News

Research project investigating feeding and swallowing with TOF/OA

Published: Sat, 2nd March 2019, 10:10:00 AM

Research project investigating feeding and swallowing in TOF/OA

Alex Stewart, a Speech and Language Therapist at Great Ormond Street Hospital, has secured funding from the National Institute of Health Research to conduct a 5-year project in TOF/OA. The project aims to better define and understand the type of swallowing difficulties that children with TOF/OA have, and to understand how these difficulties impact on establishing oral feeding at home. The project starts in May 2019.

Alex said, "I'm very pleased to have received funding to investigate this important area. I hope that the information we get will help develop a care pathway to help children and their families get the right help, at the right time, from the right people. I also wish to provide health professionals with the data needed to develop better intervention and therapy for feeding difficulties.

I would like to thank TOFS and the families that helped me design the project, and am looking forward to being able to update you with how the project is progressing."

 

Would you like to help?

To help ensure the project is as relevant and useful as possible to those with TOF/OA, Alex is keen to have two more families to join the project's steering group. This would involve coming to half day meetings in London approximately once a year for the next five years. You would be paid for your time, travel and childcare. If you are interested in finding out more about the project or being part of the steering group please contact Alex by email (alex.stewart@gosh.nhs.uk) or by phone 020 7813 8110.

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