News

LAST CHANCE to take part in important survey re TOF/OA and a 'lost twin'

Published: Wed, 27th February 2019, 12:16:00 PM

OUR SURVEY CLOSED THURSDAY 28 FEBRUARY

TOFS invited parents who have had children born with TOF/OA to take part in this very short preliminary survey to better understand the possible link between these conditions and a ‘lost twin’.  All mums were invited to take part, regardless of whether their TOF is still a baby, child, teenager or now a TOF Adult.

This excerpt is from from ‘The TOF Book' in the chapter written by Consultant Clinical Geneticist Charles Shaw-Smith: 'Data from one study showed that a child from a twin pregnancy is nearly three times more likely to have TOF/OA than a child from a singleton pregnancy…  It is possible that some cases of TOF/OA occur in one twin where the co-twin was lost at an earlier stage of pregnancy and may not have been appreciated either by the mother or the doctors looking after her.'

Results of this survey will be reported in our newsletter Chew which is free to all members. If you are not a member of our charity yet you can join here for free

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TOFS is a Registered Charity in England and Wales (327735) and a Private Company Limited By Guarantee without Share Capital, registered in England and Wales (2202260).
Registered address: TOFS, St. George’s Centre, 91 Victoria Road, Netherfield, Nottingham NG4 2NN.
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