News

Questions about benefits? Ask Dr Ahmed at our TOFS Conference

Published: Thu, 27th September 2018, 09:42:00 AM

Only a week left to book for our TOFS Conference!!

We are delighted to be joined at our forthcoming conference by Dr Kamran Ahmed who has been a General Practitioner in the West Midlands since 2010, and is a parent of a TOF child. He has a longstanding interest in healthcare management, and leads for his local Clinical Commissioning Group as well as working for the Department of Justice on benefit tribunals. Dr Ahmed will talk about 'How to get the best service via your GP' as well as taking questions on benefits.

Don't just listen to the experts at our Conference - ask them questions too!

We have purposely built time into the conference session for discussion and Q&A. What question would YOU like to put to our speakers?

Book your tickets here: http://bit.ly/TOFSConf2018

News Archive

2018
- October
- September
- August
- July
- June
- May
- April
- March

2017
- October
- June
- May
- April
- March
- January

2016

2015

2014

2013

2012

2011

2010

2009

2008

2007

Members' Area

Quick Links

Member Feedback

To all at TOFS, just a really big THANK YOU for being there. All I wanted was just for someone to listen and understand and you were there for me.

Jo Wright, parent of a child born with TOF/OA

We wanted to thank you again for all the support you have given us over the phone and through your newsletter, website and online forum. We have found TOFS an invaluable resource and spread the word wherever we can about the great work you do.

Joanne and John Winspear, parents

The TOFS support group does exactly what it says on the tin! It supports. And that’s a very reassuring feeling - talking to people who have been there. You guys do a wonderful job.

Rachel Simpson, parent

During my working life as a paediatric surgeon I learned as much, if not more about TOF from parents and from TOFS meetings as I did from learned journals.

Leela Kapila, past Vice-President of the Royal College of Surgeons

When I read Chew, I’m encouraged by reading about the positive side of TOF/OA and the achievements of all the children and TOF adults. TOFS, the website, the Forum and Chew have all been a marvellous source of information and encouragement for us.

Rachel and Mark Hayes, parents

Our bumpy ride has been so much easier with TOFS; just listening to other people’s experiences and knowing someone is there.

Charlie and Lesley Cochrane, parents

Useful Links

NHS 111

For when you need urgent medical advice and unable to contact your doctor

Contact - for families with disabled children

UK charity which signposts parents to relevant support groups. CaF also provides resources on a range of issues (including benefits and rights) and offers the support of a Welfare Rights Officer. Directory for specific conditions, rare disorders and UK Family Support Groups.

Skiggle

an online SOS solution system for care-based essentials where members can request immediate assistance in unforeseen circumstances. For example - you are on holiday and find you have forgotten a vital piecce of equipment for your little one. This site may help to locate somebody nearby who can help

Disability Living Allowance

Find out about Disability Living Allowance here.