News
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TOFS' 2019 AGM on Saturday 23 March
Published: Thu, 10th January 2019, 01:30 PM We are delighted to invite all our Members and Associates to our forthcoming Annual General Meeting. It will be held in central England in the Midlands, at Chase Meadow Community Centre, Narrow Hall Meadow, Warwick, CV3 ... [Read more] -
TOFS 2019 Conference venue announced!
Published: Thu, 20th December 2018, 11:57 AM Save the date for the 2019 TOFS Conference It will be held on Saturday, 5 October, 2019. The venue is The Centre, Birchwood Park near Warrington in the north west of England. It's within a mile of the M6-M62 junction. This venue ... [Read more] -
Successful collaboration between TOFS and EAT benefits TOF/OA patients worldwide
Published: Wed, 5th December 2018, 12:58 PM TOFS is a founder member of EAT, the European Federation of Esophageal Atresia and Tracheo-Esophageal Fistula Support Groups which welcomes associate member groups from all parts of the world. Secretary of TOFS, Graham Slate ... [Read more] -
ESPGHAN recommends regular monitoring to check for reflux in patients with TOF/OA
Published: Tue, 27th November 2018, 09:00 AM In the Spring 2017 edition of our newsletter, Chew, we published a summary of the guidelines that had been issued by ESPGHAN in late 2016, regarding the evaluation and treatment of gastrointestinal and nutritional compli ... [Read more] -
Does your 5-12 year old child have Oesophageal Atresia? Please complete our Survey
Published: Mon, 19th November 2018, 10:05 AM The TaPSOn study is now recruiting parents of 5-12 year-old children with OA/TOF. Dr Wallace at the University of Bath is particularly welcoming responses from fathers! There have been nearly 40 responses already. Thank you ... [Read more] -
Charity Christmas Cards now for sale
Published: Fri, 16th November 2018, 09:00 AM Charity Christmas Cards in aid of TOFS now for sale £8 for 20 cards and envelopes with FREE 2nd class postage in UK You can now purchase these fabulous Christmas Cards in aid of TOFS, and with delightful photos of som ... [Read more] -
Meet our London Marathon 2019 Runners
Published: Wed, 14th November 2018, 12:36 PM LEE BARNARD 'I was born with TOF in 1979 at St Mary's Hospital in Greater Manchester and was operated on the day after. Since then, I've had a few health issues. I had half of my left lung removed in 1983 after choking and floo ... [Read more] -
Patients and healthcare professionals wanted for CONCORD Focus Groups
Published: Wed, 7th November 2018, 12:12 PM CONCORD (CoOrdiNated Care Of Rare Disease) is a research study which aims to investigate how care of people with rare diseases is coordinated in the UK and how patients, their families, and the health care professionals who c ... [Read more] -
Three useful cards - available NOW!
Published: Thu, 1st November 2018, 10:00 AM These useful little cards are just the thing for certain situations that many TOF/OA families and TOF Adults understand well! Request your copies from the TOFS office now, by emailing info@tofs.org.uk. Please include which ... [Read more] -
TOFS - collaborating with the PROFS - in Berlin!
Published: Wed, 31st October 2018, 09:00 AM The ERNICA Surgery and Follow-up Consensus Guidelines workshop - in consultation with TOFS and other European patient support groups - was held in Berlin last week. The workshop was attended by a number of eminent pae ... [Read more]