Meet our London Marathon 2019 Runners

Published: Wed, 14th November 2018, 12:36:00 PM


'I was born with TOF in 1979 at St Mary's Hospital in Greater Manchester and was operated on the day after.

Since then, I've had a few health issues. I had half of my left lung removed in 1983 after choking and flooding my lung. In April 2015, I had a blood clot in my leg and this meant I needed to become more active.

I started running as a result of Parkrun starting near me in Cannock Chase in November 2016. I had done a few Manchester 10ks back in the 2000s, and since 2016, I have done around 30-40 5k runs and 10k runs. 

I am delighted to be running for TOFs to raise awareness.'



See Lee's MyDonate page here:


'Hi, I’m Angela, mum to TOF Jenson and super excited to have the opportunity to attempt running the London Marathon for TOFS.

Jenson is 11 now, and whilst he is really well, he like so many of our TOFS, has faced so many challenges and battles including theatre trips, surgeries, a gastrostomy, tracheostomy and too many infections/hospital stays to even count! Even though he didn’t eat until he was 8, he has faced all of this with a smile on his face and has truly beaten the odds!

Jenson is my inspiration every day. After watching him finish the Junior GNR last year I really wanted to do something which would make him as proud of me as I am of him (and raise a shed load more money for TOFS!). So....this is that challenge, whilst I like to run, I have never attempted anything on this scale. I'm hoping that lots of training, the sponsorship and Jenson waiting at the finish line will all spur me on.  I am always grateful for the support from our TOFS family (especially our NE group!) so if anyone fancies sponsoring me or joining me on some training runs give me a shout!'




Coming soon.



'I’m mum to 7yr old TOF Thomas, his 4 year old brother Matthew and 13 year old sister Charlotte.  I work full time plus help out with the PTA at the children’s Primary School.  It’s fair to say that I’m not a natural athlete, I’m far more comfortable having wine or coffee and cake with friends than running!

I watched the 2017 London Marathon on the TV and realised I could potentially raise a lot of money for TOFS, so I started running in September 2017 with a local running group in their 0-5km group.  I then progressed onto an intervals group with a 10km race in mind.  Over the last six months I have managed to build up to complete the Birmingham Half Marathon.  I tend to do run / walk intervals and will be found at the back of the crowd rather than leading the pack.  I will only be doing a marathon once and aim to make the most of this fantastic opportunity!'



See Danielle's MyDonate Page:


Coming soon.


Coming soon.

See Kirsty's MyDonate page here:


'I was inspired to (attempt to!) run the marathon for TOFS for my son Charlie when I attended the TOFS annual Conference. We have had our share of very low lows as I'm sure most TOF parents have. The emergency after birth, the major surgery and repair, and the hope for recovery. The choking on feeding, and the chest infections leading to pneumonia.

The Conference brings you together with others who have experienced similar and many far more serious and constant issues. The fact that this charity brings us parents together to know we are not the only ones dealing with these challenges is reassuring in itself. And the fact that TOFS can attract such high calibre medical people both to the Conference, and to write for the TOFS Book and materials, shows that money raised is well spent. We have used the help from other parents and the TOFS materials in dealing with weaning and stickies and much more.

So, I'm running for Charlie who is doing really well now and whose cheeky smile lights up our world. I'm also running for the charity TOFS who I know will spend the money raised well.'



View James' MyDonate page here:

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