TOFS Awareness Week - 18th to 26th April 2015

Published: Wed, 7th January 2015, 02:04:00 PM
We challenge you – to raise the profile of TOF/OA and TOFS! TOFS 2015 Awareness Week, 18 – 26 April 2015 may seems like a long way away, but time flies, and this year, we need YOUR help to achieve our Awareness Week goals: Having proof of our TOFS posters displayed in all of the TOF/OA UK Centres Making 60 new health professionals aware of TOF/OA and TOFS A ‘Tea for TOFS’ in every part of the UK! TOFS posters in all of the TOF/OA Centres Thanks to the work of our TLCs and many of you, we know that our posters are already on display in some of the TOF/OA Centres but we need your help to prove it.  We also need you to take the posters to those that don’t yet have them displayed and persuade staff there to put them on their noticeboard. Please join in our Facebook campaign and post a photo of our poster, (with your TOF child perhaps), along with the name of the hospital where the poster is displayed.  If you don’t use Facebook you can still join in – just email the pic to TOFS and we will upload it.  You don’t have to wait until April.  The Facebook campaign will be launched on 1st March and by the end of our Awareness week (26 April) we’re hoping to have photographic proof of the posters displayed in ALL of the centres. The posters can be obtained from the office (email, or you may download it directly from our website and laminate it yourself. A list of all the TOF/OA Centres is at the end of this article.  Ideally, we’d like them in all of the outreach hospitals also.  So if you no longer visit a TOF/OA centre, you can still get involved by displaying them at your local hospital.  Please get involved by requesting a poster now. Raising awareness amongst health professionals We know many of you already raise awareness daily in a variety of ways.   This year we have a specific aim of making at least 60 health professionals aware of TOF/OA during Awareness Week but we can’t do this without your help.  ‘Badges for TOFS’ have donated 60 of their badges for TOFS use.  Thank you!  Please ask us for one, (email and give it to a health professional who doesn’t yet know about TOFS.  It could be a GP, nurse, health visitor, SALT or physio – we don’t mind – as long as health professionals are getting to know about TOFS and TOF/OA!  You could even send us a photo of your favourite health professional wearing it (with their permission of course) and we could upload them to the ‘members only’ section of our website  Please help us to meet our target.  Request a badge now from Tea for TOFS  Simply invite a few neighbours, family or friends for an afternoon tea, to chat over a hot drink and collect donations for TOFS.  Even just a few people add to those who don’t yet know of TOF/OA.  Again, send us your pics so we can publish them on our website!  Please email us for our tea-party pack now!  We’d love to have them happening all over the UK – please make sure your area is represented. Awareness week will start with our AGM and party on Saturday 18 April.  All members are invited to attend the AGM and party.  They will be held probably in the Nottingham area – but we’ll select a venue with good transport links so that as many of you may attend as possible.  Full details will be emailed closer to the time.  Sunday 26th April will finish Awareness Week with the London Marathon.  Can you come along and cheer? (See report elsewhere in Chew). You will have many more ideas in which you can help, so please do get in touch for our Awareness Week packs and press releases.  Don’t forget, if you haven’t time to get involved in raising awareness you can still publicise or contribute to our text campaign – all donations gratefully received.  Just text ‘TOFS15 £10’ to 70070. List of UK TOF/OA Centres Addenbrooke's Hospital, Cambridge Birmingham Children's Hospital BristolRoyalHospital For Children Chelsea and Westminster Healthcare Trust, London EdinburghRoyalHospital for Sick Children GlasgowRoyalHospital for Sick Children GreatOrmondStreetHospital for Sick Children Hull Royal Infirmary JohnRadcliffeHospital, Oxford King's CollegeHospital, London Leeds General Infirmary Leicester Royal Infirmary Norfolk & NorwichUniversityHospital Nottingham University Hospitals NHS Trust Our Lady's Hospital for Sick Children, Dublin Queen Charlotte's & ChelseaHospital, London Royal Aberdeen Children's Hospital Royal Alexandra Children's Hospital, Brighton RoyalBelfastHospital for Sick Children Royal Liverpool Children's Hospital RoyalLondonHospital      

© Tracheo-Oesophageal Fistula Support
TOFS is a Registered Charity in England and Wales (327735) and a Private Company Limited By Guarantee without Share Capital, registered in England and Wales (2202260).
Registered address: TOFS, St. George’s Centre, 91 Victoria Road, Netherfield, Nottingham NG4 2NN.
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