News

Patients and healthcare professionals wanted for CONCORD Focus Groups

Published: Wed, 7th November 2018, 12:12:00 PM

CONCORD (CoOrdiNated Care Of Rare Disease) is a research study which aims to investigate how care of people with rare diseases is coordinated in the UK and how patients, their families, and the health care professionals who care for them would like care to be coordinated. CONCORD are now recruiting for focus groups for patients and healthcare professionals.

 

FOCUS GROUPS FOR PATIENTS AND CARERS

11 December 2018 (Online)
6 February 2019 (Birmingham, travel and childcare costs reimbursed)


The purpose of these focus groups will be to develop our understanding of information that is already available about coordinated care for rare diseases. The findings will inform the development of a survey which will be sent to patients, carers and health care professionals later in the study. The focus groups will take two hours.

FOCUS GROUP FOR HEALTHCARE PROFESSIONALS

23 January or 29 January 2019
11:30 - 14:00 (London, travel costs reimbursed)


The purpose of this focus group will be to validate and develop our understanding of findings from existing research. The findings will inform the development of a survey which will be distributed to patients, carers and health care professionals later in the study. The focus group will take two hours.

If you would like to take part in this research or would like to ask further questions, please contact Holly Walton: holly.walton@ucl.ac.uk / 0203 108 3068

Please note: It is possible that not everyone who wants to will be able to take part. CONCORD will ask you some basic questions about you and your role. This is to help them with selecting participants for the study so that, if they cannot manage to include everybody, they will be able to include a broad range of people and conditions.

© Tracheo-Oesophageal Fistula Support
TOFS is a Registered Charity in England and Wales (327735) and a Private Company Limited By Guarantee without Share Capital, registered in England and Wales (2202260).
Registered address: TOFS, St. George’s Centre, 91 Victoria Road, Netherfield, Nottingham NG4 2NN.
Website by Altido