News

Three useful cards - available NOW!

Published: Thu, 1st November 2018, 10:00:00 AM

These useful little cards are just the thing for certain situations that many TOF/OA families and TOF Adults understand well!

Request your copies from the TOFS office now, by emailing info@tofs.org.uk. Please include which cards you'd like (swallow, cough and/or toilet) and it is important you include your address (even if you are already a member of the TOFS charity.)

We may not be able to reply to your email, but the cards will be posted within 7 working days. We hope that soon, you may be able to download them from the resource page of our website too.

Pictured are the covers of the three credit card-sized cards. There's lots more information inside! Special thanks to Vicki Martin for her valuable input and design.

News Archive

2019
- August
- July
- May
- April
- March
- February
- January

2018
- December
- November
- October
- September
- August
- July
- June
- May
- March

2017

2016

2015

2014

2013

2012

2011

2010

2009

2008

2007

Members' Area

Quick Links

Member Feedback

To all at TOFS, just a really big THANK YOU for being there. All I wanted was just for someone to listen and understand and you were there for me.

Jo Wright, parent of a child born with TOF/OA

We wanted to thank you again for all the support you have given us over the phone and through your newsletter, website and online forum. We have found TOFS an invaluable resource and spread the word wherever we can about the great work you do.

Joanne and John Winspear, parents

The TOFS support group does exactly what it says on the tin! It supports. And that’s a very reassuring feeling - talking to people who have been there. You guys do a wonderful job.

Rachel Simpson, parent

During my working life as a paediatric surgeon I learned as much, if not more about TOF from parents and from TOFS meetings as I did from learned journals.

Leela Kapila, past Vice-President of the Royal College of Surgeons

When I read Chew, I’m encouraged by reading about the positive side of TOF/OA and the achievements of all the children and TOF adults. TOFS, the website, the Forum and Chew have all been a marvellous source of information and encouragement for us.

Rachel and Mark Hayes, parents

Our bumpy ride has been so much easier with TOFS; just listening to other people’s experiences and knowing someone is there.

Charlie and Lesley Cochrane, parents

Useful Links

Hospital Travel Cost

NHS scheme for help with travel costs for those who qualify

NHS 111

For when you need urgent medical advice and unable to contact your doctor

Adult TOF Facebook Group (endorsed by TOFS)

A (closed) Adult TOF Facebook Group, run by Adult TOF, Faye Baker, and endorsed by TOFS

Contact - for families with disabled children

UK charity which signposts parents to relevant support groups. CaF also provides resources on a range of issues (including benefits and rights) and offers the support of a Welfare Rights Officer. Directory for specific conditions, rare disorders and UK Family Support Groups.