News

  • Opportunity to take part in a Department of Health Survey

    Published: Fri, 18th October 2019, 10:10 AM The Department of Health has launched a Survey which aims to identify the major challenges faced by rare disease patients. Please do follow the link to complete the survey bit.ly/2oOOiPe It's your opportunity to tell the gov ... [Read more]
  • Update on research into training and support for children with feeding tubes

    Published: Thu, 17th October 2019, 10:30 AM University of Oxford PhD student Bethan Page, recently submitted a poster updating us on her research exploring how to better prepare and support parents to provide complex medical care for children, both practically and emotional ... [Read more]
  • Rosalind joins the team at TOFS!

    Published: Wed, 16th October 2019, 10:37 AM We are pleased to welcome Rosalind Nicklin onto the TOFS team as Volunteer and Projects Co-ordinator. Rosalind comes to us having previously worked as an Occupational Therapist in the NHS, providing care and support to people of ... [Read more]
  • Don't forget your flu vaccine, recommended for all TOFs - regardless of age!

    Published: Fri, 11th October 2019, 11:10 AM That's just one of the key messages from the healthcare professionals at the TOFS 2019 Conference which took place on Saturday 5 October.   Public Health England routinely measure the vaccine effectiveness (VE) of the f ... [Read more]
  • Apply NOW to run for TOFS in the 2020 London Marathon!

    Published: Mon, 7th October 2019, 01:33 PM The application process to run the 2020 London Marathon for TOFS is now open and we'd love to hear from you!  Just complete the application form and return to TOFS by 30th October 2019.  Priority is given to TOFS membe ... [Read more]
  • TOFS appoints CEO

    Published: Mon, 5th August 2019, 02:52 PM Following an extensive strategy review in 2018, TOFS have appointed office manager Diane Stephens to the role of Chief Executive.  Diane will work alongside the trustees to drive TOFS forward into a period of develo ... [Read more]
  • TOFS is recruiting! Volunteer and projects co-ordinator vacancy

    Published: Mon, 5th August 2019, 11:36 AM Many thanks to those who have taken the time to apply for this position.  The shortlisting/interviewing process is ongoing, and we will be in touch with all applicants in due course. Join our small team as we enter a new sta ... [Read more]
  • Face-to-face in Essex (via TOFS Facebook group)!

    Published: Mon, 8th July 2019, 11:58 AM Six TOF families had a lovely time recently at an ‘unofficial’ get-together organised by Anna Hallett, mum to Archie, born with TOF.   Anna says: “We had a lovely meet-up on Sunday 30th June at Woody&r ... [Read more]
  • Introducing our amazing Great North Run runners

    Published: Thu, 30th May 2019, 11:11 AM We are delighted to announce that the following people will be running the Great North Run in September for TOFS.   Natasha Birkett, TOF relative; James Durrant, TOF grandparent; (story and photo to follow) Bre ... [Read more]
  • Book now for the 2019 TOFS Conference!

    Published: Wed, 29th May 2019, 04:43 PM Bookings are now open for the 2019 TOFS Conference.  Only £22 per person (incl refreshments and lunch). Full information and booking available here NOW!  When: Saturday 5th October 2019 Where: The EngineRooms a ... [Read more]
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TOFS is a Registered Charity in England and Wales (327735) and a Private Company Limited By Guarantee without Share Capital, registered in England and Wales (2202260).
Registered address: TOFS, St. George’s Centre, 91 Victoria Road, Netherfield, Nottingham NG4 2NN.
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