News

OA/TOF information afternoon for TOFS 2020 Awareness week at GOSH!

Published: Mon, 27th January 2020, 11:59:00 AM

Caroline Gainsbury, Surgical Complex Care CNS

Friday 28 February 1pm-5pm

For all GOSH OA/TOF patients and families and carers

In celebration of TOFS 2020 Awareness week please come along to an informal OA/TOF information afternoon at GOSH.

Meet other OA/TOF families.
In attendance will be nurse specialists, dietitians, psychologists and speech and language therapists, all of whom will be glad to discuss any OA/TOF related issues and answer your questions.

Alex Stewart, Specialist Speech and Language Therapist at GOSH

Throughout the day there will be: refresher BLS sessions, diet/weaning advice and schools/nursery support.

For further information, or if you are interested in attending, please email: Surgical.OutreachTeam@gosh.nhs.uk

Please note that this event is strictly for patients of Great Ormond Street Hospital only. Bookings may only be made via the email address above.

News Archive

2020
- February
- January

2019
- December
- November
- October
- August
- July
- May
- April
- March
- February
- January

2018

2017

2016

2015

2014

2013

2012

2011

2010

2009

2008

2007

Members' Area

Quick Links

Member Feedback

To all at TOFS, just a really big THANK YOU for being there. All I wanted was just for someone to listen and understand and you were there for me.

Jo Wright, parent of a child born with TOF/OA

We wanted to thank you again for all the support you have given us over the phone and through your newsletter, website and online forum. We have found TOFS an invaluable resource and spread the word wherever we can about the great work you do.

Joanne and John Winspear, parents

The TOFS support group does exactly what it says on the tin! It supports. And that’s a very reassuring feeling - talking to people who have been there. You guys do a wonderful job.

Rachel Simpson, parent

During my working life as a paediatric surgeon I learned as much, if not more about TOF from parents and from TOFS meetings as I did from learned journals.

Leela Kapila, past Vice-President of the Royal College of Surgeons

When I read Chew, I’m encouraged by reading about the positive side of TOF/OA and the achievements of all the children and TOF adults. TOFS, the website, the Forum and Chew have all been a marvellous source of information and encouragement for us.

Rachel and Mark Hayes, parents

Our bumpy ride has been so much easier with TOFS; just listening to other people’s experiences and knowing someone is there.

Charlie and Lesley Cochrane, parents

Useful Links

Hospital Travel Cost

NHS scheme for help with travel costs for those who qualify

NHS 111

For when you need urgent medical advice and unable to contact your doctor

Adult TOF Facebook Group (endorsed by TOFS)

A (closed) Adult TOF Facebook Group, run by Adult TOF, Faye Baker, and endorsed by TOFS

Contact - for families with disabled children

UK charity which signposts parents to relevant support groups. CaF also provides resources on a range of issues (including benefits and rights) and offers the support of a Welfare Rights Officer. Directory for specific conditions, rare disorders and UK Family Support Groups.