News

LAST FEW TICKETS for our TOFS Conference 2018: bookings CLOSE 3 Oct

Published: Mon, 1st October 2018, 11:15:00 AM

Seven Experts from the TOF community will discuss important topics at our Conference including:

post-repair ops,

genetics,

respiratory issues,

how to get the best service via your GP,

feeding your TOF child, and 

moving on from paediatric care.

 

The TOFS Conference 2018 is on Saturday 13th October 2018 at Holiday Inn, Coventry, M6 J2

  • It is principally for TOF families.
  • Come and hear from expert health care professionals.
  • Network with other TOFS members.

We have a full and interesting day lined up, starting around 9:30 am and ending soon after 4pm.

Book your Tickets here

 

Speakers and Topics

The speakers and MC include three Patrons of TOFS, and three experts from the TOF community.

TOFS' Patron Mr David Crabbe, Consultant Paediatric Surgeon, Leeds General Infirmary, and co-editor of the TOF book (37 five-star reviews on Amazon!), will be chairing the event. Mr Crabbe has been a Consultant Paediatric and Neonatal Surgeon since 1995, specialising in thoracic and upper GI surgery, including OA and oesophageal replacement surgery. He is a Senior Examiner for the intercollegiate specialty board in paediatric surgery, and also co-edits textbooks on paediatric surgery. 

TOFS' Patron Mr Tony Lander, Consultant Paediatric Surgeon and Clinical Director for surgery, Birmingham Children's Hospital, will talk about  ‘Post-repair ops and procedures’. Mr Lander has been a consultant for more than 20 years, and has particular interests in complex GI disease, colorectal surgery and surgery for intestinal failure. He is involved in teaching surgical trainees.

TOFS' Patron Dr Charles Shaw-Smith, Consultant in Clinical Genetics and Honorary Clinical Fellow, University of Exeter Medical School, will speak about the 'Causes of TOF/OA'. Dr Shaw-Smith is a recognised world expert on causes of TOF/OA and the (small) role of genetics in that. He spent several years researching the genetic issues associated with TOF/OA, with some support from TOFS, at the Cambridge Sanger Institute, and has published many papers.

Dr Satish Rao, Deputy Medical Director, Birmingham Women's and Children's Hospital, will talk about 'Respiratory issues faced by TOF children'. Dr Rao has been a specialist respiratory consultant since 2006.  His specialities include chronic cough, bronchiectasis, severe asthma, and looking after children who need technology such as home ventilation.

Dr Kamran Ahmed has been a General Practitioner in the West Midlands since 2010, and is a parent of a TOF child. Dr Ahmed will talk about  How to get the best service via your GP. He has a longstanding interest in healthcare management, and leads for his local Clinical Commissioning Group on commissioning and contracting, as well as working for the Department of Justice on benefit tribunals.

Mrs Julia Faulkner is a Paediatric Dietician for Taunton & Somerset NHS Foundation Trust, and is also a mum of a TOF child. Mrs Faulkner will provide delegates with a template of an individual healthcare plan for them to personalise for their son/daughter and give to nurseries and schools. She will discuss  'Feeding your TOF/OA child: introducing solids and the early years’. Mrs Faulkner has provided some excellent articles for Chew.

Dr Harriet Tucker, Pre-hospital and Emergency Medicine Senior Registrar, and also an Adult TOF, will discuss  "Key messages from the Adult TOF seminar 2018: navigating the transition from paediatric TOF patient to long-term challenges."  Dr Harriet Tucker will offer both a patient and a doctor's perspective on how to bridge the gap, some of the challenges faced, and how to navigate long-term Adult TOF care.

Everyone should get a chance to chat during the conference’s long breaks.  A hot buffet lunch in the hotel’s restaurant is included in the delegate fee.

 

Children

A crèche will be operating (at extra cost) for under-eights.  The conference sessions are not recommended for those under age 11. 

 

Where is it?

The hotel is in Coventry, at postcode CV2 2HP, very close to the junction of the M6 and the A46/M69. Coventry railway station is the closest, on the mainline between London and Birmingham. Birmingham International Airport is only 15 minutes away by car.

Our conference will take place in the hotel’s dedicated ‘Academy’ conference suite.

 

Travelling from afar?

If you are travelling from far away you may wish to stay locally. We understand that the Conference hotel may be fully booked for the Saturday and that there is limited availability for the Friday night. Please check with the hotel directly: Holiday Inn Coventry. Some members, including several of the Trustees, are likely to stay in the hotel on the Friday night.  The hotel has a gym and swimming pool. Car parking is free for conference delegates.

 

Bookings open now– just £20 per adult 

This venue is a little smarter and significantly larger than the Luton hotel we used in 2017. We have decided to subsidise the delegate rates to TOFS members down to just £20 so as to make it possible for the maximum number of TOF/OA families to attend.

 

Book your tickets here

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TOFS is a Registered Charity in England and Wales (327735) and a Private Company Limited By Guarantee without Share Capital, registered in England and Wales (2202260).
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