Volunteers' Week

Published: Fri, 5th June 2020, 10:50:00 AM

For volunteers’ week on 01 – 07 June we took the opportunity to shine the spotlight on a few of our wonderful volunteers! Our volunteers play a huge part in helping TOFS to deliver support and information to our members, we couldn’t do it without you! #volunteersweek

We’d like to say a huge thank you to our wonderful birthday Fairy Deepti. She works tirelessly to send birthday cards (e-cards at present) to all young TOFs (aged under 6). We love to see your birthday photos shared on the Facebook group! 

“When my son was born with VACTERL in November 2017, I had to change my plans for going back to work full time due to all the hospital appointments, planned surgeries etc.  I’d never really stayed at home before and struggled with this and wanted to find a volunteer role that offered some flexibility. When I spoke to Diane at the TOFS AGM in 2018, I asked about volunteering and she mentioned the role of the birthday fairy. It was perfect - I got to do something that made me feel useful, the timings were flexible and most importantly I got to put a smile on children and parents faces” – Deepti Grover, TOFS Birthday Fairy

Thank you to our fantastic team of TOF’s Local Contacts (TLCs). All of our TLCs are experienced TOF parents and their role is to organise events in the community, visit hospitals and represent us at various medical events. Our TLCs will also be hosting our new virtual ‘Talk with TLCs’ events, which will be held on Zoom. Find out more about them here. We’d love a TLC in each area where there is an OA/TOF centre and are still recruiting for Aberdeen, Hull, Birmingham, Oxford and Londonderry, NI! Email us on for more information. 

"When something bad and unexpected happens, you have to overcome it, accept it and then make good of it. Being a TLC is something good that came from those difficult early days.....  good for me, and hopefully good for every TOF family I get to help" - Rebecca Crofts, TLC for Yorkshire

We want to highlight the fabulous work of our volunteer contributors to our members’ newsletter Chew. Our team work on a variety of tasks such as writing content, editorial and researching and compiling glossary terms to help our members. As well as this we love to include stories written by our TOF parents and adult TOF members. Please email if you’d like to share your story! 

“I’m delighted to be able to take up opportunities such as becoming the newest member of the Chew editorial board” - Sheena Greco

© Tracheo-Oesophageal Fistula Support
TOFS is a Registered Charity in England and Wales (327735) and a Private Company Limited By Guarantee without Share Capital, registered in England and Wales (2202260).
Registered address: TOFS, St. George’s Centre, 91 Victoria Road, Netherfield, Nottingham NG4 2NN.
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