News

TOFS support a TOF's research!

Published: Mon, 22nd October 2018, 09:00:00 AM

We are pleased to say that TOFS Trustees have recently agreed in principle that the charity should give some financial support to Dr. Vuokko Wallace, who is researching psychological impacts of TOF/OA on families.

Some while ago, we decided to dedicate some £20,000 for research.  Vuokko’s project is expected (over 4 years or so) to use up a fair proportion of this amount.

Vuokko is a Clinical Psychologist, working in the NHS.  She is also an Adult TOF.  She spoke at the 2017 TOFS conference, and the 2018 Adult seminar.  As the first stage of her work, many members have already completed her questionnaires – thanks!  She has now registered to do this work as part of a PhD degree.  The limited support from TOFS should make the project happen much more speedily than would otherwise be the case. We are expecting a wider and greater degree of interest from healthcare professionals because there will be more published papers about this previously virtually unresearched aspect of living with TOF/OA.  The end objective is to set up some online support tools which TOFS members can use themselves.

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TOFS is a Registered Charity in England and Wales (327735) and a Private Company Limited By Guarantee without Share Capital, registered in England and Wales (2202260).
Registered address: TOFS, St. George’s Centre, 91 Victoria Road, Netherfield, Nottingham NG4 2NN.
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