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Supporting the OA/TOF comunity with online Q&A sessions

Published: Tue, 25th August 2020, 02:33:00 PM

Prof Paolo De Coppi - Consultant Paeditric Surgeon, Great Ormond Street Hospital for Children

June saw the start of a series of Q&A sessions, designed to support members during the turbulent times in lockdown. The TOFS annual conference is a huge event in our calendar, but regrettably we felt we had no alternative but to postpone the event in 2020, until 16 October 2021, and a series of Q&A sessions were planned to fill this gap.

These are video conference sessions provided on the Zoom platform, where TOFS chair Duncan Jackson puts a range of members’ questions to distinguished guests.

Prof Alyn Morice - Head of Cardiorespiritory Studies at Hull York Medical School, University of Hull

In the first Q&A, we hosted a session with Prof De Coppi from Great Ormond Street for parents and carers. Early July saw a session with Prof Alyn Morice from Hull who responded to questions from Adult TOFs. We are incredibly grateful to both Prof De Coppi and Prof Morice for their time, and look forward to bringing more sessions during 2020 and into 2021.

You can view a selection of the questions asked during the sessions here.

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Useful Links

Hospital Travel Cost

NHS scheme for help with travel costs for those who qualify

NHS 111

For when you need urgent medical advice and unable to contact your doctor

Adult TOF Facebook Group (endorsed by TOFS)

A (closed) Adult TOF Facebook Group, run by Adult TOF, Faye Baker, and endorsed by TOFS

Contact - for families with disabled children

UK charity which signposts parents to relevant support groups. CaF also provides resources on a range of issues (including benefits and rights) and offers the support of a Welfare Rights Officer. Directory for specific conditions, rare disorders and UK Family Support Groups.