Take part in this survey - highlight failings in how care is coordinated for TOF/OA patients

Published: Thu, 24th October 2019, 10:40:00 AM

Here's another survey we'd love you to complete to highlight failings in how care is coordinated for TOF/OA patients, especially at time of transition.

The COordiNated Care Of Rare Diseases (CONCORD) study is based at UCL, and aims to investigate how care of people of rare diseases is coordinated in the UK and how patients and families - and the healthcare professionals who treat them - would like care to be coordinated. 

For more information please follow this link 

Just click this  to take part in the survey.  It will take around 30 minutes but it's important to have your say. 

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