TOFS is recruiting! Volunteer and events co-ordinator

Published: Tue, 13th October 2020, 08:53:00 AM

Applications for this position are now closed!  Thank you to all who applied, we will be in touch soon.


Who we are:

Tracheo-Oesophageal Fistula Support (TOFS) is the UK’s only registered charity for people born with conditions that affect the ability to swallow, Oesophageal Atresia and/or Tracheo-Oesophageal Fistula (OA/TOF). 

OA/TOF are congenital malformations that occur in around one in every 3,500 births.  Once considered paediatric conditions; the lifelong consequences of being born with OA/TOF are becoming more widely recognised by the medical community and TOFS supports those born with the conditions and their families/carers.  These are relatively rare diseases, and members turn to us at key moments or challenging times in their lives, be it, when baby’s born, weaning, going to school, leaving paediatric care or experiencing difficulty in adulthood. 

TOFS will celebrate forty years in existence soon.  We recently appointed a CEO to lead our small hardworking team as we enter this new stage of growth and development.  We have come a long way but there is more to be done in providing support for families and adults and increasing understanding of these conditions.  With your help we can make it happen. 

Who we are looking for:

You will be an energetic, engaging and proactive individual, skilled in building relationships and identifying opportunities to improve service for OA/TOF adults and families. This role offers a great opportunity to use your event management experience, attention to detail and excellent written and verbal communications skills to work alongside a passionate and committed group of volunteers.  Please read the associated role profile specification before you apply for the position.

Applications for this job are sought from anyone who is suitably qualified and experienced, and are particularly welcome from those with experience of rare disease, especially OA/TOF.  We expect the right candidate to make the role their own, and there is scope to extend it beyond the profile specification, which is based on 16 hours, to a full time or almost full time position, if you can demonstrate additional skills in fundraising, research or information management.

Job Purpose:

The Volunteer and events co-ordinator plays a key part in contributing to our strategy of increased pastoral support for the OA/TOF community.  This two-pronged role will coordinate the recruitment and development of existing and new volunteers, centering around the network of TOFS’ local contacts (TLCs).  The role will also co-ordinate and manage key events, both online and in person, to benefit the OA/TOF community.

Main Responsibilities:

  1. To recruit and retain volunteers and manage relationships to maximise volunteer output
  2. To coordinate and build awareness and support for our principal volunteer-led project - TOFS’ local contacts (TLCs)
  3. To organise and assist with a programme of events that will extend support to all born with OA/TOF, both online and face-to-face

Hours: Between 16 and 37 hours per week – exact hours and working pattern to be arranged.  Applicants must indicate how many hours they wish to work.  If a full-time or substantially full-time appointment is made, additional responsibilities in line with business requirements will be added to the list above.

Salary: £20,000- £22,500 per annum (pro-rata for part-time)

Where you will be working:

Home-based, with some travel (when the pandemic subsides) to meetings throughout the UK


Please read the role profile specification before applying.


How to apply

Please send your CV and supporting statement to by the end of Thursday 22 October 2020.  CVs without a covering statement will not be considered.  The supporting statement (500 words max) should show why you’d be a great fit for the role, and what you can bring to TOFS in these two key areas: volunteer engagement and event management. Please remember to indicate how many hours you would like to work. If you are seeking a full time (or almost full time) position, please also include your suitability/strengths in relation to fundraising, research or information management.   If you would like to discuss the role further, please contact our chief executive, Diane Stephens on

TOFS will begin screening candidates shortly after the closing date, and the first round of interviews (by telephone) with take place w/c 2 November.  We expect to interview shortlisted candidates (via Zoom), week commencing 9 November.  Early application is encouraged.  We reserve the right to close the advert early, or indeed extend it, if we don’t get the perfect fit.   

TOFS is a non-smoking organisation. We are an equal opportunities employer. Charity Registration number 327735.


* if you have problems accessing the role profile specification document please copy and paste the following link in to your browser:

© Tracheo-Oesophageal Fistula Support
TOFS is a Registered Charity in England and Wales (327735) and a Private Company Limited By Guarantee without Share Capital, registered in England and Wales (2202260).
Registered address: TOFS, St. George’s Centre, 91 Victoria Road, Netherfield, Nottingham NG4 2NN.
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