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OA/TOF information afternoon for TOFS 2020 Awareness week at GOSH!

Published: Mon, 27th January 2020, 11:59:00 AM

Caroline Gainsbury, Surgical Complex Care CNS

Friday 28 February 1pm-5pm

Thank you to all GOSH OA/TOF patients, families and carers who attended this event.

In celebration of TOFS 2020 Awareness week please come along to an informal OA/TOF information afternoon at GOSH.

Meet other OA/TOF families.
In attendance will be nurse specialists, dietitians, psychologists and speech and language therapists, all of whom will be glad to discuss any OA/TOF related issues and answer your questions.

Alex Stewart, Specialist Speech and Language Therapist at GOSH

Throughout the day there will be: refresher BLS sessions, diet/weaning advice and schools/nursery support.

For further information, or if you are interested in attending, please email: Surgical.OutreachTeam@gosh.nhs.uk

Please note that this event is strictly for patients of Great Ormond Street Hospital only. Bookings may only be made via the email address above.

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To all at TOFS, just a really big THANK YOU for being there. All I wanted was just for someone to listen and understand and you were there for me.

Jo Wright, parent of a child born with OA/TOF

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During my working life as a paediatric surgeon I learned as much, if not more about TOF from parents and from TOFS meetings as I did from learned journals.

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Our bumpy ride has been so much easier with TOFS; just listening to other people’s experiences and knowing someone is there.

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Useful Links

Hospital Travel Cost

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NHS 111

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Adult TOF Facebook Group (endorsed by TOFS)

A (closed) Adult TOF Facebook Group, run by Adult TOF, Faye Baker, and endorsed by TOFS

Contact - for families with disabled children

UK charity which signposts parents to relevant support groups. CaF also provides resources on a range of issues (including benefits and rights) and offers the support of a Welfare Rights Officer. Directory for specific conditions, rare disorders and UK Family Support Groups.