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TOFS family conference last weekend a HUGE success!

Published: Thu, 27th September 2018, 09:42:00 AM

A very big thank you to our amazing speakers.

One of whom was Dr Kamran Ahmed who has been a General Practitioner in the West Midlands since 2010, and is a parent of a TOF child. He has a longstanding interest in healthcare management, and leads for his local Clinical Commissioning Group as well as working for the Department of Justice on benefit tribunals.

Dr Ahmed was just one of a range of esteemed speakers who gave their time and expertise freely for the day and we are most grateful. Full reports on the topics covered will be published in the next edition of our newsletter, Chew.

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To all at TOFS, just a really big THANK YOU for being there. All I wanted was just for someone to listen and understand and you were there for me.

Jo Wright, parent of a child born with OA/TOF

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Useful Links

Hospital Travel Cost

NHS scheme for help with travel costs for those who qualify

NHS 111

For when you need urgent medical advice and unable to contact your doctor

Adult TOF Facebook Group (endorsed by TOFS)

A (closed) Adult TOF Facebook Group, run by Adult TOF, Faye Baker, and endorsed by TOFS

Contact - for families with disabled children

UK charity which signposts parents to relevant support groups. CaF also provides resources on a range of issues (including benefits and rights) and offers the support of a Welfare Rights Officer. Directory for specific conditions, rare disorders and UK Family Support Groups.