed, 6th March 2019, 10:40 AM Bookings are now closed. Thank you to everybody who has booked and we look forward to seeing you there! INVITATION TO OUR 2019 AGM AND CHILDREN'S PARTY We are delighted to invite all our Members and Associates to our for ... [Read more] -
End of Year Results of Specialist Healthcare Survey for Children
Published: Wed, 6th March 2019, 10:20 AM Results of 'Specialist Healthcare Survey for Children' Thank you kindly to everyone who took the time to respond to our request back in April to complete a WellChild and University of Oxford survey about providing 'specialis ... [Read more] -
Prestigious invitation to GOSH Biomedical Research Centre Showcase for TOFS Trustee Graham Slater
Published: Mon, 4th March 2019, 10:21 AM We are delighted that our Trustee Graham Slater has received an invitation on behalf of TOFS to attend the NIHR Great Ormond Street Hospital Biomedical Research Centre Showcase event. The NIHR is the National Institute f ... [Read more] -
Research project investigating feeding and swallowing with TOF/OA
Published: Sat, 2nd March 2019, 10:10 AM Research project investigating feeding and swallowing in TOF/OA Alex Stewart, a Speech and Language Therapist at Great Ormond Street Hospital, has secured funding from the National Institute of Health Research to conduct a 5 ... [Read more] -
Bigthinkers raise BIG amount for TOFS!
Published: Fri, 1st March 2019, 03:30 PM Bigthinkers marketing studio in Notts threw their doors open last week to fundraise for TOFS. Delicious coffee and cake was on offer - in aid of TOFS - because one of their employees is the dad to a TOF. Graphic Design ... [Read more] -
Introducing our amazing Great North Run runners
Published: Fri, 1st March 2019, 11:11 AM CONGRATULATIONS TO OUR GREAT NORTH RUNNERS More information about our runners will be posted soon, but we are delighted to announce that the following people will be running the Great North Run in September for TOFS: Natasha B ... [Read more] -
TOFS and Research
Published: Fri, 1st March 2019, 09:07 AM 'Behind the scenes – cooperating with researchers' by TOFS Trustee Graham Slater, reprinted from CHEW Summer 2018 It may surprise you but OA is a relatively high priority for medical researchers across the world. Qu ... [Read more] -
Rare Disease Day, 28 February 2019
Published: Thu, 28th February 2019, 09:00 AM Rare Disease Day 28 February 2019 We are delighted to support Rare Disease Day (28 February 2019). Thank you so much to everyone who has shared our Rare Disease Day images on social media. There is still time to ... [Read more] -
LAST CHANCE to take part in important survey re TOF/OA and a 'lost twin'
Published: Wed, 27th February 2019, 12:16 PM OUR SURVEY CLOSED THURSDAY 28 FEBRUARY TOFS invited parents who have had children born with TOF/OA to take part in this very short preliminary survey to better understand the possible link between these conditions and a ‘lo ... [Read more] -
Congratulations to Harriet, an Ouch! Award Hero
Published: Mon, 4th February 2019, 11:50 AM Congratulations to Harriet, age 10! Dr Chris and Dr Xand, from the hit children's BBC TV show Operation Ouch!, explore the ins and outs of the human body using experiments. Our member, Harriet, who didn't eat until she was n ... [Read more]