Opportunity to take part in a Department of Health Survey

Published: Fri, 18th October 2019, 10:10:00 AM

The Department of Health has launched a Survey which aims to identify the major challenges faced by rare disease patients. Please do follow the link to complete the survey

It's your opportunity to tell the government about the things that matter to the TOF/OA community, such as: 

  • Lack of coordination of care between different hospital specialists
  • Lack of adequate provision for transition from child to adult services
  • Lack of availability and provision of wider support for rare disease e.g. social care provision, special educational support

The survey only takes about ten to twenty minutes - well worth it if it helps influence strategy for rare diseases in the future. 

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TOFS is a Registered Charity in England and Wales (327735) and a Private Company Limited By Guarantee without Share Capital, registered in England and Wales (2202260).
Registered address: TOFS, St. George’s Centre, 91 Victoria Road, Netherfield, Nottingham NG4 2NN.
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