News

Meeting the Gastroenterologists

Published: Mon, 16th March 2020, 11:57:00 AM

As part of our efforts to raise awareness of OA/TOF where it counts most – amongst healthcare professionals who have TOFs amongst their patients – we recently went along to the BSPGHAN (British Society of Paediatric Gastroenterology, Hepatology and Nutrition) conference, and had a stand in their exhibition.  The stand was operated over the three days by staff member Anna Clark, Trustee John Pearce and member Julia Faulkner.

As you would expect, we met many Gastroenterologists and many admitted to having OA children as patients. The majority of these knew that a support group exists for OA/TOF, but none had met with us before.

We asked all our visitors about UK adoption of the NASPGHAN/ESPGHAN guidelines (see Chew – Spring 2017 ), which were internationally developed and endorsed as comprehensive good practice for the care for OA people - young and old.  TOFS wants to see these guidelines used widely here at home.

We made a number of good contacts, in particular we had a good chat with the president of BSPGHAN and the chair of BSPGHAN’s gastroenterology committee. We met several other consultant gastroenterologists, and some pharmacists, too.

There will be a more detailed report in the next issue of Chew -with links to the full published paper, which is freely available.

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TOFS is a Registered Charity in England and Wales (327735) and a Private Company Limited By Guarantee without Share Capital, registered in England and Wales (2202260).
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