News

Three useful cards - available NOW!

Published: Thu, 1st November 2018, 10:00:00 AM

These useful little cards are just the thing for certain situations that many TOF/OA families and TOF Adults understand well!

Request your copies from the TOFS office now, by emailing info@tofs.org.uk. Please include which cards you'd like (swallow, cough and/or toilet) and it is important you include your address (even if you are already a member of the TOFS charity.)

We may not be able to reply to your email, but the cards will be posted within 7 working days. We hope that soon, you may be able to download them from the resource page of our website too.

Pictured are the covers of the three credit card-sized cards. There's lots more information inside! Special thanks to Vicki Martin for her valuable input and design.

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To all at TOFS, just a really big THANK YOU for being there. All I wanted was just for someone to listen and understand and you were there for me.

Jo Wright, parent of a child born with TOF/OA

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Useful Links

Adult TOF Facebook Group (endorsed by TOFS)

A (closed) Adult TOF Facebook Group, run by Adult TOF, Faye Baker, and endorsed by TOFS

NHS 111

For when you need urgent medical advice and unable to contact your doctor

Contact - for families with disabled children

UK charity which signposts parents to relevant support groups. CaF also provides resources on a range of issues (including benefits and rights) and offers the support of a Welfare Rights Officer. Directory for specific conditions, rare disorders and UK Family Support Groups.

Skiggle

an online SOS solution system for care-based essentials where members can request immediate assistance in unforeseen circumstances. For example - you are on holiday and find you have forgotten a vital piecce of equipment for your little one. This site may help to locate somebody nearby who can help