Might Netherlands show the way in treating TOF/OA people?

Published: Thu, 21st June 2018, 10:45:00 AM

Associate Professor Spaander, Erasmus Medical Center

We were delighted to invite Associate Professor Spaander, from the Erasmus Medical Center, Rotterdam, to our Adult TOF Seminar held in London in June 2018. She gave a very interesting talk about the prevalence of Barretts Oesophagus and Oesophageal Cancer for people born with TOF/OA.

Professor Spaander has published some research on these topics - the most-recently published studies worldwide, in fact, which is the main reason why we asked her to speak. The Erasmus Medical Center is something of a centre of excellence in OA. Indeed surgeon Professor Wijnen of the same centre is heavily involved in organising the International Network on EA (INoEA) medical conferences on TOF/OA, and is himself the dad of a TOF child.

Professor Spaander's research showed that Barrett's Oesophagus is far more common amongst TOF/OA people at a younger age than the general population, and that oesophageal cancer (whilst still rare) is far more common amongst TOF/OA people than the general population. 

The way forward?

Considering recommendations from the international expert body The European Society for Paediatric Gastroenterology, Hepatology and Nutrition (ESPHGAN), the Netherlands is now developing an endoscopic screening programme for TOF/OA people. The aim is to catch these problems early. 

Watch out for more information

There will be more information about all of this - and the other presentations given at the seminar - in the next issue of our newsletter Chew, due out in late August.

© Tracheo-Oesophageal Fistula Support
TOFS is a Registered Charity in England and Wales (327735) and a Private Company Limited By Guarantee without Share Capital, registered in England and Wales (2202260).
Registered address: TOFS, St. George’s Centre, 91 Victoria Road, Netherfield, Nottingham NG4 2NN.
Website by Altido

Our team at TOFS is working tirelessly to bring you the latest advice regarding Coronavirus. The support and advice we provide are only possible thanks to kind donations from people like you. If you're able, please consider donating now.